Great podcast George and great timing with the release of the context of the recent Grattan Institute report, Better, safer, more sustainable: How to reform NDIS housing and support (by Sam Bennett and Hannah Orban). Interesting to hear some more details about the options being proposed by Grattan - housemate and host family arrangements. It would be good to hear from participants about their experience of these options compared to living in group homes; to read some evaluation of these options and; talk about the safeguards that are in place to ensure participants' rights are upheld.
This was a fantastic episode. Loved hearing about the people's stories and so wish this kind of thing was available for people with psychosocial disability instead of just people with intellectual disability. About three years ago i tried to start getting ILO, when I first entered the scheme. i got told that people with mental health issues aren't allowed to have overnight support through the scheme. These kinds of support ls would be so brilliant for me. Especially the option of shared equity loan so i could own my own place and get a ling term housemate for support. One of the hardest things is not having consistency of support people in my life. It makes me pull away from getting half the support i actually need to live a good life. I think the NDIS need to stop changing the goalposts on people so that certainty of ongoing funds can be reliable if you work to set this stuff up.
I could have written parts of this word for word. The inconsistent supports and pulling away, my goodness do I get this feeling. Shutting down for self-preservation, pulling away because the trust investment is so one sided, reminders that the supports are paid to be there and battling feelings of worthlessness when they don't turn up, forced to trust judgement of self and world knowing its distorted - so not game to venture out, even levels of resentment creep in. There's a difference between co dependance and reliance. Trying to find enough connecting to trust them, yet know they are in your life one day, gone the next. Or, having 5 different supports all doing the same role poorly on different days, (same one not available) cause they don't have the rapor they need to support effectively. So often, pull away, 'not today' just say no, the reward not worth the mental investment. Yeah. Especially in rural areas.
I live in WA in a Department of Community Disability Housing. I am unable to safely use my kitchen due to Spinabifida and balance issues. WA Government didn't join up to the National Minimum Standards for Disability Housing saying that it would "cost to much". My property has lino directly on the concrete slab. I have constantly been asking Housing to at the very least change the flooring throughout the house to non slip. Dr George, I was wondering if I could please provide me your contact details I would really like to pick your brain on this and other disability housing issues.
Why does the NDIS continue to support the group home model? We got rid of institutions 40 years ago and replaced them with smaller ones that are now owned privately rather than government. My son is in his own place but NDIS will not fully support it and he has a short fall in his funding which we have to cover despite our increasing incapacity as we age. Come on NDIS you can do better.
Why is the SDA funding going to pay-off mortgages of folk without disability. It would be mymuch more economical for our SDA funding oaying off houses that actually suit us. We are meant to have the same rights as able people yet we don't. Semi supports sounds like a con.
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Great podcast George and great timing with the release of the context of the recent Grattan Institute report, Better, safer, more sustainable: How to reform NDIS housing and support (by Sam Bennett and Hannah Orban). Interesting to hear some more details about the options being proposed by Grattan - housemate and host family arrangements. It would be good to hear from participants about their experience of these options compared to living in group homes; to read some evaluation of these options and; talk about the safeguards that are in place to ensure participants' rights are upheld.
This was a fantastic episode. Loved hearing about the people's stories and so wish this kind of thing was available for people with psychosocial disability instead of just people with intellectual disability. About three years ago i tried to start getting ILO, when I first entered the scheme. i got told that people with mental health issues aren't allowed to have overnight support through the scheme. These kinds of support ls would be so brilliant for me. Especially the option of shared equity loan so i could own my own place and get a ling term housemate for support. One of the hardest things is not having consistency of support people in my life. It makes me pull away from getting half the support i actually need to live a good life.
I think the NDIS need to stop changing the goalposts on people so that certainty of ongoing funds can be reliable if you work to set this stuff up.
I could have written parts of this word for word. The inconsistent supports and pulling away, my goodness do I get this feeling. Shutting down for self-preservation, pulling away because the trust investment is so one sided, reminders that the supports are paid to be there and battling feelings of worthlessness when they don't turn up, forced to trust judgement of self and world knowing its distorted - so not game to venture out, even levels of resentment creep in. There's a difference between co dependance and reliance. Trying to find enough connecting to trust them, yet know they are in your life one day, gone the next. Or, having 5 different supports all doing the same role poorly on different days, (same one not available) cause they don't have the rapor they need to support effectively. So often, pull away, 'not today' just say no, the reward not worth the mental investment. Yeah. Especially in rural areas.
@@rubyvictoria7055 yes! I'm semi rural.... it's really tough.
It is available for psychosocial
It would be good to know how this has worked for severely disabled people who need transfers ect
I live in WA in a Department of Community Disability Housing. I am unable to safely use my kitchen due to Spinabifida and balance issues.
WA Government didn't join up to the National Minimum Standards for Disability Housing saying that it would "cost to much".
My property has lino directly on the concrete slab.
I have constantly been asking Housing to at the very least change the flooring throughout the house to non slip.
Dr George, I was wondering if I could please provide me your contact details I would really like to pick your brain on this and other disability housing issues.
Why does the NDIS continue to support the group home model? We got rid of institutions 40 years ago and replaced them with smaller ones that are now owned privately rather than government. My son is in his own place but NDIS will not fully support it and he has a short fall in his funding which we have to cover despite our increasing incapacity as we age. Come on NDIS you can do better.
Why is the SDA funding going to pay-off mortgages of folk without disability. It would be mymuch more economical for our SDA funding oaying off houses that actually suit us.
We are meant to have the same rights as able people yet we don't. Semi supports sounds like a con.