Come sit with me while I describe the rarities my daughter was born with, how they have affected her life and why we call her Bella Brave. #bellabrave #medicalstory #raredisease #medicalmiracles
Thank god you live in a country that you don’t have to worry about going broke from medical bills. I have to think that plays a role in this miracle. My American brain was instantly stressed about the financial implications of her life saving treatments. You are an amazing mother.
I’ve watched your videos with Bella. It looked like you gave her such a great life while you had her those short ten years. God bless you and your family 😢
I can't believe she had 3 disorders.This is really sad when I found out about it I busted out in full tears. I'm so sorry for your lost.She was a wonderful happy girl. Rip Bella hope you have a wonderful time in heaven fly high and keep watch on your family they miss u so much. Now I understand why u haven't posted in months
RIP baby girl watching this brought me to tears. She was/is such an inspiration to the world. Strongest person I've ever seen. Big hugs and love to all her family and friends
rip Bella you truly brought smiles to millions thank you for making your mom smile while going through her hardest time you are an Angel Bella. my condolences 💐
I feel so bad for her. She must’ve been a great person. Thank you. We all bless her today. I’m so sorry that she had to go. I’m so sorry that you had to go through all that and she had to go through all that God bless her. she always be in your heart.😭😭😭❤😭😭
What a beautiful spirit thank you for sharing Bella story she has inspired me especially through depression… god continue to wrap your arms around this beautiful angel rest in peace Bella🫶🏽🙏🏽🕊️💜💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕
Kyla thank you so much for sharing Bella and your family’s story. She really is a miracle and the bravest gal out there! I’ve been following you guys for a while and it was so interesting to hear your full story in detail. It just further proves how incredible Bella, you and your family are. Thank you for shedding a light on some of the ways society is lacking in accessibility. As someone who works in the field of mental health it really opened my eyes to ways I can implement accessibility into my work and my life more. Sending Bella, you and your family so much love right now! Thank you for sharing your story.
I believe this young lady was brought in the world to show the power of the kingdom of God. What are the chances to be born with 3 rare diseases and the rarest form of each?? 😮 And to overcome so much as she has- the enemy had it out for her, but God has an amazing plan for her! What an honor you have to be the mama of this little wonder! She will do great things! This life has many troubles, sufferings, and heartaches- one day Jesus is coming back and God will remove it all! I look forward to the day this little angel will be 100% free from the cruel sufferings placed by Satan on this earth- but until then, she is an incredible example to us all- that we can be victorious in the face of terrible hardships, day by day, and moment by moment. God bless you all abundantly.
I found episode of her birthday about 2 weeks ago. I watch it at least 3 times each time I watch it. Which is at least 3 times a day. What a blessing she is. So sorry for all family members loss
RIP to Bella 🕊🙏🏾😞..She definitely was a fighter and beautiful spirit. My sincere condolences to the family and friends. What a testimony, I know no more fighting and pain. …
My niece actually has all 3 of the diagnoses as well! Her story is so similar to Bellas and they could be twins! This video caught my eye because I thought it was my niece at my first glance, and i am dumbfounded that there's another beautiful girl like our Evee! And their personalities are identical! God gives them the spunk and fight to make it in this life! Im terribly sorry for your loss of beautiful Bella! My niece will be 19 this year and is baffling the medical community! God bless you!
I know this isn’t related to the video but please pin this message. On August 16th we are going to spread awareness about Bella Braves story. To honour her we are going to wear her favourite color pink on August 16th or copy LLBB on videos related to Bella Brave but either way to honour her. Bella was diagnosed with cartilage hair hypoplasia,scim and hirschspurngs disease. Cartilage hair is one of the rarest forms of dwarfism. Hirschspurngs is a bowel disease, and scim which is a very rare disease that messes with her immune deficiency. Bella Brave unfortunately had the most worst and rarest form of each disease which was very hard to diagnose her. She had 6 surgeries when she was born. She stayed in the hospital for 2 years right after she was born with her mother. Bella brave had to have a bone marrow transplant which is one of the treatments for being born with scim which is basically no immune system. Bella brave braved through over 30 surgeries at only 10 years old. Her sweet little soul stayed with her throughout her life. Even on the way to an surgerie she made the funniest joke EVER. Bella said “ Knock Knock.” Mum replied “ Who’s There?” “Bella” “Bella Who?” “We Are In A Bella-Vator!😂😂😂 At only ten, she was put into a medically induced coma and she passed away peacefully. Please copy this and spread this.
