Since you brought that up its perfect because I am going through that phase now with my walking. You are so patient and understanding I see an improvement in my walking already. Thank you. So much.
Excellent video on freezing,but a lot to remember! Hurrying is a big no no for those with this problem. So is distractions. It appears that our brain cannot maintain focus if we are doing too many things at once. This is something we took for granted before getting Parkinson’s. It’s important to keep track of our steps especially when out walking and stopping when we need to get our bearings. Thank you for this helpful video. Good work!
I freeze a lot and I have also osteoarthritis and scoliosis at first I thought this had Parkinson's but the neurologist has said that I don't ! But that my freezing is due to the spurs on the last digits of my spine causing me to freeze so I don't really know do you think it's possibly Parkinson's Or can'. freezing happen because of other things associations with my spine , scoliosis osteoarthritis and I also have osteoporosis .doyou think it's possible I actually have Parkinson's
@@annlucy9829 Did your neurologist order a CAT scan or MRI ? Is that how he figured out there was a problem with your spine? Usually Parkinson’s starts with a hand tremor but a small number of people don’t get the tremor.
Great video! My father is off Carbidopa - Levidopa because was giving him horrible REM Sleep Disorder type Active nightmares.. They diminished almost to none off Carbidopa/ Levidopa.. But now he has less get up and go..
Not everyone with Parkinson’s experiences freezing so there is a possibility you may never experience it. But like you said, you’ll know what to do… just in case.
I tested positive for Parkinson's on a DAT scan but my neurologist says I do not have regular Parkinson's so I am on no medication. My father recently died of multisystem atrophy. I have his symptoms. I have a very progressive ataxia & walk with a walker. I have freezing particularly going out of a doorway. It is very frightening when it happens. I do best to move side ways to get moving. Thank you for posting on freezing. I use to work as an RN in long term care for many years & would see people freezing but did not know the term for it. Good tip on the sneakers & walker.
Since your dad has 'off' freezing, 'Off' freezing is more responsive to visual cues. I have worked with lasers in the past and have to say it needs to be assessed on an individual basis since some individuals may not respond sufficiently or have difficulty coordinating. I do not have experience with the laser shoes but just looked at some videos on the lasers you can put on shoes. If the strap on the sole of the shoe is rubbery it may grip more - just a consideration. If he has access to a physical therapist who specializes in Parkinson's, he/she can assess what would be most beneficial for your dad.
If you are a 'freezer' (someone who already experiences freezing episodes in different situations) then stress may exacerbate or make you more sensitive to freezing only for the time you are stressed or anxious. If you not a freezer then no, stress anxiety alone will not cause you to become a freezer. Sorry for the delay in responding.
@@parkinsonsPT what I mean is anxiety stress PTSD or can you become temporarily paralysed mental alone over stressed conversion I guess what I'm trying to rule out or nuero brain damage disease it happened last week few tikes hasn't happened since took vits and few rest days drank more water , bit was scary
I'm sure it was scary, but your question is beyond my scope of expertise. I would recommend discussing with your health care provider who knows you and can individualize recommendations based on your specific situation.
There is a device I. Italy and Switzerland and also France called gondola and this device attracted to the feet and send a certain impulses to the brain for few minutes and lmprove walking for the Patient for several days. Do you know anything about it it has been in Italy for long time please let us know. Thank you
I do not have any experience with this device. However, looking at studies regarding the Gondola, it seems to demonstrate positive improvements with walking. As with any device that helps with walking, it's best to get an individualized evaluation by a physical therapist who specializes in movement disorders/Parkinson's since everyone responds differently to a particular product. It appears that locations for a Gondola evaluation is in Switzerland, Northern Italy, Germany & France. If possible 'try before you buy' and talk to your physical therapist regarding their recommendations specifically for you. There are typically a combination of things people need to work on to improve their freezing so don't despair if this device is not available in your area.
