Smith-Magenis syndrome is a developmental disorder that affects many parts of the body. The major features of this condition include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances, and behavioral problems.
@@mt.shasta6097 I thought it must include some terrible growth from her mouth or large deformed tongue that looked like a dead bird. Couldn't understand what the lady was saying. Came to comments to find out what it was.
Several of us are wondering the same thing. I think that it's just a toy or something. It doesn't have anything to do with the syndrome. But yes, I agree that it distracts from the real message.
WHY the heck did you record this with a grotesque item being held inside her mouth? At first I thought was an overgrown tongue or vascular tissue that couldn't be removed until the end of this short NON INFORMATIVE video it fell out of her mouth, but the ending wasn't clear enough for anyone make out what it was....was it a dead pigeon or large bird in her mouth? Unbelievable you'd keep this video available without proper comments...has been well over 2 yrs now without it being fixed. IF you wish to be taken seriously, then I suggest a more professional video be made, otherwise, this is a very poor representation of something you'd like to share.....please...do what is right!
Your thoughts are the same as mine! I'm still not sure what the item is. And yes, this is a serious developmental disorder that affects many areas of the body. The presentation needs to give more specific information and should not contain this type of distraction. It's not fair to all of the children and individuals who suffer from this disorder.
I agree. What was said was lost on me as I could do was concentrate on what I thought was some kind of growth from her mouth. This wsn't done well at all.
She was pretending to be a kitty-cat holding a pigeon she is going to eat in her mouth. But of course it was just a stuffed toy. Kids will be kids and need to play, syndrome or no syndrome.
Arkadaşlar ağzındaki oyuncak. Bu tarz hastalığa sahip insanlar davranış bozuklukları zeka geriliği gibi durumlara sahip olabiliyor.her hasta aynı semptomu gostermemekle birlikte göz anomalileri agresif davranışlar kendine zarar verme duyusal uyaranlara aşırı hassasiyet hipotoni gibi durumlar görülebilir
@@martinemikita9281 lets see....start to finish ..is that enough quote for u dear?? Hahaha im NOT the one to debate with... I didnt like the vid and thats that . I can say THAT if I want . 🧡🧡🧡 the joy of internet.
Does this disorder make you eat live birds?
lol
I actually thought she had an awful growth of some kind near her mouth!!
@@1974AMDG Me too!
Is that a bird
Someone had to say it! I am lmao 🤣
I couldn't hear what was said because the music is too loud!
Smith-Magenis syndrome is a developmental disorder that affects many parts of the body. The major features of this condition include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances, and behavioral problems.
Kelly Kirkwood, your posting was exactly what the woman in the video should have said. Someone needs to delete and re-make this video.
@@mt.shasta6097 I thought it must include some terrible growth from her mouth or large deformed tongue that looked like a dead bird. Couldn't understand what the lady was saying. Came to comments to find out what it was.
@@debbiemohekey1509 Me too Debbie. What was that big thing sticking out of the child's mouth?
What is it? Does it affect only children? How do you get it? What can be done to treat it? Is there medicine that helps? There is no info at all here!
it is genetic mutation
What does that kid have hanging out of her mouth?? Seriously, is it a tumor, enlarged tongue, dead bird etc..where’s the information on this?
Several of us are wondering the same thing. I think that it's just a toy or something. It doesn't have anything to do with the syndrome. But yes, I agree that it distracts from the real message.
@@ForeverMPH I agree!
Grace is absolutely beautiful.
Where are the facts? I'd like to know more.
What has the child got in her mouth? No mention of what looks horrific. What is it?
Very misleading. That was not a growth in her mouth, she spit it out just at the end of the clip. And that was the clickbait.
What is in her mouth?
Poorly done video, very uninformative.
Well, this video got the topic started. Please help inform and get donations to help everyone please💕🙏🏼
WHY the heck did you record this with a grotesque item being held inside her mouth? At first I thought was an overgrown tongue or vascular tissue that couldn't be removed until the end of this short NON INFORMATIVE video it fell out of her mouth, but the ending wasn't clear enough for anyone make out what it was....was it a dead pigeon or large bird in her mouth? Unbelievable you'd keep this video available without proper comments...has been well over 2 yrs now without it being fixed. IF you wish to be taken seriously, then I suggest a more professional video
be made, otherwise, this is a very poor representation of something you'd like to share.....please...do what is right!
Your thoughts are the same as mine! I'm still not sure what the item is. And yes, this is a serious developmental disorder that affects many areas of the body. The presentation needs to give more specific information and should not contain this type of distraction. It's not fair to all of the children and individuals who suffer from this disorder.
I agree. What was said was lost on me as I could do was concentrate on what I thought was some kind of growth from her mouth. This wsn't done well at all.
She was pretending to be a kitty-cat holding a pigeon she is going to eat in her mouth. But of course it was just a stuffed toy. Kids will be kids and need to play, syndrome or no syndrome.
Tbm pensei, ui credo 😲
Period✌🏽
I think she's just playing with a toy,, a toy bird and putting it in her mouth,, just been silly/playing,,😊,,
Arkadaşlar ağzındaki oyuncak. Bu tarz hastalığa sahip insanlar davranış bozuklukları zeka geriliği gibi durumlara sahip olabiliyor.her hasta aynı semptomu gostermemekle birlikte göz anomalileri agresif davranışlar kendine zarar verme duyusal uyaranlara aşırı hassasiyet hipotoni gibi durumlar görülebilir
Good one Em
А если птица больная вирусами?
🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣 ask again ooooo
Mamma meravigliosa
That was one weird video . cheers to that! Making fun of a disease is always...a barrel of laughs . classy girls here! Classy . .
Do u mind pointing out exactly what was said that makes fun of a disease?
I don’t think they were making fun of it. The girl may intellectually not be there, which is why she has the toy in her mouth.
@@sweetluvgurl Dann ist das Video leider unprofesionell gemacht. Ich dachte zuerst, es handelt sich um ein malignes Zellwachstum der Zunge.
@@uteschneider3349 well there you are !!
@@martinemikita9281 lets see....start to finish ..is that enough quote for u dear?? Hahaha im NOT the one to debate with... I didnt like the vid and thats that . I can say THAT if I want .
🧡🧡🧡 the joy of internet.
What’s in her mouth??!
I kept staring at it thinking it was a bird 🥴 then it fell out and I still couldn’t pin it .
dead bird
I’m pretty sure it was a stuffed toy
A pigeon
Is it her tongue?
Dafuq just happen
I think this is fake
Зачем это у меня в рекомендованных?????????????
What kind of bird is that she has in her mouth? A pigeon?? This is gross.
Whats inher mouth
Huh!?!?
joy and blessing???? would not you give everything you have and 20 years of life to turn your daughter into a normal child???
what is in her mouth?