Facing those biopsies must have been so difficult. They are just diagnostic, so much pain for what is not even a treatment. Your determination is awe-inspiring.
Thank you, Harjeet, for sharing this account of your rare and awful cancer, and how you and your family and doctors faced it and struggled against it for you.
How frustrating it is when doctors do not know what is going on, you are so strong, God bless you and comfort you with peace in your heart and mind 🙌🏼🙏🏼🩷🌸
What are you talking about? Insurance doesn’t just run out. In fact, after you’ve met your out of pocket max, insurance pays for everything 100%. No, they don’t just send you home and deny you cancer treatment. I’m sorry if you’ve personally had that experience but that is not the norm and you shouldn’t be spreading misinformation and scaring people for no reason.
Actually he’s partially right. American insurance sucks and they love to deny tests even with insurance. My insurance denied my Petscan after my Dr suspected a hidden cancer. My cousin actually has stage 4 lung cancer AND brain cancer and had to appeal her denial for her Petscan.
Harjeet you are such a beautiful soul. Worried about your family hurting before yourself. Your journey and story is such an inspiration to others. God bless you darling ❤.
What a beautiful woman inside and out!! Thank you for sharing your story!! I just finished all my treatments for breast cancer a couple of weeks ago. Now, cancer free!! I totally understand how hard treatments are. Thanks again for sharing ❤
So happy for you! This is my third cancer. I’m on my fourth chemo from 6. Because I have the Lynch Syndrome, I’m doing Immunotherapy along with chemo and I was told, once I finish treatment, I’ll stay with immunotherapy for the rest of my life, so that way I don’t get surprised again. Everyone fighting this terrible decease, is on my prayers. God bless you!
I hear so many people who have had a difficult time with unknown diseases say that you really need to advocate for yourself. And that all sounds good, but sometimes a person just doesn’t have the mental or physical energy to keep on trying to find out. After so many years and times of being told all your tests are normal, it’s just too much to keep trying. Sorry to be a Debbie-downer, but I just had to get that off my chest after hearing one more person say you need to be your own advocate. I’m just tired of it.
I feel exactly the same...couldn't have said it better. I'm in the process RIGHT NOW of being my own "advocate," and I'm physically and mentally exhausted.
Same here. I am late to this conversation, but I’m really suffering and looking for answers, support and someone to HEAR ME. I hope everyone here has gotten the answers they need and deserve.
You made it through such a long and challenging experience. Thank you for being so open about it. Wishing you all the best in regards to your April scan, and life in general.
Cancer is a very lonely journey. Especially waiting for a diagnosis. Today is week 3 still no final diagnosis some form of lymphoma. Waiting for a pet scan. Hopefully, the final piece of the puzzle. Thank you for your information this is very helpful to new patients. Hugs
She is so beautiful...inside and outside. It's so sad that we ALL have to be our own "health advocates." The medical system is BROKEN! I can't imagine calling a drug..."the red devil." Ugh. I pray that she continues to heal.
My grandmother is suffering from NHL. And she is really close to me. Just came here to see your journey till date. It’s really heart breaking when the doctors say we are not sure what will happen to the patient but every chemotherapy gives us a lead that something will be good. At some point in this video i resembled you as my grandmother telling her story.Really got a hope from your journey through this video because me and my family lost it all. More power to you✨
Hi Harjeet - Wow! You’ve done so incredibly well, despite the appalling lack of initial understanding, by the hospital doctors, that your ‘presenting symptoms’ ( consecutive high fevers and chills) definitely required further investigation for potential serious diseases! We’d assume, in this 21st. Century, that our family doctors and hospital consultants would all be far more ‘clued up’, given the huge amounts of research data and info. on Cancer, now readily available, internationally - but, still, so many new patients seem to suffer frustratingly long waits ( including incorrect diagnoses and medications…), often in severe pain and discomfort, prior to gaining (eventually) appropriate investigative scans and blood tests….following which, their overdue ‘Cancers’ might ( at last…) be discovered - and then treated, successfully! Thank goodness, Harjeet, that you were lucky enough to meet ( on the verge of your despairing trip back to India) a highly knowledgeable hospital doctor, who then scheduled a series of new tests