My Lupus Diagnosis Story (Symptoms, Testing, Treatment)
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- เผยแพร่เมื่อ 2 เม.ย. 2023
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I was in a marriage that had the same symptoms as you described in yours. I am a Christian and was determined to keep my marriage intact. After years of struggling, forgiving, trying again, and much much praying over it, I heard the Lord say to get out, I did all I could and to give it over to him. Six months later, I was diagnosed with stage four Non-Hodgkins Lymphoma. I was given an 80% survival rate. After one failed round of chemotherapy and then a bone marrow transplant, I made it! I absolutely KNOW that your mental and emotional health can and does lead to illness. I have completely changed my emotional stability and outlook and will never let myself be in that situation again. You need to protect yourself Michel and I hope you always do going forward. Love yourself first!
You are so right about your emotional stresses causing so many physical ailments. Wishing you well with continued good health. Thank you for reminding people to care for themselves by alleviating toxic situations as much as possible.
Thank you for sharing your story friend!! I am so sorry you had to go through that!! I am glad to hear that you made it!!! Protect your peace friend!! 🫶🏼🤍🤍🥰
Yes my eyebrow turned white(yes. Singular. Eyebrow.🤦♀️). The stress did a number ugh.
You had such great doctors & an efficient team around you
Your are right, same happened to me- fighting tooth and nail for my marriage until I had no chance- and also got sick- not to that extent, but I can testify that this is true! emotional/mental turmoil can manifest into physical ailment
Young, pretty women are very often dismissed as being anxious, hysterical or under stress instead of doctors actually taking them serious. There's a long history of this mistreatment and is a systemic issue in medicine. I'm glad that they kept running tests on you. My mom's best friend has lupus. It has caused her a lot of joint issues over the years and has some of the more serious issues with it now.
I have experienced this very thing.
Young bright & attractive women are also often misdiagnosed as being depressed and prescribed antidepressants instead of getting their Thyroid or hormones checked.
Hashimoto's is so under diagnosed and overlooked but on the rise in the past decade.
Hormone levels need to be checked in women as young as 30 these days as more and more women are going into early onset perimenopause and early onset menopause or medically induced menopause.
Hopefully more doctors will become more proactive and aware than reactive and dismissive.
Prayers for a proper diagnosis and appropriate treatment to resolve all issues. Prayers for consistent daily energy so we can function day to day to lead a productive life. Prayers for Improved health care tests to reduce long term suffering and misdiagnosis 🙏🏼🎯🤓
I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊😊
Fellow AI issue girly.
What frustrates me is that doctors just want to follow textbook cases, and when you don't meet those exact criteria, they eliminate that possibility causes diagnoses to happen years later or even misdiagnosed. This happened to me for 4 years before finally getting my Hashimotos diagnosis. Every doctor just told me it's anxiety, but I had to actually do research myself. I tracked every symptom and issue and finally had a doctor listen. I've since then been diagnosed with Rheumatoid Arthritis, hypothyroidism, psoriasis, and solar urticaria. I've been suspecting I've had lupus, but all my labs show otherwise. I hate literally praying for a diagnosis just to prove I'm not crazy and that something is wrong. I'm miserable most days, and I just want to feel better, and having to beg doctors for answers is so demoralizing.
Brittany…your story mirrors mine EXACTLY, accept I’d been going to doctor after doctor for over 8 years. Hashimoto’s almost killed me before they finally acknowledged I had it and the only option was to remove my thyroid. Now I’m on the same roller coaster ride, doctor after doctor, major symptom after major symptom, my life totally disrupted, with so many doctors saying “sounds like Lupus” but negative ANA so it can’t be 😣. So…even though they can SEE my symptoms and my blood work shows things are off…I get treated like I’m attention seeking and crazy. I’m so fatigued, tired of hurting, sick of being sick…and still no diagnosis or help!
I feel your pain and wish these darn doctors could live in our bodies for a week and experience our suffering. It’d be hard to turn a blind eye to then, wouldn’t it?!
@@kntryme1 every doctor i meet diagnose me with lupus but my ANA are negative and they think i'm just depressed and anxious.. i dont trust them anymore now
natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.
Unresolved trauma, emotional suppression, not dealing and healing from emotions is also another reason autoimmune diseases appear, research is being done and findings do show that our emotions, if not released stay trapped in our bodies and causes problems and illnesses.
So it also to calm nervous system
So if You not express feelings like greif its a problem ?
