I think my wife has this type of dementia you’re talking about. She sleeps constantly it seems. She is now seeing things and people that are not there. She’s very combative and argumentative these days. And yes she has AFIB. And had a heart attack and has CHF. And had lung cancer. Poor balance also. I asked her doctors when she was in the hospital after they diagnosed her with AFIB what was going on with her behaviors. Seven different cardiologists just looked at me and shrugged their shoulders and walked away. Is this a forbidden subject for doctors to talk about or what. It has been eight months since her hospital stay and she has rapidly gone downhill. But still the doctors wont acknowledge anything. This is starting to piss me off actually. Even her family physician is not speaking up. She falls, is argumentative, sees people and things that are not there. She talks to these fictitious people. I can’t stay awake 24/7 to take care of her. She never sleeps at night basically. Sleep is sporadic. I know I sound like I’m complaining, but can you suggest a direction to go with this????? Please I’m begging you.
You asked why we don't go to a neurologist when a loved one is showing signs of cognitive impairment. As an "n" of one and caregiver of 13+ years, I have had my husband evaluated by two neurologists over the years since the onset of his symptoms of dementia. This involved initial testing using standardized instruments as well as CT scans (he cannot have an MRI because of an implanted pacemaker and a defibrillator) and review of his long health history. We did this on a yearly basis using the initial review as a baseline set of measurements. When the first neurologist retired, we went to a second neurologist and received a different diagnosis, from frontal lobe with some lewy body behaviors to the second diagnosis of vascular dementia. What we are left with is "SO WHAT"! In the long run of my husband's cognitive decline, it does not make much difference what it is called. There are no treatments that work for this horrible condition. We live in the SF bay area and both of the neurologists we have seen are from good facilities and highly recommended (Stanford and UCSF respectively). They didn't even agree on what stage my husband was in the process. A lot of time and attention is put on a name of a particular type of the impairment. Why not put as much time and attention on memory care issues and support? Until the research can really define what is going on in the cerebral cortex before an autopsy naming turns out to be of more interest to the Namers than the actual day to day care and help of the people who live with and suffer from dementia.
I understand what you’re saying. It’s so frustrating and seems useless to spend time going to doctors and specialists when there is nothing they can do.
Because Primary doctors instead tells a patient to go home and eat better! Yup...what is wrong with our alopathetic medical system?? And why would he not refer to a lipidologist and dietician? What is it that they are so concerned about statins and heart but ignore the brain? What good is your heart if your brain is dead?
Neurologists get so much wrong! I had aphasia because I had a severe lack of B12 and folate. I didn't know my own name, couldn't read, etc. A group of psychologists tried to commit me to a psych unit because they concluded that I was being belligerent. No one bothered to do a simple blood test that would have helped me get the vitamins I so desperately needed. My neuro put me on Klonopin, which caused further CNS damage. After 17 years of being on this monstrous drug, I am doing a slow taper. Again, doctors who know nothing about safe tapering have tried to commit me to a psych hospital. I am grateful for the benzo group that gave me a safe taper plan. It will take years to get off this monster drug. I'll be 71 by then. I can't get back the years I lost. And I take a dim view now of what neurologists think.
I have watched several videos on vascular dementia which I suspect my dear friend of 35 years after experiencing a diabetic coma...no video on any dementia type mentions the effects of a coma....maybe you can touch on this factor
Thanks for this Deborah it has cleared up a lot for me about my mum's condition. No one has ever given us an explanation or any idea of her life expectancy.
Great video on Vascular Dementia. CADASIL is the most common inheritable vascular dementia. Perhaps you could do a video on CADASIL and how it is diagnosed after a doctor see a patient with vascular dementia
Thank you, this is great information. This is what my mother has, it started with a stroke and she seemed to be relatively unaffected at the time but looking back it was the starting point of a very gradual decline at first and then in the last 2.5 years it has accelerated but I only saw her last week and she still knows me and still walks, talks, reads out loud and writes but can’t remember or organise anything despite still reading and writing. She can’t recognise the fridge in her room but can tie up her shoes so it’s so incredibly random. She’s 82 and I pray she hangs in there for a while yet. The nurses in the home said she is the most self aware resident about her condition in the dementia wing. She tells us she loves us over and over because I think she wants to make sure we know in case something happens. Take care 😊
I am 68 and recently dx with this after telling several of my Drs that something is wrong with me and no one was listening until my pain Dr said lets get an MRI and see. Wow my brain lit up and clouds decended. At least I know I'm not crazy just losing my mind thanks to all my heart problems. Thank you for the info
Yes. I wondered where the empathy went and wondered if he had a death wish. Cancer took him in the end and it was both a mercy and a sad end to a beautiful mind. Two PhD and an early death.