Here are some things to try or consider: 1. Since your left foot is the problem foot, start with making a big step with your left foot as you initiate walking. 2. Pay attention to your left foot more to maintain bigger steps while walking 3. Avoid distractions while walking such as looking at your phone or talking 4. rushing can aggravate freezing 5. try to shift your weight more deliberately over your right foot (but just trying to take a bigger step with your left foot will help with that) There are 2 videos you may want to look at on my channel. one of them is on turns and the other is attention strategies. These two videos can help you with the 'how to'. Hope that helps.
I am considering a devise called a Nexstride. I was surprised to hear an ad that says freezing is because there is a wiring problem in the brain. Maybe this why my PT has not been able to help with my freezing. Also my neurologist has said that drugs will not help with freezing and work with a PT to develop exercises that will help. Any thoughts from you on the above comments. Len Pedrazzini
Freezing is a difficult symptom to treat and very frustrating for individuals who have it. I have not used the Nexstride but have tried laser devices. Typically they work initially on some individuals. I think because it's something new and they are paying more attention to their walking but then the novelty wears off and it doesn't work as well. The laser is hard to see out doors on a sunny day. I have also separately used a metronome which I found helpful since people who freeze have an arrhythmical walking pattern and the metronome helps improve symmetry of walking which then helps with freezing. With much practice (to improve with anything with walking or transfers you need high repetition to improve muscle memory so you don't have to pay as high degree of attention compared to when you don't practice). When people are 'freezers', paying attention to your feet and slowing down can help significantly. But paying attention 100% of the time, all the time is impossible and fatiguing. This device helps you pay attention but because of the cost, I would definitely look at the refund policy. I like that the device can be attached to any ambulatory device. If you look at some videos I have made regarding walking using attention strategies, see if that help since it's free:). I question the metronome piece of it. See if the rate is adjustable. I have another video about walking to a metronome or music which shows you what you need to do to accurately adjust a metronome. Some people are unable to walk to music but can use a metronome. If those don't work, the attention strategies may help or maybe you need an assist device to reduce freezing. Usually a cane is more distracting but using a walker or rollator can drastically reduce freezing.... for some. It's all trial and error and you will need to experiment what works best for you. Good luck!
im a pd patient and i freeze when my medication wears off, i go to the gym carry heavy loads and sometimes jog , is that ok i do those things? Thanks for your reply.
That’s a hard question to answer since I don’t know you. The question you should ask yourself when you’re doing any of these activities is: ‘am I safe?’ I am a strong advocate for exercise, but only if it’s done in a safe way. Another question to ask yourself is ‘when my medication‘s were off, is it predictable or unpredictable?’ Some individuals are steady when their medication‘s are working and then once they stop working, they’re not steady as in your case because you start freezing. If there’s an element of unpredictability, it adds in other layer of safety concerns. If you have access to a physical therapist who specializes in Parkinson’s, they can give you more sound advice specific to you.
Carrying items can distract from your focus on your feet and cause more freezing OR carrying items make you less stable OR both. It would be best to practice different scenarios with a physical therapist who is familiar with PD and freezing to give you individualized attention in a safe way.
Try this sequence and see if it works 1. Avoid rushing 2. Make sure both feet are out 3. Stand up and side step ( big steps) Until you clear the door 4 remain focused on your feet through out 5. Refer to turning video for your turns
Vous pouvez changer la langue en français dans les sous-titres sur youtube si vous cliquez sur l'icône 'CC' sur youtube. C'est un peu délicat mais j'ai essayé et ça a marché.
Since you brought that up its perfect because I am going through that phase now with my walking. You are so patient and understanding I see an improvement in my walking already.
Thank you. So much.
Excellent video on freezing,but a lot to remember! Hurrying is a big no no for those with this problem. So is distractions. It appears that our brain cannot maintain focus if we are doing too many things at once. This is something we took for granted before getting Parkinson’s. It’s important to keep track of our steps especially when out walking and stopping when we need to get our bearings. Thank you for this helpful video. Good work!
