I tried all of these things and nothing seemed to help. I'm 3 yrs with CFS. About six months ago, I suddenly started feeling better, and got back to about 70% of normal. Then my wife brought home a cold and I caught it. I was sick for two weeks. I recovered, and she brought home another cold (she's a 4th grade teacher and is constantly exposed, but she has a strong immune system and barely gets sick.) I got sick a 2nd time, and that was all it took. My CFS is worse than ever. Often, I can't leave the house. When I'm well enough, I take a short walk. This all started rather suddenly in 2020 after I had a mild sore throat. Six months of testing showed nothing was wrong. The doctors decided that I either had asymptomatic COVID which became "Long COVID", some other "Post Viral Syndrome", or CFS. I'm glad some people recover. That gives me hope, but it doesn't seem there's anything I can do except wait and suffer.
I'm getting good results from looking into polyvagal theory, Deb Dana has good books on it. I've been severely ill for 11 years. It's been a month since starting the brain retaining to unlearn the neuroplastic fatigue and already I'm the healthiest I've been in 7 years. Hope it can help you too
There is no treatment for this neurological disorder, not yet, let alone a cure for this horrendous disease. She is lying to you. Typical TH-cam doctor. Jack of all trade Master of none, frauds.
Getting alternative therapies costs a lot and is unaffordable for many that can no longer work due to conditions such as chronic pain, CFS and fibromyalgia. Having family support, medical or from a partner etc makes a huge difference but again, many don’t have any support whatsoever or anyone to turn to since these conditions cause isolation so it’s easy to lose contact with the outside world. Remember how people’s mental health was affected during the pandemic due to isolation…imagine this level of isolation for those with chronic fatigue/pain. The stigma still exits too with any kind of invisible condition and very often not believed so it’s not just about coping with your own health condition but also coping with others attitudes and opinions. No money, no support network and no treatment is often the case so for many it’s just not easy to access “solutions” without the resources.
I agree with every word you said i have abs no support with my illnesses and find it so hard to carry on living each day i tell myself tomorrow may be the day they find something to help us hanging on but slowly giving up = 30 yrs of suffering had enough - time they did more research and agree with you comments about invisible illnesses i am often not believed because i look so well - nope thats make up i put on to look as normal as poss hope you find something to help with your pain and fatigue up to now ive not found much to help after all these yrs xxxxxxxxxxx
Sir it's a negative feedback system, u need to bring in positivity in ur mind , I have seen many recover coz of positive mindset , u need to take it from 99% ill to 98% ill to 97% ill , slowly 1% pain reduction at a time , within no time ull be 30% ill . Now it's way easier for u to move frm this point . Trust me sir this works .... See even though we have fibromyalgia for years , why aren't we dead yet??? Its still coz all of the body parts are fine , its our mind which is struck in negative feedback loop system
It calls to my attention this notion of pushing ourselves all the time. It seems to be the trademark of our times. Seems so awful. I'm exhausted listening to her daily routine.
I love that you asked what can you do better. For me a doctor to believe me would be a start, and teach patients to find their baseline, then very gradually add in activity (not exercise). I believe this is a nervous system dysfunction and by adding in activity slowly we are showing our nervous system that our bodies are safe, our brains don’t need to protect us.
I totally agree this is what it is and we're not given any tools from the western medicine approach at all n so so much of it is learning and trial n error n being our own healer. I wish I knew about the pacing like this cos I was healing I'd reached a steady place n was mobile n then I started exercise at the gym due to my docs recommendation and the fact I felt so much better and was used to being an active person crashed hard after 2mnths n am now bk to hardly leaving my home 🤦🏼♀️ so here we go again 😂 blessings to you on Ur journey 🙏🏼
No offense but I don’t actually suspect she had true CFS. She talks about being in a tight personality and running herself ragged. I mean she cleaned up her diet started resting more and started focusing on positivity. If somebody is burnt out from exhaustion that could do it. I don’t think it fixes the actual mitochondrial dysfunction that’s found in true CFS people
My thoughts exactly. I have learned to manage my symptoms to a degree. But if I push just a bit hard, WHAM! It's African sleeping sickness & being hit by a freight train at once.
This all sounds quite miraculous. I wonder if during all the testing did her doctor eventually put her chronic fatigue was due to depression? That seems now to be the go to answer if not tests are showing a cause. Try anti-depressants is the 'go to ' solution to depression that is blamed for Chronic Fatigue. Also, not everyone has the finances to even hope to do or get the things Raelan was able to get. I find it bothersome that the average person or people who are struggling from pay check to paycheck to hear all of this when they know there is no way they could afford to eat perfectly, get massages etc. etc. I am not at all being a nay sayer but I don't know that Raelan's situation and circumstances are relatable to the 'average' person who may have no partner, may have children , may be financially strapped and don't have a parent to lean on. Nor can they take a vacation or pamper themselves despite desperately in need
The symptoms of chronic pain, chronic fatigue and depression are very similar, and these conditions usually occur simultaneously. But they have very distinctive characteristics and that is why people need a profession, like doctors who are trained to make these diagnoses.