🤔
It’s better to cry it out than hold it in
@@jessicanilsson5941yes, my father didn't deal with his grief and he developed hand tremors so bad he couldn't work anymore
Thank you for sharing your journey. I'm an RN who has not yet been formally diagnosed. My ANA doubled after Covid. I've got EBV, Hashimotos plus Sjogrens. It's been coming on for years. Getting Covid really made things worse. Having a good attitude and knowing it will pass is helpful. I enjoy every good day! Reducing stress and eating well makes a big difference. I wish you a beautiful, long and healhy life! You are not alone. I live everyday to the fullest when I can. It's not who we are, it's something we have. ❤
I hate that the AI issues come in pairs plus some. Hang in there. It’s really hard having a chronic illness.
Thank you for always being so vulnerable and open.
Wow. Thank you for sharing this with us. I've just stumbled upon your page a few weeks back and I love your positive attitude. Lupus has always been a tough diagnosis (have friend with it) so I applaud you for sticking with getting to the bottom of yours. This video will help others I'm sure. Stress can hurt our bodies in so many ways. I wish more people understood that. Anyway, thank you again for being so brave to share. I wish you good health and lots of good things for you. 💜
Oh, sweetie I am so sorry.. I’m happy it seems you have things more under control and your in a healthier mental space ❤ praying for your full healing
I just got my diagnosis and I have lupus too. I'm with you, let's keep living because that's what matters!!
I'm so sorry. I also have Lupus as well as 4 other autoimmune diseases and let me tell you it is rough. My applause to you for making your life as happy and full as you can!! Your a great inspiration.
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️
Lupus ain't no joke. I get picked on for being a man and having it.. good thing I have a sense of humor
Sounds like you eat food that givs you this! you should start carnevor and get MWO tratment
My mother has lupus I remember that she was in a very stressful relationship so she couldn’t bear it.
I’m now doing a research, the teacher asked us to talk about any kind of a disease and i chose to talk about this autoimmune disease.
I really believe that every girl has a lupus is very strong.
You're so clear and eloquent in speaking about the illness and its symptoms. Thank you! Best wishes to you!🌷
Thank you for doing this video! I am 71 and got diagnosed with Lupus the end of last year. I know now that I have had it a lot longer. Your video was right on! Be blessed Jen
Same here!!! Excepting, im 72.
Awe. You are so bright, smart, and kind. And I feel sure your positive attitude works wonders for you. I pray that you will always stay in remission🙏❤️
WOW! My so grateful you made this video! I went back to your old Vogs and found where you missed the phone from your dr saying you had it but couldn’t find a follow up video about it.
Great summary of this complex disease. I’ve had SLE for 17 years and am currently in my 6th year of chemo to suppress my overactive immune system. I think it’s essential that you tell yourself daily that you are going to continue to live a full and normal life. Not optional. The mind is so powerful that it can convince the body. Sending anyone dealing with lupus love and strength!
May God be with you through your treatments. My sister has Lupus and has recently had to undergo 6 months of chemo treatment to put it in remission.
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
Thank you for making this video. I have a couple autoimmune conditions and I'm getting a biopsy for Sjögrens soon.. I was concerned because I didn't have a positive blood test (I have several clinical symptoms so my Drs want me to have a biopsy) but after learning that the biopsy can be the deciding factor as in your experiences I feel a lot of relief that I won't be going under anesthesia & taking the risk for nothing.
I hope you're feeling better now. Again, thank you for this in-depth video, Michel.❤
Bless your heart...you really went through some tough stuff. So glad you are better.
Thank you dear for explaining lupus. I'm 72 and just found out from the doctor I have this. God bless you and your family dear sweet girl ✝️🙏❤️😇
I commend you for being so open to help educate us on the disease. Your perspective in what you have to go through is very courageous.
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
I was diagnosed with lupus in 96, I'm 60 now. I have my good days and bad. One of my first symptoms was my hands and finger tip, would turn purple color, had a fever feeling very sick and tired and throwing up, and stress, and the going out into the sun made me feel very sick.
I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….
Thank you for sharing your story. It must-have been so frustrating to have been going through that without a supportive partner....so glad you had the strength to leave that relationship behind.. you are so loved now...we can see it with Jordie. 🇨🇦❤
I had the exact same rash and it took so long to get diagnosed! I’ve never seen anyone else with the same rash, thank you for sharing this ❤ it makes me feel less alone in this journey
Thank you for sharing your lupus story! I’m still on my journey to getting a diagnosis (originally they said it was an autoimmune liver disease but now they aren’t so sure!). It’s frustrating not knowing and being on meds that I’m not sure are the right ones. But I can relate to the flare ups you get where you feel like you’re about to be sick with the flu. I get those often when I’m stressed/done too much. Your story helps me to feel less alone in the AI world!! ❤
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
Thank you, you have helped multi generations. My family is Irish /German autoimmune issues since I was a child. Now 65. All 4 of my children too. You are singing our song. ❤
Oh my gosh MICHEL. YOUR HAIR. SO GOOD.
