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Its crazy. Im 20 and ive been having all these symptoms, going specialist to specialist, and after years, a doctor finally correlated my symptoms to Behcet. This condition is awful. Ive had cankers throughout my life, but after covid, i came down with the skin lesions and awful genital ulcers that bleed out. God bless anyone who is plagued by this disease.
It's a managed care type disease. I was diagnosed 2013 but suffered since birth 1964. As it worsened for me in 2000, I was told it was all in my head. I've suffered lesions, ulcers systemic inflammation, lung nodules inflammation, liver cirrhosis, kidney stage 3 failure and cranial nerve 3 insolvent, I'm gradually losing my eyesight after severe inflammation. I'm diabetic 2 now and insulin intolerance. Arthritis and gut issues. I've had reproduction organs removed due to severe inflammation and ulcers. Even my muscles are effected and easily torn ligaments. Yes I dread getting worse as I age. It's always what's next. Steroids are your best friend and eventually I'll be on it daily. It's horrible but if you ignore it, it will kill you.
Brother I also have been diagnosed with Behcets disease last 2004. Mouth ang genital sores are very painful. But since 2011 I have given all to God and I have never experienced mouth and genital sores since then. All glory to God. Give it to God and humble thyself to Him it will be healed.
Same! I started experiencing all my bechet's symptoms after having Covid. I will die on the hill that Covid is NOT just the flu and that it can trigger serious chronic conditions. Hope you are getting treatment and doing better!
@@katiemaraldo8371I had Covid 7 times and 3 vaccines, I have been diagnosed with Behcets and soon to be MAGIC syndrome which is even more rare. I haven’t been right since having Covid… WTF!!!!
I was diagnosed with this genetically via the ADVISE panel recently. It is crazy how I have so many of these symptoms. Thank you for the informative video.
I have the symptoms since 2004. It is very painful especially the mouth and genital sores. In 2011 I have God and given all to Him since that year I have never experienced mouth and genital sores until now. All glory to God for His healing to me
I can't thank you enough sir for your huge contribution to enlighten my mind. I ask Allah Subahanahu wa Taealla to reward you❤❤❤ Your work is immaculate 👌🏻👌🏻👌🏻
American ( Puerto Rican 1/2. And 1/2 Italian ) diagnosed at 40 after five long painful crazy running around thinking I’m crazy years ! Oh and my son also has it so when they say it doesn’t work like that it did ! I think I’m one of very very few who went from mother to son or child ! This disease 🦠 Is horrible. Twenty years and they make it so hard to get your pain meds no I had to get on palliative care !
I ended up in the hospital and was diagnosed with Bechets during finals week. I think it was a good enough excuse not to finish the group project. Been managing with prednisone and azathioprine for nearly a year but recently started relapsing again. Terrified it will get me hospitalized again. It took me 3 months to recover last time. I’m gonna make it though. Just gotta learn to recognize the patterns and get on top of symptom management and nip it in the bud. Question: Any of y’all get fevers with this too? I got a fever for a week last time.
I wonder if i have this. Ive had painful canker sores very frequently in my youth. I had a horrible outbreak of 4-5 open genital ulcers and have had 2-3 less severe outbreaks since then. I have/had bad stomach pain and have severe scabs on my skin whenever i used to get acne like sores on my arms and back when i was 12-17 I have severe allergic reactions to mosquitos and other foods I used to have diarrhea w a red tinge but i never said anything out of humiliation I was sick with strep throat very often as a kid My eyes used to burn so badly at school that i could not open my eyes for days on end. It would burn and i couldn’t open my eyes in direct light without severe pain and tearing, but it would go away. My mom has bad arthritis in her knees and ankles. I often feel like i cant breathe and have an accelerated heart rate. My doctor suggested i may have an autoimmune disorder, and before my appointment my little google searches pointed to bechets disease, but i ignored it because to my knowledge i have no middle eastern relations and my parents insisted im just anemic. Im afraid, and hoping for the best. 😢 i hope i do not have this, your health can not be restored by any money you only get one body.
Honey, I'm white bred as they come. Genetics are so mixed up in America and our world don't discount you got a "touch" someplace way back to give you that Behcet's Gene. One doctor said something about Genetics profile on me and I thought how rude. I just wish those know it all God plex idiot Doctor's would just pull their head from their holes and do their job right. We suffer. I suffer Daily. It's bad for me and never ending. My sisters show signs, my mom, my cousins and my children inflammation kills if not treated.
Please keep advocating for yourself. I've had canker sores since I was a kid; no one else in my direct or distant family has any recurrent canker sores or obvious genetic ties to the Silk trading route. I was finally diagnosed by a rheumatologist around 3 years ago and I'm now on Otezla, and I've seen so much success with it. Used to get 2-3 regularly, on my worst week I'd get up to 6, with some that merge into each other. Don't accept this as your normal, there is no shame in leaning on people for help when you're in pain ❤
I wonder if I have this. I have severe recurrent mouth ulcers, 10 at a time, but I don’t have any of the other symptoms and it’s been going on for 10 years since my early 20’s.
