Specialist who deals with this will understand, but my PCP didn’t. Took me over one year and so many different specialist with testing to finally have a Doctor who had the answers. very frustrating.
Diagnosed with Sjögrens at 22 ! I experienced heavy symptoms before turning 21 but no doctor was able to figure out what autoimmune disorder it was. Still even after knowing there wasn’t much information that was covered. Definitely needs more attention.
@@suzzyy8669 I unfortunately never met with a rheumatologist. No one was able to diagnose me for a while and when a doctor pieced together the symptoms to run the proper blood tests. She told me to eat healthy and exercise. Still to this day I’m not sure if it is Primary or Secondary Sjogrens. My state healthcare plan has made it difficult to receive the help I need.
Please do create more videos! The clear and structured explanation with the great accompanying visuals make it an extremely informative and - most importantly - memorable presentation. I have subscribed. :D
I think the good Dr. Fazakas is only trying to share his knowledge ...there is no shame in that. I was diagnosed with Sjogren's 9 years ago. I am severely ill with Sjogren's, it caused me to have a cornea transplant last November. The eye is still in crisis. Sjogren's is nothing to ignore. I also have RA, MCTD, and Raynauds, all which were diagnosed after the diagnosis of Sjogren's Syndrome. Be kind to each other in the quest of understanding this underestimated disease. Life can be short, and a healthy life can be far shorter. Thank you Dr. Fazakas for putting the word out about Sjogren's Syndrome. ....Caroline
Thanks Caroline, these words felt so good to me! I wish I could do more for you. If you have any questions, then please feel free to ask me anytime. I wish you a wonderful day!
Aaah Doc, your videos just came to my rescue... Thank you sir! Looking forward on checking more of your videos. Much appreciation, all the way from South Africa!
Thank you for mentioning that teeth can be an issue. I wish that was mentioned to me years ago. I’ve been to ma y dentists over the years and none of them had any clue. Now, I have a dentist who is well-versed in Sjögren’s syndrome. It doesn’t hurt that he’s my retired rheumatologist’s son!
Brilliant explanation. Clear, precise and opened on other relevant diagnostic possibilities. I'll be definitely looking forward to further videos. Cheers
Dr Fazakas, are you Greek? You speak excellent English. This is the most complete, honest, frank and factual explanation of Sjögren’s. I have been diagnosed. It’s debilitating for my eyes especially. I like to 🎨 paint and watch birds and sew. I must wear grease in my eyes to sleep and cannot read at night as I love to do. Without the grease, I wake up with eyelids sealed shut and must wet them with water to open them. My tongue also sticks to the roof of my mouth. I can only pray not to get lymphoma. My foot soles have numbness neuropathy, but no pain. I causes imbalance. I am a dance teacher and performer. What a sentence! A life sentence.
Anna Lisa are you Greek? I was recently diagnosed as well! I have numb foot soles with pins and needles sometimes, migraines and imbalance apart from dry eyes! Have you been to Mr. Tzioufas in Laiko hospital?
SS is no cake walk. Thank you for the video information that can be shared with family and friends to help them understand. I was diagnosed with Lupus after 9 years of random health crisis and by then I also had Sjogrens Syndrome among a lot of other DX.. Early on I was told it was just dry eyes and mouth but that is incorrect. There is joint pain, fatigue, fogs and heartblock in your newborn. I had to have both of my shoulders repaired because the synovial fluid dried up and they scarred in place. The most frustrating part of my experience with auto immune disease is that doctors, even specialists, do not seem to know much about the disease (SS or Lupus) or its effects on your body and so your told to suck it up. (USA)
+Jennifer Leonard Hello Jennifer, I respect that you took your time and shared your story with us! Yes you are correct that many doctors are unaware of the symptoms and treatment of autoimmune diseases. Immunology is such a complex science that many doctors are intimidated by it, and rather choose another field. Even immunology specialists have hard time figuring out which autoimmune disease we are dealing with. This is why it's so important to share ideas with other people with the help of internet. A doctor is not a GOD! A doctor is a human like anybody else. As we all know, memory have its limits. When a doctor deals with thousands of diseases it becomes hard to differentiate between them. I wish you all the best in life!
That is very true that doctors are human like all of us and the field is intimidating. We need to work as a team with our doctors but its hard because often if you know anything about your disease they feel intimidated more when we just want to work toward solutions and figure out treatment options. The online support groups are very good and many many people are sharing ideas and experiences there which is supportive. There is so much overlap between diseases and I am proof of that both my symptoms and multiple ANA patterns. And even they can overlap. I hope in the future research is fruitful to help people with these and other chronic diseases. I just read a brilliant article about :The Mycotoxin Connection: Uric Acid, Gout, RA & Other Degenerative Disease. Makes a LOT of sense. Perhaps a clue we havent considered.
Jennifer Leonard yes, I am so tired of having to educate people who've been to medical school. If I know about it, shouldn't they? My main complaints have consistently been pain in joints and extreme fatigue, yet every SINGLE time I go in, they try to talk about sucking on lemons and using fake spit. Seriously, I want to choke someone. I was denied disability, even with a lawyer and told to try again when it "gets worse." Worse? I already lose every job I get bc once I start working, I get so overtired that it throws me into a lupus flare. How do you work when you can't keep yourself awake or barely lift your arms?
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Jennifer Leonard can I ask you how old were you when you had it? Because you look young... I have it and I am scaaaared..
Oscar François de Jarjayes I have it . It’s honestly nothing to be afraid of . It’s different for everyone and there are actually some knowledgeable doctors who know what to do out there . It isn’t the case for everyone . Death isn’t guaranteed and statistically isn’t responsible for deaths . Most people live full lives so don’t be afraid and get multiple opinions
This is amazing! You are amazing! You are going to be the reason I will succeed my exam tomorrow. I very much appreciate that you have the script published - saving me a lot of time. Truly grateful!
Thank you for this video....I found out I had Sjogren's 3 months ago and this is helpful. I suffered from the symptoms for years and couldn't get answers until the side of my face blew up twice it's size.I went into a free fall of depression and so did my family. About 30 years it was discovered I had Sarcordoiss which went into remission. Now this blow has put me in the dumps! I fight everyday to keep myself happy! I changed my eating habits by eating anti-flammatory fruits and veggies that rebuilds the cells so this helped, no more pain! Plus, I give myself B-12 shots every month which last a few weeks.
Add some Turmeric Tea to your diet! Powdered Turmeric with powdered Ginger, Finely ground Black pepper powder, Clove powder, Cinnamon powders. All organic only! Use this Recipe. Heat up 6 cups of distilled water to simmer. Add the powders below pre mixed. 1/4 cup Turmeric powder 2 tsp. Cinnamon powder 2 tbsp. Ginger powder 1/4 Tsp. Clove powder 1/4 tsp. Black pepper powder. Let come to a simmer for only 10 minutes while continually stirring. Let it cool and strain through cheesecloth or I use a very fine colender. I like my tea with added Raw organic clover Honey to taste for my preference. If you like add your favorite sweetener or raw sugar. I like mine with organic or raw milk, or maybe you like it plain. Try it different ways. It seriously helps my fatigue and my anxiety plus is a great anti-inflammatory. It works for me. I adjusted this recipe for myself. You can too. Make sure where your spices come from so there's no contamination. Enjoy.
