I live with chronic pain every day, from the age of 14. The pain has worsened over the years, and I had my dark periods, but the suffering helped me to go further into art, music and writing, and I ended up finding the courage doing things I would have never imagined being brave enough to do. Still, for me, the hardest part is not to be believed, accepted or understood by people around me. Love to all who live in/with chronic pain, you are not alone.
You are welcome to reach out to me. I just graduated from Mayo Clinics Chronic pain rehab program. Most chronic pain they are finding fits into Centralized Sensitization Syndrome. You learn the concepts and ways to deal with things, ill just flat out tell you though. There is no "fix" for most chronic pain. You get just get a better handle on it by doing small improvements daily. The program was 3 weeks long 8 hours a day, and I was scared I wouldnt even be able to do it at first. The first few days were very tough, but it got easier. I had to hit rock bottom before I even got to this program at Mayo. I spent 100k on different types of treatments and medications etc over 3 years. Finally this program came and I was close to ending it all... please do not hesitate to reach out. I can not advocate for this enough. Chronic pain affects more people than Diabetes, heart disease and cancer ....and gets 1/12th the funding.
Same, art, art. Music, movies/ TV helps me cope w/ it. I've only had severe chronic pain for 3 yrs & it's a nightmare! I'm down for months @ a time. Being autistic means my pain tolerance is extremely high. I can handle about 15x the pain compared to someone else. @ a 10, I could b acting completely normal. No tears. I write songs that showcase what I feel. I only listen 2 songs that have a big impact on what I feel for example: Miley Cyrus "The Climb"
My children are the only reason I continue to stay here. Lack of knowledgeable caring Dr's and financially accessible treatments is no where to be found.
I appreciate her speaking out on this, but choosing to be strong and live her life is amazing. But “stop the pity party”? It isn’t a pity party. It’s a fight to live. Every single day. To be this young and be chronically ill is something way more than a pity party. Every single day you wake up, you are choosing to live with this. To ensure this. We are not like regular people, no matter how much we’d like to be. Every single movement, everything we do must be calculated and weighed out. Sometimes it’s hard for people to fight that battle. But that doesn’t mean that they want a woe party. Every person that experiences chronic pain is a warrior. No matter what path they might choose.
I too calculate every step and movement. I make decisions about my day due to this. Everything hurts continuously. I am not looking for a pity party either. I just wish some people would quit with their summary judgments about those who suffer with severe, chronic, and widespread pain.
I “ran out of spoons” probably before she was ever able to hold one which is why I mostly agree with the comment. I also wasn’t the type of athlete she was and when you’re a hardcore athlete you are mentally trained to handle things differently. Can’t do painkillers bc I’ll take too many, run out, and be worse off but she’s 100% correct about them and I think they do make your pain worse in some way so like most, I suffer! My body stops way before I’m ready to and I am sick of it! I’m learning with age that I don’t even have to be moving the pain is just there most of the time. I broke down to my Dr and said...”they don’t even allow animals to suffer like this” as I’m bawling my eyes out! So, although I still listen and read everything on the subject and greatly appreciate pple having a great attitude about it, it is what it is at this point! I thought if I just had a pool in my backyard I may have a somewhat normal (what works for me and my family) life and some days and nights it did/does help but I find myself facing winter and dreading it realizing nothing will ever be normal about my broken body! And yes I did use the pool in the winter (not heated)! If you can tolerate the cold it’s either therapeutic or just numbed my body for a couple of hours but I’ll take it!
I live with chronic pain and my health has deteriorated. I am now disabled and need two major operations. A lot of time is spent in bed. I hardly go out. What keeps me going is watching that film or colouring in. I look out of the window and I am so happy that I have lived to see another day. Each day is a blessing. My life is a blessing and I do not need to justify it.
You are welcome to reach out to me. I just graduated from Mayo Clinics Chronic pain rehab program. You learn the concepts and ways to deal with things, ill just flat out tell you though. There is no "fix" for most chronic pain. You get just get a better handle on it by doing small improvements daily. The program was 3 weeks long 8 hours a day, and I was scared I wouldnt even be able to do it at first. The first few days were very tough, but it got easier. At the end of all of this, I am not cured or anything, but I honestly can say I feel excited about the new me I can work on. I have to make some modifications in lifestyle, but don't try and get back to the "OLD YOU". That most likely wont happen, you have to be willing to accept and start working on the new you. I had to hit rock bottom before I even got to this program at Mayo. I spent 100k on different types of treatments and medications etc over 3 years. Finally this program came and I was close to ending it all... please do not hesitate to reach out. I can not advocate for this enough. Chronic pain affects more people than Diabetes, heart disease and cancer ....and gets 1/12th the funding.
Flowerpetls, I have a painfull history life all kinds of illnesses,injuries,falls, disease.s. I've raised my daughter and helped my grandchildren 4 of them worked very hard all while suffering so muchevery day. People like you confimm it's so hard Why can't all this medicine and a sincere medical makeour lives much better? Rhanks to all of you for your information. Be Blessed!
Underrated video. I have been struggling with the chronic neck pain for years. Thousands of dollars and tons of different doctor visits and procedures, and the pain is still there. It's often just demotivating to do anything, especially once you've gone through the work day. But you just have to, otherwise it's even more miserable
Chronic pain patients, let's hope and pray that the legislators get to feel the pain that we feel. Then they will understand what they are doing to us. Pain is the best teacher.
Thank you for sharing your courage with me. I was hit by a 4x4 truck as a pedestrian on a crosswalk and sent flying with 19 broken bones & the pain is worsening each year.! It so helps to hear you too are living on thru this crushing experience. Thank you so much for helping me feel less alone.
this is literally the first talk on chronic illness or pain that shows a balanced view and is actually relatable to someone who struggles with the same thing
wow!! I am your twin... I thought I was the only one who faced agony like that. I did the same, with 2 neck surgeries, a body fusion and laminectomy to my thoracic area. I carry a cage around my spine and screws holding my spine together. I have suffered since I was 27 years old. I am 57 now. My journey I am going thru has been my inspiration to life. I am proud of the person I am now, and I believe that chronic pain I go thru, made me the strong woman I am today. I understand exactly where you are coming from. Pat yourself on the back. We are Wonder Women .
@lalit Sharma I would advise anybody to start exercising. Build the muscles in your core area. If your muscles are strong, your core gets stronger. This brings more support to the spine. Firmer core muscles also prevent swelling . It's still a struggle; my pain still makes me cry at times. Currently I am also in Yoga 🧘♀️. Classes. Made my own workout room out of my offiice. I focused myself and yes I did the battle cry. I was raised to be a strong person. I yelled out ....literally yelled. "I CANT LIVE LIKE THIS ANYMORE!!! GOD PLEASE HELP ME!! I PUT MYSELF THRU THE SURGERY, THERAPY AND YES I HAD PAIN MEDS. I WAS ADDICTED TO PILLS AND I LOCKED MYSELF IN MY ROOM AND WITH DREW FROM THE ADDICTION OF PAIN PILLS. THEN AND ONLY THEN DID MY JOURNEY BEGIN.
Man, I honestly have no clue how she is able to take that pain without medication and live through her day. My problems are small compared to hers but still, I feel like sometimes I need a pill to reduce my suffering. The amount of willpower it takes to fight through this is just tremendous. Big congrats to her for being able to do that!
Try earthing, it's good for chronic pain relief and other health problems.Go DIY a grounding mat, pillow or sheet for home use, it's free and effortless, no need to buy.
With all due respect 2 her amazing story I believe if your pain is mind blowing and bad enough u do pain meds 2 survive even if it's just short term or long term
@@titaniafaebeliever3302 youre so right, its impossible to live with a *real* "10" for more than a very short time. i feel like people and also doctors misunderstand the nrs, on a "9" or "10" you are crying, yelling, cramping and call an amulance when you are able to, or even get uncounscious. its *unbearable* pain.
