Temporal lobe epilepsy; “deja vu/ auras”
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- เผยแพร่เมื่อ 28 ก.ย. 2024
- I decided to make a video describing one of the types of seizures that I experience regularly with temporal lobe epilepsy. Feeling a bit crumby so forgive my appearance but DO remember to subscribe! Raising awareness one video at a time 💜💪💜
Thank you for sharing. I have a daughter with Temporal Lobe Epilepsy and people keep thinking she has behaviour problems or needs a Psych. Helping me understand how you feel helps a lot. My daughter has disabilities and cannot articulate as well as yourself. Stay brave, you help and support people by sharing.
I’ve only had these experiences when i was a child, and in my late teens. For me it started with a normal feeling of dejavu, but then very quickly just pulls you into what in that moment feels like real dream memories you’ve had and you remember everything about it. Then boom, it’s gone, and you just feel like you came back from a different plane of existence
Wow! Never knew this was epilepsy until now! No wonder my nurse practitioner put me on meds that help prevent epilepsy. I didn't understand why but I've explained so much to her about myself. Thankfully she pays attention!
I had this too and then nearly always it caused me to faint/blackou when I was a teen.. I'm 44 now and have started to feel them happen again without fully blacking out.
I have the same experience but I also get nauseated and distressed when "come back".
I’ve always described it as feeling like I’m slipping into another dimension. I had no idea these were seizures until I started having tonic clonic during sleep.
I get deja-vu. A smell. A feeling like I’m falling. And a perception of looking at myself from above.
All at the same time.
Omg you are literally the 1st person who was ever able to explain what happens to me!! Mine sometimes wake me up in the middle of the night and are super scary. Sometimes they happen in the middle of the day and I try to tell people what it feels like and they look at me like I'm nuts. To me it feels like DeJa vu mixed with remembering my dreams and they're usually the scariest dream ever I'm remembering and it feels like I'm in actual hell. I always say "I wouldn't wish this on my worst enemy." I also get visual auras where its like there's a ripple in my vision. Usually that goes away only if I go in a dark room for like a half hour with silence like a migraine. Super scary and I'm sorry you go through the deja vu part too.
Sorry you’re dealing with this. Do you take any meds? I hope you’re feeling better
@@diannadolly I don't take anything currently. Thank you for that
@@jeterman29ny well i hope you're doing better :)
Meds do help, but unfortunately this is one of the more challenging versions to manage.
Omg I also woke up from dream once and had this feeling so Weird
I've been getting these since I was a child. Never knew what it was, called it "Deja Vu's". My parents didn't really believe me when I explained it to them! Feel so much relief hearing I'm not alone!
Can u explain how urs was? I feel like everything I see I remember it. I feel like I have seen it and then I sit down and start to think where have I seen this. ITS LIKE THIS With everything in my life. It’s so exhausting I’m thinking all the time
Same here, had it since I was a child and referred to it as “deja vu seizures”. My parents didn’t see it as something serious either, but I got checked for epilepsy two years ago In order to figure it out but they found nothing. I think this type of epilepsy isn’t very researched on and there’s little knowledge about it sadly.
I just forwarded your video to my wife to let her know what it feels like for me because your description is the best I’ve heard. I’ve learned to sit down immediately. I have also found if I’m dehydrated and or lack of sleep they are more likely to occur. Good luck young lady.
The best I've heard too. Thanks April.
"injected into a dream" is perhaps the best analogy to describe an aura that I have read 👍
I have these exact same seizures. 20 years now. It’s awesome to know others understand the same experiences.
I’ve been trying to find people who can relate to this experience for a year now, and I’ve recently found so many of you describing exactly what I experience. I had no idea that seizures could look like this, THANK YOU for sharing. I’m making an appointment with a neurologist asap.
FINALLY!! Somebody describing exactly how I feel.
I just started having these symptoms. I sound freaking crazy trying to explain it to people. My doctor doesn't even have an answer for me. That's why I'm happy I found your video. At least I know I'm not alone or crazy.
Mr. Awesome Cat Fuzzypants I kept it to myself for years. I started noticing a pattern in all of it but I still had a difficult time trying to describe it out loud. I would tell my family about it but it never sounded serious to warrant their concern, just ‘hmmm that’s weird’. I felt like I was seeing a dream in my head of something I felt like I dreamed before. Everything felt like it had happened before. Sometimes there would be words or phrases I was hearing in this dream state but I couldn’t even tell you what I was hearing. As it would come on, I would suddenly get very hot and slowly I’d feel sick in the pit of my stomach. And this overwhelming sense of doom would rise and it was terrifying while it was happening. Some are worse than others but when it’s happening, it feels like the world is ending. I would also smell a weird smell that I couldn’t describe either. Then as suddenly as it came on, it would go away. For years, I just figured it was something I would just live with and manage them by fanning myself until it was over. I didn’t really tell the doctors because it honestly just sounds crazy. Some people thought I was just having a panic attack but I knew that wasn’t it. One day I decided to google search exactly what I described to you, and I found temporal lobe epilepsy. My self diagnosis was eventually confirmed and an MRI showed that I have scar tissue on my temporal lobe which is what is causing the seizures. I can’t tell you exactly what triggers the seizures but I know stress, stimulants like caffeine and sometimes certain lighting trigger them. I notice I have them more often around my menstrual cycle as well.
