Dr. Yang, thank you for an outstanding presentation. You are the best I have ever come across. I was 28 yrs (1986), when I was diagnosed with an AN, had surgery as it was 6 cm large. This left me permanently deaf in my right ear and facial paralysis. 2018 At 60 yrs, I had another AN of 5cm large, had surgery again. I am now 65 yrs and the AN is 34mm. At this stage, I am having an MRI every 6 months.
In 1998 I was a 23 year old male athlete,no smoking or drinking alcohol and no fast foods that was in great shape(5'10",175lbs 5% body fat) with a 3.8cm acoustic neuroma in my head.Had surgery and everything went wrong with me.Lost my hearing,facial nerve ,had spinal fluid leak 4 times,one of the because of a simple sneeze,so the doctor decided to put a permanent lumbar shunt,but that failed twice.Long story short it took a total of 12 surgeries to fix me up(over 9 months)from cranial plasty,muscle grafts,spinal taps,shunts,gold weight implant for my eye lid,etc.If you have this type of tumor,remember my case is over 17 years ago,today things are much better for anyone with this tumor.I hope I didn't freak anyone out with my story.Best of "luck"for all people that get this type of reality check.A word of advice,find a doctor with a good track record.
I don't think there is any developments yet in the treatments - i have an Acqostic neuroma of 3.5 by 4.3 - my hearing almost gone on one side but my balace and facial nerve not het affected, What do you suggest me? surgery or radiation? or Marijuana oil
Thank you for this video. I am waiting for the result of the MRI scan that may confirm this type of neuroma. I lost my hearing in the right ear up to minus 60 dB overnight. Initial threatment with cortisone infiltrations had no effect. First I panicked seriously, now I am very anxious about it. The hearing loss and the bad quality of the sound as well as the tinnitus that comes along with it has a severe impact on my live. I wake up in the morning and immediately I feel depressed. Listening to music is very important to. My hobby is the restoration of music equipment, like radio, tuners, amplifiers. That ship has sailed. I am 62 years old. Yesterday and today I cried because I feel completely helpless.
I'm getting my MRI back in two days, everything leads to AN so far, Watching this made me feel better Dr Yang, I'm the kind of person who wants to know everything I can before I have to deal. Thank You for the frank and intelligent look at the options.
i am learning to live with mine. i dont want surgery and i cannot afford it anyway, and the laser type is even more so.i would sure like my balance back. thanks for the video , though
I am a patient with acoustic neuroma. When I was 4 centimeters away, there was a remnant, and then it relapsed, then radiotherapy, and now it relapsed, what should I do, I am in China
Hi Ayarbrough70, Dr. Yang's response to your question: "No I would recommend observation first. If there is any growth then I would recomend Radiosurgery" This suggestion is not in lew of medical advice. He also mentioned that if you are interested in an outsite film review you can email neurosurgeryhelp@mednet.ucla.edu Vanessa can help set up a outside film review if they are interested
I'd like to know why none of my doctors I've seen (neurologists and neurosurgeons) don't believe me when I tell them that my schwannoma that was found about a year ago, IS causing me a lot of pain! its been extremely painful, and very difficult to deal with. To me, it just seems as though they're minimizing the problem for whatever reason and don't want to get rid of the thing that's causing me a lot of grief! The tumor is small at this time according to them. I did have a MRI done, ... with and without contrast, and it measures 9 x 9 mm. Wish you could help me in some way, maybe by referring someone. Thank you for making this video. It's very informative.
Hi, ... I just had another MRI w/and without contrast, and it's a tiny bit bigger now. Cyber knife told me that there's a lot of side effects with that, and it's too risky. The brain surgeon wants annual MRI reports. I don't know how much bigger it needs to be before they consider removing it. Not that I want to have brain surgery. The pain is controlling my life. I wish the pain killers worked better. Thank you for asking :)
summer day Do you have pain near or at the tumor site? It wasn't until last month, my pain management dr. said to another dr. , that he believes the pain increase was in fact due to the schwannoma.
