You are spot on with loss of identity. Its a shame there's not more Dr's like you. Your so sincere. You diagnosed my son earlier this year after myself and daughter also have Pots. Wish I could come to this event. Best of luck with it all
Reading Reddit MDs talk about patients with POTS is horrifying. After you get the dx it’s amazing that other drs assume the patient is mental. Not just pots but any disease that isn’t well understood by wider medical community. I wish Drs would believe their patients. There certainly are those with mental disorders that make things up but that has to be the smallest group. Most people want to feel strong and healthy! They just need to be believed as a starting point. Thanks for caring Doc!
@@Catlily5 could be. I’m actually referring to a tiny subset that may have munchausens or another disorder that might cause them to enjoy or get some kind of payoff from being “sick”. This is rare yet when u read drs on Reddit discussing patients they really do think patients with pots or allergies or CFS fibro etc are coo-coo. It’s pathetic.
@@monkeybearmax Munchausen is pretty rare. What kind of symptoms do they tend to fake? I would be surprised if they faked most POTS symptoms because they wouldn't get as much sympathy as faking some other illnesses.
@@cosmos1927 it’s often not overt but we get the message and just listen to what many of them explicitly say about people with these illnesses in online forums. They do not believe these patients. I told one doc in this Reddit forum they used to say women with MS had some hysteria disorder too …and then I was banned 😂
@@Catlily5 my point is exactly that. That people faking these disorders is a low percentage and Drs should start with believing their patients unless they have been given evidence to the contrary. Having a dx like POTS shouldn’t cause eyerolls disdain and doubt.
I have a mild traumatic brain injury. There is nothing mild about it, except that I appear normal to other people and so I 100% relate to the daughter and to people of the likes. I was forced to isolate because I couldn’t deal with any type of stimulation, but that only made things worse emotionally after already losing my identity and everything that I had prior to the injury. My life has done 180° turn. Five years later, I am about 50% better, which is to say that I’m still not at all where I’d like to be emotionally, in terms of capability, financially, etc. and so I really applies what you’re doing for those with invisible disabilities. It truly is a nightmare, and because most cannot relate, that’ll make you feel more alone. Best to you and your cause.
I had this before the covid vaccine with that curse numerous side effects but it's worse now. Always nice to see a new video from this doctor as he talks about health problems that aren't talked about as often.
I wish they'd do a study to find out how many had undiagnosed autoimmune diseases that masked dysautonomia. I've met plenty of pots patients later diagnosed with ms, mg etc.
Thank you for this and all your videos Dr Gupta. Raising awareness of POTS and other invisible illness is so important You are a wonderful doctor and your work is most appreciated. Victoria Lister (York Cardiology POTS patient)
I'm at the moment awaiting a cardiology apt for my son after 3 years of ongoing symptoms which was diagnosed as FND (Functional Neurological Disorder) 2 years ago over a telephone triage by a consultant...Two years on after struggling on our own for last 3 years, his Accupunturist realised his pulse was rising pretty high each time he stood up and bless her she wrote to our doctor for further tests...This charity sounds wonderful as I've been looking around for some support as my son 22, with long term aspirations has for the last 8/9 months shut himself away from life...This is what's killing me seeing my son not being able to get on with his life nor really get any help...How would know where to look for the information for this support group you are setting up?
There are a lot of parallels among the experiences of someone with POTS and individuals with Endometriosis/PCOS. Endometriosis and PCOS are also very disabling hidden chronic illnesses. And since Endo affects 1 in 10 women, so many women with POTS also struggle with Endometriosis (including myself). Having people from a variety of hidden chronic illness communities is a wonderful idea! We all need support & understand each other's experiences of feeling dismissed by the medical system or feeling isolated due to our limitations. I love this video ❤️
Wishing every success to this wonderful event and this excellent new Charity. For sure, not enough is known by the public, GPs and Hospital medics about PoTS (Dysautonomia) and how it utterly destroys lives. All my life I have endured a myriad of illnesses, endless pain and operations. People have no idea how EVERYTHING in the body is affected and they throw their arms up and say “But, you can’t possibly have ALL those things wrong with you at once!”. I am now old and my condition has deteriorated. I’m bedridden with PoTS, EDS III, chronic Migraine and Sjogren’s Syndrome so, unfortunately, I won’t be able to attend the wonderful proposed event in Hull in October, but I wish you all a really excellent and successful evening - and success with the Charity in the future. I have signed the Saline Petition. Best wishes to you both and thank you, so much, Dr. Gupta, for taking patients with PoTS seriously and for making such a difference. Christine.
