I have Spina Bifida. My parents didn’t get the surgery as an option except the shunt. But I don’t regret, my parents don’t regret me not getting surgery. I have an amazing life, and incredible HUGE family that support me in any way. Yeah I’m stuck in a wheelchair but it’s ok. So happy this baby gets the chance to walk
I am just so blown away by what medical professionals are able to do for our babies. What an indescribably miraculous procedure. What a time to be living in this world, to witness such incredible medical and scientific progress! Just simply mind-blowing
Today my baby was diagnosed with spina bifida at 25 weeks of the pregnancy I’m praying to god to help me and my wife go thru this hard time we are doing everything possible to stay positive and strong and doing all we can to help our baby girl out and also god to help us and give us a healthy baby ♥️
I'm 18 weeks and 3 days pregnant and we just found out our baby has spina bifida too. Watching this kind of videos makes me more optimistic about our baby too.
Is your baby able to walk? I know ors been 3 years since u last wrote here. im 25 weeks today and can't afford this surgery. Hows your baby doing please?
@@vinzclortho680 Hi, she’s almost 3 now. She’s full time wheelchair user. Half paralyzed from her thighs down. But she’s smart like gifted and very healthy. She only has 1 back surgery and shunt with no revisions or any surgeries after that. Haven’t been qualified for in utero but still thankful. Praying for your safe delivery.
My son will be 22 next week. Born with Spina Bifida. There was only a handful of this type of surgery done back when we found out he had Spina Bifida. My how technology has changed. I will say the Drs. do say they can have this, they can have that...the fact of the matter is...the Drs. don't know. He did get a shunt and with only one revision but he was in his early teens after a surgical complication...he is no longer shunt dependent. He has no cognitive delay. And he does have orthopedic issue but walking with braces, constipation and urological. He is a miracle in many ways.
I have spina bifida and a shunt and im in a wheelchair this surgery is awesome I wish it was available 24 years ago but my mom didn't know that I had it until after my birth
I do know that the general anesthesia passes the placenta and effects the baby. But that is all I know so great question. They must either make sure baby is out due to giving mama anesthesia or give baby another anesthesia.
@@waqarakram2131 my daughter moves her legs but not as much as other babies her age ...yet. But the doctor's say the feeling and movement in her feet are limited.
My baby has been diagnosed with this but on ultrasound he moves hus legs they said it could be mild. im 25 weeks pregnant. how much is this surgery? i heard insurance doesn't cover it. im so terrified!
My baby has myelomeningocele surgery performed almost 1-month-old multiple surgeries now she is 10 months old still suffering the Dr. said possible surgery again for the 4th times due to having a pus.
I have Spina Bifida. I’m paralyzed from the waist down. I have a masters in public Administration and have been married for 4 years to a “normal’’ guy. Spina Bifida is not the end of life. May Allah swt give your sabr and her a good life Alhamdulilah ❤️
I’m sorry but this is wrong in my eyes. I was born in 1980, i have Mylomeningocele and yes it was awful and trying when i was growing up. But, see, going in before you even know what’s going to be the outcome could be more damaging.
Absolutely not. As a parent, you want to give your son/daughter the best possible chance of walking and avoiding any complications. Hydrocephalus is one of the main ones to worry about. Trust me, there's Is more that can come out the surgery than bad.
@@conradhernandez9191 Plain and simple, you took the easy way out. Yes it was tiring, yes i wanted to give up. You all learn valuable lessons through the process. Things were and are just handed to you. DONT YOU DARE CALL IT A HARDSHIP or whine when people turn you away when things get too much! Oh wait, you have a perfect baby😤
I'm sorry you feel that way. You can call it what you want, but I wasn't going to sit around and do nothing and perhaps pass up the chance of my daughter ever walking. And who are you to say whether we went thru a hardship or not?
Olivia's story is the reason I chose to do this surgery for my daughter Nova. Thank you for sharing. God Bless the doctors and staff!
Praising God for giving these gifted surgeons.
I have Spina Bifida. My parents didn’t get the surgery as an option except the shunt. But I don’t regret, my parents don’t regret me not getting surgery. I have an amazing life, and incredible HUGE family that support me in any way. Yeah I’m stuck in a wheelchair but it’s ok.
So happy this baby gets the chance to walk
💕💕🥺🥺
I am just so blown away by what medical professionals are able to do for our babies. What an indescribably miraculous procedure. What a time to be living in this world, to witness such incredible medical and scientific progress! Just simply mind-blowing
I know if a local family that's son had this done, it's truly a blessing ❤️
🙏"For I Have Formed YOU in Your Mother's Womb"💖~Psalm 139:)
Amen
Amen
Amen
This made me tear up! God is GREAT
Please Subscribe th-cam.com/video/7zUgpChWGtk/w-d-xo.html
Today my baby was diagnosed with spina bifida at 25 weeks of the pregnancy I’m praying to god to help me and my wife go thru this hard time we are doing everything possible to stay positive and strong and doing all we can to help our baby girl out and also god to help us and give us a healthy baby ♥️
Which baby u born
🙏
I tried not to cry but it got me at the end 😢 that’s an amazing story!
I'm 18 weeks and 3 days pregnant and we just found out our baby has spina bifida too. Watching this kind of videos makes me more optimistic about our baby too.
ann briggs he/she will be just fine I have spina bifida and I have a healthy happy life
Please subscribe to my son's channel who also has spina bifida :)
Is your baby able to walk? I know ors been 3 years since u last wrote here. im 25 weeks today and can't afford this surgery. Hows your baby doing please?
