You are Not Alone
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- เผยแพร่เมื่อ 2 ต.ค. 2024
- Diagnosed with Type 1 Diabetes? You are not alone! We are a family of Type 1 Diabetics and are here for you. Welcome to the Tribe!
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#SamanthaHildebrandt #type1diabetes #t1d
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I have been type 1 for 38 years. I didn't speak to other people with type 1 until 6 years ago. Support groups are great, there is so much you can learn from other type 1s.
So glad you found your people!!!
I am type 2 diabetes I recently found out on my birthday of this year Jan 4 I was type 2 diabetes….
I’m so sorry!
I had my second Diaversary yesterday. I was misdiagnosed as I was 44 years at the time and my primary doctor didnt know any better. Despite I had a BMI at 22 and I was told to eat less and exercise more as well as was put on Metformine. The treatment didn't go particularily well and my HbA1C increased from 96 to 103 mmol/mol (11.6 % ). Luckily the doctor had a suspicion that it might be Type one. I went in to further testing and I was put on Insulin and got a CGM. I eventually went in to a year long honeymoon period and, all I needed was 3 units of long acting Insulin. After that I sadly had to ramp up the dose of both short and long acting insulin. This period gave the opportunity to learn a lot with good help from my remaining Beta cells. I ended up healthier than before as I was forced to make better choices. I some times think it is unfair that I have to take my blood sugar in to account in all situations. However when I am on top of the glucose management I can live my life to the fullest.
Oh my goodness!!
I was diagnosed in 1968 and started on insulin the end of November 1970 (Those holidays tend to do that it seems). I'm telling you that there wasn't home glucose meters until 1983 and were not inexpensive. Now we are fortunate to have meters readily available and now CGM's. So you can know what foods and drinks are doing to your glucose levels which is a major piece of information to know in your treatment.
The complications of uncontrolled blood glucose levels are real. However, if having a glucose level of 300 one day doesn't mean one will go blind, need kidney dialysis, or amputation the next day. Complications take time so don't panic if it takes awhile to get things on track. Specialist's such as endocrinologist are very beneficial in treating and advising you. But one need's to take personal responsibility for caring for oneself. The doctor isn't putting food on your plate every day.
And the one thing that bugs me to no end are those that "brag" about how little insulin they use daily. They accomplish this by by hours of exercising, fasting 18 hours a day and only eating boiled chicken breast and broccoli. If that's how you want to live, go for it. One can achieve good control eating sensibly which includes special occasions and using or even "dumping" insulin on it to accomplish that. No shame in that. A working pancreas would and does it all the time!
And Samantha is correct in learning from others as well. You will find that the "very learned and experienced" still mess up from time to time as well. Which is reassuring.
Thanks for sharing!!!
My 12 year old daughter just got diagnosed on August 28. She lost almost 10 lbs in 2 days almost went in coma and we almost didn’t make the ER 😢 But thank god she is okay now and we are trying to adjust our new life. The hardest part is Knowing she needs to get the shot everyday before meals life long unless they come up with cure in future . Thank you for doing these videos . They really help a lot emotionally
I’m so sorry to hear this! Your daughter will be okay! It is a tough diagnosis to accept but she will do great with it.
@@Type1Tribe Thank you we are doing little better now and videos like your help us a lot so thank you for this
@@McCalifornia good I’m glad!!!