6:26 God bless the parents who understand that the care of their son will not be the responsibility of their daughter-- unless she wants it to be. So many parents just assume their other kids will want to take on that responsibility, & that's not fair.
I am one of those parents. I am a 69 year old widow, who has the responsibility of a 32 year old autistic daughter. I have a "normal" son, but he may not be financially able to care for her, when I'm gone. I wish we had more centers like this, that offer lifelong care.
It's not just financial either. It's possible that your son won't want to care for her. (That's nothing for him to feel ashamed of or feel guilty for either. Not everybody wants to take on that responsibility and that's understandable.) Maybe he'll be married and have kids of his own and he just won't want to. That's also something that has to be considered. ❤
This is an awesome model! We stress about life for our kids after we pass away.... this has foundational principles for a productive, happy life when these kids become adults.
My oldest has autism. 30. She has a 20 year old brother and a 16 year old sister. The worry never ends. Unless you live this life, nobody gets it. It is constant stress. Parents give up their entire life. Forever altered. As a mom it is draining. Teachers can give them back at the end of the day. They have a life. Stress free vacations and holidays. Fighting to get adequate education, hiring lawyers, setting up special trust funds. It is like a constant stressor. My youngest children have a life. But are like this sister in this video. Their future spouses and world is this exact fate.
We need more of these places for kids and adults. I’m in Pennsylvania. It’s that state that has the most services for adults, but it’s not that great. We need places like this here.
My mom is actually a residential care coordinator for adults with disabilities, run through a nonprofit in my hometown. It’s got challenges, but supporting adults with semi-independent living has been life-changing for her residents, and also their families. This is such a big need and I hope we see more creative and thoughtful solutions to support adults with varying needs!
My husband and I stopped sleeping soundly as our 23 year old who has autism approaches college graduation. They value living independently (in an apartment less than a mile from our house) but we cannot afford to maintain 2 households. I really share the worry of wondering what will happen to our child after we die, even if we establish a spec needs trust.
That's pretty incredible about the food they provide. I know many people with Autism and a good percentage are picky eaters hooked on chicken tenders and ultra processed foods.
That too becomes an issue in that as difficult as it is fir the parents, who have the knowledge built up over the years, and resources, we parents do not want our other kids to have the resentment lingering over potential lives lost or quality of life forfeited to basically raise siblings. And kids say no but a range of emotions when there is such a huge change in life.
Telos U is a place that specializes working young adults who are neurodiverse. I’ve found them on a website. They do life skills and help people work on steps to live independently. Sadly there is only one and it’s in Utah. I think every state needs a supports like this and like in this video
It’s heartbreaking to deal with. My Grandaughter is 17. Being homeducated. Struggling. There just seems to be no hope, she gets worse everyday. She lives under her blanket
What really needs to be investigated is the special needs departments in schools and the mishandling of funds and or cuts these school districts make on such an extremely important department our education system. These special needs teachers and Paras put every ounce of their energy, stress and care into these kids with extremely low wages and high stress. These teachers provide everything in their classrooms out of pocket. With little support and funds from school districts. They are probably the most underpaid and under appreciated educators in our education system.
Look into the statistics of left handedness. We've stopped punishing people for being autistic (locking them away, never to be seen again). That's why it seems more common now.
Wow. Can't believe the replies you got. " by chance"?? Because it is talked about it is more common? Really? It was1 in 400 when my grandchild was born. It is not CHANCE .....it is not allowed to be discussed.
This is great! I used to work with adults with autism/dev disabilities and they usually live with parents. It concerns me that 1 in 36 kids is diagnosed/has autism. Wow.
I am the sister shaking my head yes, my responsibility one day. It’s so hard because we Ave already been through it with my uncle 🤦🏻♀️ unfortunately it is soul crushing at times
This seems to be a wholistic approach to help autistic people function better.One important consideration is that each and every human being is a soul in a body. When the body decomposes at the time of death, the soul continues on for all eternity.
I love the concept however the majority of families with individuals who experience IDD / autism and other significant developmental disabilities would not be able to functionally afford placement here. Also a brief look at their careers page show that they are paying significantly below market rate for qualified support staff. $17.50 an hour to be in a position that can be physically and emotionally challenging, where there is high rates of burnout and little management support. This is a great place but its not an accessible model, nor does it even come close to being able to assist the individuals effectively or provide support to the vulnerable families. YAY! It exists . But it doesn’t go remotely far enough to address the adult idd community.