I have been cardioverted 2 times, thankfully I was knocked out. I have atrial flutter, where my heart beat gets stuck at elevated levels for many hours or days. Would this have the same risks as afib?
We were seeing a neurologist-clearly issues after five stories. Neurology dismissed him. Unfortunately we cannot see another one as they all are in same network and will not see each others patients. My dad was discharged
My mom is 71 and was diagnosed with vascular and mixed dementia. We did a PET scan and no plaque was found. Her brain looked normal.The EEG was also normal. Only the CT scan done 3 years ago showed small strokes in the brain. She has her blood sugar and pressure well regulated now and is in a senior home. Is there a reason why the PET appeared normal?
At age 48 I went blind briefly one night. Like a shade was pulled down over my vision. The next day went to the eye doctor and told her about an hour of blindness.. she checked me out. said no eye problem but you need an ultrasound on your neck. OK. Which began my strange journey to the vascular doctor 3 hrs away.. 50-75% blockage left carotid artery. They did surgery to pull the blockage out. Sent me home and never told me to see anyone special. I was fixed. Next year my general doctor did another ultrasound I was told it was 50-75% blocked. But nobody got excited about it. Or made arrangements to see the vascular doctor. Which was ok with me. I had a husband dying of cancer at the time. Well skip 5 years into this and my last ultrasound in 2010 I was told 100% blocked carotid! Was sent to a cardio doctor only one hour from home. He wanted to know why I waited so long. I told him my history. Anyway, He told me at 100% they can no longer do surgery. He rather made me feel I was one foot in the grave. Here it is 2024 I am still alive but not so well. Anxiety & panic attacks, started not wanting to drive to town, I was never like this before I have lost all social doings, Most people give up asking after a while. I had quit drinking and found myself not interested in all the party stuff going on here at the lake, My newest symptom is whole-body tremors sometimes I lose control of my legs and down I go. No warning just feels like the puppet master let go of the strings. Have seen a couple neurologists had the brain scan, and had white matter, one doctor says stroke, and one says maybe MS. Take your pick? I have all the symptoms of MS, but no clear diagnoses. Both doctors had a very bad attitude. Now I just take it one day at a time. Not much faith in Arkansas doctors. Spend lots of my time looking for things I have misplaced. Did I feed the dogs? so have figured out ways to get it together and wish I had a family. But I do know living so very far from town was not a good idea. Who knew? Before my husband died of cancer he told me I should move in towards town. That just made me mad. Seems like we just moved here. And he was dying, so I would have to do it all by myself. What a dirty trick it has all been.
My daughter has VD. A neurologist therapist is not available. There is only one in my state. And she is not taking new patients. My daughter is a 2 stroke survivor (both in the same day) regular counselors don't do much good but I have no choice in order to get her meds.
As a part of testing to see if I have AD, I underwent an MRI. It showed that I had a lacunar infarct and I am devastated. When you say the life expectancy for VD is 5 years, is it because the dementia progresses faster or is it the subsequent stroke doing you in?
This all soooo confusing to me. Unexplained injuries. 3 car accidents w/ no recollection of how they happened. Lost his car for 3 days. Obsession(s) - He enjoys stockpiling change. He puts coins in a little tin that he has. Several times during the day he will stack the quarters, nickels, dimes, and pennies into little piles. He will put the coins back into the tin and start over. Rummaging through anything that he can rummage through, etc. etc. NO motivation. (continued next message).
Theresa, I have no idea why these posts have not been sent until I did a search! Is this your dad or a spouse? Has he been diagnosed yet? This is quite a bit ti be dealing with. Maybe I haven't come across it yet, but do you have a question or something your asking for clarification on? I'm happy to help.
@@answersaboutalzheimers HI! It's my lover of 15 years. In the middle of the night on 04/28 he took the keys to my vehicle and went missing for 48 hours. Police reported him as a missing and endangered person. Silver Alert went out. He was found on the border of SC and FL. SC police apprehended him and sent him to the ER. My vehicle was impounded. As of this moment, I have no idea of where his family has takend him.
I reached out to Debra when I was in distress as a caregiver to my Mom,she called me and we talked,she's the real deal,she cares and has gone through hell with her experinces with her own Mom,we all hurt and she understands that,Thanks Debra!
