An Autistic Kid with Cerebral Palsy (Caused by a Common Virus)
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- เผยแพร่เมื่อ 7 ก.ย. 2024
- Jocelyn was diagnosed with congenital CMV shortly after birth. This common virus infected her brain before her immune system developed. As a result, today Jocelyn is diagnosed with autism, cerebral palsy, hearing and vision loss. Jocelyn's family wants others to know that congenital CMV exists and it is possible to prevent further damage if diagnosed within the first 6 months.
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It’s sad that I get excited seeing a proud dad of a disabled child. Mine didn’t like me because I was physically impaired. So happy all don’t have to endure what I did. Love these videos.
I’m so sorry that your Dad couldn’t love you unconditionally. He has missed out on something so precious . I hope you know you are enough and your disability is just one part of you. ❤
Same, I have cerebral palsy and my immediate family don't really like me partly because of my disability.
@Brittany Young, @Jenna Blue Whoa! This is incomprehensible? How can a father not love his child? I am also physically disabled - hydrocephalus and epilepsy - but my parents love me, despite these conditions.
I am so sorry for both of you. 😔
Well that's definitely your dad's loss and not yours because you sound like an awesome person worth getting to know.
My dad definitely loves me, but I think he has never quite forgiven himself for my cerebral palsy, even though it wasn’t his fault I have it. So it’s difficult…
I myself have Cerebral Palsy and Autism I am a Retired Engineering Technician. Autism and Cerebral Palsy are spectrum developmental disabilities, from persons like Jocelyn to others like me. I am of the generation who muddled through school,ect., with no supports.
Chris has the same warm hearted spirit as Mr. Rodgers. When he says “Thank you for letting me into your space” is just one example of his genuine loving personality. I notice parents often point out how he connects with their child on a level they don’t see beyond the child’s caregivers. It is hard to build that trust so quick with anyone let alone those with special needs. Simply put I believe Chris is a special soul who is able to connect with those who often don’t have a voice of their own. Thank you for sharing these moments where we’re able to connect with your guests and understand them on a personal level through your channel.
THIS
He really is the new mr rogers
THIS
Chris is truly amazing! I think that’s because he has a caring heart and a LOT of practice. I hope people see him and realize that we can all be a little more like him if we keep trying and learning to connect with people who are different than us. 🥰
@@maritaandcatshe is just as amazing off camera too!
It’s amazing how these kids always warm up to Chris, it’s like they can sense his kind soul. Her momma was saying she doesn’t like people so close in her space but she lets Chris in, and it has happened in other interviews
I think it's true, but I also don't want to give short shrift to Chris' skills that he's built up over so much work with kids. This was a nice glimpse into how intentional he is in what he's doing, when to me it just seemed like he was just going with the flow.
Could I learn English with you? I am from Brazil
I’m autism to love Brazil name yasmin 13 years my big brother Ibrahim I’m autism 14 years old ❤ little girl autism so cute
I hope they give her more ways to really communicate as she gets older, like an AAC device etc. She obviously has her own thoughts and is aware of things.
A few basic signs would be helpful for now, it can make all the difference when you can share what's inside your head!!!
She definitely said so much without saying anything at 2:40 that made me emotional
yes why don't she learn sign language????
@@chancia8990 well obviously her ability to make certain signs might be limited.
@@powderandpaint14 but still she can try to understand parents' signs
I love how her dad said she loves to be roughhousing like everyone else and he sees her as strong. Good parents. Sweet child.❤❤❤
The older she gets she’s gonna be such a daddy’s girl 😂 he’s just so amazed and proud of her. So much love to this family, she’s got two awesome parents!
The dad is absolutely right to be proud of the "little things"!
It's all relative.
What a loving family! 🩷🩵💜
I am an Autistic adult. Their family makes me smile because not every Autistic child has parents who are as supportive or capable of providing an environment that helps Autistic people feel safe. Her mom and dad have a huge part in her expansion and improvements. They truly should be proud of themselves, and they should know they are both really good parents. I also have chronic illnesses on top of being Autistic, and people don't always see how hard parents work to provide a safe environment for their kids to improve and grow through their daily Challenges. Thank you for sharing their story. Your channel has such an amazing impact on those who watch and are open to learning about people's "differences." ❤❤❤❤
That was an amazingly expressed comment. Thank you!
