Living with a Rare Childhood Stroke Disease (Moyamoya)
ฝัง
- เผยแพร่เมื่อ 17 ต.ค. 2024
- Titus survived multiple strokes as an infant that were caused by a rare disease known as Moyamoya. He is now diagnosed with cerebral
palsy and spastic quadriplegia. Titus loves to spend time with his siblings and play ball. His family wants others to know that, "Even if a person requires assistance with all things they can still have a really beautiful and full life."
Follow Titus' Family at / lovemyladybugs5
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So thankful for this video. Our 7 year old son, Lincoln, has MoyaMoya & CP as well and he is the most joyful, wonderful child. Thank you guys for sharing your story. ❤️❤️ You are amazing, Titus! His belly laugh is sooooo sweet!
My favorite family on TH-cam ❤❤❤❤❤❤❤❤
My son is 15 and he has MM also.
I immediately thought of Lincoln when I saw moya moya in the video title.
@@gb1914 we clicked so fast. ❤️❤️
Thought of you and Linky immediately. You guys are doing such a great job raising and supporting these kids ❤
He honestly has a million dollar smile. 🎉
Titus has the most contagious laugh. Such a beautiful little boy. He could totally be in child clothes ads. I love this family.
this was my thought too!!! He could definitely model!
Oh my 🥹 I just realized I was smiling through the whole video 😊
This boy is such a blessing to the world.
And his little laugh when Chris is "falling" is just adorable 😂😂😂🥰
My.Sentiments.EXACTLY.❤️
I thought that Titus would pass out from laughing so hard. What a joyful little man.
It’s really nice and heartwarming to hear that his mom says she won the lottery with him. I am autistic, and I have felt like a burden for A LOT of my life. And we’re not. I’m not, and he’s not. It is simply not right that human beings, human lives - are seen as more or less valuable based on our income and productivity. What is more productive than bringing joy to others?
All life is valuable. All are irreplaceable miracles of God, made in His image and like ness and have a unique purpose in this world. All life is precious.❤️❤️🙏🙏⚘️⚘️
So well said. Everyone brings something of value to the world. This kid brings light and love.
You're 100% right! Creating joy in your own and other's lives is one of the best things a person can do, and Titus does that everyday 💯💯💯
Well said👍
@@annagitana1 These special children bring the best out of people!
Wow, this kid is awesome, and so are his siblings. I smiled the whole way through.
His laugh is just everything, so contagious and so cute 🙌👏
His family reminds me of the Swiss Family Robinson!
Me too! Smiled and cried.❤️
AWESOME Family - so caring toward each other and all living in the Fullness of Humanity. Playing the cards that are dealt to them to the best of their ability and loving it all the best they can. Great Parenting. Titus is a true gift to y'al with many blessings to all he meets along his journey... Thanks for sharing your lives with us what an example to us all (let's find ways to pass on their love to others in some way big or small the best we can)
What a gorgeous child. And that laugh! It fills my heart knowing he will be surrounded by such love all of his life
You are a sweet little boy with a smile that can light up the room, Titus. Looks how happy you make your brother and sisters🥰
Their family seems to have a really good perspective regardless of their circumstances
“You don’t have to have certain abilities or be able to do certain things to be worthy of love and acceptance” - mama PREACH!! My time as an aide and therapist for kids and adults with special needs taught me that school taught me NOTHING about unconditional love and acceptance. It’s a special thing to know and love someone with special needs that words can’t explain.
Titus is adorable and obviously so well loved! Also, his laugh is absolutely contagious. My sides hurt from laughing with him so much. Thank you for sharing his story!
Chris, I want you to know what your channel has done for me. Im aware of so many things now I wasn’t before and I’m a better person seeing these amazing people on your channel. Thank you and God bless you and every person you interview.
Amen! I agree! Same here!
That little guy is simply adorable! He is so full of happiness and joy, and he is loved so much by his awesome family. Brings a smile to my face for sure 🙂✌️
What a beautiful on this child. Chris Ulmer really should get awarded.
Are you saying Chris has a beautiful smile or Titus? Lol
@@peachxtaehyung Titus 😀
@@positivelastaction3957 ah ok sorry I was confused cuz you said what a beautiful smile and then you said Chris should be awarded so I took it as you were saying Chris had the beautiful smile so I was lost 😂
Makes me so happy that he has such loving siblings. You're heaven sent Chris. Thank you for exposing me to such a wide array of individuals.
I love how Chris interacts with the kids and plays with them instead of interviewing the parents and that it. Thanks for putting your time talking and playing with the kids ❤ love you chris
Of course he’s not going to ignore the kids, he was literally a special ed teacher before his current gig…
Titus’ laugh and smile makes me smile so hard, and brings happy tears to my eye. What a cute kiddo
He is so sweeettt! His laughter melted my heart! 🥰
his laugh made me laugh too!
What a wholesome family dynamic. You can really see the pure love they have for each other, and especially for Titus! His smile is heavenly, and for sure contagious! 🥰😁
The answer to "why is Titus so happy?" is that he is well and truly loved.
