Psychiatric Drug Withdrawal Town Hall 3 - Post-Withdrawal Experiences
ฝัง
- เผยแพร่เมื่อ 14 พ.ค. 2021
- Mad in America, the Council for Evidence-based Psychiatry, International Institute for Psychiatric Drug Withdrawal and A Disorder 4 Everyone
are pleased to announce a series of live, online town hall discussions focussing on issues related to psychiatric drug withdrawal.
For our third discussion, we are examining protracted problems that can arise after psychiatric drug withdrawal. Sometimes referred to as post-acute or post-withdrawal syndromes, these experiences can include chronic health problems and sexual dysfunction. What do we know and not know about responding to long- term health problems after coming off psychiatric drugs?
This discussion was aired live on May 14, 2021.
To find links to the resources and references mentioned during this discussion, visit this page: www.madinamerica.com/pdwref/
Panelists
Adele Framer
Adele resides in San Francisco, USA. A survivor of 11 years of antidepressant withdrawal syndrome, in 2011, under the pseudonym Altostrata, she founded the peer support site SurvivingAntidepressants.org, currently containing more than 6,000 longitudinal case histories from its 14,000 members. A widely recognized patient advocate, she is a lay expert in psychiatric drug tapering and withdrawal syndromes.
Will Hall
Will is a schizophrenia diagnosis survivor and longtime organizer with the psychiatric survivor movement. He is a PhD candidate at Maastricht University and lead researcher on the Maastricht World Survey on Antipsychotic Drug Withdrawal, and author of the Harm Reduction Guide to Coming Off Psychiatric Drugs, as well as host of Madness Radio and a co-founder of the Hearing Voices Network USA.
David Healy
David is a Professor of Psychiatry in the Department of Family Medicine at McMaster University in Hamilton Canada. He has been raising concerns about withdrawal from antidepressants since the mid-1990s and was an expert witness in a successful legal case about withdrawal and dependence in 2004. He figures we have made little or no progress sorting the issues out and now have a major public health crisis on our hands.
Nicole Lamberson
Nicole is a physician assistant as well as a patient suffering protracted harm following a rapid medical “detox” from prescribed benzodiazepines/Z-drugs & other psychotropic polypharmacy. She co- founded The Withdrawal Project, serves on the Medical Board of Benzodiazepine Information Coalition, & does outreach for Medicating Normal-The Film. - วิทยาศาสตร์และเทคโนโลยี
Something I wanted to add that I failed to say: protracted withdrawal can also be extremely difficult for the loved ones and family members of the sufferer. Their lives are often grossly impacted and they suffer too, alongside the sufferer themselves, and that should've been mentioned.
Something else that wasn't mentioned is how long the person has been on the medication. Dr. Breggin knows which medications should be tapered first. When multiple meds are going to be tapered. And Ann Blake Tracy has the name of a doctor who knows about what supplements should be taken,
I’m 4.5 years PAwS. Crazy illness given to me by my uneducated GP. After this happened to me I investigating 14 gp’s and 17 pharmacist and emergency doctors at the hospital. I can tell you here in Australia our doctors are in denial and uneducated. We have found ourselves in a very dangerous situation.
I just mentioned to my partner how incredibly difficult it is to heal over such a long time. For all those people suffering hang in there and be good to yourself. Your family need to be educated on this subject. 🙏🏻
🐨 Thank You 🙏🇦🇺🦘
@@dianamanning-squire4193 ❤️🙏🏻 👍🏻
I stumbled across site Deadly medicines and organized crime (I heard about it in TH-cam video, interview with Gotzsche). There is resources on this site: psychiatric drug withdrawal. They have list of people who can help you with tapering of psychiatric medication. As soon as I remember there were people from Australia there.
🙏
Thank you all for continuing to make these discussions available to the general public.
I’ve been struggling with depression for my entire adult life. I took fluoxetine & adderall and wound up on lexapro & vyvanse. These landed me in an inpatient ward for 2 weeks. The PA I last worked with noted that I had gone through an antidepressant induced mania. They asked if I was suicidal, I said yes only because I thought I would be denied services if I said no.
