Josie's Joyful Life (One Of the World's Rarest Syndromes)
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- เผยแพร่เมื่อ 16 พ.ย. 2022
- Josie is diagnosed with Antley-Bixler syndrome, one of the rarest disorders in the world. She also loves playing peek-a-boo, swinging, and dancing with her siblings. Josie's family wants others to know that she may look different, but she is still a typical toddler in many ways.
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I love how the mom just waited for the oldest sister's entire testimony about how much she loves her sister, BEFORE correcting her about Josie not having down syndrome. Instead of interrupting her. A+++++ family!
Omg I came to comment this! It was fantastic. My favorite part of the interview. What a great mom
Testimony?
@@lestereliza9445
Yes, testimony. It means her rendition of events or how she feels.
They use it in legal proceedings a lot, so I can see how maybe someone might think it means things slightly different to its more general context.
Essentially though, she was giving her own recounting of how she feels and sees things to someone else. :)
@@ElysetheEevee That's also what they call it in a lot of churches (the ones who don't pre-print a schedule of the service, that is) when you're sharing how you survived certain events, or were blessed as well.
@@Wheezersmom02 In church your testimony is basically your story of how you came to know the Lord and decided to follow him. It could involve certain things you've survived or how you've been blessed but it's really about your personal story of choosing to follow the Lord, how your life was before hand and how your life has changed since.❤ Lots of churches do this. I've shared my testimony multiple times, often in small groups but also in front of the whole church when I was baptized.😊
that little fist bump followed by chris' reaction brought me an indescribable amount of joy 😭
The mom's laugh was also so cute ❤️
That was so wholesome, I got emotional by all the wholesomeness in this vid 😭
Same. I'm so glad. I hope the best for them!!
Same here😂
I was thinking the same thing. Chris, you are a beautiful human, just as all your guests. Thank you for introducing us to so many people! 💕
I love how he recognized that Charlotte was needing a bit more attention, and he included her and praised her in the video. Kids who are fighting for attention are often the ones people get annoyed by (so they give them even less attention). Charlotte would’ve been tiny when Josie was born, and I can imagine that Josie’s condition, doctor’s appointments, hospitalizations, surgeries, etc., caused a LOT of attention to be diverted away from Charlotte at a critical time in her young life. Chris likely realized this immediately, since he’s amazing at reading people - especially kids.
Oh you’re right! Chris is very perceptive ☺️
I recognized videos of myself as a kid in this SO MUCH. I was 5 when my little sister came along and even though I was psyched about having a little sister, the one thing that really bothered me was when they put the camera on her as a baby because I was like, check out all the cool stuff IM doing, lol. I feel for her, it must be compounded when one sibling requires a bit more attention, whatever reason that may be, plus being a middle kid of 4 is a lot! But their mom seemed super awesome, loving, and very attentive/in tune with what her daughter was feeling.
Who is charlotte
@@thesilvershining 😜
@@kelseyarenson8922 🤑
"I love you! Because you have teeth!"
😂😂🤣
These kids are too cute, my goodness, their little personalities. So smart. Brought a smile and chuckle. 😆
that was cute
The oldest sister was just so darn sweet. I love how she thinks she’s perfect ❤
And the middle sister is so random and chaotic 😂
@@ilona3630 she’s ICONIC
Knows**!
Exactly what I thought too❤️ she’s allll about her baby sister and not herself in anyway ❤️
@@ladylovelylocks I was quoting the sister
What a precious little girl. Her siblings are an absolute credit to their parents 👏
I was so impressed by the mother, she's amazing. This is why I don't have kid's. She's just so in tune and devoted to them.
@@We_Are_All_Vultures Don't sell yourself short!
What a wonderful family. It’s so cute when Josie’s sister helps her to answer. “She says yes.” 😄
That was adorable 😃🥰 all the kiddos are such cuties.
So cute. All of them. ☮💛❤🤍🖤🤎💜💙💚
Her signing for the swing was adorable 😭❤️
Josie's little wave after seeing herself was so cute 0:09
Oh my goodness he is so great with her and all then other kids he meets! Josie is so swede and deserves the world! ❤
7:31 I can’t help but notice that Josie copy’s exactly what her sister did. They even started dancing at the same time😂
I am a former neuroscientist and computer engineer currently studying medical engineering because I wanna focus on creating things to improve people with rare diseases lives, be it through discovering new treatments or technologies. Seeing these videos make my days better and it keeps me going on my mission 🙏
Same here! Computer engineering student, aiming to that area too
you're amazing! i'm so glad there's people like you and chris out there. keep fighting the good fight
Keep watching, both of you! You have amazing minds and I’m sure one day you’ll be inspire to create something amazing to help students like the ones I teach❤
Thank you everyone in this thread! You have very noble aspirations and I wish you the best!