My Dad is 90, has lived with me for the past 3 1/2 years, at first he was diagnosed with Vascular dementia and then 6 months ago a different neurologist thought is was more Alzheimer’s, so not sure? He needs help with most things, but he is so private with bathroom & bathing, he will not allow me or my sister to help. He wears Depends but is having more & more inconvenience. He knows on one level he had Alzheimer’s and on another he thinks he can still do everything 😳 he can barely get up & down, has significant balance issues, uses a cane and walker, but refuses a transport chair. He refuses any kind of help in the home and won’t even consider a facility 😩 I know he is going to need help very soon, do you have any advice in how to go about this? My sister and I feel like he is stage 5-6? Thank you for any guidance you can offer. 😊
See if these help. I also have a roll play of this that should help you....look for that one also....let me know if your still struggling. th-cam.com/video/zqfPW-hhw8k/w-d-xo.html th-cam.com/video/gMOh-21a45o/w-d-xo.html
Wanted to comment on why people do not go to the neurologist to check for dementia... My Mom was diagnosed at 89, refused to believe it, got angry with neurologist, tried to prove diagnosis was wrong, refused medication that would slow progression, stopped going to any doctor that didn't do as she said. It was a nightmare. Some people like to live in denial and you cannot convince them otherwise. The neurologist told me many patients "refuse to accept the diagnosis and the stress on the family is immense." That's what happened. She died at 90. It's over a year since her death and I am still trying to process it all.
My husband doesn’t remember the neurologist diagnosed his vascular dementia based on his MRI. The neurologist referred us to palliative care and back to PCP. He is high functioning but is gradually losing his ability to complete his ADLs and his daily routines. Mostly he is angry, irritable and thinks I am the enemy.
@@JenniferBrown-j7t hi my father is also suffering from multiple infarct dementia. Can you please help me in understanding what changes your husband is facing in behaviour. As my father sometime has anger issue, sometime he is quite.
We went to Neuro with no more info than the PCI. I still have no official diag. Tho he’s in prob middle of fifth stage, only info I’ve received is fro your channel and Vicky’s.
Im terrified of the diagnosis so I know I need to see a Neurologist, because my husband was just diagnosed with a rare blood cancer so many Doc appts, blood work, Pet scans, chemo, it's absolutely mind numbing so I have to take care of him.
You ask why some don't have a neurologist knowing they have brain disease. Was Dx in 1982 with MS by hospital based neurologist. Confirmed with MRI in 1986. Moved in 1989, records lost when pmd died. New neuro said yes, do have MS. He moved. Next neuro said no. Since 1982 have gotten 9 yes I do have MS, 4 no, don't have MS. Last guy said no, and he could not read MRI. That was in 2021. No neurologist, gave up searching for what I have and how to treat it. Do know of family history on mom's side, 3 with dementia, took care of two of them. Ugly disease.
@@answersaboutalzheimers TY, and yes, the system failed for me. Life goes on, hopeful that I changed enough risk factors to not induce dementia on top of a demyelination disease.
thank you. my husband has V. Alz. he had as stroke, is diabetic , and has had high blood pressure most his life poor guy now has Charcot feet which are so deformed he can hardly walk -i am blind ,i have light persception and i see shadows, but i take very good care of him!
No one has ever told me what kind of dementia my mother in law has. I still dont know, but id definitely say vascular dementia. She has Afib for the last 18 years. She still has a blood clot in her brain, and she had a bloodclot that lodged in her kidney a few yrs ago. So it destroyed it, so she has 1 kidney, so im pretty sure she has both vascular and post stroke dementia.
Hello. My Mom was just diagnosed with Vascular Dementia today after Months of Doctors not knowing what was the case. They ruled it out as Delerium. So we got a second opinion and it was ruled out Vascular Dementia. I found your page and sent your info on Vascular Dementia to all 7 siblings of mines so that they can get a better understanding of this illness. I researched a few on TH-cam but information and how you presented it. Got my attention. So Thank You Very Much for this information. Please keep my Mom Janice in you all's Prayers. Thank You. God Bless You. Love André🙏🏾❤
(contuation) Selective hearing. Whenever he hears any type of vehicles coming down the road, he jumps up to see what kind of vehicle is coming down the road and where said vehicle might be going. He hovers over me, repairmen, delivery people etc. etc. Several falls during the night. I'm on the right track right now (visit to PCP, bloodwork done, mini cognitive test). MRI scheduled and neuropsych is scheduled.
Thank you so much for this. My mother-in-law is just now going through the testing and imaging. I didn’t know there were so many variants. This is very helpful!