“You don’t have to perform.” This really hit me as my stroke left me feeling like I’m constantly performing and always get the yips unless I’m totally comfortable with set & setting.
Beautiful mom & son. I wish you guys all the best♥️
His laugh is so contagious! Love this little guy and wish him nothing but the best going forward!
Beautiful family. The mom is one of the most articulate people you've interviewed regarding disability.
Yes I too found her words very insightful!
This whole family has my heart 🥲 Amazing people!
I know a lot of people with paralisis of different kinds, and throughout the whole video I had one huge smile on my face
Chris is so good with every person he interviews. His kindness never fails to make me smile🥺
That sharp inhale laugh is too great I could listen to that for hours, what a cure for my depression, thank you titus
This boys smile and laughter just brought me so much joy. I've been really depressed the holidays and being alone has been hard. But Titus just melted my heart. What a lovely family. Seeing how much his siblings love him and include him in things is just so amazing. And i love seeing chris goofing around with titus making him smile and laugh so heartwarming to see. We need more people in the world like chris because he's an angel sent from above(that's my honest opinion) and being different and having bipolar borderline personality disorder severe anxiety and ptsd i always feel so alone but since i found this Channel a few years ago it's really helped me and made me realize just because I'm different doesn't mean i don't deserve to be loved and don't deserve to be treated as an equal because i do deserve it(everyone does no matter how different you may be or what you look like ect you still deserve kindness💜so thank you chris for making me realize that.
I hope your doing well and feeling a bit better 💕
Chris is so clumsy falling off the couch 🙃 No wonder there were so many giggles!
He need no words, he speaks through our mind, the direct way. Happiness is pure Love !!! Nothing happens without you can notice your own distance to god. God is so close when you let happiness be your guide. 🥰🥰🥰 The boy is like god, pure love. His disease makes it so clear. 💗❤❣
I love when his sister said they pray for him a lot. Bless this beautiful family
Beautiful close knit family- kids are so well mannered and loving towards each other. Titus is so sweet and beautiful
Snuggly, amazing smile, sweet , funny , and that gut laugh is the best!! I can feel the love radiating from this beautiful family. ✝️💜
“You don’t have to perform in order to be lovable” LOUDER FOR THE PEOPLE IN THE BACK 😂❤❤❤
What a cutie! His laugh and joy made my day. I wish every child had such a loving family.
One thing is for sure, that little guy is *always* going to be looked after. The other kids, the parents, they're truly wonderful as is he of course too with his winning smile
I just bumped into an old friend from school last week. He's 62ish. Asked how he's been and he told me that he has this disease. He didn't get diagnosed with it until 10 years ago and he's already made plans for his care. It took them months to figure out what was wrong with him and this is a rare disease. Unless a child has a stroke or something else neurological happens, some are very lucky and don't find out until they're much older.
That precious child is loved greatly and it shows
Such a beautiful family. This little boy is beyond adorable. ❤️🙏🙏❤️
What a beautiful smile!!!
It is true. Titus's smile would crack the most hardened heart. Heaven bless this loving family always!
OMG!!!! That laugh of his is infectious! It just made my day! He is a baby doll!
Titus does indeed Light up the World...what a HANDSOME young man he is and his laugh is simply insatiable...couldn't but help Smiling through this video Chris...keep on helping to Advocate for all the many people you meet, film and introduce to the World💙Thank you💙
His precious little laugh & smile is absolutely contagious. What a beautiful lil guy.
Such a charming, happy, beautiful, and saccharine Little Titus.
Brother made me 😭❤️❤️❤️
Edit: THAT FAMILY IS PURE LOVE AND GOD
Thanks for increasing awareness for Moyamoya. Despite being very rare especially outside of east Asia I already have seen several cases some newly diagnosed with us despite being out of med school only for two years. I personally believe that it is way more common than we think today and I suppose many people stay undiagnosed not getting the right therapy like vascular surgery if needed etc.
Right
I had the bypass for this when I was 14. I just left a comment addressing my confusion because when my mom and dad took me to the hospital, I had months and months and months of tests. Until they came to this conclusion that I had Moya Moya and needed the surgery. I guess I’m just confused how they didn’t get him the surgeries he needed? If they knew about it? Just this whole thing confuses me
@@foolishlyfoolhardy6004 I’m not accusing or judging dude, lol I literally say multiple times I was just really confused. Stop trying to stir an argument 👍🏼
@@foolishlyfoolhardy6004 lol who are you to police what someone comments or to tell someone how to feel? 😂
I understand he had the strokes at a young age but the majority of the patients who have moya moya are that age. I’m not putting blame on the parents. But rather why the doctors didn’t look into it further. Down’s syndrome or not, strokes are not normal. So yeah. I’m still confused why this wasn’t looked into further lol go comment gatekeeper somewhere else love
@@foolishlyfoolhardy6004 lol okie dokie keyboard warrior 😂
His smile and laugh is so infectious! He's such a beautiful little boy and the joy he exudes is amazing.
What a sweet little guy, found myself smiling back at him, so much love in that family.
