My Lupus Diagnosis Story (Symptoms, Testing, Treatment)

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  • เผยแพร่เมื่อ 21 พ.ย. 2024

ความคิดเห็น • 814

  • @vivianamantilla1522
    @vivianamantilla1522 7 หลายเดือนก่อน +21

    I just got my diagnosis and I have lupus too. I'm with you, let's keep living because that's what matters!!

  • @lisakitzberger3931
    @lisakitzberger3931 9 หลายเดือนก่อน +42

    I was diagnosed with lupus in 96, I'm 60 now. I have my good days and bad. One of my first symptoms was my hands and finger tip, would turn purple color, had a fever feeling very sick and tired and throwing up, and stress, and the going out into the sun made me feel very sick.

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….

  • @sharonp.6505
    @sharonp.6505 11 หลายเดือนก่อน +24

    I was diagnosed with SLE over 25 years ago. I suffered for years with extreme fatigue, rashes all over my body, joint pain and weight gain. I was on plaquenil and prednisone for 7 years. I decided to try a very strict and clean gluten free diet. I quickly lost over 70lbs over the course of a year finally came off the prednisone. My rheumatologist told me that I had the highest CRP he had ever seen at my time of diagnosis. After a couple of years in remission I told him I was done with the plaquenil. He advised against it and said "you'll be back". That was over 20 years ago and I've never had a flare as long as I am diligent about keeping any traces of gluten out of my diet. I'm one of the lucky ones to have found my personal trigger to my autoimmune disease.

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊
      😊

  • @JenniferV-z8x
    @JenniferV-z8x 8 หลายเดือนก่อน +18

    Thank you for doing this video! I am 71 and got diagnosed with Lupus the end of last year. I know now that I have had it a lot longer. Your video was right on! Be blessed Jen

    • @rennie823
      @rennie823 5 หลายเดือนก่อน

      Same here!!! Excepting, im 72.

  • @jilljensenliving
    @jilljensenliving 10 หลายเดือนก่อน +24

    Thank you for sharing your journey. I'm an RN who has not yet been formally diagnosed. My ANA doubled after Covid. I've got EBV, Hashimotos plus Sjogrens. It's been coming on for years. Getting Covid really made things worse. Having a good attitude and knowing it will pass is helpful. I enjoy every good day! Reducing stress and eating well makes a big difference. I wish you a beautiful, long and healhy life! You are not alone. I live everyday to the fullest when I can. It's not who we are, it's something we have. ❤

    • @LittleOne968
      @LittleOne968 9 หลายเดือนก่อน +1

      I hate that the AI issues come in pairs plus some. Hang in there. It’s really hard having a chronic illness.

  • @kiwimitts2
    @kiwimitts2 ปีที่แล้ว +34

    Great summary of this complex disease. I’ve had SLE for 17 years and am currently in my 6th year of chemo to suppress my overactive immune system. I think it’s essential that you tell yourself daily that you are going to continue to live a full and normal life. Not optional. The mind is so powerful that it can convince the body. Sending anyone dealing with lupus love and strength!

    • @dominqueedwards8932
      @dominqueedwards8932 ปีที่แล้ว +1

      May God be with you through your treatments. My sister has Lupus and has recently had to undergo 6 months of chemo treatment to put it in remission.

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

  • @ChaiLatte13
    @ChaiLatte13 ปีที่แล้ว +151

    Young, pretty women are very often dismissed as being anxious, hysterical or under stress instead of doctors actually taking them serious. There's a long history of this mistreatment and is a systemic issue in medicine. I'm glad that they kept running tests on you. My mom's best friend has lupus. It has caused her a lot of joint issues over the years and has some of the more serious issues with it now.

    • @JessicaLivingOnPurpose
      @JessicaLivingOnPurpose ปีที่แล้ว +5

      I have experienced this very thing.

    • @casperinsight3524
      @casperinsight3524 8 หลายเดือนก่อน +5

      Young bright & attractive women are also often misdiagnosed as being depressed and prescribed antidepressants instead of getting their Thyroid or hormones checked.
      Hashimoto's is so under diagnosed and overlooked but on the rise in the past decade.
      Hormone levels need to be checked in women as young as 30 these days as more and more women are going into early onset perimenopause and early onset menopause or medically induced menopause.
      Hopefully more doctors will become more proactive and aware than reactive and dismissive.
      Prayers for a proper diagnosis and appropriate treatment to resolve all issues. Prayers for consistent daily energy so we can function day to day to lead a productive life. Prayers for Improved health care tests to reduce long term suffering and misdiagnosis 🙏🏼🎯🤓

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊😊

    • @chikindonkee
      @chikindonkee 4 หลายเดือนก่อน +1

      Honestly, doctors will do this to everyone regardless of appearances.

    • @jaysteve4442
      @jaysteve4442 4 หลายเดือนก่อน +4

      Men too. I’m a man. 46 now but got sick at 45. I ran marathons, worked out daily, present well, etc. The drs would literally look at me & say “you’re fine,” it’ll go away…it’s a virus or simply unexplainable. Despite test results that kept saying it was autoimmune. I had to go over their heads & get a new rheumatologist who diagnosed me within 1 appt & 1 round of bloodwork. I think she saved my life. I was incredibly sick. Couldn’t walk. Couldn’t use my hands. It was unbearable. Drs need to f’n listen to patients & not be so stubborn & dogmatic.

  • @kelleysigler9759
    @kelleysigler9759 ปีที่แล้ว +69

    I'm so sorry. I also have Lupus as well as 4 other autoimmune diseases and let me tell you it is rough. My applause to you for making your life as happy and full as you can!! Your a great inspiration.

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️

    • @anthonyleon1
      @anthonyleon1 ปีที่แล้ว +2

      Lupus ain't no joke. I get picked on for being a man and having it.. good thing I have a sense of humor

    • @simonthrane8480
      @simonthrane8480 8 หลายเดือนก่อน

      Sounds like you eat food that givs you this! you should start carnevor and get MWO tratment

    • @Moonlight-ov2rq
      @Moonlight-ov2rq 2 หลายเดือนก่อน

      I am shocked 😮. Are you serious ? Eating meat makes my condition worse. I stared a vegetarian system, eating vegetables, fruits and fish only. I think l get somehow better. So what about you?​@@simonthrane8480

  • @donnamallard1962
    @donnamallard1962 ปีที่แล้ว +52

    My sister developed SLE in her senior year of pharmacy college. She and her boyfriend were very serious, talked of opening a pharmacy together, planned their life. And one day, right before their senior (5th) year of college, he dumped her. No reason but "I just don't think I really love you." Huh. Well, they had planned all their classes together, etc. and my sister had to endure seeing him every day for that whole last year. To say she was stressed was an understatement, but my family and I are certain that stress caused her lupus to start. So, Michel, yes, I truly believe your bad marriage was your trigger. It's amazing what happens to a body under such extreme stress. And I will pass along something else we found out with my sister's lupus- she passed it on to her daughter. My sister did find love and got married and waited until she was off of meds and everything was good for her health before getting pregnant. But the pregnancy took its toll on her health and she was bedridden for the last 2 months of her pregnancy. Her daughter was a preemie (3 lbs.!) but thrived until she turned 13, and then developed the same symptoms as my sister. It was devastating. My niece is now 37 and deals daily with her symptoms, fatigue being the most prevalent. We don't know how long my sister would have survived with SLE, as she was killed in a car accident on the way to Philadelphia for a lupus doctor visit for my niece. But her RA and kidney damage from SLE had taken such a toll on her by that point. She was only 47.
    I wish you healing and strength as you go through your lupus journey. As I tell my niece, take care of yourself, rest, try to keep big stressors at bay, and hopefully, you can live with lupus! 🧡🧡

    • @christineg6123
      @christineg6123 ปีที่แล้ว +6

      I'm so sorry for your loss. I also lost my sister in a tragic way, she was hiking in the mountains, slipped and fell off a cliff. She was only 41. The traumatic grief I felt losing my sister was unbearable.

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +8

      Thank you for sharing your and your sisters story. I am so sorry for your loss Donna. Sending lots of love to you and your niece!! 🤍🤍🫶🏼

    • @donnamallard1962
      @donnamallard1962 ปีที่แล้ว +3

      @@MichelJanse thank you so very much! Prayers to you for strength and healing!

