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11 July 24 - Blood Cancers Virtual Support Group

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  • เผยแพร่เมื่อ 13 ก.ค. 2024
  • UPCOMING AnCan CLINICAL TRIALS WEBINAR
    Clinical Trials 101: Common Myths and Facts
    Date: Wednesday July 31, 8.00 pm Eastern
    Click here to register: : tinyurl.com/ancanct
    (clinical trials discussed in this session)
    We are a safe and welcoming space for people living with any type of blood cancer. Our peer moderators come from the CLL, Multiple Myeloma, and MNP communities.
    You can learn more at ancan.org/bloo... and sign up for a Reminder at ancan.org/cont...
    Join us LIVE sometime.... meetings take place the 1st Thursday of each month at 8.00 pm Eastern at www.gotomeet.m... - free and drop in.
    Topics Discussed
    ports, picc and central line; MDS in MA. - SCT later this year; high cost of co-pays and payment assistance; CLL - non-covalent pirtobrutinib; MM - Healthtree myeloma conference in UT; 7 months post allo-CAR-T and, 5-10% bone marrow involvement after 6 mo.; MCL (Mantle Cell Lymphoma) lymphedema and MDA lymphedema clinic; clinical trials e how to ask and where to find; CLL - post Venetoclax & Obinutuzumab tx. ; CLL - improve bone density.; CLL - drug holiday at 16 months & doing fine; anemia problems - maybe Autoimmune hemolytic anemia (AIHA)
    Chat Log
    Unknown · 8:31 PM
    Loved my port ❤️ had it until it broke
    Alexa Jett - AnCan Foundation · 8:38 PM
    oncology nurses
    Lynn on Texas time - SLL · 8:40 PM
    Welcome Bill G
    Michele Nadeem-Baker · 8:48 PM
    Hi Jim! Welcome
    Michele Nadeem-Baker · 8:49 PM
    Onco360
    AnCan - rick · 8:49 PM
    PAN Foundation panfoundation....
    Michele Nadeem-Baker · 8:49 PM
    Will be right back - need to get my charger for laptop
    Leslie MCL Texas · 8:53 PM
    copays.org/fun... www.aamds.org/... www.dresnerfou...
    Alexa Jett - AnCan Foundation · 8:54 PM
    nancyslist.org...
    Leslie MCL Texas · 8:55 PM
    www.cancercare...
    Leslie MCL Texas · 8:56 PM
    brb calquence time
    Alexa Jett - AnCan Foundation · 9:02 PM
    I am loving this Sally background!!!
    Leslie MCL Texas · 9:06 PM
    need to know if anyone has hit remission but still having lympodema?
    Alexa Jett - AnCan Foundation · 9:17 PM
    You can also ask for a referral to integrative medicine, they have things that can help, including oncology massage -
    Alexa Jett - AnCan Foundation · 9:17 PM
    www.mdanderson...
    Alexa Jett - AnCan Foundation · 9:24 PM
    sparkcures.com/
    Jim Marshall, Alexandria, VA - mPC · 9:30 PM
    Have to go, see all next month. Jim
    Leslie MCL Texas · 9:34 PM
    Happy Rebirth day Nancy ❤️
    Alexa Jett - AnCan Foundation · 9:35 PM
    Happy Birthday Nancy! One day at a time
    Alexa Jett - AnCan Foundation · 9:41 PM
    I have to go, so good to see you all tonight!
    Leslie MCL Texas · 9:42 PM
    Bye alexa
    Mary Lou/MDS · 9:42 PM
    bye Alexa
    Lou Sears MM · 9:44 PM
    Congratulations, Nancy!
    Leslie MCL Texas · 9:50 PM
    sending prayers for your friend
    Michele Nadeem-Baker · 9:51 PM
    Lynn - will keep them in my prayers
    Leslie MCL Texas · 9:55 PM
    I got to git closing in on bedtime for me
    Lynn on Texas time - SLL · 9:56 PM
    Good night Leslie ... hang in there
    Leslie MCL Texas · 9:56 PM
    see you next time
    Michele Nadeem-Baker · 9:56 PM
    Take care Leslie

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