The amount of information you provided here is very helpful i am grateful for your insight i am presently dealing with both parents who are going through a cycle that is getting repetitive and I am looking for assistance in any way possible dad is 94 mom is 89
I am 67 and was diagnosed with dementia about a month ago. I have been having symptoms since I was 58. I retired when I was 60 because I didn't feel like I could perform my job anymore. I'm just now learning about dementia and am seeing my regular Doctor on Monday after doing a mri. what questions should I ask him.
My mother was diagnosed with vascular dementia a couple of years after developing signs . I think the first sign occurred with her inability to drive safely at age 80 She reached end stage dementia and died at age 88
Well that’s scary 👀 I have diabetes, high blood pressure, my cholesterol is through the roof, (doubled my meds) obese ( but losing) severe sleep apnea, which I’m not doing anything for it. Among other things but I’m on so many meds, it’s crazy. I have been kinda thinking I might have some kind of dementia. My memory is gone, I have no memory of growing up, going to school, I can’t name most of the people in a staff photo, who I worked with for years. I am having a lot of trouble finding words for everything, everyday. My balance is off so much, I’ve had a couple of bad tumbles. Oh ya, exhausted all the time. Doctors don’t listen to you.
Madam. You are talking about first world countries. In third world countries only a minimal percentage of the population can afford to see a Neurologist. If one gets to see a government Neurologist one is blessed as theyare few and far apart.
Thank you. This really helps me understand my mother condition. The ups and downs she's going through especially now she doesn't care and can't be made to do anything she doesn't want
Question: If the only risk factor is age do you suppose I can extend that five year prognosis by encouraging my wife to walk with me or to use our tread mill? I sure like your style, tell it like it is and no BS. You experienced pain and loss and you gained a noble mission. Your book is without a doubt the most life changing book I have ever read. Thank you.
Oh, Forrest, first, thank you for your kind words. Age is NOT the only risk factor. There are many others like congestiveheartfailure, high cholesteroland high blood pressure, diabetes........but to answer your question, exercise is very good for those with dementia. It helps to keep oxygen rich blood feeding the brain! Also, lowering carbs can be beneficial according to many doctors' advice. I hope this helps!
@@answersaboutalzheimers Thank you for your response. To be clear I meant with my wife she has no risk factors other than age. NO hypertension, no diabetes, no high cholesterol. I am changing her inflammatory diet but I am a dumb husband who has been 100% dependant on her cooking. On the positive side she is amused when I present her meals. I love it when she smiles .
I wrote a rather long comment, and put a lot of thought and time in it. Then before I sent it, it disappeared. Do you hear this often from caretakers? Would it be hiding away somewhere! Ha! Please advise.
@@answersaboutalzheimers I did subscribe. I have often wondered how vascular dementia was different than Alzheimers… so this video was right on point….
Stigma. That's why they don't seek help
I think my wife has this type of dementia you’re talking about. She sleeps constantly it seems. She is now seeing things and people that are not there. She’s very combative and argumentative these days. And yes she has AFIB. And had a heart attack and has CHF. And had lung cancer. Poor balance also. I asked her doctors when she was in the hospital after they diagnosed her with AFIB what was going on with her behaviors. Seven different cardiologists just looked at me and shrugged their shoulders and walked away. Is this a forbidden subject for doctors to talk about or what. It has been eight months since her hospital stay and she has rapidly gone downhill. But still the doctors wont acknowledge anything. This is starting to piss me off actually. Even her family physician is not speaking up. She falls, is argumentative, sees people and things that are not there. She talks to these fictitious people. I can’t stay awake 24/7 to take care of her. She never sleeps at night basically. Sleep is sporadic. I know I sound like I’m complaining, but can you suggest a direction to go with this????? Please I’m begging you.
You asked why we don't go to a neurologist when a loved one is showing signs of cognitive impairment. As an "n" of one and caregiver of 13+ years, I have had my husband evaluated by two neurologists over the years since the onset of his symptoms of dementia. This involved initial testing using standardized instruments as well as CT scans (he cannot have an MRI because of an implanted pacemaker and a defibrillator) and review of his long health history. We did this on a yearly basis using the initial review as a baseline set of measurements. When the first neurologist retired, we went to a second neurologist and received a different diagnosis, from frontal lobe with some lewy body behaviors to the second diagnosis of vascular dementia. What we are left with is "SO WHAT"! In the long run of my husband's cognitive decline, it does not make much difference what it is called. There are no treatments that work for this horrible condition. We live in the SF bay area and both of the neurologists we have seen are from good facilities and highly recommended (Stanford and UCSF respectively). They didn't even agree on what stage my husband was in the process. A lot of time and attention is put on a name of a particular type of the impairment. Why not put as much time and attention on memory care issues and support? Until the research can really define what is going on in the cerebral cortex before an autopsy naming turns out to be of more interest to the Namers than the actual day to day care and help of the people who live with and suffer from dementia.