    • @donnamallard1962
      @donnamallard1962 ปีที่แล้ว +3

      @@christineg6123 traumatic is THE word for losing a sister, isn't it? Even after so many years of her being gone, I grieve the loss every day. Prayers to you, Christine!

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases❤

  • @loren3160
    @loren3160 ปีที่แล้ว +9

    Thank you dear for explaining lupus. I'm 72 and just found out from the doctor I have this. God bless you and your family dear sweet girl ✝️🙏❤️😇

  • @Clovergirl7934
    @Clovergirl7934 ปีที่แล้ว +419

    I was in a marriage that had the same symptoms as you described in yours. I am a Christian and was determined to keep my marriage intact. After years of struggling, forgiving, trying again, and much much praying over it, I heard the Lord say to get out, I did all I could and to give it over to him. Six months later, I was diagnosed with stage four Non-Hodgkins Lymphoma. I was given an 80% survival rate. After one failed round of chemotherapy and then a bone marrow transplant, I made it! I absolutely KNOW that your mental and emotional health can and does lead to illness. I have completely changed my emotional stability and outlook and will never let myself be in that situation again. You need to protect yourself Michel and I hope you always do going forward. Love yourself first!

    • @Joy-zf6cs
      @Joy-zf6cs ปีที่แล้ว +20

      You are so right about your emotional stresses causing so many physical ailments. Wishing you well with continued good health. Thank you for reminding people to care for themselves by alleviating toxic situations as much as possible.

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +35

      Thank you for sharing your story friend!! I am so sorry you had to go through that!! I am glad to hear that you made it!!! Protect your peace friend!! 🫶🏼🤍🤍🥰

    • @blueseptember2174
      @blueseptember2174 ปีที่แล้ว +3

      Yes my eyebrow turned white(yes. Singular. Eyebrow.🤦‍♀️). The stress did a number ugh.

    • @Missy182
      @Missy182 ปีที่แล้ว +4

      You had such great doctors & an efficient team around you

    • @elshadayaredo
      @elshadayaredo ปีที่แล้ว +9

      Your are right, same happened to me- fighting tooth and nail for my marriage until I had no chance- and also got sick- not to that extent, but I can testify that this is true! emotional/mental turmoil can manifest into physical ailment

  • @marykeele2723
    @marykeele2723 8 หลายเดือนก่อน +2

    Thank you, you have helped multi generations. My family is Irish /German autoimmune issues since I was a child. Now 65. All 4 of my children too. You are singing our song. ❤

  • @aleximarie4300
    @aleximarie4300 ปีที่แล้ว +120

    Unresolved trauma, emotional suppression, not dealing and healing from emotions is also another reason autoimmune diseases appear, research is being done and findings do show that our emotions, if not released stay trapped in our bodies and causes problems and illnesses.

    • @jessicanilsson5941
      @jessicanilsson5941 7 หลายเดือนก่อน

      So it also to calm nervous system

    • @jessicanilsson5941
      @jessicanilsson5941 7 หลายเดือนก่อน +3

      So if You not express feelings like greif its a problem ?

    • @jessicaclifton6829
      @jessicaclifton6829 7 หลายเดือนก่อน

      🤔

    • @Brisun
      @Brisun 6 หลายเดือนก่อน +1

      It’s better to cry it out than hold it in

    • @ninetailskwami
      @ninetailskwami 6 หลายเดือนก่อน

      @@jessicanilsson5941yes, my father didn't deal with his grief and he developed hand tremors so bad he couldn't work anymore

  • @kellylowe6039
    @kellylowe6039 ปีที่แล้ว +9

    I also have Lupus, Sjogrens , OA and Osteoporosis I've been on Plaquinal and get Benlysta infusions every month for the last 10 yrs I wouldn't wish this disease on anyone it's a constant battle everyday but I'm a mother and grandmother and will keep going for my family

  • @daniellezoltak6375
    @daniellezoltak6375 9 หลายเดือนก่อน +5

    I had the exact same rash and it took so long to get diagnosed! I’ve never seen anyone else with the same rash, thank you for sharing this ❤ it makes me feel less alone in this journey

  • @brittneyvetten1957
    @brittneyvetten1957 ปีที่แล้ว +116

    Fellow AI issue girly.
    What frustrates me is that doctors just want to follow textbook cases, and when you don't meet those exact criteria, they eliminate that possibility causes diagnoses to happen years later or even misdiagnosed. This happened to me for 4 years before finally getting my Hashimotos diagnosis. Every doctor just told me it's anxiety, but I had to actually do research myself. I tracked every symptom and issue and finally had a doctor listen. I've since then been diagnosed with Rheumatoid Arthritis, hypothyroidism, psoriasis, and solar urticaria. I've been suspecting I've had lupus, but all my labs show otherwise. I hate literally praying for a diagnosis just to prove I'm not crazy and that something is wrong. I'm miserable most days, and I just want to feel better, and having to beg doctors for answers is so demoralizing.

    • @kntryme1
      @kntryme1 ปีที่แล้ว +13

      Brittany…your story mirrors mine EXACTLY, accept I’d been going to doctor after doctor for over 8 years. Hashimoto’s almost killed me before they finally acknowledged I had it and the only option was to remove my thyroid. Now I’m on the same roller coaster ride, doctor after doctor, major symptom after major symptom, my life totally disrupted, with so many doctors saying “sounds like Lupus” but negative ANA so it can’t be 😣. So…even though they can SEE my symptoms and my blood work shows things are off…I get treated like I’m attention seeking and crazy. I’m so fatigued, tired of hurting, sick of being sick…and still no diagnosis or help!
      I feel your pain and wish these darn doctors could live in our bodies for a week and experience our suffering. It’d be hard to turn a blind eye to then, wouldn’t it?!

    • @ilovemochi35
      @ilovemochi35 ปีที่แล้ว

      @@kntryme1 every doctor i meet diagnose me with lupus but my ANA are negative and they think i'm just depressed and anxious.. i dont trust them anymore now

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @MK-ex4ep
      @MK-ex4ep ปีที่แล้ว

      With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.

  • @Volley6Ball7Lover
    @Volley6Ball7Lover ปีที่แล้ว +27

    I have SLE as well, and got diagnosed at 21 too. You've got this! You're doing all the right things. I personally treat my lupus with Plaquenil, Gabapentin for neuropathy pain, meloxicam for swelling. If I go into a bad flare up, I take prendisone (warning this does effect your mental state, I get pretty anxious on it, so consider taking a half a pack if you can instead of full!). The most helpful piece of advice I could give anyone with SLE is to rest when you need to! And create boundaries to keep your stress low. Life is too precious to be hurting so much! Hugs to all the lupus warriors out there!

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @she-sheshares9924
      @she-sheshares9924 ปีที่แล้ว

      Be careful with prednisone it caused me to have AN now I need hip surgery

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

    • @michellejames5953
      @michellejames5953 8 หลายเดือนก่อน

      You don’t have to take that 21 pack as directed. I just took as little as needed

  • @sarahburton2777
    @sarahburton2777 ปีที่แล้ว +37

    I just recently (one month ago) started oral chemo for Lupus, Late Stage Lyme and Sjogren's. It's kind of wreaking havoc. I don't know yet whether it's going to help. God, I hope so! I don't want this to be in vain. I'm miserable with and without the meds. The jury is still out.
    I pray for you and your health. You're a beautiful woman; inside and out. I know exactly how miserable you can feel mentally and physically. I don't want it for anyone.
    💚

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +3

      Sarah, thank you for sharing your story!! I am sorry that you are having to go through this!! Sending you my love and keeping you in my prayers as well!! 🤍🤍

    • @kathya9522
      @kathya9522 ปีที่แล้ว +4

      Sarah, I pray the oral chemo helps you. About 40 years ago when chemo was first being used to suppress the immune system, I took it via IV off and on over a period of 10 years. Then I received oral chemo for the next 17 years. I went to a clinic for the IV treatments where I was the only one who did not have cancer (Lupus had caused inflammation of the blood vessels in my brain.) My heart went out to those other extremely sick people. I was getting a much milder dose than the others. I lost some hair but it was not noticeable, and I had no nausea. I just had extreme fatigue. While I sat there with the toxic chemicals going into my veins, I would pray, meditate, do deep breathing exercises, and repeat affirmations silently. I think my positive frame of mine helped me more than anything else. By the time I started the oral treatment, my body was so use to stronger chemicals that I had no bad side effects. I encourage you to stay positive so you don’t stress out, stay hydrated, get plenty of rest, do some form of exercise (I walk), and eat healthy. I am praying for you. (A happy side effect for me from the IV treatments: I lost all the hair from my underarms and it never grew back!)

