Average diagnosis time is 8 years 😢. Ive had over 50 surgeries now with this horrible disease. Pain diaries persist and support when you go to the Gp may help. Dont give up on children i had a quarter of an ovary left after severe Endometriosis on my Bowel spleen lung and back muscle. Had one healthy miracle baby boy. Im now in my 50s and still suffering😢😢😢😢. Look up the uk Endometriosis Society they helped me. Sending you love and strength to all suffering.🌈🌻🦋
I am tired living because of this! It is the most depressing thing to live with… can’t keep a job can’t have a life at all… I having pains everydayyyyyyyyyyyy .. no one knows how horrible it feels to be searching for a cure daily for this! Thanks for ur video love… no one understands unless they’re going thru it!
Thank you so much for sharing your endo story! I am also suffering from stage 4 endometriosis and trying to figure out how to navigate life with it post surgery since even after surgery it feels like the complications never go away. So its interesting to hear how people live with this disease. I hope you receive treatments you need! All the best to you endo sis!
You’re very welcome!! I’m sorry you’re still struggling, you would like to think after surgery it gets better but we have such a complex condition!! I hope you’re okay, sending you so much love ❤️✨
@Jessi thank you! I got a hysterectomy which has made a huge difference. I have 1 son, so no regrets. I get to work without calling out 2-3 days each month. I went so long without knowing that what I was going thru wasn't normal. But im so glad I have the knowledge now!
@@justjessicajessicax I've also changed my diet. I've cut out soda, caffeine, juice, I've also added more fruits and veggies. I'm trying to lose some weight too, these things have been helping.
Problem with a stool its not disgusting, there is nothing to be shame of your symptoms! Endometriosis is a horrible disease and we need to talk about symptoms. Thak you for sharing your story
Well done for speaking so openly about this hun. It's ashame it's took so long for you to heard but atleast your getting answers and your being listened to. You got this beautiful x
I’m 56yrs old my GYN said I was a candidate for a hysterectomy I agreed with her since I’ve lived with abnormal periods and chronic pain since I was a teen! I had my Hysterectomy Monday 6/20/22! They discovered stage 4 Endometriosis it covered my bowels and other organs! I’ve lived with chronic diarrhea and pain for decades! I’ve not been able to enjoy life the way I’ve watched others! I was told I had diverticulosis and this could be the cause of the diarrhea! I now have a definitive answer to my issues and I’m not a complainer! I’ve gone to work everyday even though I was in pain for fear of being called lazy or a complainer! Women are told very early on it’s just the time of the month get on with it! That is wrong! I’ve been told I have a lot of scar tissue! Now I’m left to wonder is any of the damage reversible am I going to continue to worry about making it to a bathroom on time! So when you have chronic pain during your period, problems urinating and diarrhea discuss with your Dr the possibility of endometriosis, because they need to check Laparoscopically for endometriosis because it does not show up on Ultrasounds, CTscans , MRI! Be aware! Ask questions and don’t feel like you’re a complainer!
Awwww I’m so sorry you’ve had to go through all of this!!! It’s awful isn’t it ! I really hope this is all sorted & okay for you now!! Sending you lots of love and strength 🤍✨🙏🏽
Been dealing with this since I was 10, finally being heard at age 34. Having surgery soon. Stage 4 endo, 2 endometriomas, 1 blocked Fallopian tube, and it’s possibly on my bowels. It’s so sad no one takes us seriously. I’m at work currently and for about a half hour I had radiating ovarian pain into my back and couldn’t walk for a short time. This pain is debilitating.