They completely changed my meds from the 1st day I was inpatient. I realized while in the hospital that the drugs were not helping me at all. So I tapered off of the drugs on my own. Then quit all psyche meds on 4/1/21. I call last winter my COVID19 Psychosis time. Watching what has happened with big PHARMA made me question the motives of doctors. I’m coming through the dark night of the soul now. It’s scary like a tightrope with no net.
I'm so sorry to hear this. How are you doing these days?
That's the thing, if you don't answer properly to the questions, you'll automatically be denied services. And going to a psych ward does more harm than not. I'm glad you're pulling through tho. I'm currently off my ritalin, and fluoxetine along with buspar. And the doctor ended up telling me I'd end up dead from withdrawl if I didn't keep taking the medication. Not only do I feel much better, but I have permanent brain damage and still suffering. I no longer have a family doctor or even a psychiatrist. Been off drugs for about 4 months now and nothing about detoxing is easy. Doctors are all sick in the head. They all lie. I also stopped taking birth control because I found out I now have irregular periods and have scarring in my uterus all from the side effects of the junel fe. So I will continue to fight as hard as I can.
@@Nat-ster I’m still here! Free of psyche drugs! Dealing with seasonal depression on my terms! My light box & support groups help immensely!
@@hipnicity what's a light box?
@@Nat-ster some call them happy lights. It helps my mood when daylight is short in Washington state in the winter.
Thank you so much all of you for this amazing discussion, sharing, witnessing, informing which has been done with so much respect and so much understanding for all the people, doctors, patients, family, all of us who in à way are being part of this journey !
James, thank you for another excellent presentation, including pulling together this top-of-the-line panel with such excellent information in this area where there is far too little research for such a massive (and even worsening) public health crisis. Psychiatry almost always does not solve the underlying problems of people which originally lead them to be psychiatrically drugged in the first place. For indeed, if these iatropic problems were solved, then psychiatric drugging would not have occurred. Then, when the patient realizes the iatrogenic harm and lack of efficacy of their psychiatric drugs, they are not only dealing with potentially devastating (and all too often significantly protracted) physiological withdrawal symptoms (that still far too few medical professionals are properly trained to deal with), but also at the same time are dealing with the socio-politico-economic-psychological-spiritual-medical problems which lead the person to be drugged in the first place. For example, the medical industrial complex's failure to properly research and diagnose and treat diet and microbiome and sleep and vital deficiency issues (including those related to Vitamin D3 and Vitamin K2 and Magnesium and Zinc and fiber deficiencies as well as iatrogenic prescription medication usage) is a major reason why psychiatric iatrogenesis is a primary contributor to the third leading cause of death in the U.S. (which is iatrogenesis in general). If the U.S. spent just a fraction of the over $40 billion each year it spends just on iatrogenic psychiatric drugs alone, for properly researching the issues discussed in this and related TH-cam presentations we would probably, Lord willing, achieve an absolute revolution in medical efficacy improvement and iatrogenesis reduction.
Also, Dr. Healy's comments about the special problems of women are well placed. Women have been target marketed by Big Psychopharmaceutical Pharma for decades in the US causing huge amounts of iatrogenesis in the US. Over 20% of US women over forty are taking at least one antidepressant drug. Women like all people everywhere should be appropriately loved rather than iatrogenically psychiatrically labelled and coerced and drugged. Thus, for example, in a related US current events issue, Ms. Spears' request (in her 6/23/21 public statement to the court) that she does not want to be psychiatrically evaluated, should be immediately granted by the court. The psychiatric standards of care that would allow (and especially for over ten years) such sinful treatment of Ms. Spears are simply bad science and bad medicine as scientifically and ethically proven in my 8/16/18 Medicaid.gov public comment at the following Medicaid.gov URL:
gov1.qualtrics.com/ControlPanel/File.php?F=F_4SLEiyf2ZtEeb4h
Accordingly, Ms. Spears should not be forced into any psychiatric evaluation or treatment, and should not have to prove that she deserves all of her U.S. civil rights and all of her God-given rights. The full burden of proof of any allegations that Ms. Spears is not worthy of her U.S. civil rights (and all God-given rights to freedom) should be entirely placed upon (including entirely financially paid for by) those making such allegations and those who are using the bad science and bad medicine of psychiatry to so sinfully rob Ms. Spears of her God-given rights including her God-given right to mind freedom.