I freeze a lot and I have also osteoarthritis and scoliosis at first I thought this had Parkinson's but the neurologist has said that I don't ! But that my freezing is due to the spurs on the last digits of my spine causing me to freeze so I don't really know do you think it's possibly Parkinson's Or can'. freezing happen because of other things associations with my spine , scoliosis osteoarthritis and I also have osteoporosis .doyou think it's possible I actually have Parkinson's
@@annlucy9829 Did your neurologist order a CAT scan or MRI ? Is that how he figured out there was a problem with your spine? Usually Parkinson’s starts with a hand tremor but a small number of people don’t get the tremor.
Oh my stars! I have had a few episodes of freezing and this video is so HELPFUL!!!!💓 Thank you so much!
An excellent presentation. Very much appreciated! Thank you so much!
Very good video thank you
Thanks Mia, I am preparing my assessment and intervention exam and your content helped me a lot. Great work
Thank you! I’m glad you found it helpful.
Very very helpful videos.
Thank you great video on freezing😊
You’re welcome 😊
Excellent , practical-helps me in everyday life
excellent freezing gait tip
Great video!
My father is off Carbidopa - Levidopa because was giving him horrible REM Sleep Disorder type Active nightmares.. They diminished almost to none off Carbidopa/ Levidopa..
But now he has less get up and go..
So helpful talk❤
I'm not freezing yet, but it is great to see that there are things that can help get someone moving when they're in the situation.
Not everyone with Parkinson’s experiences freezing so there is a possibility you may never experience it. But like you said, you’ll know what to do… just in case.
@@parkinsonsPT Good to know. Thank you!
MoiJe redemarrai en faisant un pas en arrière et cela m'allait bien courage depuis trois ans je ne bloque plus
Thank you Mia! This will help my new client!!
Thanks a lot!
This is gold
I tested positive for Parkinson's on a DAT scan but my neurologist says I do not have regular Parkinson's so I am on no medication. My father recently died of multisystem atrophy. I have his symptoms. I have a very progressive ataxia & walk with a walker. I have freezing particularly going out of a doorway. It is very frightening when it happens. I do best to move side ways to get moving. Thank you for posting on freezing. I use to work as an RN in long term care for many years & would see people freezing but did not know the term for it. Good tip on the sneakers & walker.
What about those lasers they put on shoes?
Since your dad has 'off' freezing, 'Off' freezing is more responsive to visual cues. I have worked with lasers in the past and have to say it needs to be assessed on an individual basis since some individuals may not respond sufficiently or have difficulty coordinating. I do not have experience with the laser shoes but just looked at some videos on the lasers you can put on shoes. If the strap on the sole of the shoe is rubbery it may grip more - just a consideration. If he has access to a physical therapist who specializes in Parkinson's, he/she can assess what would be most beneficial for your dad.
@@parkinsonsPT Thank you!🙏🏽
Can you get this from stress anxiety alone
If you are a 'freezer' (someone who already experiences freezing episodes in different situations) then stress may exacerbate or make you more sensitive to freezing only for the time you are stressed or anxious. If you not a freezer then no, stress anxiety alone will not cause you to become a freezer. Sorry for the delay in responding.
@@parkinsonsPT what I mean is anxiety stress PTSD or can you become temporarily paralysed mental alone over stressed conversion I guess what I'm trying to rule out or nuero brain damage disease it happened last week few tikes hasn't happened since took vits and few rest days drank more water , bit was scary
I'm sure it was scary, but your question is beyond my scope of expertise. I would recommend discussing with your health care provider who knows you and can individualize recommendations based on your specific situation.
There is a device I. Italy and Switzerland and also France called gondola and this device attracted to the feet and send a certain impulses to the brain for few minutes and lmprove walking for the Patient for several days. Do you know anything about it it has been in Italy for long time please let us know. Thank you
I do not have any experience with this device. However, looking at studies regarding the Gondola, it seems to demonstrate positive improvements with walking. As with any device that helps with walking, it's best to get an individualized evaluation by a physical therapist who specializes in movement disorders/Parkinson's since everyone responds differently to a particular product. It appears that locations for a Gondola evaluation is in Switzerland, Northern Italy, Germany & France. If possible 'try before you buy' and talk to your physical therapist regarding their recommendations specifically for you. There are typically a combination of things people need to work on to improve their freezing so don't despair if this device is not available in your area.