I’m so sorry hun that you are & have been going through this!!! I hope you are okay & get all the help and support you need through the hospital & friends and family 🙏🏽✨🤍
I got my period at 10, started birth control at 12 for ovarian cysts, IUD almost a year ago, I'm 20 and have yet to get any kind of help because I'm to young and want me to be able to have kids even when I've explained that I'll adopt if I want kids. I know I'll get there but I don't want to wait to long. Also my mom has fibromyalgia so I might have two chronic conditions lol
Wow thank you so much for sharing your story. I have recently been diagnosed with stage 4 endometriosis myself and it's good to hear other people's experiences and to know I'm not alone. My bowel and uterus are fused together with scarring and adhesions everywhere else with deeply infiltrated endometriosis. No surgery planned for me for now only the pill with no period for 6 months then maybe surgery 🙄. I only got diagnosed 2 months ago and I already know exactly how you feel with getting fobbed off. And I'm in Australia so the whole world needs to educate themselves. Thank you so much for getting the word out there. 😘 good luck with your journey I'll be following and cheering you on from the sidelines
I’m so sorry for what you’re going through and you’re definitely not alone!!!❤️ there needs to be more support and research to what we can do to help to prevent surgery’s! Xx
Wow! Thank you for sharing your story! Your not alone I've been dealing with it for 12 years. I will be having my surgery next week. I'm from the UK and now live in Italy luckly the waiting list was only six months long. Stay strong you're going through so much. Unfortunately I think my endometriosis triggered the autoimmune disease that I also have to deal with along side endo. One day at a time. ❤
Thank you so much lovely! 🙏🏽 I’m so happy for you that you finally will have your surgery!! Oh I hope you’re okay that doesn’t sound good at all!! Sending you love 🤍✨🙏🏽
It took 15 years to finally get answers but I’ve had so many scans and hospital appointments to finally get the info. Hoping you are getting the help you need 🙏🏽❤️
Thank you for sharing your story to us all.. it really is a struggle when you're dealing with endometriosis stage 4 I've had it for 18years and it has been a nightmare rollercoaster and still is I also have fibroids and I'm going through test as I might possibly have fibromyalgia also there is a point to point to where you can't take anymore.. right now arrange struggling as I am on medical leave from work lots of tests.. to anyone who is reading this message please don't forget to test yourself other conditions like fibromyalgia and these conditions are very similar and women with men demetrios are more likely to have or get.. sending love to 🙏❤️
I’m so sorry lovely I completely get it’s so difficult! I’m struggling with my fibromyalgia at the moment, so fatigued & my joints are in so much pain! 🤍✨
@@justjessicajessicax sorry to hear your in so much pain to babe, if you need more help try a group called scope so much info and great help and support from all people babe .. financially and mentally..and just kind chats ..🙏😊
Wow! Thank you for this! Listening to your story is like hearing my own. I had more bowel issues than bladder but both were damaged. I had to have stents in my bladder and my left overy has just dissapeared into a huge cyst. I was 'lucky' my surgery happened within a couple of months as I was at risk of bowel rupture. Unfortunately I ended up with a 10 hour surgery and an ileostomy for 6 months. Life after excision surgery is better but I still have bowel issues due to my resection and had to give up work. I was diagnosed with IBS age 19 (I was always at the gp with bowel issues), endometriosis age 33 (after paying for a private appt ans scan) and am 39 now. I hope your surgery goes well hun ❤️
Ive lost everything because of endo. Mentally, im ruined and everyone looks at me "nagative". "Think of the postives you do have"... they just dont understand.
Hey hun xx just wanted to say that I’m sorry for what you’ve been through and it sounds like such a long time!! I’m glad you’ve finally got answers and that you’re on the right path! Stay strong and would love to hear how you get on and what happens next 😘
I just got diagnosed with stage 4 endometriosis and just had the surgery 2 weeks ago 😢the pain is so intense and I've been having severe pain for 19 months straight. The pain started right after I had my daughter despite having a natural, induced forceps delivery.
Pain has reduced due to stopping my periods although I still have a sore bladder. I’ve got a pre opp appointment this Friday so I can vlog my surgery experience if this is helpful x
Average diagnosis time is 8 years 😢. Ive had over 50 surgeries now with this horrible disease. Pain diaries persist and support when you go to the Gp may help. Dont give up on children i had a quarter of an ovary left after severe Endometriosis on my Bowel spleen lung and back muscle. Had one healthy miracle baby boy. Im now in my 50s and still suffering😢😢😢😢. Look up the uk Endometriosis Society they helped me. Sending you love and strength to all suffering.🌈🌻🦋
I’m so sorry about your journey that sounds awful!!! Really hope that you are better now 🙏🏽🙏🏽🙏🏽😞❤️😞❤️
I am tired living because of this! It is the most depressing thing to live with… can’t keep a job can’t have a life at all… I having pains everydayyyyyyyyyyyy .. no one knows how horrible it feels to be searching for a cure daily for this! Thanks for ur video love… no one understands unless they’re going thru it!
I’m sorry lovely I hope you get the healing you need & find peace 🙏🏽🤍✨
Thank you so much for sharing your endo story! I am also suffering from stage 4 endometriosis and trying to figure out how to navigate life with it post surgery since even after surgery it feels like the complications never go away. So its interesting to hear how people live with this disease. I hope you receive treatments you need! All the best to you endo sis!