@@DrAndreaFurlan Thank you Dr. Furlan for taking the time to comment! Yes, I understand how all these conditions can (and likely would) occur together. I think one can lead to another and unfortunately can be quite overwhelming and confusing to a person. You make a truly valid and necessary point about people needing to seek help from their doctors etc. However, sadly that is much easier said than done in my province. Just to gain access to a Family GP can be a huge challenge. As for getting any tests , even blood work can be a wait of 3 weeks. To get a scan or MRI or any diagnostic tests is a year to 3 year wait. Needless to say, just hearing that and realizing it can make one go into a downward spiral as they are already suffering physically, that leads to emotionally and around it goes. Getting help never seemed more difficult than it has been the past couple of years. Again, I do really appreciate the time , the effort and the compassion you exhibit and your videos have always been a positive bright spot.~~~Jo💞
@@DrAndreaFurlan Dollars to donuts she NEVER had CFS. Why because you can't cure CFS with brain retraining and graded exercise. !!!!!!!! It makes me angry to see this woman tell her tale of recovery from a disease that she most likely didn't have.
I’ve been out of work for 8 months because of this and was just denied my disability claim. I think they think it’s not real. And it suck. It’s depressing and annoying. Nobody’s seems to care or understand. So I’ve been watching these videos to try and understand it more. So I can fix myself.
Thank you Dr Furlan and Raelan for me what was diagnosed as CFS and FM later with more investigation out of the allopatric medicine was to find the underline problem that caused the symptoms. A) the long forgotten accident has created osteoarthritis therefore addressing the mechanical problem helped to solve the problem with a Chinese Osteopathic practitioner and use of Shiatsu treatment B) The Chinese herbs helped to boost the 5vital organs in particular the spleen that is much neglected in the modern medicine. This treatment cleared the fatigue and energized my body, of course the mind also has to be involved. I hope that this can also help others to find other avenues to consider before giving up. Good luck to all that are in the journey, where there is a will there is a way!!!
I wanted to say a big thanks to Dr. Furlan is absolutely amazing! She has put out so many helpful videos and I know has helped many people. Unfortunately as a physician she is a rare gem and is so down to earth and compassionate!💞
Watching from Israel .Hereit's a new area .Annoying because Israel is leading in medicine . Here they separate between CFS = Fatigue +pots+PEM and Phbro . I think its correct.Thanks@@DrAndreaFurlan
This is so similar to my own story! Added to this is also the chronic pain syndrome to the fatigue. Thank you for sharing! Mine too suddenly showed a significant flare up after the current virus that started in 2020. And since then the chronic pain and chronic fatigue neber left me. I now wish to try the mind body connection and do the brain re-training to help myself since no doc not even my family physician is able to help me or even know what’s up. Unfortunately that’s the other dimension to the suffering. Not being understood or at times believed. Thanks so much for this insight! 🙏🏼
I'm glad that this has helped this woman. However, given that ME/CFS and Long Covid are multisysytem disorder changing the diet, sleeping better and doing a bit more exercise isnt going to work for the majority of sufferers. It has echoes of the old fraudulent PACE trial where they concluded think yourself better and exercise yourself well. The word "conquered" annoys me. /ME CFS cannot be conquered through strong will and effort.
Agreed, it was found those treatments helped only 7% and made many with ME much worse. I believe it's multifaceted and some have mitochondrial disfunction, the body's immune system, blood disorders such as vitamin B12 malabsorbsion (due to lack of intrinsic factor in the gut) as well as lack of circulating oxygen could all be at play. So much more research is required.
@helendunn9905 I so agree with this. My daughter was originally diagnosed with CFS 10 years ago after a non stop series of severe viral infections, mostly turning into ear infections and perforated eardrums. When the infections had stopped, but the symptoms (excluding the ears) had continued for over 2 years, she was given a CFS diagnosis. A year later, when she developed paraesthesia in her arms and legs together with body pain, the diagnosis was changed to fibromyalgia. Since then so many new symptoms have developed, all attributed to fibro, but pain has never been the overwhelming symptom....some of it has been shown to have a physical basis. The fatigue, with its accompanying vertigo, nausea, brain fog, light and sound intolerance, is what she struggles with most. 18 months ago, her old doctor retired, and her new one ordered a new battery of tests to make sure there wasn't something specific lurking under her battery of symptoms. Vitamin B12 deficiency came up, but with no obvious cause. Supplements raise her levels slightly, but don't give her more energy. Nothing else has come up, other than possibly POTS, and a reinstatement of the original CFS diagnosis, as well as Fibromyalgia ( which is now viewed as the underlying cause of her other symptoms) She already ensures she eats properly, and plans 'events' carefully, knowing she will relapse after them. She has, I think, accepted her limitations, and adapted her life around them. She is a single mum (her daughter is 13 now) and so what energy she has is directed towards her daughter. Money is tight, especially since basic housekeeping services need to be paid for, because she cannot undertake them herself. I know that many CFS sufferers are permanently bed bound. And my heart goe out to all of you. Fortunately, she is not. She is limited in what she can do every day. Bad relapses can, however, still have her bed bound for a few weeks at a time. I think this lady was very fortunate to find a way back to normality. My daughter has tried the gradual increase mobility routine, recommended for fibro, it resulted in severely increased crashes. She is, however, not immobile. She walks small amounts on a regular basis to stop her muscles from wasting and cramping. She did try yoga, but that even at its simplest level was too intense. She is positive by nature, and so does whatever she can, whenever she can. Sunshine (despite her photosensitivity) is a welcome event in her life, and always a mood lifter. It's a pity we get so little of it here in the UK. The other options, massage etc, are only viable if someone comes to her. Her mobility is not that good for travelling for that kind of treatment, on a regular basis, nor could her bank balance sustain it. Very, very lucky lady, indeed to have had the physical and financial support to do this, as well as recourse to it. I think that for most CFS sufferers, this path to normality is not an accessible one. It is a great pity that it should be that way.