Thank YOU for sharing!
I loved it when she asked you to get more bubbles. You are so kind to play along with her as she wants to interact with you. She has the best parents who adore her. What a angel from heaven. God bless all of you.
I hope that they are able to teach her signs and/or get her access to an AAC device! I do understand the focus on speech but she is clearly aware and wanting to communicate.
Also, I sincerely hope they are affiliated with their state's DeafBlind Project - since Jocelyn has a combined hearing and vision loss, she qualifies for special services that will allow her to better understand her environment and communicate. A lot of parents have a misconception that a child has mild hearing and vision loss so they don't qualify for services, but they do! And it's so much more than just working on the hearing and vision losses separately. She could qualify for special services including an intervener, which is a specialized 1:1 para that is trained specifically in the field of deafblindness and communication for kids with complex communication needs.
That is awesome!! I hope they can get more folks on Jocelyn’s team, that’d be amazing. What an awesome family and such a sweet girl!!
According to the interview she was taught sign language for 3 years and is already part of the deaf/blind community. She has several different teachers that specialize in different areas.
I have never heard of CMV. Surprising it is such a common virus. Thank you for sharing your story with Chris.
Cmv is herpes
Me too
Hi all...all pregnant ladies will have 'torch ' test in 1st visit....toxoplama,a paracyte, rubella virus, herpes simplex type2,virus,cmv,it is cytomegalo virus...all produce same anamolies...termination of pregnancy Dr's advice, unless parents refuse.
It’s an ubiquitous virus throughout the world. Somewhat similar to the world’s population carrying HSVs.
Chris, thank you so much for playing bubbles with Jocelyn. She had a blast. She connected and interacted with you in a way that is rare and seeing it made me emotional. ❤❤❤ Also, I really appreciate you helping to spread the word about ccmv. I couldn't protect my baby from CMV but just maybe this video will help another mother protect their baby.
I too was born with cmv back in the early eighties. Before this video I had never seen anyone born with it. I ended up having dyscalculia and autism from it. I didn’t learn how to walk till I was two. But thankfully like Jocelyn I had wonderful parents who supported me and made sure I got all the help in needed to succeed.
13:43 when Chris looks up to hear what Jocelyn’s mom has to say about learning new ways to interact he’s so attentive it’s beautiful. I’ve said it once I’ll say it again. Chris is literally an Angel 💙.
"A girl's Daddy" - what a wonderful person to be.
I love this family! I love how her dad is so proud of her achievements.
Chris always gets welcomed by the children/people he interviews and showcases because he is a genuinely caring, kind and nurturing man. There aren’t enough superlatives to describe him and his gift to the disabled/less abled and mental health community. He is a treasure, as are all the families and individuals who share here. Much gratitude… ❤️🌹❤️
Chris is just as amazing off camera too!
Oh my gosh.... I almost passed away from CMV about 8 years ago. I got so sick from it bc I was very ill with chronic illnesses also. I had no idea the effect it could have on a baby in utero. This was very educational. But mostly, what an honor to meet your family. God bless your baby girl with love and happiness for all of her life. She is absolutely precious ❤
I'm actually crying for real because it just makes me so happy how much she is loved and how much support she has. It's such a nice thing to see. I watch lots of your videos, but just how genuine you are and how much you are educating people and other children to have no judgements towards others who may have differences. Thank you for being so kind ❤️
I’m so happy u covered this! My daughter is a CCMV warrior as well 💙🩶💚
The way her dad spoke of her just... melted my heart sooo much. The way she smiles when her mom gives her a kiss, and how precious it is to her mom because of the time it took to 'be this close' with her child... All the patience, grace and love that they show to their child... It's truly incredible how you manage to capture these moments and share them with us. Thank you for what you're doing! I've learned so much from your videos, and seeing people like this amazing family can really 'restore my faith in humanity' sometimes x)
Mom you did a great job advocating for Jocelyn your child, I could tell you were nervous but you came across with so much love and hope for the future! God bless you and your family and never give up on your hopes and dreams for Jocelyn!🫶🙏
You're so lucky that you get to meet so many interesting people and be friends with them, dude.