Journeytopeace Peace - just in your eyes is bad enough. Do you have Sjögren’s? My mouth is constantly dry. And my throat. And my feet have neuropathy. And my fingertips are cracked. No touchscreen for me!!!
@@annalisa14 My corneas have been so ulcerated I was seeing a cornea specialist for years. I couldn’t drive for a while, and wore sclera lenses (which didn’t work because protein kept lining the inside of the lenses), got plugs in my tear ducts, had blood tears spun, and walked around with one eye always closed. It got better after I had my implants taken out and moved out if a condo that had mold I didn’t know about for years. It’s worse than you can imagine!
I was diagnosed at 19. I'm 25 now and been on hydroxychloroquine. My teeth are already ruined, my eyes are constantly blurry, the fatigue is terrible, I have lots of pressure in my chest and fainting spells 😔
Thank you. I lupus sjogrens hereditary spastic paraplegia and much much more . Sjogrens it's so complex . I have had cancer in the submandibular and parotid gland lost all of my teeth and part of my lower jaw . Anyone livening with this has myreslect and empathy again thank you xo
I sympathize with you! I acquired this when I moved to my moldy condo that looked pristine! I also had breast implants which caused toxins to harbor inside my body. I’ve had ALL these things go wrong with my body! I’m surprised didn’t die.
@@Tinyteacher1111 I have the symptoms and am proactively scheduling to have my implants removed. Did the implant removal help your symptoms? Did your lab work improve after the explant? Did they do an en bloc and remove the entire capsule or just the implant? Did you have positive lyme or ebstein bar with the mold?
What were your cancerous tumors like? I have a large hard bump in front of my ear & swelling under my chin on the opposite side of my face. I have appointment with an ENT in a week but I’m so scared in the meantime😔
@@amandasansone I currently have the same symptoms as you, except I also have a rash on my arms & torso. Would you care to let me know what you found out please?
@@Tinyteacher1111You think living in a home with mold and having breast implants caused Sjrogens? I ask because I have many other things that could’ve caused this. But living in a moldy home previously and implants are what I have also.
Doctor, has there been any recent research into younger males getting Sjogren's Syndrome? I'm a male and I was only in my early 30's when I was diagnosed with SS in 2014. I've always seen so much focus on women, but men do get it too. The worst symptoms for me are severe fatigue and joint pain. Dry eyes and dry mouth were actually the last symptoms I got.
I was diagnosed almost 2 years ago. I have another autoimmune disease which is Graves. I'm taking hydroxychloroquine and it's apparently affecting my kidneys. I didn't see my rheumatologist because of the covid disaster. I was in much pain because of the stress related to pandemic and going back to work so I was taking naproxen. I suffer from dry eyes, mouth and vagina. I'm not as tired as I thought I would be despite my body being inflamed all the time since 2007 when I was diagnosed with grave's. People don't understand how horrible sjogren is. I was given antidepressants because of my fatigue , didn't take any though... I was given ketanol to manage pain while not.being diagnosed correctly, didn't take any either. My gp here in uk actually googled sjogren because she didn't know what I'm talking about. Because I'm relatively young, 34, even the rheumatologist is dismissing some of my syndromes. It's so hard in uk to get a good doctor and I waited to meet this one for two long years... Ridiculous
Hydroxychloroquin do not cause kidney damage. It prevents it. 200 mg daily do no cause eye damage but 400 mg can cause in 3-4% cases. Take also atorvastatin 40 daily to prevent cardiovascular damage by inflammatory diseases.
Hi Kata. How are you now? I have graves disease and just diagnosed with sjogrens syndrome. After started taking meds for graves (carbimazole and propanolol), my heart starts pounding hard. Do you have similar symptoms (heart pounding, heart palpitations, shortness of breath, lightheaded, dizziness, GI issues and so on). I am tired of living with constant heart pounding for 6 months (started since early november 2023). How do you manage your symptoms? Rheumatologist in my place seems like have no knowledge on sjogrens. I have many symptoms of dysautonomia after infected by covid. And i am very sensitive to heat and sun's exposure. I have temperature dysregulation and heat intolerance too. My country right now is having heat wave. It is very challenging to me . I don't know which autoimmune disease is causing all these messes.
I used to take propanolol but , thanks God, I don't have that much heart problems. I hate heat and hot temperature still, it turned out that I'm lactose intolerant and I'm trying to cut down gluten intake as it also influences the inflammation in the guts. I checked myself for celiac and I'm fine, my sister has it since she was born. I need to watch what I'm eating as I noticed weird gi problems after ingesting fructose. Sorry to hear about your problems... Now I have a flare up of sciatica and joint pain. Can't really sleep, work, walk, rest. I do physiotherapy every day and I'm super stretched from yoga but still so much pain every day...
@@taunyaharmony2938 Thanks so much for replying. I don't if I have SS or not. I was on a totally gluten & dairy free lifestyle, which I hear is good for people with certain autoimmune disorders, but now I'm back on the junk food and just overall feel terrible. Dry mouth & eyes here & there and terrible fatigue joint pain. I do hope that you're doing well and getting through this as best as you can. There are more medications that are coming out to help combat the symptoms of Lupus & RA. Hopefully more will be specifically targeted to help those with Sorgren's.
I don't remember seeing in the video the chronic, low grade temperature elevations not associated with infection that can occur in autoimmune diseases. Very informative video!
The more advanced Sjögren’s sufferers are often diet restricted. A specific food elimination diet trial worked for me. It’s trial and error to determine what your body can and cannot tolerate. High salt/cause swelling and warmer retention; Dairy, especially soft cheeses contain a lot of salt. So, strict limits, or no gluten, yeast, highly processed, sugar, non-organic, etc., Even organic protein sources can be fed grasses and grains fertilized with waste products from GMO and non-organic feed sources.. Most feed animals are fed grains including wheat, oats, soybeans and cottonseed hulls to increase their market weight. Finally, it’s extremely hard to drink enough water to stay hydrated.. Melons, some berries, cucumbers, etc., if you can tolerate raw products. The best anti-inflammatory tea EVER is the recipe provided by Dr. Andras Fazakas in this video. It’s excellent, but as advised, it is not a substitute for water. No zero sugar-substitute drinks, low to no caffeine…it’s a diuretic, ditto for alcohol including mouthwash. I can trace my Sjögren’s symptoms to early childhood. Flare-ups can be related to trauma, medication allergies, and co-infections, like vector-borne diseases, many of which are spread by migrating birds, international travel, pets that are often asymptomatic. Based on Dr. Andras Fazakas’s exquisite knowledge & presentation skills, I vote that no one has done this better! Best. 2024.
My chronic low grade temperature is related to Sjogren’s Syndrome or a co-infection. I can’t ever remember having a normal or high temperature.. That’s how depressed my immune system is. . Without a high enough temperature symptoms are ignored.
I was diagnosed with ss today, will run some blood And urine tests shortly. Will know more about it if it is primary or secondary by may 19th. In my country there is no treatment available, not at IMSS or any where in the country. My symptoms are mostly dry eye, dry mouth, joint pain And fatigue. Thanks for your clear explanation, i learned more about ss through your video.
fuck fuck fuck. i wish I hadnt watched this now. just diagnosed with secondary S.D hand hurt, legs hurt, cant swallow, cant go out in light. look like a flipping red eyed vampire and my necks got lump. shoot me now
+Donia Krümmel Thanks Donia :) You made my day! I'm planning on making 1 presentation / day in 2017, so hopefully that will make life easier for all students in Debrecen and the world. I wish you a very nice day!