@@titaniafaebeliever3302 Agreed. We're already stigmatized for needing pain meds, like we are weak and taking the easy way out. Glad she can do that, but I hope she doesn't expect everyone else to do so.
I was diagnosed with chronic pain recently. I’ve been going through it since 2018, December. From 2017 until 2018 my health was starting to get messed up. I would run out of breath, had severe respiratory infections, severe allergies, allergic conjunctivitis. Etc. I waited for it to get better. A couple months after I joined med school, I thought I was getting better. It was calm before the storm. Every single day, is a struggle. I lost my appetite almost fully. I don’t feel like eating no matter how long I starve for. I’m always tired and on my bed. I hate taking painkillers because some could affect you in the long run. Also, it could be addictive. I waited for at least 7 hours everyday until I finally took them at nights/midnights The pain is mainly at my eyes and head, and I can’t even cry because that hurts even more. I can’t move. Everything is a struggle. Sitting upright. Walking. Everything. I don’t even feel fresh after/during shower. Some days are better than the others but some days. I wish I died. I have such a big commitment (medical school, which I always dreamed of) and it is extremely hard. While typing this, I’m on my bed, in pain without even having a meal.! The hard truth is that, it is only going to get worse and I don’t know if I could really pull myself together because the pain I go through currently is insane. I can’t imagine going through something more intense. I feel like I can’t make it through media school and I’m goin to be such a failure. I genuinely wish I died, so that I don’t be a burden on my family and friends anymore.
I feel your pain and I'm so sorry to hear this I have been in pain for 17 years I am 33 years old and severely disabled I have thoughts of suicide every day because I don't want to wake up like this anymore maybe you can message me on Facebook I would love to talk to you and try to tell you what things have worked for me to keep my faith facebook: Veronica Hope
You’re an inspiration. Most people don’t understand chronic pain. We usually suffer in isolation but there’s always a way to overcome the circumstances we face 💪🏼
You should try earthing, it's good for almost all health problems including chronic pain. Go DIY a grounding mat, pillow or sheet for home use, it's simple and cheap,no need to buy.
This is exactly why I searched for these videos. I want to see survivors. I need to hear stories I can relate to. I'm definitely not weak. However, living in chronic pain without meds due to my doctors almost killing me, is whack AF. I had to make sure I wasn't being a baby. A healthy reminder. Validation. Something I probably shouldn't seek out, especially on TH-cam, but so many moments are spent alone in these emotions. Pushing and pressing. It makes life worth living, and me more grateful to still be here. We kick azz....seriously. Victims, we are not. I'm understanding daily that I'm not alone in dealing with mental health coupled with chronic pain, with or without medications. I appreciate everyone's stories here. And this woman's testimony is pretty encouraging. Keep rocking. 🥰🧘🏽♀️
Let’s see if she has such a positive outlook after 10 or 20 yrs of chronic pain. You are not stronger from chronic pain - you lose yourself, you lose the life you knew, you lose who you are to others - kids, spouse, friends, parents, professionally and on and on. These ted talks are more about trying to make others feel good about a person’s story than about reality. It’s beyond pointless (not questioning her injuries or pain - she is just young and I think more focused on trying to tell a story with a happy ending. Life is hard and for chronic pain sufferers it can be torturous - we do our best to retain our purpose and our relationships.
Thank you. Everyday is a struggle. I'm 61 and living in chronic pain for 17 years everyday. Mines is Peripheral neuropathy. Burning of the legs and feet. Back surgery syndrome failed. It's hard living like this. Sure we would like to have a bright side perspective, but as you get older it gets worse.
Gradgirl,Think of the life I could have had. Many years of just existing minute by minute and family wants an explanation to them. Not too many care all so called friends never around anymore, Rhanks to all of you for making me feel normal.
36 years old. Living with chronic pain for 20 of those. The older I get, the worse it gets. I am super miserable way too often. If I spend a lot of time thinking about how much worse I’m going to be in 5 or 10 years. Woah. Everyone’s journey is different. I choose to be positive and give myself time to grieve over the things I never or ever will get to do. Having a positive outlook is the only thing that saves me some days. Not everyone’s happy ending looks the same.
I'm happy for her. After 20 years of daily pain I'm just not that strong. They've cut meds across the board, with no consideration for chronic pain patients. The med cut was in 2019, in 2020 opioid overdoses were UP 29%. Prescriptions are a small part of the problem, it's mostly street drugs, esp. Fentanyl. What this has accomplished is driving many to suicide or street drugs. What they are doing is not helping and we need change. Don't punish the innocent.
I also stand by this statement 100%! Yes of course I’m happy for her, but I’m not that strong. I had a botched cervical spinal fusion in 07 and It lead to nerve damage, cervical arthritis, ddd, fibromyalgia, chronic fatigue syndrome, osteoarthritis, arthritis, tmj , IBS , mental illness and more. I’ve had times where I was like her. In fact I raised 3 kids, I used to go walk daily ( I am not a driver and I’m 43 ), I went to the YMCA to work out and swim and on the days I didn’t work out I’d walk the bike path. As the years went by I got worse , I received more diagnosis’s, and now I am either sleeping or in bed from the exhaustion and pain or on my couch. I think everyone has different levels of pain , and I’ve tried so so so many treatments , physical therapy, a chiropractor,meditation, yoga and more. Pain medication is so far what has helped the most ,but you see with this crisis our pain medication that had me working out at one time , either taken away entirely or your dosage reduced or like me a medication that helps me not kill myself and alive but not enough to help me get back to the things I once did. I love that she did it without medication that really makes me happy,but some of us unfortunately need that in our tool box.
@@JessieLee_ I'm with you on that, I only get help from the meds. They are what enables me to have some kind of life. Even with them, standing and walking still bad w/nerve pain but worse now. I have had the hardest time just getting dressed lately, I live in my robe and jammies all day, usually around 5 I manage to. Only because I need to go out and feed my strays and don't want anyone to see I'm still in my robe. Is it good that I care about that? lol I used to be on Methadone and Oxy for breakthrough for about 12 years and I was happy with that because I never once felt loopy on them, just normal. If I had a better DR. I think there's more going on. Pain Management is a joke. No one suggests anything or tries to help. Just pee in your cup, let them count your pills and you'll get another prescription. Meds so far have helped most, but I'm open to suggestion, if there's anything under the Sun I haven't tried. I don't look for the CDC to change anything though. Medical Marijuana helps some but it's pricey. Sitting has been my main position for years and now it's hurting to sit very long so I so lay on the couch and watch TV. Constant struggle with my mind wanting to do stuff, but the body won.t. I've complained about this leg pain for months, next visit I guess I have to get in their face. Worst when I first get up in a.m., dread every step. I do go on...
You are such a trooper. I have atypical facial neuralgia. It started at 24 and I am almost 44. It is so hard to live with chronic pain. I feel so down most of the days because this pain changed me so much. But I guess we have have no choice and just need to keep on going
Thanks for that speech it motivated me to start moving more I’ve been dealing with autoimmune disease and rheumatoid arthritis for 19 years and suffering with chronic pain and fatigue . And also ive been living with toxic people in toxic relationships for 33 years but with Allah’s gods help i will fight my fatigue and pain and get up and move more
I am crying and thinking about how my life is done Chronic chest pain , tendinitis in Both arms feet and Knees Thank you for giving me 1% hope that my life could go on
I found this video looking for some wise words on how to be productive depsite my physical pain. So happy I clicked on this video! I'm also from Saint John and have big aspirations. Lately I've been letting my pain take a toll on my goals, but I won't let it anymore! You're such an inspiration! Thank you so much!
God bless you all! How about a video on Kratom? I’ve got severe spinal damage, crohn’s disease & I survived long Covid. The only reason I’m still able to work full-time and get in the gym and enjoy myself at home in moderation is the discovery and proper use of Kratom along with lots of prayers & mobility work. 💫
I can hear it in my head. Get the 🦆 up and get back on that horse! 🐎❤ Thank you! My husband gets cluster headaches and still shows up everyday as a husband and father and he is the strongest man I know. It's easier to give up and I'm so grateful for everyday he gets back on the horse.