I also have Lupus, Sjogrens , OA and Osteoporosis I've been on Plaquinal and get Benlysta infusions every month for the last 10 yrs I wouldn't wish this disease on anyone it's a constant battle everyday but I'm a mother and grandmother and will keep going for my family
It’s so cool hearing someone talk about my work. I work in pathology. I’m glad you finally got diagnosed!
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
Thanks for sharing, you did an excellent job of explaining the autoimmune journey that many of us struggle with!
I had same symptoms and really painful cough and rashes so thats when i found your yt like in the starting of my health journey and it was so helpful for me with you sharing everything without filter :), but just over a half year ago after like many missdiagnosted with so many things even including TB and finally they found out i have stage 3 sarcoidosis ( it is also an autoimmune disease)
I feel understood in a way whenever you share about your low days and your health journey even tho its not the same and we can never compare pain but it was very helpful and i felt like you were there for me even tho this is weird to say but yeah
THANK YOU SO MUCH for everything
Thank you for talking about your journey to diagnosis. It makes total sense to me now with what has been going on with me. I recently got some blood work done and one of the tests came back suggesting lupus. As I listen to your story everything that has been going on with me throughout the years now makes sense. My old doctor just kept saying oh its this or it is that but never did the test for lupus. Funny that I wondering if it was arthritis in a joint now that I am older and my new doctor runs this new test that came back positive for possible lupus. I just want to let you know that you are amazing for putting this video out here so other people can learn about lupus and the different symptoms it may cause.
Thank you so much for sharing! You definitely have a lot of us here that love and support you!! ❤❤
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
Discovered your video while searching for an understanding of this condition that has affected several people I know (both young women). Thank for your articulate explanations and esp for describing your own triggers, symptoms and responses-both mentally and medically...very helpful and informative, indeed.
It's so beautiful to see how far you've come. I look back on videos of yours i've watched and can't believe how much time has gone by. Proud of you girlie!
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
Thank you for sharing this with us. Prayers for your continued recovery.
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
I have been negative ANA for so many years too!!! And as u said, it doesn't mean we don't have it. This is my 20th yr with lupus and am still learning how to cope with it. You really are a star!!!!! Thanx!!! Everyhting happens for a reason.... EVERYTHING.... Thanks for opening up!!!! You made me think about so many points.... Merciiii Michel!!!!!
Thank you for sharing! I do not know much about autoimmune disorders but I'm so glad you have platform to help others!
You have an excellent attitude. That in itself will help you deal with anything.
My sister developed SLE in her senior year of pharmacy college. She and her boyfriend were very serious, talked of opening a pharmacy together, planned their life. And one day, right before their senior (5th) year of college, he dumped her. No reason but "I just don't think I really love you." Huh. Well, they had planned all their classes together, etc. and my sister had to endure seeing him every day for that whole last year. To say she was stressed was an understatement, but my family and I are certain that stress caused her lupus to start. So, Michel, yes, I truly believe your bad marriage was your trigger. It's amazing what happens to a body under such extreme stress. And I will pass along something else we found out with my sister's lupus- she passed it on to her daughter. My sister did find love and got married and waited until she was off of meds and everything was good for her health before getting pregnant. But the pregnancy took its toll on her health and she was bedridden for the last 2 months of her pregnancy. Her daughter was a preemie (3 lbs.!) but thrived until she turned 13, and then developed the same symptoms as my sister. It was devastating. My niece is now 37 and deals daily with her symptoms, fatigue being the most prevalent. We don't know how long my sister would have survived with SLE, as she was killed in a car accident on the way to Philadelphia for a lupus doctor visit for my niece. But her RA and kidney damage from SLE had taken such a toll on her by that point. She was only 47.
I wish you healing and strength as you go through your lupus journey. As I tell my niece, take care of yourself, rest, try to keep big stressors at bay, and hopefully, you can live with lupus! 🧡🧡
I'm so sorry for your loss. I also lost my sister in a tragic way, she was hiking in the mountains, slipped and fell off a cliff. She was only 41. The traumatic grief I felt losing my sister was unbearable.
Thank you for sharing your and your sisters story. I am so sorry for your loss Donna. Sending lots of love to you and your niece!! 🤍🤍🫶🏼
@@MichelJanse thank you so very much! Prayers to you for strength and healing!