It’s definitely possible! I was the same way for a long time with really frequent mouth ulcers and in high quantities each time. I recommend reaching out/ scheduling an appointment with a rheumatologist or talking to your doctor at your next visit. It’s difficult to diagnose as they had to wait for more the one severe flare up reoccurrence to give me an official diagnosis. However, after my first severe flare when they started suspecting Behcets but there was no official diagnosis, they did give me a medication for the mouth ulcers that did wonders and increased my quality of life immensely. So if anything they might be able to help in that area. I hope this all gets worked out for you! ❤️
@@joeyf1929 What was the medication they gave you for the mouth ulcers? Mine affect the entire inside of my mouth and I need to tell my doctor about this medication you speak of!
So Sjogren's and bechets are similar then. Both involve eyes, mouth and genitals (only vagina). Sjogren will cause dryness in all 3 while bachet's would cause ulcers in all 3 (eye - uveitis)
i May have this disease myself.. it started with it looking like herpes.. and then with the oral and then the acne similar all over my back and arms and chest. Also as my body hurts a lot. I’m litterly scared to try to get an diagnosis for this bc it can take 1-5 years
For more medicine videos consider subscribing (if you found any of the info useful!):
th-cam.com/channels/Rks8wB6vgz0E7buP0L_5RQ.html
Buy Us A Coffee!: www.buymeacoffee.com/rhesusmedicine
Video Timestamps:
0:00 What is Behcets Disease + Epidemiology
0:56 Pathophysiology of Behcets Disease / Mechanism of Behcets Disease
2:21 Signs and Symptoms of Behcets Disease
5:39 How is Behcets Disease diagnosed? Diagnosis of Behcets Disease (International Study Group Criteria)
6:07 Treatment of Behcets Disease / Management
LINK TO MNEMONICS:
th-cam.com/video/p-XE7PiwGgE/w-d-xo.html
Your accent is amazing I like ur voice🦫👏💗
Please let me know about support group or Dr who does know how to treat 2078089884
Its crazy. Im 20 and ive been having all these symptoms, going specialist to specialist, and after years, a doctor finally correlated my symptoms to Behcet. This condition is awful. Ive had cankers throughout my life, but after covid, i came down with the skin lesions and awful genital ulcers that bleed out. God bless anyone who is plagued by this disease.
It's a managed care type disease. I was diagnosed 2013 but suffered since birth 1964. As it worsened for me in 2000, I was told it was all in my head. I've suffered lesions, ulcers systemic inflammation, lung nodules inflammation, liver cirrhosis, kidney stage 3 failure and cranial nerve 3 insolvent, I'm gradually losing my eyesight after severe inflammation. I'm diabetic 2 now and insulin intolerance. Arthritis and gut issues. I've had reproduction organs removed due to severe inflammation and ulcers. Even my muscles are effected and easily torn ligaments. Yes I dread getting worse as I age. It's always what's next. Steroids are your best friend and eventually I'll be on it daily. It's horrible but if you ignore it, it will kill you.
Brother I also have been diagnosed with Behcets disease last 2004. Mouth ang genital sores are very painful. But since 2011 I have given all to God and I have never experienced mouth and genital sores since then. All glory to God. Give it to God and humble thyself to Him it will be healed.
@@raoulremedios6145bravo, well done
Same! I started experiencing all my bechet's symptoms after having Covid. I will die on the hill that Covid is NOT just the flu and that it can trigger serious chronic conditions. Hope you are getting treatment and doing better!
@@katiemaraldo8371I had Covid 7 times and 3 vaccines, I have been diagnosed with Behcets and soon to be MAGIC syndrome which is even more rare. I haven’t been right since having Covid… WTF!!!!
I was diagnosed with this genetically via the ADVISE panel recently. It is crazy how I have so many of these symptoms. Thank you for the informative video.
ive been diagnosed with this since i was around 13, its nice to hear all of the details in a simple, neat video!
Glad it was informative, best of luck 😊
I have the symptoms since 2004. It is very painful especially the mouth and genital sores. In 2011 I have God and given all to Him since that year I have never experienced mouth and genital sores until now. All glory to God for His healing to me
Finally finding my crew
I can't thank you enough sir for your huge contribution to enlighten my mind. I ask Allah Subahanahu wa Taealla to reward you❤❤❤
Your work is immaculate 👌🏻👌🏻👌🏻
You are very welcome, thank you for watching 😊
American ( Puerto Rican 1/2. And 1/2 Italian ) diagnosed at 40 after five long painful crazy running around thinking I’m crazy years ! Oh and my son also has it so when they say it doesn’t work like that it did ! I think I’m one of very very few who went from mother to son or child ! This disease 🦠 Is horrible. Twenty years and they make it so hard to get your pain meds no I had to get on palliative care !
informative thank you
I was recently diagnosed
I ended up in the hospital and was diagnosed with Bechets during finals week. I think it was a good enough excuse not to finish the group project. Been managing with prednisone and azathioprine for nearly a year but recently started relapsing again. Terrified it will get me hospitalized again. It took me 3 months to recover last time. I’m gonna make it though. Just gotta learn to recognize the patterns and get on top of symptom management and nip it in the bud.