Is there a way you could text me your contact info. I am suffering so bad pain in face 4 years suffering misdiagnosed. Many questions please. I'm fighting for my life
Great presentation! Would you consider doing one on Ehlers-Danlos Syndrome and/or Mast Cell Activation Syndrome? Therei is so little out there about EDS and co-existing conditions. :-)
Phenomenal presentations like Dr. Andras Fazakas’ require phenomenal expertise, resources of time, money, a dedicated support staff, and a phenomenal desire to serve humanity in a most unselfish way. Dr. Andrea’ s act of kindness and love in sharing his God given talents is, in my opinion, the equivalent of planting trees in whose shade he knows he will never sit. He evidently accepts that possibility. Bravo! Bravo! Bravo! It is unlikely that Dr. Andras Fazakas will ever meet even one of us in this world. Yet, he has shared his exceptional knowledge about Sjögren’s Disease, without seeking fame or fortune. His desire to raise awareness, relieve pain and suffering, and, perhaps, to prevent or slow further disease progression is obvious. What manner of man? Can we, his audience help many others, by sharing this information with the Sjögren’s Foundation, the CDC, our personal physicians, family, and friends, etc.? Thank you, Dr. Fazakas, for this platform, for the examples you’ve provided, especially the lack of tears, I.e., the woman who could not cry; dental issues, cavities, multi-system organ involvement, extreme dryness, vision problems, hair loss, chronic inflammation, light, heat, and cold sensitivities, etc., and many symptoms coming from audience comments. With more than 300 comments and replies, your audience has broadened the scope of this disease, spanning in some cases, decades. As new comments are received a current date would be helpful to put disease progression, improvements, or advances in treatment into better context. Again, thank you, Dr. Andras Fazakas. June 2024.❤
Hi Mr Fazakas, could you please post a video about Mixed Connective Tissue Desease? My wife has just been diagnosed, and the rheumatologist wasn't very educational about the description of it, specially when asked about the possibility of a cure or the prognosis . Congratulations on this series of videos, I personally found them very enlightening, even not being a medicine student. Thank you so much!
thanks for the video:) give me ideas to discuss with professor, and i wish all MD ppl may improve knowledge time by time as so many convenient sources here, thanks again :D
Thank you for this detailed video .I got diagnosed last week with this condition after many years of pain n invisibility as you probably know it's usually over 40 diagnosed but I am diagnosed at 19 and I was told but when I asked about it I didn't get much rest to mind or detail. I have secondary sjogrens and ra is there any treatment known for fatigue
Sweatheart, if you a positive answer to the question about treatment for fatigue, please post it in CAPITAL LETTERS somewhere. I suffer from Lupus, Sjogrens and Fibromialgia...all of which cause fatigue.
@@vendetta1922 try all paleo diet for 2-3 weeks. Cut all carbs and sugars. And walk at least a few miles every day. In 2-3 weeks you should notice a marked improvement.
Andras have you looked at other factors like Psoriasis? And the susceptibility of people that already have the skin condition prior to major trauma. Apart from the hair, mouth, back, joints and tendons, you are aware that teeth is major with this condition. Blood vessels exploding on the body and edema after the trauma. No pro-active help from GP. All my organs have been checked and are OK, I have to drink a lot of the time. Also now getting some pain in hands and arms. Tried to talk to hospital surgeon - about it and they just say its normal, when I know that its not.
If enough men and women suffering hair loss and other co-morbidities like GERD, ask our doctors to research Sjögren’s , then sufferers will begin to get the attention and treatment needed from the real medical professionals.
Extensive use of Wi-Fi negatively impacts my blood pressure, especially widen using an unfiltered iPad ion my lap. I-PADS were designed for table-top use.
thank you.. it really help me. i already go many private clinics and hospital but it make me dissapointed and more depress.they take blood many times for lab test.because they believe i have diabetis.because blood check without fasting my blood glucose is 12 but when fasting and blood take for lab, i negative diabetis mellitus.my reading only 5.4....i really suspect myself have sjogren syndrome but how to convince a doctor..
Thank you I’ve been searching for an explanation of symptoms I’ve been getting for many months this is the only video has been helpful! My ophthalmologist caught this I’ve been having issues with my eyesight to extremes, even wake me at night dryness of mouth, eyes swallowing food,, now appt with rheumatologist end of Dec 2017, I have been suffering with osteoarthritis and generative bone disc disease for over 10 years, also Osteoporosis diagnosed 12 years ago I’m only turning 60 February 2018 ;/ life is not good :(
A food diary linked to blood pressure measurements will help identify b/p spikes and foods to avoid. Thank you Dr. Andras Fazaras for the antiinflammatory tea recipe. It works for me. Correct measurement of ingredients is important, and I don’t drink it cold. June 2024.
This is the best vlog i have come across explaining things simple and proper for the average person to understand. proper explanations with no hidden promotional sales patter. just trying to sell promote expensive medications....Thankyou. THANKYOU THANKYOU. ps i am pretty sure this is what i have developedover the last 10-15 yrs los loint pain tiredness dry eyes sweats when doing very little ect ect... but this last three to four weeks my drye eyes has ot 10 fold worse and now vision is blurring and my mouth is dry has sandpaper and i have a raging thurst that doesnt seam to make a difference even though i am drinking like a fish constantly. spend most of day going for a wee.....cant get appointment with doctor due to covid... so need help quick. should i go to A&E ????? ............I have all the symtoms but not been diagnosed. but have just read that if i have pulmanory and probs with weeing a lot it might kill me. well i am loosing control of my weeing nd i have elarged heart......could i go to A&E Im in uk
@B C It’s water with hydrogen added. It’s supposed to be helpful with inflammation, but there have only been studies done in lab animals. I haven’t tried it and probably won’t.
Dear Doctor, Greetings from India! Thank you so much for the clarity you made about SS. Kindly suggest us some medicine that can do magic in patients like me. Or is there any other ways to reverse this autoimmune condition in Homeopathy or Ayurvedha? I am totally depressed with SS & RA with SLE. I have visited so many doctors but of no big use. Kindly help. I am a 49 yr old mom of 2 teens.
Hi Newly diagnosed with Sjogrens via Hematologist more diagnosis coming. On a gradiation scale of the desease; from 1 to 10 based on my symptoms I feel 5 to 7 on any given day. My ANA was a moderate 3.3 I have every "Itis" in the book. Neurologic symptoms severe night sweats; multiple Spinal hemangiomas & scoliosis, colitis, cystitis, edema, chest pain & bone pain. I suspect non hodgkins. Very very little is known about this disease in this country. I have no relatives here all Northern European. I have found most medical issues thru my own research. Can you help with contacts & info, it would be greatly appreciated. Thank you.
Sjogren's syndrome (SS) is not typically associated with Barrett's esophagus. BUT dysphagia, dyspepsia, nausea, epigastric pain, and atrophic chronic gastritis are common in SS. Those with gastritis may also be infected with a bacteria called Helicobacter pylori. This does not mean that Sjogren's syndrome patients can not develop Barrett's esophagus! Barrett's esophagus may have different causes. For example if someone is a smoker, then these people have almost as high risk of getting Barrett"s esophagus as those with GastroIntestinal Reflux Disease (GERD), which is the typical cause of Barrett's esophagus.
