I Have A Magnet In My Head: My Cochlear Implant Story
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- เผยแพร่เมื่อ 26 พ.ย. 2024
- I HAVE A MAGNET IN MY HEAD: MY COCHLEAR IMPLANT STORY!
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Thank you so much for watching and for all your support, you guys mean a lot to me! sending all my love to you guys ♡
Jazzy x
"I sometimes can't be bothered to hear"
even as a hearing person I feel like I can kinda get that
You've no idea ‐ it takes effort to lip read - and when it's just pure crap you get to wonder why you bother...
I’d like to tune down the kids a little bit sometimes 🤣 not totally off because as a hearing person i need to hear what’s going on but just down a bit so they’re a little less over stimulating hahaha
Lol 😂
I got an ad about a cochlear implant before the video lol
and what's with all these likes?
aesthetic anna same
Me too
same XD
aesthetic anna Same😂
aesthetic anna same
The fact that you remember so many details is amazing. You’re such a great storyteller!
I identified myself as a deaf person but I have a N6 Cochlear Implant since I was 4 year old. I only use CI when I’m in mainstream school,interact with hearing peers, driving, and hearing events. I always take it off when I get home from school because I like the sound of silence. I get used to hearing nothing. I use ASL fluently all my life and I use my voice with no problem. But it drives me nuts when people thinks it’s a permanent solution which it’s not. I think of CI as a tool. I love your videos and keep up!!! 🤟
Please help me understand why the ci isn't a permanent solution.
My grandmother was about 90% deaf, and my doctor fears I will also lose mine. It scares me as a songwriter/ vocalist/ musician.
One of my musician friends lost his hearing overnight. He immediately went for the ci. It saved his musical career.
If the ci isnt permanent, where do i go from there? (For now, Im learning ESL from one of my friends... because ASL is too hard...)
I am deaf too and use hearing aids instead of a CI but a year ago the doctor told me that I could get a CI but obviously I was nervous but now I think I wanna get one because it might be better for me than my hearing aids.😊 I became deaf at the age of 5
I couldn’t talk until I was 5. Either my vocal cords weren’t completely developed or I was just too shy to talk
JasonWelchMusic There are people who have had a functioning cochlear implant for over 20 years now. It is expected to last several decades and if you do have to get the surgery redone (reimplantation), outcomes are good. The hope is that cochlear implants can let someone what for their whole life. It’s not really permanent because you can hear only when you wear the processor (the hearing aid part).
I’m deaf
Those 19 dislikes are people who didn’t know what captions were
Edit: y’all are blowing up mah phone plz stop counting lmao
21
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@Iyah Al-Ani oh
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Thank you for sharing your story! I got my implant in '96 when I was 2 years old. My parents were immigrants from Russia, and their thoughts were, "well, she's already deaf - what else can go wrong?" (Also, Free Health Care - Canada!). I'm in a weird place because I identify as a deaf and hard of hearing person, and my friends think of me as a hearing person - not deaf. I think it's because I don't sign at all (even though I can read ASL, as I have communicated this way when I was wee girl), and my parents really worked hard with me to make my speech therapy sessions more effective by constantly practising with me at home (I hated it when they did this, because all I wanted to do was play!!). However, I am so thankful for my parents for pushing through with my stubborn nature and if it wasn't for them, I wouldn't "fit" into the hearing world.
But there is a caveat to this though, people with cochlear implants are not generally viewed as "deaf" people because they live their life in a hearing world, but when they go to sleep or take a shower they take off the hearing aid and then become deaf people. There have been several times that I've slept through fire drills at summer camps, and my camp counsellor would forget about me (and there was a real fire once, and I luckily woke up to the smell of smoke), and imagine how easy it would be for someone to burgle my home? I would sleep through that!
Pros of Being Deaf:
- Best roommate ever (I can sleep through noisy parties, loud noises etc.)
- The ability to switch it on and off if I'm experiencing overstimulation of my hearing (loud concerts, crowds etc)
- Meeting other deaf people!!! Especially others with cochlear implants and trading hearing aids is so fun (only applicable if you have the same implant), and my implant is SO old, 18 years now (1st one in '96 N22, and then 2001 N24 because of internal failure.
- I love using the audio cable (a cochlear implant version of headphones but it's directly into the hearing aid, I can play my death metal so loud and no one knows, or when I listen to cheesy music, like the Spice Girls :P)
- I sometimes lip read people across the room, and learn their dirty secrets ;)
Cons of Being Deaf:
- High risk of losing the implant if you get into an accident, or get it wet (and then you might have to pay $$$$ to replace it or fix it)
- Risk of danger is higher if you live alone - unless you completely "deaf-proof" your home (lights turn & off when someone is at the door, vibrating alarm clock/phone, lights turn & off if fire alarm/burgle alarm is set), and I've unfortunately had to do all of this because I didn't feel safe enough at night when I go to bed because you NEVER know what could happen. I'm currently applying to get a Guide Dog for the Deaf for this very reason because it's just too much of a hassle (and $$$$) to maintain all of the high tech equipment in my home.