I started having similar symptoms when I was 12 years old. Then it would happen every once in every few year. It felt like the worst tummy pain and somebody put poison in my mouth. I didn’t know to describe it or never been to doctor for this.
I started having these sort of auras years ago. At first they happened only once in a great while. Over the years they became more frequent with additional symptoms. I never took medicine since I wasnt losing consciousness. 10 years later the auras led into grand mal seizures and now I have no choice but to take medicine everyday 😩 but at least no more auras or full blown seizures
@@ilovedyou88 can you stop these when they first start so they don't get worse?
I am also a victim of it...Surely...I have synesthesia and I see people's aura and object's halos ... I am seeing multi familiar things also...But it is a common thing...1/3 of the world have it...But we are the safest ones...We are lucky to have it because we have the warning from our inner intuition and that allows us to be protected and in a very safe place...That's how auras attack.
Hey! I was just diagnosed on May 12 2019. I have trying to find someone who understands. I haven't had my EEG yet but my neurologist feels that will give the answer. I have been struggling emotionally, short term memory loss, nauseous, uncontrollable pain in my head and leg. I'm so tired of it but I know I have to live with it. Your videos helped me tonight. You saved my life. Thanks.
Those are all symptoms of severe anxiety
I did EEG the problem is that it’s just watching for brain activity for a certain timeframe, which usually doesn’t reveal much since the abnormal brain spikes are rare for some ppl like me.
@@isabels2973 if this is anything like what I have, it’s definitely not anxiety! I can actually feel the misfiring in my head. It tingles and tightens up in my temples and goes across the forehead. Is it triggered by anxiety, ptsd, abuse, head injuries? Possibly! Although it’s not anxiety alone! Definitely neuro and misfiring! I’ve had two separate , 2yrs apart, 7 day 24 hr EEGs that shows it.
i suddenly get deja vu and a sudden roller coaster feeling that makes me feel nauseous and hot for a minute. while it happens i kinda stop in my tracks. the tiles on my floor and sometimes the lighting in the room or the smell might trigger me. it feels like im put into a dream (but i cant even remember when i had the dream or if i even had it). it goes away after 2 minutes at the most but after i have it i try thinking about what actually happened and i cant describe it to anyone. the 2 worst parts are the nausea and the fact that i feel i cant really go to the doctor and get a proper treatment if the doctor is incompetent and that itll get worse and i lose my memory and stuff
I've been watching youtube videos of every topic imaginable for years and this is the best one I've ever watched because I don't feel alone or crazy anymore. Describing it to anyone is so difficult, and I'm good with words. Thank you so much for taking the time to verbalize the sensations because, I know all too well, it is so hard to do. The way you describe it is exactly how I experience it. I'm not on medication and haven't seen anyone about it because, though I've had them for years, I can go months without them. Anyway, thank you so much for giving me someone I can point to and say, hey, look, she has them, too.
I appreciate the way you tell it as being "injected into a dream" and the "story set up" is a perfect description. Unknowing I had epilepsy, when I was younger I'd describe it "I'm going back into an old forgotten dream, I've been here before, but it was in a dream". I called them flashbacks. Thank you for sharing, April!
Thank you both, I have this exact thing. The flashes of a dream you can't remember having is exactly how I feel. I always tell my wife that it's like i remember all the dreams I ever had and that its so scary that if these really are my dreams, that I dream this much. Also, whats really odd with me is sometimes at night when I dream, I literally feel like I'm in the dream for like months or even years. I wake up and its like I was in a coma for years or something and it really freaks me out bad.
This is exactly how it happened to me too. It was so strong I felt nauseous
This! So I’m not crazy.
@@alyssalynn2040 I throw up every single time!
I'm getting an EEG because of videos like this that so intelligently described something so similar to my experience. Infected into a dream does describe these episodes I have of sudden dream recall and it's a lot like those deja Vu feelings and sometimes they're followed by a sudden sense of impending doom. I feel like something is messing with my head sometimes. But it has to be like this And I wonder if they'll have me do a sleep deprived EEG or how it all works. I'm nervous but I want answers.
You hang in there sweet girl! I'm beginning this journey in my late 50s and it's not fun. I am praying for you. 💖
I had those when I first had epilepsy. I know exactly what you are talking about! So many doctors ignored it!
Best description I've ever heard. I've had "deja vu " as long as I can remember. I was told that it was because I'm an old soul and have been reincarnated many times. Then I explained it to mt neurologist after my first public seizure and he explained that it was an aura. My wife takes video and talks to him for me since I very rarely remember anything. Apparently I have a few different types. It is scary and I'm not legally allowed to drive making life even more difficult and scary. But I wouldn't want to put others in danger either.