100! I've been "cured" too. I kept thinking that she has a humbling realization coming. Yes, it is possible to achieve "remission", but you can't change the way your nervous system is made!
I agree. I spent tons of money on various supplements, diets, treatments and once you have no money, no job, and Insurance doesn't cover most alternate therapies, along with being too fatigued to go out, it's impossible. I have to wonder if these people " cured" really had ME or fibromyalgia. It isn't typical to be cured or even go in remission. If there is a cure we would have found it by now. I've had it 30 years and only find very short term relief.
If she said anything specific I must have missed it, other than it began with influenza. 🤔 🤷♂️ Chronic reactive inflammatory disease following infection?
Key points 13:50 Now fully recovered, but still there is fear of the symptoms coming back 15:35 Normal tiredness only now, chronic fatigue symptoms are not back Recommended book: 8 steps to .... Starts with very light exercise, gradually increase, limit not too tired From resistance exercise, to flexibility, then add some aerobics 23:40 cut alcohol, caffeine, sugar processed food 24:00 consume fermented food with active probiotic 24:06 fix previously really bad sleeping habits Sleep at different room from husband (or family members), get good sleep at all cost 24:24 get sunshine 24:29 drink enough water 24:40 try things and see what works 24:49 lymphatic system, get massages quite often, hot and cold showers Intermittent fasting helps for her 25:00 exercise, scared of exercise at first, start by gentle movements while standing for 1 minute per day, every day or every other day 27:20 summary from the first getting the illness
Her path to cure involved many steps. We didn't have time to explore all of these steps. I recommend you watching her youtube channel, she exlains it all there www.youtube.com/@RaelanAgle
mi fa piacere che se ne parli, di una malattia che anche molti medici negano, ma la cura non è chiara. E poi sembra quasi che la signora non ne abbia veramente sofferto, e che comunque sia stata molto aiutata da familiari e assegni di disoccupazione. Grazie
Healthy body, healthy mind! Healthy mind, healthy body! Raelan did state getting her gut microbiome in order by eating fermented foods really helped to improve her CFS…..eating very cleanly/healthy and getting good, restful sleep is something everyone who’s suffering with CFS/FMS can apply to their healing process….it’s next to impossible to make gains in fitness and well being when you’re not getting restful sleep and your digestive system is not able to fully assimilate foods…..Great interview, Dr Furlan….It’s encouraging/inspiring to hear success stories when so many are suffering with chronic illness and feel hopeless!
@@DrAndreaFurlan Maca gave me lots of energy and made me hungry. I was able to continue university. After 6 months I was living again. It was triggered by a viral infection.
Testosterone is so underlooked. If both males and females are lacking in it, your motivation will deteriorate. Diet + good sleep doesn't fix everything but its a start
If you don't believe it's possible, then it won't be. Edit: I know privilege makes it easier. I'm not trying to invalidate that. This stuff is hard. A LOT harder for those who don't have resources, of which I was one. But I think the first thing I said still stands.
same, i can't shower,clean or tidy house,exhausted just walking few yards to the toilet,hardly any sleep,constantly exhausted and breathless, drs here in uk don't help,id need lifting up off the bed to go to hospital if the drs would arrange it for me but they don't, it's a terrible debilitating condition
This really dismisses all those who are doing all the rights things but are still incapacitated. I think there are a variety of causes and types of ME. Some may respond to treatment, don't beat yourself up if you don't recover. Keep doing the right things anyway. Just because you can't know without years of testing if you have a permanent or temporary condition. It's likely 90% of suffers will not recover and become worse over time. Your life is still worthwhile, you are still important.
Grazie della testimonianza!! E per aver messo i sottotitoli in italiano! Ma non leggo commenti in italiano...possibile che ad ammalarsi...siano solo gli Anglosassoni?? È importante che se ne parli e si condividano esperienze!
Thank you for watching the video and writing this comment. Please share this video with your friends. I have lots of videos about chronic pain on my channel th-cam.com/users/DrAndreaFurlan And don't forget to turn on the notifications 🔔 on youTube. so you get notified when I post new videos. And please remember, I do not give individual medical advice via social media or email.
If you think you cured your CFS with movement, going out in the nature, hot/cold showers, strict diet and reading a lot you definitely didn’t have CFS 🙈 Then you wouldn’t be able to do all these things 😢
No, that is not what we are saying. Pain is in the brain and the body. We cannot disconnect the mind from the body. People who tryi to find the cause "ONLY" in the body is also wrong. it is not Only in the brain or only in the body. It is in both.
دكتوره اعاني من التعب المزمن منذو ثلاثه سنين وارثته من اخت ابي عمتب يزداد سوئن كل فتره اعراض غثيان صداع دقات قلب غير منتضمه الفلاونزه الشديده صخونه والتهاب الذنين واحلق والحنجره مااكدر اسوي اي عمل في البيت حته لو كان بصيط كل الوقت نائمه اصبت بنهيار قلق توتر خوف حاله نفسيه تعبت كلش عضلات جسمي ما تتحمل حته اكعد كله نايمه عندي ثلا ث اطفال ما اقدر اسويلهم اقل مجهود اتعب اضل ابجي وافكرت بل انتحار ارجو المساعده رحت كل الدكاتره ما كو اي حل
Yes I did a water fast for 20 days. Supervised with a fasting doctor. Lost weight of course, gained it all back, only 1 small scar on my leg healed but nothing else. NOTHING ELSE.
