Thank you! That was a GREAT interview!!! I have been struggling with cognition and my profession is very demanding on cognition, multi-tasking, short term memory, focus, etc. That and fatigue caused me to stop working and be very ineffective at work for 4-5 years. Although still a challenge, things have gotten better, thanks to a better DMT, lots of aerobic exercise, CBT (for insomnia and other MS challenges), improved sleep and keeping my brain active. It's good to see most of those things are backed by science and common sense.
@@Heidi123 I'm on Ocrevus. My guess is that the most effective the DMT the better: Ocrevus, Kesimpta, Tysabri, Lemtrada. My cerebral atrophy is greater than my age but has stabilized to normal since. A good talk with your neurologist. And aerobic exercise has been a saviour, really.
The biggest problem with cognitive testing is that it’s biased towards the neuro typical brain The test will not be accurate in any way to those who are on the spectrum. This testing aligns with public schools’ teaching methods and testing which fails to recognize how high functioning an MS patient’s neurodivergent brain actually is We need to do better
Thanks for this interview. I have a much better understanding of a possible cause of the frustrations I've been having over the past 10 years before my formal MS diagnosis. For example, I took a job that required a lot of multitasking, that I would have easily handled previously, and couldn't even keep up with the training. That failure baffled me. I felt so overwhelmed. The past makes more sense now. Today, I'm working hard to keep my mind active but I still see cognitive decline. Pretty scary. I'll be discussing this more with my doctor. Thanks for the information!
This was a great interview- thank you. I am currently on STD as I am frustrated with my Manager and he is frustrated with me thinking I should be able to do more or understand more. I think I am fine so there is obviously a difference of opinion. I had a full Neuro Psych Eval test before applying for this job. I have an appointment for a new Neuro Psych Eval scheduled for mid August and I will be on STD until that test is done and evaluated. It is just frustrating it takes 5 months to get into an appointment of this type. I think every person diagnosed with MS, especially those in jobs that require high cognitive function, have a neuro psych eval immediately and regularly to check for decline.
Thank you for such a thorough interview. Very interesting as always. I found my own cognitive issues effective me all the way back in high school where they thought I may have had A.D..D I wonder how often that happens with children diagnosed 🤷♀️
Really enjoyed this. Personally speaking-aerobic exercise gives me more energy and lasts longer (until fatigue hits) vs only strength training....just my experience. Both have changed my life for the better living with ms particularly improving mood. Off topic, your hair looks great Dr. B!
Thank you, This helped me a lot. I have long been unable to perform tasks that requires my focus while people talk to me, to the point where i get very agitated. Even though i am performing tasks that those around me are unable to perform because of there level comprehension.
Very interesting. After not having health insurance for many years following my MS diagnosis, my next MRI showed (I never see the images, just read the reports) what they described as 'innumerable' lesions, yet the only flares I had all those years were short bouts of numbness that healed. I recently took a cog test and scored well and fortunately my MRIs are stable now, but I've definitely wondered about what that high lesion load means for the long term, especially cognitively. This was a great video with a lot of helpful information! Thank you for sharing!
I was wondering what to do about cog issues. I am trying to do games on my phone and puzzles. Reading nonfiction which I have always struggled with that. I used to be pretty smart.... Not the smartest in the cookie jar but I miss my old self physically and mentally. Thanks for sharing this interview!!
Speaking from my own experience, the Neuropsych testing that I have taken (twice now in 14 years), that the results are not that terribly different, although my MS has advanced significantly. The testing I took appeared to focus on doing singular tasks involving the different brain functions. I wish the testing would evaluate more Executive level thinking involving Multi-Tasking. I was a Project Management Office manager of a team of 8 project managers. I had to juggle my projects and the projects of my 8 PMs constantly, often being interrupted mid-task to weigh in intelligently on something with a clear decisive answer. I used to thrive with this. I was a high functioning Multi-Tasker. I had to retire, because I was screwing this up and becoming verbally abusive and at times incoherent when interrupted. Now I struggle to order my meal off a menu at a restaurant.