designed to produce specific, crucial, answers re. your obvious ill-health…! No wonder, though, that you felt totally nonplussed by your diagnosis - such rare cancers, their names, symptoms, progoses and treatment protocols would be unknown to the majority of patients and hospital consultants ( bound to create additional fear and anxiety in any ‘Cancer’ patient! Your brother’s role as your ‘perfect match’ stem-cell donor proved an incredible stroke of luck - serendipity, indeed, yeah? In fact, your entire family’s love and support, throughout your ‘Cancer Journey’, to date, has, clearly, been crucial to your ‘coping ability’ and endurance, despite all of the ‘horrors’ your disease and treatments have forced you to withstand! If only all Cancer sufferers could be granted such amazing loving families and close partners whilst navigating their own long, seemingly endless, paths towards remission ( or, even, Cure…); perhaps, then, the ‘Survival’ stats. might well improve…! Wishing you continued freedom from the scourge of ‘active’ Cancer and the nagging anxiety those ‘monitoring scans and blood tests can bring - you deserve, absolutely, to be able to enjoy a wonderful future life - full of love and joy, together with your loved ones! Thanks so much for sharing your very positive outcome, along with your true account of the dreadful reality of your ‘Cancer’ battle as you experienced it - you merit enormous acknowledgement and respect for your courage and determination, throughout! 🦋🌷🎀💐🪴🤞🌈💚
One of my brothers had large cell non Hodgkin’s lymphoma 16 years ago. Had 6 rounds chemo, relapsed 6 months later. Had autologous stem cell transplant at Stanford 15 years this fall. So far so good. You need to be at a university and teaching hospital for treatment when you have something unusual and need a transplant. Happy for her.
this what I'm going through for a year now. 4 times covid, pneumoniae, and 3 months kidney infection. I keep getting infection after infection and still no diagnosis. Also bloodwork is questionable but keep being told it's fine despite my lymphocytes, thrombocytes, leukcytes being on the high end and high cholesterol all across the board while not being able to eat. I've lost 30 pounds in 9 months. I literally feel like I'm on my way to the end.😢
I’m there too. I’ve had a sinus infection for 2 yrs. My IGM is high. Otherwise, I have rheumatoid arthritis. Have the IG blood panel checked. Best wishes ❤️🩹
I've heard of that T Cell Lymphoma during my looking into these rare disorders as I developed Mycosis Fungoides which sounds like a fungal infection but unfortunately not it's a T Cell Lymphoma.They often don't show in the blood and a biopsy after an amputation caused by a tumour was how mine was discovered.I think now only a Stem Cell Transplant might work as everything else has failed to inhibit the progress of the Mycosis Fungoides.
I was sub-febrile to fever-ish (37.5 to 38.5 C) for FOUR months. With sharp abdominal pain, fatigue, bone and muscle pains. The only things they did was standard bloodwork, then a chest XRay and said "we don't know why you have these symptoms". Still, 8 months later, they don't know what they're doing and giving me antidepressants. But that's Denmark, probably the worst medical care service in the whole Europe, right after Netherlands.
I’m Sorry but NO ONE HAS A FEVER FOR OVER A MONTH 🤬 Our doctor did not guess ! Our 7 yr old son was complaining that this knee hurt so dad took him to the dr and he said I DO NOT WANT TO GUESS LETS JUST DO AN X-RAY and they did next day after work I stopped at dr office and he took me into his office with tears in his eyes he was starting to scare me 😟 he has been my dr since I was 4 yrs old great dr well he put up the X-ray and said crying THAT IS A TUMOR AND I DO NOT KNOW WHAT KIND I fell to my knees crying 😭😭 talking to other parents in 3 hospitals most doctors kept saying GROWING PAINS because they were GUESSING 🤬🤬 it just infuriates us 🤬 we hope all goes well for you 💗
Facing those biopsies must have been so difficult. They are just diagnostic, so much pain for what is not even a treatment. Your determination is awe-inspiring.
Thank you, Harjeet, for sharing this account of your rare and awful cancer, and how you and your family and doctors faced it and struggled against it for you.
How frustrating it is when doctors do not know what is going on, you are so strong, God bless you and comfort you with peace in your heart and mind 🙌🏼🙏🏼🩷🌸
So Dr. Monica what should have been your response and what is the protocol for fever should have been followed.
@@xenon6947 I’m not a Doctor
Harjeet, you are such an inspiring and brave person. Thank you for sharing your journey and I pray you continue to feel well.
GOD ALLMIGHTY WILL BE WITH YOU ALWAYS. I pray you get well soon and feel better 🙏
In the USA, when insurance runs out, you go home.
Definitely wouldn't get a Petscan unless you have money.