Thanks for sharing. You just described what I am going through and it really is hard to explain. It is scary because it feels like your brain is being taken over. 😕
Very good description, it sounded like you were exactly describing my experiences with TL seizures.
The sudden flash of something “injected into a previous dream” is spot on. Also the depersonalization.
Thanks for sharing your story, it’s good to know I’m not alone.
i’m 14 i have this too and it’s frustrating that people think i’m just insane trying to explain it to them but my main question is if i should be worried
Exactly how I feel with these weird Deja Vu attacks. It happens all of a sudden. First I feel I have experienced that current moment before, then I get into a partial dream like state, and then in a minute when the dreamyness is gone, I feel panicked for next few minutes.
And usually in that panick stage, I can experience a smell overwhelming me. and when the panic is gone, that smell is gone too.
It really does come on suddenly doesn’t it? I get a weird taste in my mouth that goes away afterwards, it sounds similar to the smell you’re describing
Everything you said is so accurate to what I get. How you explained it as you feel misplaced and not in the real world sense. Also, how it is so familiar and nearly like you’ve been their in a past life
I haven’t been diagnosed but I have just turned 18 and I can remember having these ‘flashbacks’ or as my dad calls it ‘déjà vu’ moments for years. I feel as though mine come from things that trigger something inside me, I can feel it starting and a majority of the times I can stop it, sometimes I can’t stop it and sometimes if I feel safe and in the right place I let it be. But, it is scary! If I’m alone I feel as though something is going to take me away from this life, I hear voices and think I see these imaginary characters nearly like people are trying to abduct me and I feel as though I might die. I also feel as though when I get this that I am fully aware and not impaired, so I can do anything and I’m able to do everything but it feels like sometimes I’m not in control of my body and it feels as though something will happen. For example, today I had one and it was when my father was driving me to go to dinner, it happened randomly with no tell tail signs and I felt as though I was going to jump out of the car(even though I wasn’t and didn’t have the urge to) but it was like someone was trying to control me. I don’t know if anyone can relate but I’d love to hear what you guys have to say as it is something I am coming to terms with and trying to understand. The most important part is that I am in control and most of the times I can fight it when I feel the sensation start.
I've been looking for this description for 30 years. Exactly what I've experienced
I started experiencing these type if deja vus when I was 18 years old.. it stayed at that until december of last year when I had my first epileptic seizure.. I honestly don’t know what’s going on but thank you for sharing this video🙏🏻
Thank you for the description. It has now given me the words to describe it to my GP and psychiatrist.
I'm 55, writing from Italy. I've tried to describe this stuff for 40 years. Those 'crisis' started when I was 15, in 1979. They went on for 5 or 6 years, then stopped for a while and came back when I was 24. After a couple of years they were gone. Sometimes I still can 'smell' them coming, but they don't. I seem to remember a parrot and and a white corridor, the feeling of deja vu was unpleasant but I had to go through it all, there was something irresistible. After each crisis (sometimes 4 or 5 every day) I felt exhausted and sweaty and all the 'dreamy images' were instantly impossible for me to remember. I'm very touched by your video: after 40 years I've found someone able to tell my story. Thank you, and sorry for my bad english.
Thanks for making me feel better.. I feel so crappy due to seizure auras/deja vu. I literally get them so often and they are the same repetive thoughts as well. I loved the video very relatable. We'll get over seizures, fighting! 👍
I know exactly what you're talking about....
Thank you, April. Awesome job describing the experience! Very difficult to explain to others. I get a lot of comfort hearing others talk about it and that I'm not alone. We'll get thru this together!
I get this same exact feeling with the auras. I've been having these partial seizures for years (probably 11 or so years). I'm conscious throughout and can speak etc just very confused and find it hard to string a sentence together. I get the 'dreamland' feeling u describe too where I can be sat in my house and know exactly where I am just everything seems very strange and a little unfamiliar. I've have an MRI and EEG with no luck of diagnosis so far. I assume it is from a traumatic brain injury i sustained when I was 10 years old. Maybe from, like you, scar tissue on temporal lobe.
I don't know if you will see this comment, but I just wanted to say that I really appreciate your courage to share this online even though you sound like you feel so vulnerable. It really helps people like me who are not familiar with epilepsy learn what symptoms may look like, and it looks like there are a lot of people in the comments going through something similar who've found comfort in your video. Hang in there, I hope things are better now. All the best to you.
edit: I was just reading all the comments. you are doing amazing things, honestly changing a lot of people's lives. stay strong!
My first episode of 'extreme de ja vu' started last year. I hate explaining it to people because they probably think I'm crazy. But it's as if you're remembering a dream, like it really happened, over and over again throughout the day and your brain is just adding extra elements to this dream, sort of like dreaming when your awake? alongside your stomach rising and feeling sick, sort of like the feeling in your stomach when you go on a rollacoaster.
