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11 July 24 - Blood Cancers Virtual Support Group
ฝัง
- เผยแพร่เมื่อ 13 ก.ค. 2024
- UPCOMING AnCan CLINICAL TRIALS WEBINAR
Clinical Trials 101: Common Myths and Facts
Date: Wednesday July 31, 8.00 pm Eastern
Click here to register: : tinyurl.com/ancanct
(clinical trials discussed in this session)
We are a safe and welcoming space for people living with any type of blood cancer. Our peer moderators come from the CLL, Multiple Myeloma, and MNP communities.
You can learn more at ancan.org/bloo... and sign up for a Reminder at ancan.org/cont...
Join us LIVE sometime.... meetings take place the 1st Thursday of each month at 8.00 pm Eastern at www.gotomeet.m... - free and drop in.
Topics Discussed
ports, picc and central line; MDS in MA. - SCT later this year; high cost of co-pays and payment assistance; CLL - non-covalent pirtobrutinib; MM - Healthtree myeloma conference in UT; 7 months post allo-CAR-T and, 5-10% bone marrow involvement after 6 mo.; MCL (Mantle Cell Lymphoma) lymphedema and MDA lymphedema clinic; clinical trials e how to ask and where to find; CLL - post Venetoclax & Obinutuzumab tx. ; CLL - improve bone density.; CLL - drug holiday at 16 months & doing fine; anemia problems - maybe Autoimmune hemolytic anemia (AIHA)
Chat Log
Unknown · 8:31 PM
Loved my port ❤️ had it until it broke
Alexa Jett - AnCan Foundation · 8:38 PM
oncology nurses
Lynn on Texas time - SLL · 8:40 PM
Welcome Bill G
Michele Nadeem-Baker · 8:48 PM
Hi Jim! Welcome
Michele Nadeem-Baker · 8:49 PM
Onco360
AnCan - rick · 8:49 PM
PAN Foundation panfoundation....
Michele Nadeem-Baker · 8:49 PM
Will be right back - need to get my charger for laptop
Leslie MCL Texas · 8:53 PM
copays.org/fun... www.aamds.org/... www.dresnerfou...
Alexa Jett - AnCan Foundation · 8:54 PM
nancyslist.org...
Leslie MCL Texas · 8:55 PM
www.cancercare...
Leslie MCL Texas · 8:56 PM
brb calquence time
Alexa Jett - AnCan Foundation · 9:02 PM
I am loving this Sally background!!!
Leslie MCL Texas · 9:06 PM
need to know if anyone has hit remission but still having lympodema?
Alexa Jett - AnCan Foundation · 9:17 PM
You can also ask for a referral to integrative medicine, they have things that can help, including oncology massage -
Alexa Jett - AnCan Foundation · 9:17 PM
www.mdanderson...
Alexa Jett - AnCan Foundation · 9:24 PM
sparkcures.com/
Jim Marshall, Alexandria, VA - mPC · 9:30 PM
Have to go, see all next month. Jim
Leslie MCL Texas · 9:34 PM
Happy Rebirth day Nancy ❤️
Alexa Jett - AnCan Foundation · 9:35 PM
Happy Birthday Nancy! One day at a time
Alexa Jett - AnCan Foundation · 9:41 PM
I have to go, so good to see you all tonight!
Leslie MCL Texas · 9:42 PM
Bye alexa
Mary Lou/MDS · 9:42 PM
bye Alexa
Lou Sears MM · 9:44 PM
Congratulations, Nancy!
Leslie MCL Texas · 9:50 PM
sending prayers for your friend
Michele Nadeem-Baker · 9:51 PM
Lynn - will keep them in my prayers
Leslie MCL Texas · 9:55 PM
I got to git closing in on bedtime for me
Lynn on Texas time - SLL · 9:56 PM
Good night Leslie ... hang in there
Leslie MCL Texas · 9:56 PM
see you next time
Michele Nadeem-Baker · 9:56 PM
Take care Leslie