Síndrome Uro-Facial de Ochoa: una sonrisa diferente

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  • เผยแพร่เมื่อ 19 ต.ค. 2017
  • Desde los 18 meses Luisa Fernanda fué diagnosticada con Síndrome Uro-Facial de Ochoa. Una historia con una sonrisa diferente. Programa una en un millón, canal Teleantioquia 2017.

ความคิดเห็น • 9

  • @monicalima2902
    @monicalima2902 3 ปีที่แล้ว +2

    Precisamos divulgar este assunto , pois o tratamento precoce. É essencial meu filho é portador descobrimos quando tinha 9anos !

  • @gerardolayes8504
    @gerardolayes8504 4 ปีที่แล้ว

    Tengo una.hija que padece síndrome.de. Aper
    Tiene.37.años

  • @ledeilsonsantanasouza66
    @ledeilsonsantanasouza66 3 ปีที่แล้ว

    Tenho essa sindrome e é horrivel.

    • @titi8137
      @titi8137 2 ปีที่แล้ว

      I think I have the same condition I am just realizing that it is a real one, I don’t understand Spanish unfortunately. Are they giving any advice as to how to control it?

    • @ledeilsonsantanasouza66
      @ledeilsonsantanasouza66 2 ปีที่แล้ว

      The indication is to go to the clinic doctor. Do you have any peculiarities in your smile? Well, this is the most obvious symptoms.

    • @titi8137
      @titi8137 2 ปีที่แล้ว +1

      @@ledeilsonsantanasouza66 Thanks so much for replying. Yes when i smile i look like i am frowning. I have been avoiding social gatherings because this makes other people feel uncomfortable and i dont want to be judged and this has ruined my life big time. I feel like i have numbness in my face. I went to the doctors they did MRI twice for brain and face results came back normal.