Hey there, I just found your channel today and wanted to say that it has been really helpful for me. I am on a strange journey and have spent the last two years doing test after test, waiting and waiting for a diagnosis. Its gone back and forth between YOPD or "something parkinsonian" and it is simply exhausting. I have read from people online that it can take years before an official diagnosis and it seems like now I am stuck in limbo waiting for a different specialist. In my area they are sometimes booked up for over a year. Thankfully sinemet has been a game changer for me as my symptoms aren't waiting for anyone. Sorry for the long post, I am just relieved to find someone else talking about the same issues that I have had. All the best, - Dyl
@dylspeare Hi! Glad to connect. Yeah it took me 2 years to get diagnosed. I think a lot has to do with age but also misunderstanding our symptoms. I hope I help a little bit
I have just found your channel . Sending all good wishes to you. I have seen the video where you talk about the drug you need and the price it . Just a thought here you thought of setting up a patrion page or a go fund me page .If you had a paypal account people could donate possibly toward the cost of your medication
Hey there, I just found your channel today and wanted to say that it has been really helpful for me.
I am on a strange journey and have spent the last two years doing test after test, waiting and waiting for a diagnosis. Its gone back and forth between YOPD or "something parkinsonian" and it is simply exhausting. I have read from people online that it can take years before an official diagnosis and it seems like now I am stuck in limbo waiting for a different specialist. In my area they are sometimes booked up for over a year. Thankfully sinemet has been a game changer for me as my symptoms aren't waiting for anyone. Sorry for the long post, I am just relieved to find someone else talking about the same issues that I have had.
All the best,
- Dyl
@dylspeare
Hi! Glad to connect. Yeah it took me 2 years to get diagnosed. I think a lot has to do with age but also misunderstanding our symptoms. I hope I help a little bit
I have just found your channel . Sending all good wishes to you. I have seen the video where you talk about the drug you need and the price it . Just a thought here you thought of setting up a patrion page or a go fund me page .If you had a paypal account people could donate possibly toward the cost of your medication