Are pets a great concern among Sjögren’s Syndrome sufferers, because of the great disease transmissibility between pet, owners and their families? Are people who grew up with pets more likely to contract and transmit diseases? Pets are mostly asymptomatic carriers and may look completely healthy. Just learned that pets don’t just shed fur, like their owners, they also shed skin and whatever’s there.
+Amro Biadsee I'm a student at the University of Debrecen in Hungary. I'm done with my studies this year and then I will start to upload 1 video every day. So by next year, you can expect videos covering many diseases. What are you doing?
+Andras Fazakas i am a student at the university of debrecen also , third year student . I had some difficulties understanding the autoimmune diseases in upcoming pathology final exam until i watched your videos . I hope u keep the great work by helping a lot of students . Appreciate it sir
This just makes me want to give up. Lupus for 30 years, fibromyalgia for 10 and not Sjorgen's.And, a staph infection in my parotid gland for the past two years. I feel like my body wants to destroy itself. I am so very scared. Has anyone been here?
+mountaingirl1995 I also have Sjogren's along with Lupus, RA, ankylosing spondylitis and mixed connective disorder as well as treatment resistant depression! All of this has taken my life away from me forcing me to try to find some n way to live and get through everyday. God Bless You!!!
God bless you as well! I think I can say we understand what each other's lives are like. I am so overwhelmed right now...just trying to get to the next dr. appt. But, I have found that my sense of humor has been the most helpful thing I have at the moment:) In my better moments, I try to use gratitude to fill my heart, rather than all of the darker feelings. It is still a hard road to walk. And the holidays are hard, too. I will add you to my prayer list and wish you a joyful holiday season!!
+mountaingirl1995 hang in there ladies, you guys inspire everyone else. My mom has ss and it kills me to see her in pain and tired. I just want to let you know that you guys are very strong and an inspiration for others
Thank you SO much! Sometimes just a little understanding is all we need:) We also need a safe place to communicate. Has anyone turned to FB for support? I am not on FB but would join if y'all think we have the makings of a community. Just reply to me if interested. Blessings and peace 🤗
Hi, my mother in law has this disease, she's 67 years old, and lastly she's onto strong pain in her leg and there are red points that are hurting a lot.
It is great to see that my occasional tricks used when I don’t have the perfect tool aren’t “wrong” as long as the job isn’t compromised. Sometimes they are even my preference. My husband on the other hand, is completely stymied knowing the proper tool exists, therefore no going forward without it. Lots of times if I don’t have the right size drill bit, I use a self driving screw that I then back out and have my pre drilled hole. Of course the screw needs to be the right thickness.💁♀️
+harith husam In patients with major organ involvement, such as lymphocytic interstitial lung disease or in vasculitis, glucocorticoids and cyclophosphamide can be used
What about the dry flakiness skin. I saturate my legs and feet with olive oil, 3 x a week. You cannot be in the sun either, so many things not mentioned.
Hello Shealynn, the most important thing is to halt the progression of the underlying disease that is causing hair loss. One of the medications that can halt Sjögren's syndrome is Hydroxychloroquine.
I wish more doctors UNDERSTOOD sjogrens..and didn’t think it was only dry eyes, lips and nose..it goes so much farther.
Lot of doctors became doctors because their parents wanted that career for them.
Amen, They don't seem to have much of a clue.
Doctors don't know about anything out of the ordinary, they don't keep up to date either
Specialist who deals with this will understand, but my PCP didn’t. Took me over one year and so many different specialist with testing to finally have a Doctor who had the answers. very frustrating.
Diagnosed with Sjögrens at 22 ! I experienced heavy symptoms before turning 21 but no doctor was able to figure out what autoimmune disorder it was. Still even after knowing there wasn’t much information that was covered. Definitely needs more attention.
Hi, did your rheumatologist prescribe you medicine? And do they suppress your immune system?
@@suzzyy8669 I unfortunately never met with a rheumatologist. No one was able to diagnose me for a while and when a doctor pieced together the symptoms to run the proper blood tests. She told me to eat healthy and exercise. Still to this day I’m not sure if it is Primary or Secondary Sjogrens. My state healthcare plan has made it difficult to receive the help I need.
@@Andrea-ck4fp I’m surprised your PCP didn’t refer you to a rheumatologist? Do you see a difference when you eat healthier? Thanks for responding ❤️
@@Andrea-ck4fpHow are you able to live with this disease?
Please do create more videos! The clear and structured explanation with the great accompanying visuals make it an extremely informative and - most importantly - memorable presentation. I have subscribed. :D
This man is beyond brilliant. ….”Extraordinarily Brilliant”. Thank you, Dr. Andras Fazakas.
I think the good Dr. Fazakas is only trying to share his knowledge ...there is no shame in that. I was diagnosed with Sjogren's 9 years ago. I am severely ill with Sjogren's, it caused me to have a cornea transplant last November. The eye is still in crisis. Sjogren's is nothing to ignore. I also have RA, MCTD, and Raynauds, all which were diagnosed after the diagnosis of Sjogren's Syndrome. Be kind to each other in the quest of understanding this underestimated disease. Life can be short, and a healthy life can be far shorter. Thank you Dr. Fazakas for putting the word out about Sjogren's Syndrome. ....Caroline
Thanks Caroline, these words felt so good to me! I wish I could do more for you. If you have any questions, then please feel free to ask me anytime. I wish you a wonderful day!
@@drandrasfazakas Dear Dr. Fazakas, anything new as for treatments deprived of side-effects since this video? Annie from Paris (France)
God bless you ❤
Aaah Doc, your videos just came to my rescue... Thank you sir! Looking forward on checking more of your videos. Much appreciation, all the way from South Africa!
Thank you for mentioning that teeth can be an issue. I wish that was mentioned to me years ago. I’ve been to ma y dentists over the years and none of them had any clue. Now, I have a dentist who is well-versed in Sjögren’s syndrome. It doesn’t hurt that he’s my retired rheumatologist’s son!
Lucky you!
I mean if you have to be sick it's nice to have someone that's that' knows what is going on. ❤
Brilliant explanation. Clear, precise and opened on other relevant diagnostic possibilities. I'll be definitely looking forward to further videos. Cheers
Dr Fazakas, are you Greek? You speak excellent English. This is the most complete, honest, frank and factual explanation of Sjögren’s. I have been diagnosed. It’s debilitating for my eyes especially. I like to 🎨 paint and watch birds and sew. I must wear grease in my eyes to sleep and cannot read at night as I love to do. Without the grease, I wake up with eyelids sealed shut and must wet them with water to open them. My tongue also sticks to the roof of my mouth. I can only pray not to get lymphoma. My foot soles have numbness neuropathy, but no pain. I causes imbalance. I am a dance teacher and performer. What a sentence! A life sentence.
So sorry to hear you suffer with all this. I suffer with SS too, the same symptoms as yourself.
Anna Lisa are you Greek? I was recently diagnosed as well! I have numb foot soles with pins and needles sometimes, migraines and imbalance apart from dry eyes! Have you been to Mr. Tzioufas in Laiko hospital?
