49:12 The NDIA is making it virtually impossible to have existing friends and family over on a regular basis (because in the shared living arrangement they describe, it usually can't be done). But hey, that's okay, because they're assigning each of us two new friends 😂🤣😅
The problem with registration is the government forces the good providers are forced to pay extremely high costs such as audits and constant reporting on petty things. These costs are passed onto the participants, who end up wasting their budgets. Registered providers also force people to hand over their plans and budgets. The final thing is registered providers end up telling clients what to do, treating any educated person like they are a therapy patient. Some people don’t need ‘capacity building’ shoved down their throats, they just need help with food prep, cleaning, attending hobbies, and gardening/pool maintenance just like anyone without a disability might need.
We had a terrible experience with a registered provider. We are currently accessing independent support workers who have their ABNs and they are so much cheaper than registered providers. This is terrible if all providers are forced to be registered!!!
This issue must get mainstream media saturation for long enough so that the worst recommendations can be exposed and hopefully something done about this issue.
Question: the company responsible for supporting Ann Marie Smith, Integrity Care, were they an NDIS registered support provider? Did being a registered support provider help Ann Marie Smith? No. It killed her.
one of the reasons i use unregistered providers is because it’s so much easier to find queer/trans friendly support workers and people who are across my specific disabilities, and i also like that i can hire people who are disabled themselves; it’s much easier to find people who have the same values and who i feel really comfortable trusting. whenever i’ve tried to use registered providers, they’ve cancelled as soon as they find out that i’m queer.
I have had to educate so many registered providers about quality safety and Participants Privacy and Confidentiality. The Systemic issues within registered providers is horrific. I've been put at risk by registered providers and their SW over and over again.
Thanks to you all. So grateful there are those who can raise their voice on behalf of so many pwd who we can clearly see in this podcast, have pwd interests firmly and sincerely at heart. We need you people conducting these reviews and making policy in NDIS. Glad to know our expectations of the scheme are not unrealistic and that we can rightly be disappointed, afraid and angry about these recommendations. The review $ could have been used to make real difference on the ground. 🤷🏼♀️
I am with NDIS and I want to be able to find my own support workers. In fact, I demand I can do that because it is a very personal job. Those who cannot do that are able to go through an agency that can be either registered or unregistered. Then we all have 'choice and control'
Stated support is a misused form for sure. We must begin with the pathway that makes sure the participant is able to enjoy the support to be the driver of our destiny. Stated should mean we state this dollar figure is able to be taken as granted. To minimise the impact of funding maintenance costs that currently we participants are made to bear. How dare they in so many ways.
Absolutely speechless on the "living alone is not normal" thing. Sure, a lot of people without disabilities live with other people. Quite often they live with partners of their choice or friends of their choice or family of their choice. The long term Congregation and segregation of disabled people has meant that we have fewer opportunities to form the kind of relationships that lead to finding other people we want to live with. The fact that people lose their DSP if they move in with a partner actively works against disabled people living with people of their choice. Where is the recommendation to change that?
@@SummerFoundationLtd I thought Peter was reading from the Review Report but I haven't been able to find what he said about living alone not being normal. Can you tell me where it comes from?
What about shopping around for low cost AT? gone are the days we can go to office works or buntings or kmart. I just don't agree with this, takes away choice and control and independence and the ability to participate in the economy in our own terms. Registration DOES NOT KEEP PARTICIPANTS SAFE. And there is no proof unregistered providers are the ones fraudulently charging participants. And I'm yet to see the safeguards commission actually keep anyone safe anyway! They don't do this well as it is. I don't feel sorry for providers who choose registration, there is assurance that come with that, plus that's a business choice!!
I suggest the participant be assessed as being capable (or not) of managing their affairs and therefore can hire unregistered support workers. I was deemed able to self manage after a long interview with a LAC. I acknowledge some people can and some cannot. However, instead of layers of bureaucracy why not take the simple approach?
Yeah what happened Summer Foundation? I engaged your services and worked with you for some time before you just disappeared from my team! Do you practice what you preach? Was so disappointed and am still alone, no COS, no support. Just a person with significant disability, barely existing, possibly to fade away in a box or an apartment. I still need help.