I wish all drs were as helpful and understanding as yourself. You can see that you really want to make a difference in patients lives. I have an invisable condition. I have experienced discrimination. Because 'i look fine' doesnt mean i feel well on the inside
I have a condition called OCHOS, which causes low blood flow to the brain. It’s in the same family as POTS. I suffer from orthostatic intolerance symptoms, but also from cognitive dysfunction. Until recently, I didn’t realise how badly this has affected me over the years. Not only trouble with executive function, but with emotional regulation. I was shocked when I was (briefly) medicated and almost all my mental and cognitive problems disappeared. My big problem in life is that every medical and healthcare worker I deal with appears to be completely unprepared to deal with someone with a disability. And yet they must be interacting with disabled people every day. There are millions of us.
Doctor Gupta could you please do a video on anxiety and panic disorder ptsd and heart rate , palpitations, fast heart rates , blood pressure spikes there are so many of us struggling with these symptoms and conditions and no one gets the proper answers the chest pains, agoraphobia, sinus tachycardia or possible IST or caused by anxiety natural help , anything we could use your services please 🙏
I have three invisible illnesses… EDS, IST, and chronic intractable daily migraine. It’s extremely difficult to get the medical community to understand the severity of the disability because I look pretty much okay when I’m not using my rollator or cane.
In hospital at the moment. I feel that the nurses don't see my condition and see me as taken up a bed in the CCU ward because I seem fairly healthy. The Doctor is keeping me in but I'm not sure if it's because I've been caught in a mix up of respiratory and cardiology. I want to be independent but I need some help, also, I want to feel/be in control too. I have heart failure. I feel like I am a problem to everyone. I'm 53 years living on my own on government benefits.
I truly wish there were more doctor's like you Dr. Gupta! You are exceptional on every level. Thank you for your videos! My question is off topic; I have heart issues and back issues. Exercising is challenging so I was wondering if using an AB stimulator for my stomach while exercising affects the rhythm of my heart, or negatively affects my heart in any way? Thank you for all you do and the information and knowledge you share with all of us.
I finally got off Atenolol!!!!!!!! After 12 years on 25mg a day I followed this taper. If you are taking a long-acting beta blocker e.g. Atenolol, Bisoprolol etc, then take half the usual dose for a week, then half the usual dose every other day for a week and then stop. I feel completely normal now!!!!!!!!! Thankyou. It's been a nightmare with so many side effects and a senior cardiologist in a recent hospital visit (moderate alcohol withdrawal admission) asked me WHO PRESCRIBED THESE TO YOU!??? He was furious. lol
Do you know anything about why so many people with POTS experience the October Slide? I’ve had POTS for 8 years and I’ve had symptom flares in October every single year. I usually have one in March as well but I’ve seen less about that. I read a theory that it could be a seasonal change thing but that came from an American source and I live in Australia. I always forget then wonder why I’m flaring so badly only to check and, what do you know, it’s October lmao
Could we arrange for you to come to Northern Ireland to speak to the medics??? I’m still bed ridden after 18 months as the doctors don’t know what to do with me. I’m now too sick to fly to my appointment in London with Dr Gall. HELP we are still the UK ❤❤❤❤❤❤❤❤❤❤
@@Pearlsrat I have pots diagnosed but that’s it I’ve just been left for 2 yrs I’ve lost 6 stone from malnutrition massive autonomic dysfunction. I’ve my tilt table results and nothing. The medical staff here don’t know what to do with me at all. Most have never heard of pots given it’s been around for centuries!!!
Dr Gupta, I'm 24 and have just been fitted with a pacemaker after 80 nights in CCU just this year alone. I have atrial tachycardia and tachy Brady and it took away so many of my recent years. I got my pacemaker in 3 weeks ago and I've been having runs of ectopics, turning into SVT, every minute. These have been seen on my device and go up to 260 bpm. They only last 11 secs max but they are constant. My rays etc are fine but I'm just broken and disheartened. Can this happen after PPM insertion? I'm struggling so much. I work for ambulance service in York and I'm meant to be going back to work. I can't find any information online:(1 love your videos. They are super helpful and reassuring.