Hello Dr Yang - I am impressed by your speaking ability - that alone makes me want to come from Chicago to be your patient for my AN. My question is, you state you will discuss cutting edge treatments but the options for treatment you present are nothing new and are more or less the standard options. What makes something 20 to 30 years old cutting edge?
And, Dr Yang spent only three minutes for explaining surgical options, I think is very risky to say the surgery is more risky to RS coming from the UCA staff, anyway we thank you for you effort of communication
Excellent, compassionate and detailed presentation. I really appreciate it as I do my research. I have a couple of questions regarding MCF. Is there a particular question to ask a surgeon on ways to prevent Post surgical Headaches? Do drilling techniques play a role in the Post-surgical headaches, air pockets? I know if one has headaches prior to surgery that makes them more prone to post surgical headaches but in my research and watching actual MCF surgeries on Neurosurgical Focus , etc I see a lot of bone shavings and wonder if that contributes to the Post surgical headaches? just a thought. Thank you
Hi , is tumor of 22mm considered as big? And also can gamma knife producer be done twice in 10 years time? Please can someone answer my queation😟 I was diagnosed with acoustic neuroma back in August and has sec scan last week. First time i was told to watch the tumor and see if its growing. On the second scan tumor is exactly the same size but there is a small compression on brain stem which was on the first scan. Doktors told me i need operation and already said ill loose hearing on my left year. They haven't even done the operation, but already know I'll be deaf on left side I have fantastic hearing at this moment and I thought they should do everything to preserve hearing. Please can someone tell me what to do. Im desperate 😪😪😪
Hilarious. The doc, here, says to eat a healthy diet and exercise leading up to surgery. Then he says later in the video that "obviously i like fast food." LOL. Better be careful, doc - you may be the one in the surgery room for open heart surgery if you keep eating the fast food.
Thank you Dr. Yang. Great presentation, it was very informative. My mom has a 6 cms AN removed in October. There is a residual tumor, 0.3 mm. She is 70 years old and the doctor wanted to preserve the facial nerve, quality of life first. Would you recommend Gamma Knife to get rid of the residual?
What do you do when doctors dont care like you do..my mom is 88 and she has acoustic noroma and they offered nothing,was it because she only had medicare and madicade,
I would only do the surgery if your VS or AN is life-threatening or you're ADLs are so awful and consistent with the symptoms and outcomes of a risk awareness protocol or surgery gone wrong. Tinnitus, facial droop, eyelid or tear issues, speech impairment, lacking taste, facial tingling, other tongue issues, serious balance issues, ambulation, disturbed gait, otherwise Absolutely NO to the surgery! The healing time is long and painful and those who come out with minimal side effects are calling themselves "lucky." Be aware and observe. Get lucky in Vegas, not in the OR. Live your life and remember to die with it, not from it.
Thank you for the detail of your presentation. I am an RN with 6 mm x 5 mm Vestibular Schwannoma. Meet with MD soon. You provided information that will help me in understanding my options. From Salt Lake City, Utah.
me too.. about 3 weeks ago I dont know where to go for treatment options. I live in a small town there is no one here. can a dr look at my MRI if I send it and give an evaluation/ I would like 2 to 3 opinions from the best surgeons in this field.
Thanks, Dr Yang spent 20 minutes talking in favor to RS, I don't think is a very equilibrated talk for patients suffering from neurinomas of acoustic, It will be much better to show the three medical options at the same time, even for UCLA staff #NeurologíaSegura team
What a gift. Dr. Yang thank you. Now I dying (no pun intended) to get an update more recent and will look. UCLA is one for one with me. My "mass" is 2 cm so I need to do my homework as it's a close call.
Fix the typo on screen at 0:50. David Geffen School of Medicne?? If you can't spell "medicine" correctly, I'm not sure I would want you operating on any member of my family.
thank you a lot, dr. Yang. Concerning my small, but relatively fastgrowing AN + already 48 db hearingloss + tinnitus, I'm considering GK or fragmentated radiation. My AN = 1.5 in total, only 7 mm extracanalicular, march 2013). In april 2010 it was deep intracanalicular. So let's say there's a 9mm growth in 3 years. I have already hearingloss of 48 db. In august 2012: 33 db. My question: can I still preserve my hearing by (fragmentated) radiation or GK (which?). (I donot know it's a cystic AN)
Thank you for the good presentation. If you were to cut the 20 minutes of bragging about how awesome you and your friends are, it would actually become a great presentation.