Thanks for sharing. I found you guys on tik tok a few years ago and then gave up tik tok. I was so happy to find you on Instagram because I love her personality. Your family is an inspiration and I admire both of your bravery.
I spent a good few nights at the hospital while my dad was sick with cancer, and my mother went to see him rvery single day of the 125 days on the dot before he passed away. The spirit Bella has, the bravery, the everything...its so unheard of when youre in and surrounded by that situation. I was thankful my father was brave, but it really felt like he was the only one in that hospitwl who had people visiting him because they wanted to, not out of guilt or because theyrr forced to. I feel terrible saying that, but its true, just based on how these people seem to be sround their sick loved ones. Even if its overwhelming grief, sometimes you need to oush and show a smile and put the best effort into keeping an amazing attitude. My father may have passed, but i am grateful we stayed positive the whole time. We definitely are human and had moments of ssdness and grief, but its having the ability to still joke sround and talk to my sick father like everythings fine, but still able to acknowledge the fact it isnt all fine. Sorry if this is a big ramble. I feel so many dont see the effort YOU put in with bella. Youre her mother. I cannot imagine how it feels to see her pushing through this with such bravery. You must be so proud. But understand, i know how mentally/emotionally exhausting it can be to go through this. For both of you, and the rest of the family too. Keep being you tho, bella too. You are both amazing, and people that we need in this world.
She is an incredible mom through years of caring for and minding her daughter. It's a lifetime of commitment being a mom. Don't forget about the father, he is very much involved with the endurance and finance, of course, for their daughter's illness. God bless this family.
If I could sit down and chat with anyone, dead or alive... I would choose BELLA!! She is wise beyond her years. Has moved every mountain that got in her way. And is now on her way to climbing mountains with her bravery, strength and SaSsY attitude. #BellaBrave
Soy mexicana y como mujer te admiro por ser una gran madre valiente y a bella que puedo decir esta lleno mi corazón de tanto amor hacia ella es una niña muy inteligente es un pedacito de vida hermoso un gran milagro como deseo de darle un abrazo con todo mi cariño se ha ganado mi corazón y el de muchos estoy segura ❤mis bendiciones para ella y su familia dios me de la oportunidad de conocerlas ❤🙏🙏🙏Dios los bendiga mi hermosa bella .
Dear Lord, please help this sweet little angel to heal and give her a miracle. Thank you for her life and bless her so abundantly, watch over her wherever she goes and let her know that she is so loved by so many people. We love you little Bella 🩷
Thank you for sharing this I have followed you guys for a very long time and supported you through prayer. Viral hugs and kisses. I always wanted to know the full story and I didn’t ever want to ask so I appreciate you explaining it. Thank you so much and I’m so proud that you guys are on a positive journey forward now lots of love from Canada.
My heart goes out to you and little Bella and your husband. What a blessing Bella is to you, even though she has gone through so very much, she is a soul lifter for you❤. This side of heaven will give us no answers to why things happen, but true, forever love conquers all. May you feel Gods presence, strength and love❤
God continue to wrap your arms around this brave smart loving and beautiful spirit… continue to be loving and sweet always and forever… rest in heavenly peace 🕊️ 💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜🫶🏽🙏🏽🕊️🕊️ 😢😢
Just a question, did you have your second child before or after you learned that your children would have a one in four chance of having diseases due to you and your husbands genes?
I love watching her everyday. She definitely is an awesome little girl with her future looking bright! And watching you as a brave momma too! May God bless you & always keep you safe! Love from NM!💕🙏🏻🫶🏻😀
Rip Bella we will miss you very much❤❤❤🦋🦋🦋🦋🦋👐👐👐👐👐👐🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋 it’s hard to say goodbye to our sweet girl but she is now free and is in a better place now with no pain I’m so sorry for your loss Kyla
RIP, glad you live in Canada and not America, affordable healthcare is so important and gives people so much extra time. The poor people in America that either go bankrupt to get the treatment they need, or they simply don’t get treated
I did want to mention that I am a healthcare worker, and I have taken many courses and all kinds of programs and things like that and we have always been told that by 2022 all these businesses had to have access for a wheelchair and if they don’t, we are to report it because they will get a really big flying. Everybody was supposed to have everything switched over by that deadline so if you do run into something like that, make sure that you report it.
This is educational and may help people with children experiencing problems learn what might be helpful. Social media has played a big role in people being able to push doctors to do certain testing. This is not gross at all.
@@WaldoGotchubent Okay this is the most delusional response I have ever seen. Please enlighten me why I would be "jealous" of a horrifically disabled 10 year old. Maybe one day you'll mature past 2nd grade level "comebacks". Clown
Thank god you live in a country that you don’t have to worry about going broke from medical bills. I have to think that plays a role in this miracle. My American brain was instantly stressed about the financial implications of her life saving treatments. You are an amazing mother.