Well, that is NOT good!
I understand what you’re saying. It’s so frustrating and seems useless to spend time going to doctors and specialists when there is nothing they can do.
I agree. Just naming the disease, when there is no cure is pointless.
Excellent comment! God bless you & those you care for 🙏
@@conniefiveash3358💯
Because Primary doctors instead tells a patient to go home and eat better! Yup...what is wrong with our alopathetic medical system?? And why would he not refer to a lipidologist and dietician? What is it that they are so concerned about statins and heart but ignore the brain? What good is your heart if your brain is dead?
Also, why do you think I have headaches all the time with CAA is this common?
Neurologists get so much wrong! I had aphasia because I had a severe lack of B12 and folate. I didn't know my own name, couldn't read, etc. A group of psychologists tried to commit me to a psych unit because they concluded that I was being belligerent. No one bothered to do a simple blood test that would have helped me get the vitamins I so desperately needed. My neuro put me on Klonopin, which caused further CNS damage. After 17 years of being on this monstrous drug, I am doing a slow taper. Again, doctors who know nothing about safe tapering have tried to commit me to a psych hospital. I am grateful for the benzo group that gave me a safe taper plan. It will take years to get off this monster drug. I'll be 71 by then. I can't get back the years I lost. And I take a dim view now of what neurologists think.
This video sure helped me to understand what's going on. Is it highly recommended to go into in-house care at this stage of life?
I have watched several videos on vascular dementia which I suspect my dear friend of 35 years after experiencing a diabetic coma...no video on any dementia type mentions the effects of a coma....maybe you can touch on this factor
sorry that the message below was so very long. Just wondering what else to expect.
Thanks for this Deborah it has cleared up a lot for me about my mum's condition. No one has ever given us an explanation or any idea of her life expectancy.
Great video on Vascular Dementia. CADASIL is the most common inheritable vascular dementia. Perhaps you could do a video on CADASIL and how it is diagnosed after a doctor see a patient with vascular dementia
Thank you, this is great information. This is what my mother has, it started with a stroke and she seemed to be relatively unaffected at the time but looking back it was the starting point of a very gradual decline at first and then in the last 2.5 years it has accelerated but I only saw her last week and she still knows me and still walks, talks, reads out loud and writes but can’t remember or organise anything despite still reading and writing. She can’t recognise the fridge in her room but can tie up her shoes so it’s so incredibly random. She’s 82 and I pray she hangs in there for a while yet. The nurses in the home said she is the most self aware resident about her condition in the dementia wing. She tells us she loves us over and over because I think she wants to make sure we know in case something happens. Take care 😊
Its really tough. Hang in there and know that you are not alone. I hope you subscribed to the family.
I am 68 and recently dx with this after telling several of my Drs that something is wrong with me and no one was listening until my pain Dr said lets get an MRI and see. Wow my brain lit up and clouds decended. At least I know I'm not crazy just losing my mind thanks to all my heart problems. Thank you for the info
I'm glad you got some answers....that's a good start! I'm here for you.
Yes. I wondered where the empathy went and wondered if he had a death wish. Cancer took him in the end and it was both a mercy and a sad end to a beautiful mind. Two PhD and an early death.
I have been cardioverted 2 times, thankfully I was knocked out. I have atrial flutter, where my heart beat gets stuck at elevated levels for many hours or days. Would this have the same risks as afib?
Probably
We were seeing a neurologist-clearly issues after five stories. Neurology dismissed him. Unfortunately we cannot see another one as they all are in same network and will not see each others patients. My dad was discharged
My mom is 71 and was diagnosed with vascular and mixed dementia. We did a PET scan and no plaque was found. Her brain looked normal.The EEG was also normal. Only the CT scan done 3 years ago showed small strokes in the brain. She has her blood sugar and pressure well regulated now and is in a senior home. Is there a reason why the PET appeared normal?
At age 48 I went blind briefly one night. Like a shade was pulled down over my vision. The next day went to the eye doctor and told her about an hour of blindness.. she checked me out. said no eye problem but you need an ultrasound on your neck. OK. Which began my strange journey to the vascular doctor 3 hrs away.. 50-75% blockage left carotid artery. They did surgery to pull the blockage out. Sent me home and never told me to see anyone special. I was fixed. Next year my general doctor did another ultrasound I was told it was 50-75% blocked. But nobody got excited about it. Or made arrangements to see the vascular doctor. Which was ok with me. I had a husband dying of cancer at the time. Well skip 5 years into this and my last ultrasound in 2010 I was told 100% blocked carotid! Was sent to a cardio doctor only one hour from home. He wanted to know why I waited so long. I told him my history. Anyway, He told me at 100% they can no longer do surgery. He rather made me feel I was one foot in the grave.