@@aidandangiolillo415 I second that notion!! Thank you for being the forefront of discovery in medicine.
As someone who has lived with a neurological condition all his life (namely Hydrocephalus,) it really comforts me to see all these amazing stories on this channel.
While no one featured has had the same thing I do; hearing their stories, seeing them get along well with the interviewer and simply smile at the camera really shows that people like me aren't alone in this world
Send him a message!
I agree with princess. Send him an email. I would love to learn more about you. My dad had a rare disease. Contact him and know you have people that will support you.
Beautiful children
God can heal you! Remember there is a God who loves you and wants to heal you and have a relationship with you, he can give you an uncontrollable joy ❤
I'm curious what condition you're talking about if you don't mind me asking. Because I could have sworn that there's been videos on people with Hydrocephalus before and when I checked by searching on the channel page, there have been four different people featured already. Though nothing wrong with more being interviewed of course.
The purity of the joy in this video is top tier. I could watch it again and again.
Agreed, one of my favorites of all time!
It is absolutely my favorite ever! Seeing Josie smile, how happy and intelligent she is, how her family bonds so well with her, all that made me so happy. Plus Josie is definitely one of the cutest humans I have ever seen in my entire life, she is absolutely perfect.
💯❤️
She’s so cute and I love her little personality. She is very self assured for being a toddler. She is definitely a girl whose going places. Her siblings are all adorable too. They’re such a nice family
Wow!!! The mom has her hands full with all 4 young kids. They are so adorable, all of them. Charlotte yelling out that she loves everyone and pointing to Chris and telling him that she loves him because he has teeth, and her video games, lol. Josie's smile is just so contagious. Gus is too cute being goofy for his sister so she can laugh. Penelope is such a great big sister, you can tell she loves her sister so much and wants to just make Josie happy and laughing.
🥰💝💖💗💞💕🤍♥🤎💜💙💚💛🧡❤
Her little wave 👋🥺 so cute
Josie and her siblings are adorable......and Charlotte is an up-stager! I am so glad that they all love each other so much. Mommy is so relaxed; how does she DO it?
Charlotte is a NUT! But, then again, you didn't get to meet Dad. LOL. They are a wonderful family. I would add, it is amazing to watch Anna and Nathan. In situations like this, it is easy for the other kids to get lost in the mix. Josie does require a lot of time. But they don't I watch as every kid that comes to Mom or Dad gets the attention they need as if what they have going on is the most important thing EVER! There is an incredible balance that is palpable.
I have 4 girls. I think her son helps balance her out. I know I'm up the wall on 15 acres and farmlife while hubby works. Prayers for this sweet family. God give them all peace in these times and Joy continuously through YOUR HOLY SPIRIT JESUS amen
It's so cute her sister answers for her "she says yes!" lol Reminds me of my daughters.
This is beautiful. This mother is an inspiration. She was probably raised by incredible people, or is crazy smart. She is raising awesome kids that the world needs.
my sis is named josie too, and she said ‘im so happy to have the same name as someone so strong’ ✨✨
Her little hair turban is adorable. This channel brings me great joy!!!!
Yes, it’s beautiful! 🙌🏾
Josie is such a cutie pie!! You can tell she is just surrounded by love and warmth.
"And I love you because you have teeth," love that little girl!
that was funny
Josie tellin her mom she wants to swing was the cutest thing I've ever seen!!! 😭🥹🥹🥹🥹
She’s adorable! I love how you made her laugh so much. She’s so happy
@7:20 when he asked her if she loved dance parties...their response ☺ so freaking cute you two are!!!
Chris is what many of us want to be, but he just is. I don't know if he was always like this or if something in his life opened up his heart mind and soul but what ever it was it created a higher form of human that we don't see much these days. I am sure he has his bad days, but man just impressive!
Chris is just an angel.
I liked that Chris filmed Josie in the swing for part of the interview so she got to do what she wanted to do.