You haven’t posted in 7 months :( how old is Bella now?
She's passed away now 👼👼❤@@Hazelnuts_ez
But she would probably be ten or close to eleven by now
I can't believe I've never heard of this little angel. RIP baby girl 💕 you were so brave
Rest in peace sweet girl 🤍
Rest in paradise Bella, your life and legacy have touched so many. Thank you. 💕
I’ve watched your videos with Bella. It looked like you gave her such a great life while you had her those short ten years. God bless you and your family 😢
I can't believe she had 3 disorders.This is really sad when I found out about it I busted out in full tears. I'm so sorry for your lost.She was a wonderful happy girl. Rip Bella hope you have a wonderful time in heaven fly high and keep watch on your family they miss u so much. Now I understand why u haven't posted in months
RIP baby girl watching this brought me to tears. She was/is such an inspiration to the world. Strongest person I've ever seen. Big hugs and love to all her family and friends
rip Bella you truly brought smiles to millions thank you for making your mom smile while going through her hardest time you are an Angel Bella. my condolences 💐
Y’all are such an inspiring family, I will be praying for y’all to truly keep being blessed. Bella is truly such a sweet miracle.
You are doing such a good job looking after her and Bella is sooo brave! Well done both of you ❤
I feel so bad for her. She must’ve been a great person. Thank you. We all bless her today. I’m so sorry that she had to go. I’m so sorry that you had to go through all that and she had to go through all that God bless her. she always be in your heart.😭😭😭❤😭😭
Bella has inspired me to keep going on those tough days! Be Bella Brave everyday 💕
What a beautiful spirit thank you for sharing Bella story she has inspired me especially through depression… god continue to wrap your arms around this beautiful angel rest in peace Bella🫶🏽🙏🏽🕊️💜💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕
Fly high yourvsuch an angel bella😢❤🕊
Kyla thank you so much for sharing Bella and your family’s story. She really is a miracle and the bravest gal out there! I’ve been following you guys for a while and it was so interesting to hear your full story in detail. It just further proves how incredible Bella, you and your family are.
Thank you for shedding a light on some of the ways society is lacking in accessibility. As someone who works in the field of mental health it really opened my eyes to ways I can implement accessibility into my work and my life more.
Sending Bella, you and your family so much love right now! Thank you for sharing your story.
I believe this young lady was brought in the world to show the power of the kingdom of God. What are the chances to be born with 3 rare diseases and the rarest form of each?? 😮 And to overcome so much as she has- the enemy had it out for her, but God has an amazing plan for her! What an honor you have to be the mama of this little wonder! She will do great things! This life has many troubles, sufferings, and heartaches- one day Jesus is coming back and God will remove it all! I look forward to the day this little angel will be 100% free from the cruel sufferings placed by Satan on this earth- but until then, she is an incredible example to us all- that we can be victorious in the face of terrible hardships, day by day, and moment by moment. God bless you all abundantly.
oof. this corny comment obviously did not age well. shame on you
@@JanetPeddinthey weren't attempting to be rude, so i think "shame on you" is a little harsh. although you aren't wrong about it not aging too well.
@@derpycatdraws What do you mean that this commenter didn't Age well? Basically, why?
@@BeBlessed2025 poor bella passed away.
I found episode of her birthday about 2 weeks ago. I watch it at least 3 times each time I watch it. Which is at least 3 times a day. What a blessing she is. So sorry for all family members loss
Rest in peace😢 I hope she lives the greatest in heaven
Bella is a BRAVE warrior and so lucky to have you as an informed supportive Medical Mom. You both are an inspiration for chronic illness.
RIP to Bella 🕊🙏🏾😞..She definitely was a fighter and beautiful spirit. My sincere condolences to the family and friends. What a testimony, I know no more fighting and pain. …
My niece actually has all 3 of the diagnoses as well! Her story is so similar to Bellas and they could be twins! This video caught my eye because I thought it was my niece at my first glance, and i am dumbfounded that there's another beautiful girl like our Evee! And their personalities are identical! God gives them the spunk and fight to make it in this life! Im terribly sorry for your loss of beautiful Bella! My niece will be 19 this year and is baffling the medical community! God bless you!
This is amazing to read.
Bella is now watching over her family from Heaven. She is free of pain and loves her new Angel Wings. Take care.💚💛💜💙
When?
I know this isn’t related to the video but please pin this message.