Here it is 2024 I am still alive but not so well. Anxiety & panic attacks, started not wanting to drive to town, I was never like this before I have lost all social doings, Most people give up asking after a while. I had quit drinking and found myself not interested in all the party stuff going on here at the lake, My newest symptom is whole-body tremors sometimes I lose control of my legs and down I go. No warning just feels like the puppet master let go of the strings. Have seen a couple neurologists had the brain scan, and had white matter, one doctor says stroke, and one says maybe MS. Take your pick? I have all the symptoms of MS, but no clear diagnoses. Both doctors had a very bad attitude. Now I just take it one day at a time. Not much faith in Arkansas doctors. Spend lots of my time looking for things I have misplaced. Did I feed the dogs? so have figured out ways to get it together and wish I had a family. But I do know living so very far from town was not a good idea. Who knew? Before my husband died of cancer he told me I should move in towards town. That just made me mad. Seems like we just moved here. And he was dying, so I would have to do it all by myself. What a dirty trick it has all been.
You do a great job of explaining the types and causes of dementia. Thank you.
My daughter has VD. A neurologist therapist is not available. There is only one in my state. And she is not taking new patients. My daughter is a 2 stroke survivor (both in the same day) regular counselors don't do much good but I have no choice in order to get her meds.
As a part of testing to see if I have AD, I underwent an MRI. It showed that I had a lacunar infarct and I am devastated. When you say the life expectancy for VD is 5 years, is it because the dementia progresses faster or is it the subsequent stroke doing you in?
The average Is 5. Sorry, that question is better for the doctor to answer for you.
This all soooo confusing to me. Unexplained injuries. 3 car accidents w/ no recollection of how they happened. Lost his car for 3 days. Obsession(s) - He enjoys stockpiling change. He puts coins in a little tin that he has. Several times during the day he will stack the quarters, nickels, dimes, and pennies into little piles. He will put the coins back into the tin and start over.
Rummaging through anything that he can rummage through, etc. etc. NO motivation. (continued next message).
Theresa, I have no idea why these posts have not been sent until I did a search! Is this your dad or a spouse? Has he been diagnosed yet?
This is quite a bit ti be dealing with. Maybe I haven't come across it yet, but do you have a question or something your asking for clarification on? I'm happy to help.
@@answersaboutalzheimers HI! It's my lover of 15 years. In the middle of the night on 04/28 he took the keys to my vehicle and went missing for 48 hours. Police reported him as a missing and endangered person. Silver Alert went out. He was found on the border of SC and FL. SC police apprehended him and sent him to the ER. My vehicle was impounded. As of this moment, I have no idea of where his family has takend him.
I reached out to Debra when I was in distress as a caregiver to my Mom,she called me and we talked,she's the real deal,she cares and has gone through hell with her experinces with her own Mom,we all hurt and she understands that,Thanks Debra!
My Dad is 90, has lived with me for the past
3 1/2 years, at first he was diagnosed with Vascular dementia and then 6 months ago a different neurologist thought is was more Alzheimer’s, so not sure? He needs help with most things, but he is so private with bathroom & bathing, he will not allow me or my sister to help. He wears Depends but is having more & more inconvenience. He knows on one level he had Alzheimer’s and on another he thinks he can still do everything 😳 he can barely get up & down, has significant balance issues, uses a cane and walker, but refuses a transport chair. He refuses any kind of help in the home and won’t even consider a facility 😩 I know he is going to need help very soon, do you have any advice in how to go about this?
My sister and I feel like he is stage 5-6?
Thank you for any guidance you can offer. 😊
See if these help. I also have a roll play of this that should help you....look for that one also....let me know if your still struggling.
th-cam.com/video/zqfPW-hhw8k/w-d-xo.html
th-cam.com/video/gMOh-21a45o/w-d-xo.html
my mum passed on 21st may 2024 due to vascular dementia, kidney failure. Her dementia was aggressive, it rapidly deteriorated....
Wanted to comment on why people do not go to the neurologist to check for dementia... My Mom was diagnosed at 89, refused to believe it, got angry with neurologist, tried to prove diagnosis was wrong, refused medication that would slow progression, stopped going to any doctor that didn't do as she said. It was a nightmare. Some people like to live in denial and you cannot convince them otherwise. The neurologist told me many patients "refuse to accept the diagnosis and the stress on the family is immense." That's what happened. She died at 90. It's over a year since her death and I am still trying to process it all.