- PHONE CALLS ARE THE WORST (I can get by fine most of the time, but there are always those types of voices that I can't understand at all such as, deep coarse voices, or those that mumble, accents don't really affect me that much, it's more of the pitch of the voice and how well they are enunciated)
- It's exhausting being deaf & hard of hearing, because I have to maintain a level of awareness around me if I *have* to listen and understand, if there's a lot of background noise, or a large group of people - I struggle sometimes to follow the conversation, or be part of it because I'm still playing the game of catch up. Instead, I pay attention to what the topic is, and take the time to think of a good pun, and then I'm in their good books :P.
You're doing an incredible job, Jazzy! I wish you all the best! 🤘🤘🤘🤘🤘🤘🤘
I agreed with a lot of your pro and cons. Every well written.
daef hallo dilzo vzl
daef hallo Dilzo vzl
I am hearing but when i put the captions on i feel like im reading a good book watching your videos 😃
Megan Loves Life same!!!
Same!
Hearing your story was so interesting. Me and my brother are deaf too and we got our implants very early. I was about 1 1/2 years old. It was back in 2001 and I was one of the youngest to ever get an implant. I still remember that I had to go to therapists 3-4 times a week. It was awful. As a kid I always wanted to be normal. But now that I'm 19 years old I'm just thankful they did this to me. J can hear with my CI just perfectly. I always went to public schools and now I'm studying at a university. People never realize I'm deaf until they see my CI.
But even tough I can hear perfectly I enjoy taking it off every day. It's the best time of the day when I can put my CI off. It's like taking your bra off. I mean hearing is amazing. But the silence of not hearing is amazing too and super relaxing.
(If there are any mistakes.. I'm sorry about that. I'm from Germany and I would consider my English as good but there is always the possibility that I make mistakes:))
Hey!! This is so cool - I have quite the same story as you, except I'm from New Zealand. I was diagnosed at 14 months and implanted at 18 months in 2002. Tested to have completely 'normal' hearing, no one knows I'm deaf unless I tell them. It's great. I don't really know many other people who are hearing deaf like me, most either more traditionally deaf and signing, have only partial hearing with CIs, or had some hearing to begin with. I loved seeing this comment, what you said about silence also being amazing is so true, and something no one I know can understand. You really get the best of both worlds in this situation. I also so resonate with the just wanting to be normal when I was younger but now that I'm an adult I really feel so blessed to have this 'extra ability', should we say. It's a cool little world we've got here. Also, your English is perfect :))
@@alisonw7697 I can hear perfectly fine, and I can totally understand the appeal of silence. There's ALWAYS noise: from traffic, neighbours, my fridge and freezer, people having parties when I have to sleep and get up early for work, and the list goes on. I absolutely wish I could turn my hearing off sometimes. :p
Hey you three! That's so interesting to hear. Now I'm curious if you only have one or two CI's? I only have one CI on the right side and I have been thinking about it for a while to get a secound CI.
When I watched the video, I was partly shocked or can not understand many situations so far. I am also deaf and was operated (1997) when I was 3 years old. At that time I belonged also to the youngest AND to the first, which could be operated. I wear the CI all day long. In the morning after getting up I put the CI on and in the evening when I go to bed I put it down. Only on some days, I don't wear the CI for a few hours. then I appreciate the rest very much. I never learned sign language. If I had the choice between being able to hear normally or staying with Ci, I would stay with Ci. I find the ability to decide when you want to hear something or not very special. And I exactly understand was Jessi means, with taking off the bra. :D (by the way, I am also from Germany like Jessi)
I only have one on the left side.. when i was younger they tried normal hearing aids on my right side because I'm able to hear very loud noises or when someone speaks directly into my ear. Which is probably not very much 😂. I've also thought about getting a second implant but I've heard that the chances that you can hear with it as good as with the other one are not very high.. so for now I'm against a second one.. it's just so much struggle. Like the operation than you have to go to therapists and so on..
This is so funny, your story is almost exactly the same as mine. I'm also 19 years old and me and my brother were both born deaf but got our implants very early (I got my first one back in 2001, too). I also went to public schools and people never realize that I have implants until I tell them or they see me changing the batteries of my CI. (and I'm from Germany, too but I wanted to write this in English so that people from other countries can understand as well)
I’m wearing my cochlear implant since I was around 18-24 months. I remember I was born as profoundly deaf, I tried to wear the hearing aid and I cannot hear everything (like what you said). Honestly, after my surgery is successful... I’m completely fine and no painful, no memory about my life in the hospital.
