Hi Jack. 👋. Unfortunately there really isn’t a medical treatment for freezing. It’s kind of an enigma when it comes to PD, as researchers are not sure what causes it or why some folks don’t have as much struggle with freezing as others. Your meds will help the overall motor symptoms, but if they aren’t I’d consult with your neurologist. There are other medications that can “bridge the gap” like entacapone that may also work better for you and have alternate mechanisms. For example, Amantadine, rotigatine (Neupro) patches, etc. When it comes to freezing using a go-to technique that helps you to break out is your best bet. The LSVT BIG therapy protocol also has methods we will teach to help folks to break out using BIG movements that are specific to them.
My neurologist has me on sinemet cr 200 mg 3x per day and Entacopone 200 mg 3x per day. The freezing seems to have gotten worse and experiencing more difficulty in breaking the freeze. Maybe too much dopamine? I typically take my last dose at 9:00 PM. Wake up at 5:00 AM. Additionally, I have very little freezing when I wake up in the morning. It’s almost like I don’t have PD. Then the freezing starts after taking meds. Freezing is the only PD symptoms I’ve experienced. A mystery to be sure. As I said earlier, maybe too much dopamine meds?@@parkinsonsdiseaseeducation
Yes and no. Levodopa definitely can make a difference, but when wearing off of doses freezing is most likely to occur. It’s good to equip yourself and your family with tips like these to know what to try when getting stuck
@@parkinsonsdiseaseeducation thanks I've only just started on sinemt 2 weeks Taking 25/100 twice a day Not making any difference I'm OK when I get going walking I walk fast 4k a day But stutter about in the house Should I up my dose of sinimet Thanks again
Keep up the walking, great work on that Gary! As far as the medicine if it’s not making a difference then it could be the dosage or it could mean you might need another medication to keep dopamine levels up between doses such as an MAO-B inhibitor, COMT inhibitor, Adenosine A2A antagonist, Amantadine, etc. Your neurologist will have the first say in that, but just be wary of physicians who aren’t willing to adjust or try different options. Some docs only seem to be willing to Rx levodopa or sinemet and just keep increasing it. Not good in my opinion
Hi dear colleague 😊 I would like to share what I do in the clinic with you. I am a physical therapist and I also dance salsa and bachata. I incorporate the basic steps of salsa and bachata into the gait training. Salsa has basic steps in harmony with 1-2-3---5-6-7. In the clinic I help my patients practice the basic steps. When FOG happens, my patients stomp at one spot by counting 1-2-3 and then when "6" comes they step back with their dominant foot and visualize that there's an obstacle they should step over and they intend to step and they perform step forward. It may sound a bit complicated but when we do it in the clinic, this method is so easy and fun for my patients to perform😊 we practice this method so many times and I always get positive feedbacks from them when they experience FOG in their daily life. Maybe you can give it a try in the clinic, and I hope it helps 😊 greetings from İstanbul 🤗
@@parkinsonsdiseaseeducation i basically tell myself "ok big steps " then I try quickly to lift and stretch my quad then try and walk or turns into a shuffle
That’s not a bad way to do it, as ultimately BIG steps is what is required to move enough to take a step forward. I also try to cue my patients to “stomp your foot BIG” and that sometimes works as well. Let me know if any of these techniques in the video help you, would appreciate your feedback.
@@parkinsonsdiseaseeducation absolutely! It's funny you mention stomping, because I do that as well while standing between the kitchen island and the sink washing machine side lol..can you picture that 😄😄
You mean to demonstrate what was talked about. I did a short on this last year. 5 Ways to Break Out of a Parkinson’s Freezing Episode #shorts #freezing #parkinsonsawareness th-cam.com/users/shorts6Bxegcp-VlM?feature=share
Hi, I thout I had spinal stenosis, but I do nont. My back hurts, that is what it is. I thout my unstabil walk was aftermath off the Corona pandemic. Under my work whith the spinal thing. I found a video on U-Tube, an I then knew what i whas. Parkinsons. Tremoring off hands and Walking like drunk person.
Is dopamine the only or recommended med for freezing of the gait. I’ve been on senimet and entacapone. Nothing helps.
Hi Jack. 👋. Unfortunately there really isn’t a medical treatment for freezing. It’s kind of an enigma when it comes to PD, as researchers are not sure what causes it or why some folks don’t have as much struggle with freezing as others. Your meds will help the overall motor symptoms, but if they aren’t I’d consult with your neurologist. There are other medications that can “bridge the gap” like entacapone that may also work better for you and have alternate mechanisms. For example, Amantadine, rotigatine (Neupro) patches, etc. When it comes to freezing using a go-to technique that helps you to break out is your best bet. The LSVT BIG therapy protocol also has methods we will teach to help folks to break out using BIG movements that are specific to them.