On August 16th we are going to spread awareness about Bella Braves story. To honour her we are going to wear her favourite color pink on August 16th or copy LLBB on videos related to Bella Brave but either way to honour her.
Bella was diagnosed with cartilage hair hypoplasia,scim and hirschspurngs disease. Cartilage hair is one of the rarest forms of dwarfism. Hirschspurngs is a bowel disease, and scim which is a very rare disease that messes with her immune deficiency.
Bella Brave unfortunately had the most worst and rarest form of each disease which was very hard to diagnose her. She had 6 surgeries when she was born. She stayed in the hospital for 2 years right after she was born with her mother. Bella brave had to have a bone marrow transplant which is one of the treatments for being born with scim which is basically no immune system.
Bella brave braved through over 30 surgeries at only 10 years old. Her sweet little soul stayed with her throughout her life. Even on the way to an surgerie she made the funniest joke EVER. Bella said “ Knock Knock.” Mum replied “ Who’s There?” “Bella” “Bella Who?” “We Are In A Bella-Vator!😂😂😂
At only ten, she was put into a medically induced coma and she passed away peacefully.
Please copy this and spread this.
Thanks for sharing. I found you guys on tik tok a few years ago and then gave up tik tok. I was so happy to find you on Instagram because I love her personality. Your family is an inspiration and I admire both of your bravery.
Thank you so much for sharing Bella and your journey with us.I just love you both so much! You’re both such a joy and true inspiration!
She brought a smile to everyone's face.
Thank you for adding so much more to our lives through education and Bella’s beauty.
I spent a good few nights at the hospital while my dad was sick with cancer, and my mother went to see him rvery single day of the 125 days on the dot before he passed away. The spirit Bella has, the bravery, the everything...its so unheard of when youre in and surrounded by that situation. I was thankful my father was brave, but it really felt like he was the only one in that hospitwl who had people visiting him because they wanted to, not out of guilt or because theyrr forced to. I feel terrible saying that, but its true, just based on how these people seem to be sround their sick loved ones. Even if its overwhelming grief, sometimes you need to oush and show a smile and put the best effort into keeping an amazing attitude. My father may have passed, but i am grateful we stayed positive the whole time. We definitely are human and had moments of ssdness and grief, but its having the ability to still joke sround and talk to my sick father like everythings fine, but still able to acknowledge the fact it isnt all fine. Sorry if this is a big ramble. I feel so many dont see the effort YOU put in with bella. Youre her mother. I cannot imagine how it feels to see her pushing through this with such bravery. You must be so proud. But understand, i know how mentally/emotionally exhausting it can be to go through this. For both of you, and the rest of the family too. Keep being you tho, bella too. You are both amazing, and people that we need in this world.
She is an incredible mom through years of caring for and minding her daughter. It's a lifetime of commitment being a mom. Don't forget about the father, he is very much involved with the endurance and finance, of course, for their daughter's illness. God bless this family.
no she wasnt
@@JanetPeddinyes she was 🕊️🕊️Bella
I just found her videos just 4days ago
I couldn't control my 😭😭😭😭😭😭😭😭😭
R3st in power beautiful hero🕊💔
Rest in peace 🕊️❤️
If I could sit down and chat with anyone, dead or alive... I would choose BELLA!! She is wise beyond her years. Has moved every mountain that got in her way. And is now on her way to climbing mountains with her bravery, strength and SaSsY attitude. #BellaBrave
Soy mexicana y como mujer te admiro por ser una gran madre valiente y a bella que puedo decir esta lleno mi corazón de tanto amor hacia ella es una niña muy inteligente es un pedacito de vida hermoso un gran milagro como deseo de darle un abrazo con todo mi cariño se ha ganado mi corazón y el de muchos estoy segura ❤mis bendiciones para ella y su familia dios me de la oportunidad de conocerlas ❤🙏🙏🙏Dios los bendiga mi hermosa bella .
Bella's the sweetest girl and you're an amazing mum. I hope the road ahead for you all is easier and full of joy ❤
Dear Lord, please help this sweet little angel to heal and give her a miracle. Thank you for her life and bless her so abundantly, watch over her wherever she goes and let her know that she is so loved by so many people. We love you little Bella 🩷
Thank you for sharing this I have followed you guys for a very long time and supported you through prayer. Viral hugs and kisses. I always wanted to know the full story and I didn’t ever want to ask so I appreciate you explaining it. Thank you so much and I’m so proud that you guys are on a positive journey forward now lots of love from Canada.
This was beautiful. I believe Bella already is helping and healing people all over the world ❤❤❤❤❤.