I'd love to be in your place right now.
I myself was born with a congenital variation of Hydrocephalus...but my parents didn't learn about this until two weeks after I was born
In Jocelyn's case we got the hydrocephalus diagnosis while I was at my 30 week ultrasound and prior to that nothing appeared to be wrong in previous ultrasounds. They just didn't find out that CMV was causing it until after she was born.
I love that mom said “she’s a boss!” Jocelyn’s fierce personality and tenacity is undeniable 💕
She is 100% a boss and she knows it. ❤
Chris, I know this has been pointed a number of times, but you are very good with kids. It’s amazing how they open up to you, and allow you in their space. Good job in making this channel sir! I’ve learned a lot here!
As a 13 year old autistic who has made some achievements, I hope she knows that she can do anything that people say she cant. she can do whatever she puts her mind to.
This little girls behaviours and everything about her are IDENTICAL to my son. Im absolutely blown away. Everything is the same. From her saying ah ah, her eye movements, pushing your hand to get her things. I can't believe it!
What a nice family. Jocelyn is a cutie and her Dad should not feel self conscious for over sharing his daughter with other people. He definitely should be proud of everything she does 🙂✌️
I’m only 45 seconds in, but what a special human Jocelyn is. She just has an air to her and is such a beautiful, wee lady. So impressed with her determination and absolutely adore your mission. Chris. We are lucky you share all of these wonderful people with the world and broaden our horizons:) ❤stef xox
Hi Jocelyn! I’m so happy right now because watching you having so much fun with bubbles made me remember how much fun it was when I used to blow bubbles when I was younger.
@Jocelyn’s mom: I loved the intro to this video. Chris asks about Jocelyn and you just open with the statement of fact “Jocelyn is amazing.” There was no lead up, no need to give it any thought whatsoever. That pure spontaneity reveals it’s the truth. And keep working on practicing speech-I’ve worked with many individuals with speech deficits, and while it’s not a like for like comparison it does prove the incredible capacity for speech the human body was designed for. Progress can be made and when it happens, it’ll be extraordinarily satisfying.
Yes, my 5 year old son has been in speech therapy for a little over a year and the progress has been life changing for him. He only goes once a week for 45 mins with half the time spent playing games that double as lessons. He has always learned best through play so that part is important for him. He would often stutter, trying to catch up his words with his thoughts causing him to get frustrated and give up. So, it’s been amazing to see him learn how to form his thoughts into words essentially giving him a voice to express his thoughts. I would highly recommend speech therapy for anyone that may have trouble with speech. Honestly, the most rewarding part of it all is seeing his confidence skyrocket over the last year. ❤
Speech is useful - but communication is even more so - whether it be via speech, signs, or pictures.
@@krisw5318 speech therapy focuses on communication, feeding and so much more. It isn't just talking.
dad couldn’t have explained that better about how to describe her bc many people think that they should be treated differently than any other child at the age and in some circumstances yes but not always, they are just as bright and talented as any other child without disabilities! they know what they want and don’t want and how to be treated, just like any other child!
i love how her dad is her biggest fan :)
What a beautiful family ❤ the joy and the love and the support for and from each other is so evident 😊
Also, I’m always blown away by the ease with which Chris connects with everyone. Just such a beautiful, innate gift he has to meet everyone on their level in a way that makes sure they know they are valued and being offered genuine, heartfelt connection with another person, which is truly priceless. What a wonderful light you and your channel bring to this world, my dude ❤ 👏
I love Jocelyn's big smile for her mama.
One of my best friends has congenital CMV. Most people wouldn't know it by looking at her. She is Deaf/HOH and has some balance issues sometimes, but otherwise it doesn't affect her much. We have a mutual friend who also has CMV. He is a player on the South African National Deaf Rugby team.
Kids can be born with cmv and have no symptoms at all. It ranges.