I had a brain scan last year which appearently showed no abnormalities. I had another set of episodes a month ago, Dr refusing to see me as they literally care about covid only right now. Today they've happened again, I feel silly but I've had a good cry, because I find it so scary and I know if I ring the Dr's monday they will fob me off again. They don't seem to understand my symptoms 😞.
I don't have family history of epilepsy but I getting déjà vu many times but I also think that's my anxiety because one day I get déjà vu then I research about déjà vu and I also know about epilepsy then I saw a "real" video of temporal lobe seizure then I scared to get seizure then I getting déjà vu like feeling for some nanoseconds. I am scared because I also have anxiety disorder and I think anxiety can cause seizure.
The irony for me here is that mine started when I got covid, that was almost a year ago. But everything this woman has just explained Is what I experience when I told the doctor he said its long covid, I'm like know. I know full well what is is, it's time to bite the bullet and go for a scan
@@chhandameher6445how are you??😢
I have these too and was diagnosed with Epilepsy. Which turned into a Grand Mal seizure in September. I feel silly for wanting to try for disability, but it has become more than just a temporary thing. After they happen, I’m no good. I’m exhausted and weak. I have three babies, so I have to just go go go. But the thought of working a job and holding down a job seems impossible. Even one less physically demanding because of how bad these have made my memory. I’m constantly forgetful and struggling with holding a decent conversation.
I’m stuck between even trying. I feel like since it’s not constant grand mal seizures that DDS would laugh at me for even attempting.
I put in an application and waiting on a decision because I feel just like you... my neurologist have had to up my dosage twice since I had my 1st seizure almost 2yr ago
I have been having seizures for a few years now. They have been changing lately. I have been going through this aura you are having plus auditory issues, feelings of anxiety and hysteria, chest pain... I am praying for you. Thank you for posting this. I feel less alone now.
It's always been difficult for me to describe as well. Even last night (June 13) I got that "Deja's vu" at work, but couldn't describe it to my coworker, then I had one of the biggest seizures in the last 6 months. Afterwards I didn't remember a thing and could hardly move, think, or speak. I barely recognized the two coworkers who were helping keep me from getting hurt during the convulsions for 15 minutes after it ended
When I first started having temporal lobe seizures I had this same feeling compounded with a very strong smell. Over the years my auras changed to more of a strong thought or memory, if I give in to thinking of this thought or memory I have a seizure. Sometimes I'm able to avoid them if I change my thought process, like start singing a song or anything to get the urge to think of what I'm trying to remember out of mind. I know it sounds strange and I don't know anyone who has this type of memory or thought aura.
i’m exactly like this.
On occasion it’s happened to me and I must stop listening to a song that brings back an old memory because it triggers the seizure. I didn’t know anyone else had that issue.
I also have this same problem
Thank you for this video. I feel happy at least someone know what i feel.... When its happen. Thank you so much. Lets survive soldiers. 💪🏻💪🏻
Ever since I could remember I thought I had psychic powers. Turns out it was just temporal lobe epilepsy… *womp womp*
watching this actually made me bawl, i am 18 and struggle multiple times daily with the temporal lobe seizures very badly because of a 45 minute grand mahl seizure
Get better lovely - you are SO strong.
Lovely video, & thank you kindly for it. Been having this problem for 6yrs now myself, it's nice to know I'm not alone in this myself. Things can get pretty emotionally hectic sometimes. I hope and pray 2020 can be a better year for you and us all,
Thanks for sharing. I had a recent diagnosis of focal seizures and it’s been difficult to describe. God bless friend we will get through this
I know exactly what you're talking about; I get an almost identical series of events when I'm having an "aura". When I get one, I tend to get several a day, hours apart, for a few days. I can't properly communicate; my family has learned that, when I'm silent and start making random repetitive movements, something is up, and they keep an eye on me. It's terrifying and simultaneously fascinating.
Thank you so much for sharing what you experience in those symptoms or what my doctor call as "auras". It just made me realize that I really am not exaggerating for the same feelings like deja vu and that "injected into a dream" feeling until this time. Though my medications have decreased my generalized seizures, these auras are still in me. Hope we get through this together.
Thanks for sharing your experience along with history and the symptoms. Wish you full recovery and good health.. I'm also epileptic (tonic-clonic seizure) since 11th of February, 2019 and the journey is really is really difficult and feels pessimistic most of the times. Because of the insecurity you feel that doesn't let you believe on your oneself..Better if you note down the triggers, situations and things that triggers seizure can be easily avoided. And please set your diet plan, its really effective.
I hope you're doing really well. I started getting them from decongestants. I collapsed in September and was unconscious. All tests came out good. They recently started again and they are terrifying. I've been depressed and hope I don't lose consciousness again. I got hurt pretty bad. Anyway, thanks to all for sharing their stories. I'm sorry anyone is going through this, but it's comforting to feel less alone. My best to all.