    • @stefaniedoyle6172
      @stefaniedoyle6172 ปีที่แล้ว +2

      Curious which doctor you see…. I feel I have Lymes always as well as lupus

    • @sarahburton2777
      @sarahburton2777 ปีที่แล้ว +2

      @@MichelJanse thanks, love! This life of illnesses, as you well know, is difficult. It makes it a bit easier, when we know that we aren't alone. I'm not saying that I want anyone else to be sick. I'm just glad there is someone in the world that understands.
      Btw... you are SO right about the Raynaud's! I have cried many nights from my fingers and toes burning from being so cold. I have discovered, though, that heated gloves or hand warmers inside of gloves/socks really helps with my hands and feet. Maybe it would help you also. It's worth a shot.
      Do you have the opposite problem with your hands/feet getting too hot? I do. One symptom that my doctors can't figure out is that my hands will get so hot that we can literally watch blisters forming. I have to put my hands under cold water to stop the blisters from bursting. We don't understand it.

    • @sarahburton2777
      @sarahburton2777 ปีที่แล้ว

      @@kathya9522 Oh my goodness! I was in the process of writing you this long response. I accidentally clicked on something, and it all disappeared. Nooooo! lol
      Anyway, the main points were...
      I've been on blood thinners for 13 years. It made me lose all of the hair on my legs. I'm definitely not mad about that. lol
      I'm typically pretty positive. Monday is my chemo day. So I was pretty miserable while writing my original post. I try to maintain a fun and loving household for my children. They understand that I'm sick and that some days I can't be fun or have much noise in the house On most days, though, we're usually goofing around a lot. I just want them to have good memories of their childhoods. This isn't easy, though. I'm in pain ALL of the time. The hydroxychloroquine, gabapentin and hydrocodone help some. My pain level goes down, but I'm never out of pain. I refuse to allow it to take my life, though.
      God is my strength. My help comes from Him.
      Thank you for your kind words. How are you doing now?

  • @luciacarralarmella2666
    @luciacarralarmella2666 7 หลายเดือนก่อน +4

    I have been negative ANA for so many years too!!! And as u said, it doesn't mean we don't have it. This is my 20th yr with lupus and am still learning how to cope with it. You really are a star!!!!! Thanx!!! Everyhting happens for a reason.... EVERYTHING.... Thanks for opening up!!!! You made me think about so many points.... Merciiii Michel!!!!!

  • @Btrfylvr8
    @Btrfylvr8 8 หลายเดือนก่อน +1

    I was diagnosed with Lupus in 1998, partially because of a positive ANA. Since then I have been told I do not have Lupus because my ANA is negative, so they took me off of plaquinel. I have fought the last 2 years to try and get help. I also have Hashimoto’s, Fibromyalgia, and now they are looking at MS. Thank you so much for sharing ❤

  • @dovesatdawn
    @dovesatdawn ปีที่แล้ว +15

    Thank you for sharing your journey with SLE. I was diagnosed in November and it was a really incredibly quick diagnosis. For me I struggled at first to believe I had it, then trying to understand What this disease is and does to the body, and finally trying to come to terms with how my life was going to be different than what I had expected. I am currently going through a flare up and hearing other people’s stories like yours is really helping me to cope and see a light at the end of the tunnel 🙏

    • @amarshmuseconcepta6197
      @amarshmuseconcepta6197 ปีที่แล้ว +2

      🙏💜

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊

  • @jaanaprall9961
    @jaanaprall9961 ปีที่แล้ว +24

    Thanks so much for sharing your story. I just got out of an abusive marriage and have had a lot of weird inflammatory symptoms and am hoping I have not developed an autoimmune disease as a result of all the stress. Working on healing and stress reduction. It has been so awesome to watch your videos and follow your story of setting up your own life and healing. I moved to a different continent to heal and have felt very alone at times. I look forward to your videos every week and find them supportive and inspiring!

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +2

      I am truly so glad you are here friend!! I am proud of you for taking care of your body!! Sending my love on the hard days and the ones in between!!🤍🤍🥰

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @MK-ex4ep
      @MK-ex4ep ปีที่แล้ว

      With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.

    • @muirgirl
      @muirgirl ปีที่แล้ว

      Please make sure you test for syphilis!

  • @wendycalvert5837
    @wendycalvert5837 10 หลายเดือนก่อน +5

    Thank you for talking about your journey to diagnosis. It makes total sense to me now with what has been going on with me. I recently got some blood work done and one of the tests came back suggesting lupus. As I listen to your story everything that has been going on with me throughout the years now makes sense. My old doctor just kept saying oh its this or it is that but never did the test for lupus. Funny that I wondering if it was arthritis in a joint now that I am older and my new doctor runs this new test that came back positive for possible lupus. I just want to let you know that you are amazing for putting this video out here so other people can learn about lupus and the different symptoms it may cause.

  • @ilanam3398
    @ilanam3398 11 หลายเดือนก่อน +3

    This video was so helpful! I have an appointment with a rheumatologist for the first time in February. I've been experiencing a lot of weird symptoms the past few years. GI issues, seizure like episodes, nerve tingling and twitches, small rash like circles that would pop up throughout my body, constant fatigue, swollen lymph nodes in my neck and sore throat that comes and goes and usually have a low grade fever. I went to a neurologist and she said it was just stress and didn't want to help me. But about a year ago it got a lot worse. I was feeling dizzy all the time, severe headaches, and was having episodes where I was fainting and collapsing. This lasted a few months and it got better for a couple months. Then I got covid and the fainting spells started again. Then I started losing vision in the dark in my right eye. I've been to a neurologist and cardiologist. All of them looked at me like I was crazy. They ran a few tests like an echocardiogram, EEG and MRI and said everything is normal. The eye doctor said he didn't have any explanation for my vision problems. I have always had a slight redness on my cheeks but I just figured it was some sort of rosacea but then was wondering if it could be a malar rash. That made me start looking into Lupus. I'm kind of at my wits end and a rheumatologist is my last effort to see what's going on! Any advice if this sounds like Lupus or maybe something else would be really helpful! I kind of feel like I'm maybe just crazy and won't ever find a diagnosis!

    • @Shavelle9691
      @Shavelle9691 11 หลายเดือนก่อน +1

      Your issues are my issues to a T. I’m hoping we can both get answers soon. ❤

    • @marysellers2806
      @marysellers2806 11 หลายเดือนก่อน

      Mine are similar as well. I have Lupus SLE, RA and Sjogrens syndrome. My lymph nodes are always swollen in my neck. I found out last week I have internal shingles in my head and neck on the left side. My vision is worse and I'm loosing hearing as well on the left side. I also have lost my voice nearly every day for 5 years. This is absolutely a horrible disease 😢

  • @roxannefuentez8779
    @roxannefuentez8779 ปีที่แล้ว +3

    Thank you I just found out lupus is in my life. I kinda had to bully my doctor to have my autoimmune system checked. I have had red bumps but inside my skin my stomach has issues and my gallbladder removed a hysterectomy swelling in my legs and my fingers and toes lock up hands get tingly no matter what I do. Can’t sleep well was going to doctors and being told do this do that. I had to put my foot down and requested he check my autoimmune system. Finally saw a specialist and he walked me through why I was feeling like this. He says I need chemotherapy to get my body to come back to put it in remission than take medication that will keep it from flaring up. I really believe the doctors thought I was crazy but my body has been acting up so bad.

  • @joanborger702
    @joanborger702 ปีที่แล้ว +3

    Hi, Michel. I am a retired RN. You described your symptoms very well. I have Sjogren's, and probably lupus. I have so many of the same symptoms. Just wanted to say, I think your channel, and upbeat attitude are wonderful. I subscribed other spot. Keep doing what you are doing, you are an inspiration.

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊

  • @kinderjenni
    @kinderjenni ปีที่แล้ว +1

    Loved this video. I am 57 with lupus… officially diagnosed since 55ish.. I also take Plaquenil. I hope you will continue sharing content like this.

  • @brandylittle9186
    @brandylittle9186 ปีที่แล้ว +7

    It’s so cool hearing someone talk about my work. I work in pathology. I’m glad you finally got diagnosed!

