This is so so brave Molly. No one talks about painful sex and you're in the public eye. Love that you've made this video to help others, it's so brave and inspiring. Lots of love ❤️
I wasn't diagnosed with endo until I was 23. I'm so grateful to you for spreading awareness. Unfortunately I had to have a radical hysterectomy at 31, they had to remove my uterus, tubes, ovaries, appendix, most of bowel and I now live with a permanent stoma bag. I suffered 8 miscarriages and never got to be the mum I so want to be. Endometriosis is so misunderstood. People often think it's just about painful periods. It can be life altering. It's important that we talk about out experiences and support each other. From one endo warrior to another, keep fighting the fight ❤️
You are one of the first people I’ve heard spreading awareness about endometriosis. I suffer with painful periods and a lot of other symptoms related to my period and am afraid to go to the doctor incase they don’t believe me but you’ve really given me courage to get myself checked out . Thank you so much for speaking out , sending you love ❤️
Definitely do it, I had a good experience.. gp put me straight in for a vaginal scan, that founds cysts, then they referred me to gynaecology, they done an MRI which found the endo, now on surgery waitlist. I luckily didn’t have the experience of doctors not believing me or sending me round the houses
But how do you define the pain? I get painful periods but it’s not every period, but when I do have a painful period, my pains r excruciating but then I’m like what if this is what normal period pains are like but I just can’t take pain as well as others.
@@aykay5615 what triggered me to go to gp was extreme pelvic pain outside of my period time. Can make me pass out. It’s like having lava and knives in your pelvis. I always had heavy painful periods my whole life but thought that was normal so I didn’t even mention painful periods to my gp. When I went for my pains i mentioned my mother had endo so they referred me for a scan as they said it’s hereditary
@@aykay5615 The thing is periods should never be painful at all. It's not like bleeding from a stabbing. It's just that women have been gaslit for forever into thinking painful periods are normal. Nope. They are a sign of things like PCOS, endometriosis, or fibroids. I used to have terrible periods but once my PCOS was diagnosed and treated they stopped. Gynecologists say that requiring anything more than the occasional OTC painkiller or being unable to go to work/college/care for your kids means that your periods are not normal.
LADIES YOUR PAIN IS NOT NORMAL, KEEP PUSHING TO BE HEARD! I just sat and basically cried the entire video, just to hear someone going through a similar journey. I have repeatedly been told by doctors that 'nothing is wrong', it's normal and to just take pain meds or birth control. All of which DO NOT SOLVE THE PROBLEM! But finally, I have been diagnosed and it has been both a relief to know what I have but also frightening to accept the reality. All I can say is thank you for sharing your story!
@@user-ii4rq5ko3x my own sister and many friends have endo and whilst it’s extremely crippling, still have to get on with their everyday lives, like Molly Mae. Please don’t try to invalidate somebody’s chronic illness.
Sometimes it's not just with cycles...for me, I'm in constant pain with my Endo (as are many sufferers). I'm so glad more is being done to raise awareness because it really is debilitating 😔
@@laurengallagher2076 Im the same. They dont know if i also have interstitial cystitis but my daily life is chronic pain when trying to pee and endo bloat, cramps etc. I think I have maybe 1 or 2 days a month where the pain is minor (to me) and i try make the most of it 😢
@@jodziebear665 Have you looked into the embedded UTI connection with IC? There is a ton of info online and the NHS even wrote about it on one of their sites.
@@jodziebear665 I had pain with peeing and it turned out to be endo and scarring on my ureters. I had to fight for that diagnosis, and unfortunately pay a lot of money to go private, because my previous surgeon didn't believe there was anything on my ureters. The private surgeon said I was lucky they caught it in time, as it was about to grow on my kidneys
When you said the painful periods and painful sex feel like “two completely different journeys” I was like THANK YOU!!! 😭 A lot of doctors who aren’t as educated on Endo don’t get that you’re not just their for the painful sex or fertility problems, the pain encompasses your whole life.
Just had my 10th surgery to remove more endometriosis, I've also had a full hysterectomy at 40. It's such a debilitating and horrible disease. It definitely goes undiagnosed so often. I also thought that the excruciating pain I was in was what 'normal' period pain was. It would make me double over in what I imagine contractions to be like, make me vomit with the intensity and occasionally pass out. Thank you for spreading awareness endo sister 💛💛
I’m so sorry. I have these same symptoms and it worries me so much. I literally dread my period arriving every month, it genuinely makes me so scared every single month. Missing time out of work and things that I like doing. It’s such a scary time💔
It shouldn't be that hard to get a diagnose and I'm tired of doctors trying to push the pill as a solution for all our period's issues. Ty for spreading awareness.
It took me around 15 years to be diagnosed with Endometriosis, 15 years of being angry at my body and not understanding why it was hurting me so bad! I also shared my journey on my TH-cam channel in the hopes it can help others, you have a much larger platform so thank you so much for speaking up about our condition. We need more research, more awareness and we need to be taken seriously.
Omg really? No doctors have taken me seriously and have only recommended birth control etc . I had an ultrasound that didn’t pick up anything but another doc told me it can only be diagnosed through surgery 😢
@@amyc4375 I'm so sorry that you've been through this. I was also disregarded by doctors for years, it's so frustrating and makes you feel like a hypochondriac! But keep pushing, it's your body. You're correct though, you can't tell via an ultrasound, only via laparoscopic removal of tissue that's sent away for diagnostic testing. Wishing you all the best 💛💛
Isn't it crazy that it takes so long! My journey to diagnosis was around the same length of time. We absolutely need more awareness and research!! I'm so grateful for Molly spreading her srory 💛💛
I was the same 14 years, had a diagonsic lap in august to be told i had stage 4 servere endometriosis, currently waiting on letter from doctor to explain why they wouldnt refer me even when i offered to pay for a private consulation. The doctors went through my notes to 2005, endometriosis was mentioned everytime yet i had to say it was affecting my mental health (to a different doctor) before they refered my, contemplating legal action.
I’ve always admired how transparent you are with things like this. It’s not always easy to talk about but I’m glad that you did. It brings awareness and allows us to understand you better ☺️
I literally feel so sorry for this girl the amount of stick she gets and she’s the most beautiful down to earth lovelies girl ever everytime I watch her channel I just want to give her a hug how anyone can hate her is beyond me she’s lovely and just amazing xx
As a 16 year old whose has just been diagnosed with endometriosis, I find this inspirational. Thank you for being so open and exploring this illness to create awareness:)
If MRI’s don’t show anything that could physically be causing the painful sex now, it could be something called vaginismus which is again something doctors often brush off for women! It can happen after you’ve experienced painful sex due to another issue, and your body then subconsciously learns to anticipate it being painful which makes the muscles tense and then that makes it hurt when you try, so it becomes a bit of vicious cycle! It’s quite common and can be worked on but not something that’s often spoke about so thought it was worth mentioning incase xx
I’m starting med school this summer, and it is so sad to hear your stories of doctors who didn’t take your pain seriously enough. It’s unfortunately very common for doctors to dismiss women’s pain (and POC’s pain as well), and it is not at all OK. Will definitely keep your powerful story in my mind and in my heart when listening to my future patients’ experiences. Thank you for sharing Molly, I know this has been so helpful for so many to hear around the world!
Honestly Molly this is truly amazing and comforting watching this video. It is one thing that you have experienced this condition but I commend you for talking so openly about this to such a BIG audience. I am from Australia and endo is slowly becoming more spoken about. I am currently suffering from similar symptoms and watching you speak about this makes me more inclined to get things checked. Previous to this video I had a lot of respect for you but now I have a whole new level. The way you hold yourself and present yourself is exactly what this generation needs especially in the age of social media. It is so easy to tell that you come from a place of pure heart and genuinely want to help others. I honestly cannot stress enough how important this video is and how incredible everything you achieve is. You should be extremely proud of yourself Molly and in particular for standing by who you are!
omg girl the painful sex is a new level of depression 😭 thank you for making this video!!! i don’t have endo but i do have pelvic floor dysfunction which causes a lot of the same symptoms!! people don’t talk about these things and it makes it taboo.
