Amputee Reacts:
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- เผยแพร่เมื่อ 24 ก.ย. 2024
- Do disabled people feel fulfilled? Are people ignorant about disability in our society? Jubilee's video did a fantastic job of bringing together people with disabilities from different backgrounds to answer questions about disability - and I, as an amputee, answer the same questions & comment on the responses!
Original Video: @jubilee Do All Disabled People Think The Same?
• Do All Disabled People...
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MY STORY //
Fourteen years of pain and failed ankle surgeries brought me to 2018, when I made the difficult decision to become a twenty-seven-year-old below-the-knee elective amputee. This channel is to document my journey of amputation surgery, recovery, and reclaiming my life.
MY PROSTHETIC LEG:
I use the Ossur ProFlex XC Torsion foot/ankle with a direct socket with passive vaccum suction.
MY AMPUTATION STORY - IN VIDEO:
Why Did I Lose My Leg? • HOW I BECAME AN AMPUTE...
How I Said Goodbye To My Leg: • COME WITH ME ON A GOOD...
Seeing My Amputated Leg for the First Time: • Seeing my amputated le...
Day in the Life of an Amputee: • A Day in the Life of a...
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I felt that girl stating that her teachers won’t understand that she has certain rights. My university professors tend to tell me „I can’t make it easier for you just because you’re disabled“ when it would actually make it the same difficulty as for all the others for me..
yes! my school sports teacher always expected me to do as well as all the others and sometimes even threatened to let me fail class
Me with PE... like, you're not making it easier, you're actively making it harder and expecting me to do more than others somehow anyway
I agree.
When I had my wheelchair custom made, I did it without push handles because strangers try to push you more often than you would think. I freak out and Im like, "dont touch me"
that's insane. I could never imagine being so intrusive to someone else.
Same! I had it happen to me with my old chair at Disney World, and it was horrific. Never again.
this is why i got collapsible push handles and am going to make spike covers for them as well when i have the money
@@vampirebottom I had the exact same thing happen to me. I was a kid and I'm still traumatized by it. What made it worse is that the "cast member" that did this was my favorite character growing up
I've had strangers come up to push my wheelchair. It's actually frightening when you're not expecting it. Especially if they don't let go when you first say no...
Yea I use a cane due to being visually impared and sometimes people just grab me and just push me into a bus or something when I did not even wanted to be there and was totally fine before...people should just communicate more...
6:50 Pushing someone in a wheelchair without permission isn't just rude, it is assault. Touching a person's mobility device is the same as touching their body. Same goes for a service animal.
What really gets me is when people ask me what my boyfriend wants. He's right there, ask him not me. We also get asked about our sex life. Just no? How is that appropriate?
Lol, I was asked about sex by a friend of mine. I'm BKA since September 21. He was very respectful and tactful asking so I didn't mind answering. I think he was more shocked because of my age (I'm 53). Lolol, yes, my fiancee and I are quite good.
I had friend who kept asking about my sex life and weather I would be having kids. It is not appropriate. It is very rude and intrusive. When I told why I couldn’t have kids he said that is no reason not have kids and kept on pushing it. So I blocked him on Facebook and friendship ended and I have not spoken to him since. We weren’t even that close as I haven’t seen him since high school and even then we weren’t that close.
Very interesting! A good friend has a sister on Disability who did lose her benefit because of the timing of deposits in her bank account. For a short time, she was about $15 over. It took a great deal of time and effort to get them back. That's truly unfair!
That's so horrible 😞 Truly ridiculous and heartbreaking!!
She must be on SSI & not SSDI because SSI is based on monthly household income but SSDI is based on 5 or more years of adult working & the taxes that was paid. SSDI doesn’t matter how much your spouse makes a month
If I saw someone, anyone, struggling I would always ask if they would like help doing what they are doing regardless of whether they are disabled or not. You don't touch strangers without permission unless it's an emergency situation because you don't know what that will do to them. You don't know their history.