Wow, that can be really hard! I'm so proud of your efforts. Sometimes you can only do so much!
My husband doesn’t remember the neurologist diagnosed his vascular dementia based on his MRI.
The neurologist referred us to palliative care and back to PCP. He is high functioning but is gradually losing his ability to complete his ADLs and his daily routines. Mostly he is angry, irritable and thinks I am the enemy.
I'm so sorry
@@JenniferBrown-j7t hi my father is also suffering from multiple infarct dementia. Can you please help me in understanding what changes your husband is facing in behaviour. As my father sometime has anger issue, sometime he is quite.
We went to Neuro with no more info than the PCI. I still have no official diag. Tho he’s in prob middle of fifth stage, only info I’ve received is fro your channel and Vicky’s.
While I'm happy that I've helped, this is so disappointing to hear about the doctors!
Im terrified of the diagnosis so I know I need to see a Neurologist, because my husband was just diagnosed with a rare blood cancer so many Doc appts, blood work, Pet scans, chemo, it's absolutely mind numbing so I have to take care of him.
You also need to take care of yourself. Build your support system now and get some plans in place.....
You ask why some don't have a neurologist knowing they have brain disease. Was Dx in 1982 with MS by hospital based neurologist. Confirmed with MRI in 1986. Moved in 1989, records lost when pmd died. New neuro said yes, do have MS. He moved. Next neuro said no. Since 1982 have gotten 9 yes I do have MS, 4 no, don't have MS. Last guy said no, and he could not read MRI. That was in 2021. No neurologist, gave up searching for what I have and how to treat it. Do know of family history on mom's side, 3 with dementia, took care of two of them. Ugly disease.
Oh my gosh! That is a lot. I'm so sorry! They have failed you
@@answersaboutalzheimers TY, and yes, the system failed for me. Life goes on, hopeful that I changed enough risk factors to not induce dementia on top of a demyelination disease.
thank you. my husband has V. Alz. he had as stroke, is diabetic , and has had high blood pressure most his life poor guy now has Charcot feet which are so deformed he can hardly walk -i am blind ,i have light persception and i see shadows, but i take very good care of him!
Wow you sure have your hand full....
No one has ever told me what kind of dementia my mother in law has. I still dont know, but id definitely say vascular dementia.
She has Afib for the last 18 years. She still has a blood clot in her brain, and she had a bloodclot that lodged in her kidney a few yrs ago. So it destroyed it, so she has 1 kidney, so im pretty sure she has both vascular and post stroke dementia.
Hello. My Mom was just diagnosed with Vascular Dementia today after Months of Doctors not knowing what was the case. They ruled it out as Delerium. So we got a second opinion and it was ruled out Vascular Dementia. I found your page and sent your info on Vascular Dementia to all 7 siblings of mines so that they can get a better understanding of this illness. I researched a few on TH-cam but information and how you presented it. Got my attention. So Thank You Very Much for this information. Please keep my Mom Janice in you all's Prayers. Thank You. God Bless You. Love André🙏🏾❤
My dad has vascular dementia. Thanks for your informations and I love you too sweet heart 🤗
Awww thanks! I hope you subscribed!
(contuation) Selective hearing. Whenever he hears any type of vehicles coming down the road, he jumps up to see what kind of vehicle is coming down the road and where said vehicle might be going. He hovers over me, repairmen, delivery people etc. etc. Several falls during the night. I'm on the right track right now (visit to PCP, bloodwork done, mini cognitive test). MRI scheduled and neuropsych is scheduled.
I did a search and just found this....he may be obsessing with the cars. Di he have a history of working on cars or loved them?
@@answersaboutalzheimers He knows nothing about cars.
Thank you so much for this. My mother-in-law is just now going through the testing and imaging. I didn’t know there were so many variants. This is very helpful!
So glad to help! I hope you subscribed!
@@answersaboutalzheimers yes I did, about a month ago.
Wow! That was really helpful. Thank you. Subscribed.
Your welcome!
The amount of information you provided here is very helpful i am grateful for your insight i am presently dealing with both parents who are going through a cycle that is getting repetitive and I am looking for assistance in any way possible dad is 94 mom is 89
Glad to help. I hope you subscribed!
Learning about this makes so much sense now. Mom has had alllll the signs. Thanks for the information.
Thank you so much. So helpful and informative. My mom has vascular dementia and this clip really gave me alot of clarity. Thank you so much.
You bet! I hope you subscribed!
my dad has post stroke vascular dementia. It's a really hard to witness disease
Yes it is very hard.....sending my love. I hope you subscribed
Bought your book today on Kindle. Looking forward to reading.