@@elladalton5924 yes!! physical therapy works wonders and recognizing tightness in your body!! i was genuinely in excruciating pain every single day for atleast 6 months from the moment i woke up to the moment i went to bed. and i was misdiagnosed with IC (interstitial cystitis so that’s a possibility on your journey) for like a month or so but i knew something was off so i did my own research. i knew i didn’t have IC, somehow lol. they were about to do full surgery to expand my bladder and the day before i was doing research and i found hypertonic pelvic floor dysfunction!!! it literally saved my life to find that out lol. so i called mg doctor and told her and she was just like “oh. yeah it could be that” 🤔 after that i went to PT and the pain was literally gone after a month or so. if i’m stressed out super bad or forget to relax my muscles sometimes i still get pain but it truly saves my life to get that diagnosis lol
@@Addysuunwow thank you so much!! You’re so kind for replying means so much that was so helpful I’ll definitely do some research into it. I wish stuff like this was more openly talked about or even for the doctor to mention it might be a problem because I never knew much about any of this. Again thank you so much was insanely helpful. So glad you were able to figure out the problem for yourself 💞💞
@@elladalton5924 i am SO glad that helps!!! i would never wish this kind of pain on anyone in this world and i’m so glad that what i went through can help other women out there ❤️❤️❤️❤️ good luck my friend ❤️
Hi Molly, it sounds like they gave you ablation surgery as this is when they burn the cells away. However the gold standard in endo surgery is excision surgery where they literally cut the disease out from the root. Ablation just burns the top layer away but the kind of root of it is still left behind - this may possibly be why you are still having symptoms. If you are going to another doctor about this at some point I would really push for information on excision, I think that will help a lot more. I had stage 4 severe endo and I had expert excision done with a specialist in London and it really is the best outcome I could have hoped for. Good luck with it all lovely Xx
I think she may have used the wrong word as I’ve had the same surgeon and he used excision surgery and he’s also verified on nancys nook group on rated excision surgeons. 1 year later I'm so much better with a baby girl also. Think that needs clearing up for sure as this is so important!
I was so excited to hear that you were operated by Edi Osagie, he did my 3rd surgery in July last year. One thing I would encourage is for you to look at your fertility now, that doesn’t mean you need to try yet but definitely look and make sure your ovarian reserve is not being effected by the endo, I’m now going through a very difficult journey with this and was recently told I will now need an egg donor to conceive due to the damage from endo, had I known this years ago I would have definitely looked in to freezing my eggs, please consider this so you do not have to go through the same xx
Never commented before but I really need to say thank you so so much for sharing your journey so openly. As time goes on I’m starting to realise that there are more of us than I would have ever realised dealing with painful sex due to different woman’s health conditions. Speaking about this online can’t have been easy at all but just know that you will have helped so many others realise they are not alone and what a difference this will have made. I hope things improve for you soon but a huge thank you for creating this video 💕
Thank you for sharing, as a girl going through the process of the doctors finally starting to listen to me about my painful periods/possible endo, I appreciate someone with your platform being so open and lovely about it. Defo raises awareness so thank you xx
at 16 i’ve been diagnosed with stage 4 endo and just had my first laparoscopic excision surgery on friday. I have to get a stoma bag for my fused bowel and have further surgery in july to get that done. This is so raw and refreshing to see, especially during endometriosis awareness month. The struggles it has caused me for 7 years has been horrendous and i really appreciate you raising awareness on this!
Adenomyosis is endometriosis's "evil twin sister" which nobody really talks about or is aware of. I hope more awareness is raised in the future as it's just as awful and debilitating. Thanks for speaking up Molly 💗
Having suffered from endometriosis and being the first person diagnosed in South Africa some 40 years ago....I learned along with the doctors. How people can say you are trying to make it cool- is beyond comprehension. THOSE people have zero idea of the pain and consistent heavy bleeding, involved with this disease. Once you have had your family I strongly urge you to have a total hysterectomy. I was never told that if the ovaries are not removed, endometriosis and endometriol tumours can continue to grow. Lastly I was not told that endometriosis often leads to endomertriol cancer. By the time I discovered I had this I was already stage 4. I have sold every valuable item I own, in the past 3 years, in an effort to stay alive. Stay informed.....ask a million questions and never stop learning about this disease, in an effort to stay ahead of the new information.
That is truly heartbreaking to hear. I have endometriosis as well and have found it so frustrating that i often feel like doctors are learning about with you as there really isnt enough research on it. cant imagine how that must of felt for you being the first person diagnosed in South Africa. i hope you feel comfort in the fact that you brought awareness to it for many others who were diagnosed after you. God bless you and i truly hope you come out of this healthy and stronger than ever
This is so sad to hear of your journey, prayers to you you’re such a a strong woman and your comment I hope doesn’t get ignored by those who needs to hear it
Even after a full hysterectomy it's not cured and can still grow back, I'm waiting for my hysterectomy but leaving 1 ovary to help keep menopause away a bit longer, he saud I can have it removed later on if I feel I need to, I've lost 9 babies and have 2 healthy boys at 8 years apart from trying, I had to have a laparoscopy to remove the endo to get pregnant and be able to carry him but I'm fully aware that even a full hysterectomy won't cure me but it will help with pain as I won't b able to ovulate or bleed so at least that's something to look forward to as I get ovulation pain too, I'm in pain every 2 weeks! And I know which ovary is pushing an egg out as its like a knife going into my ovary
I have just found this video and i suffer badly with PCOS and Endometriosis, to hear someone talk about it is really amazing and comforting, thank you so much for this video.
I just want to say thank you for emphasizing your nervousness about sharing your experience. Many people don't understand how complicated endo is and how diversely it's experienced and described by each female suffering with the pain. Everyone's endo story is unique, which most likely contributes to the lack of medical awareness and treatment. Thank you for sharing yours 💛
It is so important to discuss how an illness can affect your sex life and I am go glad you briefly mentioned this. I always felt so awful for my boyfriend because I would just not want him to touch me and it is just as hard for our partners when we have this. Your making such a difference for so many girls
You're incredible Molly, as a fellow endometriosis sufferer and have been since I was 13, I'm 30 now, I feel your pain. Well done for pursuing help with this and not giving up on getting diagnosed and treated. I think only people who suffer with this condition or know someone who suffers with it will understand how truly debilitating and life ruining it really can be when left untreated and ignored. Thank you so much for raising and continuing to raise awareness around this condition. ❤
oh my! i never even knew such a diagnosis existed. Periods are HELL and you’re telling me they can be worse than they already are?? wow, thank you for educating me, that sounds awful. i do admire how well you’ve managed yourself to this point. I hope it gets better for you as the years go on 🖤🖤
I just had a laparoscopy for ablation for removal of endometriosis and cysts. The important thing to be educated on is when our estrogen is high the endometriosis grows. And inflammatory foods raise estrogen. If you have good self control you can change your lifestyle diet and only eat anti-inflammatory foods. I’ve done this bc it’s one thing I can do on my end to help my body which is a temple. There’s no cure only things we can do to help ourselves and diet is one, exercise 30 mins a day is another and surgery is a band aid (but helpful)
I’m pregnant and we had an early 7 week scan where they found 2 huge cysts around 11cm and 5cm one on each ovary! Doctors are so shocked we conceived so easily and have said similar I’m 80% got endo but cannot operate because of baby and we are having scans and possible surgery after birth. I had no idea until we had baby that they were there. My period were heavy but I thought that was normal for me! Thank you for sharing. Now I’m 15 weeks pregnant has 2 heavy bleeds which they think are linked to my endo but it’s been a scary time so lovely to hear your story and read everyone’s journey x
I don’t have endometriosis but thank you for Educating me about it as I never knew what it was. I’ve always had heavy periods but I have two fibroids so I think it’s due to that. Thanks for being so open Molly ❤️🥰
Never comment on anything and I’m sure there’s a million here, but in case it helps very much appreciate someone talking completely candidly about their personal and relationship experience, and fully know you are not a medical professional or trying to be one!