I love this, parents that NEVER GIVE UP ON THEIR CHILDREN.❤❤❤
I have autism and cerebral palsy just on my left side; my mom and therapists worked with me to learn how walk and talk. Challenges come with territory, it was worth it that I can to her and keep up when walking plus cleaning up after myself and chores.😊
My husband and I watch a lot of these videos. I have a niece Jordan that is special needs, she was not suppose to live past age 5 she wasn't suppose to walk she's 18 years old and walks on her own. My husband has cerebral palsy. He wears glasses because he has the vision issues and he walks with long stride crutches. He wasn't suppose to live or walk either. He's 45 years old and has one of the most beautiful minds I've ever seen. It didn't effect his brain. He has had to learn to walk 4 separate times in his life. He had 3 surgeries as a child to be able to walk. And he is learning how to walk again this past month. I'm working all week then traveling to hospital every weekend to be with him. I love it that you do this. You cannot learn what you are not taught. ❤😊 have a blessed day!
just off the interview only her mom seems so amazing and loving just true acceptance and love i'm feeling
such a good little family
Best, most informative channel on TH-cam! Brilliant use of social media and bringing awareness to rare disabilities and diseases. These families need you and we are all learning so much. Thank you! ❤️🙏
What great parents. My heros.
Thanks for spreading awareness about it!
I didn't know about it either!
Jocelyn loves bubbles!!! Hope she is able to achieve even more milestones!
Her parents are amazing!
They tested my newest baby (born 2/6/23) for CMV because he had a small head. They gave me absolutely no info on what CMV was, but kept telling me that my son probably had it. They didn’t test me though. I’m not one to look stuff up on google either so I had no clue. Thankfully my baby was negative, but seeing this video really opened my eyes to what could’ve been…
Bless this family, I’m glad this interview was done. This needs to be talked about more, especially to newly pregnant women.
No one cares
@@meahdahlgren5875 cool beans! Thank you so much for letting me know. You’ve really changed my outlook on things.
@@analisabecker bye
@@meahdahlgren5875 no don’t go! Give me more words of wisdom like your first comment! You’re obviously so wise and all knowing what all people care about and know. Let me learn from you. You seem like such a kind, smart, loving person with so much knowledge of life and people. 😂😂😂😂
@@analisabecker bye
Thank you for sharing your story! Your daughter is so precious and sweet and reminds me of my 7 yo non verbal Autistic son. I really think you’re spreading awareness and sharing your story is super important. It’s obvious she has two parents who really love and care for her, and that is so important! Thanks for sharing.
This is why all women should be screening for CMV immune status early in pregnancy, and continue screening through 14 weeks. If a woman sera converts after 14 weeks it is extremely unlikely to affect her fetus. In other countries they even have approved treatment protocols for CMV in pregnancy.
Yes!!!!!
What a beautiful baby girl!! When she smilled and her face lit up over bubbles was my favorite part! ❤
The amazing human spirit of every person on this earth ❤
YAY!!!! It's SBSK day. Chris and SBSK is a highlight of my day!
👋
Love Chris how You interact with Jocelyn now through this channel more people will know about CMV
As soon as I saw cerebral palsy and caused by common virus it made me think of my son. He was a perfectly healthy child and when he was 3 he caught the common cold virus but it attacked his brain, he now has quadriplegic cerebral palsy. Your little girl is amazing ❤
Jocelyn's smile is contagious!! Such a sweetheart.
They’re trying to do PECS with her, they can have a picture of bubbles right there on the tray, and they would have to require that. She hand them the picture of bubbles and then they would do it, and that would help to further their communication along.
The picture of bubbles was on her communication board. Right now she doesn't connect a photo to the actual object so I just hang it up and make sure she visually attends before starting bubbles. Hopefully she will start to connect the photo to the actual item. Bc of her visual impairments it's hard bc she sees in a blur. (Note: it's neurological and not fixable with glasses) It has been a ton of trial and error.
How awesome it is that the parents of Jocelyn love her so much! You would think that parents might resent a child whose development was problematic. Nope, they are steadfastly cheerful, loving and involved with their daughter. I am glad to hear that she is getting so much help from professionals with her hearing and learning. We can all learn to be more patient and more grateful for all the people and blessings in our life. All our prayers and all our love to Jocelyn and her family.
It's beautiful to see her interacting with people. Maybe, if the next step is talking, her family could start with sign language for the essential words of needs. It would be a big step to start a real communication with her.
Starting with the signs for 'bubbles' and 'more'!