4:15 - how do they get the autistic people to change their diet? My boyfriend’s son is 21 and is autistic and he insists on eating certain foods on certain days none of it particularly healthy. But I get the impression it is very hard for him to make dietary changes.
1 in 1,000 diagnosed with autism in 1995 and now in 2024 it is 1 in 38 people diagnosed with autism. This country is so off the rails. How about 30 years from now EVERYONE is diagnosed with autism...
We are better at identifying people with Autism. That applies to girls, women, adults, and people who are minorities. The diagnostic criteria changed. It used to be that a person could only be diagnosed with Autism or ADHD. But now you can be diagnosed with both. Also, it's not like every child with Autism will grow up and need this level of support. It is a spectrum after all.
This is what us as a human race are capable of doing for others. Instead of closing people with special needs out of society. Give them the care that they need and a place to flourish in the best way that they can. We could build a world where everyone can have a purpose and a fulfilling life if they are autistic or have any sort of mental problems. But it always comes down to money, our society as a species is so enveloped in the monetary way, that if we broke free from that we could have a more caring loving world where everyone could flourish in this life. If we let go of the greed the money would be there
1 in 36?? Did I hear that right? I don’t believe that. I have a son w autism. He is 21 yrs old. In his class growing up, there was not 1 other kid with autism. This was in a normal public school elementary school. The school had no idea what to do with him. So how can it be that now almost 1 kid per classroom has autism. They don’t. I will never understand why so many self diagnosis themselves as autistic. It’s trendy to be neurodivergent… and I will tell you it is NOT! We are so lucky, bc my son is in college and is hanging in there. But there are still issues about all kinds of things all the time.
The parents will say ITS BEST FOR HiM because the family will not deal with an autistic person. Give it to the State or “in” a program… but hell away from their house. Figures!!!
Have you walked in their shoes? It’s very hard to raise an Autistic child and adult. It takes a community. These are good and loving Parents who want to give their child opportunities to grow and be a productive person.
My mom wouldn't say that. She worked with people with developmental disabilities.for twenty years. She raises me as an adult with Autism which is caused by the genetic disorder that I have. I also have physical disabilities. I do a day program in my state for adults with Autism. I do it on my laptop since I live with chronic severe pain. I'm working on independent living skills with my direct support professional twice a week. I am thriving with my day program for adults with Autism. Once I recover from my orthopedic surgery I'll go out with one of my staff and two people who are in my classes. I'm thriving and so happy living at home and doing my day program online.
Disability march next year in October in Washington DC for disabled people and their families and friends and educators who support disability services and inclusion
This makes me so emotional ..I have a daughter on the spectrum too who Is about to graduate from highschool …I worry about her future
They need to have multiple places like this in each state in the USA.
This place is remarkable.
Amen!
6:26 God bless the parents who understand that the care of their son will not be the responsibility of their daughter-- unless she wants it to be. So many parents just assume their other kids will want to take on that responsibility, & that's not fair.
As a former employee who worked there 24 years, I still think of the Center and the residents often.
The sister knows it's her place to care for her bro when Mom and Dad are gone. That's a loving sister ❤️
So much love for these individuals and families. Let’s work as a society to echo this establishment of care across the country. ❤
Amen 🙏 ❤
I am one of those parents. I am a 69 year old widow, who has the responsibility of a 32 year old autistic daughter. I have a "normal" son, but he may not be financially able to care for her, when I'm gone.
I wish we had more centers like this, that offer lifelong care.
It's not just financial either. It's possible that your son won't want to care for her. (That's nothing for him to feel ashamed of or feel guilty for either. Not everybody wants to take on that responsibility and that's understandable.)
Maybe he'll be married and have kids of his own and he just won't want to. That's also something that has to be considered. ❤
This is an awesome model! We stress about life for our kids after we pass away.... this has foundational principles for a productive, happy life when these kids become adults.
I have high fuction autism
And my passion is art and I’m in art school
My oldest has autism. 30. She has a 20 year old brother and a 16 year old sister. The worry never ends. Unless you live this life, nobody gets it. It is constant stress. Parents give up their entire life. Forever altered. As a mom it is draining. Teachers can give them back at the end of the day. They have a life. Stress free vacations and holidays. Fighting to get adequate education, hiring lawyers, setting up special trust funds. It is like a constant stressor. My youngest children have a life. But are like this sister in this video. Their future spouses and world is this exact fate.