This video is so damaging and a good example of medical gaslighting. Raglan stated that she could not do 4 hours of work but could socialise for 4 hours. This is not ME/CFS. ME prevents people from doing what they want to. I believe she did recover using the steps she indicated however I also suspect that her issue was not from physical ME but rather a psychological issue.
Dear Carolyn, I understand that many people get frustrated when they hear stories like this and they can’t achieve the same results. However, your comment is also dangerous because you are not aware of all of her struggles, symptoms and diagnoses. I invited her to my channel after I had done a thorough investigation of her claims. Please respect my guests. Her story has helped many people in a similar situation.
I disagree with this comment. Personally I believe there are levels of CFS. Some people are bed bound whilst some might have several hours a day in them...
Absolutely, this recovery is great but it doesn't appear to be true ME, I agree she suffered and am glad she recovered. But for those still struggling it's "gaslighting". The type of things your GP will tell you and then ignore your crys for help. 🤦🏻♀️
Sorry, you seem to have missunderstood my comment. I believe your guest did in fact recover from her condition based on her stated recomendations including graduated exercise therapy. I do not know her medical qualifications so I would not consider it medical advise but rather one person's personal experience. Newer ME protocol advises against GET due to the significant repercuations of PEM. pubmed.ncbi.nlm.nih.gov/32568149/#:~:text=Conclusion%3A%20GET%20not%20only%20fails,it%20should%20not%20be%20recommended. Conclusion: GET not only fails to objectively improve function significantly or to restore the ability to work, but it is also detrimental to the health of≥50% of patients, according to a multitude of patient surveys. Consequently, it should not be recommended.
Non si parla di quanto sia importante la cura dell intestino, la pulizia dell intestino, di detossificare l organismo, di possibili intolleranze al glutine al latte...
What a waste of time watching. Why can't people just say what helped them freely without trying to sell you what they did. I guess money is always the bottom line. These two talked in circles and said nothing.
@@DrAndreaFurlanLast time I looked there is No Cure, education? Your putting out Scams Lies to get money monthly from TH-cam hits. There is No Cure for ME/CFS, EDS. There is No treatment. A lot got well from Chronic Fatigue the MENTAL type, not the Syndrome. How dare you say Cure
Cured? No. There is still no effective treatment for this neurological disorder. I suffer from this debilitating disorder. This is the newest discovered disease which has no cure or even treatment yet.
Hate to tell this Lady,but she most definitely, Did Not have CFS. LUCKILY for her.If she had,She would Not be online,having a laugh,about it.She would be curled up in her Bed.
![BOWKYLION - วิงวอน (ex-change) [Official MV]](http://i.ytimg.com/vi/cLdnZWDaO-w/mqdefault.jpg)
I still don't understand how she recovered. Watched the whole thing. I'm lost. I need help.... It's been several years for me...
Thanks you saved me 45 minutes
I tried all of these things and nothing seemed to help. I'm 3 yrs with CFS. About six months ago, I suddenly started feeling better, and got back to about 70% of normal. Then my wife brought home a cold and I caught it. I was sick for two weeks. I recovered, and she brought home another cold (she's a 4th grade teacher and is constantly exposed, but she has a strong immune system and barely gets sick.) I got sick a 2nd time, and that was all it took. My CFS is worse than ever. Often, I can't leave the house. When I'm well enough, I take a short walk.
This all started rather suddenly in 2020 after I had a mild sore throat. Six months of testing showed nothing was wrong. The doctors decided that I either had asymptomatic COVID which became "Long COVID", some other "Post Viral Syndrome", or CFS. I'm glad some people recover. That gives me hope, but it doesn't seem there's anything I can do except wait and suffer.
I find that with interviews with Long Covid as well. They never really get to the depth of how they healed.
I'm getting good results from looking into polyvagal theory, Deb Dana has good books on it. I've been severely ill for 11 years. It's been a month since starting the brain retaining to unlearn the neuroplastic fatigue and already I'm the healthiest I've been in 7 years. Hope it can help you too
There is no treatment for this neurological disorder, not yet, let alone a cure for this horrendous disease. She is lying to you. Typical TH-cam doctor. Jack of all trade Master of none, frauds.
Getting alternative therapies costs a lot and is unaffordable for many that can no longer work due to conditions such as chronic pain, CFS and fibromyalgia. Having family support, medical or from a partner etc makes a huge difference but again, many don’t have any support whatsoever or anyone to turn to since these conditions cause isolation so it’s easy to lose contact with the outside world. Remember how people’s mental health was affected during the pandemic due to isolation…imagine this level of isolation for those with chronic fatigue/pain. The stigma still exits too with any kind of invisible condition and very often not believed so it’s not just about coping with your own health condition but also coping with others attitudes and opinions.
No money, no support network and no treatment is often the case so for many it’s just not easy to access “solutions” without the resources.