You’re very welcome!! I’m sorry you’re still struggling, you would like to think after surgery it gets better but we have such a complex condition!! I hope you’re okay, sending you so much love ❤️✨
Wow, wow wow wow wow. Your story sounds so much like mine. I'm in tears. I too have stage 4 endometriosis. And I've been dealing with it for 18 years.
I’m so sorry my love! I hope you find a solution that is good for you!! Xx
@Jessi thank you! I got a hysterectomy which has made a huge difference. I have 1 son, so no regrets. I get to work without calling out 2-3 days each month. I went so long without knowing that what I was going thru wasn't normal. But im so glad I have the knowledge now!
@@justjessicajessicax I've also changed my diet. I've cut out soda, caffeine, juice, I've also added more fruits and veggies. I'm trying to lose some weight too, these things have been helping.
Problem with a stool its not disgusting, there is nothing to be shame of your symptoms! Endometriosis is a horrible disease and we need to talk about symptoms. Thak you for sharing your story
Thank you Angel 🙏🏽❤️
Well done for speaking so openly about this hun. It's ashame it's took so long for you to heard but atleast your getting answers and your being listened to.
You got this beautiful x
Thank you so much lovely that honestly means so much!! Thank you for your kind words 🤍🤍🤍
I’m 56yrs old my GYN said I was a candidate for a hysterectomy I agreed with her since I’ve lived with abnormal periods and chronic pain since I was a teen! I had my Hysterectomy Monday 6/20/22! They discovered stage 4 Endometriosis it covered my bowels and other organs! I’ve lived with chronic diarrhea and pain for decades! I’ve not been able to enjoy life the way I’ve watched others! I was told I had diverticulosis and this could be the cause of the diarrhea! I now have a definitive answer to my issues and I’m not a complainer! I’ve gone to work everyday even though I was in pain for fear of being called lazy or a complainer! Women are told very early on it’s just the time of the month get on with it! That is wrong! I’ve been told I have a lot of scar tissue! Now I’m left to wonder is any of the damage reversible am I going to continue to worry about making it to a bathroom on time! So when you have chronic pain during your period, problems urinating and diarrhea discuss with your Dr the possibility of endometriosis, because they need to check Laparoscopically for endometriosis because it does not show up on Ultrasounds, CTscans , MRI! Be aware! Ask questions and don’t feel like you’re a complainer!
Awwww I’m so sorry you’ve had to go through all of this!!! It’s awful isn’t it ! I really hope this is all sorted & okay for you now!! Sending you lots of love and strength 🤍✨🙏🏽
Been dealing with this since I was 10, finally being heard at age 34. Having surgery soon. Stage 4 endo, 2 endometriomas, 1 blocked Fallopian tube, and it’s possibly on my bowels. It’s so sad no one takes us seriously. I’m at work currently and for about a half hour I had radiating ovarian pain into my back and couldn’t walk for a short time. This pain is debilitating.
I’m so sorry hun that you are & have been going through this!!! I hope you are okay & get all the help and support you need through the hospital & friends and family 🙏🏽✨🤍
I got my period at 10, started birth control at 12 for ovarian cysts, IUD almost a year ago, I'm 20 and have yet to get any kind of help because I'm to young and want me to be able to have kids even when I've explained that I'll adopt if I want kids. I know I'll get there but I don't want to wait to long. Also my mom has fibromyalgia so I might have two chronic conditions lol
Wow thank you so much for sharing your story. I have recently been diagnosed with stage 4 endometriosis myself and it's good to hear other people's experiences and to know I'm not alone. My bowel and uterus are fused together with scarring and adhesions everywhere else with deeply infiltrated endometriosis. No surgery planned for me for now only the pill with no period for 6 months then maybe surgery 🙄. I only got diagnosed 2 months ago and I already know exactly how you feel with getting fobbed off. And I'm in Australia so the whole world needs to educate themselves. Thank you so much for getting the word out there. 😘 good luck with your journey I'll be following and cheering you on from the sidelines
I’m so sorry for what you’re going through and you’re definitely not alone!!!❤️ there needs to be more support and research to what we can do to help to prevent surgery’s! Xx
Wow! Thank you for sharing your story! Your not alone I've been dealing with it for 12 years. I will be having my surgery next week. I'm from the UK and now live in Italy luckly the waiting list was only six months long. Stay strong you're going through so much. Unfortunately I think my endometriosis triggered the autoimmune disease that I also have to deal with along side endo. One day at a time. ❤
Thank you so much lovely! 🙏🏽 I’m so happy for you that you finally will have your surgery!! Oh I hope you’re okay that doesn’t sound good at all!! Sending you love 🤍✨🙏🏽
Thanks for sharing. I just got diagnosed and slightly losing my mind. I needed to hear your story in order to feel less alone.