We need more of these places for kids and adults. I’m in Pennsylvania. It’s that state that has the most services for adults, but it’s not that great. We need places like this here.
We need so many more of these. The number of autism diagnoses is increasing, and adults on the spectrum need care, love, safety, and goals.
That's so tough for his parents and his sister.
My mom is actually a residential care coordinator for adults with disabilities, run through a nonprofit in my hometown. It’s got challenges, but supporting adults with semi-independent living has been life-changing for her residents, and also their families. This is such a big need and I hope we see more creative and thoughtful solutions to support adults with varying needs!
Bless her kind soul ❤
In most less developed countries there are no support systems
My heart. I have the same parental worries. My 20 year old has autism.
My husband and I stopped sleeping soundly as our 23 year old who has autism approaches college graduation. They value living independently (in an apartment less than a mile from our house) but we cannot afford to maintain 2 households.
I really share the worry of wondering what will happen to our child after we die, even if we establish a spec needs trust.
Do you get services from your state, if you're in the US? In NY for example it's the Office for People with Developmental Disabilities
That's pretty incredible about the food they provide. I know many people with Autism and a good percentage are picky eaters hooked on chicken tenders and ultra processed foods.
That too becomes an issue in that as difficult as it is fir the parents, who have the knowledge built up over the years, and resources, we parents do not want our other kids to have the resentment lingering over potential lives lost or quality of life forfeited to basically raise siblings. And kids say no but a range of emotions when there is such a huge change in life.
Need places for those young adults higher functioning on Autism Spectrum as well to help with life skills.
Telos U is a place that specializes working young adults who are neurodiverse. I’ve found them on a website. They do life skills and help people work on steps to live independently. Sadly there is only one and it’s in Utah. I think every state needs a supports like this and like in this video
It’s heartbreaking to deal with. My Grandaughter is 17. Being homeducated. Struggling. There just seems to be no hope, she gets worse everyday. She lives under her blanket
I think this place is amazing for those who need the help & teach the residents.
wow and it's in the catskills.. beautiful location. even the fresh mountain air can be very therapeutic 😊
My heart goes out to these families 🙏🏿
This is awesome because ya don't want him or others to be like me now that my parents are both gone.
Prayers ❤❤
What really needs to be investigated is the special needs departments in schools and the mishandling of funds and or cuts these school districts make on such an extremely important department our education system. These special needs teachers and Paras put every ounce of their energy, stress and care into these kids with extremely low wages and high stress. These teachers provide everything in their classrooms out of pocket. With little support and funds from school districts. They are probably the most underpaid and under appreciated educators in our education system.
1 in 26 now, 20 years ago that statistic was 1 in 45, in my youth 1 in 300. Look into that!
How much did the population grow over that time? Doesn't more people mean more chances? Aren't we better at diagnosing it now?
Look into the statistics of left handedness. We've stopped punishing people for being autistic (locking them away, never to be seen again). That's why it seems more common now.
Wow. Can't believe the replies you got. " by chance"?? Because it is talked about it is more common? Really? It was1 in 400 when my grandchild was born. It is not CHANCE .....it is not allowed to be discussed.
Perhaps it’s because people that would have previously been diagnosed as r*t*rd*d are being examined more closely and diagnosed as autistic.
More people are being discovered.
This is great! I used to work with adults with autism/dev disabilities and they usually live with parents.
It concerns me that 1 in 36 kids is diagnosed/has autism. Wow.
More people are being discovered.
I am the sister shaking my head yes, my responsibility one day. It’s so hard because we Ave already been through it with my uncle 🤦🏻♀️ unfortunately it is soul crushing at times
I am autistic some kids have do not autism but their parents excuse their behavior because of their dysfuncitional family home!
This is amazing!!
This seems to be a wholistic approach to help autistic people function better.One important consideration is that each and every human being is a soul in a body. When the body decomposes at the time of death, the soul continues on for all eternity.
My nephew is Autistic 💙 He is 25.
I'm sure I have autism !
@@felix121984There are quite alot of great resources! Aucademy is my favourite!
I love the concept however the majority of families with individuals who experience IDD / autism and other significant developmental disabilities would not be able to functionally afford placement here.
