YOPD Council: Parkinson's Non-Motor Symptoms

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  • เผยแพร่เมื่อ 7 ก.ย. 2024

ความคิดเห็น • 12

  • @nedraschilders7976
    @nedraschilders7976 2 ปีที่แล้ว

    Thank you. For upgrading disclsio

  • @denajessup6675
    @denajessup6675 10 หลายเดือนก่อน

    Thanks so much. Ya’ll help so much. I have gone through high anxiety and bad depression. Other things you have mentioned. I haven’t heard rage. Of course 5 months ago I had MRI have moderate Alzheimer’s and that has been hard. And the rage may be from that. My mom, her mom, her sisters had Alzheimer’s, a great uncle had Parkinson’s, my brother has Parkinson’s but felt like I fell in a deep hole when I started having so many symptoms of Parkinson’s. I adapted to Alzheimer’s but Parkinson’s is so much harder. You are really being tried having mental and physical issues. Both diseases have anxiety. I have crying spells. I have the motor problems shuffling of feet. I walk in neighborhood and I know people think I am a drunk. Take my dog with me so I am stopping som and when I begin walking again I lose balance. There is dizziness, headaches. Well with Alzheimer’s I forget what other problems. With Alzheimer’s I have a list taped on my door to get towel, washrag, shower cap, rug, and deodorant. It got overwhelming to keep getting out of shower because I forgot something. It is really a job trying to cook and you have to keep asking yourself what was I doing?
    I have to take something every 3 hours before the symptoms hit. I think the best thing I did was accept I have these diseases and stay on top of how I am feeling because there are circumstances that happen and you can’t control and this might be Alzheimer’s but one minute I am okay then circumstances happen and I go into a rage and I am really surprised at circumstance happening. For example my husband told me he would be coming home at a certain time. It is on my mind to be ready at that time. Well he comes 30 minutes earlier than he says and I am using the straightener on my hair. I slam the straightener in the sink and break it. I wasn’t even angry. Another time I misunderstood my husband about something I thought he said. I felt I disappointed him. I had the apple cider jar in my hand and I slammed it on floor, glass everywhere and took paint off my island in kitchen. Also,
    I slammed our storm door and my husband had to take a part out in the lock part that was broken. It still locks. So is there rage with Parkinson’s? Other than that I am doing okay! Haha!
    Things are doubly hard with having both these diseases. The symptoms of both diseases overlap. Thank ya’ll for sharing your experiences- so encouraging to hear others are going through some of same things I am going through. I watch out for your show.
    Ya’ll are encouraging many folks. Bless you!

    • @davisphinneyfdn
      @davisphinneyfdn  10 หลายเดือนก่อน

      Thanks for your comment. Aggression, irritability, and anger can be a part of living with Parkinson's. These can be side effects of medication or a consequence of the progression of Parkinson's. Here is some information:
      davisphinneyfoundation.org/what-are-the-non-motor-symptoms-of-parkinsons/
      th-cam.com/video/w9Y2wQkYPTw/w-d-xo.html
      news.cuanschutz.edu/medicine/aggression-toward-caregivers-in-parkinsons-disease-patients

  • @Schouse15
    @Schouse15 2 ปีที่แล้ว

    Great discussion! Heather did a great job leading. Thank you all so much.

  • @KMx108
    @KMx108 2 ปีที่แล้ว

    I definitely suffer with anxiety, but one time when I was fine (no anxiety) I was in a doctor appointment and the doctor's notes described me as an "anxious female" ...I wasn't sure if I was being stereotyped or if he was super intuitive.

  • @beingolde2521
    @beingolde2521 2 ปีที่แล้ว +1

    This is all spot on….but doctors ….unless you aren’t breathing….don’t like to deal with anything that can’t be measured….in 2 months I have lost 34 lbs….chewing…swallowing…gastro pain….my GP cares and done what she can…neurologist….echo…echo..echo…( and believe me…I have moved across the country….no one is different…..I just want to feel better…

    • @KMx108
      @KMx108 2 ปีที่แล้ว

      "It sounds like you're just stressed"....(I'm in the same boat...I was even told my urinary dysfunction...a new issue at age 41 ...was due to my parents not potty training me properly. Huh?)

  • @Michael-he7xn
    @Michael-he7xn 2 ปีที่แล้ว

    Great information guys! All the best.

  • @nedraschilders7976
    @nedraschilders7976 2 ปีที่แล้ว

    How do you deal with communicating difficulty

  • @sonyaalsberry9359
    @sonyaalsberry9359 2 ปีที่แล้ว +1

    REM sleep disorder???

  • @nedraschilders7976
    @nedraschilders7976 2 ปีที่แล้ว

    I am living with Parkinson. I )I've in a small town. I am interested in meeting others living with Parkinson. I fel like living on a deserted isla,nd. I have friends who have no idea what living with Parkinson Hrlp me find others who b b undesta,understand, the isolation