Thank you for this video! It’s crazy how there is little knowledge on endometriosis when so many people are affected by it. It took me 9 years to get diagnosed with endometriosis and it was a long journey of going back and forth to the doctors similarly to you and finally having laparoscopy to realise my gut instinct was right. Periods should not cause you so much discomfort where it interferes with your life. I don’t know if this will help anyone but being on the coil changed my life in terms of endometriosis. I no longer have periods and I don’t have any symptoms which I initially did have on the pill and when I was having regular periods. As far as I know it’s recommended for people with endometriosis as it prevents growth of new tissue when you ovulate. Thanks again for your video! I think you done an amazing job on helping people understand - sending lots of love x
I recently got diagnosed with a heavy type of endometriosis and andenomyosis which makes it hard to get pregnant without having pain and danger. So it's no surprise more people are talking about it but I feel super sorry for every woman that has /had to go through this tough thing. But we are not alone. Thank you Mollymae for being open to talk about your experience. Xxx
Your story is really similar to mine! I know the struggle and THANK YOU for talking about this 💛 it’s so sad that the majority of all the affected women has to meet these ignorant doctors for several years before we get help! Sending love to all of you! We’re strong 🎗
Thank you for being so honest and talking about this, especially seeing a successful woman talking so openly about sex as well as the issues is fabulous as it isn’t that common!
Well done for sharing this Molly so amazing definitely wasn’t easy for you but you did it! Been on this journey with you all the way you have all our support💗
molly thank you so much for speaking about this, every single thing in the video that you spoke about I was just like yes yes yes!!!! I’ve never had someone relate to me before like this about the diagnosis and how long it takes and being on the pill so young! thank you so much for shining a light on such a hidden but chronic illness 🤍
I’ve had stage 4 endometriosis for 8 years now and feel your pain on every level! It isn’t just physically exhausting, it’s all the psychological problems that come with it too 😣 wouldn’t wish this condition on anybody! But it helps knowing you’re not alone so thanks for this video babe! Hope you’re managing well. We’re in this together! #endowarriors 💛 xx
i’m worried i have endometriosis and cancelled my scan because i was so scared😢this has helped to encourage me to really get it looked into and get it sorted, thankyou Molly❤i love you and look up to you so much xxx
A scan itself may not show if you have endo- the only way to be sure I'd through surgery where they take a biopsy. I really hope you don't have it, but definitely get it checked out so you know x
Endometriosis is such a horror. I’m 19 and already had 5 surgeries and been put onto artificial menopause to try help me. I REALLY appreciate you speaking out about this, thank you 🥺I know how strong you are 💛💛
Endometriosis is an inflammatory condition caused by a hormonal imbalance. Synthetic hormones can cause negative side effects and only suppress the symptoms in the shorter term and surgery is not a long term solution because until the root cause is addressed the endometriosis will keep returning. Look into reducing estrogen and increasing progesterone naturally through dietary and lifestyle changes (plastic, toxic chemicals / beauty products and dairy are the biggest sources of excess estrogen in the body) x
Hey Molly! I’m Women’s Health Physio from Aus - I highly recommend you talk to your GP / Gynae about seeing a pelvic floor physiotherapist! They’re well informed about endometriosis and the function your pelvic floor has in painful sex ♥️
From one Endo warrior to another. Thank you for making this, it makes us all feel like we aren’t alone. I hope your specialist appointment with your gynaecologist goes well! ❤️
Great to see somebody in public eye spreading awareness. Just a positive to say I have severe Endo and had 2 laps in 2020, December 2020 I had severe Endo removed and they found that my right Fallopian tube was completely blocked. I’m currently sat here now with my baby girl in my arms, I thought this would never happen yet I managed to conceive naturally. Although I’m still suffering with my Endo now I just wanted to share a positive story in regards to fertility 🥰
Health is a sensitive topic we all just need to understand everyone's experiences are different. Thanks for sharing yours Molly x get well soon for yourself and Tommy.
I literally love you so much. You’re truly such a genuine soul and it’s so comfortable knowing I’m not alone. I’m only 19 and I’ve been struggling with this chronic illness since I was about 15 as well and it’s so hard. It’s draining and beyond exhausting. Knowing I can relate to all your symptoms and having a role model helps so much. I’m beyond proud of you and will forever support you 🥺🤍
I think this is such an amazing eye opening video. I’ve got endometrosis and I think there is definetely not enough awareness about it. I genuinely felt like I was the only person with endo in the world who has painful sex and it’s such a hard thing to cope with in a relationship and I’ve been the same with a low sex drive because of the pain 😢❤
Thank you so much for raising this awareness! As an endo warrior myself, you’re so strong ❤️ It needs this awareness because nobody understands the severity of this condition. Thank you for using your platform to speak out about endo! xx
I’m about to have a laparoscopy on Wednesday and I’m scared! Thanks for answering these! I have minor endometriosis, a cyst and my Fallopian tube is swollen! So lots going on but nervous! I’m only in my 20’s. I’ve been complaining for 4 years and all doctors have told me is your young, your fine, and all along I knew something wasn’t right! X
Thanks for spreading awareness lovely 💗 it took me about 11 years to be diagnosed, it’s a hard condition to live with physically mentally and emotionally. Anyone out there who needs support I would say please connect with the endo community online whether that’s on Facebook groups or Instagram there are so many girls out there advocating xxxx
Hi Molly, Listening to your story is almost a mirror of mine, yet mine was severe fibroids. Started symptoms at 15/16. Went to the doctors so many times but was told the pain was in my head and I was being dramatic. Eventually went to a private doctor who diagnosed me with fibroids of the womb. I can’t even explain the pain I go through the week before my period. Like you, it happens in the night. Agonising pain. It lasts for 30 minutes on the dot, feeling like I’m going to die, followed by being sick and passing out (usually on the bathroom floor) and coming round hours’ later. This happens every month! For 20 years’ (I’m 36 now) I’m fighting to get a hysterectomy, I just want this gone! My life is impacted so much. I don’t have children, I don’t think I even can. Thank you for talking about this. It means a lot ❤ P.S- Congratulations on your pregnancy, I’m so happy it worked out for you xx
Thank you so much Molly! I am watching this as I clench my hot water bottle and this is giving me hope that awareness is growing and support will be available for more of us more consistently some day soon. I have both endometriosis and adenomyosis. I suffer from terrible pain for longer than my period each month in my abdomen and legs and I had 3 surgeries already. There is no cure but talking about it and hearing others do so really help so thank you 💛.
Endometriosis is an inflammatory condition caused by a hormonal imbalance. Synthetic hormones can cause negative side effects and only suppress the symptoms in the shorter term and surgery is not a long term solution because until the root cause is addressed the endometriosis will keep returning. Look into reducing estrogen and increasing progesterone naturally through dietary and lifestyle changes (plastic, toxic chemicals / beauty products and dairy are the biggest sources of excess estrogen in the body) x
Sending love and healing from a fellow endo sister ❤️🩹 so many people don’t know what endo is, even doctors! So having someone with such a big platform speak is out is incredible ❤️
This video was really helpful, I’ve had very heavy, painful and irregular periods since I was 12 and was put on the pill and it isn’t helping. I have always wondered about Endometriosis and what the symptoms were this was a great video had lots of information. Thank you Molly ❤️
Thank you for doing this vlog Molly, I am at the very beginning of my endo journey. Waiting for my private med stuff to come through within my work. I was referred to a gynaecologist by my GP but covid has put a huge spanner in the works with that so hopefully I’ll be able to get sorted soon. As you my periods are excruciatingly painful and each time I am always in bed for like 3 days also a new symptom is my vomitting because of the pain which is fun (not). It’s lovely to know that I’m not on my own as affects me so bad as I do have a 6 year old daughter too but my hubby’s so supportive and that definitely helps but I can still be sore for like 10 days with my back too. I was 9 when I first started my p***** and yeah I just thought this was “normal”. Thanks again Molly and I hope everything goes ok in London with your gynaecologist appointment too ❤️
It’s so important to talk about endometriosis, you’re helping so many women not feel so alone. Having it has made me passionate about women’s heath and the more we talk about it and bring awareness the better 💕 I had a hysterectomy and I still have pain and pain during sex :/
Thanks for spreading awareness. I have been told by doctors that my periods were normal, that when I’m happy I get periods and when I don’t I’m sad, that’s it’s my diet that causes it. It wasn’t until 2020 that I finally had a doctor say “that sounds like endometriosis, I’m gonna refer you to the gynaecology department” and I was so happy that I was heard after suspecting it since I was 18. I’m on the mini pill now which has helped a lot but I know it’s not the ideal solution but it allows me to live my life uninterrupted which what I was experiencing before
Literally just been discharged from hospital after having the whole of my Sigmoid Colon removed due to a tumour in my colon wall (found on an MRI and colonoscopy) that they were sure was cancer - turns out it was Endometriosis! Certainly the lesser of two evils but still! My symptoms were: - At time of my period, sharp bowel pain followed by very soft/loose stool and then (and only then) my period would start to come out. - Bleeding from back passage - Insane period pain I did go to the gp both about the pain and separately, about this link with the period only starting after a bowel movement but it was disregarded. Hope this helps someone! Well done Molly for shining some light on this, women's health is so overlooked and underfunded.