Hi, how do I go about getting an appointment at the York clinic? I was diagnosed with M.E 3 years ago (ill for 7 years) I have multiple illnesses. Heds, and I believe POTS and MCAS. After two episodes of Cauda equina last year I've started to really struggle with neurological symptoms and depression (I also have ADHD) they keep trying me on new antidepressants and wow does it make my MCAS bad and POTs. My GP is pretty clueless and I can't get a referral. I'm so miserable and unwell.
@@HSolar Sorry to hear, i was placed one two shots of vitamin D(one week apart) and was given oestocare supplement(contain zinc, magnesium, calcium and vitamin) 1 tablet daily for a month along side some diet change. So I don't think the vitamin D shots are enough .
I suffer from permanent AF for the past several years. I take 100g flecainida twice a day. I live in Spain and am am trying to find the best pulsed field ablation hospital in the UK, Spain or other EU country. Is this a procedure you have much experience with.. Hope you can help.
Im 19 and for the past 2 1/2 years or so ive been having heart palpitations and random chest pain through out the day and sometimes on the side of my neck and i cant figure out whats wrong. My gp saids its anxiety and i believed so too but its been almost 3yrs and they dont seem to be going away and recently ive been getting short periods of lightheaded when i bend over to get something or stand up. Anybody else had this problem or similar to this?
Possibly chronic anemia or low BP , get your test done and take wise steps to gradually improve it. Palpitations aren't harmful, it increases when you become more anxious about them.I once had similar kind of problem few days back , it was consistent for over a month , but after getting tested and treated for low anemia and low hemoglobin , I am really fine now and doing my 16 hr/day sitting job normally . I would also suggest you to get your test done for gastric as well
Yes I get those sx I have #POTS & my consultant (+linked genetic/epi genetic conditions) said the light-headedness (with a pressure head) was low csf pressure, part of my POTS meds is slow sodium & helps blood volume & prevents the postural pressure in head this was often end of day & eg when sneezed coughed. I'm sure its on channel search NASA standing test (maybe called slightly different) or "poor man's tilt table test" to check. You simply may just need more hydration try that whichin safe limits 1st (ie not excessive water as that can be dangerous without safe amounts of electrolytes/salt)
Hello...sir I'm 38yr female I don't have any medical history before except gastritis . I also breastfeeding mother of 1.5yr baby . Sometimes I feel general weakness . One day Suddenly I felt palpitations. I don't have bp and diabetes. I want to ecg... report was ventricular ischemia. Immediately doctor advised echo... my echo report was completely normal. No treatment No medication. Sir could you please explain me about why my ecg was changed and echo was normal. Is it possible to have like this. Please explain me Thank you sir
Hi doctor please i have been suffering from a problem of irregular heart beats very strange chest pain and gut problem i have gone through all my tests but they could not find any reasons for that.Please help me I want to meet you . Please can you send me your address or please let me know how I can meet you.
Dr. Gupta I have not met a doctor with your amount of patience and knowledge! You are a true gift to humanity ♥️
Drs like Dr Gupta feel few and far between
You are spot on with loss of identity. Its a shame there's not more Dr's like you. Your so sincere.
You diagnosed my son earlier this year after myself and daughter also have Pots. Wish I could come to this event. Best of luck with it all
I wish you were in the States Dr. Gupta. Your patients are so fortunate to have you!
Reading Reddit MDs talk about patients with POTS is horrifying. After you get the dx it’s amazing that other drs assume the patient is mental. Not just pots but any disease that isn’t well understood by wider medical community.
I wish Drs would believe their patients. There certainly are those with mental disorders that make things up but that has to be the smallest group. Most people want to feel strong and healthy! They just need to be believed as a starting point.
Thanks for caring Doc!
@@Catlily5 could be. I’m actually referring to a tiny subset that may have munchausens or another disorder that might cause them to enjoy or get some kind of payoff from being “sick”. This is rare yet when u read drs on Reddit discussing patients they really do think patients with pots or allergies or CFS fibro etc are coo-coo. It’s pathetic.
