Cure the Care System

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  • เผยแพร่เมื่อ 10 พ.ค. 2021
  • Nearly 1 million people with dementia and their families are struggling to get the support and care that they need and deserve. Until things change, a dementia diagnosis will keep claiming more than one life. Make a stand this Dementia Action Week. Visit bit.ly/3tHtV1M to sign the petition to reform social care.
    Who are we?
    Alzheimer’s Society is the UK’s leading dementia charity. We campaign for change, fund research to find a cure and support people living with dementia today.
    What is dementia?
    The term 'dementia' is used to describe the symptoms that occur when the brain is affected by specific diseases and conditions. Symptoms of dementia include loss of memory, confusion and problems with speech and understanding.
    If you need dementia support, we’re here for you. Get personalised information, support and advice by calling our Dementia Connect support line on 0333 150 3456 or visit us at www.alzheimers.org.uk/
    Alzheimer's Society
    United Against Dementia

ความคิดเห็น • 23

  • @melcyb711
    @melcyb711 3 ปีที่แล้ว +12

    Watching this just before going to help my Dad upstairs to get ready for bed. So hard. Government are not doing enough!.

  • @michaelm8841
    @michaelm8841 3 ปีที่แล้ว +7

    I’m a full time at home Carer for my mother who has Alzheimer’s. Every time I watch this advert tears stream down my face. The majority of issues in this advert I have experienced and I know I am not alone as thousands are doing this without much support. Some days are very dark, others less so but each day we start afresh. I would like Alzheimer’s Society to produce more hard hitting, shocking and raw adverts to help highlight the issues carers in dementia are facing. Thanks for being there for us.

    • @andycarol3903
      @andycarol3903 3 ปีที่แล้ว

      Finally free from Alzheimer after using natural holistic medicine from Dr Erayo on just as I was recommended to by a blogger who got cured too.

  • @rirmgigs
    @rirmgigs 3 ปีที่แล้ว +9

    Harrowing depiction of what is happening. 🥺
    Signed the petition for reform. 🤞

  • @thecarentsroom5256
    @thecarentsroom5256 3 ปีที่แล้ว +10

    Powerful depiction of the impact on carers - thank you for sharing

  • @21kirsty21
    @21kirsty21 3 ปีที่แล้ว +4

    This is such a touching advert brings tears when it comes on 😥❤️

  • @Inferno5150
    @Inferno5150 3 ปีที่แล้ว +19

    I'm an American and I can tell you that the UK and Australia are way ahead of us over here in the USA. It's a disaster over here. My mom has Alzheimer's and when she entered into the later stages her health deteriorated to the point that the hospital had to take her in. Her first day in the hospital the doctor pulled me aside and said "I think she may be showing signs that she may be developing dementia". We don't stand a chance over here. Everyone is less than clueless.
    Since I had to devote so much attention to my mom I didn't notice that my dad is in the early stages until my mom was out of the house. By the time i get my life back it's possible (or even probable) that I will be the one in the early stages. It's quite possible that my life (as I knew it) actually ended years ago, with hope of recovery fading every day. The thought of me taking over another person's life and turning that life into a hellhole like mine is unacceptable. I can't do this to another person. I WON"T do this to another person. Suicide is a legitimate option on the table now.

    • @BillyBob-kr9xd
      @BillyBob-kr9xd 3 ปีที่แล้ว +3

      Hi mate, I understand how you feel even if I haven’t got it anywhere near as bad as you. Please reply to this comment if you want to talk and I’d love to give you a call some time

    • @alzheimerssociety
      @alzheimerssociety  3 ปีที่แล้ว +5

      We are so sorry to hear what you are going through - it is clearly very hard and we understand your concerns about the future. But we do believe that so much can be done, and with the right care and support in place it can help people with dementia and their families manage the condition and live better lives doing what matters most to them for as long as possible.
      A first step for finding support would be to call the 24/7 helpline of our US equivalent organisation Alzheimer’s Association on 800-272-3900. They have a lot of information on support available, including carer support groups, online at alz.org/help-support.
      If you are feeling you can’t face the future or need to speak to someone about how you are feeling about what you are going through, the National Suicide Prevention Lifeline is a 24-hour, toll-free, confidential suicide prevention hotline available to anyone in suicidal crisis or emotional distress that can be reached at 1-800-TALK (1-800-273-8255). In July 2022, this number will change to 988.
      We know there are people in the UK going through similar experiences who may be feeling the same way. We are here for you. Our Dementia Connect support line is available on 0333 150 3456 at the following times:
      Monday to Wednesday 9am - 8pm
      Thursday and Friday 9am - 5pm
      Saturday and Sunday 10am - 4pm.
      If things are getting too much, we’d urge you to call Samaritans on 116 123. They are available 24 hours a day, every day.