I had the same surgeon.. cant recommend enough! Also took 15 years to get a diagnosis and he gave me answers in less than 30 mins! Need more people putting light on this disease!!
Thank you thank you thank you for sharing this. I am watching this sitting in bed because the pain I'm in is so unbearable I just can't move. Sometimes I can't even breathe. I am so glad you are sharing your journey, to make all of us feel less alone.
25 years old and was just diagnosed on October 10, 2024. Took me 7.5 years to get diagnosed. I can’t count the number of times I’ve been called crazy or told I’m imagining the pain. I’m just glad I have some answers now.
Thank you Molly 🥺 I’ve just been diagnosed with it. The pain is so bad I feel like I will pass out. I’m very lucky I was diagnosed with it straight away and the dr listened and understood and detected it straight away
5 times! That’s absolutely amazing! Lucky u then saying that so soon. I’ve just been diagnosed after 13 years of being in hospital by ambulance every month for the last 13 years. Now it’s daily agony not just my periods. I’ve been bed bound for 2 years and am awaiting a hysterectomy and endo removal in 4 weeks time. It’s absolute hell on earth I have no quality of life
I don’t normally comment on videos but I just wanted to say that you are such a dote. As someone who suffers with a similar issue (PCOS) I know how debilitating it can be. I think you have done amazing with everything you’ve achieved despite the pain you’ve been in. And the relationship you have with Tommy despite the sex problems is a testament to how lovely you both are. This brought a wee tear to my eye and you did yourself so proud ❤️ you should be proud of yourself. Lots of love xxx
Great you are talking about this, My diagnosis took 10 years to get! Eventually someone looked into it more as I was continuously anemic from blood loss. I have also now been told I have adenomyosis as well. Good luck with it all x
This was the best thing I could of listened to today. After a year of suffering with on and off excruciating pain, I finally found out today I’ve got an endometrial cyst. I’ve been sat worried all day and was such a comfort to watch this ❤️ truly made me feel like I’m not the only one doing through something like this at the moment x
Thank you so much for this!! i’m in the process of finding out if i have endo too just waiting to see the gynaecologist and hope they can give answers on it as my Gp also thinks i have it, but honestly this was so comforting and i’m so glad you mentioned the painful sex although it’s sucks it’s so good to hear others talk about it more and spread more awareness about it all! you’re amazing!!
Well done on sharing your story and trying to spread awareness about this horrible disease. I totally understand how lonely and scary it is having such severe pain. I had a hysterectomy two years ago at age 41 (I’m fortunate to have had my children). I also have 15cm of endometriosis in my bowel and the only way to remove it is to remove that section of bowel and then reconnect the bowel at a later date which means having a stoma for a couple of months. At this stage I’ve opted to manage the bowel endo with drugs. Please keep seeing your doctor and specialist and if you’re not satisfied keep trying other avenues. I had no idea that the endo could spread to my bowel and accepted it when I was told it must be ibs. 💛💛💛
Made me feel so much more comforted especially in regards to the strains it can have on a relationship ! I hope you continue to find ways to get better ❤️❤️❤️
So so pleased that you have spoken about this! Very brave of you to share something that has affected your life so much! Endometriosis is such a difficult condition so thank you for helping raise awareness 🥰 Also just wanted to add that excision surgery is considered the gold standard treatment as it has a lower reoccurrence rate than ablation xxxx
Thankyou for this video Molly, I don’t have endometriosis but I do suffer with Polycystic Ovary Syndrome so it’s comforting all the same hearing other women’s stories around these issue. I wish you all the best on your journey x
I swear ANY problem i have had with womens health, I get told “are you sure you’re not pregnant”, “you should try a new birth control” or thrush or bv. I know those nights of agonising pain it’s so frustrating to be turned away. I had a kidney infection that was dismissed as pregnancy or thrush! Was peeing blood and in agony and needed antibiotics for weeks. Really no joke I hope this awareness helps raise womens health awareness and reduce stereotypes and stigmas.
Thank you so much for spreading awareness. I was diagnosed about 5yrs ago and have surgery to remove, It helped a little but not much. I was like you, just happy to be taken seriously and happy to be heard after so many years of pain. I went back to my doctor about it recently and it’s like we’ve started again… it’s a new doctor and he’s denying any knowledge of endometriosis … surely it’s in my notes and I have the scars to prove it. It seems more common than not so it is worrying the black cloud that it has over it when it comes to diagnosis! I Guess I’m starting my journey again x
Endometriosis is an inflammatory condition caused by a hormonal imbalance. Synthetic hormones can cause negative side effects and only suppress the symptoms in the shorter term and surgery is not a long term solution because until the root cause is addressed the endometriosis will keep returning. Look into reducing estrogen and increasing progesterone naturally through dietary and lifestyle changes (plastic, toxic chemicals / beauty products and dairy are the biggest sources of excess estrogen in the body) x
I was 15 when it really began for me too. The dr had no idea what was going on with me so put me on the pill and said it’s just painful periods. Basically, I had to live with it!! It’s great that there seems to be a greater awareness now but it’s nowhere near where it should be. Womens health isn’t a focus for GP’s outside of smear tests. I’ve had 12 operations and procedures to try and help my symptoms and went from specialist to specialist to only get conflicting information! Thank you for shining a light on this debilitating condition and being so candid about your own symptoms xxx
Little did she know she would fall pregnant in April 2022 - one month after this video. So incredibly happy for Molly 🤍
Have I worked it out wrong or was she pregnant at the exact time of this video?
@@alexam5336 i think she got pregnant that month but probably not in this current video
This is so so brave Molly. No one talks about painful sex and you're in the public eye. Love that you've made this video to help others, it's so brave and inspiring. Lots of love ❤️
I wasn't diagnosed with endo until I was 23. I'm so grateful to you for spreading awareness.
Unfortunately I had to have a radical hysterectomy at 31, they had to remove my uterus, tubes, ovaries, appendix, most of bowel and I now live with a permanent stoma bag. I suffered 8 miscarriages and never got to be the mum I so want to be.
Endometriosis is so misunderstood. People often think it's just about painful periods. It can be life altering. It's important that we talk about out experiences and support each other.
From one endo warrior to another, keep fighting the fight ❤️
You are one of the first people I’ve heard spreading awareness about endometriosis. I suffer with painful periods and a lot of other symptoms related to my period and am afraid to go to the doctor incase they don’t believe me but you’ve really given me courage to get myself checked out . Thank you so much for speaking out , sending you love ❤️
Definitely do it, I had a good experience.. gp put me straight in for a vaginal scan, that founds cysts, then they referred me to gynaecology, they done an MRI which found the endo, now on surgery waitlist. I luckily didn’t have the experience of doctors not believing me or sending me round the houses
But how do you define the pain? I get painful periods but it’s not every period, but when I do have a painful period, my pains r excruciating but then I’m like what if this is what normal period pains are like but I just can’t take pain as well as others.
no excuses .we all have the same 24 hrs
@@aykay5615 what triggered me to go to gp was extreme pelvic pain outside of my period time. Can make me pass out. It’s like having lava and knives in your pelvis. I always had heavy painful periods my whole life but thought that was normal so I didn’t even mention painful periods to my gp. When I went for my pains i mentioned my mother had endo so they referred me for a scan as they said it’s hereditary
@@aykay5615 The thing is periods should never be painful at all. It's not like bleeding from a stabbing. It's just that women have been gaslit for forever into thinking painful periods are normal. Nope. They are a sign of things like PCOS, endometriosis, or fibroids. I used to have terrible periods but once my PCOS was diagnosed and treated they stopped. Gynecologists say that requiring anything more than the occasional OTC painkiller or being unable to go to work/college/care for your kids means that your periods are not normal.
LADIES YOUR PAIN IS NOT NORMAL, KEEP PUSHING TO BE HEARD!