And, I gave the BEST study out there. There's one from 2017 where "we" ranked 54th. Macedonia was 55th. Again, think long and hard about what you're doing.
awesome video first time ive heard the left temporal lobe brought up in mood issues and ms as one of my bigger lisons is in the antrior left temporal lobe .... I'm diagnosed with MDD .... but I'm also diagnosed with BPD from young age but surprising my when i look up damage to the temporl lobe i suffer form a lot of the mood issues connected like aggresstion and persistent talking a lot or little sexual desire all these things are also connected to BPD and i often wonder if the reason i still struggle with a lot of these symptoms even after years of DBT and CBT i still struggle with them like persistent talking looking like mania but no bi poler and aggression ... on top of like he said anxiety disorders like panic disorder and GAD .... really i feel my mental health is directly connected to my ms including my last relapse i had back to back one of them i was extremely aggressive to the point i caught a charge and a mouth later ended up in the hospital needing a caine and my left temporal lobe lison grew also dung thous relapses i devepoed a studder expesully when i got emotional ...and now that I'm stable I'm able to keep my emotions better under control ... so I'm really sure my left temprol lode lisons is connected to me mental health so awesome to hear they already connect MDD in ms to the left temporal lobe
@ramazan i am in the same boat as you. Also 22 years old. Got symptoms 3 months ago when doing my internship. I like to think and hope that i dont become disabled. And as for the clemastine i have no idea if that works nor have i seen any data on it. But trust me if nvg 291 works out which i hope it does you might as well forget about MS. #STAYSTRONG #DON'TGIVEUP #MSWARRIOR
Now, I'm a fan, relatively speaking, of dr. Beaber. I refuse to capitalize the "d" for doctor. Here's why: The US ranks 37th. That means you can leave the country and find BETTER health care in 36 other countries. You can go, for example, to Switzerland and receive BETTER health care. They rank 20th. You can find BETTER health care in Columbia, South America. They rank 22nd. You can even go to Costa Rica for BETTER health care. They rank 36th. And, I haven't even given the top 10. Now, Canada isn't that much better. They rank 30th. Why on earth don't we use fetal cells? Why don't we use HSCT when it's found? We say that "we" don't know what to do because it's "complex". Do you know how many people commit suicide? In 2017, "we" lost 14.8%; but that's from 2017, I suppose. Think about that. As for remyelination, the Ukraine's found what to do in 1987. Again, think about that. I really don't know what else to do. America and Canada are insanely broken. And anybody cares to debate me, go right ahead. I, and MANY doctors, will GLADLY debate you on what to do about it. Any day.
So what did " the Ukraine" found in 1987? A magic pill?, an infuse? A lifestyle? What is the PubMed link ? Why isn't it know by the data research of OMS ?
@@lindavanzwol2643 The Ukraine's use fetal cells. Now, I don't think I know OMS - what does it stand for? And, it isn't just fetal cells. You have to eat well. Follow the advice of Dr. Wahls, somebody who couldn't even walk because of MS. Follow Dr. Gelenick. Follow the guy from the Cleveland Clinic. I really don't care who you follow, each tells you what to eat. Now, you understand where "we rank", don't you?
@@lindavanzwol2643 America ranks at BEST 37th. Think about that and think of who's better. Seeing there's 191 countries on the list we are pretty bad. Again, I'll point out that the study, and they ARE STUDIES, is from 2017 where "we" ranked 54th with Macedonia coming in 55th. Now, I'm not making stuff up. Look it up yourself. Type "World Health Care Rankings" and see for yourself where America comes in. It surely isn't first. CNN came out with an announcement that "we" are last in the rank of health care for western countries. That means 11th. What they don't say is where we rank in the world and it's way worse than 11th.