SS is no cake walk. Thank you for the video information that can be shared with family and friends to help them understand. I was diagnosed with Lupus after 9 years of random health crisis and by then I also had Sjogrens Syndrome among a lot of other DX.. Early on I was told it was just dry eyes and mouth but that is incorrect. There is joint pain, fatigue, fogs and heartblock in your newborn. I had to have both of my shoulders repaired because the synovial fluid dried up and they scarred in place. The most frustrating part of my experience with auto immune disease is that doctors, even specialists, do not seem to know much about the disease (SS or Lupus) or its effects on your body and so your told to suck it up. (USA)
+Jennifer Leonard Hello Jennifer, I respect that you took your time and shared your story with us! Yes you are correct that many doctors are unaware of the symptoms and treatment of autoimmune diseases. Immunology is such a complex science that many doctors are intimidated by it, and rather choose another field. Even immunology specialists have hard time figuring out which autoimmune disease we are dealing with. This is why it's so important to share ideas with other people with the help of internet. A doctor is not a GOD! A doctor is a human like anybody else. As we all know, memory have its limits. When a doctor deals with thousands of diseases it becomes hard to differentiate between them.
I wish you all the best in life!
That is very true that doctors are human like all of us and the field is intimidating. We need to work as a team with our doctors but its hard because often if you know anything about your disease they feel intimidated more when we just want to work toward solutions and figure out treatment options. The online support groups are very good and many many people are sharing ideas and experiences there which is supportive. There is so much overlap between diseases and I am proof of that both my symptoms and multiple ANA patterns. And even they can overlap. I hope in the future research is fruitful to help people with these and other chronic diseases. I just read a brilliant article about :The Mycotoxin Connection: Uric Acid, Gout, RA & Other Degenerative Disease. Makes a LOT of sense. Perhaps a clue we havent considered.
Jennifer Leonard yes, I am so tired of having to educate people who've been to medical school. If I know about it, shouldn't they? My main complaints have consistently been pain in joints and extreme fatigue, yet every SINGLE time I go in, they try to talk about sucking on lemons and using fake spit. Seriously, I want to choke someone. I was denied disability, even with a lawyer and told to try again when it "gets worse." Worse? I already lose every job I get bc once I start working, I get so overtired that it throws me into a lupus flare. How do you work when you can't keep yourself awake or barely lift your arms?
Jennifer Leonard can I ask you how old were you when you had it? Because you look young... I have it and I am scaaaared..
Oscar François de Jarjayes I have it . It’s honestly nothing to be afraid of . It’s different for everyone and there are actually some knowledgeable doctors who know what to do out there . It isn’t the case for everyone . Death isn’t guaranteed and statistically isn’t responsible for deaths . Most people live full lives so don’t be afraid and get multiple opinions
Thank you so much for the hope that you give to the patients
Omg why didn't I know about your videos before? They are making my concepts clear like crystal.
This is amazing! You are amazing! You are going to be the reason I will succeed my exam tomorrow. I very much appreciate that you have the script published - saving me a lot of time. Truly grateful!
Great video... But that model is terrifying lol
Geneva Marie
Yeah the model looks like the girl from the exorcist...😂😄
Geneva Marie LOL!! I was thinking the same thing especially the tongue sticking out. Lol
If someone is diagnosed having Sjogren syndrome and alopecia, is that primary or secondary?
I have it, and it feels like the picture looks! It’s even worse! It ruined my teaching career and my life!
Daaaaaaaaaaaaaa🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣🤣
First time I've seen info on Myositis along with Sjogren's. Very informative.
Thank you for this video....I found out I had Sjogren's 3 months ago and this is helpful. I suffered from the symptoms for years and couldn't get answers until the side of my face blew up twice it's size.I went into a free fall of depression and so did my family. About 30 years it was discovered I had Sarcordoiss which went into remission. Now this blow has put me in the dumps! I fight everyday to keep myself happy! I changed my eating habits by eating anti-flammatory fruits and veggies that rebuilds the cells so this helped, no more pain! Plus, I give myself B-12 shots every month which last a few weeks.
Add some Turmeric Tea to your diet! Powdered Turmeric with powdered Ginger, Finely ground Black pepper powder, Clove powder, Cinnamon powders. All organic only! Use this Recipe.
Heat up 6 cups of distilled water to simmer. Add the powders below pre mixed.
1/4 cup Turmeric powder
2 tsp. Cinnamon powder
2 tbsp. Ginger powder
1/4 Tsp. Clove powder
1/4 tsp. Black pepper powder.
Let come to a simmer for only 10 minutes while continually stirring. Let it cool and strain through cheesecloth or I use a very fine colender. I like my tea with added Raw organic clover Honey to taste for my preference. If you like add your favorite sweetener or raw sugar. I like mine with organic or raw milk, or maybe you like it plain. Try it different ways. It seriously helps my fatigue and my anxiety plus is a great anti-inflammatory. It works for me. I adjusted this recipe for myself. You can too. Make sure where your spices come from so there's no contamination. Enjoy.
@@drlmala2 can u share to my email pls
drlmala2 Thank you so much for your recipe for antiflamatory drink. For how long do you use such a portion? 2-3 days?
Im going through that i need help please help
@@drlmala2 Thank you so much. Share this Organic, anti-inflammatory recipe with friends and family. God bless.
Best video I've watched on Sjogren syndrome
Absolutely the best.! Thank you Dr. Fazakas.
I use to hate looking at that lady But now I'm her and people don't understand.
Journeytopeace Peace - just in your eyes is bad enough. Do you have Sjögren’s? My mouth is constantly dry. And my throat. And my feet have neuropathy. And my fingertips are cracked. No touchscreen for me!!!
I am too!!!
@@annalisa14 My corneas have been so ulcerated I was seeing a cornea specialist for years. I couldn’t drive for a while, and wore sclera lenses (which didn’t work because protein kept lining the inside of the lenses), got plugs in my tear ducts, had blood tears spun, and walked around with one eye always closed. It got better after I had my implants taken out and moved out if a condo that had mold I didn’t know about for years.
It’s worse than you can imagine!
Try 100% all raw vegetable diet for several months. And no sugar. And start exercising.
My respects - for a brilliant clear description that is useful at many levels!
Thank you
Great video....really helping ....waiting for Ur other videos regarding autoimmune and immunodeficiency states ....Crystal clear concepts
I was diagnosed at 19. I'm 25 now and been on hydroxychloroquine. My teeth are already ruined, my eyes are constantly blurry, the fatigue is terrible, I have lots of pressure in my chest and fainting spells 😔
🙏🏾🔥
Thank you. I lupus sjogrens hereditary spastic paraplegia and much much more . Sjogrens it's so complex . I have had cancer in the submandibular and parotid gland lost all of my teeth and part of my lower jaw . Anyone livening with this has myreslect and empathy again thank you xo
I sympathize with you! I acquired this when I moved to my moldy condo that looked pristine! I also had breast implants which caused toxins to harbor inside my body. I’ve had ALL these things go wrong with my body! I’m surprised didn’t die.
@@Tinyteacher1111 I have the symptoms and am proactively scheduling to have my implants removed. Did the implant removal help your symptoms? Did your lab work improve after the explant? Did they do an en bloc and remove the entire capsule or just the implant? Did you have positive lyme or ebstein bar with the mold?