Few years later, this the time is most terrible moment in my life - I tried to wear my cochlear implant for the first time... it is extremely electric shock and refused to wearing them (cried everyday!).
Presently, I used my Nucleus 7 cochlear- it’s much better to listen the lipreading and hear everything. It’s suitable for me to use this tool for college - Art & Design level 3 course which I need to hear the noises in the technology, health & safety etc.
Hearing Aids don't whistle as much anymore, thank gosh!
My old ones back in the day used to pick up walkie talkies and police radio 😂😂😂
Mine picked up trains, can you believe?
Thank you! I encountered someone with a cochlear implant and had the overwhelming urge to ask “how does that attach to your head, does it plug into a port? Is there a magnet...?” but obviously that would be rude AF.
I don’t like inundating anyone with questions about however they might be different. I don’t want anyone to feel like a novelty, I want to treat people like, a whole complex person with hobbies and talents and interests. I think it’s got to be very frustrating to regularly be asked by people you barely know, about your visible difference.
But I’m a terribly curious person. I really, truly appreciate when people, like yourself, take the energy to explain your experience, and make it widely available. Knowing someone will have already willingly answered all my questions, at a time convenient to them, makes it easy for me to keep my rude questions to myself, unless I immediately need information about how to accommodate their needs.
It’s funny how the first bunch of science and medical information I found explained the science of how the implant works - yes, yes, that I had been able to guess. But like, “HOW DOES IT STICK TO YOUR HEAD? You can take it off when you sleep, right? Does it get caught in your hair?”, because a person considering getting one wouldn’t possibly want to know these things - in addition to the science and if it might work for them.
So yes, thank you for sharing, and giving me an opportunity to politely stare in fascination at your signing.
My mother just sent this video to me that you are profoundly deaf like me! I have one cochlear on right ear and I sign Auslan (Australia sign language) and I can sign ASL a little bit ☺️ i loves how you very confident and share your story and explains what it’s like being born profoundly deaf. I already love you 💗 I just subscribed you, liked the video and I’m following you on instagram right now 🤟🏼
(Edited: oh and my name is Jazmyn, my nickname is Jaz or Jazzy! We have same name 😄)
i always look at your lips while you are talking and it amazes me that you have a british accent!!! love u ❤️
For people who don’t know sign language:
Turn on English subtitles, you can read what she’s saying.
And then increase the video speed to 2x.
I’ve been fully deaf ever since I was born. When I was two I got the cochlear implants. On both sides. I don’t remember the surgery at all. I didn’t choose to get them my parents did. I don’t like wearing both of them honestly. The hearing world is so loud, and they act like I can hear just like them. They expect me to wear it all the freaking time. But it gives me headaches. Everyone acts like it automatically makes me hear and that I’m just like them. I like being deaf. I like the quiet. I wish my family would understand that.
Fire Fly What do you mean you can’t hear like them?
I’m a speech therapist working in a school with deaf teenagers so it is really interesting to hear your story because I feel I don’t understand what it must be like for my students.
I got my implant in Dec 2016. Activated Jan 2017. I had that shock feeling you talked about. Im now 51 and still working on being comfortable with it.
Id really love to see how you talk with it on in a video and talking about the first things you heard and what your reaction was to being able to hear xo
She has a whole lot of videos.
I nearly fell asleep of how satisfying the tounge taps where😂😂THIS IS ASMR TO ME!!!!😂
Legends say Jimin is still looking for his JAMS so I’m not the only one who thinks her voice is asmr worthy
Same 😂
I slept and I was surprised on how I just slept like that lmao 😂😂💀
AHHH this is the type of CI video we all need - not those compilations put together by hearing people that pathologize deafness. Thank you for being so honest and frank about your experience!
She explained her experience and preference really well for me as a hearing person! I’ve been curious about what the pros and cons are from the perspective of someone who has hearing loss. As a hearing person it seems obviously beneficial but that’s just because I’m accustomed to living with hearing
I just found your channel and am really enjoying your videos. I’m not deaf but when my cousin and I were teenagers, we spent a lot of time learning ASL (it was fun and we thought it was neat to have a little secret language between us girls, lol). It was fun because for a time we got to the point where we could have nearly full conversations in ASL. Sadly I have forgotten a lot of it (this was in the mid 1990’s and long before this wonderful world of endless knowledge and connection with other people on social media and you tube) but my cousin had a friend whose grandfather was deaf so she got a ton of practice and got better and better. Today my cousin works as a dental assistant and she said recently they had a deaf patient come in and the lady was really happy that my cousin was able to talk to her in sign language. :). I think your videos are inspiring me to pick up where I left off. I also always wondered how those implants worked so this was a very interesting video!
