My Colon Cancer Came Back as Terminal Stage 4 | How I Found Support | JJ's Colorectal Cancer Story
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- เผยแพร่เมื่อ 5 มิ.ย. 2024
- After brushing off stomach pain for months, JJ was eventually diagnosed with stage 2 colon cancer at 27. After going through 6 rounds of chemo and surgery, he started to feel pain once again in his stomach. His cancer then came back as terminal, stage 4. Since his diagnosis, he’s tried 5 different chemotherapy regimens, but they were all unsuccessful. Doctors then told him, he had two options: hospice and dying or trying a clinical trial.
JJ then joined a clinical trial and it has kept his cancer from spreading further, beating the 25% odds of surviving past 5 years after diagnosis. In this conversation, JJ shares the reality of being on lifelong chemotherapy, finding mental health support, starting his advocacy journey, and the importance of listening to your body.
Watch segment 1 of JJ's story: I was in Disbelief When I got Colon Cancer | • I was in Disbelief Whe...
Full story & transcript → Updated Soon at www.ThePatientStory.com
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Contents of this Video:
00:00 - Intro
10:41 - Finding support
17:30 - Words of advice
#coloncancer #coloncancerawareness #colorectalcancer #colorectal #colorectalsurgery #cancersurvivor #cancerstories #cancer #thepatientstory #cancerpatient #breakthestigma #mentalhealth #mentalhealthawareness #stage4coloncancer #clinicaltrials
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Your survival is an honor to my late sister, who didn't make it from colon cancer. There weren't alot of trials back then. Wishing you every blessing.
I'm so sorry. May your sister rest in peace.🙏❤
I’m u😅😮
@linn8100 I am so sorry. I can’t imagine the pain.
It is brave patients like this young man, who push through and endure years of agony to be a 'guinea pig" and do clinical trials. It's those clinical trials where the researchers can fine tune these medications so others can survive. Thank you sir.
Your story ought to be on TV so people become aware of this horrible disease. You are a brave soul. God bless you.
This brings such intense feelings, my husband passed of stage 4. They gave him 2yrs he fought thru 61/2 yrs of continuous chemo cycles, but for many of those yrs he was just the shell of the person he was. Chemo til the end was his choice, im not sure I’d make that decision for myself today. Forever living inside my Heart ♥️
Sending heartfelt compassionate hugs and love. 🦋👼🕯✨️🙏💙
I'm almost 100% sure chemo isn't for me. My CRC treatment is going to be radiation and surgery, otherwise I'm going to focus on taking care of my family by giving them lasting memories of the person I was, energetic, full of life and compassion. I don't want those I love to remember me as a cancer patient or a sick husk of a person in bed, machines whirring in the background.
I lost my partner as well 4 years ago, of a cardiac arrest, he was 28… It was very sudden. And no cardiac issues whatsoever. We don’t know why he died…
I sometimes wonder what’s worse. To know they’re going to die, or for them to die suddenly without a warning…
Anyway. He will live in your heart for ever, like my boyfriend is going to live in mine for ever as well.
Sending you my love ❤❤
He’s a hero!
Hang in never let go LOVE never dies
You were given horrific circumstances in life but you still are fighting to live. You are just amazing. 💙
I'm stage IV metastatic breast cancer. Went to my vertebra, a rib on the left side, and a tumor on my coxi. My metastatic was found in 2020, before New years, I just found out it spread more to the L4, so it literally is all over my vertebra. This coming Monday, I'm getting an MRI done, and I have a new pain on my lower back. I can't hardly walk, bend, that's my lumbar spine, where I feel all my movements and the pain is horrible. When you mentioned pain, I definitely relate. Is tuff living with pain but is worth living right. Let's see what my docs find this time. I find myself crying a lot. I understand when you say you feel lonely even though there's a million people texting and sharing their own hardships. I don't meet in presence with a support group. There's none around here. I sometimes share my feelings with an online community group of metastatic patients like me. I totally get that when you don't even have the strength to grab the phone, I get like that, too. Never thought of not wanting to be here, no thoughts of suicide. My faith is strong. Honestly, God gives me the strength I need to go on. Keep up the amazing effort you're doing. Your story is very inspiring. It gives me hope. I want to tell you that you have a long road ahead. Enjoy this life. Do all the fun things you like, travel, and even build a family. God has a different plan for you, kiddo. Thank you for sharing your story. Believe!
Normi- I am holding you in my thoughts, heart, and prayers. I hope everything goes as smoothly as possible this upcoming Monday. I am sending virtual healing hugs, blessings, peace, hope, compassion, support, care, and love your way. 🦋👼🕯✨️🙏💙
@@bohochic2459 🙏🙏
@@normisostre1263how are thing? Are you ok?