What were your cancerous tumors like? I have a large hard bump in front of my ear & swelling under my chin on the opposite side of my face. I have appointment with an ENT in a week but I’m so scared in the meantime😔
@@amandasansone I currently have the same symptoms as you, except I also have a rash on my arms & torso. Would you care to let me know what you found out please?
@@Tinyteacher1111You think living in a home with mold and having breast implants caused Sjrogens? I ask because I have many other things that could’ve caused this. But living in a moldy home previously and implants are what I have also.
Doctor, has there been any recent research into younger males getting Sjogren's Syndrome? I'm a male and I was only in my early 30's when I was diagnosed with SS in 2014. I've always seen so much focus on women, but men do get it too. The worst symptoms for me are severe fatigue and joint pain. Dry eyes and dry mouth were actually the last symptoms I got.
I was diagnosed almost 2 years ago. I have another autoimmune disease which is Graves. I'm taking hydroxychloroquine and it's apparently affecting my kidneys. I didn't see my rheumatologist because of the covid disaster. I was in much pain because of the stress related to pandemic and going back to work so I was taking naproxen. I suffer from dry eyes, mouth and vagina. I'm not as tired as I thought I would be despite my body being inflamed all the time since 2007 when I was diagnosed with grave's. People don't understand how horrible sjogren is. I was given antidepressants because of my fatigue , didn't take any though... I was given ketanol to manage pain while not.being diagnosed correctly, didn't take any either. My gp here in uk actually googled sjogren because she didn't know what I'm talking about. Because I'm relatively young, 34, even the rheumatologist is dismissing some of my syndromes. It's so hard in uk to get a good doctor and I waited to meet this one for two long years... Ridiculous
Yes a lot of doctors are useless in UK ! They just don't seem to have time, nor much understanding, they want you out of the door asap.
Check for gluten antibodies
Hydroxychloroquin do not cause kidney damage. It prevents it. 200 mg daily do no cause eye damage but 400 mg can cause in 3-4% cases. Take also atorvastatin 40 daily to prevent cardiovascular damage by inflammatory diseases.
Hi Kata. How are you now? I have graves disease and just diagnosed with sjogrens syndrome. After started taking meds for graves (carbimazole and propanolol), my heart starts pounding hard. Do you have similar symptoms (heart pounding, heart palpitations, shortness of breath, lightheaded, dizziness, GI issues and so on). I am tired of living with constant heart pounding for 6 months (started since early november 2023). How do you manage your symptoms? Rheumatologist in my place seems like have no knowledge on sjogrens. I have many symptoms of dysautonomia after infected by covid. And i am very sensitive to heat and sun's exposure. I have temperature dysregulation and heat intolerance too. My country right now is having heat wave. It is very challenging to me . I don't know which autoimmune disease is causing all these messes.
I used to take propanolol but , thanks God, I don't have that much heart problems. I hate heat and hot temperature still, it turned out that I'm lactose intolerant and I'm trying to cut down gluten intake as it also influences the inflammation in the guts. I checked myself for celiac and I'm fine, my sister has it since she was born. I need to watch what I'm eating as I noticed weird gi problems after ingesting fructose. Sorry to hear about your problems... Now I have a flare up of sciatica and joint pain. Can't really sleep, work, walk, rest. I do physiotherapy every day and I'm super stretched from yoga but still so much pain every day...
I just got diagnosed yesterday and this scares the hell out of me!!!
I'm so sorry to hear that. Were you diagnosed by an MD or dentist.
A lot of people live long lives though, I was diagnosed at 19 and on meds to slow the progression
@@breeannwalker8309 have the medications changed your physical appearance at all?
@@snowblo1 An ENT.
@@taunyaharmony2938 Thanks so much for replying. I don't if I have SS or not. I was on a totally gluten & dairy free lifestyle, which I hear is good for people with certain autoimmune disorders, but now I'm back on the junk food and just overall feel terrible. Dry mouth & eyes here & there and terrible fatigue joint pain.
I do hope that you're doing well and getting through this as best as you can. There are more medications that are coming out to help combat the symptoms of Lupus & RA. Hopefully more will be specifically targeted to help those with Sorgren's.
wonderful video, thank you so much, I'm waiting for more interesting videos.
Excellent information! Thank you 😇
I don't remember seeing in the video the chronic, low grade temperature elevations not associated with infection that can occur in autoimmune diseases. Very informative video!
I have this now!
All driven by chronic hyperinsulinemia. No doctor will tell you this. Go paleo diet and ditch the carbs and sugar.
@@tenminutetokyo2643 LOL, giving dietary advice to someone whose health history you don't know.
The more advanced Sjögren’s sufferers are often diet restricted. A specific food elimination diet trial worked for me. It’s trial and error to determine what your body can and cannot tolerate. High salt/cause swelling and warmer retention; Dairy, especially soft cheeses contain a lot of salt. So, strict limits, or no gluten, yeast, highly processed, sugar, non-organic, etc., Even organic protein sources can be fed grasses and grains fertilized with waste products from GMO and non-organic feed sources.. Most feed animals are fed grains including wheat, oats, soybeans and cottonseed hulls to increase their market weight. Finally, it’s extremely hard to drink enough water to stay hydrated.. Melons, some berries, cucumbers, etc., if you can tolerate raw products. The best anti-inflammatory tea EVER is the recipe provided by Dr. Andras Fazakas in this video. It’s excellent, but as advised, it is not a substitute for water. No zero sugar-substitute drinks, low to no caffeine…it’s a diuretic, ditto for alcohol including mouthwash. I can trace my Sjögren’s symptoms to early childhood. Flare-ups can be related to trauma, medication allergies, and co-infections, like vector-borne diseases, many of which are spread by migrating birds, international travel, pets that are often asymptomatic. Based on Dr. Andras Fazakas’s exquisite knowledge & presentation skills, I vote that no one has done this better! Best. 2024.
My chronic low grade temperature is related to Sjogren’s Syndrome or a co-infection. I can’t ever remember having a normal or high temperature.. That’s how depressed my immune system is. . Without a high enough temperature symptoms are ignored.
Excellent video
Thanks for all this information. At last , I have been diagnosed SS. After 8 years.
Don't know where to start from. Your video is very helpful
Thanks to Dr. Fazaras we have a.comprehensive presentation and a diagram.
Why did he put the skull of death on this?
You are the best lecturer ever
I was diagnosed with ss today, will run some blood And urine tests shortly. Will know more about it if it is primary or secondary by may 19th. In my country there is no treatment available, not at IMSS or any where in the country. My symptoms are mostly dry eye, dry mouth, joint pain And fatigue. Thanks for your clear explanation, i learned more about ss through your video.
fuck fuck fuck. i wish I hadnt watched this now. just diagnosed with secondary S.D hand hurt, legs hurt, cant swallow, cant go out in light. look like a flipping red eyed vampire and my necks got lump. shoot me now
Very helpful presentation on this disease, thank you!
Amazing Video :D !!! you are making us, Debrecen Medical students, very proud :D.
Best regards from a 5th year medical student from debrecen :D
+Donia Krümmel Thanks Donia :) You made my day!
I'm planning on making 1 presentation / day in 2017, so hopefully that will make life easier for all students in Debrecen and the world.