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

  • @tahliah6691
    @tahliah6691 7 หลายเดือนก่อน +1

    Stress is the main reason for alot of illnesses in life… self love self care… learning to say NO is an essential part of life…. Putting yourself first… spending time out in nature…. Pamper yourself mentally and physically….❤ a balanced diet with less carbs more salads and veg with meat kind…. Keto ….plenty of water 💦 Raynauds is a stress related illness too….

  • @megancooper6130
    @megancooper6130 ปีที่แล้ว +9

    Thank you for sharing your story! I am a FNP student and I am so shocked to hear your ANA was negative! One of the big things we learn about Lupus is that an ANA is extremely sensitive for lupus -- meaning that if the test comes back negative you can be close to 100% guaranteed that someone does not have lupus, but it is not very specific -- meaning that if the ANA was positive it does not confirm Lupus on it's own. I'm sorry you didn't get the treatment you needed in time! Your video is a good reminder to "treat the patient not the numbers", you definitely had classic Lupus/autoimmune symptoms.

    • @MoniPalo
      @MoniPalo 7 หลายเดือนก่อน

      A lot of times people with Lupus will only have a positive ANA during a flare when they have more inflammation. My mom had Lupus, one of my best friends has it, and they suspect that I may have it as well and we have all had several positive and negative ANA tests.

    • @audreycollins9841
      @audreycollins9841 2 หลายเดือนก่อน +1

      I have lupus, sjogrens, hashimotos and psoriasis and sero negative for autoimmune.

  • @Queenie1313
    @Queenie1313 ปีที่แล้ว +5

    I was diagnosed with lupus and Mctd today. I’m 58. I do have RA. I had to see all the doctors and will start on Plaquanil and prednisone. Interesting about your nails. My toenails have been falling off and my tooth fell out for no reason at all. I don’t have mouth sores yet, but everything else. My rash looks like 3rd degree burns, bright reddish purple. I too was severely stressed out 3 months ago when this all started. I also was a sickly child with severe asthma and low birth weight. Thank you for this video!

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

    • @jaymac7180
      @jaymac7180 ปีที่แล้ว +1

      Research vitamin D or coimbra protocol for autoimmune conditions, best wishes

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊😊

  • @ElegantSkul
    @ElegantSkul ปีที่แล้ว +8

    Hi I’m 16 and was diagnosed with lupus in may of last year I was 15 when I was diagnosed and I am so lucky that we caught it so early it’s very hard living with lupus my lupus is uhm I think SLE because my joints hurt a lot more than usual I had multiple per-seizures (Note: I HATE needles)
    So I was very unhappy that my bloodwork came back and they saw lupus which was just A lot when you get diagnosed with lupus Is really hard to live with it can attack everything it was a lot
    I go to the doctors to do an IV
    I’m so glad to see more people talking about Lupus since it’s a very rare disease that can effect you in so many ways

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

    • @Wintersnow889
      @Wintersnow889 ปีที่แล้ว

      May god heal your body. amen

  • @lauradakers6052
    @lauradakers6052 11 หลายเดือนก่อน +1

    I’m going through this right now. They’re leaning toward Lupus even though I had a negative ANA. I also have chronic Lyme disease that was recently diagnosed. I’m 41 and have never been this miserable. It started after I got Covid the first time 3 years ago. I’m so glad I found this video.

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊

  • @KellyMaureen
    @KellyMaureen ปีที่แล้ว +27

    I had the same symptoms. I was diagnosed a couple years ago. I went from stage 4 lupus nephritis to thriving 💜

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @marylinda4878
      @marylinda4878 ปีที่แล้ว

      My God has used a traditional healer #dradima to cure my cold sore this has be my Joy since i was cured i really want to thank you Doc for your good work if ( DR ADIMA) can cure my 18 years lupus he can cure whatsoever ailments you are battling with today

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @marymolloy4396
      @marymolloy4396 ปีที่แล้ว +3

      How did u fix it

    • @shanimuscat5910
      @shanimuscat5910 ปีที่แล้ว +2

      Hi Kelly, My son was diagnosed the same as you Stage 4 lupus nephritis can you please tell me what you did to get to thriving 🙏

  • @jenniferfarr1497
    @jenniferfarr1497 ปีที่แล้ว +15

    Literally told by my dermatologist that I could have lupus on Friday & am so glad you posted this video

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @MK-ex4ep
      @MK-ex4ep ปีที่แล้ว

      With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️

  • @moniquevanderziel9932
    @moniquevanderziel9932 ปีที่แล้ว +8

    Thank you for posting this! I was officially diagnosed with Lupus within an hour of you posting this video. We are close in age (I'm 23), and it has been difficult feeling this bad at my age. At times I get the feeling that others think I am just dramatic (especially since I have literally been told that many times). This video was exactly what I needed.
    PS. I've been a viewer for a long time, and I'm based in San Diego. I really appreciate the SD vlogs because I get to learn about cool spots in my area.

    • @thayerwilliams905
      @thayerwilliams905 ปีที่แล้ว

      I'm in my mid 30s. I didn't start getting my symptoms taken seriously until 2 years ago. It's VERY hard to find the right medical team. But once you do, you finally start getting answers. And answers are worth the work.
      I too was told by everyone my whole life nothing was wrong with me, I was being overly dramatic, I was trying to get attention, I was just a wimp, I was trying to get out of doing stuff I didn't like, there was nothing wrong with me.... even in my 20s I was being told this.
      I still don't have all my answers but I have meds that treat a lot of my symptoms, a few diagnosis, and a better quality of life, even though it's still not equal to that of normal peoples. But if you don't try, nothing changes. And I needed things to change.
      Good luck to you!

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

  • @Wendelien3
    @Wendelien3 ปีที่แล้ว +5

    You're so clear and eloquent in speaking about the illness and its symptoms. Thank you! Best wishes to you!🌷

  • @jcpenny2438
    @jcpenny2438 5 หลายเดือนก่อน +2

    It’s honestly kind of eerie that your video shows up on my feed and we have so much in common medically lol. I grew up with pretty severe asthma, then celiac disease, and autonomic nervous system issues-including Raynaud’s. I still have issues with my health, but your video puts me at ease knowing lupus has a genetic factor. It’s a constant fight to live “normally”, but things get better for us😊 thanks for the video!

  • @me-de6hl
    @me-de6hl 9 หลายเดือนก่อน +14

    My mother has lupus I remember that she was in a very stressful relationship so she couldn’t bear it.
    I’m now doing a research, the teacher asked us to talk about any kind of a disease and i chose to talk about this autoimmune disease.
    I really believe that every girl has a lupus is very strong.

  • @OHbabe574
    @OHbabe574 ปีที่แล้ว +19

    I was diagnosed with Lupus when I was 19. Treated for it for 25 years, then was told it’s not Lupus but RA. And then got diagnosed with MS. It’s been frustrating but my glass is always half full, and that has helped ALOT.

    • @outoftheklosset
      @outoftheklosset ปีที่แล้ว +2

      Woah! That seems really freaking stressful. I'm so sorry you experienced that stress and then your ms diagnosis. Sending you lots of love and support.❤💐

    • @OHbabe574
      @OHbabe574 ปีที่แล้ว +1

      @@outoftheklosset thank you! ♥️

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

    • @ashleygood4615
      @ashleygood4615 8 หลายเดือนก่อน +1

      I was diagnosed with MS almost 20 years ago and I unfortunately think I was misdiagnosed and it's lupus.

  • @bakesourdough23
    @bakesourdough23 ปีที่แล้ว +3

    Thank you so much for sharing your story ❤ I have lupus and thank God after suffering for years with joint pains, swallowing, raches, severe fatigue and many other symptoms 3 years ago I was diagnosed with lupus and my doctor help me so much definitely a lot of change in my lifestyle and medicine I take every night, I can finally say I feel like a million bucks 🙌🏼 God is good!

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +2

      Yay I am so glad to hear this!! 🎉🎉

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases❤

  • @cvrlislav
    @cvrlislav ปีที่แล้ว +12

    I also got diagnosed by my doctor with 'if it works on the symptoms then you have it' practice. Having an AI changed every aspect of my life - a lot of the doctors just don't take your symptoms seriously and you are basically left believing that you are imagining things. Getting out of the stressful situation literally saved my mental health, but I will, like you, have my health issues forever. Thank you for sharing your story!