I agree with every word you said i have abs no support with my illnesses and find it so hard to carry on living each day i tell myself tomorrow may be the day they find something to help us hanging on but slowly giving up = 30 yrs of suffering had enough - time they did more research and agree with you comments about invisible illnesses i am often not believed because i look so well - nope thats make up i put on to look as normal as poss hope you find something to help with your pain and fatigue up to now ive not found much to help after all these yrs xxxxxxxxxxx
I totally agree too. Some people aren’t as lucky as this woman so the recovery is a lot more difficult.
Sir it's a negative feedback system, u need to bring in positivity in ur mind , I have seen many recover coz of positive mindset , u need to take it from 99% ill to 98% ill to 97% ill , slowly 1% pain reduction at a time , within no time ull be 30% ill . Now it's way easier for u to move frm this point . Trust me sir this works .... See even though we have fibromyalgia for years , why aren't we dead yet??? Its still coz all of the body parts are fine , its our mind which is struck in negative feedback loop system
I have been suffering from CFS for 40 years , and now i spent 20 hours daily on my bed unable to just breath without suffering from severe fatigue.
It calls to my attention this notion of pushing ourselves all the time. It seems to be the trademark of our times. Seems so awful. I'm exhausted listening to her daily routine.
I love that you asked what can you do better. For me a doctor to believe me would be a start, and teach patients to find their baseline, then very gradually add in activity (not exercise). I believe this is a nervous system dysfunction and by adding in activity slowly we are showing our nervous system that our bodies are safe, our brains don’t need to protect us.
I totally agree this is what it is and we're not given any tools from the western medicine approach at all n so so much of it is learning and trial n error n being our own healer. I wish I knew about the pacing like this cos I was healing I'd reached a steady place n was mobile n then I started exercise at the gym due to my docs recommendation and the fact I felt so much better and was used to being an active person crashed hard after 2mnths n am now bk to hardly leaving my home 🤦🏼♀️ so here we go again 😂 blessings to you on Ur journey 🙏🏼
No offense but I don’t actually suspect she had true CFS.
She talks about being in a tight personality and running herself ragged. I mean she cleaned up her diet started resting more and started focusing on positivity. If somebody is burnt out from exhaustion that could do it. I don’t think it fixes the actual mitochondrial dysfunction that’s found in true CFS people
You cant say that. This shit hits people differently. No two people with cfs are alike
How do you fix mitochondria?
I could not stay awake for a 20 min car ride.
My thoughts exactly. I have learned to manage my symptoms to a degree. But if I push just a bit hard, WHAM! It's African sleeping sickness & being hit by a freight train at once.
Agree
This all sounds quite miraculous. I wonder if during all the testing did her doctor eventually put her chronic fatigue was due to depression? That seems now to be the go to answer if not tests are showing a cause. Try anti-depressants is the 'go to ' solution to depression that is blamed for Chronic Fatigue. Also, not everyone has the finances to even hope to do or get the things Raelan was able to get. I find it bothersome that the average person or people who are struggling from pay check to paycheck to hear all of this when they know there is no way they could afford to eat perfectly, get massages etc. etc. I am not at all being a nay sayer but I don't know that Raelan's situation and circumstances are relatable to the 'average' person who may have no partner, may have children , may be financially strapped and don't have a parent to lean on. Nor can they take a vacation or pamper themselves despite desperately in need
The symptoms of chronic pain, chronic fatigue and depression are very similar, and these conditions usually occur simultaneously. But they have very distinctive characteristics and that is why people need a profession, like doctors who are trained to make these diagnoses.
@@DrAndreaFurlan Thank you Dr. Furlan for taking the time to comment! Yes, I understand how all these conditions can (and likely would) occur together. I think one can lead to another and unfortunately can be quite overwhelming and confusing to a person. You make a truly valid and necessary point about people needing to seek help from their doctors etc. However, sadly that is much easier said than done in my province. Just to gain access to a Family GP can be a huge challenge. As for getting any tests , even blood work can be a wait of 3 weeks. To get a scan or MRI or any diagnostic tests is a year to 3 year wait. Needless to say, just hearing that and realizing it can make one go into a downward spiral as they are already suffering physically, that leads to emotionally and around it goes. Getting help never seemed more difficult than it has been the past couple of years. Again, I do really appreciate the time , the effort and the compassion you exhibit and your videos have always been a positive bright spot.~~~Jo💞
@@DrAndreaFurlan Dollars to donuts she NEVER had CFS. Why because you can't cure CFS with brain retraining and graded exercise. !!!!!!!! It makes me angry to see this woman tell her tale of recovery from a disease that she most likely didn't have.
@@StarryNightKnittingdoctors can’t do anything to help so it’s pointless wasting time with them
I’ve been out of work for 8 months because of this and was just denied my disability claim. I think they think it’s not real. And it suck. It’s depressing and annoying. Nobody’s seems to care or understand. So I’ve been watching these videos to try and understand it more. So I can fix myself.
Thank you Dr Furlan and Raelan for me what was diagnosed as CFS and FM later with more investigation out of the allopatric medicine was to find the underline problem that caused the symptoms. A) the long forgotten accident has created osteoarthritis therefore addressing the mechanical problem helped to solve the problem with a Chinese Osteopathic practitioner and use of Shiatsu treatment B) The Chinese herbs helped to boost the 5vital organs in particular the spleen that is much neglected in the modern medicine. This treatment cleared the fatigue and energized my body, of course the mind also has to be involved. I hope that this can also help others to find other avenues to consider before giving up. Good luck to all that are in the journey, where there is a will there is a way!!!