I just sat and basically cried the entire video, just to hear someone going through a similar journey. I have repeatedly been told by doctors that 'nothing is wrong', it's normal and to just take pain meds or birth control. All of which DO NOT SOLVE THE PROBLEM! But finally, I have been diagnosed and it has been both a relief to know what I have but also frightening to accept the reality. All I can say is thank you for sharing your story!
I literally love this girl! she just seems so genuine and so kind!
Exactly 🥹💜
Love her too ♥️ She’s an amazing person ♥️
@@user-ii4rq5ko3x my own sister and many friends have endo and whilst it’s extremely crippling, still have to get on with their everyday lives, like Molly Mae. Please don’t try to invalidate somebody’s chronic illness.
it angers me with how much hate she gets-she doesnt deserve it
@@johnmcgarry7199 Frrr! She really doesn’t deserve it
I can’t imagine someone going through all of these symptoms EVERY month! My heart goes out to everyone struggling endometriosis and PCOS.
Thank you for your kind words 😌
Sometimes it's not just with cycles...for me, I'm in constant pain with my Endo (as are many sufferers). I'm so glad more is being done to raise awareness because it really is debilitating 😔
@@laurengallagher2076 Im the same. They dont know if i also have interstitial cystitis but my daily life is chronic pain when trying to pee and endo bloat, cramps etc. I think I have maybe 1 or 2 days a month where the pain is minor (to me) and i try make the most of it 😢
@@jodziebear665 Have you looked into the embedded UTI connection with IC? There is a ton of info online and the NHS even wrote about it on one of their sites.
@@jodziebear665 I had pain with peeing and it turned out to be endo and scarring on my ureters. I had to fight for that diagnosis, and unfortunately pay a lot of money to go private, because my previous surgeon didn't believe there was anything on my ureters. The private surgeon said I was lucky they caught it in time, as it was about to grow on my kidneys
When you said the painful periods and painful sex feel like “two completely different journeys” I was like THANK YOU!!! 😭 A lot of doctors who aren’t as educated on Endo don’t get that you’re not just their for the painful sex or fertility problems, the pain encompasses your whole life.
Just had my 10th surgery to remove more endometriosis, I've also had a full hysterectomy at 40. It's such a debilitating and horrible disease.
It definitely goes undiagnosed so often. I also thought that the excruciating pain I was in was what 'normal' period pain was. It would make me double over in what I imagine contractions to be like, make me vomit with the intensity and occasionally pass out.
Thank you for spreading awareness endo sister 💛💛
I’m so sorry you’re dealing with this too and I hope you feel better. I can’t imagine how difficult something like this is 🥺
@@khalilahd. Thank you so much 💛
I’m so sorry. I have these same symptoms and it worries me so much. I literally dread my period arriving every month, it genuinely makes me so scared every single month. Missing time out of work and things that I like doing. It’s such a scary time💔
💛💛💛
@@donnax1981 💛💛
It shouldn't be that hard to get a diagnose and I'm tired of doctors trying to push the pill as a solution for all our period's issues. Ty for spreading awareness.
It took me around 15 years to be diagnosed with Endometriosis, 15 years of being angry at my body and not understanding why it was hurting me so bad!
I also shared my journey on my TH-cam channel in the hopes it can help others, you have a much larger platform so thank you so much for speaking up about our condition.
We need more research, more awareness and we need to be taken seriously.
Omg really? No doctors have taken me seriously and have only recommended birth control etc . I had an ultrasound that didn’t pick up anything but another doc told me it can only be diagnosed through surgery 😢
@@amyc4375 I'm so sorry that you've been through this. I was also disregarded by doctors for years, it's so frustrating and makes you feel like a hypochondriac! But keep pushing, it's your body. You're correct though, you can't tell via an ultrasound, only via laparoscopic removal of tissue that's sent away for diagnostic testing.
Wishing you all the best 💛💛
Isn't it crazy that it takes so long! My journey to diagnosis was around the same length of time.
We absolutely need more awareness and research!! I'm so grateful for Molly spreading her srory 💛💛
💖
I was the same 14 years, had a diagonsic lap in august to be told i had stage 4 servere endometriosis, currently waiting on letter from doctor to explain why they wouldnt refer me even when i offered to pay for a private consulation. The doctors went through my notes to 2005, endometriosis was mentioned everytime yet i had to say it was affecting my mental health (to a different doctor) before they refered my, contemplating legal action.
I’ve always admired how transparent you are with things like this. It’s not always easy to talk about but I’m glad that you did. It brings awareness and allows us to understand you better ☺️
Love the fact you are spending awareness of this. I also have endometriosis I had my operation in December 2021. Your such an inspiration thank you. 💗
Exactly! 💜
I literally feel so sorry for this girl the amount of stick she gets and she’s the most beautiful down to earth lovelies girl ever everytime I watch her channel I just want to give her a hug how anyone can hate her is beyond me she’s lovely and just amazing xx
As a 16 year old whose has just been diagnosed with endometriosis, I find this inspirational. Thank you for being so open and exploring this illness to create awareness:)
i heard this first time this diagnosed by endo.at the age of 15 .is that really true
If MRI’s don’t show anything that could physically be causing the painful sex now, it could be something called vaginismus which is again something doctors often brush off for women! It can happen after you’ve experienced painful sex due to another issue, and your body then subconsciously learns to anticipate it being painful which makes the muscles tense and then that makes it hurt when you try, so it becomes a bit of vicious cycle! It’s quite common and can be worked on but not something that’s often spoke about so thought it was worth mentioning incase xx
I thought this too!!
This is a major thing. Botox can be injected into the vagina to relax the muscles which can help with tension when anticipating pain during sex.
I came here to say this! I had no clue about vaginismus until a few years ago as it is even like diagnosed than endo.
@@AlwaysAndrea100 I never knew that was a thing?!!! I was told they can’t do anything about it!
@@cassieadams7346 they can, just depends on who you speak to. Definitely needs to be a Gynaecologist.
I’m starting med school this summer, and it is so sad to hear your stories of doctors who didn’t take your pain seriously enough. It’s unfortunately very common for doctors to dismiss women’s pain (and POC’s pain as well), and it is not at all OK. Will definitely keep your powerful story in my mind and in my heart when listening to my future patients’ experiences. Thank you for sharing Molly, I know this has been so helpful for so many to hear around the world!
Honestly Molly this is truly amazing and comforting watching this video. It is one thing that you have experienced this condition but I commend you for talking so openly about this to such a BIG audience. I am from Australia and endo is slowly becoming more spoken about. I am currently suffering from similar symptoms and watching you speak about this makes me more inclined to get things checked. Previous to this video I had a lot of respect for you but now I have a whole new level. The way you hold yourself and present yourself is exactly what this generation needs especially in the age of social media. It is so easy to tell that you come from a place of pure heart and genuinely want to help others. I honestly cannot stress enough how important this video is and how incredible everything you achieve is. You should be extremely proud of yourself Molly and in particular for standing by who you are!
omg girl the painful sex is a new level of depression 😭 thank you for making this video!!! i don’t have endo but i do have pelvic floor dysfunction which causes a lot of the same symptoms!! people don’t talk about these things and it makes it taboo.
If you don’t mind me asking how were you diagnosed with pelvic floor dysfunction and is there anyway to help it xx ?
@@elladalton5924 yes!! physical therapy works wonders and recognizing tightness in your body!! i was genuinely in excruciating pain every single day for atleast 6 months from the moment i woke up to the moment i went to bed. and i was misdiagnosed with IC (interstitial cystitis so that’s a possibility on your journey) for like a month or so but i knew something was off so i did my own research. i knew i didn’t have IC, somehow lol. they were about to do full surgery to expand my bladder and the day before i was doing research and i found hypertonic pelvic floor dysfunction!!! it literally saved my life to find that out lol. so i called mg
doctor and told her and she was just like “oh. yeah it could be that” 🤔 after that i went to PT and the pain was literally gone after a month or so. if i’m stressed out super bad or forget to relax my muscles sometimes i still get pain but it truly saves my life to get that diagnosis lol
@@elladalton5924 please let me know any questions you have!!!!