I love the way the middle sis shouts "MY FAMILY IS ABOUT..." 😂 and the way Josie points at something funny and then looks at Mom with this face like "You see this? Get a load 'a this." 🤣
That middle sister has the most intense middle sibling energy I’ve ever seen hahaha. She’s adorable!
Josie is precious very smart for her age too!! She brings me so much joy I can't stop smiling.
They're all so lovely. And the mom is adorable, her smile is beautiful. Also, Josie is very smart, and the kids are all charismatic. Wishing all the happiness to this family!
Her signing the word 'swing' was so adorable!!!! This video was full of so much love. I got emotional watching it ngl. Thank you for sharing! ❤
8:20 aww 🥹…”she’s just like the perfect person if there was one”
You’re so right, your sister Josie is just perfect ans so adorable 🥰 💗😘
"Having cake with me!" *Josie looking at the camera like yep, she's right* 😂😂
I am no expert but she communicates very well for a toddler!! she is well able to say what she wants and stand up for herself.
My heart was MELTING with their love for Chris!!! Mom's laugh brings me joy too!! I think this is my favorite interview he's ever done!!!
Josie's big sister has just PURE love for Josie 💗. Chris is such the perfect person to do the videos with children.
That little fist bump she did just said it all! She is absolutely adorable, and her family are just so loving towards her! I love these videos!
@ 3:35 are you kidding? With all the cuteness, Josie needs her own TV show.
She is so sweet!! Thank you for introducing us to Josie and her family. They are so beautiful
Chris, as always, you did such an amazing job bringing this family’s situation to light while paying attention to each one, without neglecting the main focus. I love how you engaged with Josie!❤
Chris, I'm so glad you exist !
Josie is absolutely adorable and her sisters are so sweet! 😄
“You can just tell…there is a great affection between them” the mom says, while the brother puts his feet on his sister 😂 so accurate. Sibling love is a different breed. Also, Josie laughs like a little adult and it’s the cutest thing I’ve ever seen in my life
Such an honest mother, you're doing a most amazing job, Chris you were very responsive and attentive, beautiful footage as always thank you to the kids and their mother
Fa ciò che dovrebbe fare ogni madre.Amare i suoi figli
We saw the older girls and their dad at the hotel with Chris. We knew it was Chris because of the cadence of his voice. We were curious on what this next video would produce. Such a sweet, supportive family. You are doing great work!
seems like her body is affected but her mind really isn't, she acts just like any other 2 year old. she's so sweet and i love the relationship she has with her siblings, there's so much love there it's awesome
The oldest sister is beyond her years. Keep her down and keep her in the loop she's so expecting of herself and her maturity level. She seems so open hearted and well spoken. All your kids are a real blessing! Amazing family.
right!! this whole family seems so sweet. the part of the interview where the oldest sister got a lil embarrassed abt misremembering josie's diagnosis was cute 🥹
Awww I can’t believe Josie is here!! Her mama is so strong and funny! No wonder she’s raising such cute, resilient daughters. I have been following them on insta for ages ❤
I was so 😁 by mum.
It's amazing how he can make a new friend whenever he meets someone. It makes me happy when he plays with the kids and makes them laugh during interviews.
She's absolutely adorable!
Such a precious, playful family!!
As someone who is disabled ( dyspraxic ) this channel means so much to me. It makes you feel less alone. Seeing all these beautiful children & adults whilst raising awareness & sharing their stories. Chris is such a special person , so kind & caring. Thankyou for making this channel ❤
“I love you because you have teeth” 😂😂 cute kids
Oh my gosh she is so sweet. Her little sounds when she wanted swing and the way she played peek a boo were just too cute! Everytime she smiled I realized I was suddenly smiling too. What an angel baby ❤️
This child is having a joyful life.
Thank you, Chris for doing this for this amazing family. One thing I didn't hear, is how truly strong and courageous Josie is. She has been through so much in her first couple years that most wouldn't go through in a lifetime. Josie, simply put, is the jewel in the crown of this spectacular, talented family. Love you guys!
Love the bonding of the siblings. She has such a beautiful personality.
I really appreciated how Mom didn't focus on the negative. Mom needs love too.
Strong parents doing an amazing job. Much love to the family.