Dr. Yang, thank you for an outstanding presentation. You are the best I have ever come across. I was 28 yrs (1986), when I was diagnosed with an AN, had surgery as it was 6 cm large. This left me permanently deaf in my right ear and facial paralysis. 2018 At 60 yrs, I had another AN of 5cm large, had surgery again. I am now 65 yrs and the AN is 34mm. At this stage, I am having an MRI every 6 months.
In 1998 I was a 23 year old male athlete,no smoking or drinking alcohol and no fast foods that was in great shape(5'10",175lbs 5% body fat) with a 3.8cm acoustic neuroma in my head.Had surgery and everything went wrong with me.Lost my hearing,facial nerve ,had spinal fluid leak 4 times,one of the because of a simple sneeze,so the doctor decided to put a permanent lumbar shunt,but that failed twice.Long story short it took a total of 12 surgeries to fix me up(over 9 months)from cranial plasty,muscle grafts,spinal taps,shunts,gold weight implant for my eye lid,etc.If you have this type of tumor,remember my case is over 17 years ago,today things are much better for anyone with this tumor.I hope I didn't freak anyone out with my story.Best of "luck"for all people that get this type of reality check.A word of advice,find a doctor with a good track record.
I don't think there is any developments yet in the treatments - i have an Acqostic neuroma of 3.5 by 4.3 - my hearing almost gone on one side but my balace and facial nerve not het affected, What do you suggest me? surgery or radiation? or Marijuana oil
+harvister100 Cell towers, cell phones, wifi please people wake up we are doing this to ourselves. Smart meters!
please send you MRI to top surgeons for advice. the oil wont help you.
Thank you for this video. I am waiting for the result of the MRI scan that may confirm this type of neuroma. I lost my hearing in the right ear up to minus 60 dB overnight. Initial threatment with cortisone infiltrations had no effect. First I panicked seriously, now I am very anxious about it. The hearing loss and the bad quality of the sound as well as the tinnitus that comes along with it has a severe impact on my live. I wake up in the morning and immediately I feel depressed. Listening to music is very important to. My hobby is the restoration of music equipment, like radio, tuners, amplifiers. That ship has sailed. I am 62 years old. Yesterday and today I cried because I feel completely helpless.
Hang in there. You’re not alone. You’re living which is a blessing
Does radiotherapy make it more difficult to have surgery later? I have heard radiotherapy makes the AN more “sticky” to the nerves
I had endometrial cancer. Have gene error. Also have swarnoma. Been having blurred vision, sharp pains above ear and sticker face.
Thank you for offering a clear and easy to follow presentation. I now have a better understanding of acoustic neuroma.
I'm getting my MRI back in two days, everything leads to AN so far, Watching this made me feel better Dr Yang, I'm the kind of person who wants to know everything I can before I have to deal. Thank You for the frank and intelligent look at the options.
i am learning to live with mine. i dont want surgery and i cannot afford it anyway, and the laser type is even more so.i would sure like my balance back. thanks for the video , though
I am a patient with acoustic neuroma. When I was 4 centimeters away, there was a remnant, and then it relapsed, then radiotherapy, and now it relapsed, what should I do, I am in China
Thank you Doctor. Clear class on Acoustic Neuroma! ;)
Hi Ayarbrough70, Dr. Yang's response to your question:
"No I would recommend observation first. If there is any growth then I would recomend Radiosurgery" This suggestion is not in lew of medical advice. He also mentioned that if you are interested in an outsite film review you can email neurosurgeryhelp@mednet.ucla.edu
Vanessa can help set up a outside film review if they are interested
UCLA Health &
Radiation therapy surgery
I'd like to know why none of my doctors I've seen (neurologists and neurosurgeons) don't believe me when I tell them that my schwannoma that was found about a year ago, IS causing me a lot of pain! its been extremely painful, and very difficult to deal with.