For indeed, God Himself is clear that we should be first doing no harm to all people everywhere in all matters.
Thomas Steven Roth, MBA, MD
Christian Minister for Biblical Medical Ethics, and therefore, Scientific and Religious Refugee from the Clinical Practice of Psychiatric Standards of Care
WOW - I think that addiction recovery places who take patients off every medication not related to a physical issue REALLY need to rethink that method. ESPECIALLY after hearing about the DELAYED onset of some pretty horrific symptoms and experiences.
Very good information. Which completely matches my WD and side effects after long time use of zoloft. Lost income and lost years.
I was prescribed an anti-psychotic during an involuntary psychiatric ward stay for suicidal thoughts. I do not have any psychotic disorders or episodes. The only indication why this drug was prescribed on my chart is a quote mood stabilizer and the diagnosis I was given was major depressive disorder. I didn't tell them about my autism spectrum disorder at the time and I was not given an opportunity to consult with the psychiatrist until after I have been taking new medications for several days because I was told that was the only way I would be allowed to go home. So I was foggy headed when I talk to the doctor now I don't even remember how long I took the medication. It was suddenly i stopped because I had another crisis and my discharge plan was a joke
I was prescribed antipsychotics for sleep and depersonalisation/derealization. I had already been hurt by antidepressants so I did an extensive research about them and ended up not taking them.
The most baffling thing for me that I discovered that it's written everywhere that antipsychotics have been more and more pushed on patients as sleeping pills while they're supposedly being warned against that practice. Why??! How does any of that make sense?
And by the way, my need to take an additional drug for sleep was diagnosed this way:
Doctor: "Do you sleep well at night?"
Me: "Usually, yes. I sometimes wake up around 2:00 am but go right back to sleep."
This system is truly broken and scary and I learned to answer "yes" to that question no matter what health professional is asking me that question.
I also wanted to say that your story is truly frightening. Not even knowing what drug they put into your body... I heard a woman talk about her in-patient experience in a psych hospital and she said patients who disagreed to take their meds were tackled and forced to. We live in a sad, sad world.
I hope you're doing better now.
Steroid metabolic can be worse even death because of the horror they put you through.
@@huntasoup1:08:48
Here here to every single word Nicole stated in this presentation. As a family member now I beg of other family members wake up understand what your medicated or formerly medicated family member has been going through and is going through. Support them, believe them help advocate for them!!!! And yes proper Terminology is critical they are experiencing psychiatric drug injury let’s use the right Terminology and stop beating around the bush! It’s time to address what’s really going on.
Never did never will happen as if a great Delusion is more evident and evil as it apears to control the masses. in any shape or form excluding any thing to do with whats really going on. Voidence is your friend standing next you telling other none related issues as we just continue to ok it to get off the easy way witch causes more injury .today still ordering many other medical help that does not show up any injury till its to late as if it was set up and perfectly planned.
It's not just with pharmaceuticals, it's with EVERYTHING. It's their 2030 depopulation agenda. It's so sick and inhumane. These elites should be locked away in prison for what they're doing.
Thank you 🙏 health hero’s
Thank you all so much for caring and continuing to do the valuable work you all do so tirelessly
Went into protracted withdrawal a year after discontinuation of SSRI. No one knew what it was. I reinstated. For four months. Tapered off again and back into protracted withdrawal again. Reinstated again. Eight weeks of hell later. We need to put a face in all of this
I got this Med from a GP. ‘Think of it as a brain vitamin’.
