NODCC - "Reid's Story"

This is the first in a series of videos created by the National Organization for Disorders of the Corpus Callosum (NODCC) to heighten awareness of the diagnosis and share the impact of the organization.
Receiving news that something could be wrong during pregnancy is unsettling. A diagnosis of a disorder of the corpus callosum brings a confusing jumble of emotions instead of clarity. The resources and connections the NODCC provides is critical for these families.
Look for the (i) during the video and please donate so we can continue to provide resources to families.

[@thescenicroute5130]

Love this page! Very helpful for our ACC baby

[@bsv103]

I'm an adult with ACC who, like Reid, is outwardly typical. I commonly astound doctors who find out about my disorder. As long as I speak carefully and not too fast, you might not even be able to tell there's something different about me without prior knowledge. I was born in the early '90s, so there wasn't much in the way of fetal testing available. My parents and I didn't find out about my disorder until I was 5 or 6, or maybe 7. I was in first grade.

[@mbellamy801]

Thank you for sharing! I just found out my 3.5 mo old son has this condition. I hope he can love happily and be accepted by others around him.

[@bsv103]

@@mbellamy801 I hope it works out for him. I was never invited to friends' houses, by the friends themselves, growing up. As a result, I never developed the habit of thanking my friends and their parents for having me over, which is biting me hard these days. I also recommend the Living with ACC TH-cam channel, and there's a video by Tanner Hatch about his experiences.

[@mbellamy801]

I'm sorry to hear that. Thanks for the video suggestion.:)

[@charitymaebueno5467]

Hi i just gave birth to my son Francis Angelo,diagnose with holoprosencephaly the doctor told me that he doesn’t have corpus callosum,he is 16 days old now and still here in the hospital for management of his seizure episodes...hope to see more videos from you,i want to learn more about my son’s condition...

[@liveloveblog8274]

bless you baby i hope gona be ok.

[@JinxMarie1985]

I find that the most heart breaking thing in this world is children who have disabilities and terminal illness. So so sad. I just wish they could all be okay and safe. Xo

[@natashabailey5988]

Hi my name is Natasha, i just found out my child has a absent CSP. So , its really a lot to deal with

[@raniyaea7387]

I am 8 month preganant women.in 8th month usg my baby have lateral ventricle dialation and ACC.i want to know more about this situation and it's management.please give information about this situation.

[@girlivinglifex]

Hi . My baby has just turned 2 and he is doing good . Your baby will just need a lot of help and support

[@OTOPORTMUSTAFABADEM]

@@girlivinglifex neler yaşadınız süreçte. Eşim hamile ve beneğimizde acc olduğu söylendi 😞

[@aslammhmd5101]

My daughter also have a corpus collosum she is now 8years old we are struggling with her because we don't have a school no one school hasn't given chance to grow her education 😚 i am from srilanka if you can help her please.

[@aslammhmd5101]

Hi