Oms= Overcomming MS = George Jelinek. The ranking, of The healthcare system of a country is not as interesting as the best MS doctor. Best example is Russia. I dont know where Russia stands in the ranking, but Dr. Federenko halts MS with aHSCT. The USA has unafforable healthcare. So what does the ranking matter, if a patient cant afford it anyway ? In the Netherlands everybody has a health insurance, so you can have the basics for your health. So we dont rank top, but medioker for everybody 🙂
@@lindavanzwol2643 So, we're saying the same thing. I don't know why you're so - I don't know - mad? I really don't. But, we're saying the same thing. I really don't care about the Netherlands or any place else for that matter. Now, I have insurance and with it the US still gets bad scores. That's what I'm saying. And, Dr. Federanko has been using HSCT for almost 20 years. You can go to Mexico for it as well.
![Epstein-Barr Virus Causes Multiple Sclerosis! [US Military Longitudinal Study]](http://i.ytimg.com/vi/3bkEXWg3kTw/mqdefault.jpg)
![Epstein-Barr Virus Causes Multiple Sclerosis! [US Military Longitudinal Study]](/img/tr.png)
Thank you! That was a GREAT interview!!! I have been struggling with cognition and my profession is very demanding on cognition, multi-tasking, short term memory, focus, etc. That and fatigue caused me to stop working and be very ineffective at work for 4-5 years. Although still a challenge, things have gotten better, thanks to a better DMT, lots of aerobic exercise, CBT (for insomnia and other MS challenges), improved sleep and keeping my brain active. It's good to see most of those things are backed by science and common sense.
What DMT helped?
@@Heidi123 I'm on Ocrevus. My guess is that the most effective the DMT the better: Ocrevus, Kesimpta, Tysabri, Lemtrada. My cerebral atrophy is greater than my age but has stabilized to normal since. A good talk with your neurologist. And aerobic exercise has been a saviour, really.
Omg I can so relate. Thank you!
Wrong...ocrevus is not normal brain atrophy...
Wow, this hit home!!! I am a Physician Assistant and can’t keep up!!! Thank you both for validating my over 20 years of MS
No doubt subtle cognitive symptoms are very common ins MS.
The biggest problem with cognitive testing is that it’s biased towards the neuro typical brain The test will not be accurate in any way to those who are on the spectrum. This testing aligns with public schools’ teaching methods and testing which fails to recognize how high functioning an MS patient’s neurodivergent brain actually is We need to do better
Thanks for this interview. I have a much better understanding of a possible cause of the frustrations I've been having over the past 10 years before my formal MS diagnosis. For example, I took a job that required a lot of multitasking, that I would have easily handled previously, and couldn't even keep up with the training. That failure baffled me. I felt so overwhelmed. The past makes more sense now. Today, I'm working hard to keep my mind active but I still see cognitive decline. Pretty scary. I'll be discussing this more with my doctor. Thanks for the information!
This was a great interview- thank you. I am currently on STD as I am frustrated with my Manager and he is frustrated with me thinking I should be able to do more or understand more. I think I am fine so there is obviously a difference of opinion. I had a full Neuro Psych Eval test before applying for this job. I have an appointment for a new Neuro Psych Eval scheduled for mid August and I will be on STD until that test is done and evaluated. It is just frustrating it takes 5 months to get into an appointment of this type. I think every person diagnosed with MS, especially those in jobs that require high cognitive function, have a neuro psych eval immediately and regularly to check for decline.
Thank you for such a thorough interview. Very interesting as always.
I found my own cognitive issues effective me all the way back in high school where they thought I may have had A.D..D I wonder how often that happens with children diagnosed 🤷♀️
Many teenagers with MS report a prodrome of subtle academic difficulties.
Really enjoyed this. Personally speaking-aerobic exercise gives me more energy and lasts longer (until fatigue hits) vs only strength training....just my experience. Both have changed my life for the better living with ms particularly improving mood.
Off topic, your hair looks great Dr. B!
Thanks.