This is exactly my life. I live alone and before treatment, I had an avg of 6-8 complex partial temporal lobe seizures a day. I've tried several meds and am on three right now but the game changer was the ketogenic diet. Now, I only have clusters every 2 weeks or so. Rarely, they generalize. My advice: get all new kitchenware that has automatic shut off, e.g., pressure cookers, toaster ovens, quick boil kettles, etc.; get on the keto diet; get to know all of your neighbors; carry at least two days worth of your meds, 8ncluding rescue meds with you (you can get spare bottles with correct labels from your pharmacy), wear a medical bracelet, and keep a journal of every aura & sz you have in your phone's calendar.
I'm searching the answer of my condition for years. And at last I found this video of yours. Mine just kinda mild I guess. I experience this weird deja vu maybe twice or thrice a year. Everytime it attacks me it feels like I don't feel myself and I'm deafening like it's really like a dream. Then things start to look even more weirder. I can predict the sentence which the person/people around me talk about. Pretty weird, really. What's more weird is that the sentence they spoke is exactly what the people spoke the last time I had an extreme deja vu. I don't know how I did it. Later on I can feel that it's very hot around me and I'm starting to sweat a lot. Then I feel like I want to sleep, my body's so tired like I wanna rest. Really weird. Hope I can counsult a doctor soon cause I'm really worried about my condition even it just occurs twice or thrice a year.
My first "episode" as I grew to call them, occurred around the age of 26?ish?
I like the way you described the experience, because when I attempt to it doesn't go so well, and I too end up sounding like some raving lunatic.
Question : after the deja vu, I experience this MASSIVE wave of euphoria that consumes my entire body. It is actually a very enjoyable experience if it weren't for the mystery of it all. I want to know if you or others get this wave as I do.
I would get the euphoria, and it was a really pleasant experience, but the headache and confusion that followed an episode was awful.
@@dadsstuff5562 hmm, I never suffered any headaches, but I was never prone to them either. But yeah, I find them to be a pleasant experience, save for the unknown aspect of it.
I don't have more than half a dozen a year but have had one a day for the last 4 days. The oddest thing though, after the last one is the euphoria. That is new and, what is oddest about it, is that it is still with me two days later. I just feel happy, more in the moment, sensing my surroundings more. Anyway, I'm glad that you mentioned euphoria because no one else did.
@@kevinwhite9195 it is the most Intriguing part of the whole experience.
@@kevinwhite9195 do you get the deja vu before each experience? It happens every time for me.
Wow, this video was great!!! I am going through the same exact thing----for 50 years. You will make it! I have had soo many seizures of various types, but the way you describe the deju vu kind is spot on.
Thank you so much for this video. You've helped me so much, I've never been able to put into words exactly how these symptoms feel but you've hit the nail on the head. It really is like Deja-Vu in like a daydream form. I used to get it bad as a kid, roughly 8 years old, but it soon went away. I'm 24 now, and it's started coming back.
However now I'm going to be able to go to the Doctor and explain myself now. I honestly can't thank you enough!
I hope you're doing okay!
I had my first one last night. I usually have grand mals. It was honestly terrifying and the most confusing thing I’ve ever been through. Thank you for talking about it. I’m still so new to it. It helped me understand it more. Thank you
I'm in the same boat with seizures. Praying for you 🙏
Thank you! I don't get out much either. Be well. Yes we are friends.
Going through this today... Was diagnosed last December.... I started a new job last month and think I've over pushed myself too hard this month, had a déjà vu seizure this morning... Head is all foggy and I keep repeating myself to people without meaning it... The worst part for me is the headaches I get a few hours later I feel like I can't move.... I hate feeling limited in my life due to my illness 😞
Thank you so much for the way you’ve describe what’s happening to you. This started happening about 3 years ago. My doctors said I was having stress seizures. I did some research and it kind of described what I was going through. But I knew it wasn’t everything I was experiencing. I started crying when you talked about twitching And the way you talked about being injected into a dream. Because that’s a indication, that I’m leading into seizure. I have felt so alone for the last three years. Thank you so much for making this video. And making me feel like I’m not alone.
Thank you so much for posting this. I've been having these deja vu experiences intermittently since Feb this year. I had my first tonic clonic seizure in the supermarket a few days ago and am awaiting a neurology appointment. I felt I was going mad and am so relieved to find other peaple who understand how these episodes feel. Take care xx
I had a weird dream about two months ago that felt pretty realistic. It wasn’t until about a couple weeks later that the dream came true, and ever since I’ve been reliving the dream. So I’ve been experiencing constant deja vu for the past few weeks. Ever since then I’ve been afraid to do anything because I’ve been scared that something bad is going to happen to me. I’ve been trying to figure out why I’ve been feeling this way, and I just now learned about temporal lobe epilepsy. After reading all the symptoms of this, I believe I have it. I’m now 20 years old and I just moved out from my moms house. I’ve told her and my father about this, but they haven’t really said anything about it. I’m really not sure what I need to do about it. I know I should go to the doctor, but I’m unemployed right now due to covid and I do not have insurance. So I do not have the money right now to even go to the doctor.