@@Addysuunwow thank you so much!! You’re so kind for replying means so much that was so helpful I’ll definitely do some research into it. I wish stuff like this was more openly talked about or even for the doctor to mention it might be a problem because I never knew much about any of this. Again thank you so much was insanely helpful. So glad you were able to figure out the problem for yourself 💞💞
@@elladalton5924 i am SO glad that helps!!! i would never wish this kind of pain on anyone in this world and i’m so glad that what i went through can help other women out there ❤️❤️❤️❤️ good luck my friend ❤️
Hi Molly, it sounds like they gave you ablation surgery as this is when they burn the cells away. However the gold standard in endo surgery is excision surgery where they literally cut the disease out from the root. Ablation just burns the top layer away but the kind of root of it is still left behind - this may possibly be why you are still having symptoms. If you are going to another doctor about this at some point I would really push for information on excision, I think that will help a lot more. I had stage 4 severe endo and I had expert excision done with a specialist in London and it really is the best outcome I could have hoped for. Good luck with it all lovely Xx
Hope she sees this 🥺🥺 so helpful
Yeap! This is all right ! Cold surgery is better, burning makes the scars worst
I'm sure a consultant gynaecologist knows more about which surgery than someone on the internet...
I think she may have used the wrong word as I’ve had the same surgeon and he used excision surgery and he’s also verified on nancys nook group on rated excision surgeons. 1 year later I'm so much better with a baby girl also. Think that needs clearing up for sure as this is so important!
Yeah I had the same surgeon and he's a top expert, he definitely does excision
I love that Molly is so open with us 🥺🥺🥺❤❤
I was so excited to hear that you were operated by Edi Osagie, he did my 3rd surgery in July last year. One thing I would encourage is for you to look at your fertility now, that doesn’t mean you need to try yet but definitely look and make sure your ovarian reserve is not being effected by the endo, I’m now going through a very difficult journey with this and was recently told I will now need an egg donor to conceive due to the damage from endo, had I known this years ago I would have definitely looked in to freezing my eggs, please consider this so you do not have to go through the same xx
Good advice I hope she sees this x
Can you please explain more? I thought the issue with endo was that it prevented implantation due to the endometrial tissue? Does it also damage eggs?
So refreshing to hear someone in the public eye talking so openly about this horrible, debilitating condition - thank you Molly
Never commented before but I really need to say thank you so so much for sharing your journey so openly. As time goes on I’m starting to realise that there are more of us than I would have ever realised dealing with painful sex due to different woman’s health conditions. Speaking about this online can’t have been easy at all but just know that you will have helped so many others realise they are not alone and what a difference this will have made. I hope things improve for you soon but a huge thank you for creating this video 💕
Thank you for sharing, as a girl going through the process of the doctors finally starting to listen to me about my painful periods/possible endo, I appreciate someone with your platform being so open and lovely about it. Defo raises awareness so thank you xx
at 16 i’ve been diagnosed with stage 4 endo and just had my first laparoscopic excision surgery on friday. I have to get a stoma bag for my fused bowel and have further surgery in july to get that done. This is so raw and refreshing to see, especially during endometriosis awareness month. The struggles it has caused me for 7 years has been horrendous and i really appreciate you raising awareness on this!
Adenomyosis is endometriosis's "evil twin sister" which nobody really talks about or is aware of. I hope more awareness is raised in the future as it's just as awful and debilitating. Thanks for speaking up Molly 💗
I was just diagnosed with adenomyosis and a fibroid... i am 32 years old, and i have tried to do research, but there is not much information.
Having suffered from endometriosis and being the first person diagnosed in South Africa some 40 years ago....I learned along with the doctors.
How people can say you are trying to make it cool- is beyond comprehension. THOSE people have zero idea of the pain and consistent heavy bleeding, involved with this disease.
Once you have had your family I strongly urge you to have a total hysterectomy. I was never told that if the ovaries are not removed, endometriosis and endometriol tumours can continue to grow.
Lastly I was not told that endometriosis often leads to endomertriol cancer. By the time I discovered I had this I was already stage 4.
I have sold every valuable item I own, in the past 3 years, in an effort to stay alive.
Stay informed.....ask a million questions and never stop learning about this disease, in an effort to stay ahead of the new information.
That is truly heartbreaking to hear. I have endometriosis as well and have found it so frustrating that i often feel like doctors are learning about with you as there really isnt enough research on it. cant imagine how that must of felt for you being the first person diagnosed in South Africa. i hope you feel comfort in the fact that you brought awareness to it for many others who were diagnosed after you. God bless you and i truly hope you come out of this healthy and stronger than ever
So sorry to hear this. As if you haven't been through enough already! Stay strong 💛💛
This is so sad to hear of your journey, prayers to you you’re such a a strong woman and your comment I hope doesn’t get ignored by those who needs to hear it
Even after a full hysterectomy it's not cured and can still grow back, I'm waiting for my hysterectomy but leaving 1 ovary to help keep menopause away a bit longer, he saud I can have it removed later on if I feel I need to, I've lost 9 babies and have 2 healthy boys at 8 years apart from trying, I had to have a laparoscopy to remove the endo to get pregnant and be able to carry him but I'm fully aware that even a full hysterectomy won't cure me but it will help with pain as I won't b able to ovulate or bleed so at least that's something to look forward to as I get ovulation pain too, I'm in pain every 2 weeks! And I know which ovary is pushing an egg out as its like a knife going into my ovary
I have just found this video and i suffer badly with PCOS and Endometriosis, to hear someone talk about it is really amazing and comforting, thank you so much for this video.
I just want to say thank you for emphasizing your nervousness about sharing your experience. Many people don't understand how complicated endo is and how diversely it's experienced and described by each female suffering with the pain. Everyone's endo story is unique, which most likely contributes to the lack of medical awareness and treatment. Thank you for sharing yours 💛
It is so important to discuss how an illness can affect your sex life and I am go glad you briefly mentioned this. I always felt so awful for my boyfriend because I would just not want him to touch me and it is just as hard for our partners when we have this. Your making such a difference for so many girls
You're incredible Molly, as a fellow endometriosis sufferer and have been since I was 13, I'm 30 now, I feel your pain. Well done for pursuing help with this and not giving up on getting diagnosed and treated. I think only people who suffer with this condition or know someone who suffers with it will understand how truly debilitating and life ruining it really can be when left untreated and ignored. Thank you so much for raising and continuing to raise awareness around this condition. ❤
Shows how much love Tommy and molly have for each other. Not just a "for sex" couple but in it through thick and thin
oh my! i never even knew such a diagnosis existed. Periods are HELL and you’re telling me they can be worse than they already are?? wow, thank you for educating me, that sounds awful. i do admire how well you’ve managed yourself to this point. I hope it gets better for you as the years go on 🖤🖤
I just had a laparoscopy for ablation for removal of endometriosis and cysts. The important thing to be educated on is when our estrogen is high the endometriosis grows. And inflammatory foods raise estrogen. If you have good self control you can change your lifestyle diet and only eat anti-inflammatory foods. I’ve done this bc it’s one thing I can do on my end to help my body which is a temple. There’s no cure only things we can do to help ourselves and diet is one, exercise 30 mins a day is another and surgery is a band aid (but helpful)
You are sooo amazing and I love how you can share this with us and we all love and support you no matter what 💗
I’m pregnant and we had an early 7 week scan where they found 2 huge cysts around 11cm and 5cm one on each ovary! Doctors are so shocked we conceived so easily and have said similar I’m 80% got endo but cannot operate because of baby and we are having scans and possible surgery after birth. I had no idea until we had baby that they were there. My period were heavy but I thought that was normal for me! Thank you for sharing. Now I’m 15 weeks pregnant has 2 heavy bleeds which they think are linked to my endo but it’s been a scary time so lovely to hear your story and read everyone’s journey x
I hope you have a safe rest of your pregnancy 💗
Hope evrything is ok for both you and your baby
Sending you love
sending love and protection for both of you 💖
Are cysts shown on ultrasounds? Is that how they find out?
I feel you honey! This is the exact same as my journey! sex pain is 100% the reason I looked into it! Finally got my diagnosis this month! X
"Definitely not trying to conceive right now... I'm not thinking about that..." this is so cute! Life is full of amazing surprise! X
I don’t have endometriosis but thank you for
Educating me about it as I never knew what it was. I’ve always had heavy periods but I have two fibroids so I think it’s due to that. Thanks for being so open Molly ❤️🥰
Never comment on anything and I’m sure there’s a million here, but in case it helps very much appreciate someone talking completely candidly about their personal and relationship experience, and fully know you are not a medical professional or trying to be one!