@@krisw5318 We aren't anywhere close to talking. I was being light hearted and hopeful. She refuses sign language. We have tried and tried. The virus damaged the left side of her brain so her right side is extremely weak. I can't get her to visually attend to low interest activities. She hates hand over hand to the extent of self harming excessively, she has never copied me doing anything. Maybe now that she is finally interacting with people it will go better. Her HOH teacher signs all day everyday with her but she has never copied and we can't get her to tolerate hand over hand much less visually attend to it. For the sake of the video I let Jocelyn lead. I wanted a positive social interaction not a therapy session. The bubbles were on her communication board btw. We just didn't show it. I always hang up the picture and physical object representing the activity before doing it. She just isn't connecting the 2 yet.
@@laurenhermes9462 She will do what she wants to do when she wants to do it. That is her greatest strength and weakness. But so far she has proven to eventually do it. Whatever it is. Love all of you.
@@laurenhermes9462 Thank you so much for your thoughtful and detailed reply!
A teaching technique that someone despises is definitely one to not use, especially for someone who doesn't attend to low interest activities and who reacts badly to someone trying to insist. A positive social interaction, on the other hand - that's a good thing. (I remember that from my son's speech therapy, when he was younger; he did much better with sessions based on positive social interactions!).
From the video, it seems that cups are a high-interest object/activity. Does she enjoy watching/listening to other people tap cups as much as she enjoyed watching Chris blow bubbles? I can see that, too, being an enjoyable social interaction, if she does!
A beautiful girl!❤very informative video and Chris is an awesome man to spread the word about disorders/diseases, etc. that can happen to our loved ones. Jocelyn is simply adorable and Dad-be proud of every little thing she does! What is a small step to the average person is a huge step to parents of wonderful, different children!
My son is a cCMV baby. He is 10 now. He isn't affected as bad but he has profound learning disabilities. I found out at my 20 week ultrasound that he was affected and I had a primary infection of cmv. Alot of people aren't as lucky to find out as early. I wish they made testing for it part of routine prenatal care.
Jocelyn's mom was SO INCREDIBLY LUCKY to have doctors who didn't know about CMV tested her for it. I think. alot of doctors wouldn't have. Also incredibly lucky that she got the vaccine for it as well. Again, alot of doctors wound't.
Her dad is so INCREDIBLY proud of his daughter. Alot of dads don't get that chance to basically brag about their kids the moms get that chance. The dad is just so sweet.
The parents have so much patience with Jocelyn. That must get tiring to put so much focus and attention on a special needs kids. They are heroes. I hope all parents/guardians get help at times so they can recharge. Especially married couples.
Thank you for this interview! I really enjoyed learning about Jocelyn 's condition and seeing and hearing about the ways that her loving parents accommodate her ❤ I can see a bit of an artist in Jocelyn as she appears very visual and interested in textures and colours, (even though her vision is impaired!) I would love to see her explore fingerpainting on a very large surface...I am sure she could communicate big things with the right medium 🎉❤😊
Praying for new miles stones for Jocelyn (even small ones) to be reached everyday!
She is such a beautiful little girl. She looks adorable in her braids and outfit. She got dressed up for company. The parents are fantastic! I love how her Dad is so proud of her achievements. She is living proof that there really are no such things as experts. They might know a lot, but they don't know everything. They forget about the spirit of the affected individual and family.
I love how Chris interacts with the kids and families. I'm a Baby Boomer. Is so wish a TV program like this existed back then. People with disabilities were shunned and many were kept hidden or sent to an institution.
Seeing Jocelyn get excited and happy about bubbles lifts my heart. I love kids and how in the moment and expressive they can be. One of the best things in life is seeing younger people being joyful and being able to see, if only marginally, the world through their eyes.
One of the responsibilities of caregivers is (or should be) to ensure this spark is never extinguished. There's no reason it should be. The world would be a better place if no one ever lost that sense of wide-eyed wonder.
I actually have autism and (very) mild CP as well! For me it was probably genetics for the autism piece and being born super premature for the CP part. I was very lucky because I was born 14 weeks premature and weighed 2 lbs.
U are born at 26 wks,nd have mild cp....u r great.
Chris has a beautiful heart!❤️
I know I’m late but Jocelyn is so adorable🥹 She seems very intelligent too, I bet she’s learned so much since this video.
