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WoW: Awesomely said and shared. I've been helping PwP's (People w/Parkinson's) since 2016, and it's Unfortunately quite common for PwP's to feel cut-off & confused, isolated & alone... And Hell, The disease itself does that enough through it's involution. THiS is NOT an isolated experience, so for anyone who sees this, PLEASE, since for now there is No Cure, take the time, slow down, and show You care... For now, Community is THE Cure for so many of the Challenges within the Reality that is Parkinson's Disease. Thank you for this thoughtful post, Esther. #keepfighting #unshakable

Would you recommend the vibration plate? Do you think it has helped specifically with PD symptoms?

Me Too. Curls under then can't walk.

Thank you Esther for your videos! They have helped me so much. I have a 37 year old son diagnosis with Parkinson's in Oct 22 but has had symptoms since he was 28-29. He also has a learning disability/autism like that makes it hard to explain or describe how he feels. He also has dystonia and it usually occurs early morning and will sometimes turn into all over dystonia storm which is really scary because he also has a lung disease (pulmonary fibrosis) and this causes him to struggle with oxygen saturations. Doctors are wanting to try him on Apokoyn injections but the cost is $5000 a month our part. But they can't tell us if it will help him or not. Just maybe. We have not found anyone that has been on this that could tell us if it worked for there off times and help with the dystonia.

Thank you for putting parkinsons in perspective. I couldn't have said anything better.

That looks very painful😮

Wooh😮 another symptom to look forward to😳

Find your new normal and deal with it. Don’t look for or expect things to happen . Extended release meds help with side effects. They help to reduce the side effects too. I fell twice in the past four years. I’m living with two fractured shoulders. I don’t let it run my day. I work “around it”. Each day is a new day and a new challenge. Lean and conquer the issues you deal with and don’t assume all you read about is going to happen to you. Peace and happiness 😊

Many would say this is too good to be true, I must say this real quick that it is very good and very true how Dr Madida Sam on TH-cam cured my Parkinson Disease with their PD treatment protocol🌱🌱🌱🌱

Thank you for sharing. I have a loved one I am caring for and anything I can be educated about from people who have parkinsons helps me understand what they are going through and how the meds affect them. Bless you. ❤

I was diagnosed at 67 but have some of the same issues. Very frustrating. I can only imagine how it must be for young people who are still raising their family.

You are a warrior ❤️

Thank you sharing. I am having tremors. My doctor appointment in August 21 2024

I have young onset Parkinson's myself.It sucks Im 10 years out. Meds help quitea bit

I’m surprised that they still let you drive. Be careful, or they will take away that privilege.

Thanks so much for your reply! What brand of mucuna? What dosage and how many? I’ve struggled with meds and diagnosed 15 months ago.

So nice to see a new video from you! Thanks for sharing your journey. Would you be willing to share if you adhere to any special diet and exercise routine? What meds work for you?

Wow I wish mine was like that.

This could explain my pain. BTW, does PD affect your speech?

Foods!

It is a weird condition. I've noticed when my therapist touches the top of my head in energy healing the tremors stop, also during ny weekly neck and arm massage, there are different points that if pressed, the tremors totally stop.

Thank you for your honesty and your courage. I’m a Parky too.

Your sharing is really valuable. You are a voice for many.

Thank you. This does help. I have Lewy body dementia, which is basically the same thing basically the same problems. It’s just comforting to know that I’m not the only person on the planet with similar problems and feelings.

WELL SAID

I love your videos ❤ Thank you 🙏

nice presentation; thank you.

As you look back on this almost a year ago, what changes have you noticed since then thanks for your videos (Roscoe) ❤

Thank you for this. I have LBD-basically the same thing. It’s hard to accept, but it’s not the end. Stay positive, stay strong.

I got diagnosed three years ago. For neck and shoulder pain, I get Radio Frequency Nerve Ablation. Can last up to six months. Hand tremor, constipation, insomnia are some other symptoms. 71 year old male

Talk to your neurologist about focus ultrasound for your tremor.

Seems every day it's something different, yeah resting resting tremor and restless legs but what really worries me is my stomach and cognitive abilities

Thanks for your videos. Im suffering too.

You are a boss !

Brave and real.

Well said ❤❤❤❤❤

Thanks. Bless , keep up the videos……. The fear of the future is what i have also so thanks for saying that

It's extremely difficult to hear you and it's discouraging. This happens with alot of Parkinson's patients videos, and I know its the disease process. Please consider holding a microphone to your mouth so people can hear you. Thank you and God bless❤

Biggest problem- dosing to level. I take sinemet 75 mg every 2 hrs. Spend half the day up and half the day down. I’m 60 and I’m busy . This dosing regiment sucks. Hoping for DBS

Hi dear, blessings that you share. I'm 74. My Mom had Parkinsons, but I'm not sure I'll have it yet. You seem such a sweetheart, take care.

Great video. Sounds painfully familiar.Great job spreading awareness

Your story sounds very much like my experience. I can’t believe they let me walk out of the office without asking if I need any help to deal with it. I was alone and I’m single so I didn’t have anyone to talk to. Best wishes to you and your family.

Thankfully the VA takes care of mine although I still have to get a claim pass them. Best wishes and please keep doing you!

Yep. Our symptoms are very similar. I’m 2.5 years diagnosed and will start meds very soon. I love your videos. I hope you continue the series. Jack Mack.

You are a brave girl 😊

Do you have anosmia too?

I am lost, I don't know where to start VA is taking care of me I guess but so many questions

I have had PD for 31 years, dx at 35. Symptoms affecting work, domestic or social activities can be very stressful and this just makes things worse. There are strategies to help. Another approach is to try to reduce the severity of the symptoms. Here are a few of the many things which have helped me. Speech and memory - I tried learning Japanese. Still a work in progress but I have mostly eliminated speech difficulties. Parkinson's specific exercise. This challenges the common PD movement problems in a controlled and safe environment. Fine movement - asian ink painting and watercolor painting. Learning to play musical instruments. Just now focusing on cello and fretless bass guitar. These are all challenging activities but if you manage your expectations then they can be very rewarding. There is extensive clinical evidence that this is beneficial in most with PD. Just pick something you always wished to do and then justify it as therapy.

What can you do about it? Mine are so bad I can't wear shoes that tie now.. HURTS!!!

Same