Thank you for this video! It’s crazy how there is little knowledge on endometriosis when so many people are affected by it. It took me 9 years to get diagnosed with endometriosis and it was a long journey of going back and forth to the doctors similarly to you and finally having laparoscopy to realise my gut instinct was right. Periods should not cause you so much discomfort where it interferes with your life.
I don’t know if this will help anyone but being on the coil changed my life in terms of endometriosis. I no longer have periods and I don’t have any symptoms which I initially did have on the pill and when I was having regular periods. As far as I know it’s recommended for people with endometriosis as it prevents growth of new tissue when you ovulate.
Thanks again for your video! I think you done an amazing job on helping people understand - sending lots of love x
😢 I’m in pain every day! Cannot wait for my operation. More awareness is needed. Thank you for this molly ❤
Using natural herbal supplement helps to cure endometriosis completely 😊, no pain and no side effect.
#drdaro TH-cam channel
I recently got diagnosed with a heavy type of endometriosis and andenomyosis which makes it hard to get pregnant without having pain and danger. So it's no surprise more people are talking about it but I feel super sorry for every woman that has /had to go through this tough thing. But we are not alone.
Thank you Mollymae for being open to talk about your experience. Xxx
Your story is really similar to mine! I know the struggle and THANK YOU for talking about this 💛 it’s so sad that the majority of all the affected women has to meet these ignorant doctors for several years before we get help! Sending love to all of you! We’re strong 🎗
Thank you for being so honest and talking about this, especially seeing a successful woman talking so openly about sex as well as the issues is fabulous as it isn’t that common!
Well done for sharing this Molly so amazing definitely wasn’t easy for you but you did it! Been on this journey with you all the way you have all our support💗
molly thank you so much for speaking about this, every single thing in the video that you spoke about I was just like yes yes yes!!!! I’ve never had someone relate to me before like this about the diagnosis and how long it takes and being on the pill so young! thank you so much for shining a light on such a hidden but chronic illness 🤍
I’ve had stage 4 endometriosis for 8 years now and feel your pain on every level! It isn’t just physically exhausting, it’s all the psychological problems that come with it too 😣 wouldn’t wish this condition on anybody! But it helps knowing you’re not alone so thanks for this video babe! Hope you’re managing well. We’re in this together! #endowarriors 💛 xx
i’m worried i have endometriosis and cancelled my scan because i was so scared😢this has helped to encourage me to really get it looked into and get it sorted, thankyou Molly❤i love you and look up to you so much xxx
Wow I hope you’re okay and get the help you need 🥺💜
@@khalilahd. my exact symptoms are the same as Mollys so feel like i should definitely be seen and get it sorted, thankyou😘😢
Molly i have dmed you on instagram about this a bit more, would be amazing to have some advices from you xx
A scan itself may not show if you have endo- the only way to be sure I'd through surgery where they take a biopsy. I really hope you don't have it, but definitely get it checked out so you know x
Endometriosis is such a horror. I’m 19 and already had 5 surgeries and been put onto artificial menopause to try help me. I REALLY appreciate you speaking out about this, thank you 🥺I know how strong you are 💛💛
Endometriosis is an inflammatory condition caused by a hormonal imbalance. Synthetic hormones can cause negative side effects and only suppress the symptoms in the shorter term and surgery is not a long term solution because until the root cause is addressed the endometriosis will keep returning. Look into reducing estrogen and increasing progesterone naturally through dietary and lifestyle changes (plastic, toxic chemicals / beauty products and dairy are the biggest sources of excess estrogen in the body) x
Hey Molly! I’m Women’s Health Physio from Aus - I highly recommend you talk to your GP / Gynae about seeing a pelvic floor physiotherapist! They’re well informed about endometriosis and the function your pelvic floor has in painful sex ♥️
From one Endo warrior to another. Thank you for making this, it makes us all feel like we aren’t alone. I hope your specialist appointment with your gynaecologist goes well! ❤️
I love that you are talking about this and spreading awareness. recently found out I have PCOS and its really cool to see you making this video
Great to see somebody in public eye spreading awareness. Just a positive to say I have severe Endo and had 2 laps in 2020, December 2020 I had severe Endo removed and they found that my right Fallopian tube was completely blocked. I’m currently sat here now with my baby girl in my arms, I thought this would never happen yet I managed to conceive naturally. Although I’m still suffering with my Endo now I just wanted to share a positive story in regards to fertility 🥰
Health is a sensitive topic we all just need to understand everyone's experiences are different. Thanks for sharing yours Molly x get well soon for yourself and Tommy.
Seriously the most genuine, amazing girl ever. Everything she says is so positive and helpful for everyone ❤️❤️
I literally love you so much. You’re truly such a genuine soul and it’s so comfortable knowing I’m not alone. I’m only 19 and I’ve been struggling with this chronic illness since I was about 15 as well and it’s so hard. It’s draining and beyond exhausting. Knowing I can relate to all your symptoms and having a role model helps so much. I’m beyond proud of you and will forever support you 🥺🤍
I think this is such an amazing eye opening video. I’ve got endometrosis and I think there is definetely not enough awareness about it. I genuinely felt like I was the only person with endo in the world who has painful sex and it’s such a hard thing to cope with in a relationship and I’ve been the same with a low sex drive because of the pain 😢❤
I'm a mum to a teenage daughter, fab video for awareness Molly Mae! Thanks for sharing your journey 💛
Thank you so much for raising this awareness! As an endo warrior myself, you’re so strong ❤️ It needs this awareness because nobody understands the severity of this condition. Thank you for using your platform to speak out about endo! xx
I’m about to have a laparoscopy on Wednesday and I’m scared! Thanks for answering these! I have minor endometriosis, a cyst and my Fallopian tube is swollen! So lots going on but nervous! I’m only in my 20’s. I’ve been complaining for 4 years and all doctors have told me is your young, your fine, and all along I knew something wasn’t right! X
Thanks for spreading awareness lovely 💗 it took me about 11 years to be diagnosed, it’s a hard condition to live with physically mentally and emotionally. Anyone out there who needs support I would say please connect with the endo community online whether that’s on Facebook groups or Instagram there are so many girls out there advocating xxxx
Hi Molly, Listening to your story is almost a mirror of mine, yet mine was severe fibroids. Started symptoms at 15/16. Went to the doctors so many times but was told the pain was in my head and I was being dramatic. Eventually went to a private doctor who diagnosed me with fibroids of the womb. I can’t even explain the pain I go through the week before my period. Like you, it happens in the night. Agonising pain. It lasts for 30 minutes on the dot, feeling like I’m going to die, followed by being sick and passing out (usually on the bathroom floor) and coming round hours’ later. This happens every month! For 20 years’ (I’m 36 now) I’m fighting to get a hysterectomy, I just want this gone! My life is impacted so much. I don’t have children, I don’t think I even can. Thank you for talking about this. It means a lot ❤ P.S- Congratulations on your pregnancy, I’m so happy it worked out for you xx
Thank you so much Molly! I am watching this as I clench my hot water bottle and this is giving me hope that awareness is growing and support will be available for more of us more consistently some day soon. I have both endometriosis and adenomyosis. I suffer from terrible pain for longer than my period each month in my abdomen and legs and I had 3 surgeries already. There is no cure but talking about it and hearing others do so really help so thank you 💛.