Thank you, This helped me a lot. I have long been unable to perform tasks that requires my focus while people talk to me, to the point where i get very agitated. Even though i am performing tasks that those around me are unable to perform because of there level comprehension.
Very interesting. After not having health insurance for many years following my MS diagnosis, my next MRI showed (I never see the images, just read the reports) what they described as 'innumerable' lesions, yet the only flares I had all those years were short bouts of numbness that healed. I recently took a cog test and scored well and fortunately my MRIs are stable now, but I've definitely wondered about what that high lesion load means for the long term, especially cognitively. This was a great video with a lot of helpful information! Thank you for sharing!
I was wondering what to do about cog issues. I am trying to do games on my phone and puzzles. Reading nonfiction which I have always struggled with that.
I used to be pretty smart....
Not the smartest in the cookie jar but I miss my old self physically and mentally.
Thanks for sharing this interview!!
Amazing interview.
Only critique; I felt you brushed off his leaving point on marijuana by generalizing it to other medications.
Speaking from my own experience, the Neuropsych testing that I have taken (twice now in 14 years), that the results are not that terribly different, although my MS has advanced significantly. The testing I took appeared to focus on doing singular tasks involving the different brain functions. I wish the testing would evaluate more Executive level thinking involving Multi-Tasking. I was a Project Management Office manager of a team of 8 project managers. I had to juggle my projects and the projects of my 8 PMs constantly, often being interrupted mid-task to weigh in intelligently on something with a clear decisive answer. I used to thrive with this. I was a high functioning Multi-Tasker. I had to retire, because I was screwing this up and becoming verbally abusive and at times incoherent when interrupted. Now I struggle to order my meal off a menu at a restaurant.
Now that Ive been called out today in examples... Pre-ordered and looking forward to your book.
And, I gave the BEST study out there. There's one from 2017 where "we" ranked 54th. Macedonia was 55th. Again, think long and hard about what you're doing.
Interesting interview, thanks as always Dr B 👍🏻
This is so incredibly interesting! Thank you for sharing this!
Thanks
👋 🙂
Thank you for the information.
This was a great in depth conversation, thank you for doing this.
#Sharingiscaring
Thanks Desire
Offspring have a marker for another autoimmune disorder so 🤞and very rare to have both MS and the marker one.
Whatever I’ve had MS for twenty years I just want to get a good nights sleep. That’s been more of a problem than MS
Thanks nobody has said it so well. Clearly. Thanx.
:)
#Sharing Is Caring 💖
Thank you !!!
Anke U.A.Wallace
I was diagnosed with RRMS in 2009 at age 25. As a kid I always thought I was weird because I could not stop laughing at random times.
Great interview!
Thanks
awesome video first time ive heard the left temporal lobe brought up in mood issues and ms as one of my bigger lisons is in the antrior left temporal lobe .... I'm diagnosed with MDD .... but I'm also diagnosed with BPD from young age but surprising my when i look up damage to the temporl lobe i suffer form a lot of the mood issues connected like aggresstion and persistent talking a lot or little sexual desire all these things are also connected to BPD and i often wonder if the reason i still struggle with a lot of these symptoms even after years of DBT and CBT i still struggle with them like persistent talking looking like mania but no bi poler and aggression ... on top of like he said anxiety disorders like panic disorder and GAD .... really i feel my mental health is directly connected to my ms including my last relapse i had back to back one of them i was extremely aggressive to the point i caught a charge and a mouth later ended up in the hospital needing a caine and my left temporal lobe lison grew also dung thous relapses i devepoed a studder expesully when i got emotional ...and now that I'm stable I'm able to keep my emotions better under control ... so I'm really sure my left temprol lode lisons is connected to me mental health so awesome to hear they already connect MDD in ms to the left temporal lobe
Yes!