I had crushed pelvis and separation of SI joints with fractures in vertebrae plus internal injuries. Ended up with more than 20 reconstructive surgeries an urostomy bag and chronic pain. So good to hear another’s experience. I had an pelvic fixator for 4 months with three month stay in nursing home. It’s life changing!
She felt her feet getting numb. I understand, because accident I got into a few years back also caused me weak limbs. Doctors dont care they just want to drug me up. most day I dont feel motivated to anything, cause of the physical pain and mental/emotional dispair. Th accident caused me to lose my pregnancy, it also affected my work performance/productivity and eventually cause me to lose my job. And just like this young woman I too became withdrawn from people and doing things I enjoy. My personal care is not up to standard as it use to be nothing is as good as it use to be, my wellness has gotten worst and I worry about my future. I am young I want a family I want to be working and contributing to positive changes as I was doing before prior to the accident. I want to do the activities (sports, traveling/adventures, socializing, participating in charity events and volunteering for just cause organizations, my arts and craft and fashion and beauty side hustle, projects, participating in community initiatives, gardening, personal care upkeep, etc) like I use to do. I have some family support to keep me from totally giving up on life, but I yearn to get back to enjoying my life the way I use to, working, and contributing to positive change for the wellness of community and overall humanity.
I am sitting here 4.32 am woke out my sleep with pain all over. I can only describe the pain as feeling like I have survived a car crash (and I know what that feels like in real life) I take Tramadol religiously for my pain. And have just taken a dose as I'm writing this. It's the only thing that works. Chronic pain is aggressive and agonising 😢 a clear second to labour pain easily. She who feels it knows it.
I'm almost 25 and I had the same moment yesterday. The pain has been getting worse recently and normal painkillers don't work on me. The only reason I don't want to end it is because I don't want to leave my partner alone. It just feels like there is nothing I can do other than spend a ridiculous amount of money while trying to find a doctor that isnt a quack and hope for the best.
Hello Tanya.Permit me to help u.I've death with chronic pain due to mental illness.I assure u,u will feel better. Atumeyi Rosemary Unekwu is my facebook contact
I never wore heels, the closest was a wedge I wore one summer. And still I'm fighting bunions, hammer toes and horrible callouses. One really bad hammertoe throbbed most of the day. Had it amputated in Aug. and what a relief. It still amazes me that my foot doesn't hurt! Except when the bunion acts up but still don't miss that toe. People see my curled toes and assume I wore heels. Good thing I didn't!
The way pain patients have and are ignored by the medical community is inhumane. I have had pain for 30 years. When I was younger, I thought my pain was at a high level because it was intolerable. At this point, I cannot even believe how much pain the human body can produce. I had additional injuries after my initial one that has compounded the pain. Remember, even though you think you know what someone is going through because you have pain, you really have no idea. You don’t know the answer for other people. If you can will yourself to do things that is awesome but don’t assume other injured people can do the same or that they haven’t already tried everything in their power and it hasn’t worked. If it has worked, you may be from a small lucky group.
Because we are in pain, it is daunting to fight one more fight in addition to the battle with pain that begins each new morning when we wake up. That said, I’m willing to begin to fight this badly thrown together legislation that has created terrible frustration and stress for those of us who suffer pain. If anyone has any references to perhaps groups already formed that address organizing to create the change we need so that we have quality of life that would allow us both some relief as well as foster our independence. Pain management docs are our hope but legislation harms them as well so that many are either retiring or limiting their practices.
UC SF Med Ortho MD 2022 made light of my pain and instead of taking an accurate history of my injuries, pain, he told me he was giving a script for pain meds which I hadn't requested. When I asked if the meds had side effects, he say said all medication has side effects.
That’s everyday for me. I’m 45 and been diagnosed with Crohn’s disease since the age of 18. Multiple surgeries, spinal arthritis and neuralgia and numbness in hands and feet. Everyday is a struggle to survive. I’m barely keeping my head above water to work in order to pay healthcare bills. Especially chiropractic care which insurance barely covers. It’s an endless cycle which will most likely end up with taking my life. Most people don’t understand when enough is too much too bear
i suffer from chronic pain from Laser Eye Surgery Complications. I have a series on my channel creating awareness.!! its awful but were alll dang strong. i do take pain meds every day but these aren't addictive not all of them are. im hoping there will be a cure to my nerve damage onto day :) xx
I had a leg injury in past and after some days i injured again from same leg.....it became worse...i dont know whether i will able to recover it or not.....i want to do many things in my life..... With the time...now i am losing hope.....i am prisoned in my house from 3 months....no frnds no people.....
Pain is "pressure" produced by excess of heat. HEAT causes dilatation of cells and consequent pressure. The head is a solid block that cannot expand much, so the pain implodes and becomes unbearable.
I'm a generally well functioning chronic pain survivor. I can get up and do things on a 7 ps and act like there's no problem. But there are days when I start a 7 and just taking a shower shoots me past 10. I can't handle it. Normally I'm not suicidal, I'm too damn subborn to give up. But once it gets past 10, I feel like a lame horse that needs shot to put it out of its misery.
Tiffany M, you describe chronic pain so honestly and some days it’s true, you just want relief no matter what it takes. Not many people, not even your loved ones understand it, but we do. ❤️🕊🦋
Doctors offer medications every day. I decline them daily. I'm trusting God. And I know He will answer. I also know there are some amazing doctors in this world.... I am forgiving my body. Forgiving myself. I have given myself permission to be human.
For 18 months I have suffered terrible pain with haemorrhoids and fissure just wish I never went to doctor then specialist had sphincterotomy and haemorrhoid removed now in more pain then ever completely destroyed my life the only meds I take is to knock me out at night so I can sleep
Try researching the original reason the spoon theory was invented... This lady explains it from her perspective, not from the lady who created it to explain invisible illness. Pity party was never mentioned by the lady who created spoon theory (she has a website and even a Ted talk if you are interested). We all have an individual experience of chronic pain and often recovery differs from what the lady in this video experienced.. We are all lumped in together if we experience pain for more than 6 months but that doesn't mean that we will all have the same individual symptoms or respond the same way to the same treatment or management options. Blessings from South Eastern Australia, Dot
I dealt with my chronic pain for around 25 years in essentially the same manner, however the last 3 years i have been experimenting with a different approach with great results. My pain frequently goes down to level 2 or 3 and what would have been a good day years ago 6-7 level is now a spike for me . I did this by instead of fighting the pain , i now listen to it very carefully and respect it , i try and find the “ tension “ before i feel the pain. I have worked on improving my breathing, using Vagus nerve exercises to release the chronic tension and stress that goes with chronic pain . I have also been learning to move and walk differently using Feldenkrais techniques and understanding the mind body connection. I learnt everything from TH-cam videos for free, I now move and stand better than i ever have , my stress level is much , much lower and I am really starting to enjoy life again. I do still have some bad days but they are much easier to deal with than before . I highly recommend looking up - Sukie Baxter for Vagus nerve massage for stress and anxiety “ . Taro Iwamoto for retraining your mind and body so you can move more easily, and looking into Dr John Sarnos work on the mind body connection. Understanding how poor medical advice can affect you eg “the Nocebo effect “ is very important- i was told that I would always be in pain and could never stand up properly too - not true -i now have full back mobility and still get a bit of vertigo as i stand about 3 inches taller than i used to. I hope this gives hope to anyone reading this that chronic pain can be managed much better than you may now currently believe, nothing i do is exceptionally difficult- if anything the trick is to do everything calmly and slowly and overtime reprogram your body and and mind to move with ease.