You’re such an inspiration omg 🥰🥰🥰. Your video is such a reminder of being stuck on traffic not a bad day , fail a class not a bad day , a breakup is not the end ect….. . We tend to take llife , and our health for granted until you come across a video like this . Thank u is an understatement 🥰❤️❤️❤️🙏🏾🙏🏾🙏🏾🙏🏾
Fellow survivor here, Stage 4 B-cell lymphoma. You are a fighter, sir. I hear you on the need to watch out for your mental health, and wish I had done a better job early on. But, I have become a believer in that the best time to get support for your cancer journey is when it starts, but the second best time is today. I hope your treatment works, and bridges you to an eventual cure. I hope your days without pain are many and lasting. Peace, Luis
My first words after diagnoses was I’m worried about my mental health. It’s really hard, and Covid made it all so much harder. You’re so strong. Never give up!
I understand you. I was on TPN for 5 years. I will remember you. My Mom had colon cancer then breast cancer. I had colon cancer 2 years ago the my appendix wss slouching off and turning to cancer last year. I've had a pain pump many times. You are rewriting my story. Make sure you talk to people that's been my biggest mistake. Mental health is a big thing to deal with. Prayers and hugs to you today.
God, I wish something could be found to alleviate that intense pain you and others have suffered.
Your life has already been a tremendous contribution to anyone who views your videos. Your voice and words show strength, vulnerability, courage, resilience, and a relatable genuine person. Thank you for sharing your experience. Sending you positive thoughts and prayers as you continue along your journey.
Tenacity. Courage. Persistence. Wisdom. Strength. These are some of the traits you show to those around you. Thanks for sharing your story.
I am thankful you shared your story, as someone who dealt with cancer I can relate to so much you have shared. I'm so very proud of you I can't even put it into words, you are the definition of a true fighter. I can't imagine the physical and mental pain of dealing with all the chemo you did, you gave yourself the greatest gift by reaching out for your mental well being. I put therapy off myself even though I was struggling, I couldent wrap my head around one more appointment during treatment, bad on my part but I did finially begin therapy about 2 months ago and it's the best thing I could have done. It takes a real man to admit they need help, keep up the great work ♡. I will keep you in my prayers, take good care of yourself JJ and thanks again.
If you recite the under mentioned prayer 400 or 2000 times, all your illnesses will vanish by the permission of Allah (all glory and praise be to Him).
"O Allah, send prayers, peace and blessings upon our Master Muhammad, the medicine of hearts and their treatment, the soundness of bodies and their cure, the light of vision and its illumination, the spirit of all spirits and the secret of their endurance."
@jean Roth what a sweet comment! Best of luck to you as you deal with your cancer .❤
. this young man is amazing. So inspirational. Yes, prayers are so important.
You are so very brave! All the best to you from Germany.
So glad you joined the group (s) and have support from others online. Prayers that the clinical trial keeps you going for many years to come.
I so admire you young man, your strength is amazing. I have stage 3 CRC, your story has convinced me to have immunotherapy, being 70 yrs old, I couldn’t imagine having side effects that’s so horrible, yet if it works I might be out of pain. The pain is unbearable at times, I just don’t care to prolong it. If it weren’t for children and grands, your testimonial I wouldn’t do it. Their little faces break my heart, the thought of me passing, I will fight. Gods Will be done either way. I’ll go with palliative care, and fight fight fight for this life I was gifted with.
Prayers please🙏🏻🥰
He matters, everyone matters. His bravery will help thousands/millions and that means everything.
The smile and light in his eyes say everything about the power of support, finding friends thru this journey. 💚
I am amazed by you JJ. What a nightmare you have been through these past years and yet you somehow manage to tell us your story with a smile on your face. Thank you for your honesty and for opening up about the dark feelings of sadness and hopelessness so many of us cancer patients have to deal with. I’m so happy that you found your support in Man Up. Knowing that you aren’t alone and that there are people like you who care can make all the difference. Never give up JJ! You don’t know what treatments are around the corner. THERE IS HOPE. Look how far you’ve already come! God bless you young man.
You are my hero. Sending love, lots of love.. Stay strong.
Stay strong and positive. You are an inspiration to so many people going thru this horrible decease. Gog Bless you and your family.
prayers on a daily basis for you, hoping your " good days " increase and outweigh the bad,
Thankyou for sharing your story with us. It will help so many people.
Praying for you you are a brave man you are loved keep the faith God loves you ❤😊
That’s some story. No one should have to endure that. I can only imagine how hard mental health is in your case. I struggle with mental health too. Joining support groups is an amazing help. I wish you the best of everything, you are amazing!
So sad you are a very strong person , hope you have a speedy recovery, stay blessed.