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️

  • @AL9ATL
    @AL9ATL 5 หลายเดือนก่อน +1

    This is insane. I was diagnosed with lupus today and found this video trying to do research. Our stories are so similar. I had gastrointestinal problems from middle school on which resulted in an ulcerative colitis diagnosis early in college. After college, I was in engaged for a few years to someone who was physically abusive, which ultimately caused flare ups all the time that had me believing I was crazy or a hypochondriac. I left the situation a few months ago, which created an insanely stressful financial situation that I had to figure out quickly. The stress from that resulted in my hair beginning to fall out and my body became so sore and fatigued (along with random fevers) that I ended up bed-ridden for two weeks straight. I finally decided it was time to go to the doctor and today I got the call that it is in fact Lupus. Definitely grateful you posted this, it's great to have this knowledge before beginning my treatment process and to know that I'm not crazy AND not the only one going through this. Literally every symptom is exactly the same- even the rash is the same. Crazy!

  • @Brie2010ification
    @Brie2010ification 10 หลายเดือนก่อน +12

    When you said "my body was crying out for help" I felt that. I was also married and in a very toxic situation.
    You are not alone.

  • @ThePirateAngryEyes
    @ThePirateAngryEyes ปีที่แล้ว +8

    I am sure this video will help a lot of people who struggle with their health out there. You are such a loving person to have landed with such terrible health issues and your bravery in sharing your struggles are commendable. I thank you from the bottom of my hearth that you are here sharing your life and struggles with such openness and honesty ❤

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

  • @nicolaevans6478
    @nicolaevans6478 ปีที่แล้ว +6

    I’ve just been diagnosed with Sjögren s Syndrome so while different to Lupus still auto immune and makes a lot of sense now. The joint pain and fatigue are challenging and exercise is the best way to manage it. The dry eyes and mouth also need constant attention. Great to listen Michel as rest, being kind, calm and managing stress are the key to feeling better

    • @elisabethl.8331
      @elisabethl.8331 ปีที่แล้ว

      I'm curious, how do you manage to do exercise if you have so much fatigue? I have muscle weakness and don't know how to manage exercise

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

    • @Sym22-y4z
      @Sym22-y4z 6 หลายเดือนก่อน

      @@elisabethl.8331hey I have it n idk what medication your on but I got put on hydroxychloroquine 200mg every day n another 200 3 times a week n all my symptoms disappeared completely after about 4/5mnths of being on it n all side effects disappeared around that time too hope this helps

  • @betsybabf748
    @betsybabf748 ปีที่แล้ว +4

    You have an excellent attitude. That in itself will help you deal with anything.

  • @heatherchristian3588
    @heatherchristian3588 3 หลายเดือนก่อน

    I started getting really weird and awful symptoms in March of this year. I started having asthma flareups, after years of not having issues. I started having kind of scaly rash on the side of my neck, which actually started in December, and then was having what I have self diagnosed as eczema on my face. The last few weeks, I struggle with swallowing, horrific joint pain, muscle, weakness, and massive digestive issues. We are slowly ticking off things, but my primary care believes that I have an auto immune, likely lupus. I also had a negative ANA. I think that has influenced my ability to get the right specialist. I will finally get to see an immunologist in September. Hearing about your journey has really helped me. Thank you. If I come up positive for lupus, I am sure that I will look at more of your content. Thank you for being vulnerable to help those of us going through this journey.

  • @emilyvoss5114
    @emilyvoss5114 ปีที่แล้ว +13

    I've had a very similar experience and continue to not know what's going on. I also am negative on blood work and it makes everything so challenging. I'm currently diagnosed as seronegative rheumatoid arthritis but it's kind of just a place holder. It's really hard not to feel crazy most of the time. Like you I have had strange symptoms since I was a child including Raynaud's, random rashes, debilitating joint pain and fatigue etc. I actually have decided to change my career path and am applying to medical school with the hopes of becoming a Rheumatologist because I feel my own experience would be really valuable as a practitioner. Especially when it comes to feeling empathy for my patients. Thanks for sharing your experience!

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว

      Thank you for sharing your story Emily!! I hope you get some answers soon!!🫶🏼🫶🏼

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @marielabrasiliensepasa6017
      @marielabrasiliensepasa6017 ปีที่แล้ว

      For sure you have lupus. I'm the same and I was diagnosed a few weeks ago. Taking hidroxicloroquine all days to the rest of my life to try to not to have more severe symptoms.

  • @brandonrobishaw7606
    @brandonrobishaw7606 2 หลายเดือนก่อน

    Thank you so much for sharing.
    I recently learned someone I knew from high school many years ago passed away from Lupis.
    I wanted to know more and came across your channel.
    I hope and must believe she was supported by lovely caring people.

  • @lexmonet4458
    @lexmonet4458 ปีที่แล้ว +5

    Thanks for sharing Michel!
    A few years ago I was on a blood pressure medication that caused drug induced lupus. It was very painful. But after a year of being off it my symptoms subsided. Like you I have had a lot of health issues in my life and a very unhealthy marriage. My husband asked me for a divorce in December, but therapy and my church family is helping! You're faith and wisdom has been a huge encouragement for me ❤

    • @outoftheklosset
      @outoftheklosset ปีที่แล้ว +1

      I'm so sorry about your husband asking for a divorce. Sending you love and support.💐 * *hugs* *

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @awn8281
      @awn8281 7 หลายเดือนก่อน

      After reading your post I think my body also has drug induced lupus.
      I was on medicine for my thyroid Levethiroxine and when the doctor changed the medicine to Synthroid my nails got better. My bloodwork also came back negative.
      Hopefully, my hair will stop falling out. The hair issue started with covid.

  • @amandapietrzyk411
    @amandapietrzyk411 4 หลายเดือนก่อน +2

    I've been having chronic problems health problems for the longest it's gotten so bad I can hardly walk I gained so much weight because my legs hurt so bad everything hurts all the time with my skin is the worst feels like someone said you on fire every time you go outside I live in Phoenix Arizona when it's 114 on the average here thank you so much for making this video I figured out that I had lupus today after talking with my uncle he told me how he's allergic to the Sun the best thing he could ever told me cuz then I Googled it lo and behold all those doctors all these years can't figure it out it all made sense after I figured it out no I've been so depressed for so long I'm literally been telling people that I'm allergic to myself that's why this happens to me but I had no idea it was lupus to today

  • @Knonyobiz
    @Knonyobiz หลายเดือนก่อน

    Just got diagnosed with lupus. Thank you for sharing your story. We have similar ones. I’m glad I’m not alone and your story gives me strength.

  • @innabulatova4138
    @innabulatova4138 10 หลายเดือนก่อน +1

    Thank you for sharing. I am recently diagnosed with lupus. Just a few weeks now. I am also taking Plaquenil. I didn't know that nails were part of this thing too. I just have cracks on my thumbs on my hands, but I thought it was just a lack of vitamins. Your video was also inspiring as it is my first time when dealing with tests and doctors... It is comforting to know that I am not alone and people just deal with this and go on living their lives. Thank you for talking openly and sharing your story

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….

  • @abbeymarquess3740
    @abbeymarquess3740 ปีที่แล้ว +47

    I was just diagnosed with lupus. I’m seeing a kidney doc tomorrow to see if there is organ involvement. My stressful job definitely triggered it but my mom has lupus. I’ve been feeling pretty lonely so this video was very helpful!!

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +8

      Praying you get some answers friend!! Sending you my love!! I am truly so glad you are apart of this community!!🫶🏼🫶🏼

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of #dradima on TH-cam who use natural remedies to cure all types of diseases.❤

    • @MK-ex4ep
      @MK-ex4ep ปีที่แล้ว

      With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.

    • @she-sheshares9924
      @she-sheshares9924 ปีที่แล้ว +1

      I feel alone too people don’t understand what I go through I lost friends family because people think I cancel for dumb reasons or that I’m exaggerating even when I had surgery and had to have a tumor removed from my left side of my neck they expected me to just hop up and get over it

  • @daleadoherty7000
    @daleadoherty7000 ปีที่แล้ว +5

    I'm so sorry you were going through that. I pray you will stay healthy and enjoy your wonderful life!!

    • @marylinda4878
      @marylinda4878 ปีที่แล้ว

      My God has used a traditional healer #dradima to cure my cold sore this has be my Joy since i was cured i really want to thank you Doc for your good work if ( DR ADIMA) can cure my 18 years lupus he can cure whatsoever ailments you are battling with today

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @MK-ex4ep
      @MK-ex4ep ปีที่แล้ว

      With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊

  • @lyudmilalogvin3331
    @lyudmilalogvin3331 8 วันที่ผ่านมา

    I love this Video and how Easy You provide information. Direct, Informative, Fun without wasting time on "irrelevance". You have a way with Words...