@@christineg6123 traumatic is THE word for losing a sister, isn't it? Even after so many years of her being gone, I grieve the loss every day. Prayers to you, Christine!
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases❤
I have SLE as well, and got diagnosed at 21 too. You've got this! You're doing all the right things. I personally treat my lupus with Plaquenil, Gabapentin for neuropathy pain, meloxicam for swelling. If I go into a bad flare up, I take prendisone (warning this does effect your mental state, I get pretty anxious on it, so consider taking a half a pack if you can instead of full!). The most helpful piece of advice I could give anyone with SLE is to rest when you need to! And create boundaries to keep your stress low. Life is too precious to be hurting so much! Hugs to all the lupus warriors out there!
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
Be careful with prednisone it caused me to have AN now I need hip surgery
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
You don’t have to take that 21 pack as directed. I just took as little as needed
This was a great video - thank you for it and for being open and honest about your experiences with Lupus. Good luck on staying healthy & well 🍀
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
I appreciate this. I have many of the symptoms and I haven't seen the doctor yet. Now I will.
When you said "my body was crying out for help" I felt that. I was also married and in a very toxic situation.
You are not alone.
Thank you for sharing your journey, Michel. I have several autoimmune issues - hypothyroid, Eosinophilic Esophagitis, alopecia areata, and my newest addition was a crazy urticaria flare at the beginning of the pandemic. Some days I forget that these could be the cause of feeling crappy sometimes. Your knowledge and care for yourself is inspiring. Stay well!
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
Thanks for sharing this Michel. My ANA has been negative as well but I have skin reactions to the sun/constant rash on face. This is good info!!
I am sure this video will help a lot of people who struggle with their health out there. You are such a loving person to have landed with such terrible health issues and your bravery in sharing your struggles are commendable. I thank you from the bottom of my hearth that you are here sharing your life and struggles with such openness and honesty ❤
natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
Thank you for sharing your story! I am a FNP student and I am so shocked to hear your ANA was negative! One of the big things we learn about Lupus is that an ANA is extremely sensitive for lupus -- meaning that if the test comes back negative you can be close to 100% guaranteed that someone does not have lupus, but it is not very specific -- meaning that if the ANA was positive it does not confirm Lupus on it's own. I'm sorry you didn't get the treatment you needed in time! Your video is a good reminder to "treat the patient not the numbers", you definitely had classic Lupus/autoimmune symptoms.
A lot of times people with Lupus will only have a positive ANA during a flare when they have more inflammation. My mom had Lupus, one of my best friends has it, and they suspect that I may have it as well and we have all had several positive and negative ANA tests.
Hi Michel, thank you for sharing and being open about this disease and how it affects your life. You are helping so many that do not understand what is happening with them. ❤❤❤
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
This was excellent info-very well presented for a complex subject! Good luck with your future-you seem very pragmatic and capable-you should be very proud of yourself!
Hi Michel I’m interested to hear your story x that can be an issue with many doctors visits when a symptom doesn’t fit in to the ‘box’ glad they got it sorted for you fairly quickly and so pleased for you that you’re able to manage it so well! Good riddance to toxic people hello health!! ❤
Thank you sweet friend!! 🤍🤍
This is just amazing to share your story so that people can look to it if they have these symptoms. I know it feels better when someone can see someone else going through same health issues and it's not just all in your head. Love you Michel!! ❤❤❤
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️
you’re beautiful! i hope you’re well ❤
I just found your channel through lemon 8. Thank you for sharing your health journey. I am currently on my own one right now and honestly it’s been the most draining and tiring one. I am so tired of being in pain constantly and am hoping to be in relief soon. Your story made me feel less alone
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
I just recently (one month ago) started oral chemo for Lupus, Late Stage Lyme and Sjogren's. It's kind of wreaking havoc. I don't know yet whether it's going to help. God, I hope so! I don't want this to be in vain. I'm miserable with and without the meds. The jury is still out.
I pray for you and your health. You're a beautiful woman; inside and out. I know exactly how miserable you can feel mentally and physically. I don't want it for anyone.