I'm hearing but my ex ASL teacher would tell us about her thoughts with cochlear implants and she would occasionally tell us that she never wanted one and to be completely honest, this video helped me understand her reason so much more and I am so happy for how your life has been even if it is hearing or non-hearing, because it doesn't really matter and it's your life and you're living it. Thank you so much for what you do!
Wow, before this vid there was an ad of how someone gets deaf by the ad MED-EL
By missing lots of hair cells are lost, so choclear implant may men the best solution
I got an ad for it which explained it, still will watch your video since I came here for your video and not for the ad haha
I've had 5 operations, (for hernias and appendicitis) and not once did I see the surgical equipment, god that must have been terrifying!!
Hello from across the pond!
I just came across your video. Thank you for sharing. I’m 68 and getting ready for my first CI next year. Born HH but didn’t get my ha until 28 yrs old. Oh the sounds that I heard!! So many advancements have been made over the years. My R ha isn’t doing anything anymore I can’t tell if I’m wearing it or not. Now, medical research are saying if you don’t wear your ha you can develop dementia which I’m scared of since it runs in my family. But mainly I want to be able to hear once more. I can also understand why you enjoy the peace and quiet it’s been our way of life. Thank you for sharing and you have a new subscriber.
I was born profoundly deaf in both ears - the deafest you can be. I was diagnosed when I was young and have cochlear implants, allowing me full access to sound. Thanks to them I have been tested to have 100% 'normal' hearing. I could never imagine signing or living a life without sound, it is so interesting for me to learn about your life and story - one I feel so connected to yet so disconnected from as a hearing deaf person. Thank you for sharing!!
I enjoy watching Jazzy's videos. I miss my dear Uncle Mo who was deaf and passed away several years ago. He was fun and funny but he also was a big deaf advocate. He knew ASL but he could also read lips. When he used his voice, I was the only one able to fully understand him. We could even talk on the phone. He would speak to me with his voice and I would answer by typing on my TTY to him. We had a great method because he typed so SLOW! Has anyone else done that? Thanks for your beautiful humor and personality Jazzy. As a hearing person now I get to watch you with the captions turned on! Big hugs!
Super well done to you! I was born deaf and my family completely mismanaged my 'disability'. I hope you keep your positivity and your vids. You deserve millions of subscribers. Good luck for 2020!
I remember an old mate of mine back in the early 00s when Cochlears were different, well she got stuck to a fridge, poor thing, I hear (pardon the pun) that the magnets are very sensitive 💖 the batteries are insane haha, 3 at once!
So I've read a lot of the comments and wow. I've never thought that deaf people actually like having the option of being deaf when they feel like. Ps that hair colour suits you soo much
oh shit i started falling asleep to this bc it’s almost like asmr and then she SNEEZED and i got so scared
The beautiful thing about sign language is that it so much more vivid than spoken language. You talk with emotion, I can really see 9 (was it 9?) year old you in front of my inner eye with all her emotions and everything. I live for that!
I am deaf in one ear and pertly deaf in the other. I stumbled apun this channel, and wow! Thank you so much! U inspire me very much.
I enjoyed your video. I am severely profoundly deaf since I was 18 months old from my illness. I was born in 1959. I never remember able to hear, but only sound awareness with hearing aid on with no more than 5 feet away. I went to Atlanta Speech School in Georgia USA to learn how to speak and to lip read fluently. My parents have tried their best to raise me as hearing person...I went hearing school at age 9, but I started going to private deaf school at age 2. I learn how to speak with the mirror to look at lip movements, hand touch on throat, to feel the air coming out from my mouth... It was hard, very time consuming work. So I have never went to regular deaf school to learn sign language because my parents feels that it could ruin my abilities on how I could speak or to lip read. They have spent their “fortune” on that private Atlanta Speech School that has been very deep focusing on training deaf children to learn how to speak and lip reading normally as possible. So I have never grunted or anything what other deafies could have done because of their training me how to recognize It. It have fooled many people at first that I am deaf til they heard my voice was “different”. So, I have never learn sign language til I was close to 30 years old. I discovered that sign language came naturally for me that i learn it very quick. I had my CI when I was 38 in 1997. I have been so accustomed to hear nothing for very long time. When I begin to hear everything with many awesome sounds like piano keys with every pitch for the first time, I was floored. Gosh, it was so new to me and it made me sick to my stomach to hear all these sounds for first time has been so overwhelming. I couldn’t believe what hearing people normally hears and it was so crazy, It was love and hate relationship with CI. The other reasons why I hate it is because of electric shock like you said....and I get dizzy spells when I “hear” when it was switched on....then again dizzy spells when I “deaf” when it switched off. It was very annoying. I am hairdresser that I used to own hairdresser business for 15 years...then sold it because I find being as self employed to rent a booth was much less stressful and more freedom. I still working on hair for over 40 years....so with that constant sounds with other hairdressers using their equipments have always distracted my work. So I decided stop wearing them few years ago because it was so annoying that I can’t block these sounds. I really enjoyed peace and quiet because of the way I was growing up all my life in silent world. It feels natural. I have no regrets for having CI because I can enjoy the sounds whenever I feel like it. Now I am 61 and I am very fortunate to experienced to hear these sounds ... that it was really amazing experiences. So with that being said, I am able to live both in deaf and hearing world. Hearing aid has been very useless for me, so with this amazing technology of cochlear transplant that were able to help any severe deafness people just like me....that it can help me able to hear sounds that I never have heard before. So, aren’t we that lucky to have CI to experience it? 👍
In my school, there is a girl who is deaf. She has hearing aids. In sixth grade, we had an awesome social studies teacher. We were not in the same class, and we didn’t really know each other. But so my social studies teacher had been through some rough stuff, as he lost a kid. Towards Christmas time, he gave the deaf girl money to get a better/new set of hearing aids. He changed her life.