So it's a blessing your Canadian. ❤
What are you talking about? Insurance doesn’t just run out. In fact, after you’ve met your out of pocket max, insurance pays for everything 100%. No, they don’t just send you home and deny you cancer treatment. I’m sorry if you’ve personally had that experience but that is not the norm and you shouldn’t be spreading misinformation and scaring people for no reason.
Actually he’s partially right. American insurance sucks and they love to deny tests even with insurance. My insurance denied my Petscan after my Dr suspected a hidden cancer. My cousin actually has stage 4 lung cancer AND brain cancer and had to appeal her denial for her Petscan.
I start Chemo in a coupe days! Very scary! 🙏🏼for you! ❤
Harjeet you are such a beautiful soul. Worried about your family hurting before yourself. Your journey and story is such an inspiration to others. God bless you darling ❤.
Thank you for sharing your journey. Wishing you the best!
What a beautiful woman inside and out!! Thank you for sharing your story!! I just finished all my treatments for breast cancer a couple of weeks ago. Now, cancer free!! I totally understand how hard treatments are. Thanks again for sharing ❤
So happy for you! This is my third cancer. I’m on my fourth chemo from 6. Because I have the Lynch Syndrome, I’m doing Immunotherapy along with chemo and I was told, once I finish treatment, I’ll stay with immunotherapy for the rest of my life, so that way I don’t get surprised again. Everyone fighting this terrible decease, is on my prayers. God bless you!
I hear so many people who have had a difficult time with unknown diseases say that you really need to advocate for yourself. And that all sounds good, but sometimes a person just doesn’t have the mental or physical energy to keep on trying to find out. After so many years and times of being told all your tests are normal, it’s just too much to keep trying. Sorry to be a Debbie-downer, but I just had to get that off my chest after hearing one more person say you need to be your own advocate. I’m just tired of it.
I feel exactly the same...couldn't have said it better. I'm in the process RIGHT NOW of being my own "advocate," and I'm physically and mentally exhausted.
@@ValerieGriner
Same here😢
Same here. I am late to this conversation, but I’m really suffering and looking for answers, support and someone to HEAR ME. I hope everyone here has gotten the answers they need and deserve.
@@violet04nunya98 Not yet🥺
You made it through such a long and challenging experience. Thank you for being so open about it. Wishing you all the best in regards to your April scan, and life in general.
Wow. You are so brave. Amazing. So glad you are feeling better.
Cancer is a very lonely journey. Especially waiting for a diagnosis. Today is week 3 still no final diagnosis some form of lymphoma. Waiting for a pet scan. Hopefully, the final piece of the puzzle.
Thank you for your information this is very helpful to new patients. Hugs
She is so beautiful...inside and outside. It's so sad that we ALL have to be our own "health advocates." The medical system is BROKEN! I can't imagine calling a drug..."the red devil." Ugh. I pray that she continues to heal.
Thank you for sharing your story. I'm happy that you continued your fight because you are still here
There are heroes among us.
My grandmother is suffering from NHL.
And she is really close to me. Just came here to see your journey till date. It’s really heart breaking when the doctors say we are not sure what will happen to the patient but every chemotherapy gives us a lead that something will be good. At some point in this video i resembled you as my grandmother telling her story.Really got a hope from your journey through this video because me and my family lost it all.
More power to you✨
Hi Harjeet - Wow! You’ve done so incredibly well, despite the appalling lack of initial understanding, by the hospital doctors, that your ‘presenting symptoms’ ( consecutive high fevers and chills) definitely required further investigation for potential serious diseases!
We’d assume, in this 21st. Century, that our family doctors and hospital consultants would all be far more ‘clued up’, given the huge amounts of research data and info. on Cancer, now readily available, internationally - but, still, so many new patients seem to suffer frustratingly long waits ( including incorrect diagnoses and medications…), often in severe pain and discomfort, prior to gaining (eventually) appropriate investigative scans and blood tests….following which, their overdue ‘Cancers’ might ( at last…) be discovered - and then treated, successfully!
Thank goodness, Harjeet, that you were lucky enough to meet ( on the verge of your despairing trip back to India) a highly knowledgeable hospital doctor, who then scheduled a series of new tests designed to produce specific, crucial, answers re. your obvious ill-health…! No wonder, though, that you felt totally nonplussed by your diagnosis - such rare cancers, their names, symptoms, progoses and treatment protocols would be unknown to the majority of patients and hospital consultants ( bound to create additional fear and anxiety in any ‘Cancer’ patient!