@@monkeybearmax Munchausen is pretty rare. What kind of symptoms do they tend to fake? I would be surprised if they faked most POTS symptoms because they wouldn't get as much sympathy as faking some other illnesses.
@@cosmos1927 it’s often not overt but we get the message and just listen to what many of them explicitly say about people with these illnesses in online forums. They do not believe these patients.
I told one doc in this Reddit forum they used to say women with MS had some hysteria disorder too …and then I was banned 😂
@@Catlily5 my point is exactly that. That people faking these disorders is a low percentage and Drs should start with believing their patients unless they have been given evidence to the contrary. Having a dx like POTS shouldn’t cause eyerolls disdain and doubt.
@@monkeybearmax I agree that not a lot of people fake being sick. POTS is a legitimate diagnosis.
I have a mild traumatic brain injury. There is nothing mild about it, except that I appear normal to other people and so I 100% relate to the daughter and to people of the likes. I was forced to isolate because I couldn’t deal with any type of stimulation, but that only made things worse emotionally after already losing my identity and everything that I had prior to the injury. My life has done 180° turn. Five years later, I am about 50% better, which is to say that I’m still not at all where I’d like to be emotionally, in terms of capability, financially, etc. and so I really applies what you’re doing for those with invisible disabilities. It truly is a nightmare, and because most cannot relate, that’ll make you feel more alone. Best to you and your cause.
Relate to this 100% 💯 sending you rays of support
I had this before the covid vaccine with that curse numerous side effects but it's worse now.
Always nice to see a new video from this doctor as he talks about health problems that aren't talked about as often.
I wish they'd do a study to find out how many had undiagnosed autoimmune diseases that masked dysautonomia. I've met plenty of pots patients later diagnosed with ms, mg etc.
Exactly. Like CFS/ me is prob just another autoimmune disease they don’t have adequate testing for.
Lyme disease triggered my POTS. MS can mimic Lyme
I think my underlying problem is problems with my connective tissues (EDS?) but Epstein Barr Virus might have triggered the POTS
@annjames1837 Exactly my experience with Lyme and POTS. Lyme can mimic MS and alot of other illnesses. Thank you for adding.
I have mental illness, autism and POTS. So 3 hidden disabilities. If you have POTS you are more likely to be autistic and have Ehlers Danlos.
Thank you for this and all your videos Dr Gupta. Raising awareness of POTS and other invisible illness is so important You are a wonderful doctor and your work is most appreciated. Victoria Lister (York Cardiology POTS patient)
I'm at the moment awaiting a cardiology apt for my son after 3 years of ongoing symptoms which was diagnosed as FND (Functional Neurological Disorder) 2 years ago over a telephone triage by a consultant...Two years on after struggling on our own for last 3 years, his Accupunturist realised his pulse was rising pretty high each time he stood up and bless her she wrote to our doctor for further tests...This charity sounds wonderful as I've been looking around for some support as my son 22, with long term aspirations has for the last 8/9 months shut himself away from life...This is what's killing me seeing my son not being able to get on with his life nor really get any help...How would know where to look for the information for this support group you are setting up?
There are a lot of parallels among the experiences of someone with POTS and individuals with Endometriosis/PCOS. Endometriosis and PCOS are also very disabling hidden chronic illnesses. And since Endo affects 1 in 10 women, so many women with POTS also struggle with Endometriosis (including myself). Having people from a variety of hidden chronic illness communities is a wonderful idea! We all need support & understand each other's experiences of feeling dismissed by the medical system or feeling isolated due to our limitations. I love this video ❤️
Wishing every success to this wonderful event and this excellent new Charity. For sure, not enough is known by the public, GPs and Hospital medics about PoTS (Dysautonomia) and how it utterly destroys lives. All my life I have endured a myriad of illnesses, endless pain and operations. People have no idea how EVERYTHING in the body is affected and they throw their arms up and say “But, you can’t possibly have ALL those things wrong with you at once!”. I am now old and my condition has deteriorated. I’m bedridden with PoTS, EDS III, chronic Migraine and Sjogren’s Syndrome so, unfortunately, I won’t be able to attend the wonderful proposed event in Hull in October, but I wish you all a really excellent and successful evening - and success with the Charity in the future. I have signed the Saline Petition. Best wishes to you both and thank you, so much, Dr. Gupta, for taking patients with PoTS seriously and for making such a difference. Christine.