Please do a Amazon review
I am 67 and was diagnosed with dementia about a month ago. I have been having symptoms since I was 58. I retired when I was 60 because I didn't feel like I could perform my job anymore. I'm just now learning about dementia and am seeing my regular Doctor on Monday after doing a mri. what questions should I ask him.
Ask who the best neurologist is and how soon you can get in!
And keep me posted
try getting in to Neurologist! 6-7 months!
Yes I know. Its ridiculous!
My mother was diagnosed with vascular dementia a couple of years after developing signs .
I think the first sign occurred with her inability to drive safely at age 80
She reached end stage dementia and died at age 88
I'm so sorry....
Well that’s scary 👀 I have diabetes, high blood pressure, my cholesterol is through the roof, (doubled my meds) obese ( but losing) severe sleep apnea, which I’m not doing anything for it. Among other things but I’m on so many meds, it’s crazy. I have been kinda thinking I might have some kind of dementia.
My memory is gone, I have no memory of growing up, going to school, I can’t name most of the people in a staff photo, who I worked with for years. I am having a lot of trouble finding words for everything, everyday. My balance is off so much, I’ve had a couple of bad tumbles. Oh ya, exhausted all the time. Doctors don’t listen to you.
Keto
Exercise
Meditate
With all that I'm going to assume you're also depressed?
This is a lot!
Do you have a neurologist?
Gaslighting asshole doctors...there are a lot!
Yes depressed. I had one I think, I had 4 discs fused in my neck.
I mean a neurologist for the memory problems....
No, I’m sorry I don’t. Any doc that I’ve talked to about it says not to worry, take ginkgo biloba.
Madam. You are talking about first world countries. In third world countries only a minimal percentage of the population can afford to see a Neurologist. If one gets to see a government Neurologist one is blessed as theyare few and far apart.
I guess that these videos are very important to you. Thanks for watching
Thank you. This really helps me understand my mother condition. The ups and downs she's going through especially now she doesn't care and can't be made to do anything she doesn't want
I'm so glad this has helped you get a clearer understanding. I hope you subscribed?
Yes I have
I enjoy it got to see it again and write notes..
Awesome! I hope you've subscribed!?
Thank you, how can you increase blood flow ?
Can this also effect blood flow to the feet ?
You can increase blood flow with cardio exercise. If you have poor circulation it can effect your feet.
Question: If the only risk factor is age do you suppose I can extend that five year prognosis by encouraging my wife to walk with me or to use our tread mill? I sure like your style, tell it like it is and no BS. You experienced pain and loss and you gained a noble mission. Your book is without a doubt the most life changing book I have ever read. Thank you.
Oh, Forrest, first, thank you for your kind words. Age is NOT the only risk factor. There are many others like congestiveheartfailure, high cholesteroland high blood pressure, diabetes........but to answer your question, exercise is very good for those with dementia. It helps to keep oxygen rich blood feeding the brain! Also, lowering carbs can be beneficial according to many doctors' advice. I hope this helps!
@@answersaboutalzheimers Thank you for your response. To be clear I meant with my wife she has no risk factors other than age. NO hypertension, no diabetes, no high cholesterol. I am changing her inflammatory diet but I am a dumb husband who has been 100% dependant on her cooking. On the positive side she is amused when I present her meals. I love it when she smiles .
Awesomeness
You're awesomeness! I hope you subscribed???
My neighbor has vascular dementia but hes been morbidly obese for years
Is there a connection?
Debra are there specialists for dementia or just neurologists?
What do we do when specialista are not agreeing with each other? Where do we go?
I was told I have CAA. Is that the same as vascular disease?
I wrote a rather long comment, and put a lot of thought and time in it. Then before I sent it, it disappeared. Do you hear this often from caretakers? Would it be hiding away somewhere! Ha! Please advise.
I have never heard that.
Try again? Tjis one came through...
❤❤❤
Right back at ya!
I hope you subscribed...
@@answersaboutalzheimers
I did subscribe. I have often wondered how vascular dementia was different than Alzheimers… so this video was right on point….
@@MrArdytube so happy to help!
Thanks. You are like my encyclopedia! When you know so little, you don’t know what questions to ask! Your information is valued! R
My mother has got vascular dementia
She never had a stroke she has high blood pressure and diabetes
Yes, vascular dementia can be caused by many things. Keep up the great Daregiving!
I am really struggling
@kerryeastlake8812
We can book a call to see if a coaching session would be of value....
Can blockage in the carotid arteries cause vascular dementia?
yes