Makes me cry! Yet Happy that he has a great family! my husband suffered from Moyamoya and had a stroke! Pray that Titus have a great life!
Oh my goodness!! I’ve been waiting so long for you to make this video. I have moyamoya disease too and it is so rare most people have never heard of it. Thank you Chris for sharing and making people more aware. This is a beautiful video. So much love!!💙
Oh, my goodness ❤ what a beautiful smile! Titus is pure light and joy. Such an amazing family..all of them are so loving. Thank you Chris for another wonderful video. Bringing awareness to the world, once again, is so important. 😊
His smile and laugh is really contagious 🥰
I just love his smile
What a sweet and, I have to say, insanely good looking family! And the way Titus laughs when Chris is playing with him is so precious. I was smilling all the way through.
Watching this little man with his brother and sisters was an absolute delight. They are a lovely family. 🇬🇧
I am a minute and a half into this video currently, and I just can't help but have a massive smile on my face when I see Titus's smile 🥰
I'm in love with his smile 😍 But his laughter, that is just so amazing to hear 🥰
This made me smile and tear up ❤
Titus’s laugh and smile is a gift from God. His laugh is soooooooo contagious. I could feel all the love he exudes even through this video. 😘
His laugh is so contagious
His joy is beautiful 🙏🏻❤️
The family is beautiful on the inside and outside.
Chris your going to make such an incredible father.
Chris would be an amazing dad!. He’s so good with kids. And little man is adorable, when he smiled I smiled
This young man has the best laugh ever, brings such joy in the world.
OMG, those eyes and that laugh!! His siblings are awesome🥰🥰
Wow, such a great sibling group these kids make. The parents must nurture a lot of love and respect in their home. BTW, Titus and his brother look like twins. Its so special when you get to see the reflection of yourself with someone that you are that close to. Thank you for profiling Titus and his family.
Parents must be proud of their children. Amazing people
What a sweet family and Titus is such a joyous beam of light
What a handsome boy! His smile is contagious! You guys have such a beautiful family. Sending love and good vibes your way!!!
What a beautiful family...they emulate love 💕
I love how kind and accepting you are to so many different people around the world with disabilities. It’s so sad most people will judge them without even knowing their stories just because they look and act differently then others and need some assistance with things.
Good for his sister teaching people that he is not a baby. He is surrounded by such a supportive family.❤
Thank you all for making my day with this video.
His big smile and laughter is precious!😁💕
That laugh is absolutely heart warming. Brings such a big smile to my face!
His giggles are adorable
What a beautiful little family! Titus is amazing!
Hi Titus, nice to meet you!😊
The way Chris can connect with people is such a rare gift. What a great family. 🤓
I smiled the entire video 💕
There was a moment where Chris looked at Titus and you could just feel the love and enjoyment he was having while hanging out with him. And the Dad playing kung fu, just precious. I loved this so much. Thank you so much Chris.
Titus is a ray of sunshine! His laugh and joy are so contagious. Also, what a beautiful, loving family he has. Just a beautiful video to watch as always, thank you, Chris! 💚🧡✨
He has the most beautiful smile I've ever seen. This whole family is so loving, it's really an inspiration.
That smile can light up the universe!!! Cute little guy! What a beautiful family.
What a sweet boy and a loving family! Titus is so adorable. His laughs and smiles are so beautiful
Titus’s smile and laugh is contagious ❤! What a sweet happy child and such a beautiful family. ❤
What a GOREGOUS little boy ❤
That smile and laugh made my day:) Such a great family LOTS of LOVE!!!
What a beautiful boy. So happy, his smile just lights up the whole world. 🥰
What a lovely video and lovely family, their love for each other is so beautiful to witness
Oh Titus, your smile and laughter brightens up a very dull and foreboding world.
I'm so proud of Chris for doing what he knows is right, even though he sometimes acts goofy. It takes courage to do something like this.
Sweet sweet family. Love how all their eyes light up interacting with him. He's definitely loved to bits ❤️
what a gorgeous kid! Really brightened up my day to see his infectious laugh.
His laugh is so sweet! You can tell his family loves him very much. What a lucky kid!
It never ceases to amaze me how good Chris is with everyone he meets. Especially the kiddos. They always laugh and warm up to him. Love to see it.
Titus put a smile on my face throughout the whole video. He is a beautiful child and it is so obvious how much he is loved by his siblings. What a wonderful family, thanks for sharing them with us.
Titus looks so much like my brother who had CP and brain disabilities. I've spent the whole episode smiling. Thank you Titus sisters and brother and mom and dad for sharing your joy and love.
❤️ when he smiles
What a loving, wonderful family! Titus's belly laugh is just joyful, what a cutie! And Chris, you are such an amazing advocate for all these incredible people!
I'm really glad he has subtitles in his videos, im hard of hearing and can read what is being said so I can understand what is going on.
What a sweetheart! Hearing him laugh so heartily gave me the giggles big time! Wonderful siblings too, lucky family! You're such a handsome dude, Titus, keep being awesome!
What a precious, little man! His laugh is just amazing! His family is quite wonderful ❤