Yes dan i can understand and feel of you cause before my sister diagnosed we visit alot of hospital to find what is happening with her and we feeling a little bit of relax after diagnosis take care and keep going
I have been very sick for a little over 2 years and no one can figure out what's going on with me... may I ask how you got diagnosed? What test did you have done? I hope you're doing okay 🙏
I was going to specialists for 2 years in Vegas. They literally were going to let me die. Finally, I had a fat pad aspirate... which means they take some fat cells from your abdomen and they test. Tell me about your situation.
@Dan Lier in 2020 I noticed I was always feeling tired and my energy was low other then that I would say I was feeling okay then January 2021 hit and I started feeling very unwell and the tiredness is and fatigue is really bad... I could sleep all day and still exhausted I never feel well rested... I wake up every morning feeling a feeling of general feeling unwell and sick all the time... out of no where I started getting shortness of breath and my chest always feels like someone is sitting on me.. I started getting a lot of stomach issues which till this day no one can figure out why... I have joint and muscle pain... and my wbc are always high... I see so many specialist and they tried diagnosing me with fibromyalgia and I knew it was more then that... I went to a naturopath dr who did a lot of blood work and found out I have lupus... I was doing infusions so it and I just still felt very sick and they stopped them... I get very weak so I started seeing a new nuero muscular dr who did an emg on me and it shows myopathy muscle weakness but they can't figure out what's causing it... I had an episode where I was admitted for 8 days because I was so weak and breathless they were watching me so I would have to be put on a vent... I was treated with ivig 6 hours for 5 days and I still felt horrible... something came up in my blood work I have a high igm and a weak gamma migrating paraprotein is coming up and my neurologist keeps saying that very concerning... when I asked my hematologist what it means he mentioned something about multiple myeloma and blood disorders and cancers and when I look it up I also came across amyloidosis... and I just feel that something is seriously being missed and I'm scared something is going to happen to me... I seriously don't feel well and I don't know what else to do
@Dan Lier I also get a lot of numbness and tingling on my feet arms and hands that no dr has figured out why... I was tested for neuropathy and everything came back negative
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Yes dan i can understand and feel of you cause before my sister diagnosed we visit alot of hospital to find what is happening with her and we feeling a little bit of relax after diagnosis take care and keep going
Thank you
Stay safe at this strange time. Good luck with your operation. Take care. ;)
Thank you, I will
I have been very sick for a little over 2 years and no one can figure out what's going on with me... may I ask how you got diagnosed? What test did you have done? I hope you're doing okay 🙏
I was going to specialists for 2 years in Vegas. They literally were going to let me die. Finally, I had a fat pad aspirate... which means they take some fat cells from your abdomen and they test. Tell me about your situation.
@Dan Lier in 2020 I noticed I was always feeling tired and my energy was low other then that I would say I was feeling okay then January 2021 hit and I started feeling very unwell and the tiredness is and fatigue is really bad... I could sleep all day and still exhausted I never feel well rested... I wake up every morning feeling a feeling of general feeling unwell and sick all the time... out of no where I started getting shortness of breath and my chest always feels like someone is sitting on me.. I started getting a lot of stomach issues which till this day no one can figure out why... I have joint and muscle pain... and my wbc are always high... I see so many specialist and they tried diagnosing me with fibromyalgia and I knew it was more then that... I went to a naturopath dr who did a lot of blood work and found out I have lupus... I was doing infusions so it and I just still felt very sick and they stopped them... I get very weak so I started seeing a new nuero muscular dr who did an emg on me and it shows myopathy muscle weakness but they can't figure out what's causing it... I had an episode where I was admitted for 8 days because I was so weak and breathless they were watching me so I would have to be put on a vent... I was treated with ivig 6 hours for 5 days and I still felt horrible... something came up in my blood work I have a high igm and a weak gamma migrating paraprotein is coming up and my neurologist keeps saying that very concerning... when I asked my hematologist what it means he mentioned something about multiple myeloma and blood disorders and cancers and when I look it up I also came across amyloidosis... and I just feel that something is seriously being missed and I'm scared something is going to happen to me... I seriously don't feel well and I don't know what else to do
@Dan Lier I also get a lot of numbness and tingling on my feet arms and hands that no dr has figured out why... I was tested for neuropathy and everything came back negative
* wouldn't have to be put on a vent
@@crystalr9633 hmm ... just curious, what is your age, and where do you live? How about body strength and recovery?