Thanks Robert . I found Dr John Sarno's work about 6 weeks ago and from there, Dr Howard Schubiner and there are many more doctors and psychotherapists who are working with more current ways of addressing chronic pain. I’m not recovered from chronic back and hip pain yet but I’m hopeful and feel I have nothing to lose to look at different ideas around healing. I don’t want to be remembered for my courage around unrelenting pin; I want to be remembered as the person who healed from it.
@@vitamind6355 good luck with it , i think it’s important to try different approaches as everyone is different, i find i can easily slip back into old patterns both thought wise and movement/ posture wise . Making your own health and wellbeing a priority and daily practise seems to be the key out of it and excepting that sometimes relapses happen - best of luck - there are some great resources on you tube , recently ive been enjoying various somatic exercises
She isn’t looking healthy I’m not sure she has any idea I have been though so much more than this women and I wouldn’t carry on like this it’s all about her, not so simple for all of us love clearly you got lucky
THANK YOU! That's one story. Most of us don't get better with "a positive attitude, a balanced diet and some exercise ". It's NOT that simple for the majority of chronic pain patients.
When she tries to tell just how bad her pain is and the damages done, it is horrific, but certainly a lie. People like this are all about the trauma that never goes away and the pain that is always there... except it is fabricated. She said she is currently in a level 6-7 in pain right now... this is just bogus. Level 10 pain: incoherent to mentally passed out. Level 9 pain: all attention directed at comfort. If not controlled it will progress to level 10 pain. Level 8 pain: cannot carry on any lengthy or focused conversation. Nothing to stop progression to level 9 pain (except opioids) Level 7 pain: all attention given toward moderating pain. Turns into introvert in order to attempt and assess damage control Level 6 pain: loss of any constructive activities. No house cleaning, no food prepration, NO extended or moderate WORK time. (She said she is at level 6-7 pain and is working.) Non-Functional. Level 5 pain: More than just discomfort this pain level begins to severely affect one's mental state... irratibility, anger and such. Losing control. Severe lulls in conversation (blank spaces) Losing coherent aptitude, does not want conversation. Level 4 pain: Functional but with mistakes. Minimal conversation. Noticeable Blank Spaces (lulls in conversation) Like the end of a 20 hour shift with forced awareness. Level 3 Pain: coherent and lucid with moderate "blank spaces." Can carry on a conversation... equivielant to working a 16 hour shift. Level 2 pain: slight discomfort, not causing any confusion. Like the end of an 8 hour shift
I've been asked to rate my pain for 20+ years and not once do I recall seeing guidelines like this. Would have been so, so helpful. They just showed me the smiley/frowning faces. I'm actually ticked off at the moment about these "pain management" doctors who charge $300+ a visit to have someone else count my pills and test my urine. Then the Dr. talks to me 5-10 min. making no additional suggestions for pain, don''t even have enough initiative to supply me with that information.
The problem is there isn't one, consistent pain scale used in the US. Her level 7 probably isn't the same as mine, and in all fairness, pain affects people differently in that when I get joint pain from humid weather it hurts and is hard to walk, etc., but I'd trade that for my muscular pain from a genetic connective tissue disorder any day. I've used the Mankoski pain scale for years now, but that doesn't mean my doctors or PT use it, so no one really knows how I feel. On that scale, I've been generally at a 7 for 19 years and at an 8-9 the first couple of years after my illness started before I was given non-opiate meds (they make me sick and don't help for some reason). When people without chronic pain tell me they're at a 10 over some silly thing, I want to just scream because a 10 means you are unconscious and I actually have passed out from pain before. You literally cannot be a 10 and verbalize that until you come down on the pain scale.
Women like me are suffering alone . I’ve had 2 thoracic fusions and a neck fusion. I have herniated discs and can’t walk to the mailbox without crying. I barely have any quality of life . Please God Help me . I’m only in my 40’s and have what’s called failed back surgery. It’s so embarrassing that I have to use depends . I have no friends or life . I need pain relief and therapy please god help me. Hope is dead and I don’t want to suffer the rest of my life .
@@CurlyMedic03 I understand. I believe in God but feel that my suffering is “part of life”. I have been in pain since 71. 50 years now. After 30 years I was finally given morphine. It helped but after 16 years drs took it away. I can’t bear this ever increasing pain. My entire body. Inside and out. No one knows another’s pain. We all have different pain thresholds and our pain centers in our brains are different. I will probably take my life. I have born this too long. My #1 help is distraction. However, we need to sleep. How can we sleep when suffering so! Poor sleep = more pain. My heart breaks for you. Our next life will be amazing! Do your best but if you suicide I believe God is merciful. Love to you.
God bless you all! How about a video on Kratom? I’ve got severe spinal damage, crohn’s disease & I survived long Covid. The only reason I’m still able to work full-time and get in the gym and enjoy myself at home in moderation is the discovery and proper use of Kratom along with lots of prayers & mobility work. 💫
I live with chronic pain every day, from the age of 14. The pain has worsened over the years, and I had my dark periods, but the suffering helped me to go further into art, music and writing, and I ended up finding the courage doing things I would have never imagined being brave enough to do. Still, for me, the hardest part is not to be believed, accepted or understood by people around me. Love to all who live in/with chronic pain, you are not alone.
I do too
,So Allone!
You are welcome to reach out to me. I just graduated from Mayo Clinics Chronic pain rehab program. Most chronic pain they are finding fits into Centralized Sensitization Syndrome. You learn the concepts and ways to deal with things, ill just flat out tell you though. There is no "fix" for most chronic pain. You get just get a better handle on it by doing small improvements daily. The program was 3 weeks long 8 hours a day, and I was scared I wouldnt even be able to do it at first. The first few days were very tough, but it got easier. I had to hit rock bottom before I even got to this program at Mayo. I spent 100k on different types of treatments and medications etc over 3 years. Finally this program came and I was close to ending it all... please do not hesitate to reach out. I can not advocate for this enough. Chronic pain affects more people than Diabetes, heart disease and cancer ....and gets 1/12th the funding.
Awesome, the pain is real.
Same, art, art. Music, movies/ TV helps me cope w/ it. I've only had severe chronic pain for 3 yrs & it's a nightmare! I'm down for months @ a time. Being autistic means my pain tolerance is extremely high. I can handle about 15x the pain compared to someone else. @ a 10, I could b acting completely normal. No tears. I write songs that showcase what I feel. I only listen 2 songs that have a big impact on what I feel for example: Miley Cyrus "The Climb"
My children are the only reason I continue to stay here. Lack of knowledgeable caring Dr's and financially accessible treatments is no where to be found.
Mushrooms help me where doctors fail
@floki-man Thanks. I've been curious about them. Also, I read recently that some doctors are offering MDMA assisted therapy.
I appreciate her speaking out on this, but choosing to be strong and live her life is amazing. But “stop the pity party”? It isn’t a pity party. It’s a fight to live. Every single day. To be this young and be chronically ill is something way more than a pity party. Every single day you wake up, you are choosing to live with this. To ensure this. We are not like regular people, no matter how much we’d like to be. Every single movement, everything we do must be calculated and weighed out. Sometimes it’s hard for people to fight that battle. But that doesn’t mean that they want a woe party. Every person that experiences chronic pain is a warrior. No matter what path they might choose.
This!!!!! Thankyou for formulating this so well. It is not a pitty party, it's a constant physical and mental fight 💯
Amen!!!!!
I too calculate every step and movement. I make decisions about my day due to this. Everything hurts continuously. I am not looking for a pity party either. I just wish some people would quit with their summary judgments about those who suffer with severe, chronic, and widespread pain.