Thank you for describing what you have experienced! I am having a difficulty explaining to doctors. Hopefully I will get some answers soon
You are describing exactly what I felt as a teen when I would have a LOT of these 'episodes'. I was taken to a doctor and they did a EKG brain scan thing but nothing ever came out of it. I remember actually passing out once and luckily my friend was there because I hit my head when I fell. I had to lay down for hours afterwards I was so tired. But when they weren't that bad I remember that feeling of being hot towards the end of each episode and afterwards. The uneasy feeling during it of approaching doom, but also that everything was very familiar and also feeling numb to everything. I had never heard the term Temporal lobe epilepsy until now. I hardly have any episodes now (I think) but my memory has gotten way worse over the years.
If you've ever felt one of these you should pull an all nighter and then go in for an EEG. I came a cunt hair away from literally dying one day because I almost drove home from work because I was having "panic attacks" but someone else drove me home. I had a grand mal seizure in the car, the "panic attacks" were focal seizures in the temporal lobe.
I’ve had one déjà vu seizure that I can remember. It was really really weird. Like I can’t even describe that feeling. I get a lot of the ones where it’s like when you have one of those dreams that you think you’re awake and all of a sudden things get really eerie I will be disoriented like I can see like my eyes are open and I can see their things around me, but they just don’t process. another annoying one is the sudden fear like when you’re dreaming and you have done everything you would have when you woke up but then you kind of feel startled like something is very wrong because it starts out like that and then then I kinda start over really bad.
I had an MRI yesterday. Ive had depersonalization and derealization all through highschool and anxiety and depression. My mom says its anxiety but lately I feel very weird. What I experience is almost like an acid trip... things distort and look like a fishbowl lense. I get extremely paranoid. Straight lines look wavy or grow amd shrink. Things look close and far away, change from 2D to 3D. I get extreme vertigo. I then can hear voices and wierd intrusive thoughts like sometimes ill wake up from a nightmare that feels like I've had it before a long time ago and my body will feel tingly and wirey and electrical. And my head will feel loud and scary. They can be my voices or other peoples voices. And I will have wierd thoughts like pandas like pickles and theres a girl in a red cloak out on the sidewalk. Why is she out on the sidewalk? Legit word sallad in my brain. I just think up random words and sentences and it is tiring. And sometimes I will laugh and cry and get super tired and drool. And I can feel my eyes blink a lot, I see weird colors when I close my eyes and patterns and faces that are scary. I know they aren't real. I thought i was schizophrenic so I didn't tell my doc at first. I thought it was then sleep paralysis but that doesn't last off and on for 3 hours and me being delirious and conscious. Cuz like it also happens during the day. Ive also had convulsing and tics in my hands and shoulders or head that I cant control. I feel like I'm legit going crazy. Im always so tired and confused after they happen and I want to sleep. It could be siezures. I dont know. Time will tell?
I have those "deja Vu" feeling and I break out in a sweat on my back and palms. Then I'm drained. Exhausted. My mom has full body seizures. I'm tearing up, thx u! It's scary. Ppl don't understand. I feel bad, inadequate wen I can't remember certain things I've done with the kiddos..
I really appreciate this video. It’s hard to explain what happens to me when I get a seizure come on. And you explain it perfectly. Thank you. Stay safe
OMG first time I can hear exactly what I feel.... That s a real other world during this times and.... Ya.. Thanks to explain that with your words, bless you 🙏
This is the first time im hearing this described and thats exactly what i started having after a grandmahl seizure OMG
Thank You!!! This Really helped and explained A Lot of what or how I can describe to my family of how I feel. I had my first chronic seizure 16 months ago and have these minor episodes I can not explain.
I started having these déjà vu feelings myself and as an added weird bonus I have recurring feelings that it’s Christmas or 1989, these feel similar to the déjà vu like it’s a very real memory or dream (but it’s not) and I feel strongly that it’s Christmas or 1989. Sometimes it’s sort of the opposite where everything seems unfamiliar like my surroundings don’t seem recognizable even though I am somewhere that I should definitely be familiar. Sometimes these things happen after a brief period of just feeling kind of weird like I know somethings about to happen. I have multiple sclerosis and I had a severe relapse with several new brain lesions and after I told my doctor this had started he is ordering an EEG because he thinks I may be having temporal lobe seizures. Such a strange feeling. I had no idea it could be seizures because I didn’t realize something could be a seizure without the person losing consciousness and things like that.
Omg! I have these exact same feelings! Did they ever figure it out?
I don't have family history of epilepsy but I getting déjà vu many times but I also think that's my anxiety because one day I get déjà vu then I research about déjà vu and I also know about epilepsy then I saw a "real" video of temporal lobe seizure then I scared to get seizure then I getting déjà vu like feeling for some nanoseconds. I am scared because I also have anxiety disorder and I think anxiety can cause seizure.