Hi @thecrookedtrail679, Thank you for contacting us. We want every interaction with Summer Foundation to be a positive one and importantly, one that leads to the best possible outcome. It seems that was not the case for you and we would like to discuss this with you to see if we can help you. If you are comfortable to discuss further, please contact info@summerfoundation.org.au or call us on 1300 626 560.
@SummerFoundationLtd Sure I will try do that tomorrow. Things are much much worse in my life after no one helped me on NDIS in over three years and everyone forgot about me and left me for dead, quite frankly, given the circumstances. And someone submitted the home and living report without my knowledge, input or approval, which was knocked back by NDIA (obviously) and I did not find out for over 9 months. Many of the people speaking on this panel seem to say helpful things about what is needed and I really hope one day I get properly looked at and understood.
So most people who have 1:1 support have requirements that would make it nearly impossible to share house and supporters - safely. Plus it means that they really have another person in the home all the time anyway so they are NOT living alone. (A support person). Where have these people making their recommendations been for the past 40 years? What makes them so qualified to be making such ill informed choices for people that historically have already been overturned as bad practices? Sounds to me like the serviceland voice was only one they could hear. Scratching backs for buddies no doubt.
It's not half obvious once again, that providers are driving registration! They know that it will decrease their competition and increase their income! NDIS registered providers are NOT there to serve participants. They are there to make money! As for consumables, I can get many of the things our daughter needs for half the price that registered providers charge, in department stores or even the supermarket. I love to save money, even for the NDIS! Why should our daughter just become a commodity for a registered provider, because they know that no matter how poor their service is, she cannot go elsewhere for NDIS funded service and goods?!?
49:12 The NDIA is making it virtually impossible to have existing friends and family over on a regular basis (because in the shared living arrangement they describe, it usually can't be done). But hey, that's okay, because they're assigning each of us two new friends 😂🤣😅
What could possibly go wrong? lol
The problem with registration is the government forces the good providers are forced to pay extremely high costs such as audits and constant reporting on petty things. These costs are passed onto the participants, who end up wasting their budgets. Registered providers also force people to hand over their plans and budgets. The final thing is registered providers end up telling clients what to do, treating any educated person like they are a therapy patient. Some people don’t need ‘capacity building’ shoved down their throats, they just need help with food prep, cleaning, attending hobbies, and gardening/pool maintenance just like anyone without a disability might need.
This is such a broken system. Instead of cutting red tape they are adding yellow blue and black tape to make choice and control null and void.
That is so true! Thank you for watching and sharing GT
I cannot understand how they reached these recommendations. We need to make sure that these recommendations do not go forward.
If you don't support the recommendations, you might want to write to the Minister and to your local member of Parliament to raise your concerns GT
Great interview with excellent sources. Well done and thanks for the discussion.
Thank you Jane! Appreciate your support
We had a terrible experience with a registered provider. We are currently accessing independent support workers who have their ABNs and they are so much cheaper than registered providers. This is terrible if all providers are forced to be registered!!!
It is very concerning and inside we need to speak up and be heard. Thank you for commenting and watching! GT
This issue must get mainstream media saturation for long enough so that the worst recommendations can be exposed and hopefully something done about this issue.
I agree, thank you for watching! GT
Question: the company responsible for supporting Ann Marie Smith, Integrity Care, were they an NDIS registered support provider? Did being a registered support provider help Ann Marie Smith? No. It killed her.
Yes, they were a registered provider. We know that registration doesn't keep people safe. GT
one of the reasons i use unregistered providers is because it’s so much easier to find queer/trans friendly support workers and people who are across my specific disabilities, and i also like that i can hire people who are disabled themselves; it’s much easier to find people who have the same values and who i feel really comfortable trusting. whenever i’ve tried to use registered providers, they’ve cancelled as soon as they find out that i’m queer.
I have had to educate so many registered providers about quality safety and Participants Privacy and Confidentiality. The Systemic issues within registered providers is horrific. I've been put at risk by registered providers and their SW over and over again.
Yes, that is a common experience. Thank you for sharing and for watching!
Thanks to you all. So grateful there are those who can raise their voice on behalf of so many pwd who we can clearly see in this podcast, have pwd interests firmly and sincerely at heart. We need you people conducting these reviews and making policy in NDIS. Glad to know our expectations of the scheme are not unrealistic and that we can rightly be disappointed, afraid and angry about these recommendations. The review $ could have been used to make real difference on the ground. 🤷🏼♀️
I am with NDIS and I want to be able to find my own support workers. In fact, I demand I can do that because it is a very personal job.