Thank you. ❤️ 🙏
I “ran out of spoons” probably before she was ever able to hold one which is why I mostly agree with the comment. I also wasn’t the type of athlete she was and when you’re a hardcore athlete you are mentally trained to handle things differently. Can’t do painkillers bc I’ll take too many, run out, and be worse off but she’s 100% correct about them and I think they do make your pain worse in some way so like most, I suffer! My body stops way before I’m ready to and I am sick of it! I’m learning with age that I don’t even have to be moving the pain is just there most of the time. I broke down to my Dr and said...”they don’t even allow animals to suffer like this” as I’m bawling my eyes out! So, although I still listen and read everything on the subject and greatly appreciate pple having a great attitude about it, it is what it is at this point! I thought if I just had a pool in my backyard I may have a somewhat normal (what works for me and my family) life and some days and nights it did/does help but I find myself facing winter and dreading it realizing nothing will ever be normal about my broken body! And yes I did use the pool in the winter (not heated)! If you can tolerate the cold it’s either therapeutic or just numbed my body for a couple of hours but I’ll take it!
I live with chronic pain and my health has deteriorated. I am now disabled and need two major operations. A lot of time is spent in bed. I hardly go out. What keeps me going is watching that film or colouring in. I look out of the window and I am so happy that I have lived to see another day. Each day is a blessing. My life is a blessing and I do not need to justify it.
You are welcome to reach out to me. I just graduated from Mayo Clinics Chronic pain rehab program. You learn the concepts and ways to deal with things, ill just flat out tell you though. There is no "fix" for most chronic pain. You get just get a better handle on it by doing small improvements daily. The program was 3 weeks long 8 hours a day, and I was scared I wouldnt even be able to do it at first. The first few days were very tough, but it got easier. At the end of all of this, I am not cured or anything, but I honestly can say I feel excited about the new me I can work on. I have to make some modifications in lifestyle, but don't try and get back to the "OLD YOU". That most likely wont happen, you have to be willing to accept and start working on the new you. I had to hit rock bottom before I even got to this program at Mayo. I spent 100k on different types of treatments and medications etc over 3 years. Finally this program came and I was close to ending it all... please do not hesitate to reach out. I can not advocate for this enough. Chronic pain affects more people than Diabetes, heart disease and cancer ....and gets 1/12th the funding.
That's beautiful ❤️
Amen
Flowerpetls, I have a painfull history life all kinds of illnesses,injuries,falls, disease.s. I've raised my daughter and helped my grandchildren 4 of them worked very hard all while suffering so muchevery day. People like you confimm it's so hard Why can't all this medicine and a sincere medical makeour lives much better? Rhanks to all of you for your information. Be Blessed!
Underrated video. I have been struggling with the chronic neck pain for years. Thousands of dollars and tons of different doctor visits and procedures, and the pain is still there. It's often just demotivating to do anything, especially once you've gone through the work day. But you just have to, otherwise it's even more miserable
Chronic pain patients, let's hope and pray that the legislators get to feel the pain that we feel. Then they will understand what they are doing to us. Pain is the best teacher.
Pain is a monster! It changes you! It weakens you! It takes everything until there's nothing left.
Yes,Jersey Miller, you've told that about our chronic pain struggle.
Thank you for sharing your courage with me. I was hit by a 4x4 truck as a pedestrian on a crosswalk and sent flying with 19 broken bones & the pain is worsening each year.! It so helps to hear you too are living on thru this crushing experience. Thank you so much for helping me feel less alone.
this is literally the first talk on chronic illness or pain that shows a balanced view and is actually relatable to someone who struggles with the same thing
wow!! I am your twin... I thought I was the only one who faced agony like that. I did the same, with 2 neck surgeries, a body fusion and laminectomy to my thoracic area. I carry a cage around my spine and screws holding my spine together. I have suffered since I was 27 years old. I am 57 now. My journey I am going thru has been my inspiration to life. I am proud of the person I am now, and I believe that chronic pain I go thru, made me the strong woman I am today. I understand exactly where you are coming from. Pat yourself on the back. We are Wonder Women .
Inspired by your words what would you advise me a 29 year old with chronic pain all over the body I could use some words from you
@lalit Sharma I would advise anybody to start exercising. Build the muscles in your core area. If your muscles are strong, your core gets stronger. This brings more support to the spine. Firmer core muscles also prevent swelling . It's still a struggle; my pain still makes me cry at times. Currently I am also in Yoga 🧘♀️. Classes. Made my own workout room out of my offiice. I focused myself and yes I did the battle cry. I was raised to be a strong person. I yelled out ....literally yelled. "I CANT LIVE LIKE THIS ANYMORE!!! GOD PLEASE HELP ME!! I PUT MYSELF THRU THE SURGERY, THERAPY AND YES I HAD PAIN MEDS. I WAS ADDICTED TO PILLS AND I LOCKED MYSELF IN MY ROOM AND WITH DREW FROM THE ADDICTION OF PAIN PILLS. THEN AND ONLY THEN DID MY JOURNEY BEGIN.
Praise God
Man, I honestly have no clue how she is able to take that pain without medication and live through her day. My problems are small compared to hers but still, I feel like sometimes I need a pill to reduce my suffering. The amount of willpower it takes to fight through this is just tremendous. Big congrats to her for being able to do that!
Try earthing, it's good for chronic pain relief and other health problems.Go DIY a grounding mat, pillow or sheet for home use, it's free and effortless, no need to buy.
It is all about neuroplasticity! Our brains are amazing and have the ability to change.
With all due respect 2 her amazing story I believe if your pain is mind blowing and bad enough u do pain meds 2 survive even if it's just short term or long term
@@titaniafaebeliever3302 youre so right, its impossible to live with a *real* "10" for more than a very short time. i feel like people and also doctors misunderstand the nrs, on a "9" or "10" you are crying, yelling, cramping and call an amulance when you are able to, or even get uncounscious. its *unbearable* pain.
@@titaniafaebeliever3302 Agreed. We're already stigmatized for needing pain meds, like we are weak and taking the easy way out. Glad she can do that, but I hope she doesn't expect everyone else to do so.
a doctor who has never experinced chronic pain should NEVER become a pain doctor !
AMEN!!!
well said
I was diagnosed with chronic pain recently. I’ve been going through it since 2018, December.
From 2017 until 2018 my health was starting to get messed up. I would run out of breath, had severe respiratory infections, severe allergies, allergic conjunctivitis. Etc. I waited for it to get better. A couple months after I joined med school, I thought I was getting better. It was calm before the storm. Every single day, is a struggle. I lost my appetite almost fully. I don’t feel like eating no matter how long I starve for. I’m always tired and on my bed. I hate taking painkillers because some could affect you in the long run. Also, it could be addictive. I waited for at least 7 hours everyday until I finally took them at nights/midnights
The pain is mainly at my eyes and head, and I can’t even cry because that hurts even more. I can’t move. Everything is a struggle. Sitting upright. Walking. Everything. I don’t even feel fresh after/during shower. Some days are better than the others but some days. I wish I died. I have such a big commitment (medical school, which I always dreamed of) and it is extremely hard. While typing this, I’m on my bed, in pain without even having a meal.! The hard truth is that, it is only going to get worse and I don’t know if I could really pull myself together because the pain I go through currently is insane. I can’t imagine going through something more intense. I feel like I can’t make it through media school and I’m goin to be such a failure. I genuinely wish I died, so that I don’t be a burden on my family and friends anymore.
Medical school *
I wish you the best ! I have it too but recently got some good relief.with a ppd approach. Let me know if you want to explain 😊
Please do. I am so happy for you. 🙏💗
I feel your pain and I'm so sorry to hear this I have been in pain for 17 years I am 33 years old and severely disabled I have thoughts of suicide every day because I don't want to wake up like this anymore maybe you can message me on Facebook I would love to talk to you and try to tell you what things have worked for me to keep my faith facebook: Veronica Hope
@@caolanmaher5907 yes what is ppd
You’re an inspiration. Most people don’t understand chronic pain. We usually suffer in isolation but there’s always a way to overcome the circumstances we face 💪🏼
Boy is that true. You even tend to isolate or start declining all.invites due to it.