I’m so sorry about your diagnoses, I hope you find peace in this 🙏🏽🤍
Thanks so much for speaking out. Just had my surgery also for stage 4. Glad you got more info than most of us had. You will get through this.
It took 15 years to finally get answers but I’ve had so many scans and hospital appointments to finally get the info. Hoping you are getting the help you need 🙏🏽❤️
I feel you. 15 years is long. I have been good since the operation thank goodness. Just trying to stay healthy and alert.
Thank you for sharing your story to us all.. it really is a struggle when you're dealing with endometriosis stage 4 I've had it for 18years and it has been a nightmare rollercoaster and still is I also have fibroids and I'm going through test as I might possibly have fibromyalgia also there is a point to point to where you can't take anymore.. right now arrange struggling as I am on medical leave from work lots of tests.. to anyone who is reading this message please don't forget to test yourself other conditions like fibromyalgia and these conditions are very similar and women with men demetrios are more likely to have or get.. sending love to 🙏❤️
I’m so sorry lovely I completely get it’s so difficult! I’m struggling with my fibromyalgia at the moment, so fatigued & my joints are in so much pain! 🤍✨
@@justjessicajessicax sorry to hear your in so much pain to babe, if you need more help try a group called scope so much info and great help and support from all people babe .. financially and mentally..and just kind chats ..🙏😊
Wow! Thank you for this! Listening to your story is like hearing my own. I had more bowel issues than bladder but both were damaged. I had to have stents in my bladder and my left overy has just dissapeared into a huge cyst. I was 'lucky' my surgery happened within a couple of months as I was at risk of bowel rupture. Unfortunately I ended up with a 10 hour surgery and an ileostomy for 6 months. Life after excision surgery is better but I still have bowel issues due to my resection and had to give up work. I was diagnosed with IBS age 19 (I was always at the gp with bowel issues), endometriosis age 33 (after paying for a private appt ans scan) and am 39 now. I hope your surgery goes well hun ❤️
Awww hun I’m so sorry that sounds awful!!! I really hope you find peace & the healing you need!🤍✨
I sorry you had to go through that, your experience is as well.
Thank you Angel ❤️
Ive lost everything because of endo. Mentally, im ruined and everyone looks at me "nagative". "Think of the postives you do have"... they just dont understand.
I’m sorry hun I’m praying for you and sending love 🙏🏽❤️
I had horrible periods I asked my obgyn for a hysterectomy after the surgery I found out all my pain was from stage 4 endometriosis
Oh no I’m so sorry chick I hope you’re okay & got it sorted in the end!!🤍✨
@@justjessicajessicax thank you slowly recovering from the surgery
Hey hun xx just wanted to say that I’m sorry for what you’ve been through and it sounds like such a long time!! I’m glad you’ve finally got answers and that you’re on the right path! Stay strong and would love to hear how you get on and what happens next 😘
Thank you so much this is such a kind message 🤍 you’re support is so sweet 🤍 sending love !!! Xxx
@@justjessicajessicax brave ❤warrior
I just got diagnosed with stage 4 endometriosis and just had the surgery 2 weeks ago 😢the pain is so intense and I've been having severe pain for 19 months straight. The pain started right after I had my daughter despite having a natural, induced forceps delivery.
I’m so sorry hun I hope that your journey is better from now and your surgery has helped ❤️🙏🏽
Hi honey! Ik it’s been a while. But I’d love an update on how you are doing❤
Hey my love! Weirdly I’ve been given a provisional surgery date recently so I think I’ll be doing a wholeeeee vlog on it all if it happens! X
@@justjessicajessicax hope you’re having a good day! Thanks for the update. I hope everything goes smoothly❤️❤️ sending love and prayers🙏🏼
Have you had your surgery or have your pain reduced?
Pain has reduced due to stopping my periods although I still have a sore bladder. I’ve got a pre opp appointment this Friday so I can vlog my surgery experience if this is helpful x
I think this is my problem, debilitating pain
Please get checked 🙏🏽❤️
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