The Diagnosis
ฝัง
- เผยแพร่เมื่อ 21 ต.ค. 2024
- I seem to have levelled up, yay!
▶ Here's the BLOG POST: thelongestway....
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I got diagnosed 12 years ago. Stay as active as possible, it'll help.
That's rough Chris, take good care of yourself cos getting wheeled from Georgia to Germany might not be as fun. I've got neuroblastoma and I've got surgery next month. I'm only 18 but I've learnt to live with it, hope you get to do whatever you want to regardless.
good luck revan, let me know the date and i'll toast to your health that day!
@@ChristophRehage thanks, I'll comment back here when I get the exact date next week
@ Revan Fernando
We are waiting for your good news too 🙏🏻
Revan, I posted in detail about my experience elsewhere in this thread, but I was also just 18-years old when numbness and weakness began overtaking most of my body, and in the few months before I was ultimately diagnosed with MS, I faced several objectively terrifying possible outcomes, none more so than what you are facing now. I admire your attitude. I have since made it my life's guiding principle to never fail to appreciate whatever experiences I am afforded, as I count myself privileged to have them. I too will hope to hear back from you here, and will be keeping you in my thoughts. I hope you have a network of support in family and friends as I had, don't be afraid to lean on others--we all do, even without these kinds of challenges. Here's wishing you and yours the best possible outcome in the coming weeks and months.
Christoph, I appreciate everything you've done and shared. Your chronicles have been a frequent source of inspiration as you've brought me visions of faraway places through the perspective of someone I admire. Try not to think of MS as a hindrance to achieving your dream so much than achieving your dream can be an effective therapy to keeping the MS at bay. Trust me, I'm the last person to buy into the patronizing woo-woo bullshit I'm sure you've heard elsewhere about diets, the chemicals in the water, faith in religion, or whatever the fuck. Your drive to finish your journey can be every bit as therapeutic as whichever Betaseron you're injecting (...or have they come up with better options than betaseron/rebif/copaxone now? I haven't been actively treating myself in the last several years, the American healthcare system is dogshit). Thank you for sharing your experience with us, I look forward to every one of your videos, but am now even more invested. Keep your head up and feet moving!
@@Jacob.D. I understand the sentiment, and don’t disagree. It’s perhaps in the delivery, at least in my experience. And perhaps that’s also something unique to American culture to a degree. It’s more a contrived notion such as Gwyneth Paltrow’s “Goop” than it is a genuine and sincere acceptance of a holistic approach to being well. When I was going through my first relapse and diagnosis I kept having people who knew nothing about what I was going through or why tell me I should try some niche diet or go see their chiropractor. I don’t hold any grudge towards them, I think their intentions came from a fairly positive place…it just wasn’t what I needed to hear right then. I needed people to take my experience seriously, and it felt like the notion that what I ate or some trivial deep-tissue massage could make a difference somehow trivialized it, or even worse suggested that I was to blame for it in some way. I hope that clarifies my position on alternative medicine and more specifically, at least from my own perspective, what is/isn’t helpful to tell someone facing a potentially serious diagnosis.
But that was a long time ago for me. It’s easier to talk about now, and the complex emotions and insecurities that were likely a mixture of both the experience of being diagnosed with a serious, incurable disease, as well as simply being a young man, have long since settled down. I appreciate your perspective either way.
If for some incomprehensible reason, you didn't know: you're a f*cking inspiration to so many people mate. Wishing you all the best.
Thank you giving so much ….. and having the WILL to keep going. Sending good vibes your way friend!
You've got this - the harder the challenge, the sweeter the victory. We'll be watching and supporting you the whole way.
take care and get better , my man
Hang in there Chris, keep pushing forward!!!
Do what you have to do for your happiness and your health, and know that your adventures have been an inspiration for a lot of people, including me growing up, thank you for that !
That's heartbreaking to hear, please stay strong, man!
I’m so sorry to hear this @Christoph Rehag, stay strong 💪🏼 you will be alright 🙏🏼
I support you Chris. Hope you can complete this walk. Watching your video helps me fact problems into my own life.
You got this Chris. We are cheering for you!
I just found your video where you're walking across China in 2007 and what you're doing is pretty much my dream. No matter what happens nobody can take away all that experience from you. I have no doubt your touched many lives on your travels I sincerely wish you the best
I have MS as well! I was diagnosed in 2019 at 21, I’m 24 now. You have the exact mindset all of us should have: Optimistic! Be careful in your travels and keep on with your treatment. My treatment has been working well for me. Wishing you the best!
thanks joseph. a big fat high five from me, fellow team member! ✋🏼
You're the coolest Chris! I can't wait to support you as you kick hard mode's ass!
