#8 That's How I Am - about the Corpus Callosum and ACC

What's it like to live with ACC (agenesis of the corpus callosum)?
Learn about agenesis of the corpus callosum (ACC) from those who have it.
Meet Andie, Anna, Michael, Kody and Michael who will tell you what it's like to rock at life without a corpus callosum. As Andie wisely says... "Thats how I am!"
Everyone is different and thats why its described constantly as a heterogeneous condition.
Hear people describe their disorder of the corpus callosum (DCC). Both these descriptions are used for this diagnosis. It means being born missing part or all of the corpus callosum.
The Corpus Callosum is the bundle of 200 million nerves joining the two halves of the brain. You probably didn't even know you had one but that's how the right side of your brain communicates with the left side.
Some people are born without corpus callosum or part of it. They can be described as having Agenesis of the Corpus Callosum (ACC )or a Disorder of the Corpus Callosum (DCC).

[@mainlittlerock5422]

There's a lot going on here; I wish this was a longer video. Thank you for sharing. So beautiful. ❤

[@ausdoccvideos5692]

Thank you. Check out our other videos. There are some interviews with key researchers who will give more insights into the condition and you can meet some of the other people with lived experience. You may also be interested in watching this. th-cam.com/video/DLpCfHH1OVU/w-d-xo.html

[@danielleohare3364]

My Daughter- Faith. has complete Acc. She is age 12 now. Adhd, Behavioral issues, Autism Spectrum, She can Talk. Her Think to Speak is slower sometimes, she can get Frustrated. She is a Hard worker in Helping Others. Her Strength and or Pain levels is Very Very Strong. She does struggle with her peers often. She is very Senitive to How Others Feel.... 🇺🇸 USA

[@nonametryagain9588]

I also have ACC.
the gentleman in the clip,and the symptoms he explained are just about 💯 percent if what I deal with as well.

[@jaydev536]

Same! i have partial agenesis of the corpus callosum and about half of mine didn't develop. I wasn't diagnosed until a few years ago and I'm in my late thirties.

[@ausdoccvideos5692]

You might enjoy this video too. th-cam.com/video/ZTfa-aKdfU4/w-d-xo.html

[@ausdoccvideos5692]

You might enjoy this video too. th-cam.com/video/ZTfa-aKdfU4/w-d-xo.html

[@seaglassjpl1467]

Looking for a doctor who can monitor a 30 year old man with ACC partial in the South Florida area

[@ausdoccvideos5692]

We are in Australia but the NODCC in the US may be able to help you.

[@himanshupatrawal7798]

My daughter has also born without carpus callosum 😢

[@scottstroh2564]

My sisters newborn was just born with this

[@meeravishnu1847]

Hi mam how old to that kid

[@jaredmatthewmarcos9081]

My baby is born with partial agenesis of corpus callosum.

[@meeravishnu1847]

My baby also born with absence of corpus callossum

[@OTOPORTMUSTAFABADEM]

@@meeravishnu1847 şimdi durumu nasıl beneğinizin? Benim de eşim 25 haftalım hamile ve bebeğimizde acc tanısı var

[@elahaniazi8627]

My daughter also has corpus callosum acc 😭😭she can’t sit and walk