Her speech has given me a moral support to live with the pain and how to overcome the pain.thanks
You should try earthing, it's good for almost all health problems including chronic pain. Go DIY a grounding mat, pillow or sheet for home use, it's simple and cheap,no need to buy.
try kratom !
This is exactly why I searched for these videos. I want to see survivors. I need to hear stories I can relate to. I'm definitely not weak. However, living in chronic pain without meds due to my doctors almost killing me, is whack AF. I had to make sure I wasn't being a baby. A healthy reminder. Validation. Something I probably shouldn't seek out, especially on TH-cam, but so many moments are spent alone in these emotions. Pushing and pressing. It makes life worth living, and me more grateful to still be here. We kick azz....seriously. Victims, we are not. I'm understanding daily that I'm not alone in dealing with mental health coupled with chronic pain, with or without medications. I appreciate everyone's stories here. And this woman's testimony is pretty encouraging. Keep rocking. 🥰🧘🏽♀️
Same here
Let’s see if she has such a positive outlook after 10 or 20 yrs of chronic pain. You are not stronger from chronic pain - you lose yourself, you lose the life you knew, you lose who you are to others - kids, spouse, friends, parents, professionally and on and on. These ted talks are more about trying to make others feel good about a person’s story than about reality. It’s beyond pointless (not questioning her injuries or pain - she is just young and I think more focused on trying to tell a story with a happy ending. Life is hard and for chronic pain sufferers it can be torturous - we do our best to retain our purpose and our relationships.
Exactly! Well said.
Thank you. Everyday is a struggle. I'm 61 and living in chronic pain for 17 years everyday. Mines is Peripheral neuropathy. Burning of the legs and feet. Back surgery syndrome failed. It's hard living like this. Sure we would like to have a bright side perspective, but as you get older it gets worse.
Gradgirl,Think of the life I could have had. Many years of just existing minute by minute and family wants an explanation to them. Not too many care all so called friends never around anymore, Rhanks to all of you for making me feel normal.
36 years old. Living with chronic pain for 20 of those. The older I get, the worse it gets. I am super miserable way too often. If I spend a lot of time thinking about how much worse I’m going to be in 5 or 10 years. Woah.
Everyone’s journey is different. I choose to be positive and give myself time to grieve over the things I never or ever will get to do.
Having a positive outlook is the only thing that saves me some days.
Not everyone’s happy ending looks the same.
I'm happy for her. After 20 years of daily pain I'm just not that strong. They've cut meds across the board, with no consideration for chronic pain patients. The med cut was in 2019, in 2020 opioid overdoses were UP 29%. Prescriptions are a small part of the problem, it's mostly street drugs, esp. Fentanyl. What this has accomplished is driving many to suicide or street drugs. What they are doing is not helping and we need change. Don't punish the innocent.
I stand by your statement 100%
I think also making people's chronic pain worse would lead to more suicide
I also stand by this statement 100%! Yes of course I’m happy for her, but I’m not that strong. I had a botched cervical spinal fusion in 07 and It lead to nerve damage, cervical arthritis, ddd, fibromyalgia, chronic fatigue syndrome, osteoarthritis, arthritis, tmj , IBS , mental illness and more. I’ve had times where I was like her. In fact I raised 3 kids, I used to go walk daily ( I am not a driver and I’m 43 ), I went to the YMCA to work out and swim and on the days I didn’t work out I’d walk the bike path. As the years went by I got worse , I received more diagnosis’s, and now I am either sleeping or in bed from the exhaustion and pain or on my couch. I think everyone has different levels of pain , and I’ve tried so so so many treatments , physical therapy, a chiropractor,meditation, yoga and more. Pain medication is so far what has helped the most ,but you see with this crisis our pain medication that had me working out at one time , either taken away entirely or your dosage reduced or like me a medication that helps me not kill myself and alive but not enough to help me get back to the things I once did. I love that she did it without medication that really makes me happy,but some of us unfortunately need that in our tool box.
@@JessieLee_ I'm with you on that, I only get help from the meds. They are what enables me to have some kind of life. Even with them, standing and walking still bad w/nerve pain but worse now. I have had the hardest time just getting dressed lately, I live in my robe and jammies all day, usually around 5 I manage to. Only because I need to go out and feed my strays and don't want anyone to see I'm still in my robe. Is it good that I care about that? lol I used to be on Methadone and Oxy for breakthrough for about 12 years and I was happy with that because I never once felt loopy on them, just normal. If I had a better DR. I think there's more going on. Pain Management is a joke. No one suggests anything or tries to help. Just pee in your cup, let them count your pills and you'll get another prescription. Meds so far have helped most, but I'm open to suggestion, if there's anything under the Sun I haven't tried. I don't look for the CDC to change anything though. Medical Marijuana helps some but it's pricey. Sitting has been my main position for years and now it's hurting to sit very long so I so lay on the couch and watch TV. Constant struggle with my mind wanting to do stuff, but the body won.t. I've complained about this leg pain for months, next visit I guess I have to get in their face. Worst when I first get up in a.m., dread every step. I do go on...
@@nadinezachary9436 God bless. I wish you a better existence.
The moment she started talking in that breathless way, I knew she was in real agony. She's stronger than me. Bless her
I been in pain for 24 years and I'm so tired is awful.
You are such a trooper. I have atypical facial neuralgia. It started at 24 and I am almost 44. It is so hard to live with chronic pain. I feel so down most of the days because this pain changed me so much. But I guess we have have no choice and just need to keep on going
I have typical, atypical, and bilateral TN. I'm having a problem getting through my days at the moment. Stay strong 💪
@@emilies.1092 Thank you
I’m sorry for you. If it helps in any way, I’d recommend you seeing an upper cervical chiropractor. Stay strong 💪
Kat Naud you are a brave, brave woman. I have yelled my enough too.
Thanks for that speech it motivated me to start moving more I’ve been dealing with autoimmune disease and rheumatoid arthritis for 19 years and suffering with chronic pain and fatigue . And also ive been living with toxic people in toxic relationships for 33 years but with Allah’s gods help i will fight my fatigue and pain and get up and move more
I am crying and thinking about how my life is done
Chronic chest pain , tendinitis in Both arms feet and Knees
Thank you for giving me 1% hope that my life could go on
How are you doing now?? Hope you are fine 🙏
I found this video looking for some wise words on how to be productive depsite my physical pain. So happy I clicked on this video! I'm also from Saint John and have big aspirations. Lately I've been letting my pain take a toll on my goals, but I won't let it anymore! You're such an inspiration! Thank you so much!
That doctor was a piece of work.
100% agree! I was so taken back by the whole experience thanks for taking time to comment on my talk
Kat, I appreciate you bringing this subject out in the opening. I need to live with so many obstillcles of pain to the highest level,
@kat naud : Your self healing inspired many of us and definitely helped. One day God will help u and let all your pain go very soon. HOPE
Watching this was literally life saving for me. Thank you so much for telling your story.
God bless you all! How about a video on Kratom?
I’ve got severe spinal damage, crohn’s disease & I survived long Covid. The only reason I’m still able to work full-time and get in the gym and enjoy myself at home in moderation is the discovery and proper use of Kratom along with lots of prayers & mobility work. 💫
I can hear it in my head. Get the 🦆 up and get back on that horse! 🐎❤ Thank you! My husband gets cluster headaches and still shows up everyday as a husband and father and he is the strongest man I know. It's easier to give up and I'm so grateful for everyday he gets back on the horse.
I had crushed pelvis and separation of SI joints with fractures in vertebrae plus internal injuries. Ended up with more than 20 reconstructive surgeries an urostomy bag and chronic pain. So good to hear another’s experience. I had an pelvic fixator for 4 months with three month stay in nursing home. It’s life changing!
Yep, been there and done that. I am still struggling with my chronic pain in my back from breaking my L4.
She'll learn the truth in her sixties.
Gotcha! Great message for all of us who suffer every day. Keep up that great attitude!