    • @calamitykendall
      @calamitykendall 3 ปีที่แล้ว +2

      Poor you, you have it hard! Brilliant advice from the Alzheimer’s association below in UK. So hope you have been able to find some help in the US. It is a cruel disease and so hard on those caring. My mother in law had dementia and it was tough but she was very old so it didn’t last too many years. Must be harder when people get it younger or as you say, 1 parent after the other. Wish there was a magic cure.... xx

    • @bernadettemenasse6885
      @bernadettemenasse6885 3 ปีที่แล้ว

      @@alzheimerssociety I have been hearing that for 10 years now and see not one change for the better. The support is less than it was and I don’t mean just during the pandemic.

    • @Rockercaruthonyoutube
      @Rockercaruthonyoutube 6 หลายเดือนก่อน

      Have you tried alternative mefication ?i,m trying homeopathh and we,ve yried the remedy Baryta Mur withb good results someone i know has just passed a capacity test after taking this for 2 eeeks.

  • @debby891
    @debby891 10 หลายเดือนก่อน

    Oh how I felt this💔

  • @andystretton4455
    @andystretton4455 3 ปีที่แล้ว +5

    As a family, we went through the same scenario 2 years ago, and in the end after many a conversation with my mothers doctor, and several other departments to do with adult care (of which we were ignored on several occasions), we stumbled upon Admiral nursing, who turned out to be the best thing ever, they do a similar job to Macmillan and Marie Curie, but for people with Alzheimer’s, dementia and any other illnesses under the dementia umbrella, I know that this service isn’t available across the country, but if you do find one, it might be the answer to your prayers.

    • @bernadettemenasse6885
      @bernadettemenasse6885 3 ปีที่แล้ว

      I agree they are wonderful but our area has not had one for at least 6 years

    • @andycarol3903
      @andycarol3903 3 ปีที่แล้ว

      @@bernadettemenasse6885 Finally free from Alzheimer after using natural holistic medicine from Dr Erayo on just as I was recommended to by a blogger who got cured too.

  • @alanrobinson8298
    @alanrobinson8298 3 ปีที่แล้ว +2

    Signed the petition and passed on to everyone I know. It DOES contribute to the destruction of your home, family and social life. I lost my Dad 4 years ago after 12 years of caring for him and after losing my 'glass half full' mentor of 60+ years found it difficult to cope with everyday life. I went into the darkest place I have ever been and was offered help by my GP through a box of pills. The alternative was a 12 month waiting list for counselling. I walked out of two very good jobs and twice contemplated taking my own life. The 'system' is so wrapped up in bureaucracy, hoop jumping and misinformation. The attitude seems to be "Seek and you MIGHT find, ask and you will get an answer (eventually)". There's a blatant lack of openness and simplicity to get the helps you need. It is TOTALLY reactive and not a bit proactive (unless of course you've 'done your research'). Australia is an exemplar in dementia research. We might be getting over Covid but if you think for one second we're getting on top of Dementia...

  • @lisarustidge2753
    @lisarustidge2753 3 ปีที่แล้ว +6

    As a social worker for older adults, I hope this doesn’t stop any carers from referring to social services because they think they won’t get any support. I understand the point you’re trying to make about the unimaginable pressure and stress on carers, but it’s a shame you have misrepresented social care to do so. Yes, we need more funding, yes we need more resources, yes informal carers are under appreciated and underpaid, all this by the government who need to step up but never in my career have I or any colleague ever declined a carer of respite.

    • @alzheimerssociety
      @alzheimerssociety  3 ปีที่แล้ว +4

      Hi Lisa. Thanks for getting in touch and for sharing your thoughts with us, we appreciate you taking the time.
      We’re sorry to hear you feel we’ve misrepresented social workers through our film - that’s not our intention at all. Our #CureTheCareSystem film aims to show how disjointed the journey can be for a person affected by dementia in getting the support they need from the social care system. Carers looking after loved ones with dementia have told us, time and again, how they struggle to access the system, due it being too confusing and expensive - if they know how to get started at all.
      We agree with you; decades of underfunding and neglect have led to a care system that’s difficult to access, costly, inadequate and deeply unfair.
      We’re sorry to hear our film may have caused offence - that’s not our intention. It’s fantastic to hear how dedicated you are to your work. With our petition to governments, we hope everyone living with dementia will one day have access to a social worker as determined as yourself and your colleagues. Best wishes, Alzheimer's Society