To me, it just seems as though they're minimizing the problem for whatever reason and don't want to get rid of the thing that's causing me a lot of grief!
The tumor is small at this time according to them. I did have a MRI done, ... with and without contrast, and it measures 9 x 9 mm.
Wish you could help me in some way, maybe by referring someone.
Thank you for making this video. It's very informative.
cozmic knight.. did you get answers yet its been 9 months since you posted this.. the tumor is small if it stays small you are very lucky.
Hi, ... I just had another MRI w/and without contrast, and it's a tiny bit bigger now.
Cyber knife told me that there's a lot of side effects with that, and it's too risky. The brain surgeon wants annual MRI reports.
I don't know how much bigger it needs to be before they consider removing it.
Not that I want to have brain surgery. The pain is controlling my life.
I wish the pain killers worked better.
Thank you for asking :)
summer day
Do you also have a brain tumor? A (Schwannoma.)
yes
summer day
Do you have pain near or at the tumor site?
It wasn't until last month, my pain management dr. said to another dr. , that he believes the pain increase was in fact due to the schwannoma.
Hello Dr Yang - I am impressed by your speaking ability - that alone makes me want to come from Chicago to be your patient for my AN.
My question is, you state you will discuss cutting edge treatments but the options for treatment you present are nothing new and are more or less the standard options.
What makes something 20 to 30 years old cutting edge?
th-cam.com/video/LPMTRZtRWwY/w-d-xo.html
hit this link for acoustic neuroma easily explained
I wonder which is worse, heart surgery or getting a tumor surgically removed? 🤔
OUTSTANDING presentation Dr Yang. Thank you very informative....My question was how do you know when your tumor grows back?
th-cam.com/video/LPMTRZtRWwY/w-d-xo.html
hit this link for acoustic neuroma easily explained
You don't think about it and just get check ups.
Does Medicare with a secondary insurance cover the cost of surgery or radiation?
Dr. Yang,
The best presentation. Thank you.
And, Dr Yang spent only three minutes for explaining surgical options, I think is very risky to say the surgery is more risky to RS coming from the UCA staff, anyway we thank you for you effort of communication
I am looking for your help to give her treatment
I am 72 yrs old. I have an acoustic neuroma and it is small. should I have anything done
Same here, about same age. I am thinking about doing nothing.
Excellent, compassionate and detailed presentation. I really appreciate it as I do my research. I have a couple of questions regarding MCF. Is there a particular question to ask a surgeon on ways to prevent Post surgical Headaches? Do drilling techniques play a role in the Post-surgical headaches, air pockets? I know if one has headaches prior to surgery that makes them more prone to post surgical headaches but in my research and watching actual MCF surgeries on Neurosurgical Focus , etc I see a lot of bone shavings and wonder if that contributes to the Post surgical headaches? just a thought. Thank you
Hi , is tumor of 22mm considered as big? And also can gamma knife producer be done twice in 10 years time? Please can someone answer my queation😟 I was diagnosed with acoustic neuroma back in August and has sec scan last week. First time i was told to watch the tumor and see if its growing. On the second scan tumor is exactly the same size but there is a small compression on brain stem which was on the first scan. Doktors told me i need operation and already said ill loose hearing on my left year. They haven't even done the operation, but already know I'll be deaf on left side I have fantastic hearing at this moment and I thought they should do everything to preserve hearing. Please can someone tell me what to do. Im desperate 😪😪😪
Is there a National registry?
Hilarious. The doc, here, says to eat a healthy diet and exercise leading up to surgery. Then he says later in the video that "obviously i like fast food." LOL. Better be careful, doc - you may be the one in the surgery room for open heart surgery if you keep eating the fast food.
Thank you Dr. Yang. Great presentation, it was very informative. My mom has a 6 cms AN removed in October. There is a residual tumor, 0.3 mm. She is 70 years old and the doctor wanted to preserve the facial nerve, quality of life first. Would you recommend Gamma Knife to get rid of the residual?
th-cam.com/video/LPMTRZtRWwY/w-d-xo.html
hit this link for acoustic neuroma easily explained
Thank you for this very helpful webinar. It answered many questions.
th-cam.com/video/LPMTRZtRWwY/w-d-xo.html
hit this link for acoustic neuroma easily explained. THIS WILL CLEAR YOUR CONCEPT.