I wish all drs were as helpful and understanding as yourself. You can see that you really want to make a difference in patients lives. I have an invisable condition. I have experienced discrimination. Because 'i look fine' doesnt mean i feel well on the inside
I have a condition called OCHOS, which causes low blood flow to the brain. It’s in the same family as POTS. I suffer from orthostatic intolerance symptoms, but also from cognitive dysfunction. Until recently, I didn’t realise how badly this has affected me over the years. Not only trouble with executive function, but with emotional regulation. I was shocked when I was (briefly) medicated and almost all my mental and cognitive problems disappeared.
My big problem in life is that every medical and healthcare worker I deal with appears to be completely unprepared to deal with someone with a disability. And yet they must be interacting with disabled people every day. There are millions of us.
Doctor Gupta could you please do a video on anxiety and panic disorder ptsd and heart rate , palpitations, fast heart rates , blood pressure spikes there are so many of us struggling with these symptoms and conditions and no one gets the proper answers the chest pains, agoraphobia, sinus tachycardia or possible IST or caused by anxiety natural help , anything we could use your services please 🙏
I have three invisible illnesses… EDS, IST, and chronic intractable daily migraine. It’s extremely difficult to get the medical community to understand the severity of the disability because I look pretty much okay when I’m not using my rollator or cane.
I have ist too and it’s so awful.. still being tested for other things. Ist alone is enough. I’m praying for you.
@@robinmathews6291I hope you find relief soon! Ivabradine is amazing. Along with Diltiazem, it can keep somewhat control of it
In hospital at the moment. I feel that the nurses don't see my condition and see me as taken up a bed in the CCU ward because I seem fairly healthy. The Doctor is keeping me in but I'm not sure if it's because I've been caught in a mix up of respiratory and cardiology. I want to be independent but I need some help, also, I want to feel/be in control too. I have heart failure. I feel like I am a problem to everyone. I'm 53 years living on my own on government benefits.
I have felt this way before that’s why I hate going to hospital.😢
Hi doc I am not a cardiac patient but I love watching you and listening to all of your knowledge
Great topic, thanks for all this information ❤
This is going to be an amazing advent, i wish the charity great success for this very important subject ❤
I truly wish there were more doctor's like you Dr. Gupta! You are exceptional on every level. Thank you for your videos!
My question is off topic; I have heart issues and back issues. Exercising is challenging so I was wondering if using an AB stimulator for my stomach while exercising affects the rhythm of my heart, or negatively affects my heart in any way? Thank you for all you do and the information and knowledge you share with all of us.
Thank you so much, Dr. Gupta! 🥰
I finally got off Atenolol!!!!!!!! After 12 years on 25mg a day I followed this taper. If you are taking a long-acting beta blocker e.g. Atenolol, Bisoprolol etc, then take half the usual dose for a week, then half the usual dose every other day for a week and then stop.
I feel completely normal now!!!!!!!!! Thankyou. It's been a nightmare with so many side effects and a senior cardiologist in a recent hospital visit (moderate alcohol withdrawal admission) asked me WHO PRESCRIBED THESE TO YOU!??? He was furious. lol
Good Information Doctor...Thank you...
What a wonderful Mum!!! ❤
So wonderful! ❤
Thanks
Do you know anything about why so many people with POTS experience the October Slide? I’ve had POTS for 8 years and I’ve had symptom flares in October every single year. I usually have one in March as well but I’ve seen less about that. I read a theory that it could be a seasonal change thing but that came from an American source and I live in Australia. I always forget then wonder why I’m flaring so badly only to check and, what do you know, it’s October lmao
Could we arrange for you to come to Northern Ireland to speak to the medics??? I’m still bed ridden after 18 months as the doctors don’t know what to do with me. I’m now too sick to fly to my appointment in London with Dr Gall. HELP we are still the UK ❤❤❤❤❤❤❤❤❤❤
What do you have?
@@Pearlsrat I have pots diagnosed but that’s it I’ve just been left for 2 yrs I’ve lost 6 stone from malnutrition massive autonomic dysfunction. I’ve my tilt table results and nothing. The medical staff here don’t know what to do with me at all. Most have never heard of pots given it’s been around for centuries!!!