I wanted to say a big thanks to Dr. Furlan is absolutely amazing! She has put out so many helpful videos and I know has helped many people. Unfortunately as a physician she is a rare gem and is so down to earth and compassionate!💞
Hi Jo, thank you for your kind words
Agreed!!
Watching from Israel .Hereit's a new area .Annoying because Israel is leading in medicine . Here they separate between CFS = Fatigue +pots+PEM and Phbro . I think its correct.Thanks@@DrAndreaFurlan
@@ilan_nahshon shalom from Canada ❤ 🙏
This is so similar to my own story! Added to this is also the chronic pain syndrome to the fatigue. Thank you for sharing! Mine too suddenly showed a significant flare up after the current virus that started in 2020. And since then the chronic pain and chronic fatigue neber left me. I now wish to try the mind body connection and do the brain re-training to help myself since no doc not even my family physician is able to help me or even know what’s up. Unfortunately that’s the other dimension to the suffering. Not being understood or at times believed. Thanks so much for this insight! 🙏🏼
I'm glad that this has helped this woman. However, given that ME/CFS and Long Covid are multisysytem disorder changing the diet, sleeping better and doing a bit more exercise isnt going to work for the majority of sufferers. It has echoes of the old fraudulent PACE trial where they concluded think yourself better and exercise yourself well. The word "conquered" annoys me. /ME CFS cannot be conquered through strong will and effort.
Agreed, it was found those treatments helped only 7% and made many with ME much worse. I believe it's multifaceted and some have mitochondrial disfunction, the body's immune system, blood disorders such as vitamin B12 malabsorbsion (due to lack of intrinsic factor in the gut) as well as lack of circulating oxygen could all be at play. So much more research is required.
@helendunn9905 I so agree with this. My daughter was originally diagnosed with CFS 10 years ago after a non stop series of severe viral infections, mostly turning into ear infections and perforated eardrums. When the infections had stopped, but the symptoms (excluding the ears) had continued for over 2 years, she was given a CFS diagnosis. A year later, when she developed paraesthesia in her arms and legs together with body pain, the diagnosis was changed to fibromyalgia. Since then so many new symptoms have developed, all attributed to fibro, but pain has never been the overwhelming symptom....some of it has been shown to have a physical basis. The fatigue, with its accompanying vertigo, nausea, brain fog, light and sound intolerance, is what she struggles with most.
18 months ago, her old doctor retired, and her new one ordered a new battery of tests to make sure there wasn't something specific lurking under her battery of symptoms. Vitamin B12 deficiency came up, but with no obvious cause. Supplements raise her levels slightly, but don't give her more energy. Nothing else has come up, other than possibly POTS, and a reinstatement of the original CFS diagnosis, as well as Fibromyalgia ( which is now viewed as the underlying cause of her other symptoms)
She already ensures she eats properly, and plans 'events' carefully, knowing she will relapse after them. She has, I think, accepted her limitations, and adapted her life around them. She is a single mum (her daughter is 13 now) and so what energy she has is directed towards her daughter. Money is tight, especially since basic housekeeping services need to be paid for, because she cannot undertake them herself.
I know that many CFS sufferers are permanently bed bound. And my heart goe out to all of you. Fortunately, she is not. She is limited in what she can do every day. Bad relapses can, however, still have her bed bound for a few weeks at a time.
I think this lady was very fortunate to find a way back to normality. My daughter has tried the gradual increase mobility routine, recommended for fibro, it resulted in severely increased crashes. She is, however, not immobile. She walks small amounts on a regular basis to stop her muscles from wasting and cramping. She did try yoga, but that even at its simplest level was too intense. She is positive by nature, and so does whatever she can, whenever she can.
Sunshine (despite her photosensitivity) is a welcome event in her life, and always a mood lifter. It's a pity we get so little of it here in the UK.
The other options, massage etc, are only viable if someone comes to her. Her mobility is not that good for travelling for that kind of treatment, on a regular basis, nor could her bank balance sustain it.
Very, very lucky lady, indeed to have had the physical and financial support to do this, as well as recourse to it. I think that for most CFS sufferers, this path to normality is not an accessible one. It is a great pity that it should be that way.
100! I've been "cured" too. I kept thinking that she has a humbling realization coming. Yes, it is possible to achieve "remission", but you can't change the way your nervous system is made!
I agree. I spent tons of money on various supplements, diets, treatments and once you have no money, no job, and Insurance doesn't cover most alternate therapies, along with being too fatigued to go out, it's impossible. I have to wonder if these people " cured" really had ME or fibromyalgia. It isn't typical to be cured or even go in remission. If there is a cure we would have found it by now. I've had it 30 years and only find very short term relief.
If she said anything specific I must have missed it, other than it began with influenza. 🤔 🤷♂️ Chronic reactive inflammatory disease following infection?
Key points
13:50 Now fully recovered, but still there is fear of the symptoms coming back
15:35 Normal tiredness only now, chronic fatigue symptoms are not back
Recommended book: 8 steps to ....
Starts with very light exercise, gradually increase, limit not too tired
From resistance exercise, to flexibility, then add some aerobics
23:40 cut alcohol, caffeine, sugar processed food
24:00 consume fermented food with active probiotic
24:06 fix previously really bad sleeping habits
Sleep at different room from husband (or family members), get good sleep at all cost
24:24 get sunshine
24:29 drink enough water
24:40 try things and see what works
24:49 lymphatic system, get massages quite often, hot and cold showers
Intermittent fasting helps for her
25:00 exercise, scared of exercise at first, start by gentle movements while standing for 1 minute per day, every day or every other day
27:20 summary from the first getting the illness
Fantastic inspirational video thank you both ❤️
So what was the cure? Very unclear.
