Personal Perspectives: Krystal - Coping with the Marfan Diagnosis

Krystal Camire shared her story as part of our Coping with the Marfan Diagnosis panel on February 16, 2022.
To view the entire panel presentation, visit: • Personal Perspective P...
For more information on Marfan, visit Marfan.org.
To ask medical questions about Marfan, please submit them at Marfan.org/Ask

[@sn8323]

TY so much for sharing. I have a friend who has Marfan Syndrome.

[@sn8323]

Probably a silly question, but does everyone who has Marfan have a sunny and lovely personality? Only asking bc my friend with Marfan is one of the most special people I've ever met, who lives life in a state of gratitude and joy. And Krystal Camire seems to share a similar warm and graceful spirit.

[@sophia-lp6xr]

My daughter Sophia who is 11 has the same personality 😊 my others kids not so much and neither do i..I believe there are certain special people with Marfans!!!