Thank you so much for the accurate captions!! I’m HOH and interested in learning ASL I know many small signs and can communicate effectively with my boyfriend but having captions on ALL videos and movies helps me feel like I am there with them! You have gotten yourself a new subscriber you’re funny and super adorable
I really love this video because I’m deaf too but I was lucky enough to hear and this finally like answers all the people that keep asking me about the magnets in my head but the difference is I got mine at 9 months
What an amazing story! I love how honest you are about it. I'm glad you get the opportunity to hear when you wish to, and can stop when you wish to.
I am 15 right now and I also have cochlear implants . I've got them when I was 18 months both years and then speech therapy for 7 years .. and I'm very blessed to have them and I can see you are .
I had my cochlear implant since 3 years old and now I’m 19, the journey has been stressful but I’ve made it through. You did so well 💜 I have met many deaf people also I went to mainstream school so it doesn’t bother me. I feel proud of who i am 👌🏻💪🏼
Can you hear everything now with that implant and the new "tool"? 😊 i am just curious. Thank you.
Luiza only background noises I believe
I have a cochlear implant too and I used to do sign language too
She is soooooo pretty and her hair is soooooo cool and I love how she shares her stories with everyone in a way that all people can enjoy it even non-deaf people
Hey! Love your videos, my son is 13 months old and is learning BSL at nursery. I know your audience is mainly young deaf people, but would you ever do a video of basic signs that someone like myself could learn? I’m absolutely fascinated by what he’s learned already (hello, goodbye, more please, milk, mummy & daddy). Xx
Thank you for your story in BSL cheers I’ve just has MRI and CT scan. All passed. I’m 45 next month. So your information is useful cheers
My friend has these implants as well! I have learned a bit of sign language to be able to communicate with her, and she’s always teaching me more!
When I was born I had this rare thing on my head that could cause skin cancer, when I was 10 it started hurting me a lot. My parents took me to the doctor and they told me I was starting to get the cancer and that I needed an operation soon to get rid of it. I was so scared, when they took me into the operation room I couldn’t be with my parents but I had my favorite stuffed animal with me, when they tried to put the gas mask on me I got scared and freaked out, I started crying, than they let my mom in and she helped me calm down (this was not a kids hospital) the next thing. I remember was crying waking up because my head so in so much pain, originally I was supposed to have 2 operations but the doctor did 1 so it hurt so much more.after a week I went back to school but I had this giant thing in my head that looked like a Mickey Mouse ear. People made fun of me for it but my friends stuck up for me.
I have had severe/profound loss for about 5 years, and I know exactly what you mean by not wearing your implant, just having that peace and quiet is amazing! I have a 3 year old, and sometimes when he throws a tantrum, I turn my aids off until he cools down lol!
I love this channel it’s like you gathered the whole deaf community and like making a BIG conversation with each other!!
1:55 when she sais bless me 😍😍love her
I work for a company that is a telephone service for people who are deaf and hard of hearing. I repeat conversations into a system which then translates it into a script that is shown on the client's phone as text.
That was fascinating! Thank you for sharing your story with the cochlear implant, I feel like I understand so much more than I did before I clicked play! And I like that I have to pay more attention to your videos than others. Thank you 😊
I wear CI right now and they are amazing! I am fully deaf and I had these when I was 2
Wow, this is so damn interesting😍 I love your vids, they’re amazing!!😍👍🏼
To think you were getting an electric shock as a child every time you turned it on, and not being believed too, is frightening. Thank God your new one is not a torture device like the old one.
I think it is perfectly fine to have or not have the operation some are very against it which is understandable because they are deaf and proud they have their friends and life and are happy. I hope technology keeps on getting the coclear to do better things regarding hearing, it is obviously not perfect yet maybe one day though it will be better.