Her path to cure involved many steps. We didn't have time to explore all of these steps. I recommend you watching her youtube channel, she exlains it all there www.youtube.com/@RaelanAgle
She quit her job, got massages every day and traveled the world. Basically a ten year vacation. It’s not helpful or specific advice in my opinion.
mi fa piacere che se ne parli, di una malattia che anche molti medici negano, ma la cura non è chiara. E poi sembra quasi che la signora non ne abbia veramente sofferto, e che comunque sia stata molto aiutata da familiari e assegni di disoccupazione. Grazie
Healthy body, healthy mind! Healthy mind, healthy body! Raelan did state getting her gut microbiome in order by eating fermented foods really helped to improve her CFS…..eating very cleanly/healthy and getting good, restful sleep is something everyone who’s suffering with CFS/FMS can apply to their healing process….it’s next to impossible to make gains in fitness and well being when you’re not getting restful sleep and your digestive system is not able to fully assimilate foods…..Great interview, Dr Furlan….It’s encouraging/inspiring to hear success stories when so many are suffering with chronic illness and feel hopeless!
Thank you for sharing that
Well said!
Another Pollyanna speaks!
I cured myself at 19 from nerve pain and extreme fatigue with meditation and maca supplement
Thank you for sharing that with us.
@@DrAndreaFurlan Maca gave me lots of energy and made me hungry. I was able to continue university. After 6 months I was living again. It was triggered by a viral infection.
How long have you been struggling with cfs?
That's not ME, by definition.
The big takeaway I get from this is she had support.
Yes, support is very important.
Testosterone is so underlooked. If both males and females are lacking in it, your motivation will deteriorate.
Diet + good sleep doesn't fix everything but its a start
Only those who are privileged
If you don't believe it's possible, then it won't be.
Edit: I know privilege makes it easier. I'm not trying to invalidate that. This stuff is hard. A LOT harder for those who don't have resources, of which I was one. But I think the first thing I said still stands.
_"If you don't believe it's possible, then it won't be."_
Pollyanna speaks!
I did not get anything useful form this video except the advertising
I'm sorry that you didn't find anything useful.
I have been struggling for +16 years. I have tried so many things.. I wish it was easier. Things have gotten worse instead of better. I am lost...
Dr Steven Gundry might be able to help...he has some good books
same, i can't shower,clean or tidy house,exhausted just walking few yards to the toilet,hardly any sleep,constantly exhausted and breathless, drs here in uk don't help,id need lifting up off the bed to go to hospital if the drs would arrange it for me but they don't, it's a terrible debilitating condition
@@GG-tk8cq 11 years with CFS
I wish i could recover from this
Never lose hope.
Try 100% clean diet :strictly keto with ginseng, ginko biloba, moca
I wonder if it's extreme exposure to radiation through technology and needing more of nature. 🤷🏽♀️
Wonderful advise🤗💕💝Thank you so much🤗
Hi Ortansa, thank you for your comment
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This really dismisses all those who are doing all the rights things but are still incapacitated. I think there are a variety of causes and types of ME. Some may respond to treatment, don't beat yourself up if you don't recover. Keep doing the right things anyway. Just because you can't know without years of testing if you have a permanent or temporary condition. It's likely 90% of suffers will not recover and become worse over time. Your life is still worthwhile, you are still important.
Grazie della testimonianza!! E per aver messo i sottotitoli in italiano! Ma non leggo commenti in italiano...possibile che ad ammalarsi...siano solo gli Anglosassoni?? È importante che se ne parli e si condividano esperienze!
Thank you for watching the video and writing this comment. Please share this video with your friends. I have lots of videos about chronic pain on my channel th-cam.com/users/DrAndreaFurlan
And don't forget to turn on the notifications 🔔 on youTube. so you get notified when I post new videos.
And please remember, I do not give individual medical advice via social media or email.
Thank you
Il suo libro sul dolore cronico è anche in Italiano?
I have chronic fatigue.
I ride my bicycle alot and work a bunch and im exhausted.
neither funny nor informed, but keep entertaining yourself
Thank you..❤
You're welcome 😊
Over 30 years of CFS and I don't know what to do anymore
Hi how are you doing?
Thank you so much!! With your clarity and good questions and summery, it is one of the best Interviews- helped me.
I agree! No help there!
Sorry to disappoint you.
Iv had fibromyalgia 30 years M.E 17 years .
You say you had to do it to. get well do what?
If you think you cured your CFS with movement, going out in the nature, hot/cold showers, strict diet and reading a lot you definitely didn’t have CFS 🙈 Then you wouldn’t be able to do all these things 😢
Thank you so much for sharing. ❤
Doc, can certain medications like antibiotics and nsaids cause cfs?..
At one point she uses her right hand's index finger too prominently and I wonder if it's oura ring.
Sounds like it’s a mix of psychological and physiological causes
We can’t separate psychological from biological. The whole body is biological, including the mind.
@@DrAndreaFurlan So do you think psychiatric disorders have a biological cause most of the time?
Research EMF cause fadigue síndrome/fibromialgia and others.
Does CFS come in episodes/flares?