I had schools, illegally, just flat out refuse me accommodations, I couldn’t get an IEP until I was in high school. And you can imagine that really took a toll on me. To make matters worse it’s been used as proof that see I can do it without it. No, that’s not it. There were days my mom was doing homework for me because she didn’t want me to go to school and get yelled at or put in detention for refusing to work. Or because she didn’t want me staying up the entire night trying finish what would have taken a ‘normal kid’ less than 2 hours. No matter what she did or said they just wouldn’t believe her about my struggling, because I have an above average IQ. Someone smart can’t possibly be *that* affected by a disability... when my mom complained to the teacher about how awful kids were being to me about it, her response was that it would teach me to hurry up.
I felt that last part, but it's amazing your mom helped you and tried to get them to listen. It's what a parent should do but unfortunately doesn't always happen. I'm so glad you had a support figure there for you, and I'm so sorry that school has been so rough. People don't seem to realize kids can be disabled, too, and don't think they're worth accommodating.
7:31 It's so easy and polite just to ask disabled people "Would you like some help or are you fine?" It's the simplest tactic instead of getting involved without consent and the questions that are like "I believe this, is this true for you?" or "Does this mean this or that?" is so educational, but can also be a great icebreaker without putting people in an awkward position, but please try to be polite and trust your gut..😅💕
Feeling like a burden is the worst. I understand this too. Only too well going through cancer.
The only time I have pushed a stranger in a wheelchair was during a very sleep deprived hospital trip with my mom. Thought I was grabbing my moms wheelchair and going out of the elevator, was not my mom. I felt very bad about that one
When I'm shopping or out and see someone with a physical/visible disability (my disabilities are all invisible), I generally say, "I'm sure you've got this, but if you need anything, just let me know." That way they know I'm available and willing...but that I'm not going to interfere or intervene because I *assume* their competence.
I have no problem at all with the word “disabled”! I am a below the knee right leg amputee a little over a year now, and I honestly have no problem with anybody referring to me as disabled.
Being an amputee as you said Jo is part of your identity also makes you beautiful
When it comes to the help thing I use the rule of ask and BELIEVE the answer as in if you see a wheelchair user struggling to get up a slop ask if they need help and if they say no then DON'T push them.
I broke down in tears watching this. Especially the part of doctors not understanding or even trying to understand what you're going thru. I'm a rbk and last year I fell backwards and hurt my tailbone and fractured my L1 vertebrae. Since then the sciatic pain has been horrible. My only leg hurts from the nerve pain from my back.. Docs make me feel like I'm a drug seeker for trying to get rid of the pain.. Also, very few amps in my area and docs don't seem to understand that a small red place could be devastating for an amp and needs to be treated quickly. Thank you for this video. I don't feel so alone anymore
Yes it would be really good to have versions of this for different types of disability.
It's interesting they didn't have anyone with a disability like autism or something. Idk the laws of the US, but in Brazil autistic people are recognized as disabled. It may not be visible most of the time (for me at least), but yes, I am disabled. I won't go through something like someone pushing my wheelchair or trying to help me but actually be making it worse, but I go through almost everything they said.
I wonder if there's a new video including us (and not the one specifically about autism, one about disabilities!).
Also, I loved your comments on this and the way you made it very quick and directly the point!!
Personally, I just wish that mental health struggles were viewed more like physical disabilities are. Obviously they are very different and affect people in very different ways but I have both epilepsy and PTSD and at least for me, the PTSD is much more disabling than the epilepsy. Granted they both impact each other and the epilepsy definitely still impacts my life but, it doesn't prevent me from being functional in most ways. PTSD has. And of course I'm always working to improve things for both if these illnesses but it bothers me that one is often seen as a legitimate disability while the other isn't.
SSI currently plays $794/month and you're supposed to live on that plus SNAP (under $200) for food.