Thank you for a very interesting interview. Who would one go to for cognitive rehabilitation?
when will remyelination treatment come out please reply😭😭😭😭😭
Search "nvg 291" they are in phase 1 trials. If this treatment works ms will be a thing of the past
@@nullzero5207 Does clamastine+metformin work? When will remyelination treatment come out?
@@nullzero5207 I'm 22 years old, I don't want to be disabled😭😭😭
@ramazan i am in the same boat as you. Also 22 years old. Got symptoms 3 months ago when doing my internship. I like to think and hope that i dont become disabled.
And as for the clemastine i have no idea if that works nor have i seen any data on it. But trust me if nvg 291 works out which i hope it does you might as well forget about MS. #STAYSTRONG #DON'TGIVEUP #MSWARRIOR
@@nullzero5207 I don't know how long nvg291 will last or not, I'm going towards suicide
You never reply to my question dr brandon..
thats not a question though
Is MS caused by tick disease?
I have a video on this topic: th-cam.com/video/Ak04PIcxbTg/w-d-xo.html
Omg that’s one of my doctors lol
Now, I'm a fan, relatively speaking, of dr. Beaber. I refuse to capitalize the "d" for doctor. Here's why: The US ranks 37th. That means you can leave the country and find BETTER health care in 36 other countries. You can go, for example, to Switzerland and receive BETTER health care. They rank 20th. You can find BETTER health care in Columbia, South America. They rank 22nd. You can even go to Costa Rica for BETTER health care. They rank 36th. And, I haven't even given the top 10. Now, Canada isn't that much better. They rank 30th. Why on earth don't we use fetal cells? Why don't we use HSCT when it's found? We say that "we" don't know what to do because it's "complex". Do you know how many people commit suicide? In 2017, "we" lost 14.8%; but that's from 2017, I suppose. Think about that. As for remyelination, the Ukraine's found what to do in 1987. Again, think about that. I really don't know what else to do. America and Canada are insanely broken. And anybody cares to debate me, go right ahead. I, and MANY doctors, will GLADLY debate you on what to do about it. Any day.
So what did " the Ukraine" found in 1987? A magic pill?, an infuse? A lifestyle?
What is the PubMed link ?
Why isn't it know by the data research of OMS ?
@@lindavanzwol2643 The Ukraine's use fetal cells. Now, I don't think I know OMS - what does it stand for? And, it isn't just fetal cells. You have to eat well. Follow the advice of Dr. Wahls, somebody who couldn't even walk because of MS. Follow Dr. Gelenick. Follow the guy from the Cleveland Clinic. I really don't care who you follow, each tells you what to eat. Now, you understand where "we rank", don't you?
@@lindavanzwol2643 America ranks at BEST 37th. Think about that and think of who's better. Seeing there's 191 countries on the list we are pretty bad. Again, I'll point out that the study, and they ARE STUDIES, is from 2017 where "we" ranked 54th with Macedonia coming in 55th. Now, I'm not making stuff up. Look it up yourself. Type "World Health Care Rankings" and see for yourself where America comes in. It surely isn't first. CNN came out with an announcement that "we" are last in the rank of health care for western countries. That means 11th. What they don't say is where we rank in the world and it's way worse than 11th.
Oms= Overcomming MS = George Jelinek.
The ranking, of The healthcare system of a country is not as interesting as the best MS doctor.
Best example is Russia. I dont know where Russia stands in the ranking, but Dr. Federenko halts MS with aHSCT.
The USA has unafforable healthcare. So what does the ranking matter, if a patient cant afford it anyway ?
In the Netherlands everybody has a health insurance, so you can have the basics for your health. So we dont rank top, but medioker for everybody 🙂
@@lindavanzwol2643 So, we're saying the same thing. I don't know why you're so - I don't know - mad? I really don't. But, we're saying the same thing. I really don't care about the Netherlands or any place else for that matter. Now, I have insurance and with it the US still gets bad scores. That's what I'm saying. And, Dr. Federanko has been using HSCT for almost 20 years. You can go to Mexico for it as well.
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