My neurologist has me on sinemet cr 200 mg 3x per day and Entacopone 200 mg 3x per day. The freezing seems to have gotten worse and experiencing more difficulty in breaking the freeze. Maybe too much dopamine? I typically take my last dose at 9:00 PM. Wake up at 5:00 AM. Additionally, I have very little freezing when I wake up in the morning. It’s almost like I don’t have PD. Then the freezing starts after taking meds. Freezing is the only PD symptoms I’ve experienced. A mystery to be sure. As I said earlier, maybe too much dopamine meds?@@parkinsonsdiseaseeducation
So levadopa doesn't work for freezing I'm taking sinemt doesn't seem to help
q.! / /... '. @@garyc9908
Does levodopa help
Yes and no. Levodopa definitely can make a difference, but when wearing off of doses freezing is most likely to occur. It’s good to equip yourself and your family with tips like these to know what to try when getting stuck
@@parkinsonsdiseaseeducation thanks I've only just started on sinemt
2 weeks
Taking 25/100 twice a day
Not making any difference
I'm OK when I get going walking
I walk fast 4k a day
But stutter about in the house
Should I up my dose of sinimet
Thanks again
Keep up the walking, great work on that Gary! As far as the medicine if it’s not making a difference then it could be the dosage or it could mean you might need another medication to keep dopamine levels up between doses such as an MAO-B inhibitor, COMT inhibitor, Adenosine A2A antagonist, Amantadine, etc. Your neurologist will have the first say in that, but just be wary of physicians who aren’t willing to adjust or try different options. Some docs only seem to be willing to Rx levodopa or sinemet and just keep increasing it. Not good in my opinion
Starts at 3:14
Thanks for time stamping. I hope the lead up is appreciated as a brief overview of what freezing of gait is and what might trigger the episodes
Hi dear colleague 😊 I would like to share what I do in the clinic with you. I am a physical therapist and I also dance salsa and bachata. I incorporate the basic steps of salsa and bachata into the gait training. Salsa has basic steps in harmony with 1-2-3---5-6-7. In the clinic I help my patients practice the basic steps. When FOG happens, my patients stomp at one spot by counting 1-2-3 and then when "6" comes they step back with their dominant foot and visualize that there's an obstacle they should step over and they intend to step and they perform step forward. It may sound a bit complicated but when we do it in the clinic, this method is so easy and fun for my patients to perform😊 we practice this method so many times and I always get positive feedbacks from them when they experience FOG in their daily life. Maybe you can give it a try in the clinic, and I hope it helps 😊 greetings from İstanbul 🤗
These are great ideas! Love this, thank you for sharing
Thank you for the tips!
It’s not a slam dunk for everybody, but these can certainly be helpful
I have been freezing a lot lately, sucks bad, only when my sinemet and entacopne wear off.
I’m sorry you have to deal with this on a regular basis. Do you find any techniques like we discussed in the video make any difference to break out?
@@parkinsonsdiseaseeducation i basically tell myself "ok big steps " then I try quickly to lift and stretch my quad then try and walk or turns into a shuffle
That’s not a bad way to do it, as ultimately BIG steps is what is required to move enough to take a step forward. I also try to cue my patients to “stomp your foot BIG” and that sometimes works as well. Let me know if any of these techniques in the video help you, would appreciate your feedback.
@@parkinsonsdiseaseeducation absolutely! It's funny you mention stomping, because I do that as well while standing between the kitchen island and the sink washing machine side lol..can you picture that 😄😄
Yes I can lol. Those particular kinds of places, corners, narrow spaces, etc tend to be freezing triggers
My knees are the biggest problem for freezing.
You knees won’t bend/straighten when you want them to? 🤔
I try counting to get me moving
That’s certainly a good option too! Anything that can get your mind off of being stuck and something that could even have a rhythm to it.
a visual representation will make things clearer
You mean to demonstrate what was talked about. I did a short on this last year. 5 Ways to Break Out of a Parkinson’s Freezing Episode #shorts #freezing #parkinsonsawareness
th-cam.com/users/shorts6Bxegcp-VlM?feature=share
I do not take meds for pd
Are you early in the diagnosis?
You will soon as the disease progresses
Agreed. It would be exceedingly rare to not be medicated over time
You can count z
Not sure what you mean, was that a typo? Count z?
Or you fall, no fun.
Definitely no fun. 0 stars, would not recommend.
@@parkinsonsdiseaseeducation they have a mind of there own
Hi, I thout I had spinal stenosis, but I do nont. My back hurts, that is what it is. I thout my unstabil walk was aftermath off the Corona pandemic. Under my work whith the spinal thing. I found a video on U-Tube, an I then knew what i whas. Parkinsons. Tremoring off hands and Walking like drunk person.
It’s quite possible. Will you be seeking out further medical examination to determine diagnosis?