I wish you a very nice day!
Is there a way you could text me your contact info. I am suffering so bad pain in face 4 years suffering misdiagnosed. Many questions please. I'm fighting for my life
@@markklonis5175 Updates please.
Great presentation! Would you consider doing one on Ehlers-Danlos Syndrome and/or Mast Cell Activation Syndrome? Therei is so little out there about EDS and co-existing conditions. :-)
this is totally amazing I wonder why you stopped or not doing all the subjects you can make an amazing Chanel
Thanks alot for your feedback! I'm still doing presentations, and I will continue doing them in the future!
thats amazing hope you continue this and present more than rheumatology
Phenomenal presentations like Dr. Andras Fazakas’ require phenomenal expertise, resources of time, money, a dedicated support staff, and a phenomenal desire to serve humanity in a most unselfish way. Dr. Andrea’ s act of kindness and love in sharing his God given talents is, in my opinion, the equivalent of planting trees in whose shade he knows he will never sit. He evidently accepts that possibility. Bravo! Bravo! Bravo!
It is unlikely that Dr. Andras Fazakas will ever meet even one of us in this world. Yet, he has shared his exceptional
knowledge about Sjögren’s Disease, without seeking fame or fortune. His desire to raise awareness, relieve pain and suffering, and, perhaps, to prevent or slow further disease progression is obvious. What manner of man?
Can we, his audience help many others, by sharing this information with the Sjögren’s Foundation, the CDC, our personal physicians, family, and friends, etc.?
Thank you, Dr. Fazakas, for this platform, for the examples you’ve provided, especially the lack of tears, I.e., the woman who could not cry; dental issues, cavities, multi-system organ involvement, extreme dryness, vision problems, hair loss, chronic inflammation, light, heat, and cold sensitivities, etc., and many symptoms coming from audience comments.
With more than 300 comments and replies, your audience has broadened the scope of this disease, spanning in some cases, decades. As new comments are received a current date would be helpful to put disease progression, improvements, or advances in treatment into better context. Again, thank you, Dr. Andras Fazakas.
June 2024.❤
Hi Mr Fazakas, could you please post a video about Mixed Connective Tissue Desease? My wife has just been diagnosed, and the rheumatologist wasn't very educational about the description of it, specially when asked about the possibility of a cure or the prognosis . Congratulations on this series of videos, I personally found them very enlightening, even not being a medicine student. Thank you so much!
Tks Dr need more info dr in fl not good
Great simplifying presentation. Many thanks
“The definition of genius is taking the complex and making it simple”., Albert Einstein. This quote describes Dr. Andra’s’ abilities.
Well now ima fully traumatized..
thanks for the video:) give me ideas to discuss with professor, and i wish all MD ppl may improve knowledge time by time as so many convenient sources here, thanks again :D
Bravissimo!!!!
excellent ...thanks a lot for this wonderful video
Wow, what a rich video. Thank you
wow, realy good presentation
Hello Andrea!could you please tell me which are the blood tests that detects lymphoma?
Thank you for this detailed video .I got diagnosed last week with this condition after many years of pain n invisibility as you probably know it's usually over 40 diagnosed but I am diagnosed at 19 and I was told but when I asked about it I didn't get much rest to mind or detail. I have secondary sjogrens and ra is there any treatment known for fatigue
Sweatheart, if you a positive answer to the question about treatment for fatigue, please post it in CAPITAL LETTERS somewhere. I suffer from Lupus, Sjogrens and Fibromialgia...all of which cause fatigue.
Paleo diet. Cut all carbs and sugar and watch what happens.
@@vendetta1922 try all paleo diet for 2-3 weeks. Cut all carbs and sugars. And walk at least a few miles every day. In 2-3 weeks you should notice a marked improvement.
Hi did your rheumatologist prescribe you medicine? And do they suppress your immune system?
very informative video. Thanks
Would you ever consider doing a video on Multiple Sclerosis? I think it would be right up your ally.
Andras have you looked at other factors like Psoriasis? And the susceptibility of people that already have the skin condition prior to major trauma. Apart from the hair, mouth, back, joints and tendons, you are aware that teeth is major with this condition. Blood vessels exploding on the body and edema after the trauma. No pro-active help from GP. All my organs have been checked and are OK, I have to drink a lot of the time. Also now getting some pain in hands and arms. Tried to talk to hospital surgeon - about it and they just say its normal, when I know that its not.
ELIAKIM Joseph Sophia
Wow! I have Sjogren's Syndrome been trying to figure out why I am suffered with top hair loss along with gerds. Now I see why.
If enough men and women suffering hair loss and other co-morbidities like GERD, ask our doctors to research Sjögren’s , then sufferers will begin to get the attention and treatment needed from the real medical professionals.
omg this is the scariest model i’ve ever seen
Obviously you’re no medical student.
It’s me!
Great video.... Really helpful!!!
You are a legend!
Bonjour, pouvez-vous "sous-titré" en FRANÇAIS..je ne parle pas du tout anglais...merci d'avance..
Extensive use of Wi-Fi negatively impacts my blood pressure, especially widen using an unfiltered iPad ion my lap. I-PADS were designed for table-top use.
Really helpful for information, thanks!
thank you.. it really help me. i already go many private clinics and hospital but it make me dissapointed and more depress.they take blood many times for lab test.because they believe i have diabetis.because blood check without fasting my blood glucose is 12 but when fasting and blood take for lab, i negative diabetis mellitus.my reading only 5.4....i really suspect myself have sjogren syndrome but how to convince a doctor..
Thank you I’ve been searching for an explanation of symptoms I’ve been getting for many months this is the only video has been helpful! My ophthalmologist caught this I’ve been having issues with my eyesight to extremes, even wake me at night dryness of mouth, eyes swallowing food,, now appt with rheumatologist end of Dec 2017, I have been suffering with osteoarthritis and generative bone disc disease for over 10 years, also Osteoporosis diagnosed 12 years ago I’m only turning 60 February 2018 ;/ life is not good :(
A food diary linked to blood pressure measurements will help identify b/p spikes and foods to avoid. Thank you Dr. Andras Fazaras for the antiinflammatory tea recipe. It works for me. Correct measurement of ingredients is important, and I don’t drink it cold. June 2024.
Tea does not replace the need for water and other sources of hydration. Does Dr. Zakaras. recommend best times., With or without food?
You didn’t mention FATIGUE!!!
This is the best vlog i have come across explaining things simple and proper for the average person to understand. proper explanations with no hidden promotional sales patter. just trying to sell promote expensive medications....Thankyou. THANKYOU THANKYOU. ps i am pretty sure this is what i have developedover the last 10-15 yrs los loint pain tiredness dry eyes sweats when doing very little ect ect... but this last three to four weeks my drye eyes has ot 10 fold worse and now vision is blurring and my mouth is dry has sandpaper and i have a raging thurst that doesnt seam to make a difference even though i am drinking like a fish constantly. spend most of day going for a wee.....cant get appointment with doctor due to covid... so need help quick. should i go to A&E ????? ............I have all the symtoms but not been diagnosed. but have just read that if i have pulmanory and probs with weeing a lot it might kill me. well i am loosing control of my weeing nd i have elarged heart......could i go to A&E Im in uk
You are amazing , thank you very much
Sjogren’s and Fibromyalgia are destroying me! 😢
Did you try dr sebi diet?