A team for health, perfect 💪
Dr Gupta, I'm 24 and have just been fitted with a pacemaker after 80 nights in CCU just this year alone. I have atrial tachycardia and tachy Brady and it took away so many of my recent years. I got my pacemaker in 3 weeks ago and I've been having runs of ectopics, turning into SVT, every minute. These have been seen on my device and go up to 260 bpm. They only last 11 secs max but they are constant. My rays etc are fine but I'm just broken and disheartened.
Can this happen after PPM insertion? I'm struggling so much. I work for ambulance service in York and I'm meant to be going back to work. I can't find any information online:(1 love your videos. They are super helpful and reassuring.
Could you do a video on franks crease?
Medical gas lighting happens to people of all ages not just to young people. We all need to care more.
Hi, how do I go about getting an appointment at the York clinic?
I was diagnosed with M.E 3 years ago (ill for 7 years) I have multiple illnesses. Heds, and I believe POTS and MCAS. After two episodes of Cauda equina last year I've started to really struggle with neurological symptoms and depression (I also have ADHD) they keep trying me on new antidepressants and wow does it make my MCAS bad and POTs. My GP is pretty clueless and I can't get a referral. I'm so miserable and unwell.
I had POT's but when I stopped taking tricylictricyclic antidepressants it went away.
Question where do a AV block come from?
I would come if I lived closer but I am across the ocean from you.
Q: Dr. Gupta, have you ever encountered a patient where LGL Leukemia was causing their heart issues ?
hey doc what about carriers of duchenne md?
Experienced POTS but turned out i had low level vitamin D levels. After treating those no problems
Unfortunately wasn't my reason, been on liquid vit D for 11yrs still have POTS, it did stop my recurrent chest infections/bronchitis.
@@HSolar Sorry to hear, i was placed one two shots of vitamin D(one week apart) and was given oestocare supplement(contain zinc, magnesium, calcium and vitamin) 1 tablet daily for a month along side some diet change. So I don't think the vitamin D shots are enough .
I suffer from permanent AF for the past several years. I take 100g flecainida twice a day. I live in Spain and am am trying to find the best pulsed field ablation hospital in the UK, Spain or other EU country. Is this a procedure you have much experience with..
Hope you can help.
Im 19 and for the past 2 1/2 years or so ive been having heart palpitations and random chest pain through out the day and sometimes on the side of my neck and i cant figure out whats wrong. My gp saids its anxiety and i believed so too but its been almost 3yrs and they dont seem to be going away and recently ive been getting short periods of lightheaded when i bend over to get something or stand up. Anybody else had this problem or similar to this?
Possibly chronic anemia or low BP , get your test done and take wise steps to gradually improve it. Palpitations aren't harmful, it increases when you become more anxious about them.I once had similar kind of problem few days back , it was consistent for over a month , but after getting tested and treated for low anemia and low hemoglobin , I am really fine now and doing my 16 hr/day sitting job normally . I would also suggest you to get your test done for gastric as well
Yes I get those sx I have #POTS & my consultant (+linked genetic/epi genetic conditions) said the light-headedness (with a pressure head) was low csf pressure, part of my POTS meds is slow sodium & helps blood volume & prevents the postural pressure in head this was often end of day & eg when sneezed coughed. I'm sure its on channel search NASA standing test (maybe called slightly different) or "poor man's tilt table test" to check. You simply may just need more hydration try that whichin safe limits 1st (ie not excessive water as that can be dangerous without safe amounts of electrolytes/salt)
I have blueish lips chest pain lump in the throat struggle to breath pale skin guess I have pots :)))
How does one know they have pots
Hello...sir I'm 38yr female I don't have any medical history before except gastritis . I also breastfeeding mother of 1.5yr baby . Sometimes I feel general weakness . One day Suddenly I felt palpitations. I don't have bp and diabetes. I want to ecg... report was ventricular ischemia. Immediately doctor advised echo... my echo report was completely normal. No treatment No medication. Sir could you please explain me about why my ecg was changed and echo was normal. Is it possible to have like this.
Please explain me
Thank you sir
Hi doctor please i have been suffering from a problem of irregular heart beats very strange chest pain and gut problem i have gone through all my tests but they could not find any reasons for that.Please help me I want to meet you . Please can you send me your address or please let me know how I can meet you.