Pain for 30 years...thanks...love your share.
She felt her feet getting numb. I understand, because accident I got into a few years back also caused me weak limbs. Doctors dont care they just want to drug me up. most day I dont feel motivated to anything, cause of the physical pain and mental/emotional dispair. Th accident caused me to lose my pregnancy, it also affected my work performance/productivity and eventually cause me to lose my job. And just like this young woman I too became withdrawn from people and doing things I enjoy. My personal care is not up to standard as it use to be nothing is as good as it use to be, my wellness has gotten worst and I worry about my future. I am young I want a family I want to be working and contributing to positive changes as I was doing before prior to the accident. I want to do the activities (sports, traveling/adventures, socializing, participating in charity events and volunteering for just cause organizations, my arts and craft and fashion and beauty side hustle, projects, participating in community initiatives, gardening, personal care upkeep, etc) like I use to do. I have some family support to keep me from totally giving up on life, but I yearn to get back to enjoying my life the way I use to, working, and contributing to positive change for the wellness of community and overall humanity.
I am sitting here 4.32 am woke out my sleep with pain all over.
I can only describe the pain as feeling like I have survived a car crash (and I know what that feels like in real life)
I take Tramadol religiously for my pain.
And have just taken a dose as I'm writing this.
It's the only thing that works.
Chronic pain is aggressive and agonising 😢 a clear second to labour pain easily. She who feels it knows it.
This life is crazy man.
Heck yes!!! Here’s to us warriors!!! 🔥🔥🔥🔥🔥🔥
I had the same experience with doctors for chronic ocular surface disease.
I'm almost 25 and I had the same moment yesterday. The pain has been getting worse recently and normal painkillers don't work on me. The only reason I don't want to end it is because I don't want to leave my partner alone. It just feels like there is nothing I can do other than spend a ridiculous amount of money while trying to find a doctor that isnt a quack and hope for the best.
TRY KRATOM !
Hello Tanya.Permit me to help u.I've death with chronic pain due to mental illness.I assure u,u will feel better. Atumeyi Rosemary Unekwu is my facebook contact
I'm in chronic pain, too. May I just suggest that you not wear high heels, really, ever.
It's not worth it and it just makes it hurt worse.
I never wore heels, the closest was a wedge I wore one summer. And still I'm fighting bunions, hammer toes and horrible callouses. One really bad hammertoe throbbed most of the day. Had it amputated in Aug. and what a relief. It still amazes me that my foot doesn't hurt! Except when the bunion acts up but still don't miss that toe. People see my curled toes and assume I wore heels. Good thing I didn't!
Great video!! Thank you 🙏🏻 Unconditional love to all ❤️ ♾️ 🌌
The way pain patients have and are ignored by the medical community is inhumane. I have had pain for 30 years. When I was younger, I thought my pain was at a high level because it was intolerable. At this point, I cannot even believe how much pain the human body can produce. I had additional injuries after my initial one that has compounded the pain. Remember, even though you think you know what someone is going through because you have pain, you really have no idea. You don’t know the answer for other people. If you can will yourself to do things that is awesome but don’t assume other injured people can do the same or that they haven’t already tried everything in their power and it hasn’t worked. If it has worked, you may be from a small lucky group.
Super amazing how i was able to get rid of my chronic illness from using natural roots and herbs supplement prepared by Doctor salami on TH-cam.
I'm now fibromyalgia free after taken the salami_healing_herbs. check that up on Instagram Now for help.
Because we are in pain, it is daunting to fight one more fight in addition to the battle with pain that begins each new morning when we wake up. That said, I’m willing to begin to fight this badly thrown together legislation that has created terrible frustration and stress for those of us who suffer pain. If anyone has any references to perhaps groups already formed that address organizing to create the change we need so that we have quality of life that would allow us both some relief as well as foster our independence. Pain management docs are our hope but legislation harms them as well so that many are either retiring or limiting their practices.
UC SF Med Ortho MD 2022 made light of my pain and instead of taking an accurate history of my injuries, pain, he told me he was giving a script for pain meds which I hadn't requested. When I asked if the meds had side effects, he say said all medication has side effects.
Started having chronic abdomen pain and pressure at age 20. It's still happening 2.5 years later. Still looking for something to ease it and heal me.
What do you do when you have dragged yourself up off the floor over and over again and you're tired of doing it?
That’s everyday for me. I’m 45 and been diagnosed with Crohn’s disease since the age of 18. Multiple surgeries, spinal arthritis and neuralgia and numbness in hands and feet. Everyday is a struggle to survive. I’m barely keeping my head above water to work in order to pay healthcare bills. Especially chiropractic care which insurance barely covers. It’s an endless cycle which will most likely end up with taking my life. Most people don’t understand when enough is too much too bear
i suffer from chronic pain from Laser Eye Surgery Complications. I have a series on my channel creating awareness.!! its awful but were alll dang strong. i do take pain meds every day but these aren't addictive not all of them are. im hoping there will be a cure to my nerve damage onto day :) xx
I had a leg injury in past and after some days i injured again from same leg.....it became worse...i dont know whether i will able to recover it or not.....i want to do many things in my life.....
With the time...now i am losing hope.....i am prisoned in my house from 3 months....no frnds no people.....
I feel you dude,me too going through knee and back pain ... it's physical and emotional trauma I'm going through everyday
Pain the unwanted companion. Every second of the day.
Pain is "pressure" produced by excess of heat. HEAT causes dilatation of cells and consequent pressure. The head is a solid block that cannot expand much, so the pain implodes and becomes unbearable.
I'm a generally well functioning chronic pain survivor. I can get up and do things on a 7 ps and act like there's no problem. But there are days when I start a 7 and just taking a shower shoots me past 10. I can't handle it. Normally I'm not suicidal, I'm too damn subborn to give up. But once it gets past 10, I feel like a lame horse that needs shot to put it out of its misery.
Tiffany M, you describe chronic pain so honestly and some days it’s true, you just want relief no matter what it takes. Not many people, not even your loved ones understand it, but we do. ❤️🕊🦋
U sound Almost like me
Thank you for sharing your story. I found it very relatable.
Sometimes you don't realize how much you need to hear something
Mam, please tell us what happened to your horse after the fall?
Wow!!!! I thought the medical care in Canada was supposed to be great???
Doctors offer medications every day. I decline them daily. I'm trusting God. And I know He will answer. I also know there are some amazing doctors in this world.... I am forgiving my body. Forgiving myself. I have given myself permission to be human.
For 18 months I have suffered terrible pain with haemorrhoids and fissure just wish I never went to doctor then specialist had sphincterotomy and haemorrhoid removed now in more pain then ever completely destroyed my life the only meds I take is to knock me out at night so I can sleep
Veterans affairs has their own police to deter veterans from seeking help. I grow my own mushrooms to manage chronic pain. My channel shows how.
Did you ever see another Doctor after that bad experience in Vancouver! Going through similar in Milwaukee.
Everyday feel like 😔😭😰
Her pain is 7/10 at the moment & constantly at best? What would renal colic be like then?
hey ma'am I have pain in my left testiclur and in my Nick and difficulty urination
can you please help me
Where did that doctor get his medical license and why is he still practicing!!
You inspire me but you did a mistake going down to chiropractor
Try researching the original reason the spoon theory was invented... This lady explains it from her perspective, not from the lady who created it to explain invisible illness.
Pity party was never mentioned by the lady who created spoon theory (she has a website and even a Ted talk if you are interested).
We all have an individual experience of chronic pain and often recovery differs from what the lady in this video experienced.. We are all lumped in together if we experience pain for more than 6 months but that doesn't mean that we will all have the same individual symptoms or respond the same way to the same treatment or management options.
Blessings from South Eastern Australia, Dot
I can’t even think about putting some heals on
That Dr. should be NO Doctor.
Well done x😉👍
Thank you so much ❤️
Misery loves company.