💚
Sarah, thank you for sharing your story!! I am sorry that you are having to go through this!! Sending you my love and keeping you in my prayers as well!! 🤍🤍
Sarah, I pray the oral chemo helps you. About 40 years ago when chemo was first being used to suppress the immune system, I took it via IV off and on over a period of 10 years. Then I received oral chemo for the next 17 years. I went to a clinic for the IV treatments where I was the only one who did not have cancer (Lupus had caused inflammation of the blood vessels in my brain.) My heart went out to those other extremely sick people. I was getting a much milder dose than the others. I lost some hair but it was not noticeable, and I had no nausea. I just had extreme fatigue. While I sat there with the toxic chemicals going into my veins, I would pray, meditate, do deep breathing exercises, and repeat affirmations silently. I think my positive frame of mine helped me more than anything else. By the time I started the oral treatment, my body was so use to stronger chemicals that I had no bad side effects. I encourage you to stay positive so you don’t stress out, stay hydrated, get plenty of rest, do some form of exercise (I walk), and eat healthy. I am praying for you. (A happy side effect for me from the IV treatments: I lost all the hair from my underarms and it never grew back!)
Curious which doctor you see…. I feel I have Lymes always as well as lupus
@@MichelJanse thanks, love! This life of illnesses, as you well know, is difficult. It makes it a bit easier, when we know that we aren't alone. I'm not saying that I want anyone else to be sick. I'm just glad there is someone in the world that understands.
Btw... you are SO right about the Raynaud's! I have cried many nights from my fingers and toes burning from being so cold. I have discovered, though, that heated gloves or hand warmers inside of gloves/socks really helps with my hands and feet. Maybe it would help you also. It's worth a shot.
Do you have the opposite problem with your hands/feet getting too hot? I do. One symptom that my doctors can't figure out is that my hands will get so hot that we can literally watch blisters forming. I have to put my hands under cold water to stop the blisters from bursting. We don't understand it.
@@kathya9522 Oh my goodness! I was in the process of writing you this long response. I accidentally clicked on something, and it all disappeared. Nooooo! lol
Anyway, the main points were...
I've been on blood thinners for 13 years. It made me lose all of the hair on my legs. I'm definitely not mad about that. lol
I'm typically pretty positive. Monday is my chemo day. So I was pretty miserable while writing my original post. I try to maintain a fun and loving household for my children. They understand that I'm sick and that some days I can't be fun or have much noise in the house On most days, though, we're usually goofing around a lot. I just want them to have good memories of their childhoods. This isn't easy, though. I'm in pain ALL of the time. The hydroxychloroquine, gabapentin and hydrocodone help some. My pain level goes down, but I'm never out of pain. I refuse to allow it to take my life, though.
God is my strength. My help comes from Him.
Thank you for your kind words. How are you doing now?
Thank you for sharing your journey with SLE. I was diagnosed in November and it was a really incredibly quick diagnosis. For me I struggled at first to believe I had it, then trying to understand What this disease is and does to the body, and finally trying to come to terms with how my life was going to be different than what I had expected. I am currently going through a flare up and hearing other people’s stories like yours is really helping me to cope and see a light at the end of the tunnel 🙏
🙏💜
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️
I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊
Thank you for sharing your informative video… I myself have been going through roughly 10 years of medical problems, surgeries, etc. some things have been diagnosed and resolved and others. I still wonder you are very strong and resilient and I enjoy your videos and Instagram as well. Love your positivity, please keep on sharing your journeys with health and the future🫶🏼🫶🏼🤍🤍
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
Loved this video. I am 57 with lupus… officially diagnosed since 55ish.. I also take Plaquenil. I hope you will continue sharing content like this.
What an excellent video! Thanks for sharing this wealth of information to all of us.
Thank you for sharing. I hope you're feeling a little better: take care!
Thank you for sharing your story Michel! (This also happens to coincide with my paper on SLE due in a week and this is super helpful)
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
Thank you so much for sharing this very personal journey. It's extremely frustrating to feel sick in so many ways for years and not get a diagnosis. I'm on my way to hopefully figuring it out. My primary care dr. agreed to give me a referral to a rheumatologist and I'm beginning the tests. It's terrific you finally got some answers and a wellness plan to empower you to live a life of less symptoms. PS: You look amazing. One would never imagine all endure.