Thank you so much 🙏 💔
Grateful for these talks. Thank you.❤
I was only on zoloft 9 months tapered for 5. I went on them for panic attacks. I jad weeks of increased anxiety and panic attacks but got told it got better. At 50mg I had the feeling of disassociation which freaked me out so started tapering. I went fro 50 to 40 to 30 then the last bit I had to get liquid . I had terrible withdrawal, sweats , insomnia, hearing things seeing things scared me.to.death . Gp didn't believe.. 3 months off and still getting sweats every day . Gps are ignorant and think once off rhee drug its out f your system. They have no ideas about prolonged withdrawal and the damage these drugs do the the brain and hypathalumus which controls body heat hence the sweats. I'm on hrt and thought ii needed a higher dose but when I increased dose I still got these sweats I ind of knew it wasn't thst I needed to increase it as I was fine before starting zoloft. I've had bloods done which were normal but my gp.wont look into other blood tests.
How are you now?
So sorry. I pray you get safely off these dangerous drugs and I pray for a full recovery. I'm going through it now. Just to lighten the mood I guess lol when I started cold turkey off buspar and prozac (highest doses too) I ended up peeing the bed. Ended up waking up in a bed soaked full of smelly urine. 😂I will get better. Keep pushing. We can do this
Thank you, very informative & helpful.
Thankyou for this important discussion. I think there are absences and gaps in knowledge, experience and practice that need to be voiced and included in the global debate. I have shared this discussion widely amongst my contacts as I spend the day at home resting, having made the deeply personal decision in collaboration with my doctor to halve the dose. We do not need to suffer. All the best. Kind regards.
How are you doing now Fiona? A 50% drop is dosage is quite large so I'm curious how it was for you. I'm currently tappering off of my SSRI after 23 years.
Thank goodness for all you x
Thank you Nicole well said 🙏🏽 God work 🙏🏽
Thank you x
I’d rather die than go back on an antipsychotic!!
As a black woman, this us so true!
Is there an online peer support from people of other countries I live in Argentina and had psychosis went off meds slowly but is dificult not to have someone to talk about who faces same problems. I do therapy but is not helping much. Medication side effects are so many and we dont have information in other countries. Thank you
Why don't they ever seem to include tricyclic drugs? Or did I miss it somehow?
I'm bored with seeing and hearing the SAME few people over and over again. There are many thousands of us out here suffering. I'd like to hear from different people if that's possible. Thank you.
Can you please to do timestamps. I have attention problems because of long use of antipsychotics. Please in your future videos do it. Accommodate people with mental health disabilities.
Anyone can benefit from Animal Assisted Therapy, I believe LOVE.
Shrinks have a manner to ask you professional questions like do you hear voices, do you have delusions. They often are saying, I don’t understand what are you saying to me.
I was put on Serenace(Haloperidol, Haldol) at the age of 20 to treat a nervous tic, and discontinued it 50 years later in 2018. Since then I've had a mixture of positive effects, and bad withdrawal effetcs. It's a long story. I put in on my Microsoft One Drive. Please do at least scan through it.
Hi there. I'm on Haloperidol and been having horrendous side effects. The worse of which is chronic insomnia, mania and crippling depression. How are you now? Did you get off the drugs by yourself and if so how?
HI @@josephinefay9346. I thought I replied a couple of days ago, but it didn't appear. In my case, the deciding factor which made a neurologist suspicious of Haloperidol was TD - Tradive Diyskinesia - tremors. That is now known as a long term effect of anti-psychotics. But the tremors didn't appear until more than 45 years that I was on the drug. But now I suspect Haloperidol being implicated in other strange effects over the decades (1) Depression. I used to think it had something to do with my childhood, but really the first sensation there was "something wrong" would come and go seven years after I started on Haloperidol (2) When I broke my ankle at about 40 and developed avascular necrosis, the surgeon said he had seen this in only elderly people. (3) 30 years later a funny sensation in my legs and increasing tiredness. Many tests proved nothing.