Also a brief look at their careers page show that they are paying significantly below market rate for qualified support staff. $17.50 an hour to be in a position that can be physically and emotionally challenging, where there is high rates of burnout and little management support.
This is a great place but its not an accessible model, nor does it even come close to being able to assist the individuals effectively or provide support to the vulnerable families.
YAY! It exists . But it doesn’t go remotely far enough to address the adult idd community.
Most of the time the state pays for them to live there
We need more of those working farms for the kids I'm in Minnesota
It's not enough staff.
As an ABA Therapist u need a combo of both. This and the therapy
I hope you're not the type of ABA therapist that forces autistic people to make eye contact and other terrible things.
@@namewithaythe best practitioners have moved away from this.
4:15 - how do they get the autistic people to change their diet? My boyfriend’s son is 21 and is autistic and he insists on eating certain foods on certain days none of it particularly healthy. But I get the impression it is very hard for him to make dietary changes.
It’s unfortunate that this is mostly just for teens/young adults and those in ny.
When my grandchild was born, 18 years ago, it was 1 on 400.you tell me something is not going on...
1 in 1,000 diagnosed with autism in 1995 and now in 2024 it is 1 in 38 people diagnosed with autism. This country is so off the rails. How about 30 years from now EVERYONE is diagnosed with autism...
We are better at identifying people with Autism. That applies to girls, women, adults, and people who are minorities. The diagnostic criteria changed. It used to be that a person could only be diagnosed with Autism or ADHD. But now you can be diagnosed with both. Also, it's not like every child with Autism will grow up and need this level of support. It is a spectrum after all.
I do a lot of occupational therapy.
profound case? incorrect medical term to describe autism.
Maybe they're not keeping up with the euphemism treadmill, but the meaning is the same.
What is the correct term.
People on the spectrum can vary I'm on the spectrum but I'll be able to for most part to hold a regular job
This is what us as a human race are capable of doing for others. Instead of closing people with special needs out of society. Give them the care that they need and a place to flourish in the best way that they can. We could build a world where everyone can have a purpose and a fulfilling life if they are autistic or have any sort of mental problems. But it always comes down to money, our society as a species is so enveloped in the monetary way, that if we broke free from that we could have a more caring loving world where everyone could flourish in this life. If we let go of the greed the money would be there
❤ Oliver ❤
I have to plan out my therapy every day 🎆🎉
I have autism and I think 💭🤔 this is a really good 👍 💡💡💡 idea 💡.
Fathers having kids way too old- see Robert DeNiro,,Al Roker.
Nw works
Yeah but how are kids of colour treated there?
1 in 36?? Did I hear that right? I don’t believe that. I have a son w autism. He is 21 yrs old. In his class growing up, there was not 1 other kid with autism. This was in a normal public school elementary school. The school had no idea what to do with him. So how can it be that now almost 1 kid per classroom has autism. They don’t. I will never understand why so many self diagnosis themselves as autistic. It’s trendy to be neurodivergent… and I will tell you it is NOT! We are so lucky, bc my son is in college and is hanging in there. But there are still issues about all kinds of things all the time.
I can't imagine giving birth to such a broken human. What a waste of life, both the child & parent.
The parents will say ITS BEST FOR HiM because the family will not deal with an autistic person. Give it to the State or “in” a program… but hell away from their house. Figures!!!
Have you walked in their shoes? It’s very hard to raise an Autistic child and adult. It takes a community. These are good and loving Parents who want to give their child opportunities to grow and be a productive person.
Every young adult deserves a chance to live outside of their parents home. That’s how it works
My mom wouldn't say that. She worked with people with developmental disabilities.for twenty years. She raises me as an adult with Autism which is caused by the genetic disorder that I have. I also have physical disabilities. I do a day program in my state for adults with Autism. I do it on my laptop since I live with chronic severe pain. I'm working on independent living skills with my direct support professional twice a week. I am thriving with my day program for adults with Autism. Once I recover from my orthopedic surgery I'll go out with one of my staff and two people who are in my classes. I'm thriving and so happy living at home and doing my day program online.
Disability march next year in October in Washington DC for disabled people and their families and friends and educators who support disability services and inclusion
This is so cool, but it takes money to run these places. I just don’t see our American government supporting it throughout the country 🫤
Tax more billionaires and redistribute wealth