This has really helped me as I was diagnosed today..thank you for posting this video 💜👍
Thank you so much for this video. I have lupus and was just diagnosed with celiac and your the only one I’ve found with both. I totally think stress has caused so much of my health issues as well as my early hysterectomy. So much information I needed💕💕
I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊
Hi I’m so glad you got a diagnosis. My doctors have just basically blow me off for the past 12 years since my SLE test is negative but my ANA is positive and speckled. I have the same nail thing if I grow my nails out but they don’t lift off the nail bed. I have the lupus butterfly on my face that started out small and now takes up my nose and cheeks. I have horrible flares and moderate amounts of blood in my urine but thankfully no huge kidney damage. I had an amazing doctor at one point at Duke that put me to n plaquenil for years and it helped!! My doctor left Duke and my new doctor took me off my meds after years. The worst part about that was I had cervical spine surgery and my symptoms are now so severe in my nervous system it’s unbearable. My pain is so bad throughout my body with nerve pain from all my nervous systems. I’m on meds and it does help until I’m flaring. Then the pain immobilizes me. I pray one day I will get a proper diagnosis but after all this time I’m doubtful. Mine started with my lungs in my childhood also. I had lung infections all the time. I also had stomach problems so I was little. I’m gluten intolerant since my blood celiac test was negative. Lupus sucks. I’ve also been told I have Multiple Sclerosis. I’ve been told by my doctor and my neuro ophthalmologist the I had Sjorgen’s Syndrome. My biopsy showed nothing. My blood only had a few antibodies and not enough for a positive test. I continue to move forward everyday but it gets physical hard a lot now without my plaquenil. I’ve been trying for the past 3 years to get into a Rheumatologist in my area with no luck. They stay so busy and they tell me I’m not a first priority. 😢
God Bless You Michel, inspiring!
Thanks for sharing your story. I hope it helps many people suffering with similar illnesses to continue to get the answers they need. ❤️
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
I also got diagnosed by my doctor with 'if it works on the symptoms then you have it' practice. Having an AI changed every aspect of my life - a lot of the doctors just don't take your symptoms seriously and you are basically left believing that you are imagining things. Getting out of the stressful situation literally saved my mental health, but I will, like you, have my health issues forever. Thank you for sharing your story!
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️
It’s honestly kind of eerie that your video shows up on my feed and we have so much in common medically lol. I grew up with pretty severe asthma, then celiac disease, and autonomic nervous system issues-including Raynaud’s. I still have issues with my health, but your video puts me at ease knowing lupus has a genetic factor. It’s a constant fight to live “normally”, but things get better for us😊 thanks for the video!
Thank you for posting this! I was officially diagnosed with Lupus within an hour of you posting this video. We are close in age (I'm 23), and it has been difficult feeling this bad at my age. At times I get the feeling that others think I am just dramatic (especially since I have literally been told that many times). This video was exactly what I needed.
PS. I've been a viewer for a long time, and I'm based in San Diego. I really appreciate the SD vlogs because I get to learn about cool spots in my area.
I'm in my mid 30s. I didn't start getting my symptoms taken seriously until 2 years ago. It's VERY hard to find the right medical team. But once you do, you finally start getting answers. And answers are worth the work.
I too was told by everyone my whole life nothing was wrong with me, I was being overly dramatic, I was trying to get attention, I was just a wimp, I was trying to get out of doing stuff I didn't like, there was nothing wrong with me.... even in my 20s I was being told this.
I still don't have all my answers but I have meds that treat a lot of my symptoms, a few diagnosis, and a better quality of life, even though it's still not equal to that of normal peoples. But if you don't try, nothing changes. And I needed things to change.
Good luck to you!
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
I'm so sorry you were going through that. I pray you will stay healthy and enjoy your wonderful life!!
My God has used a traditional healer #dradima to cure my cold sore this has be my Joy since i was cured i really want to thank you Doc for your good work if ( DR ADIMA) can cure my 18 years lupus he can cure whatsoever ailments you are battling with today
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊
Thank you for sharing. I know it's not always easy to share such personal details. But I'm sure that it is helping a lot of people. I have often wondered if my 7 year old daughter may be having some issues because she complains about her tummy hurting quite often. I really hope that you are able to get it under control enough to never have anymore symptoms. Especially the fingernail thing. That sounds horrible. Love you!
Thank you for sharing your lupus story.
Thank you for sharing your story and your struggle with getting diagnosed. It’s so frustrating to deal with not getting proper help because a case isn’t “textbook.”
natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.
Thank you so much for sharing your story and insight on your autoimmune conditions! The struggle is so real! 🙏🏻 💪🏻
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
Thank you for sharing. I am recently diagnosed with lupus. Just a few weeks now. I am also taking Plaquenil. I didn't know that nails were part of this thing too. I just have cracks on my thumbs on my hands, but I thought it was just a lack of vitamins. Your video was also inspiring as it is my first time when dealing with tests and doctors... It is comforting to know that I am not alone and people just deal with this and go on living their lives. Thank you for talking openly and sharing your story
I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….
Thank you for sharing your story, sometimes I feel afraid of my flares. Hearing your journey is comforting, as I'm still navigating the undifferentiated non specific diagnosis right now. still having flares on plaquenil. I too have to protect my energy with very strict boundaries, I wish you continued success and wellness, again thank you.