I don’t have an interesting story like you but I love your story! I just think you are so amazing and deaf people really inspire me. I am hard of hearing but am able to hear when I have my hearing aids in. I can hear lots of sounds but I have trouble hearing what people are saying if I don’t have my hearing aids in. I am actually learning asl right now because my hearing doctor said that my hearing is going worse over time and it could get to the point where I can’t hear really at all, but she doesn’t know for sure. You inspire me so much, you guys you are completely deaf work so hard to communicate with others and it’s so amazing! We didn’t discover I was hard of hearing until I was like 10 years old but I could never hear as a kid but my mom didn’t think anything of it, she thought it was normal until we finally got my hearing test done. I know this video was made 3 years ago but I just needed to share. I hope you have an amazing day and I just subscribed, can’t wait to watch more videos of yours!!
10:18 made me say "awwww" mentally, such a cute picture
It is a lot to learn having it to where you are hearing. Your family is really involved with you so you dont feel isolated or left out.
No I don't have cochlear implant. I have hearing aid because I am not fully deaf. I used to hate it while I discovered that I was deaf but then I started to think that it the also best gift for some people. Also I don't sign like you. But sometimes I act while saying something. I am so proud that I am a deaf. I have hearing family they totally support me. I have one older brother. We are 9 years apart. Anyway, I love your channel. You teach the people better. Now I am getting nice feeling about deaf after watching couple of brave deaf people TH-cam channel like yours. Thank you... I am 13 by the way.
Love your story, but I wonder, didn't they tell you in advance that the initial recovery might be tough, what to expect, etc., and it would go away later? That helped me, knowing that i would feel dizzy and nauseous at first because of the surgery process. I was older, and got it because my HA was no longer helpful, and I wanted better sound. I lost my hearing around are 2, got hearing aids at 4, CI in 2014, I was 57.. Still can't hear many words without looking, and can't talk on the phone anymore, which is sometime a pain.. But NO regrets at all.
Do you only have one?
Yeah, I've only got one on my right side :)
Left side here!
Very interesting story! I got my Cochlear Implant when I 2 year old, still wearing now. Always my first language is BSL! ☺️
I got my surgery on my right ear when I was 1 yr old and have had the cochlear implant ever since. I never learned ASL since my family is hearing, but now I’m trying to learn and involve myself in Deaf culture! I find myself not using my implant often when I’m home and not interacting with others since it’s more comfortable and gives me a chance to breathe, so I understand when you say it really depends on your mood!
I work in a preschool that takes in children with hearing loss but have been fitted with hearing devices (so either hearing aids or the various types of implants) and it always astounds me how the children bounce back so quickly from their surgery and it's exciting when they slowly pick up more sounds and also verbal language as they get more used to a noisy world (:
You said Boys are lucky to wear CI easy because of the hairs... I don't think so... Girls are the lucky one because we don't see CI on Girls but Boys, yes like me, I have no hair lol. I use a hearing aid for now because I can hear the sound but not perfect. If I couldn't hear, I get CI
Matthew Pace I feel like it’s easier to put a magnet on short hair than long hair. The long hair puts more weight on the magnets. Also- be proud of your devices, nothing embarrassing or shameful about wearing a CI or HA
this is also very stereotypical and kinda sexist. Not all girls have long hair, neither all boys have short hair. but i know what you mean, i - as a person with long hair - also struggled with those issues, when i wanted to tie my hair - i felt ahsamed. But as i got older, and as i got more mature, i realised that having an CI or an hearing aid, ain't something anyone should be ashamed of. I feel like it's a part of me, it's a part of my life and i'm pretty thankful for having them, so why gonna be ashamed of them? It's been a long process though, to fully accept them. But i've managed it, i don't even think of them being on my head. It's just gotten so normal for me.
@@user-jc9cj3tq1e Absoulety true
I really don’t think that ur gender determines ur hair cut. I’m a girl with short hair.
ungeplant oh shut up. It’s not sexist to say that girls have long hair. Obviously not all girls have long hair and not all boys have short hair but in general they do. Even girls who have short hair tend to wear it slightly longer than men
its my first time watching her video, and i was wondering what nationality she is but as i watch her talk i had a feeling shes british bcs of how her mouth moves when she pronounced some words and i was right! when she said shes having her operations in london 😛😛😛
I have a cochlear implant too. For 27 years now, I've been fight and struggling with that every single day! Back when I was like 4 months old, I got really sick and doctor told my parents that I'm deaf. And I had operation for that when I was about 2 years old. My first time hearing, I cried so much because I hated it! Now, I am 29 years old and still wearing it every single day, non-stop.
You have a pug too! My pug is called Winston! Awesome video. I’m new to your channel but I already love your videos. Keep up the good work and thanks for educating me on these issues.
