MMN - "The disease of 1,000 paper cuts": Pamela's Story
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- เผยแพร่เมื่อ 31 ม.ค. 2024
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Thank you for sharing your story and helping all of us rare ones feel just a touch less rare and crazy.
Great job, Pam!! ❤
Thanks Susana!
Exactly me. All I’ve ever gotten was an idiopathic neuropathy
Hay dear,
So glad u get a diagnosis
I have the same symptoms for four years now,no diagnosis yet
My foot is drop and my wrist drop ,i cant grip things because i have weeknes in my hand it's affecting all of my left side
and progress slowly.
The doctors understand that something going on but thay dont know yet unfortunately.
Today I'm using a kane.
Bless you. You describe me to a “T”. Both left leg and wrist. No diagnosis since 2007
Which muscle was affected in your leg? How fast was the onset of your symptoms?
For me, it was really gradual. Started in hand and a year later I started limping. Atrophy in calf and weakened ankle. All on my right side. Everyone is a little different.