What do you do when doctors dont care like you do..my mom is 88 and she has acoustic noroma and they offered nothing,was it because she only had medicare and madicade,
I would only do the surgery if your VS or AN is life-threatening or you're ADLs are so awful and consistent with the symptoms and outcomes of a risk awareness protocol or surgery gone wrong. Tinnitus, facial droop, eyelid or tear issues, speech impairment, lacking taste, facial tingling, other tongue issues, serious balance issues, ambulation, disturbed gait, otherwise Absolutely NO to the surgery! The healing time is long and painful and those who come out with minimal side effects are calling themselves "lucky." Be aware and observe. Get lucky in Vegas, not in the OR. Live your life and remember to die with it, not from it.
Sir I need ur rply how much money it requires to do
Can these tumours become malignant?
Is the linear accelerator you mention the basis for the Novalis system? How does Novalis compare to typical gamma knife?
Excellent information
How much will this cost
thankyou.
Can you help me?
Hi Sir, I am 32 year old and I would like to know more about this treatment, My AN size around 3CM in my MRI report.. please advise me best option...
What was your initial symptoms?
What was your initial symptoms and after how long you go for MRI
Bro provide your phone number
I have the same
I will help you
Thank you for the detail of your presentation. I am an RN with 6 mm x 5 mm Vestibular Schwannoma. Meet with MD soon. You provided information that will help me in understanding my options. From Salt Lake City, Utah.
How did things turn out? With an acoustic neuroma that small, did you have radio surgery for it? If so, how did it go? How are you today?
I am diagnosed with ANs, i got a lot of interesting ideas from the presentation. am not yet decided to take any action.
me too.. about 3 weeks ago I dont know where to go for treatment options. I live in a small town there is no one here. can a dr look at my MRI if I send it and give an evaluation/ I would like 2 to 3 opinions from the best surgeons in this field.
summer day do you know the size of your tumor
17 mm or 1.7 cm I have sent in my MRI to 3 of the top AN drs in the county. the ANA (association) has the list of drs.
summer day I believe mine at the time of discovery was 7.54 mm and that was seven months ago is that considered small
A lot of good information. Thank you
th-cam.com/video/LPMTRZtRWwY/w-d-xo.html
hit this link for acoustic neuroma easily explained
@@conceptualmedicalscholar2497 thanks!
Thanks, Dr Yang spent 20 minutes talking in favor to RS, I don't think is a very equilibrated talk for patients suffering from neurinomas of acoustic, It will be much better to show the three medical options at the same time, even for UCLA staff #NeurologíaSegura team
What a gift. Dr. Yang thank you. Now I dying (no pun intended) to get an update more recent and will look. UCLA is one for one with me. My "mass" is 2 cm so I need to do my homework as it's a close call.
Can you provide an update? I hope your well.
Fix the typo on screen at 0:50. David Geffen School of Medicne??
If you can't spell "medicine" correctly, I'm not sure I would want you operating on any member of my family.
thank you a lot, dr. Yang. Concerning my small, but relatively fastgrowing AN + already 48 db hearingloss + tinnitus, I'm considering GK or fragmentated radiation. My AN = 1.5 in total, only 7 mm extracanalicular, march 2013). In april 2010 it was deep intracanalicular. So let's say there's a 9mm growth in 3 years. I have already hearingloss of 48 db. In august 2012: 33 db. My question: can I still preserve my hearing by (fragmentated) radiation or GK (which?). (I donot know it's a cystic AN)
Thank you for the good presentation. If you were to cut the 20 minutes of bragging about how awesome you and your friends are, it would actually become a great presentation.
Very rude comment! Dr. is very helpful! Don't you want to hear of his background?
ciobotaru, you are absolutely disgusting and you should refrain from commenting !!!! No one is interested in your negativity.