Oh the electric shocks! I've had my CI's for about 2/3 years now and my right ear is so troublesome. Many trips to the CI clinics and they're still not sure what's going on. But it is a massive pain and I remember after one adjustment, I cried so hard from the pain as it felt like someone was stabbing a sharp knitting needle in my ear
I'm impressed that you can remember so much about that day because I remember so little of mine. Then again, I hate hospitals, so maybe that's why. XD
Before you, I have never heard anyone having an electrical shock from their CI. I've had mine since '95 and not once had I receive a shock. However, I've been experiencing an annoying issue recently (developed about 6 months ago). I've been hearing statics/distortions, and my audiologist couldn't figure it out for nearly a month. We tried adjusting the sound mapping, exchanging parts of CI, changing speaker covers, to no avail.
After all of that, I started taking notes of the occurrences of statics. That was when I noticed a pattern: stress was affecting my hearing. I've never experienced this before, so my stress level must be higher than I expected. XD My poor audiologist has been banging his head against the wall for a month before we made this discovery. He was like, "Haha! That's what it was!"
Okay I have a true story coming about my cochlear:
My mother got sick whiling she was pregnant with me, then and I was born!
However at birth, I was born with a severe deaf ears.
My parent didn’t know about it until I was around one years old.
I got my first ear surgery when I was a newborn. However....
I have a few ears surgery because my left ear was failing.
And the weirdest part, I remember as a baby when I got my surgery. That was the only memory as a baby.
I used to have my first cochlear with me over ten years until it took it last breath....
Pretty depressing. :(
As a sight-impaired person who really has to put a lot of effort and into trying to see, which can be exhausting, mentally and physically, and can cause me pain if I push myself, I can relate to how you feel about not being bothered to hear. If it's not what comes naturally to you, then it means you have to put that extra effort into to experience it, and it's draining to the point where sometimes it really is much easier to not go that extra mile unless it's for something you really need to do. It's not the same, but, at the same time, I can relate it.
I'm here because I'm working on various writing projects, two of which involve D/deaf characters, and one of them has a young child who has an implant. I've researched over the years as I've planned this story and learnt a lot of things, but nothing quite beats the first-hand experience of someone who's lived it to make the facts come to life and the character with it. My character's experience isn't the best, to start with, and I'd decided that once he'd had the time to learn how to cope with it better and find he gets something from it, he struggles to wear it when he's asked to and so on and so forth, and I guess hearing your story kind of backs that up, that it doesn't work like magic, it's not a 'cure', it's an aid, and you only get out of it what you're willing to put in. So, to me, this video was really informative, insightful, and I hope it helps me to create a better character. (The story isn't about the child being D/deaf, so I won't write about the experience like it's mine to tell, but getting the basic gist of how it will go will play a huge part.)
It's also been really nice to hear someone else's experience in the world, not just for my own research purposes, but to connect with a group of people I wouldn't otherwise have much opportunity to, partly because I only know bits and pieces of BSL, and because meeting random D/deaf people to share experiences and stories with doesn't just happen even if communication was possible. So, thank you for sharing, really, I guess, and I'll look out for other videos from you. I would love to have an even better insight into the world of a deaf person, and maybe I can learn something.
Is it jut me or i feel like in some situations being deaf is cool or good
How is she so freaking pretty like I am fascinated by her
Personally, about the hair situation I personally put it underneath my hair and I have pretty long hair - I hope this helps!
I had my cochlear implants since I was like 3/4 years old, and I never knew that is what went inside my head (5:56). I am confused, because I used to have hearing aids, and I thought that is what people used when they are partly/mostly deaf (I am completely deaf). Recently, I have been thinking about how I am even able to hear with a piece of metal that was implanted inside my head.. It's strange.
i had an operation on both of my ankles when i was only 6 years old and i could totally relate to a lot in this video! it’s nice seeing someone who had a similar experience as me at such a young age:)
Aww Jazzy I just found your channel and I have been watching your videos for two days! Thank you for the content, it is really interesting to hear your experiences as I don't know any deaf people but I would love to learn ASL! Subscribed! Greetings from Finland! ☺️
Jazzy actually uses BSL (British Sign Language) in her videos! I know some ASL but I still need the captions because they're different languages, though it's cool seeing where they overlap in syntax and vocabulary!
I just loss complete hearing in my left ear and I have little to no hearing in my right ear. I can talk normal but I’m so nervous about my CI implant...I’ve been dealing with this since August 2018. I used to be sooooo bothered and sad about my hearing loss but now I actually am used to it lol never knew I’d like silence as much as I do now. I just hate when I’m enjoying my silence and I have 101 people trying to talk to me at once . This vid really helped me even more with this hearing loss. When this Corona Virus Pandemic goes but I’ll then have my surgery. Wish me luck!
I'm so happy to watch your videos and gain more knowledge. My son is deaf in one ear and we are trying to get a CI.
im watching this because i had the operation today and i wanna know what happens and how it is helpful so yeah thanks for sharing
Also im having N7 too!!