  • @samanthaadams2576
    @samanthaadams2576 ปีที่แล้ว +3

    Oh, sweetie I am so sorry.. I’m happy it seems you have things more under control and your in a healthier mental space ❤ praying for your full healing

  • @magdat.6482
    @magdat.6482 3 หลายเดือนก่อน

    Thank you so much. I cannot tell you how much your video helped. My mum passed from Lupus due to slow diagnosis and poor treatment. Id love to do an episode with you where i explain what happened and share how to avoid what happened to her. A big thank you again for sharing your story.

  • @gwenivre
    @gwenivre ปีที่แล้ว +1

    When I was 18 I was diagnosed as a type 1 diabetic. I also have celiacs. When I was 29 I lost my leg to APS which is a blood clot disorder associated with lupus. At 35 my lupus started attacking my heart which caused parrocoditis. Remember prednisone is a live today pay tomorrow medication which they tend to raise quickly and take you back down slowly. It causes cataracts. I've also been on immunosuppressors until I got cancer. I am glad that you figured out what helps you. I wake up everyday thankful that I'm not in a flair.

  • @somiraju
    @somiraju 6 หลายเดือนก่อน +1

    Sorry to hear you are battling health issues. You are not in this alone. I have 3 AI issues and strict diet, medications , therapy, surgery … nothing has helped. This seems like a daily battle. But I am extremely resilient and believe everyday is a new day. I wish you the best.

  • @JennyErickson-q5q
    @JennyErickson-q5q 2 หลายเดือนก่อน

    I swear your my twin. Negative ana here too. My toenails fall off. Plop. Just off. Just dx with sle but still uncertain. Stress is my trigger too. I've been flared so long... Im exhausted. Thank you for sharing, especially since your story is oddly just like mine. Like incredibly similar. Stay smiling. ❤

  • @donnagibby2943
    @donnagibby2943 ปีที่แล้ว +3

    Thank you so much for this video. I have lupus and was just diagnosed with celiac and your the only one I’ve found with both. I totally think stress has caused so much of my health issues as well as my early hysterectomy. So much information I needed💕💕

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊

  • @RedWaveTsunami
    @RedWaveTsunami ปีที่แล้ว +20

    My grandad had skin lupus. It looked so painful when he had flares:( I have no medical problems but I feel deeply for people that do. Thank you for being real about it 🙏🏻

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @MK-ex4ep
      @MK-ex4ep ปีที่แล้ว

      With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️

  • @paigewaites6612
    @paigewaites6612 ปีที่แล้ว +13

    Both my mum and sister have lupus (which lends to the studies that it’s genetic) with chronic migraines and severe joint pain as their main symptoms. It’s been a very difficult journey with many highs and lows, but both of them try and live life to the full whilst also listening to their limitations. I hope you can find a healthy balance in your lifestyle soon, and don’t be scared if you have to change your schedule multiple times over the weeks, months or years to keep making sure it’s working for what your body needs at that time. ❤

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

  • @tandyking5381
    @tandyking5381 ปีที่แล้ว +4

    I am in the process of getting a lupus diagnosis. My ANA was positive tiger was 1:40 and pattern is speckled and nuclear. My neurologist is going to do a double strand dna test not sure what else. I’m have pain all over when stressed or do something out of the ordinary. Memory issues many other symptoms. I’m just praying to find out why I have been like this for years. I have been to Dr after dr and finally found one who was willing to take some time to find out my problem.

    • @marylinda4878
      @marylinda4878 ปีที่แล้ว

      My God has used a traditional healer #dradima to cure my cold sore this has be my Joy since i was cured i really want to thank you Doc for your good work if ( DR ADIMA) can cure my 18 years lupus he can cure whatsoever ailments you are battling with today

  • @Ulist2G
    @Ulist2G ปีที่แล้ว +5

    I commend you for being so open to help educate us on the disease. Your perspective in what you have to go through is very courageous.

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

  • @eatblogglove3912
    @eatblogglove3912 ปีที่แล้ว +2

    Great video! ❤ I had a male colleague who was diagnosed with Lupus and he also had fingernail problems (they also fell off) but with medication he got better and was able to continue life as normal as a father of five! ❤

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

  • @hinami2480
    @hinami2480 2 หลายเดือนก่อน

    i also have lupus additionally with aiha, which was diagnosed when i was 15. i still feel stressed and i dont know how to cope up with it. i literally cant even go to school for days, its kinda sickening for me. these type of vlogs help me a lot and motivate me to stay positively. thankyou for posting!!

  • @michellemitchell114
    @michellemitchell114 ปีที่แล้ว +2

    Hi I’m so glad you got a diagnosis. My doctors have just basically blow me off for the past 12 years since my SLE test is negative but my ANA is positive and speckled. I have the same nail thing if I grow my nails out but they don’t lift off the nail bed. I have the lupus butterfly on my face that started out small and now takes up my nose and cheeks. I have horrible flares and moderate amounts of blood in my urine but thankfully no huge kidney damage. I had an amazing doctor at one point at Duke that put me to n plaquenil for years and it helped!! My doctor left Duke and my new doctor took me off my meds after years. The worst part about that was I had cervical spine surgery and my symptoms are now so severe in my nervous system it’s unbearable. My pain is so bad throughout my body with nerve pain from all my nervous systems. I’m on meds and it does help until I’m flaring. Then the pain immobilizes me. I pray one day I will get a proper diagnosis but after all this time I’m doubtful. Mine started with my lungs in my childhood also. I had lung infections all the time. I also had stomach problems so I was little. I’m gluten intolerant since my blood celiac test was negative. Lupus sucks. I’ve also been told I have Multiple Sclerosis. I’ve been told by my doctor and my neuro ophthalmologist the I had Sjorgen’s Syndrome. My biopsy showed nothing. My blood only had a few antibodies and not enough for a positive test. I continue to move forward everyday but it gets physical hard a lot now without my plaquenil. I’ve been trying for the past 3 years to get into a Rheumatologist in my area with no luck. They stay so busy and they tell me I’m not a first priority. 😢

    • @melissabroughton2681
      @melissabroughton2681 2 หลายเดือนก่อน +1

      Hey, I'm so sorry you are going through all that. I'm also a patient at Duke and I had to beg my doctors to take me serious. My blood work wasn't showing anything but my body was in so much pain. I had dry eye just not enough for sjogrens diagnosis so I asked my ENT provider to do a lip biopsy and thats where it confirmed that I had Sjogrens. He then forwarded my results to a rheumatolgist to go over. But let me tell you I was the sickest I've ever been in my life. I had lost 30 pounds without trying, started having seizures and then diagnosed with IIH, RTA, and Small airway disease. Then after the confirmation of the lip biopsy my labs confirmed sjogrens with positive ssb and postive rnp. Don't give up. Switch doctors. I left duke Rheumatology and now see Dr. SHANAHAN in Durham. He's been great so far. I hope you get the help you need soon.

    • @michellemitchell114
      @michellemitchell114 หลายเดือนก่อน

      @@melissabroughton2681 Thank you 😊

  • @snowarist
    @snowarist 11 หลายเดือนก่อน +1

    Thank you so much for sharing your experience. Very well detailed and helps for many sufferers to be able to pinpoint what's ailing them. My wife is a victim and we are struggling with the diagnosis. Thanks for mentioning hydrochloroquine. I'll look into that with our doctor and see if it can be of help to her. Thanks again, Michel Janse, for sharing your story on Lupus.

  • @allthingshealthy2314
    @allthingshealthy2314 ปีที่แล้ว +17

    Thanks for sharing your story. Trauma definitely plays a part in development. I follow a lot of functional medicine doctors online and they say Lupus is a great mimicker for Lyme disease so it’s highly recommended to get tested for Lyme as that could be a root cause. Also testing for mold and heavy metals. The western blot test for Lyme is flawed so testing through vibrant labs or Igenix is more accurate. Just some things to consider in finding what the root cause of the lupus is and treating it that way to put it in better remission and not have to rely on meds. Said with love and felt compelled to share the info in case anyone is interested

    • @stefaniedoyle6172
      @stefaniedoyle6172 ปีที่แล้ว

      This is interesting as I beileve I have Lyme which cause lupus but my doctor bluffs at the thought, she ran western blot negative ? Which doctor will help with this?