Those who cannot do that are able to go through an agency that can be either registered or unregistered.
Then we all have 'choice and control'
I live in a regional area with house shortages due to the air b&b industry. Better to live in a shared home than be homeless.
I am glad there are intelligent aware people like yourselves advocating for 'us' ..... thank you
Stated support is a misused form for sure. We must begin with the pathway that makes sure the participant is able to enjoy the support to be the driver of our destiny. Stated should mean we state this dollar figure is able to be taken as granted. To minimise the impact of funding maintenance costs that currently we participants are made to bear. How dare they in so many ways.
Absolutely speechless on the "living alone is not normal" thing. Sure, a lot of people without disabilities live with other people. Quite often they live with partners of their choice or friends of their choice or family of their choice. The long term Congregation and segregation of disabled people has meant that we have fewer opportunities to form the kind of relationships that lead to finding other people we want to live with. The fact that people lose their DSP if they move in with a partner actively works against disabled people living with people of their choice. Where is the recommendation to change that?
You raised some very important issues. Thank you for watching, GT
@@SummerFoundationLtd I thought Peter was reading from the Review Report but I haven't been able to find what he said about living alone not being normal. Can you tell me where it comes from?
NDIS can’t oversee the number of registered providers now.
What about shopping around for low cost AT? gone are the days we can go to office works or buntings or kmart. I just don't agree with this, takes away choice and control and independence and the ability to participate in the economy in our own terms. Registration DOES NOT KEEP PARTICIPANTS SAFE. And there is no proof unregistered providers are the ones fraudulently charging participants. And I'm yet to see the safeguards commission actually keep anyone safe anyway! They don't do this well as it is. I don't feel sorry for providers who choose registration, there is assurance that come with that, plus that's a business choice!!
Perfectly said, thank you for watching and for commenting! GT
I suggest the participant be assessed as being capable (or not) of managing their affairs and therefore can hire unregistered support workers.
I was deemed able to self manage after a long interview with a LAC. I acknowledge some people can and some cannot. However, instead of layers of bureaucracy why not take the simple approach?
Mandates are just absolutely out of line
Yeah what happened Summer Foundation? I engaged your services and worked with you for some time before you just disappeared from my team! Do you practice what you preach? Was so disappointed and am still alone, no COS, no support. Just a person with significant disability, barely existing, possibly to fade away in a box or an apartment. I still need help.
Hi @thecrookedtrail679,
Thank you for contacting us. We want every interaction with Summer Foundation to be a positive one and importantly, one that leads to the best possible outcome. It seems that was not the case for you and we would like to discuss this with you to see if we can help you. If you are comfortable to discuss further, please contact info@summerfoundation.org.au or call us on 1300 626 560.
@SummerFoundationLtd Sure I will try do that tomorrow. Things are much much worse in my life after no one helped me on NDIS in over three years and everyone forgot about me and left me for dead, quite frankly, given the circumstances. And someone submitted the home and living report without my knowledge, input or approval, which was knocked back by NDIA (obviously) and I did not find out for over 9 months. Many of the people speaking on this panel seem to say helpful things about what is needed and I really hope one day I get properly looked at and understood.
Here for it
So most people who have 1:1 support have requirements that would make it nearly impossible to share house and supporters - safely.
Plus it means that they really have another person in the home all the time anyway so they are NOT living alone. (A support person). Where have these people making their recommendations been for the past 40 years? What makes them so qualified to be making such ill informed choices for people that historically have already been overturned as bad practices?
Sounds to me like the serviceland voice was only one they could hear. Scratching backs for buddies no doubt.
It's not half obvious once again, that providers are driving registration! They know that it will decrease their competition and increase their income! NDIS registered providers are NOT there to serve participants. They are there to make money! As for consumables, I can get many of the things our daughter needs for half the price that registered providers charge, in department stores or even the supermarket. I love to save money, even for the NDIS! Why should our daughter just become a commodity for a registered provider, because they know that no matter how poor their service is, she cannot go elsewhere for NDIS funded service and goods?!?