When Josie and Charlotte were dancing, I laughed out loud with their joy 😀
“I LOVE YOU… because you have TEETH” 😂😂😭
Chris, what you do in these videos just warms my soul. I wind up crying tears of either joy, compassion or grief for these remarkable families. Families of every kind. I wish I could support financially right this minute but I will donate soon. You really rock the world when you present each video to unveil what a lot of people would be afraid to ask. You show these families for their unwavering love and honesty as they like all humans figure things out as they go. Keep it up.
This mother is incredible you can tell by the kiddos... and Chris thank you for bringing light to this beautiful family 👪
Chris, you are such amazing energy to be around and it shows! Never stop being you! Always love the people you bring the world attention to. Just awesome 👊🧡👍
The way she imitates her sister 🤣 so cute!
“I love you… because you have 🦷 teeth” 😂 It’s funny because she’s so filled with love, even if Chris didn’t have teeth she still would have said she loved him 😂 God Bless this beautiful family ❤
8:22 'she's just the perfect person, if there was one' her oldest sister is already growing up to be a lovely person herself
Hats off to Mum. Families who do this caring work 24/7 deserve Purple Hearts. 💜💜💜
You can tell this little girl has a wonderful and loving family. That’s such a blessing. Chris is always super great with all the kids
Josie is absolutely adorable, she looks like a painting. So precious
Having worked with these beautiful children ...whatever their need....they have the ability to love without judgement . A very humbling experience..they taught me a LOT ! To share their love and hugs...better than a lottery win. Beautiful souls !
i love how half the interview he's being attacked with so much love
She’s THE CUTEST 😭❤️
Josie is hysterically funny. Her family is so loving, supportive & does NOT seem to spoil her. Great family values.
by far one of my favorites!!! such a joyful and compassionate family!!!!!!
she is an absolute cutie pie! and her sister is such a sweetheart and so supportive.
She is adorable. You can see how alert she is. What a rich in love family.
I think she is the CUTEST kid you have ever had on here!
I'm so happy youtube got their act together and finally gave you your comment section back! It was so sad not being able to give words kindness and love to all the people you interview.
She’s a doll!
Thank you Chris, for being so goofy with these kids. That first look, smile, and laugh she gave you, is PRICELESS!! She may not have the traditional laugh like everyone else, but to here her enjoying your enthusiasm for every fist pump, is wonderful!! And moms reaction every time, is great! And here belly laughs, what a kid!
That Mum is a 🌟
Plus she's really pretty 😍
the mother's laughter is pure joy. what a beautiful family.
Awwww I love her and her sisters and the love they have for each other
When she got embarassed, I chuckled out loud XD So raw!!!
All of these kids are hamming it up for the camera 😂😂😂 love it
Joise is so adorable and needs to be protected at all costs 🥺🥺
Such a sweet, beautiful family! Thank you for sharing your story with us😊 Josie is a beautiful child! Loved seeing her laugh during hide and seek. Wishing her and the family all the best!💜
Chris, you are the bestt with kids! Amazing interviewing and great job on this video👏👏😁🥳
Ich finde das so schön das die Geschwister sie mit dieser Behinderung akzeptieren und auch ihr gegenüber Respekt zeigen so wie sie ist, diese Menschen gehören einfach auch in unserer Gesellschaft und haben verdient geliebt zu werden, mein Kompliment und eine sehr tolle Familie❤🥰
That little girl is so beautiful 😍
She’s adorable and her little sisters are too . I love when her little sister said that there was monsters all over the world and that superheroes came and took them all away . Chris you are a superhero and all of these children and everyone loves you dearly you’re an angel unaware . 💕😇💕
Every single person in this family is so charming and so smart, I could watch endless videos of them all interacting with each other. Of course, I hardly expect them to make a daily vlog or anything like that, because they have lives to live away from the camera, but what a privilege to be included in their world for just a few minutes.
Josie's belly laugh when she grabbed her legs and bent over was great and she seems so mature for her age too. What lovely kids! ❤️
Mom is doing right job. You can see it in her children. Love it so much ❤️
“she says yes” oh i live for her
Omg! That sign she does to swing is beyond cute!!❤
The sounds Josie was making when she wanted to go on the swing was adorable!!
Chris’ sky blue sweater getting all stretched out for the sake of the children’s pleasures. He is so generous and caring. 😇♥️🙏💕💕💕💕💕💕💕💕💕💕💕💕
Shes so cuteee and happy :3 what a great family i love them!!