My oldest used PEC boards to communicate for the first 4 yrs of life. We had a food/drink PEC board and a fun/activity PEC board too
What a sweet daddy. Gives me hope
Terima kasih.
Jocelyn has an awesome smile ❤
Thanks for all you do, Chris ❤
I truly love how this girl gives joy to everyone around her! I hope you are doing well!
This was a very interesting virus & I had never heard of it. Jocelyn seems like a happy, thriving , loved lil girl..
I have mild cerebral palsy so i can relate to Jocelyn.
Omg what amazing, loving parents. You all are lucky to have each other ❤️
Another hit to the heart, thanks Chris and Jocelyn 🥰
SBSK you guys are amazing!❤❤❤❤
This just warms my heart ❤️
This kid is literally one of the cutest kids I have ever seen! I just love her, and if I ever met her, would be honored! The Lord bless you, Jocelyn. May you go far. 🙏🙏
I was honored to be one of the only ppl to get a hug from a girl like her but kids love me maybe cuz I'm a giant kid myself and I love all children no matter what❤
5:22 anybody else notice Jocelyn seems to be mimicking Chris's singing with whatever it is that was making that sound..? Edit 2: it was her teeth!
I like her she is full of life and happiness I love it. Beautiful and careful family and friends 👍♥️
Loved this wonderful video! Y’all did amazing! Much love to Jocelyn and her family! ❤❤❤
Mom and dad you're doing such a great job. You are in my prayers.
These are lovely videos full of information and care. Thank you!
I’m beginning a new job as a para-professional for disabled kids in 6th and 7th grade. These videos certainly help me understand and prepare to interact with these children 💜
This is crazy she’s so similar to my daughter who’s 15 and has the same issues literally so similar she grinds her teeth too. Her name is Alissa I know exactly what that dad is feeling I can tell he wanted to cry. It’s hard because we want to most for our kids but we need to remember they are happy and they are who they are they don’t care I don’t think. Alissa is way more social and loves hugs and kisses and loves to be squeezed for some reason. I love this video and I hope the best this family.
Están bonita que parece que no tiene nada
Bendita
Grandes estos padres por su paciencia y lucha 😊
Omg I can’t watch this with her grinding her teeth. It just makes my skin crawl!
Happy Birthday To You Jocelyn.
Jocelyn is so smart and so strong and her parents are amazing ❤️❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏🙏
Крис - большой молодец! Храни вас Господь!!!
That was so funny to me haha. “What do you if you’re actually done with the bubbles?” 😆
Jocelyn has such a beautiful smile. And i love hearing about all her progress and milestones. The parents are so excited about it that it's infectious as well. I am sure she will continue to achieve bigger milestones
1:18 the way she smiles at you💙💙💙
This is why I never came into contact with the kitty litter when pregnant: CMV and toxoplasmosis.
It is troubling to hear that their physician knew nothing of this disease. I’m visualizing some backwoods place. So sad if the outcome could have been different.
Godspeed young lady.
I have a little brother that's on the Autism Spectrum and he talks and talks like a Radio Disc Jockey!! I have a mild intellectual Disability and ADHD Special Needs myself and very independent!!!! I don't let my disability stop me from enjoying life!! I'm gonna be getting a job as a Custodian I enjoy all my activities I'm 29 years old and my brother that's on the Autism Spectrum is 27 he'll be 28nnnn
God bless you.
Because there are so many overlapping symptoms between congenital CMV and Autism, i wonder if there has been research regarding the possible viral origins of autism?
Anything that can cause brain damage can cause autism. Things that cause brain damage are usually tied to inflammation. What causes inflammation? Viruses, vaccines/certain medications, environmental toxins. But it’s not politically correct to state that or question the status quo. I am autistic.
She drank after someone who had CMV. She kept on saying don't drink after anyone while your pregnant. You just shouldn't drink after anyone period. Bc you don't know what bacteria they have that could harm you if your body can't fight it off.
The book Out Of My Mind by Sharon M Draper is about a girl with cerebral palsy just like Jocelyn. It’s really good. I recommend it.
I read it and yes it’s amazing
I think Chris is trying to beat his person record for the biggest bubble he's blown.
That Dad is absolutely adorable. He's totally in love with his baby and it warms my heart. 🥰