Hi Marco, in some casese, it can be episodic.
@@DrAndreaFurlan Hey thank you for your response. 👍
Skip to 20 min
No cure video is a waste of time
21:00 doctors solution to everything “medication “
So the mind controls this? You're saying it's all in my head???
No, that is not what we are saying. Pain is in the brain and the body. We cannot disconnect the mind from the body. People who tryi to find the cause "ONLY" in the body is also wrong. it is not Only in the brain or only in the body. It is in both.
Only God knows, but Raelan seems as if she had either mind/body ‘burn-out’ or very mild cfs.
Thank u very much for wonderful advice video . Yoga helps also .🙏🌹
Thank you Sharmistha.
Fibromyalgia can be heald?
Quelli con la fibromialgia in Italia sono piú riconosciuti e meno " fantasmi" rispetto alla CFS...
Quelli con la fibromialgia in Italia sono piú riconosciuti e meno " fantasmi" rispetto alla CFS...
دكتوره اعاني من التعب المزمن منذو ثلاثه سنين وارثته من اخت ابي عمتب يزداد سوئن كل فتره اعراض غثيان صداع دقات قلب غير منتضمه الفلاونزه الشديده صخونه والتهاب الذنين واحلق والحنجره مااكدر اسوي اي عمل في البيت حته لو كان بصيط كل الوقت نائمه اصبت بنهيار قلق توتر خوف حاله نفسيه تعبت كلش عضلات جسمي ما تتحمل حته اكعد كله نايمه عندي ثلا ث اطفال ما اقدر اسويلهم اقل مجهود اتعب اضل ابجي وافكرت بل انتحار ارجو المساعده رحت كل الدكاتره ما كو اي حل
Please talk to your doctor about your thoughts, see a psychologist or go to a hospital as soon as possible.
Thanks Dr your video is awesome but I don't understand all the English language
Too long winded without any practical help😥
Has anyone tried a long fast to fix this? Over 21 days
Yes I did a water fast for 20 days. Supervised with a fasting doctor. Lost weight of course, gained it all back, only 1 small scar on my leg healed but nothing else. NOTHING ELSE.
Thank you for this beautiful interview ❤
Glad you enjoyed it!
This video is so damaging and a good example of medical gaslighting. Raglan stated that she could not do 4 hours of work but could socialise for 4 hours. This is not ME/CFS. ME prevents people from doing what they want to. I believe she did recover using the steps she indicated however I also suspect that her issue was not from physical ME but rather a psychological issue.
Dear Carolyn, I understand that many people get frustrated when they hear stories like this and they can’t achieve the same results.
However, your comment is also dangerous because you are not aware of all of her struggles, symptoms and diagnoses.
I invited her to my channel after I had done a thorough investigation of her claims.
Please respect my guests.
Her story has helped many people in a similar situation.
I disagree with this comment. Personally I believe there are levels of CFS. Some people are bed bound whilst some might have several hours a day in them...
Absolutely, this recovery is great but it doesn't appear to be true ME, I agree she suffered and am glad she recovered. But for those still struggling it's "gaslighting". The type of things your GP will tell you and then ignore your crys for help. 🤦🏻♀️
Sorry, you seem to have missunderstood my comment. I believe your guest did in fact recover from her condition based on her stated recomendations including graduated exercise therapy. I do not know her medical qualifications so I would not consider it medical advise but rather one person's personal experience. Newer ME protocol advises against GET due to the significant repercuations of PEM.
pubmed.ncbi.nlm.nih.gov/32568149/#:~:text=Conclusion%3A%20GET%20not%20only%20fails,it%20should%20not%20be%20recommended.
Conclusion: GET not only fails to objectively improve function significantly or to restore the ability to work, but it is also detrimental to the health of≥50% of patients, according to a multitude of patient surveys. Consequently, it should not be recommended.
Fragrant stuff , & perfume is the culprit !
I disagree with you
Non si parla di quanto sia importante la cura dell intestino, la pulizia dell intestino, di detossificare l organismo, di possibili intolleranze al glutine al latte...
Thank you
You are welcome
What a waste of time watching. Why can't people just say what helped them freely without trying to sell you what they did. I guess money is always the bottom line. These two talked in circles and said nothing.
U agree!!
23:00
This woman putting me in sleep with her slow talk. No need sleeping pills😂😂😂
That is not a nice comment about my guests. ☹️
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🌹
Thanks
this video is terrible...tells u nothing??!
There is No Cure for Chronic Fatigue Syndrome or any aproved treatment
The brain is capable of neuroplasticity. If you never heard about it, then you need to get some education.
@@DrAndreaFurlanLast time I looked there is No Cure, education? Your putting out Scams Lies to get money monthly from TH-cam hits. There is No Cure for ME/CFS, EDS. There is No treatment. A lot got well from Chronic Fatigue the MENTAL type, not the Syndrome. How dare you say Cure
Cured? No. There is still no effective treatment for this neurological disorder. I suffer from this debilitating disorder. This is the newest discovered disease which has no cure or even treatment yet.
Perhaps an open hearted and open minded review of Raelan Agle's TH-cam channel can help?
I I think testosterone can help males in particulat many of them have very low t
NO PRESCRIPTIONS
Hate to tell this Lady,but she most definitely, Did Not have CFS. LUCKILY for her.If she had,She would Not be online,having a laugh,about it.She would be curled up in her Bed.
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Thanks
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Thanks