I started having these 16 months ago. I have diligently as each of you have searched for answers. Vitamins, cutting out sugar, no caffeine...one thing that helped most was getting my blood pressure down. It was a little high. I am curious do we all have something in common.
Recently I had an MRI which shows a benign tumor in the left side of frontal lobe. Next is process to get it removed. I hope this helps some of you
I hope your journey is going well
Thanks for sharing. I have these experiences too, although thankfully nothing further than partial seizures but can relate to how you describe it. For me i can feel it coming on and can’t stop it and almost willingly try and make it happen which it’s strange in itself. it’s very much like deja vu, but more like I’m remembering a very vivid dream or an old movie or tv programme which I’ve been inserted into, and I’m trying to understand it and then it starts to fade and after I can’t rememberer it. It’s then followed by a strong sweet smell sensation and I feel nauseous and totally out of it. When I get my episodes I tend to have 3 or 4 in a day, but it only seems to happen to me once or twice a year. I don’t know what brings it on, but it’s maybe when I’m feeling stressed, haven’t had enough sleep or feeling down. It kinda wipes me out for a couple of days and gives me pounding headaches. Once I had an episode whilst at work and someone asked me a question and I wanted to speak but physically couldn’t. It’s so hard describing this to people so thanks for the video
I hate the deja vu because it comes with an intense feeling of fear. I'm happy I haven't had them in a long time thank to the meds. They made me freak out.
i have this too... and then it goes away for quite awhile and then its back again...
Sending my love I know exactly how it feels. Best of wishes, I subscribed
Kakolukia thank you for the comment! And thank you for subscribing 💜☺️
Ive had these for 20 years and had 2 leading to seizures when they first happened but havent had them since. I felt like i was one of very few if any. Just finding out this is more common than I realized. Thank you for sharing your experience.
I absolutely have this too. It's impossible to explain, it feels strange yet soothing in a strange way I'll sometimes see people from my past when it goes deep ( not every time) and I'll recognize them when it's happening but not after it ends I know I recognized someone but not who it was.
Sometimes hours later I'll have a horrible headache, it took me a long time to realize they were connected. I always say to my wife, that deja vu thing is happening even though it's not deja vu it's the closest way I can explain it. I don't get seizures but I do suffer from vertigo. I wonder if it's related. I really like how you said injected into a dream. Thank you for making this video 😊
I understand this euphoric sense you describe. For years I always called them “strange episodes” but I felt familiar with the images I was seeing. Wasn’t until I had a tonic clonic that it all made sense. I tell people I’m being visited from another dimension 😁
So sorry for your illness and thanks for this video.
I feel lucky that sof at I'm only getting what you describe here and not the full seisures like you.
Stay well, and I hope it improves
Thank you for sharing this. It's not something they go into detail in nursing school. I really appreciate your explaining what it is about.
Lol. I feel so stupid trying to explain it to people. Everyone thinks I'm nuts! Just know that there ARE people who understand. Good luck with everything. Thanks for the video!
I've had many of these over time. My pet name for them has always been "whim-whams", but they are just what you're describing. It's always felt to me like a nocturnal-style dream (not a mere daydream) was invading my waking consciousness. Yes, it's dream-like, and yes, it's very familiar-seeming with a powerful sense of deja vu. Yet, when it's over, it's difficult if not impossible to remember anything about it, other than the knowledge that I just had one. I don't lose consciousness or awareness, and can even carry on conversations when it's happening. Turns out I had severe obstructive sleep apnea, and probably wasn't dreaming very much at night. The whim-whams almost felt like my brain hadn't dreamt enough of late, and was forcibly "dreaming" a bit while I was awake. I ended up on CPAP, and the frequency of these whim-whams decreased dramatically. Years later, for restless leg syndrome, I began a regimen of gabopentin. With both CPAP and gabopentin, these phenomena are now extremely rare. Hope you find a path away from these episodes. Stay well!
I've been having these for the last couple of years, I have in my prayers 🙏 too. I also wish tomorrow is a better day 🙏
I never thought of describing them like this 😅 thank you! I also quit having these about 10 years ago
wdym you quit? did they just stop?
I get these horrible episodes, and the neurologist found nothing in brain imaging, but they come back about once a year. I have a fleeting image or memory that I try to place, and there’s a panic as my brain lashes out for an answer. Always in winter, always when I’m stressed, usually Sunday evening.
I hear voices & feels like a dream but which is happening when ur awake
You’re not crazy I go through the same thing. Even what I call “remote viewing”. I have lost friends, been rejected by family etc.
Don’t worry my life is great just epilepsy can suck the life out of you from fear.
Stay strong.
I hope that you are getting better. Tonight is the first time I found other folks dealing with this exact strange thing. Going to make an appt with a neurologist. Thank you .
I know how you feel I just found your video just girl diagnosed with epilepsy this year 11 years I got missed diagnosed.
I know exactly what you're talking about I have recently come down from some meds I was taking for my seizures I thought I was doing well but I was wrong I'm starting to have them again.I hope you're feeling better i send you much love.it's not an easy condition to deal with God bless you.