Hey Christoph, I am not sure what’s an appropriate comment on TH-cam to someone’s MS diagnosis, but I wish you all the best. Don’t lose your spirit, even if it seems dark at the moment.
I came across your first video a couple of years ago… what a journey you are on. Keep going and don’t give up. Lame thing to say but sometimes being focused on our goals can help us overcome the challenges…
Schon seit den Blog-Zeiten verfolgt...das geht mir tatsächlich nah. Dir nur das Beste. Mach weiter so
Thank you for doing what you have been doing and raising awareness of current situation in China for global community. Your authenticity, nuanced perspective, honesty and courage are inspirational to me and many others. I pray to god for your speedy recovery or at least letting you continue doing what you love and spreading that love to more people. Stay strong 老雷. Love you man.
You are very inspiring Chris. Good luck, but I don't think you need it. We'll all be cheering you on from our places in the world as you continue your journey.
All the best and safe and long travels, man!
Really sorry to hear that Chris, when it rains it pours I guess. :(
Hope you keep your spirits up - I'm rooting for you
Wow what an update Chris. Rooting for you mate on the continuance of your journey.
Hope god bless you, Chris!🙏
Keep walking! We are with you. Laolei.
I look up to you for your courage, you're an inspiration for how to deal with life
Can’t wait to see you and the caboose on the longest way again. Keep yourself safe.
You got this Chris! Keep being Awesome! We love you, sending you my support! ❤
Dear sir! I have watched your VLOG for some time now and admired and envied your adventures. Thank you for your personal disclosure and I have to say very proud of you. MS is not a death sentence, but a challenge to be undertaken. Perseverance, will, and desire is the formula to make this journey forward. To explain response... I have watched and admired my sister who also struggles with progressive MS. She is a retired math teacher, due to MS, leads her life with travel and bold moves to make the most of her life. She and my mother (who is German)moved to Mexico on the Pacific side, Baja California. There the weather is less intrusive on her health; there is very mild weather all year. They build a house on a mountain ridge that gives them a breath taking view of Ensenada bay and a cradling mountain views. She just finished a national parks trek with a friend of Zion, the north rim of the Grand Canyon, and Brice Canyon. She by her scooter and will power managed some of the trials. I admire her. Good on you for your tenacity!
Best
Edwin
NC USA
I absolutely love your perspective on life. Look after yourself and live life your way to the best of your abilities. That way you hopefully won't have any regrets as time moves on. My neice has MS and her attitude is quite amazing. Instead of being worn down and crushed by her illness she sees it as a challenge and has gone from strength to strength. I have faith that you will too.
Chris I'm sorry to hear this and I know you're terrified. We have a saying in Cantonese 留得青山在, 那怕冇柴燒 ! As long as you have health, you can go anywhere, but not at this stage. You need to be at the arm's reach of advance medical help like Frankfurt and shouldn't be back on the road yet. There's no point to rush back on your longest walk, wait until your situation is under 100% control. Please stay safe, stay healthy, sending my love and best wishes to you!
Thank you for everything that you have shared with us, Blessings
Life is a journey in many different ways. My wife and I are having concerns but I tell her it's not about the destination but everything we experience along the way. Best wishes.
few days ago i started to follow you on instagram. i saw the longest way video many times i cant even count it. and i saw that freedom and independence on your face. but i never knew that you got a serious disease like this. you gotta live with this man and i think you put up with this. but theres so much you can do to make your life better. and theres a long way forward to you. dont lose yourself and you deserve to give yourself the life you want. i wish the best!
Courage Chris! Take the rest of the journey at your own pace. Ja You!
I'm sorry for your diagnosis but at least this is livable. We are all getting old. When I was 30, I had a Thailand motorbike accident, which the next several years was filled with collar bone surgery, rehab, then hip surgery, back injections from daily pain. Several years later, it's amazing what you can live with. I don't let it stop me from traveling. I just make sure I have my meds or access to my meds. Don't let this diagnosis stop you from walking!! The good news is that you are walking through mostly EU countries from Turkey. So you'll have access to medical care. If you have to walk for a while and sit down, why not? It might take longer but you're still moving forward. You've had problems before and you've always figured it out. You'll figure it out again.
Man, so sad to hear that. Your way of walk and live inspires me. Just send you the very best. I know you will have the strength.
I'm sorry for you. I have read many times that sport, movement in general, is supposed to be very good stopping MS. So your plan is the best you can do, just keep walking! All the best, Mart
All the best sir 🙏
nur das beste für dich🍀
All the best Chris, you got this, and we got your back.
"Playing 200!"
I'm right there with you in spirit. All of us are. A Long hair freak brigade - keep on truckin', my friend.
Damn, no one wants to get such news, but you take it like a champ! I hope you got the lucky versions of MS that doesnt or barely progresses!