Omg! Because I saw your nail photo I watched your story.
I was diagnosed with systemic lupus erythematosus back in 2017. Not until 2023 I started seeing my nail bed lift too! And my nails are very brittle/paper thin. I also saw a dermatologist and asked my rheumy but both were puzzled. I think this isn’t a common symptom for lupus but looks like it could be for some of us!
Thank you for sharing your story! And hope for further health and healing for you. :)
I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….
Literally told by my dermatologist that I could have lupus on Friday & am so glad you posted this video
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️
My grandad had skin lupus. It looked so painful when he had flares:( I have no medical problems but I feel deeply for people that do. Thank you for being real about it 🙏🏻
natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️
Thanks for sharing Michel!
A few years ago I was on a blood pressure medication that caused drug induced lupus. It was very painful. But after a year of being off it my symptoms subsided. Like you I have had a lot of health issues in my life and a very unhealthy marriage. My husband asked me for a divorce in December, but therapy and my church family is helping! You're faith and wisdom has been a huge encouragement for me ❤
I'm so sorry about your husband asking for a divorce. Sending you love and support.💐 * *hugs* *
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
After reading your post I think my body also has drug induced lupus.
I was on medicine for my thyroid Levethiroxine and when the doctor changed the medicine to Synthroid my nails got better. My bloodwork also came back negative.
Hopefully, my hair will stop falling out. The hair issue started with covid.
Thank you, you are an inspiration to others❤
Thank you so much for sharing your story ❤ I have lupus and thank God after suffering for years with joint pains, swallowing, raches, severe fatigue and many other symptoms 3 years ago I was diagnosed with lupus and my doctor help me so much definitely a lot of change in my lifestyle and medicine I take every night, I can finally say I feel like a million bucks 🙌🏼 God is good!
Yay I am so glad to hear this!! 🎉🎉
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases❤
Thanks so much for sharing your story. I just got out of an abusive marriage and have had a lot of weird inflammatory symptoms and am hoping I have not developed an autoimmune disease as a result of all the stress. Working on healing and stress reduction. It has been so awesome to watch your videos and follow your story of setting up your own life and healing. I moved to a different continent to heal and have felt very alone at times. I look forward to your videos every week and find them supportive and inspiring!
I am truly so glad you are here friend!! I am proud of you for taking care of your body!! Sending my love on the hard days and the ones in between!!🤍🤍🥰
natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.
Please make sure you test for syphilis!
Thank you so much for sharing your experience. Very well detailed and helps for many sufferers to be able to pinpoint what's ailing them. My wife is a victim and we are struggling with the diagnosis. Thanks for mentioning hydrochloroquine. I'll look into that with our doctor and see if it can be of help to her. Thanks again, Michel Janse, for sharing your story on Lupus.
Thank you for sharing your health journey. Very helpful.
I’ve just been diagnosed with Sjögren s Syndrome so while different to Lupus still auto immune and makes a lot of sense now. The joint pain and fatigue are challenging and exercise is the best way to manage it. The dry eyes and mouth also need constant attention. Great to listen Michel as rest, being kind, calm and managing stress are the key to feeling better
I'm curious, how do you manage to do exercise if you have so much fatigue? I have muscle weakness and don't know how to manage exercise
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
@@elisabethl.8331hey I have it n idk what medication your on but I got put on hydroxychloroquine 200mg every day n another 200 3 times a week n all my symptoms disappeared completely after about 4/5mnths of being on it n all side effects disappeared around that time too hope this helps
Hi Michel happy Monday afternoon and I hope you having amazing weekend and I loved your vlogs and you are amazing Supporter and I'm proud of you
Thanks for sharing your story - very helpful ❤
I was diagnosed with Lupus in 1998, partially because of a positive ANA. Since then I have been told I do not have Lupus because my ANA is negative, so they took me off of plaquinel. I have fought the last 2 years to try and get help. I also have Hashimoto’s, Fibromyalgia, and now they are looking at MS. Thank you so much for sharing ❤
Michel, your hair is so pretty in this video!
Awe, thank you friend!! 🥹🥹🤍
I felt so sorry about little Michel during those clips, almost in tears ❤
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases❤
I've had a very similar experience and continue to not know what's going on. I also am negative on blood work and it makes everything so challenging. I'm currently diagnosed as seronegative rheumatoid arthritis but it's kind of just a place holder. It's really hard not to feel crazy most of the time. Like you I have had strange symptoms since I was a child including Raynaud's, random rashes, debilitating joint pain and fatigue etc. I actually have decided to change my career path and am applying to medical school with the hopes of becoming a Rheumatologist because I feel my own experience would be really valuable as a practitioner. Especially when it comes to feeling empathy for my patients. Thanks for sharing your experience!