    • @stefaniedoyle6172
      @stefaniedoyle6172 ปีที่แล้ว

      @@allthingshealthy2314 who is Dr Jess? Do they have virtual
      Appts

    • @allthingshealthy2314
      @allthingshealthy2314 ปีที่แล้ว

      Dr Jess used to work at a hospital but now she practices functional
      Medicine. She doesn’t see 1:1 patients anymore more but she has a wellness platform she runs that she talks about on her page and has a bunch of resources. She mentions others practitioners who do virtual appointments though. Check out Dr Jaban Moore he does virtual appointments out of Kansas City MO

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

  • @chanel58style70
    @chanel58style70 หลายเดือนก่อน

    I am currently in a very toxic verbal abusive marriage. My Rheumatologist has told me that stress can be ( like you pointed out) one of the contributors of Lupus. I’m currently taking Hydroxychloroquine. So far I haven’t felt much relief from my symptoms. Hopefully, it will begin to get better as time passes. You’ve had a rough journey in your quest for a diagnosis. I’m glad you were finally able to do so. 🦋

  • @terter1278
    @terter1278 5 หลายเดือนก่อน

    Thank you so much for sharing this very personal journey. It's extremely frustrating to feel sick in so many ways for years and not get a diagnosis. I'm on my way to hopefully figuring it out. My primary care dr. agreed to give me a referral to a rheumatologist and I'm beginning the tests. It's terrific you finally got some answers and a wellness plan to empower you to live a life of less symptoms. PS: You look amazing. One would never imagine all endure.

  • @tiamon03
    @tiamon03 ปีที่แล้ว +6

    Thank you for sharing your lupus story! I’m still on my journey to getting a diagnosis (originally they said it was an autoimmune liver disease but now they aren’t so sure!). It’s frustrating not knowing and being on meds that I’m not sure are the right ones. But I can relate to the flare ups you get where you feel like you’re about to be sick with the flu. I get those often when I’m stressed/done too much. Your story helps me to feel less alone in the AI world!! ❤

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

  • @kathya9522
    @kathya9522 ปีที่แล้ว +22

    FYI: as you age, lupus tends to become less active and periods of remission last longer until you will eventually have few to no flares.

    • @christinahernandez9388
      @christinahernandez9388 6 หลายเดือนก่อน +2

      Pretty sure this has something to do with diminishing hormone levels, my hormones effect my Lupus flares.

    • @tmv820
      @tmv820 3 หลายเดือนก่อน +1

      I think this varies and depends on the individual since lupus is different for everyone. I have had symptoms since I was a little girl and I find the opposite to be true for me. I'm in my 50's now and finding I'm getting more flare ups as I get older.

    • @kathya9522
      @kathya9522 3 หลายเดือนก่อน +1

      @@tmv820 Of course it is different for everyone. I should have clarified that it was true for me. I was going by what my rheumatologist said when we both noticed I was having fewer flares, “it appears you are in remission, which is normal as you age.” Then she clarified that didn’t mean I should stop taking prescriptions or see her less often. I am now 77 and have not had symptoms in 5 or 6 years.

  • @nataliegjatzlau
    @nataliegjatzlau ปีที่แล้ว +9

    We all hear that stress exacerbates issues, but until you experience it it doesnt stick (for me at least). I was SO stressed out at my last job, dealing with the general public shipping issues during C19, i had headaches every day and was scared when my phone rang. Thank God I was able to leave and Im vowing not to stay in a job that costs me my health for the rest of my life

    • @sincerelysandi
      @sincerelysandi ปีที่แล้ว +1

      @natalie proud of you for listening to your body. Stay healthy❤

  • @christinatran4813
    @christinatran4813 9 หลายเดือนก่อน +1

    Omg! Because I saw your nail photo I watched your story.
    I was diagnosed with systemic lupus erythematosus back in 2017. Not until 2023 I started seeing my nail bed lift too! And my nails are very brittle/paper thin. I also saw a dermatologist and asked my rheumy but both were puzzled. I think this isn’t a common symptom for lupus but looks like it could be for some of us!
    Thank you for sharing your story! And hope for further health and healing for you. :)

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….

  • @sophieirwin3497
    @sophieirwin3497 ปีที่แล้ว +15

    What you’re describing with symptoms and tests is precisely why lupus is so hard to diagnose. It’s a chameleon so can be diagnosed as something else, or the tests and symptoms vary between person to person. I’ve worked with rheumatologists who frequently work with lupus patients and honestly they’re unshockable as they’re so used to lupus constantly moving the goal posts!

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of #dradima on TH-cam who use natural remedies to cure all types of diseases.❤

    • @MK-ex4ep
      @MK-ex4ep ปีที่แล้ว

      With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️

    • @rnopes21
      @rnopes21 11 หลายเดือนก่อน +1

      Good way to put it. They seem to not be thrown by any weirdness that shows up.

  • @marinamorales707
    @marinamorales707 ปีที่แล้ว +15

    Thank you for sharing your story and your struggle with getting diagnosed. It’s so frustrating to deal with not getting proper help because a case isn’t “textbook.”

    • @davidaderinluwo8221
      @davidaderinluwo8221 ปีที่แล้ว

      natural medicine has really helped me in getting rid of my HPV (Human papilloma virus) the result has been really awesome and my result came out Negative. He also helped in boosting my immune system, Am so excited all thanks to ( DR ADIMA ) on TH-cam once again..

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @MK-ex4ep
      @MK-ex4ep ปีที่แล้ว

      With the help of (dr adima )on TH-cam my Lupus was cure thank you sir you are a great.

  • @sarahbear4204
    @sarahbear4204 4 หลายเดือนก่อน

    I may have lupus. Follow up bloodwork will confirm. My weird symptom that throws my rheumatologist off is my arms both hurt like they will explode they go numb and tingle and it wakes me up all night.
    Thank you for sharing your journey with lupus and your lifestyle changes- i hope you maintain your healthier life, feeling sick sucks!
    Keep posting videos, youve helped me, i felt like a medical mystery aboit my arms, like yoir nails.❤

    • @cin337
      @cin337 4 หลายเดือนก่อน

      I had extreme weakness and will wake up from the pain and one time no feeling in my hand like it was dead not numb and flapping when I moved my arm. Scarey

  • @lisasessums3509
    @lisasessums3509 ปีที่แล้ว +1

    Awe. You are so bright, smart, and kind. And I feel sure your positive attitude works wonders for you. I pray that you will always stay in remission🙏❤️

  • @stephaniesinternetlife
    @stephaniesinternetlife 2 หลายเดือนก่อน

    I’m severely allergic to dust mites )of course 😑) but a year of weekly allergy shots weren’t helping. I’ve struggled with chronic fatigue since I was a teenager but at that age it’s hard to get a Dr to listen to you. I told my doctor I was so tired that i couldn’t focus, had brain fog, and would sleep for like 13 hours. That’s when I saw an ear nose and throat Dr and started getting allergy shots. I was afraid I had an autoimmune disease. Turns out manyyyyyy years later I’m right. Always advocate for yourself! If one doctor refuses to listen, find one who will. Bloodwork is the least they can do.

  • @reneebrewer9251
    @reneebrewer9251 ปีที่แล้ว +4

    I was diagnosed at 29 with SLE,sjogrens, factor 5, and a positive rheumatoid arthritis with a high tiger. I was diagnosed by an oncologist. When I was newly diagnosed I lost most of my finger nails. Feet were ok just fingers. I developed one pulmonary embolisms and deep vein clots. I then developed Addison disease where my adrenal glands quit working where thankfully they figured it out after a week in ICU. I take prednisone everyday and it’s adjusted when I’m in a flare or sick. I was hospitalized every 6 weeks for one thing or another for years and thankful that I haven’t been in for about 6 months. The flu or simple virus will put me in for about a week at a time the last time I was in was the flu. We share a lot of similar symptoms. So now you know another person with the finger nail ¡issue. People don’t understand how hard it is to feel like you have the flu everyday and you can never plan anything because you never know how you will feel from one day to the next. There are days I feel like I can conquer the world but know the more I do that day the harder it’s going to hit me the next day. Even close family members don’t understand I often think about sharing my lupus journey There have been a lot of ups and downs that have happened over the years.