I had that Club Penguin DS game too!! I got it for Christmas one year.
But I have a Operation like your when I have 3 age and first hearing with implant maybe 4age I really don't remember so yea that crazy I'm was too young 😅 so I was born 100% deaf, and implant apart really helped me, Im so good at speaking, hearing carefully, and of course I know sign language! I love yours video!
Sorry my bad English
''I felt like what if i die'' hahaha this is how I felt when I did the head surgery because of my accident, anyway, I really liked your video, you have my respect.
I have it to on both ears it helps me a lot but I had it since I was a baby and I can talk normally I don’t use sign language
My sister got hers when she was 5
I love your videos! 😍 I have hard hearing, so in fact I don't need the sign language, but your videos gave me motivation to start learning sign language. I hope I can learn this form of communication and later I will be able to understand understand deaf peoples. Your videos and positivity are amazing. Thank you so much Jazzy! ❤️
Thanks for your story, I got my first of two Cochlear Implants fitted a month ago in Melbourne. So far so good. I have had 4 visits back there since for adjustments etc and am finding it better each time. Still a long way to go but I am so happy that I made the decision to go ahead with them. Oh and by the way Jazz, the magnet is on the outside, not the inside lol.
I have 2 cochlear implants too!!
I have 2 magnets inside my head! I have seen my x-rays throughtge Ct scan and it looks weird but wicked!!
It all started when I was 9 months old...
I was 9 months old and I collasped on the floor so my parents rung 999 and lots of ambulance came with blue sirens, I was rushed to hospital and they diagnosed me with Pneumococcal Meningitis which is a virul illness that swells a layer around the brain and the spinal cord. The docs and nurse said if I didnt go hospital within an hr, I wld of died! So I was very lucky. However, I have lost both of my hearing and I had my 1st operation when I was 2 yrs and a half.... I absolutely hated it because my hospital is in London where it is very noisy! My second cochlear implant wad done at the age of 11 yrs and a half and I also hated it because I am so used to my right side of my ear with cochlear implants, and now a new level of hearing inserted in my left ear. It was not comfortable! I am now 16 yrs old and loving my upgrade cochlear implants! U used to have "Nucleus 5" cochlear implants and now I have "Nucleus 7" which is 10x better than my old ones... my new implants is Bluetooth, wireless, waterproof and many more good things! I love it. I also do Sign Language and started learning at the age of 10 months! I do BSL which is British Sign Language and I can do a little bit of Macaton. I can do SSE which is full English and I can do a bit of ASL which is American Sign Language. I am also oral spoken!
I love your videos Jazzy!
I have cochlear implants, I definitely would consider, for anyone who is thinking of getting them, because they have made such an impact, I can hear freely. It’s really helped in school, especially with my Roger FM. (P.S I entered an NDCS film making competition on why my equipment is interesting! I had heard you from the NDCS magazine,) I don’t know if you do too, but whenever I go for an appointment with all the sounds, I feel awkward, like, do I press the - *SSSSS* oh uh... heh...
I just found your channel. You're a beautiful young lady, and I can imagine you really was scared about your operation. I wish you a great life with lots of love.
I see the advancements in the technology. It’s amazing. You do really well with it. I like the fun games you guys do. I am hearing but but have lost some. I am wondering is I go thru losing hearing what will I need.
wow i just realised that i've got my first cochlear implant when i was 5 years old, today i'm 17 years old & i got my second one when i was nine/ten years old (i'm not sure haha) - i just know that i asked my parents if i could have a second one haha. firstly, my mum wasn't happy with that, because i had some complications after my first operation, but the second one was without complications! :) today, i'm really happy that i'm allowed to hear things and to talk with other people :)
is it just me or does anyone else like when she mouths the words and little noises come out? i just think it’s satisfying...
For me it feels like ASMR. I got tingles because of the mouth sounds 😅
Are you getting another one yet ? I have 2 cochlear implants too! I hope you will!
I'm not deaf but one of my American girl dolls has hearing aids. I was also thinking about learning ASL and becoming a sign language interpreter, as there is a deaf woman in my church who has one. I think it's really cool and I would love to help people! Do you know any books/websites for learning sign language?
I would like to hear some recommendations about asl learning too! Thank you ~~~
Never wearing a Cochlear implant. I useful wear hearing aids all the time.
RD same
After the video I got an ad for a cochlear implant lolol
My friend has a niece (me and my friend are kids but her big sis has a kid) and her niece has a implant and it’s so cute when she runs around sometimes it will fall down but then she just picks it up and puts it back in ( she is 5 rn)
Love how dramatic the caption is😂
fellow Deaf TH-camr here😊.
Totally gonna start signing in my videos ,
Love your vids Jazzy💛
A girl the year above me in school had/has one. Hers was a chunky black box which she decorated with heart stickers. No idea about nowadays