Bella BRAVE was really the most accurate name for this angel & I see where she gets her bravery from..mama! RIP 😇
The brightest star on earth and in the sky.
We love you Bell. I hope you’re dancing and laughing in the heavens 🩷
I’ve seen a video where u say ppl r making rude comments about ur daughter. Ur child is courageous
Yup. she told her kid people were bullying her online. Terrible mother. I wouldve never told my kid that
My heart goes out to you and little Bella and your husband. What a blessing Bella is to you, even though she has gone through so very much, she is a soul lifter for you❤. This side of heaven will give us no answers to why things happen, but true, forever love conquers all. May you feel Gods presence, strength and love❤
God continue to wrap your arms around this brave smart loving and beautiful spirit… continue to be loving and sweet always and forever… rest in heavenly peace 🕊️ 💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜🫶🏽🙏🏽🕊️🕊️ 😢😢
Just a question, did you have your second child before or after you learned that your children would have a one in four chance of having diseases due to you and your husbands genes?
I love watching her everyday. She definitely is an awesome little girl with her future looking bright! And watching you as a brave momma too! May God bless you & always keep you safe! Love from NM!💕🙏🏻🫶🏻😀
How long were you at Swift Current hospital before you went to a bigger one
3 days after Bella was born.
@@kylact❤
Rip Bella we will miss you very much❤❤❤🦋🦋🦋🦋🦋👐👐👐👐👐👐🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋 it’s hard to say goodbye to our sweet girl but she is now free and is in a better place now with no pain I’m so sorry for your loss Kyla
The Great Physician was clearly her chief doctor. ❤
So sad, 9 years where in hospitals, pain and all the sh!t bc of her bowels. And now she died. I am so sorry sweet beautiful girl.
I only found out what happen and now I'm bursting out of tears rip Bella everyone loved u❤❤❤😢😢😢😭😭
She brought me so much joy RIP sweetheart 💔
Love you Bella rest in peace
RIP, glad you live in Canada and not America, affordable healthcare is so important and gives people so much extra time. The poor people in America that either go bankrupt to get the treatment they need, or they simply don’t get treated
So sorry she is at peace god bless her RIP Bella ❤🙏😢
RIP our butiful strong mighty Bella😭😭😭
I never knew she had 3 rare disorders I always assumed it was scid causing all of the symptoms. Rest in peace sweet beautiful brave Bella❤️
I did want to mention that I am a healthcare worker, and I have taken many courses and all kinds of programs and things like that and we have always been told that by 2022 all these businesses had to have access for a wheelchair and if they don’t, we are to report it because they will get a really big flying. Everybody was supposed to have everything switched over by that deadline so if you do run into something like that, make sure that you report it.
Rest In Peace Bella Brave
Reset in piece you were the sweetest girl you will be greatly missed 🕊
Rip sweet child
I always loved her Bella Vater joke in the elevator R.I.P. I loved her she was great😢❤
rip sweet angel 🙏🏼💗
I love you bella brave you are so cute and shine bright and you are a star ✨ ✨ ✨ 🥰 🥰 🥰
My name is daisy Thompson. Are you my mom? (Just kidding I know people have same last names)
You are Bella brave mom you are beautiful and strong. You are Bella brave mom.
She and I shared a birthday many years apart.
Fly high 🕊️🕊️🕊️
Rest in piece
BElla
BRAVE
Respect bald kids bella this is for you bella if you were not in the world then i would never believe in myself rest in paee
Salvador Bahia Brasil. ❤❤❤❤
She died?
Is Bella dead now?
Yes
@@Nocoppaoryoutubekidsthanks!!!
Girl ask google, how do you think her mom feels having to read that and be reminded?
Rip brave bella
Yes I love y'all I went to cheer with bella
🙏🙏🙏❤️❤️❤️❤️
Could she poop?
Rlp
kids are pretty tough. they can handle anything.
RIP
Fly high
Gross "mother". Exploited her child online her whole life. You should be ashamed of yourself
This is educational and may help people with children experiencing problems learn what might be helpful. Social media has played a big role in people being able to push doctors to do certain testing. This is not gross at all.
Sensing a bit of jealousy there pal.
@@WaldoGotchubent Okay this is the most delusional response I have ever seen. Please enlighten me why I would be "jealous" of a horrifically disabled 10 year old. Maybe one day you'll mature past 2nd grade level "comebacks". Clown
Yeah I would’ve never shown my child online like this disgusting
@@susangraham1203so kids don’t deserve privacy?
Where’s that dada now
Wth