I dealt with my chronic pain for around 25 years in essentially the same manner, however the last 3 years i have been experimenting with a different approach with great results. My pain frequently goes down to level 2 or 3 and what would have been a good day years ago 6-7 level is now a spike for me . I did this by instead of fighting the pain , i now listen to it very carefully and respect it , i try and find the “ tension “ before i feel the pain. I have worked on improving my breathing, using Vagus nerve exercises to release the chronic tension and stress that goes with chronic pain . I have also been learning to move and walk differently using Feldenkrais techniques and understanding the mind body connection. I learnt everything from TH-cam videos for free, I now move and stand better than i ever have , my stress level is much , much lower and I am really starting to enjoy life again. I do still have some bad days but they are much easier to deal with than before . I highly recommend looking up - Sukie Baxter for Vagus nerve massage for stress and anxiety “ . Taro Iwamoto for retraining your mind and body so you can move more easily, and looking into Dr John Sarnos work on the mind body connection. Understanding how poor medical advice can affect you eg “the Nocebo effect “ is very important- i was told that I would always be in pain and could never stand up properly too - not true -i now have full back mobility and still get a bit of vertigo as i stand about 3 inches taller than i used to. I hope this gives hope to anyone reading this that chronic pain can be managed much better than you may now currently believe, nothing i do is exceptionally difficult- if anything the trick is to do everything calmly and slowly and overtime reprogram your body and and mind to move with ease.
Thanks Robert . I found Dr John Sarno's work about 6 weeks ago and from there, Dr Howard Schubiner and there are many more doctors and psychotherapists who are working with more current ways of addressing chronic pain. I’m not recovered from chronic back and hip pain yet but I’m hopeful and feel I have nothing to lose to look at different ideas around healing. I don’t want to be remembered for my courage around unrelenting pin; I want to be remembered as the person who healed from it.
@@vitamind6355 good luck with it , i think it’s important to try different approaches as everyone is different, i find i can easily slip back into old patterns both thought wise and movement/ posture wise . Making your own health and wellbeing a priority and daily practise seems to be the key out of it and excepting that sometimes relapses happen - best of luck - there are some great resources on you tube , recently ive been enjoying various somatic exercises
What about the horse?
Pain lets you know you're a live however my chronic pain does not allow me to live. Unfortunately pain never stops, ever!
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Now the doctors just put down the forms without reading them and say sorry we cant do anything for you. At least before we got medication
I am doing a school project and looking to interview those that are dealing with chronic pain. Message me if you are interested. Thanks!
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Washington state doctors are pretty bad....until you go to Malta
She isn’t looking healthy I’m not sure she has any idea I have been though so much more than this women and I wouldn’t carry on like this it’s all about her, not so simple for all of us love clearly you got lucky
Try earthing, it's good for almost all health problems including chronic pain. Go DIY a grounding mat, pillow or sheet,no need to buy.
THANK YOU!
That's one story. Most of us don't get better with "a positive attitude, a balanced diet and some exercise ".
It's NOT that simple for the majority of chronic pain patients.
@@Dbgrego I agree. I’ve tried everything for my chronic pain and it’s still around.
You need Pain Management
vicodin or kratom is the ONLY pain management that WORKS !
Her story is completely irrelevant to anyone else.
hi madam
When she tries to tell just how bad her pain is and the damages done, it is horrific, but certainly a lie. People like this are all about the trauma that never goes away and the pain that is always there... except it is fabricated. She said she is currently in a level 6-7 in pain right now... this is just bogus.
Level 10 pain: incoherent to mentally passed out.
Level 9 pain: all attention directed at comfort. If not controlled it will progress to level 10 pain.
Level 8 pain: cannot carry on any lengthy or focused conversation. Nothing to stop progression to level 9 pain (except opioids)
Level 7 pain: all attention given toward moderating pain. Turns into introvert in order to attempt and assess damage control
Level 6 pain: loss of any constructive activities. No house cleaning, no food prepration, NO extended or moderate WORK time. (She said she is at level 6-7 pain and is working.) Non-Functional.
Level 5 pain: More than just discomfort this pain level begins to severely affect one's mental state... irratibility, anger and such. Losing control. Severe lulls in conversation (blank spaces) Losing coherent aptitude, does not want conversation.
Level 4 pain: Functional but with mistakes. Minimal conversation. Noticeable Blank Spaces (lulls in conversation)
Like the end of a 20 hour shift with forced awareness.
Level 3 Pain: coherent and lucid with moderate "blank spaces." Can carry on a conversation... equivielant to working a 16 hour shift.
Level 2 pain: slight discomfort, not causing any confusion. Like the end of an 8 hour shift
I agree.
I'm now fibromyalgia free after taken the salami_healing_herbs. check that up on Instagram Now for help.
I've been asked to rate my pain for 20+ years and not once do I recall seeing guidelines like this. Would have been so, so helpful. They just showed me the smiley/frowning faces. I'm actually ticked off at the moment about these "pain management" doctors who charge $300+ a visit to have someone else count my pills and test my urine. Then the Dr. talks to me 5-10 min. making no additional suggestions for pain, don''t even have enough initiative to supply me with that information.
The problem is there isn't one, consistent pain scale used in the US. Her level 7 probably isn't the same as mine, and in all fairness, pain affects people differently in that when I get joint pain from humid weather it hurts and is hard to walk, etc., but I'd trade that for my muscular pain from a genetic connective tissue disorder any day. I've used the Mankoski pain scale for years now, but that doesn't mean my doctors or PT use it, so no one really knows how I feel. On that scale, I've been generally at a 7 for 19 years and at an 8-9 the first couple of years after my illness started before I was given non-opiate meds (they make me sick and don't help for some reason). When people without chronic pain tell me they're at a 10 over some silly thing, I want to just scream because a 10 means you are unconscious and I actually have passed out from pain before. You literally cannot be a 10 and verbalize that until you come down on the pain scale.
That was fantastic! Perfect description. This is what should be used as a pain scale.
What happened to the horse?
Happy to report he was completely fine!!
Testosterone is HEAT. Heat produces pain. Acidic testosterone produces 3x more heat
horse ain’t wanna get the chronic pain either 🤣
I hear you! My ortho said he ‘practically positive’ the surgery would relieve my pain. NO! All it did was make it worse.
@@williamschuyler3890 what did you get?
@@williamschuyler3890 I have radial tunnel syndrome right now
Oh BS!
I think many men have suffered unfairly due to the "me too" movement.
Women like me are suffering alone . I’ve had 2 thoracic fusions and a neck fusion. I have herniated discs and can’t walk to the mailbox without crying. I barely have any quality of life . Please God Help me . I’m only in my 40’s and have what’s called failed back surgery. It’s so embarrassing that I have to use depends . I have no friends or life . I need pain relief and therapy please god help me. Hope is dead and I don’t want to suffer the rest of my life .
@@CurlyMedic03 Please go see,or call someone that can get you in to pain management. Please do this,I beg you,it may get better with the proper help.
Look up orgone therapy, it might help
@@CurlyMedic03 I understand. I believe in God but feel that my suffering is “part of life”. I have been in pain since 71. 50 years now. After 30 years I was finally given morphine. It helped but after 16 years drs took it away. I can’t bear this ever increasing pain. My entire body. Inside and out. No one knows another’s pain. We all have different pain thresholds and our pain centers in our brains are different. I will probably take my life. I have born this too long. My #1 help is distraction. However, we need to sleep. How can we sleep when suffering so! Poor sleep = more pain. My heart breaks for you. Our next life will be amazing! Do your best but if you suicide I believe God is merciful. Love to you.
God bless you all! How about a video on Kratom?
I’ve got severe spinal damage, crohn’s disease & I survived long Covid. The only reason I’m still able to work full-time and get in the gym and enjoy myself at home in moderation is the discovery and proper use of Kratom along with lots of prayers & mobility work. 💫
❤