@@vinzclortho680 Hi, she’s almost 3 now. She’s full time wheelchair user. Half paralyzed from her thighs down. But she’s smart like gifted and very healthy. She only has 1 back surgery and shunt with no revisions or any surgeries after that. Haven’t been qualified for in utero but still thankful. Praying for your safe delivery.
I love this nurse (carol) she was my nurse!😍😢 my baby was born with a heart condition! January 2018
I can help you
Search DOCTOR OLUWA HERBAL CENTER
Miracle in Medical Research
YES a miracle
What an amazing story. ♥️
My son will be 22 next week. Born with Spina Bifida. There was only a handful of this type of surgery done back when we found out he had Spina Bifida. My how technology has changed. I will say the Drs. do say they can have this, they can have that...the fact of the matter is...the Drs. don't know. He did get a shunt and with only one revision but he was in his early teens after a surgical complication...he is no longer shunt dependent. He has no cognitive delay. And he does have orthopedic issue but walking with braces, constipation and urological. He is a miracle in many ways.
I was born in the early 90s
This is awesome! I wonder why surgery for Omphaloce can't be done in utero!
@Michael Skinner I'm a retired pediatric surgical nurse and as of when I retired in 2011, my doctors said it's not possible!
I have myelomeningocele Spina Bifida.
Now you all ok?my sisters son has spina bifida....he is only 5 day old
I have spina bifida and a shunt and im in a wheelchair this surgery is awesome I wish it was available 24 years ago but my mom didn't know that I had it until after my birth
How do they stop the fetus from feeling pain during and after its surgery? Modern medicine is amazing, but that is definitely on my mind.
That's also on my mind they don't give you that much information about that pov i wish they did...
From what I understand the drugs they give the mother crosses the placenta and that makes the baby pain free.
They directly anesthetize the fetus with a needle
I do know that the general anesthesia passes the placenta and effects the baby. But that is all I know so great question. They must either make sure baby is out due to giving mama anesthesia or give baby another anesthesia.
The mom gets anesthesia, and the baby gets separate anesthesia.
So happy for this family.
I have spina bifida too unfortunately the surgery couldn’t happen when I was ingress womb because it didn’t exist yet.
Hey me to
Mandy Murphy ohh how r u doing now ? I have a newborn 9 months now he does not move his legs yet
@@waqarakram2131 I can walk which is a good blessing
@@waqarakram2131 my daughter moves her legs but not as much as other babies her age ...yet. But the doctor's say the feeling and movement in her feet are limited.
My baby has been diagnosed with this but on ultrasound he moves hus legs they said it could be mild. im 25 weeks pregnant. how much is this surgery? i heard insurance doesn't cover it. im so terrified!
My baby has myelomeningocele surgery performed almost 1-month-old multiple surgeries now she is 10 months old still suffering the Dr. said possible surgery again for the 4th times due to having a pus.
Please subscribe to my son's channel who also has spina bifida :)
She is a beautiful baby
Any news of baby girl now?
My baby have spina bifida, shes now 5 months old. Wait for the surgery next february
What were the pre-operative care treatment for your baby? :)
Lucy they cant fix it the bladder, so she will use cateter until the rest of her life ;( surgery just for cut the lump at the bump.
Choti Conner Craft did you have any Physical Therapy intervention before the surgery?
Lucy no
@@choticonnercraft1689 she is fine? I have 5 days baby in this problem pls help me
I abort my baby
Because she have spina bifida.
Doctors says that there is no treatment for this. Im frm kerala
I have spina bifida too
Puggjhghjpig Hdhfggbgb32. Same kid
Puggjhghjpig Hdhfggbgb32. Me too but I can walk do everything perfectly.
I have Spina bifida too
Please subscribe to my son's channel who also has spina bifida :)
My sister's child is suffering from myelomeningocele.The child is 6 years old.We need some help.😭
In jesus name heal this baby heal their family show them you lord my miracle working god ❣❣ the baby is going to be fine 💕
May Allah heal everyone and Grant us utmost health
Seeing religions work together warms my heart, I wish you the best of luck and every blessing for both you and your child ❤️
I have Spina Bifida. I’m paralyzed from the waist down. I have a masters in public Administration and have been married for 4 years to a “normal’’ guy. Spina Bifida is not the end of life. May Allah swt give your sabr and her a good life Alhamdulilah ❤️
Please subscribe to my son's channel who also has spina bifida :)
Know ur baby how to old
I’m sorry but this is wrong in my eyes. I was born in 1980, i have Mylomeningocele and yes it was awful and trying when i was growing up. But, see, going in before you even know what’s going to be the outcome could be more damaging.
Absolutely not. As a parent, you want to give your son/daughter the best possible chance of walking and avoiding any complications. Hydrocephalus is one of the main ones to worry about. Trust me, there's Is more that can come out the surgery than bad.
@@conradhernandez9191 😳 As a 40 year old ambulatory patient.... that’s VERY offensive.
What exactly do you find offensive? Our daughter was diagnosed with Spina bifida. Having the surgery was the best thing we could've done for her.
@@conradhernandez9191 Plain and simple, you took the easy way out. Yes it was tiring, yes i wanted to give up. You all learn valuable lessons through the process. Things were and are just handed to you. DONT YOU DARE CALL IT A HARDSHIP or whine when people turn you away when things get too much! Oh wait, you have a perfect baby😤
I'm sorry you feel that way. You can call it what you want, but I wasn't going to sit around and do nothing and perhaps pass up the chance of my daughter ever walking. And who are you to say whether we went thru a hardship or not?