Sometimes it’s hard to lift my left foot. Do you have any suggestions
Here are some things to try or consider:
1. Since your left foot is the problem foot, start with making a big step with your left foot as you initiate walking.
2. Pay attention to your left foot more to maintain bigger steps while walking
3. Avoid distractions while walking such as looking at your phone or talking
4. rushing can aggravate freezing
5. try to shift your weight more deliberately over your right foot (but just trying to take a bigger step with your left foot will help with that)
There are 2 videos you may want to look at on my channel. one of them is on turns and the other is attention strategies. These two videos can help you with the 'how to'. Hope that helps.
Thank u 🙏 💜
I am considering a devise called a Nexstride. I was surprised to hear an ad that says freezing is because there is a wiring problem in the brain. Maybe this why my PT has not been able to help with my freezing. Also my neurologist has said that drugs will not help with freezing and work with a PT to develop exercises that will help. Any thoughts from you on the above comments. Len Pedrazzini
Freezing is a difficult symptom to treat and very frustrating for individuals who have it. I have not used the Nexstride but have tried laser devices. Typically they work initially on some individuals. I think because it's something new and they are paying more attention to their walking but then the novelty wears off and it doesn't work as well. The laser is hard to see out doors on a sunny day. I have also separately used a metronome which I found helpful since people who freeze have an arrhythmical walking pattern and the metronome helps improve symmetry of walking which then helps with freezing. With much practice (to improve with anything with walking or transfers you need high repetition to improve muscle memory so you don't have to pay as high degree of attention compared to when you don't practice). When people are 'freezers', paying attention to your feet and slowing down can help significantly. But paying attention 100% of the time, all the time is impossible and fatiguing. This device helps you pay attention but because of the cost, I would definitely look at the refund policy. I like that the device can be attached to any ambulatory device. If you look at some videos I have made regarding walking using attention strategies, see if that help since it's free:). I question the metronome piece of it. See if the rate is adjustable. I have another video about walking to a metronome or music which shows you what you need to do to accurately adjust a metronome. Some people are unable to walk to music but can use a metronome. If those don't work, the attention strategies may help or maybe you need an assist device to reduce freezing. Usually a cane is more distracting but using a walker or rollator can drastically reduce freezing.... for some. It's all trial and error and you will need to experiment what works best for you. Good luck!
im a pd patient and i freeze when my medication wears off, i go to the gym carry heavy loads and sometimes jog , is that ok i do those things?
Thanks for your reply.
That’s a hard question to answer since I don’t know you. The question you should ask yourself when you’re doing any of these activities is: ‘am I safe?’ I am a strong advocate for exercise, but only if it’s done in a safe way. Another question to ask yourself is ‘when my medication‘s were off, is it predictable or unpredictable?’ Some individuals are steady when their medication‘s are working and then once they stop working, they’re not steady as in your case because you start freezing. If there’s an element of unpredictability, it adds in other layer of safety concerns. If you have access to a physical therapist who specializes in Parkinson’s, they can give you more sound advice specific to you.
I can not have anything in my hands when I am walking
Carrying items can distract from your focus on your feet and cause more freezing OR carrying items make you less stable OR both. It would be best to practice different scenarios with a physical therapist who is familiar with PD and freezing to give you individualized attention in a safe way.
i tend to have a freeze when i get out of the car :/ ( i am always a passenger)
Try this sequence and see if it works
1. Avoid rushing
2. Make sure both feet are out
3. Stand up and side step ( big steps)
Until you clear the door
4 remain focused on your feet through out
5. Refer to turning video for your turns
thank you so much! :)
En francais s v p
Vous pouvez changer la langue en français dans les sous-titres sur youtube si vous cliquez sur l'icône 'CC' sur youtube. C'est un peu délicat mais j'ai essayé et ça a marché.