Your brother’s role as your ‘perfect match’ stem-cell donor proved an incredible stroke of luck - serendipity, indeed, yeah?
In fact, your entire family’s love and support, throughout your ‘Cancer Journey’, to date, has, clearly, been crucial to your ‘coping ability’ and endurance, despite all of the ‘horrors’ your disease and treatments have forced you to withstand!
If only all Cancer sufferers could be granted such amazing loving families and close partners whilst navigating their own long, seemingly endless, paths towards remission ( or, even, Cure…); perhaps, then, the ‘Survival’ stats. might well improve…!
Wishing you continued freedom from the scourge of ‘active’ Cancer and the nagging anxiety those ‘monitoring scans and blood tests can bring - you deserve, absolutely, to be able to enjoy a wonderful future life - full of love and joy, together with your loved ones! Thanks so much for sharing your very positive outcome, along with your true account of the dreadful reality of your ‘Cancer’ battle as you experienced it - you merit enormous acknowledgement and respect for your courage and determination, throughout!
🦋🌷🎀💐🪴🤞🌈💚
One of my brothers had large cell non Hodgkin’s lymphoma 16 years ago. Had 6 rounds chemo, relapsed 6 months later. Had autologous stem cell transplant at Stanford 15 years this fall. So far so good. You need to be at a university and teaching hospital for treatment when you have something unusual and need a transplant. Happy for her.
this what I'm going through for a year now. 4 times covid, pneumoniae, and 3 months kidney infection. I keep getting infection after infection and still no diagnosis. Also bloodwork is questionable but keep being told it's fine despite my lymphocytes, thrombocytes, leukcytes being on the high end and high cholesterol all across the board while not being able to eat. I've lost 30 pounds in 9 months. I literally feel like I'm on my way to the end.😢
I’m there too. I’ve had a sinus infection for 2 yrs. My IGM is high. Otherwise, I have rheumatoid arthritis. Have the IG blood panel checked. Best wishes ❤️🩹
I've heard of that T Cell Lymphoma during my looking into these rare disorders as I developed Mycosis Fungoides which sounds like a fungal infection but unfortunately not it's a T Cell Lymphoma.They often don't show in the blood and a biopsy after an amputation caused by a tumour was how mine was discovered.I think now only a Stem Cell Transplant might work as everything else has failed to inhibit the progress of the Mycosis Fungoides.
🙏 ❤ 🙏
peace be with you always🙏
This is terrible how can a person have a month long flu. They need to revamp medical school, this is ridiculous.
I was sub-febrile to fever-ish (37.5 to 38.5 C) for FOUR months. With sharp abdominal pain, fatigue, bone and muscle pains. The only things they did was standard bloodwork, then a chest XRay and said "we don't know why you have these symptoms". Still, 8 months later, they don't know what they're doing and giving me antidepressants. But that's Denmark, probably the worst medical care service in the whole Europe, right after Netherlands.
❤
Tylenol for a 42 C fever? what? I hope her doctor didn't say that....
Non hodgkin b cell or t cell. How us now .stem cell transplantation?
I’m Sorry but NO ONE HAS A FEVER FOR OVER A MONTH 🤬 Our doctor did not guess ! Our 7 yr old son was complaining that this knee hurt so dad took him to the dr and he said I DO NOT WANT TO GUESS LETS JUST DO AN X-RAY and they did next day after work I stopped at dr office and he took me into his office with tears in his eyes he was starting to scare me 😟 he has been my dr since I was 4 yrs old great dr well he put up the X-ray and said crying THAT IS A TUMOR AND I DO NOT KNOW WHAT KIND I fell to my knees crying 😭😭 talking to other parents in 3 hospitals most doctors kept saying GROWING PAINS because they were GUESSING 🤬🤬 it just infuriates us 🤬 we hope all goes well for you 💗
JESUS CHRIST said "By my stripes you are healed".
Believe on the LORD JESUS CHRIST and you will be saved.
♥️♥️♥️🙏🌹
🙏🙏🙏✝️✝️✝️
❤💪
Did you get the jab?
That is the only thing you can think of to ask?
She was sick in 2019
@@4BarbaraJit is causing Cancer that why they asked .
Her symptoms started long before the vaccine was available. You are so determined to make everything fit your view.
@@louellenstevens501it’s not true! Stop spreading g lies.