Damn! MS. Sorry to hear about it. You may need to discuss with your doctor about your best walking plan if you still want to make that unfinished trip. Hope you cope this well. Feel with you!
All the BEST sir Chris.!
Good luck and keep fighting 💪💪💪
What an engaging story. I hope you will feel better! And you will get home
Love hearing your stories. Keep it up Christoph!
Did you even watch the video?
Hard mode it is, sometimes that's just the way, and that will just make it all the more badass as you do it.
Don't give up man! You got this battle!
I wish you the best.
You are an inspiration man! Since 2009 when I first saw your beard video! Take care
Stay positive, you’ll be out there again soon enough :)
Do what you want and when you look back, I believe it would just be like what you said before, “sweet is more memorable than bitter”.
Yeah, I imagine taking your medication over the borders is gonna present a challenge. I'd have my papers of the diagnosis/prescription with me just in case, if I were to go ahead with them. Good Luck!
Edit: Just realized the medication might also require to be stored in a specific temperature. Indeed a hard mode lol
Hallo Christoph, ich wünsche dir alles Gute. Ich weiß das MS bei "jedem" anders verläuft. Möchte dir trotzdem sagen. Eine Freundin bekam auch vor 10 Jahren die Diagnose. Seid dem hat sie geheiratet(einen meiner Freunde) und ist Mutter geworden. Wenn's einer schafft dann du. VG
I am sorry you are suffering this! Take more rests with your cat 😸.
I hope you will be fine soon, take care...
I'm so sorry to hear that
I have relapsing/remitting MS. I was diagnosed at 18 (I’m 36 now). Feel free to ask any questions you might have. I know it’s a mind fuck. You will get “used” to it, sort of. Much love from North Carolina, US.
Haha, I'm from north Carolina too and Im 22. Would you mind sharing with me how you went about getting your diagnosis?
@@olsonbryce777 Certainly. I had been experiencing numbness in my right hand for a few months over the summer, like it was asleep but wouldn’t wake up. Everyone assumed it was a pinched nerve and would probably go away eventually. Then one morning in the October of 2001 I woke up and both legs were asleep. More than a little freaked out, I made an appointment with my doctor, who then referred me to a neurologist. Within a week, everything from my chest down had become pins and needles, which sent me into an all-out panic. Because there is no real test for multiple sclerosis, and MS can produce all manner of symptoms, at this point no one had even brought it up, and my neurologist gave me a list of 5 conditions I was being tested for. I don’t recall each one, but lupus and some conditions named after people stand out. I do recall 4 out of the 5 being associated with a pretty high risk of mortality, so I was pretty scared. I underwent a large battery of testing. X-rays, MRI scans, blood tests, pretty much the kitchen sink. At one point my mother, who had been doing everything she could to research on her own (she was a high-school English teacher and a student at UNC Charlotte at the time, so had above average resources at her disposal), called me and asked me to give her a yes/no on a list of symptoms that included (among others) numbness and/or the feeling of pins and needles, fatigue, and cognitive problems (short-term memory loss, confusion, etc.), which described my symptoms almost exactly, certainly more than anything else the neurologist had mentioned on his list. We asked my neurologist about MS during my next appointment, and because all other tests had come back negative, and MRIs showed “plaque” or lesions on my upper spinal cord and brain, they moved forward with the MS diagnosis. It was early December, and after undergoing a week of IV corticosteroid treatment, my symptoms slowly began to recede over the next several weeks. Since then, I have had a relapse every few years, typically involving similar symptoms (numb/sleeping extremities, fatigue) although never as marked or severe as that first time. My course has been blessedly mild. I do often struggle with fatigue in warmer weather (you know how NC summers are-30C-40C with 90%+ relative humidity in the Piedmont/lowlands).
One of the things I found myself struggling with in the first 10 years or so, since my relapses were so few and far between, was questioning whether or not I really even had MS. At times, especially when requesting special consideration, as I was told to avoid overheating and prolonged stress, it felt like maybe I was somehow a fraud, or making it up. But over time my continued flare ups have given me more certainty, and my age has given me more pause to consider that life is too short to take chances. Indeed, the weeks I spent at 18 considering my own mortality staring at a scary list of conditions with numbness taking over my body, I learned early on that nothing is guaranteed to us. Be your own advocate, do everything you can to be happy now, and don’t put off too much in a vain hope for what tomorrow will bring. Sometimes the universe has different plans.
you're still in Tbilisi? Keep it up man I'm really glad I caught this going on though I'd heard about the journey a couple times. You've got this.
I'll pray for you brother.. 🙏
I would look at it like this --- if you didn't know it was MS or the cause for your tiredness - you would be worried -- but now you know what it is. Consider a 60 year old man of near any health, they can walk around, you can too. You have exp that most do not have, and perhaps you will need to take more rests. I would assume stretching exercises would be the best.