  • @christinakalogeropoulou7068
    @christinakalogeropoulou7068 11 หลายเดือนก่อน +1

    Hey, thank you for the video. It’s important to be more awareness. I had no idea what lupus was except something rare that Dr. House was occasionally looking for! 😂
    I’m 28 and I was diagnosed last year. I was lucky as my symptoms were extremely intense for a month, pain in my whole body, ridiculous fatigue, ulcers to the point I couldn’t eat, lost a lot of hair, all super bad, but that speeded up the diagnosis. Since then, I started plaquenil, and cortisone from 30mg now almost 3mg and about to completely stop it.
    You are so right when you are talking about unconscious stress. I am generally a very positive and stress-free person (or I thought I was!) but when I moved away from situations I shouldn’t have been close in the beginning, and changed to a more healthy lifestyle, I feel like my body embraced it and relaxed, too.

  • @juliavabishchevich
    @juliavabishchevich ปีที่แล้ว +2

    I felt so sorry about little Michel during those clips, almost in tears ❤

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases❤

  • @Alissa-Marie
    @Alissa-Marie ปีที่แล้ว +2

    Thanks for sharing! My sister was diagnosed at 40yo, but it took years to get the diagnosis. I didn't know anything about Lupus until recently but this video was really helpful in understanding it a bit more.

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊

  • @littlewillowhomestead113
    @littlewillowhomestead113 ปีที่แล้ว +9

    I have lupus and stress is what brought mine on also.. I’ve gone the functional medicine route and it’s pretty much been in remission for 4 years even through losing my son which is surprising.. all that to say it’s flaring horribly bad lately and I’m not sure why.. back to the doctor I will go 😢

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

    • @GardenGirlie
      @GardenGirlie 2 หลายเดือนก่อน

      Sorry you're flaring again :( What did your functional medicine route do for you? Can you startup that routine again?

  • @DonnasWonderland
    @DonnasWonderland ปีที่แล้ว +6

    Hi Michel I’m interested to hear your story x that can be an issue with many doctors visits when a symptom doesn’t fit in to the ‘box’ glad they got it sorted for you fairly quickly and so pleased for you that you’re able to manage it so well! Good riddance to toxic people hello health!! ❤

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +2

      Thank you sweet friend!! 🤍🤍

  • @pinkieepeach
    @pinkieepeach ปีที่แล้ว +13

    I’m not usually one to leave comments but this really spoke to me. I’ve had discoid lupus for 20 years, I was diagnosed when I was 10 yrs old. Your diagnosis story was really similar to mine. Having dealt with this for so long, I have to undergo the same treatment and lifestyle restrictions. Thanks for sharing your story, it’s great to know there’s another person out there who understands. Stay strong Michel! ❤

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +2

      Thank you for sharing your story as well!! We’re in this together!! Praying for you and hoping you stay strong as well friend!! 🤍🤍

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊

    • @nitupandit
      @nitupandit ปีที่แล้ว

      My daughter is 14 years old and she has lupus .she was diagnosed when she was 11 years old . currently she is going through flare . every time she is asking same question why I am ? Why I have this.I am trying to explain her but it is very difficult. My elder sister also has lupus and she got paralyse attack too. So seeing all these my daughter is very much scared. I also try to motivate her. We are Hindus so we have certain songs(Bhajan) .i make her to lesson that and get positivity.In India there are some ayurvedic centers who says that we will cure these , but I can't trust

  • @laylapanahi4619
    @laylapanahi4619 10 หลายเดือนก่อน +2

    Thank you so very much God bless all of us I hope we all get better with managing our stress levels and positive thoughts and hoops ❤❤❤❤

  • @kaidavis5039
    @kaidavis5039 10 หลายเดือนก่อน +2

    This has really helped me as I was diagnosed today..thank you for posting this video 💜👍

  • @frances2210
    @frances2210 ปีที่แล้ว +2

    OMG I loved how you explained Lupus from top to bottom. I am having similar issues and your video hits the point. The problem is finding a doctor that will listen and care (General doctor, Fertility Doctor or Rheumatologist). I have a positive ANA test Dilution 1:1280. I was told it meant nothing that I am young and it is normal to get a positive and no autoimmune disease. I have back to back cold symptoms and joint pain typically before my period, my whole face flares when I am exposed to the sun on occasions, dark spots on my forehead and both cheeks that started out red. I have an active rash in my chest that won't clear up for more than 3 weeks (using cortisone, caladryl , antifungal, etc...), fatigue, weight problems for years, severe pain when I walk in my left heel and redness around my finger nails that end up getting infected with pus (disgusting). I don't know. Maybe I need to wait until I have more severe physical symptoms to get it diagnosed. Glad you found an answer and have a treatment plan that helps!

  • @rebeccacornish5924
    @rebeccacornish5924 ปีที่แล้ว +3

    I have lupus as well. I started becoming symptomatic at 22. I've had a lot of negative blood tests as well. It's good to find someone that has had a similar experience.

    • @marylinda4878
      @marylinda4878 ปีที่แล้ว

      My God has used a traditional healer #dradima to cure my cold sore this has be my Joy since i was cured i really want to thank you Doc for your good work if ( DR ADIMA) can cure my 18 years lupus he can cure whatsoever ailments you are battling with today.

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊

    • @lisaeaster4665
      @lisaeaster4665 8 หลายเดือนก่อน

      I have been suffering from Lupus disease since 2018 the lupus disease effect my joints and my vision skin hair. My life was uncomfortable until I came cross a great herbalist doctor on TH-cam channel who cure all kinds of deadly disease with his effective herbal remedies. I make a order of the herbal supplement after using his herbal medicine for one month my symptoms was got and I was cured permanently from Lupus disease. I’m grateful to almighty #drauchi for saving my life…….😊😊

  • @stefaniedoyle6172
    @stefaniedoyle6172 ปีที่แล้ว +2

    Thank you for sharing this, I suffer so much from lupus & currently in a flare… needed this today. 😭🙏☺️

    • @vazlet
      @vazlet ปีที่แล้ว

      I hope you feel better soon. ❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊

  • @kaupigwe
    @kaupigwe 2 หลายเดือนก่อน

    I have lupus too. Hearing about your diagnosis brought all the memories back it was not a fun ride. Thought i was going downhill then boom just a malaria medicine could heal the symptoms. I grew up in Africa where i used to take the malaria medicine after soo many months just for prevention. I wonder if i had it prior to moving to US. I can also be validate missing medicine bring all the symptoms back. I tried to quit after feeling better and all the symptoms started to come back. Then i talked to myself i am on these meds for life. Thanks for sharing your video. When i saw your toes and skin, that convinced me it is lupus.

  • @stephaniel678
    @stephaniel678 ปีที่แล้ว +5

    Michel, your hair is so pretty in this video!

    • @MichelJanse
      @MichelJanse  ปีที่แล้ว +2

      Awe, thank you friend!! 🥹🥹🤍

  • @JennasShorts
    @JennasShorts ปีที่แล้ว +6

    I just found your channel through lemon 8. Thank you for sharing your health journey. I am currently on my own one right now and honestly it’s been the most draining and tiring one. I am so tired of being in pain constantly and am hoping to be in relief soon. Your story made me feel less alone

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases.❤

  • @beckybaker703
    @beckybaker703 ปีที่แล้ว +4

    I have multiple autoimmune issues too, while trying to get diagnosed it seemed like my ANA would flip flop between positive and negative all the time, it was so frustrating! I also recently had a similar experience with hydroxychloroquine. I've been on it for years, we tried taking me off of it.....I only lasted for a week before the joint pain flared. Not doing that again!

  • @amberteskey1088
    @amberteskey1088 ปีที่แล้ว +10

    Thank you for sharing your story! As someone who also has an autoimmune disease (M.S.), I always find it comforting to hear about other young people's stories.

    • @shannonciaramella7599
      @shannonciaramella7599 ปีที่แล้ว +1

      I have ms as well. And I agree in finding comfort with others telling their story about their experiences with autoimmune diseases. Each story is different. And it makes me feel not alone.

    • @jakejemas330
      @jakejemas330 ปีที่แล้ว

      I get rid of Lupus with the help of (dr adima) on TH-cam who use natural remedies to cure all types of diseases..❤

    • @nancycarlos5695
      @nancycarlos5695 ปีที่แล้ว

      I have been suffering from Lupus disease for some year without having a solution to it until i done a research on TH-cam i come and cross Dr.Auchi on TH-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...😊😊