I couldn't even describe it. It felt weird and somehow my home felt "different". When it ended I couldn't remember what it was like. The longer ones I was able to remember but when I described it, it felt weird to me too and it made no sense to myself but somehow when I was in the aura, it all made sense that time.
I am not even making sense now😅.
Had these for lot of my life / throughout childhood. Sometimes would get a jamais vue feeling where I knew where I was logically but an unfamiliar feeling would wash over me.
After being quite depressed for some time this got much worse and for a couple years I started to lose consciousness during these episodes. I would stick my hands in food and mumble to myself or others, and peed my pants a few times, would come out of it with no recollection.
I took seizure and anti depressant meds for about a year. But eventually stopped taking all meds and have had ZERO symptoms or recurrence in about 6 years. What worked for me was a. Generally working on my mental health and b. Deliberately focusing on the moment and forcing my mind away from falling into that dreamy state whenever I felt something coming on.
I hope it never comes back, those were scary times. Good luck to all of you coping with this experience.
I've been having this experience since I was 10. I have maybe 2-4 episodes per year. I first had this experience when I got pneumonia for the first time and find it seems to happen most often when I am either sick or falling asleep or just waking up. Intense deja...extreme deja vu. I feel like I keep feeling or experiencing a story or dream that I have had for my entire life. It's almost like my conscience is showing me everything or every piece of knowledge in the world...my past, present, future. I feel like I have done this all before. There are images of people or a person that I can't put my finger on once it's over. It's amazing and horrific at the same time. My mind backpedals out of it out of fear I guess. I don't have the twitching during or after, but when it's over I can't remember what I want to explain and I often feel foggy as hell and nauseous. I went to my mom crying as a child and she started describing the exact same thing. Turns out she and my great grandmother share this. My takes more of a psychic element to it than a disruptive physical one. I wish I could explain it better but I've never really been able to fully describe what I want to say because what exactly happens during these episodes...I forget and cant describe. Maybe this isn't what I have, I have been searcing for people who experience similar.
This really does perfectly describe the way I feel
i get seizures 2 and thats how i be feeling too. ill be feeling like im trapped in my mind when im tryi g to sleep. its anoying
Celljony Its definitely SO HARD to describe but I know just what you mean! 💜 thanks for the comments!
😥😥🥺🥺 sometimes it's scary to go to sleep for me
It's very hard for me to covey the feeling to people who ask but you explain the experience so well.
Thank you for posting this, although I wouldn't wish epilepsy on anyone it's reassuring knowing people are dealing with the same thing and getting through it.
I wish you the very best and hope you've been doing well!
Well said, quite a terrifying experience. I know how you feel.
Good description.
I've always said mine feel like a realistic false memory I can't place, then I get sucked into it and start feeling nauseous etc. My anxiety is gone afterward though. But I can't form a coherent sentence, even in my own mind.
Recently I realize I get irritable leading up to one.
Had an episode today. Was in a gun shop looking at shotguns and had an extremely strong dejavu. Was thinking I need to just sit down on the floor. Next thing I knew I was laying on the floor and a couple guys asking me if I was ok. I got up and told them I was fine. Been really tired all the rest of the day.
When I used to have seizures I would tell myself to remember everything so that I could explain to someone later. I would be so confident that I would be able to explain the "dream" but of course I couldn't! :) One aspect of my seizures is that my brain would make connections between objects that I could see in the room and random words or concepts that would come into my head. My rational mind would be saying "there's no connection there" but the "seizure" part of my brain was telling me that it was reminding me of these connections from past experiences or dreams. I'm 12 years seizure free but I can remember about as much about them as if I had one yesterday.
I get these too… sometimes multiple times a day, sometimes months apart. When I’m aware they are happening I try to recall details of the “dream” I’m recollecting. Last time I remembered some blond guy in it. In other ones, a darker skinned person (Mexican? Asian)? I also seem to remember some directional decision needing to be made in the dream, and maybe motorcycles or a space ship. Is it the same “dream” every time? I don’t know but I think it is. It’s amazing for the few seconds I’m having these, I remember with total clarity, but then it goes away and I can’t remember anything. The stronger ones leave me feeling warm, somewhat sweaty, and nauseated (sometimes I notice a salty smell too) but there is nothing upsetting about the dream, it’s just a reaction to the deja vu episode itself. Fortunately for me these only last a few seconds, I’ve mentioned these episodes to my doctor but I’m not compelled to do anything about them. This has been going on for 20 years and hasn’t gotten worse.
I have episodes where I can remember a dream from years ago and it goes into deja vu often
I have temporal lobe epilepsy as well so I know exactly how you feel
Mine happened to me at the worst time , it happened when I was playing Battlefield 4 which is a military shooter game , when it happened I thought I was being shoot at and chased by tanks and helicopters it was very scary and intense, the next morning i went to see myself in the mirror and my face was all covered in bruises and cuts , I'm now taking convulex and sleep better, haven't had any seizure in weeks