You are so so brave. Sending you ❤️ ❤❤ to see you battle at such a young age, find the courage to find hope is astounding. Salute.
I wish I could reach though this pc and give you a big hug, so proud of you. Stay strong.
I am like you stage four been survival for twelve years and still undergoing chemo by taking chemo pill I believe I can stay that long through prayers alone believe me believe in power of prayers you be fine brother trust God
From an Australian your so brave i wish you to be pain free its 1923 August im windering if your still with us may god bless you
Cancer has given you wisdom FAR beyond your years!
You have an acceptance of life’s terms that some don’t obtain in a lifetime!
No one your age should get this prognosis, and hopefully, the day is coming where they won’t! 😢
❤️...hugs !
Gosh, I'm so thankful....You're here for a reason, and never forget the difference you have made / and continue to make. WOW, God is Good !! I'm thankful as well, you have others to talk to, and the support that is needed.
May God be with you every step of your life.
Prayers.
I am so touched by your video. This is real life, relationships with the others and you found that through the illness. Une belle leçon de vie pour moi. Du Québec
Your an inspiration to so many . Keep spreading your story . There are so many people who need that comfort and peace u have found . You do have a purpose for being here . I just know your helping so many . Prayers for you ! Many more years ahead . God speed !
The bravery and optimism you have is incredible. Your in my 🙏🏿.
Wow! You are the true definition of a HERO, I will pray for you to heal, sending you positive vibes and only good things 🙌🏻
Thank you and Well done for being vulnerable and persevering! Helpful !
I so respect you. Please keep us updated.
Sending compassion and support your way JJ ❤️
Your strength is astounding! Gives you a whole new perspective on life. 👍🏾
Sending prayers for peace and comfort. You are an inspiration!!! God bless you as continue your battle. With Him nothing is impossible!!! Best wishes from South Carolina.
You're such a good hearted guy, it's important you're sharing your story. Thank you so much. ❤
Thank you for this video. I’m especially touched by what you said about mental health and having the courage to talk about and deal with painful emotions. I wish you everything good in life.
Happy to hear you have your support group - it's crucial for mental stability, for mental health playing substantial part in the overall health. Wish you a lot of good days and years with good friends and family! ❤️
Thank you for sharing your story. It’s so important. For people who are caring for or close to someone with cancer it’s great insight and it will help people to understand the mental health toll it takes on everyone. I can’t wait until mental is taken as seriously as physical from the day we are born. ❤❤❤ so grateful for this information.
I just came across your story today, January 22. Happy New Year. I am so elated you have found a group of your peers. You've got this. Hugs and love ❤️
I'll pray for you 🙏
God bless you man! You’re so strong and resilient! Keep the faith, God has a plan for you!
Sending good vibes your way! Praying for you! 😊
It is so wonderful that your cancer is stable. Hopefully, another treatment will become available that will be even better. By going through a clinical trial, you have helped more people than yo know. I just read about you and your treatment on my Apple News yesterday. You are brave. Sometimes it takes more courage to live. I’m sure you have touched many people’s live through your various groups. Bless you and best wishes for a cure.
Such a strong man. Hands down. May God heals you and grant you more years to come. 🙏
How brave and positive you are. Gave me some lessons to live by regarding one's future health battles.
I’ve been dealing with cancer for couple years now and you’ve gone through so much I can’t imagine how you’ve made it through. God bless you brother🙏🏼
I'm so happy you decided to stay and make a difference through living❤You definitely deserve it 😊❤
Simply awesome and inspiring. ❤
You are precious! Thanks for sharing your thoughts (good, bad, ugly)! You doing this might of saved a life!
Your a brave young man JJ, my sister had cancer when she was younger. God bless you xx
JJ- I’m so glad and proud of you that you tried the clinical trial. I’m happy and feel good to see that you joined the men’s group and are visible person in and helping other people and getting support for yourself. And I think you are a most attractive and energetics young man and you should be proud of all that you achieved in your sports in college and everything in your life. I hope you have a nice life now a good life and a longer life than you expected before. Something tells me it’s going to be longer than you expected. Best of luck and all the good things in life to you👍🙂
Prayers!
I am so sorry for all your pain, you are a beautiful person.
I’m praying for you, thanks for sharing your story and experience! Your a very strong person!❤️✌️😊
God Bless you love ❤Do not let it define you ! You ate strong and a fighter ! Proud of you for seeking mental help ! I did the same after chemo ! It helped so much ! Eat clean , no sugars , NO ALCOHOL ! Nothing that feeds the cells ! Lots of garlic , tumeric , u-tube has a lot of therapeutic healing frequencies from A-Z I listen to a lot of immunity booster frequencies, inflammation, stress etc ... there are also cancer killing frequencies ! Your in my prayers 🙏🏾💜
You are truly an inspiration- thank you so much for your honesty! You are beautiful when you smile! Keep that up! :)
Thank you for your honesty❤ I have stage 4 colon cancer and it’s a lot to deal with. For me gardening helps. The chemo is hard, but I’m hanging on. LOL…Yep, I agree with you when you feel off, something is wrong;) sending love, prayers and positive energy💙
You are very brave and thank you for sharing your story. May the lord heal you-stay strong never give up hope.
