Hi Debbie, Just wanna Send my well wishes to you, I was wondering if the doctors of a considered CID P? Because they have issues with falling as well. Did You're EMG show conduction block, And did you ever have pins and needles or numbness? I think you're amazing and brave thank you for telling Your story. Keep fighting God is good
Brooklyn Grl thank you! My Neuromuscular Neurologist did say he’s ruled out CIDP because I do not have conduction block and I have no GM1. I forgot to mention in the video that I have heightened reflexes, and now fasciculations in my mouth, on the tongue and my uvula. I’m keeping an open mind though and continuing my research. I have my work cut out for me over these next few months. I’m not giving up.
@@livingwithlemons3536 I said a prayer for you and your family, so conduction block would have been a way to rule out ALS? I had an EMG done and they found multiple blocks,and are saying CIDP or MMN but I'm not convinced, it's all so confusing and scary. Sending love and prayers❤
I wish you every strength, and hope you’re as well as can be. Thank you for sharing your journey. You are amazing ❤️
Oh dear God, I'm so sorry to hear this, but hope the medical path helps. Enjoy every day with your little one. God Bless
please keep updating, thinking of you...i'm awaiting my neuro mystery diagnosis at the moment..a tough space to wait.
Sending you you positive thoughts!! Your a tough cookie and you can get through this!! 💜
Hi Debbie, Just wanna Send my well wishes to you, I was wondering if the doctors of a considered CID P? Because they have issues with falling as well. Did You're EMG show conduction block, And did you ever have pins and needles or numbness? I think you're amazing and brave thank you for telling Your story. Keep fighting God is good
Brooklyn Grl thank you! My Neuromuscular Neurologist did say he’s ruled out CIDP because I do not have conduction block and I have no GM1. I forgot to mention in the video that I have heightened reflexes, and now fasciculations in my mouth, on the tongue and my uvula. I’m keeping an open mind though and continuing my research. I have my work cut out for me over these next few months. I’m not giving up.
@@livingwithlemons3536 I said a prayer for you and your family, so conduction block would have been a way to rule out ALS? I had an EMG done and they found multiple blocks,and are saying CIDP or MMN but I'm not convinced, it's all so confusing and scary. Sending love and prayers❤
Omg girl. Sending you love. I think you are so brave. If you feel ready, and want to, we have a big team of patient advocates over at I AM ALS.
I am definitely ready now. Could you share a link or a number? ALS association is great but their resources near me are limited.
@@livingwithlemons3536 Yes. This might be a good place to start. There is also a FB group for I am ALS. iamals.org/resources/
Stay strong 💪
Love you ant debbie
Aww I love you more baby girl 😘
You’re going to live sis believe Jesus’s report
Everybody who gets ASL dies