Did you try Hydro water?
@B C It’s water with hydrogen added. It’s supposed to be helpful with inflammation, but there have only been studies done in lab animals. I haven’t tried it and probably won’t.
Try the carnivore diet for one month.
Dr Fazakas, Is there a root-cause for the many conditions linked to Sjögren’s disease?
EXCELLENT E PLA ition!!!!Thank YOU!!!!
Dear Doctor,
Greetings from India!
Thank you so much for the clarity you made about SS.
Kindly suggest us some medicine that can do magic in patients like me. Or is there any other ways to reverse this autoimmune condition in Homeopathy or Ayurvedha?
I am totally depressed with SS & RA with SLE. I have visited so many doctors but of no big use. Kindly help.
I am a 49 yr old mom of 2 teens.
v well summarised; thank you.
Thank YOU!
Hi Newly diagnosed with Sjogrens via Hematologist more diagnosis coming. On a gradiation scale of the desease; from 1 to 10 based on my symptoms I feel 5 to 7 on any given day. My ANA was a moderate 3.3 I have every "Itis" in the book. Neurologic symptoms severe night sweats; multiple Spinal hemangiomas & scoliosis, colitis, cystitis, edema, chest pain & bone pain. I suspect non hodgkins. Very very little is known about this disease in this country. I have no relatives here all Northern European. I have found most medical issues thru my own research. Can you help with contacts & info, it would be greatly appreciated. Thank you.
Dear Sir, has sjogrens any links with development of barrets aphisugus? or is this non related?
Sjogren's syndrome (SS) is not typically associated with Barrett's esophagus. BUT dysphagia, dyspepsia, nausea, epigastric pain, and atrophic chronic gastritis are common in SS. Those with gastritis may also be infected with a bacteria called Helicobacter pylori.
This does not mean that Sjogren's syndrome patients can not develop Barrett's esophagus! Barrett's esophagus may have different causes. For example if someone is a smoker, then these people have almost as high risk of getting Barrett"s esophagus as those with GastroIntestinal Reflux Disease (GERD), which is the typical cause of Barrett's esophagus.
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Are pets a great concern among Sjögren’s Syndrome sufferers, because of the great disease transmissibility between pet, owners and their families? Are people who grew up with pets more likely to contract and transmit diseases? Pets are mostly asymptomatic carriers and may look completely healthy.
Just learned that pets don’t just shed fur, like their owners, they also shed skin and whatever’s there.
Really helpful video..Cheers from india
Any links between psoriatic disease and SS?
Yes, l have both of those plus interstitial cystitis. My mother had polymyositis and my sister has Lupus.
How many other diseases, co-morbidities, are linked to Sjögren’s. Disease?
40 times more likely to get Lymphoma? Another source said 4.9% more likely. That's a pretty big difference. Which is it?
40
Thank you for this amazing video sir .
Are you teaching in hungary sir ?
+Amro Biadsee I'm a student at the University of Debrecen in Hungary. I'm done with my studies this year and then I will start to upload 1 video every day. So by next year, you can expect videos covering many diseases.
What are you doing?
+Andras Fazakas i am a student at the university of debrecen also , third year student .
I had some difficulties understanding the autoimmune diseases in upcoming pathology final exam until i watched your videos .
I hope u keep the great work by helping a lot of students .
Appreciate it sir
+Amro Biadsee Wow this world is small, then see you around sir :)
This just makes me want to give up. Lupus for 30 years, fibromyalgia for 10 and not Sjorgen's.And, a staph infection in my parotid gland for the past two years. I feel like my body wants to destroy itself. I am so very scared. Has anyone been here?
+mountaingirl1995 I also have Sjogren's along with Lupus, RA, ankylosing spondylitis and mixed connective disorder as well as treatment resistant depression! All of this has taken my life away from me forcing me to try to find some n way to live and get through everyday. God Bless You!!!
God bless you as well! I think I can say we understand what each other's lives are like. I am so overwhelmed right now...just trying to get to the next dr. appt. But, I have found that my sense of humor has been the most helpful thing I have at the moment:) In my better moments, I try to use gratitude to fill my heart, rather than all of the darker feelings. It is still a hard road to walk. And the holidays are hard, too. I will add you to my prayer list and wish you a joyful holiday season!!
+mountaingirl1995 hang in there ladies, you guys inspire everyone else. My mom has ss and it kills me to see her in pain and tired. I just want to let you know that you guys are very strong and an inspiration for others
Thank you SO much! Sometimes just a little understanding is all we need:) We also need a safe place to communicate. Has anyone turned to FB for support? I am not on FB but would join if y'all think we have the makings of a community. Just reply to me if interested. Blessings and peace 🤗
i feel just as you do
Thank u sir for crysatl clear presenatation
Muchas gracias¡ fue una explicación genial.
Can you elaborate on isolated Ssb
Hi, my mother in law has this disease, she's 67 years old, and lastly she's onto strong pain in her leg and there are red points that are hurting a lot.
sir thank u..its a brief nd perfect information about ss..very helpful...
Thank you for the video, from Spain.
Sir plz tel me... How to solve this problem becoz my mother suffering SS-A ANTIBODIES
RO-52
SS-B ANTIBODIES these tests are postive
so scared I have this cause my salivary gland has been getting big for months
It is great to see that my occasional tricks used when I don’t have the perfect tool aren’t “wrong” as long as the job isn’t compromised. Sometimes they are even my preference. My husband on the other hand, is completely stymied knowing the proper tool exists, therefore no going forward without it. Lots of times if I don’t have the right size drill bit, I use a self driving screw that I then back out and have my pre drilled hole. Of course the screw needs to be the right thickness.💁♀️
What about immunosuppressive drugs, are they helpful in such situation
+harith husam In patients with major organ involvement, such as lymphocytic interstitial lung disease or in vasculitis, glucocorticoids and cyclophosphamide can be used
+harith husam I also have Lupus, so the only one that has helped me is Cellcept, which is mainly used for Kidney transplant patients.
The thumbnail is quite inappropriate.
Its terrifying for me to know that you noticed...
Too bad you didn't address the fatigue and neurological symptoms like Dr Girnita does.
great job!!
nicely explained
Male - primary sjogrens... this is a complicated autoimmune disease, everyday is a battle ... my G.p didn't know what it was !!. 10 years to diagnose.
great video
Lysterine has alcohol and dries an already dry mouth more. Can't believe he used that photo as an example.
Kudos to Dr. Andras Fazakas. Listerine .and other manufacturers produce a variety of alcohol-free mouthwashes . Some are more expensive than others.
What about the dry flakiness skin. I saturate my legs and feet with olive oil, 3 x a week. You cannot be in the sun either, so many things not mentioned.
Best done
With full respect and love
Earned Wisdom LMAO no it won’t ! I’m vegan and got it
very nice description thank you dr
Thank you so much for helping people and providing valuable information
I was recently diagnosed with this syndrome. I'm only 21. Any suggestions for hair loss?
Hello Shealynn, the most important thing is to halt the progression of the underlying disease that is causing hair loss. One of the medications that can halt Sjögren's syndrome is Hydroxychloroquine.
Thank you Dr
Can u please guide my eye sight is affected due to this how to fix this problem