MMN - "The disease of 1,000 paper cuts": Pamela's Story

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  • เผยแพร่เมื่อ 31 ม.ค. 2024
  • To learn more about MMN, GBS and CIDP, please go to:
    www.gbscidp.ca/
    / gbs_cidpfoundationofca...
    / gbscidpcanada
    #mmn
    #multifocalmotorneuropathy
    #cidp
    #mmnawareness
    #livingwithmmn
    #mmnsupport
    #mmnadvocate
    #patientadvocacy
    #plasmapheresis
    #mmnwarrior
    #gbs
    #invisibleillness
    #autoimmunedisease
    #chronicillness
    #IVIG
    #ivigtherapy
    #gbscidpfoundation
    #gbscidpawareness
    #peripheralneuropathy

ความคิดเห็น • 8

  • @cstucker
    @cstucker 2 หลายเดือนก่อน +2

    Thank you for sharing your story and helping all of us rare ones feel just a touch less rare and crazy.

  • @susanamolinolo7112
    @susanamolinolo7112 3 หลายเดือนก่อน +1

    Great job, Pam!! ❤

    • @phiguchi7889
      @phiguchi7889 3 หลายเดือนก่อน

      Thanks Susana!

  • @stevejackson4136
    @stevejackson4136 หลายเดือนก่อน

    Exactly me. All I’ve ever gotten was an idiopathic neuropathy

  • @ettiidan133
    @ettiidan133 2 หลายเดือนก่อน +1

    Hay dear,
    So glad u get a diagnosis
    I have the same symptoms for four years now,no diagnosis yet
    My foot is drop and my wrist drop ,i cant grip things because i have weeknes in my hand it's affecting all of my left side
    and progress slowly.
    The doctors understand that something going on but thay dont know yet unfortunately.
    Today I'm using a kane.

    • @stevejackson4136
      @stevejackson4136 หลายเดือนก่อน

      Bless you. You describe me to a “T”. Both left leg and wrist. No diagnosis since 2007

  • @dalenesbitt
    @dalenesbitt 3 หลายเดือนก่อน +1

    Which muscle was affected in your leg? How fast was the onset of your symptoms?

    • @phiguchi7889
      @phiguchi7889 3 หลายเดือนก่อน

      For me, it was really gradual. Started in hand and a year later I started limping. Atrophy in calf and weakened ankle. All on my right side. Everyone is a little different.