Now I am in my sixth year of withdrawal - headaches, nausea, giddiness... often crazy thoughts - can't describe. Will I survive? So far with hard work. Keeping busy. Don't know how long I can keep it up.
But you - I don't know why you are on Haloperidol, but I'd ask for a review. It is a "First Generation drug. Others may be safer. By the way, I did heaps of researching - into dopamine and dopamine receptors. I wish you luck. I look forward to hearing from you.
Hi I’m withdrawing from an antipsychotic and really would appreciate connecting with likeminded people, is there any way to be in contact?
How are doing now? Im almost 4 months off invega. Symptoms lightened up abot at 3 month mark, but still feel that my emotions are blunted.
Told my doc the medication venlafaxine stopped working 225mg and she told me keep on taking it because it’s better than nothing . She later dropped me because my tone of voice and not follow her rules so she left me hanging
akathisia and withdrawal are not the same thing . Using these two terms interchangeably the popular same reason when people look up the side effects of their medication akathisia does not come up. In the algorithms do not produce these types of videos until it's too late. When you finally figure out what akathisia is you're probably suffering through it.
What's horrific is how Paxil is pushed at menopausal women with hot flashes and insomnia as an alternative to estrogen. By the time you know if it would help, you'd have to taper off very carefully. I fired a GYN who pushed that at me.
NY Times article "When Rage Explode Brain Damage May Be the Cause." 1990 article from the New York Times. Psychiatric drugs do not help those with Traumatic Brain Injury. A drug called PROPRANOLOL DOES. They interviewed prisoners and most of them have suffered from head injuries. Also the movie "CONCUSSION" alerted the public to so many football players suffer from TBI. Many suicides have occurred because of non helpful prescribing.
Can someone help.
If I drop from 225 to 200 Seroquel n have issues can I go back up 225 n hold for few more wks? Do u recommend this? Or wl it mess my body up?
Also what does one do about insomnia.Thats why I was put on Seroquel.
Also if I go slow enough wl this help me not get withdrawal symptoms. Akasthisia, vomiting ect...
Hi Cheryl- Google Will Hall's Guide to Hard Reduction for lots of specific information regarding tappering. Generally, people have less intense withdrawal symptoms if they taper 5-10% of their dosage at a time. Small tapers and give your body and mind TIME at each taper (2-4 weeks minimum for most people?). To try to answer your question, I've read that people can generally return to their previous dosage if they find their current drop on dosage is too hard to bear. This generally happens when the taper is too large (like a 50% or more drop). I've also read that when say, someone goes "cold turkey" and experiences really intense withdrawal, sadly, sometimes they have additional complications when they try to return to their original dose. (Btw I'm no expert, just someone who's trying to do their own research. Take what I say with a grain of salt)
Tappering is very individual but low and slow seems to be the best strategy. I'm currently tappering off of my SSRI after many years and I'm finding tappering to be a holistic process. I've changed my diet, I'm exercising, learning more about mental health, journaling and meditation have become a part of my daily routines, etc.
I wish you and everyone else getting off these damn pills the best of luck! We can do it!! 💪🙏
@Jyoti Koomar how many mg are u on?
You can ta k e melatoninen to help sleep. And you have to cut 25 mg in 4. And down very slowly . LIKE DOWN A QUATER PER MOUNT its very long.
As the diagram shows, there is no chance to recover since its brain damage/toxicity. Its just done.
Not true. Some people have healed though it took years
For PSSD, for other stuff there’s a lot of hope
@@xxx-ly7jf if you cant recover from pssd/emotional disconnection/genital anesthesia how can you recover from anything else. Im into this hell for 12 years and I did not feel shit..
@@tomasztomaszewski37 you are 2 years in, I’ve seen your account other places, and I know because I have pssd, and many other post withdrawal symptoms and many withdrawal symptoms have gotten better for me, there is evidence pssd is permanent while there isn’t evidence other withdrawal symptoms are
@@xxx-ly7jf I have severe pssd for two years, but been suffering for 12