Our TGA Heart Warrior’s Journey (Transposition of the Great Arteries)
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- เผยแพร่เมื่อ 23 ต.ค. 2024
- #tgababy #transpositionofthegreatarteries #heartwarrior #heartdefect #tga
Hey y’all! Welcome back to my channel! This video is a bit different usual! This is all about our sons heart defect he was born with. I made this video in hopes that could help other parents who have recently received the diagnosis! Thank you for watching! Please like and subscribe!
Instagram: style.with.shana
Facebook Page mentioned: Transposition of the Great Arteries
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Our son has the same diagnosis tga. He was 6 days old when they open his breast. Im here to give people hope everything will be good with your child. Our jamie is 9 months today and he ist so normal as other babys. This was the most difficult time of our lifes. But stay positive evrything will be good 🙏 sorry for my English .. i'm from germany :)
I'm 26 weeks and 2 day found out 2 days ago. My husband and I also have to relocate. Your story helped me alot. We're struggling right now because we're not sure if we can find a home in time. I pray to God everything goes well.
❤ I found out my baby girl has TGA at my 20 week anatomy scan . I’m 31 weeks pregnant. I’m getting very anxious. Thank you for putting this The video out , makes me feel hopeful.
Me too.. im 35weeks pregnant now. My ultrasounds tells that baby has TGA😰😭
Hi! I will be praying for you and the baby! Yes! Stay hopeful! ❤️❤️ please update and let me know how it goes :)
@@haideejamis7973 hi! Hang in there! It’s a tough road, just stay hopeful ❤️❤️
Hello everyone I hope your kids doing well I just want to know how are your kids now I’m 30 weeks pregnant on my 20 anatomy scan they found that my baby has to do the surgery of TGA 😢 and Im gonna give birth at CHOP hospital. Could you please tell what did you do with your babies this is my first baby 😢
Hi all just wanted to update! My daughter was born at chop in Philly at the children hospital. She was born on thanksgiving 11-24-22. She immediately needed oxygen and the balloon procedure. She was placed in cardiac critical intensive care unit for 4 days after . She has her arterial switch operation. She blossomed, after her surgery and was home 6 days after the surgery. She is a true blessing and I am so thankful everyday for her . She see local cardiology , they are extremely pleased with everything. All I can say it is extremely difficult but stay positive. My thoughts and prayers are with the families that are going through this now and now ♥️♥️
Shana - thank you SO much for sharing your story. I just had my baby boy yesterday and after noticing his low oxygen levels, they were able to identify TGA within 4 hours from birth. We are so lucky that our hospital has the best NICU in Florida ❤️ doctors are still working to rule out any other complications, but my dream is that this will be his only major challenge and that he will follow in the footsteps of your son and so many other babies with success stories. Thank you for sharing so we feel less alone and can find hope.
Hi, Kathy! I’m so glad you were at a hospital that can do the surgery! Hang in there! It’s challenging to get over the hump, but you will get there! Prayers for you and your family! Keep me updated!
@@stylewithshana6694 thank you so much 🥹
My son is going to be 12 this year and was born with tga! Everyday has been a blessing. Cardiologist visits yearly. He hasnt had and issues or surgeries since he was a year old. 😊
Thank you for sharing your story. My son and his partner just had their first baby this morning and found out he has TGA. He is having the balloon inserted as I am writing this. The plan to do the 2nd surgery on Monday. We all have been in shock since this morning but your video truly gave me hope and clarity. I just forwarded it to my son and I think he will really appreciate your story. Thank you so much and God bless you and your family!
Thank you for sharing! Sending love and prayers! ❤️
I just found out my baby has this. I’m so scared. Thank you this really helped me.
Thank you for sharing your story. My daughter is having her arterial switch in a couple days. She also has D TGA. We didn’t find out until she was born and it completely caught us off guard. They had to fly her out to another city and she’s been in the CICU since she’s been born and she’s already about to be 3 months old. She couldn’t have it done sooner because she had complications from a different surgery she had to have before for imperforate anus. She’s finally ready and so are we! We’re ready to go home with our baby and be together as a family again.
Hi, Vanessa! I will be praying everything goes well with her surgery! 🙏🏼 hang in there! I remember thinking I just want to be home as a family! It’s a tough road, but these babies are strong! It’s amazing how tough they are! Please update me and let me know how it goes ❤️
The surgery went great thank God! We made it home a couple weeks before Christmas. It’s amazing how strong babies can be. We made it home a little later than expected because her incision opened up so they wanted us to stay local until it got better which it did. Thank you again for sharing your experience! I hope you and your family had a Merry Christmas and a Happy New Year. 😊
@@vanessar7494 I’m so happy to hear everything went well, and your home! I hope you all were able to have Merry Christmas! Thank you for updating ❤️
My son has TGA and his already 8months,theyre doing some tests for him insha allah they can proceed him to surgery asap
This video helped me tremendously! Love my heart warrior mama and my heart warrior son. So grateful!
Hi Shana, thank you so much for sharing your experience 🙏🏻 my son diagnosed right after birth and surgery was performed on day 3 and he’s still in hospital for recovery. Today is day 13 after operation and he’s having his feeding normally but still under minimal ventilator support.
Did you have a similar experience where oxygen level drops when ventilation tube is taken off ? We’re now day 13 after operation and doctors are saying that this is the only remaining milestone for him to be released and go home.
Again thanks for sharing, your story made us feel relieved and hopeful ❤
Hi! I’m so glad the surgery went well! We did experience oxygen level drops as well. We were in the hospital 17 days total. Praying you will be able to go home soon! ❤️
Amazing story. Our daugther has just had her arterial switch 2 weeks ago. Stay strong mummies and daddies.
hello, we weren't diagnosed during pregnancy, but right after birth. Our son had an arterial switch operation 5 days ago and now he is recovering. for us this period of time (even after surgery) is extremely difficult.
We just got this diagnosis at 23 week anatomy scan. It's terrifying to wrap our head around, but im hopeful and faithful that the outcome will be positive. I do have a question though...we're you able to breastfeed at any point? Did your baby latch after you went home?
Hi! I remember those same feelings! And yes, I wa able to breastfeed a little in the hospital and full time at home - I pumped and they gave him my milk through a feeding tube for a little while - but he did latch and it was fine. That was actually one of my concerns too! I would ask if you can try and get a consult - the hospital will have them and it’s okay to ask - even with all the chords - we were able to practice with the consultant in the hospital :) send info you love and prayers! These babies are so much stronger than we think! ❤️❤️❤️
Thank you so much fpr the reply. You have no idea how encouraging it is.❤
man. wow-so top .🙂
My baby is tga problem but not delivered 5 month scan will problem in tga but no money july is an delivery... please help me sister 😭😭
Hang in there mama! All these feelings are normal :) sending you love and prayers!