Love Duke's Cancer Center!!! My Oncologist came from Duke to up here in Cape Cod. Glad you are pushing through.. You got this...
I don't know how you do it! You're amazing JJ. - I was just diagnosed yesterday with Pulmonary Metastatic Disease. The Dr just called to expedite "The Journey." I'm being referred to the Pulmonology Dept, and from there, based on the consultation, it will be decided if I have to be referred to the Radiation Dept. I'm scared, yet I see all you survivors and realize I've got to get over being the "Baby Princess" realizing that there is the possibility of being like the rest of you who have gone through this cancer journey.
Your story gives me courage and hope. - Thank you JJ.
I’m so touched by your video. How did you cope with 5 chemo regimens?? I have ovarian cancer that’s now terminal. I’m about to start my 3rd chemo regimen and I’m so tired before I even start. I wish you all the best from Ireland. Hang in there
Oh my goodness. I'm sending lots of love, hugs, and prayers.🙏❤
Only God has the last word, only you know what you're going through, praying for you, I know it's easier said than done
Prayers, do you supplement with Turkey tail mushrooms and astralgus ? They have really turned my lesions around and are good natural cancer fighting agents.
You are stronger than you think. 💪
God bless you young man Never give up. Big hug to you ❤from South Wales ❤
Such a powerful story...thank you for sharing 🙏🏽
Your story has really inspired me and it pushes me to speak out for my health issues. I was working full time at Mayo Clinic on the chemo floor. I loved my job so much but one day my life just took a complete turn around. I had to step down from my position because of upper GI pain and blood in my stools. I had a upper GI scope and was told I had a sever case of inflammation and gastritis but it’s been 6 months and still know relief from this pain. I am a firm believer in the Lord and this is where out hope and strength comes from. God is our healer put all your faith and trust in the Lord. God bless you!! Much Love!!
I got same symptoms for 2 years and still going i went to nany times to the doctor and got checked they said gastritis and enlarge prostate this situation has been a nightmare to me i eat healthy and exercised everyday all my life i dont understand why this is happening to me 😅 for the last 2 days ive seen red blood in my stool hopefully is from hemorrhoids. I have never felt this hopeless in my life i can't imagine how JJ has felt for the last 5 years 💔 god damn it life its cruel
Keep on fighting young man because you are definitely a fighter!
wow, what a strong person, good points about support groups
Such a likeable man with so much to give ❤
So full of courage! I am really amazed by your capacity to fight and the strength you are developing .
Love and best wishes to u u are so brave to tell ur story and im glad u joined a support group please dont ever ever give up there is hope pray u are going to be fine please give this to god
Praise God you have been such a WARRIOR!!🙏💗 love and prayers to you.
Your story is a true inspiration. Thank you for sharing 💕
What a brave man!! all the best to you Sir.
Lots of ❤️ from Southern Ireland 🇮🇪 prayers 🙏 you
Hoping you are well…your story is amazing! 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
Thank you so much for sharing my story
❤️❤️❤️
Thank you and God Bless and protect you eternally.
God bless everyone that’s going through it best wishes and hopefully there’s a cure thanks for your bravery
God bless you and keep fighting.❤️
Thanks for the support and sharing your nightmare
God Bless you, JJ!
I enjoyed every bit of your lecture. 😊
Wishing you the best in my prayers.
You are a brave Man, God bless!!
God bless you! I hope they find a cure in your lifetime!❤
Im going to have my chemo soon. Thank you for sharing your video. ❤❤❤
Oh my gosh you are awesome sending prayers ❤❤❤
You are AWSOME!!!! Sending you love and prayers.F$&% cancer!
You seem like such a sweet young man. Your parents must be very proud of you! Good luck to you during this journey. Know that everything you’re going through is helping another person. You’re a champ!!!❤❤
Sending love and light God bless you ❤️🙏🙏
Thanks for sharing..God bless you☮️
So happy for you :)
Listening 2 you helps others in the same boat we're you feal helpless alone and terrifed bless your sweet heart
you are an inspiration x
God is always on the ride with you...always look to God for your solace...You are NEVER alone on your journey...seek the kingdom of heaven within you for guidance...take time to sit still and be as you seek answers and listen for guidance for you ..be blessed 🙏🙏🙏