Endometriosis is an inflammatory condition caused by a hormonal imbalance. Synthetic hormones can cause negative side effects and only suppress the symptoms in the shorter term and surgery is not a long term solution because until the root cause is addressed the endometriosis will keep returning. Look into reducing estrogen and increasing progesterone naturally through dietary and lifestyle changes (plastic, toxic chemicals / beauty products and dairy are the biggest sources of excess estrogen in the body) x
Hearing you talk about Endometriosis made me feel normal again thanks sis ❤️ would love an update on your journey sometime xx
This girl is absolutely so beautiful and have a genuine heart how could you hate this woman
Absolutely love how you’re raising awareness for this and telling your story! Proud of u girl💗💗
Sending love and healing from a fellow endo sister ❤️🩹 so many people don’t know what endo is, even doctors! So having someone with such a big platform speak is out is incredible ❤️
I was finally diagnosed last week and had key hole last week to remove endometriosis. Thank you for raising awareness on this topic 💛
This video was really helpful, I’ve had very heavy, painful and irregular periods since I was 12 and was put on the pill and it isn’t helping. I have always wondered about Endometriosis and what the symptoms were this was a great video had lots of information. Thank you Molly ❤️
I don't have endometriosis but thank you for raising awareness and sending you and other sufferers in the comments lots of love 💖x
Thank you for doing this vlog Molly, I am at the very beginning of my endo journey. Waiting for my private med stuff to come through within my work. I was referred to a gynaecologist by my GP but covid has put a huge spanner in the works with that so hopefully I’ll be able to get sorted soon. As you my periods are excruciatingly painful and each time I am always in bed for like 3 days also a new symptom is my vomitting because of the pain which is fun (not). It’s lovely to know that I’m not on my own as affects me so bad as I do have a 6 year old daughter too but my hubby’s so supportive and that definitely helps but I can still be sore for like 10 days with my back too. I was 9 when I first started my p***** and yeah I just thought this was “normal”. Thanks again Molly and I hope everything goes ok in London with your gynaecologist appointment too ❤️
Aw molly, you wouldn’t even imagine you have went through this much or went through this much pain, you are amazing, you will get through this🤍
It’s so important to talk about endometriosis, you’re helping so many women not feel so alone. Having it has made me passionate about women’s heath and the more we talk about it and bring awareness the better 💕
I had a hysterectomy and I still have pain and pain during sex :/
Thanks for spreading awareness. I have been told by doctors that my periods were normal, that when I’m happy I get periods and when I don’t I’m sad, that’s it’s my diet that causes it. It wasn’t until 2020 that I finally had a doctor say “that sounds like endometriosis, I’m gonna refer you to the gynaecology department” and I was so happy that I was heard after suspecting it since I was 18. I’m on the mini pill now which has helped a lot but I know it’s not the ideal solution but it allows me to live my life uninterrupted which what I was experiencing before
I literally have so much love for her
Literally just been discharged from hospital after having the whole of my Sigmoid Colon removed due to a tumour in my colon wall (found on an MRI and colonoscopy) that they were sure was cancer - turns out it was Endometriosis! Certainly the lesser of two evils but still! My symptoms were:
- At time of my period, sharp bowel pain followed by very soft/loose stool and then (and only then) my period would start to come out.
- Bleeding from back passage
- Insane period pain
I did go to the gp both about the pain and separately, about this link with the period only starting after a bowel movement but it was disregarded.
Hope this helps someone!
Well done Molly for shining some light on this, women's health is so overlooked and underfunded.
Hi Molly, thanks for this video! Can we have an updated version of this soon since pregnancy etc! I’d really appreciate that 🤍
I had the same surgeon.. cant recommend enough! Also took 15 years to get a diagnosis and he gave me answers in less than 30 mins! Need more people putting light on this disease!!
Thank you thank you thank you for sharing this. I am watching this sitting in bed because the pain I'm in is so unbearable I just can't move. Sometimes I can't even breathe. I am so glad you are sharing your journey, to make all of us feel less alone.
Finally after 43 Online doctor consults I’ve been referred for endometriosis. Watching this really helps, thank you. X
25 years old and was just diagnosed on October 10, 2024. Took me 7.5 years to get diagnosed. I can’t count the number of times I’ve been called crazy or told I’m imagining the pain. I’m just glad I have some answers now.
Thank you Molly 🥺 I’ve just been diagnosed with it. The pain is so bad I feel like I will pass out. I’m very lucky I was diagnosed with it straight away and the dr listened and understood and detected it straight away
5 times! That’s absolutely amazing! Lucky u then saying that so soon. I’ve just been diagnosed after 13 years of being in hospital by ambulance every month for the last 13 years. Now it’s daily agony not just my periods. I’ve been bed bound for 2 years and am awaiting a hysterectomy and endo removal in 4 weeks time. It’s absolute hell on earth I have no quality of life
I don’t normally comment on videos but I just wanted to say that you are such a dote. As someone who suffers with a similar issue (PCOS) I know how debilitating it can be.
I think you have done amazing with everything you’ve achieved despite the pain you’ve been in. And the relationship you have with Tommy despite the sex problems is a testament to how lovely you both are.
This brought a wee tear to my eye and you did yourself so proud ❤️ you should be proud of yourself.
Lots of love xxx
Great you are talking about this,
My diagnosis took 10 years to get! Eventually someone looked into it more as I was continuously anemic from blood loss. I have also now been told I have adenomyosis as well. Good luck with it all x
Molly you need to be a women's ambassodor raising awareness for endo..absolutely amazing little human being, have been obsessed with your videos 💜💜
This was the best thing I could of listened to today. After a year of suffering with on and off excruciating pain, I finally found out today I’ve got an endometrial cyst. I’ve been sat worried all day and was such a comfort to watch this ❤️ truly made me feel like I’m not the only one doing through something like this at the moment x
I'm sure you have helped so many women feel better that there not alone. what a lovley genuine girl xx
Thank you so much for this!! i’m in the process of finding out if i have endo too just waiting to see the gynaecologist and hope they can give answers on it as my Gp also thinks i have it, but honestly this was so comforting and i’m so glad you mentioned the painful sex although it’s sucks it’s so good to hear others talk about it more and spread more awareness about it all! you’re amazing!!
Well done on sharing your story and trying to spread awareness about this horrible disease. I totally understand how lonely and scary it is having such severe pain. I had a hysterectomy two years ago at age 41 (I’m fortunate to have had my children). I also have 15cm of endometriosis in my bowel and the only way to remove it is to remove that section of bowel and then reconnect the bowel at a later date which means having a stoma for a couple of months. At this stage I’ve opted to manage the bowel endo with drugs. Please keep seeing your doctor and specialist and if you’re not satisfied keep trying other avenues. I had no idea that the endo could spread to my bowel and accepted it when I was told it must be ibs. 💛💛💛
Made me feel so much more comforted especially in regards to the strains it can have on a relationship ! I hope you continue to find ways to get better ❤️❤️❤️
So so pleased that you have spoken about this! Very brave of you to share something that has affected your life so much! Endometriosis is such a difficult condition so thank you for helping raise awareness 🥰 Also just wanted to add that excision surgery is considered the gold standard treatment as it has a lower reoccurrence rate than ablation xxxx
Thankyou for this video Molly, I don’t have endometriosis but I do suffer with Polycystic Ovary Syndrome so it’s comforting all the same hearing other women’s stories around these issue. I wish you all the best on your journey x
I swear ANY problem i have had with womens health, I get told “are you sure you’re not pregnant”, “you should try a new birth control” or thrush or bv. I know those nights of agonising pain it’s so frustrating to be turned away. I had a kidney infection that was dismissed as pregnancy or thrush! Was peeing blood and in agony and needed antibiotics for weeks. Really no joke I hope this awareness helps raise womens health awareness and reduce stereotypes and stigmas.
Thank you so much for spreading awareness. I was diagnosed about 5yrs ago and have surgery to remove, It helped a little but not much. I was like you, just happy to be taken seriously and happy to be heard after so many years of pain.
I went back to my doctor about it recently and it’s like we’ve started again… it’s a new doctor and he’s denying any knowledge of endometriosis … surely it’s in my notes and I have the scars to prove it.
It seems more common than not so it is worrying the black cloud that it has over it when it comes to diagnosis! I Guess I’m starting my journey again x
Endometriosis is an inflammatory condition caused by a hormonal imbalance. Synthetic hormones can cause negative side effects and only suppress the symptoms in the shorter term and surgery is not a long term solution because until the root cause is addressed the endometriosis will keep returning. Look into reducing estrogen and increasing progesterone naturally through dietary and lifestyle changes (plastic, toxic chemicals / beauty products and dairy are the biggest sources of excess estrogen in the body) x
My mum had me after being told she wouldn't have kids through having endometriosis fair play your always so honest here for your content xx
You are amazing girl, been through so much in your short life, people still hate on her when she’s so so real! Love this video x
I was 15 when it really began for me too. The dr had no idea what was going on with me so put me on the pill and said it’s just painful periods. Basically, I had to live with it!! It’s great that there seems to be a greater awareness now but it’s nowhere near where it should be. Womens health isn’t a focus for GP’s outside of smear tests. I’ve had 12 operations and procedures to try and help my symptoms and went from specialist to specialist to only get conflicting information! Thank you for shining a light on this debilitating condition and being so candid about your own symptoms xxx