Thank you for sharing your story Emily!! I hope you get some answers soon!!🫶🏼🫶🏼
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤
For sure you have lupus. I'm the same and I was diagnosed a few weeks ago. Taking hidroxicloroquine all days to the rest of my life to try to not to have more severe symptoms.
I was just diagnosed with lupus. I’m seeing a kidney doc tomorrow to see if there is organ involvement. My stressful job definitely triggered it but my mom has lupus. I’ve been feeling pretty lonely so this video was very helpful!!
Praying you get some answers friend!! Sending you my love!! I am truly so glad you are apart of this community!!🫶🏼🫶🏼
natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..
I get rid of Lupus with the help of #dradima on TH-cam who use natural remedies to cure all types of diseases.❤
With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.
I feel alone too people don’t understand what I go through I lost friends family because people think I cancel for dumb reasons or that I’m exaggerating even when I had surgery and had to have a tumor removed from my left side of my neck they expected me to just hop up and get over it
Both my mum and sister have lupus (which lends to the studies that it’s genetic) with chronic migraines and severe joint pain as their main symptoms. It’s been a very difficult journey with many highs and lows, but both of them try and live life to the full whilst also listening to their limitations. I hope you can find a healthy balance in your lifestyle soon, and don’t be scared if you have to change your schedule multiple times over the weeks, months or years to keep making sure it’s working for what your body needs at that time. ❤
natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..
I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤
I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊
Thank you for this video. I’ve been so tired & keep getting ulcers in my nose & mouth. They are so painful I just can’t shake them. I had labs done & my iron, vitamin B & D are too low also. That’s a first in my life. I was diagnosed with crones 10 years ago. I too have been under extreme stress. Things are adding up now. Thank you 🙏 xx
Thank you SO MUCH for this video. My journey is very similar to yours. My ANA was also negative and I also had one symptom that was throwing ppl off which is that my hands swell up and get really red. I was prescribed hydroxychloroquine 6 months ago which is also helping my symptoms. I haven’t been officially diagnosed yet, but I’m going in for my 6mo follow up with my rheumatologist so maybe she will today. Anyway, I just wanted to thank you for this validation I needed🙏🏼 thank you for sharing your journey❤
Has anyone had a sunburn all over their face when they haven’t been in the sun except a few mins?
Joint pain. Finger pain. Hot swollen joints that don’t resolve unless you take Prednisone and then after taking Prednisone about 6 times in 2 years you see a decrease in your kidney function?
Hair loss that makes it look like you’re on chemotherapy ? But you’re not.
But your ANA is negative when you have had it drawn at different times but not necessarily in a flare.
Just fatigue. And lots of staying in bed for a week or two at a time.
I hope you are doing Okay. I’m praying for you 🙏🙏
Yes yes yes first🎉🎉🎉🎉🎉 finally . This took me months😅 You made my day queen. Wish you strength and health❤❤❤
🎉🎉🎉 Thank you for being here friend!! 🤍🫶🏼
“Lupus is an autoimmune disease that attacks basically everything.” As a physician, you’re pretty much spot on with this!
Agreed! Even fingernails apparently because I currently have 9 of my 10 lifting from the nail bed. Nothing seems to help.
natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..
#DRADIMA Thanks to Dr Adima, for helping me to get ride of my Diabetes. with his natural herbal medicine prepared by him which he sent to me after taking his herbal medicine for 4weeks. I was totally cured from Diabetes contact Dr through his TH-cam page #DRADIMA this are the following area of his specialization :
{1} STROKE
{2} DIABETES
{3} FIBROIDS
{4} HIV And AIDS
{5} ALS
{6} HEPATITIS ABC
{7} HSV-12 VIRUS
{8} CANCER
{9} FATTY LIVER
{10} HPV
{11} ASTHMA
{12} PREGNANCY PROBLEM
{13} LUPUS
I get rid of Lupus with the help of #dradima on TH-cam who use natural remedies to cure all types of diseases.❤
I get rid of Lupus with the help of #dradima on TH-cam who use natural remedies to cure all types of diseases.❤
Thank you for posting this, I have thought I have lupus for a while now but blood test come back negative, but I have all of these symptoms minus the nails, and seeing your video makes me want to fight for my health and more answers, so I appreciate you sharing your story and life journey.
I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….