Sending you so much love ❤️
Thank you for giving your experience.
Glad to hear about the cats!
When this is a level up, I don´t wanna know, how the end boss looks like.
Dear Christoph, I was shocked for real to hear the problem. My wife gave me as present me your book (very good btw) some years ago and I thought: man this Guy has understood how to live. I have also an autoimmune disease Not as Bad as MS but still dangerous and not curable, this makes me Part of the Club unfortunately. Anyway I live since years, more than 15, with it and Bless Esculapius the drugs are Working (cortisone and anti-inflammatories). I never needed immundepressive drugs also a luck in unluck. So the final Point is the Life Walk further, don't be demoralized and Bring to completion your fantastic Enterprise.
Even with more difficulties you still want living what you want. It is not easy but respectable. Just walk as you want because if yoy give up now you will regret...👍🏻👍🏻👍🏻
Take care Chris
2021 sucks. You are an inspiration to the rest of us.
Ich latsche heute in die Bibliothek und will mir irgend ein Buch ausleihen, vieleicht eine Bio oder ein Buch einer Reise. Dann sehe ich "the longest way". Lese am Abend gespannt die ersten Seiten und bin inspiriert. Schau mir Fotos im Netz an der Stadte die du besucht hast und frage mich, wer ist dieser Typ. Ich errinnere mich an dieses eine Video vor ein paar Jahren von dem Typ mit den vielen Haaren ;-).
Und nun bin ich hier und schaue mir das Video an. Ich bin beeindruckt von deiner Reise und wünsche dir auf deinem weiteren Weg noch viele tolle Momente! Ich hoffe, die scheiss Krankheit lässt dich in Ruhe und du kannst deinen Weg gehen.
dank dir! und dank der bibliothek. :)
Hi Chris, i watched your diagnosis video in Chinese and here in English. I don't know what is a proper comment for these kind of video. But I guess it's not that bad to have the 2nd best result, isn't it? I think i will be the one more fella who prays for you from China.
thanks man, i appreciate it
God bless you!
One thing I know is that listening to your body always, don't play god to your own body.
Maybe switch to hitchhiking? That still involves sleeping in tents & meeting the locals, so it's similar to your walk.
Sorry to hear this news, Chris. But it sounds like it's been good to get the information and it's great that you can be doing something about it, too! I don't have MS, and I won't recommend any diets or anything like that, but as a human I will recommend one thing: keep on pursuing your goals!
You have my prayer, im sure u will finish ur journey 🙂
Hug with love and care.
Chris, please try to find a good local acupuncturist who would help you in a natural way. Please try it.
Mein Vater hat seit 10 Jahren MS und macht 2x Woche Physiotherapie.
Leg einfach los, gebe aufm Hamburger Berg ne Runde Haselnusslikör mit Apfelsaft aus.
Have you ever considered that the MRNA you received is what made your joints worse??
lmao of course not
@@ChristophRehage Actually MRNAs do cause MCAS ie they can be really really really really bad for joints. Tons of research on that.
And you will go this trip on your legs only? So you don’t hitchhike, you don’t go by taxi or any other vehicle during of your trip,or ride a horse or a camel, right?
Long time no see!
good luck
老雷加油！
Hello brother my name fayiz your big follower ❤️
Damn Christoph, I also have MS if you need to reach out man.
thanks bo, so far it's going alright. :)
shit, but im confident that you're able to, at least, deal with it. permanent illnesses without real treaty can't stop you from beeing in existance. your ten times more allive than the average citizen, keep on chris, now you just need to remember to save in the new game plus regularly.
多發性硬化症（英語：Multiple sclerosis，縮寫：MS）是一種脫髓鞘性神經病變，患者腦或脊髓中的神經細胞表面的絕緣物質（即髓鞘）受到破壞，神經系統的信號轉導受損，導致一系列可能發生的徵狀，影響患者的活動、心智、甚至精神狀態。
@@Jacob.D. 你这留言也很毒啊
@@Jacob.D. 貼一下科普方便不知道的人了解一下啊
Hope to see your soon, your IG
💜
You didn’t explain all these on 老雷‘s TH-cam - 😉
卧槽！悲剧啊！怎么没出一个中文视频！
Diet, Best Bet Diet / Whals protocol
I heard recently that MS can be tied to unprocessed emotions being trapped in the body. I know it sounds funky. But if I was ever diagnosed with MS, I would see an energy healer. ❤
😮😔🙏
.
✊✊✊✊✊✊✊
😑😐😑😐 iA wish you best.
I dont have ms
You probably have something else.
老雷从颜值博主，怎么有点掉线。