This is so true- people often forget this ant dynamic disabilities and chronic illness especially if the person uses varied mobility aids like you and me. Thanks for bringing awareness!! ❤️
I want to thank you so much, you have no idea how much you make my day better. Back in October of 2023 I was diagnosed with hashimotos, then in January I was diagnosed with 2nd degree AV block in my heart. I’ve had medication readjusted about 5 times since my hashimotos diagnosis and I constantly feel dizzy and like I’m going to gain as well as joint pain on the daily and headaches that last forever. Earlier this month my doctor referred my to a rheumatologist to see if I have JIA. My appointment is in the next few weeks and I keep feeling as if more medical problems keep getting thrown on me but you have always been there whenever I have a flare up or I’m in a lot of pain so thank you for being there. You are making a difference in the world. Love you lots and hope you have a good day today 🫂
Heck yea!! I am working on setting up accommodations for my school so that I can start off high school right! Any tips for school/collage with chronic illness?? ❤
More time for tests, decreased work when school is missed, elevator privilege, leave class early so there is room in hallways, etc. is what mainly helped me. Just communicate with your teachers and get a 504 plan
I have found, extra authorised sick days days where I dont have to come in/do the work is super helpful in pacing, often called a reduced timetable like I had. Also yeah eating and drinking privileges and extra time, but also maybe specific seating in classes/exams that fit your needs like mine was close to a door at the very back, finally id say is have a place to go in school if you need, like I could go to my scjools learning support to sit/work when I needed. Having a care plan or accommodations is so helpful, and it js makes sure your teachers know abt ur conditions and symptoms to make your life the best it can be :) good luck ‼️❤️🥄
I feel this so much I have the same disabilities and it really depends on the day how my body is going to feel and how it’s going to react just by waking up and getting out of bed it’s crazy. Stay safe and healthy and keep on striving every day ❤ love you 🥰
I’ve enjoyed your channel since before I found out that I have some sort of autonomic dysreflexia like pot or something haven’t found out what I have yet, but I at least know that much now
I wish more people understood this 😅 Make sure y’all don’t hold your good days against yourselves either! You are disabled and deserving of support on your best days AND your worst days! 🫶🏽🥄🥄🥄
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This is so true- people often forget this ant dynamic disabilities and chronic illness especially if the person uses varied mobility aids like you and me. Thanks for bringing awareness!! ❤️
Girl, every your video has so much sense! Thank you for advocating on your channel for all the chronically ill people🫶🙏🫂
I want to thank you so much, you have no idea how much you make my day better. Back in October of 2023 I was diagnosed with hashimotos, then in January I was diagnosed with 2nd degree AV block in my heart. I’ve had medication readjusted about 5 times since my hashimotos diagnosis and I constantly feel dizzy and like I’m going to gain as well as joint pain on the daily and headaches that last forever. Earlier this month my doctor referred my to a rheumatologist to see if I have JIA. My appointment is in the next few weeks and I keep feeling as if more medical problems keep getting thrown on me but you have always been there whenever I have a flare up or I’m in a lot of pain so thank you for being there. You are making a difference in the world. Love you lots and hope you have a good day today 🫂
That cane is so damn cute🥹
Heck yea!! I am working on setting up accommodations for my school so that I can start off high school right! Any tips for school/collage with chronic illness?? ❤
More time for tests, decreased work when school is missed, elevator privilege, leave class early so there is room in hallways, etc. is what mainly helped me. Just communicate with your teachers and get a 504 plan
Also eating and drinking privileges if necessary 🫶🏽
I have found, extra authorised sick days days where I dont have to come in/do the work is super helpful in pacing, often called a reduced timetable like I had. Also yeah eating and drinking privileges and extra time, but also maybe specific seating in classes/exams that fit your needs like mine was close to a door at the very back, finally id say is have a place to go in school if you need, like I could go to my scjools learning support to sit/work when I needed. Having a care plan or accommodations is so helpful, and it js makes sure your teachers know abt ur conditions and symptoms to make your life the best it can be :) good luck ‼️❤️🥄
Trying to explain this to my family. It's hard.
I feel this so much I have the same disabilities and it really depends on the day how my body is going to feel and how it’s going to react just by waking up and getting out of bed it’s crazy. Stay safe and healthy and keep on striving every day ❤ love you 🥰
I’ve enjoyed your channel since before I found out that I have some sort of autonomic dysreflexia like pot or something haven’t found out what I have yet, but I at least know that much now
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I wish more people understood this 😅 Make sure y’all don’t hold your good days against yourselves either! You are disabled and deserving of support on your best days AND your worst days! 🫶🏽🥄🥄🥄