Question: Any of y’all get fevers with this too? I got a fever for a week last time.
I wonder if i have this.
Ive had painful canker sores very frequently in my youth.
I had a horrible outbreak of 4-5 open genital ulcers and have had 2-3 less severe outbreaks since then.
I have/had bad stomach pain and have severe scabs on my skin whenever i used to get acne like sores on my arms and back when i was 12-17
I have severe allergic reactions to mosquitos and other foods
I used to have diarrhea w a red tinge but i never said anything out of humiliation
I was sick with strep throat very often as a kid
My eyes used to burn so badly at school that i could not open my eyes for days on end. It would burn and i couldn’t open my eyes in direct light without severe pain and tearing, but it would go away.
My mom has bad arthritis in her knees and ankles.
I often feel like i cant breathe and have an accelerated heart rate.
My doctor suggested i may have an autoimmune disorder, and before my appointment my little google searches pointed to bechets disease, but i ignored it because to my knowledge i have no middle eastern relations and my parents insisted im just anemic.
Im afraid, and hoping for the best. 😢 i hope i do not have this, your health can not be restored by any money you only get one body.
Honey, I'm white bred as they come. Genetics are so mixed up in America and our world don't discount you got a "touch" someplace way back to give you that Behcet's Gene. One doctor said something about Genetics profile on me and I thought how rude. I just wish those know it all God plex idiot Doctor's would just pull their head from their holes and do their job right. We suffer. I suffer Daily. It's bad for me and never ending. My sisters show signs, my mom, my cousins and my children inflammation kills if not treated.
Please keep advocating for yourself. I've had canker sores since I was a kid; no one else in my direct or distant family has any recurrent canker sores or obvious genetic ties to the Silk trading route. I was finally diagnosed by a rheumatologist around 3 years ago and I'm now on Otezla, and I've seen so much success with it. Used to get 2-3 regularly, on my worst week I'd get up to 6, with some that merge into each other. Don't accept this as your normal, there is no shame in leaning on people for help when you're in pain ❤
Amazing
Ok now I'm scared,😭
Does humira work?
Been working for me. I’m tired all the time, but it is what it is.
I recently had blood drawn and a pimple developed on the site, is this likely Behcets?
I wonder if I have this. I have severe recurrent mouth ulcers, 10 at a time, but I don’t have any of the other symptoms and it’s been going on for 10 years since my early 20’s.
It’s definitely possible! I was the same way for a long time with really frequent mouth ulcers and in high quantities each time. I recommend reaching out/ scheduling an appointment with a rheumatologist or talking to your doctor at your next visit. It’s difficult to diagnose as they had to wait for more the one severe flare up reoccurrence to give me an official diagnosis. However, after my first severe flare when they started suspecting Behcets but there was no official diagnosis, they did give me a medication for the mouth ulcers that did wonders and increased my quality of life immensely. So if anything they might be able to help in that area. I hope this all gets worked out for you! ❤️
@@joeyf1929 What was the medication they gave you for the mouth ulcers? Mine affect the entire inside of my mouth and I need to tell my doctor about this medication you speak of!
Kuch esha kho hme b smj aaye
I’ve been getting those canked sores I’m getting worried :( need a doctors visit
So Sjogren's and bechets are similar then. Both involve eyes, mouth and genitals (only vagina). Sjogren will cause dryness in all 3 while bachet's would cause ulcers in all 3 (eye - uveitis)
i have this :((((((
Same
I've had it for 10 years. You'll be fine don't worry
❤️
I had it and I am diabetic 😢
I have type 1 just got diagnosed as well.
Dae jang geum King disease
i May have this disease myself.. it started with it looking like herpes.. and then with the oral and then the acne similar all over my back and arms and chest. Also as my body hurts a lot. I’m litterly scared to try to get an diagnosis for this bc it can take 1-5 years
This disease sucks. Ive had PE, diabetes and pancreatitis because of Behcets
just learned that its a neanderthal treat
Turkey is not in middle east
Inch pincher
Then where is it? The northeast meditteranean?
@@Tigerheiress😂
Oh noo of course they don't need middle east anymore they are better now🤦🏻♀️
Sir please help me, I have that behcets disease, I am very worried.😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