Hi Jo this was a great video. I related to one of the people in the video who said she shouldn't have to explain the validity of her disability. In my case, I had a visit with a surgeon who asked if i had any serious health conditions when I told him I had CRPS he was very dismissive like because I didn't have heart disease or diabetes it didn't matter. This diagnosis has left me in chronic pain and ended my career of fifteen years. just because some disabilties arent easily seen doesnt make them any less serious to the person experiencing it. Also in regards to people pushing others in their wheelchair without permission, it really upsets me that someone would think that was ok to do. Theres a PERSON sitting in that wheelchair who deserves to be asked if they want assistance! Thanks again Jo. your content is always interesting and thought provoking. Hugs!
10:50 I actually deal with 2 unrelated disabilities. I am an amputee and I have mental health issues. If I could "fix" my mental health issues I would not hesitate to do so, because they are so devastating to my social life. Social friendships are problematic and romantic relations are simply impossible.
Fixing my leg would really depend on the cost. If I could do it without changing who I am (aside from the mental health issues) I would do it. But if fixing my leg meant changing who I am or unlearning what I have learned as an amputee, I would leave it.
Fascinating exercise they did there. Thanks for bringing this to our attention Jo.
Wow, I wasn't expecting to necessarily connect on what they might say, but people touching my wheelchair is a HUGE bugaboo for me. I don't live in my wheelchair, but I rely on it around the house when my leg is off and it quite literally becomes an extension of your body. You can feel everything through it, every bump or touch... You know how much resistance you'll have wheeling around based on the type of flooring you're on and if anything is off by just a little bit, it becomes very obvious that something is different. My wife has tried to hurry me up by walking behind me and pushing me without any notice and it's a very confusing and frustrating thing to have happen. She doesn't anymore because my reactions, but it really is a big deal.
I want a do all deaf people think the same and odd 1 out for deafness bc there are a lot of controversial topics in the community and deafness is such a spectrum.
9:00 I am an amputee and I have become a full time caregiver for my elderly father, so I have seen this issue from both sides.
If you are feeling like a burden for a loved one, keep this in mind, it is a *JOY* to provide care for a loved one, even if that care involves something... less than pleasant.
Because of your need, you provide your loved one with something joyful. How can that be a burden?
Because some people aren't so joyful, but that is so wholesome.
I've been told/implied multiple times that when I need help due to my disability I'm a burden, something that's annoying and aggravating, and they can f right off but (for me anyway) that's why I sometimes feel like a burden - past experiences have told me that's what I am, despite the fact most of the time I can tell them to f off.
@@starcycle4308 Of course, not every care giver loves the one they are caring for.
And I hate to point this out, but the fact is, a person with a disability *IS* a burden. That person can't help being a burden, so it's not your fault.
However, being a burden is not the same thing as being aggravating or annoying.
If your care givers are straight up telling you or even hinting that you are aggravating or annoying, you'd be better off with a paid care giver.
At least with someone who is paid, you are getting someone who is trained and *WANTS* to be there to help you. After all, you are not likely to choose that as a career if you hate doing it.
I'm sorry you have to put up with that sort of abuse, because that's what it is. You don't want to need help doing things, so it is downright abusive to make you feel worse about something you can't do anything about.
Oh my this video hit me hard. I feel these people so much. As someone who has chronic illness and uses a cane and is 36 I hear so many things from your too young to be sick, to just get over it it's all in your head, to just being dismissed. I've gotten dirty looks from older people for using a cane. I feel like a burden often. And the biggest thing I think I struggle with is mourning the person I used to be before becoming sick. It's hard when you have those memories to look back on of before.
4:06, I really hate it when teachers don’t take my accommodations seriously, or they act like they’re not there and then of course I feel self conscious about them
A lot of people are pushing me and my wheelchair and it's so embarrassing because I don't need help but... It's difficult to say "noooooo I don't need help" lol (sorry for my English! I'm French)
That’s so nuts to me that people do that!! I can totally understand how it would be so hard to tell someone to stop - they shouldn’t start in the first place! 😟
Great video. One thing that you often focus on is understanding that people have good intention behind assisting someone with a disability. This is really a dangerous message especially for those with disabilities involving high levels of support and who have difficulty communicating. An unfortunate reality is not all people help because they mean well some do it because those with disabilites are easy targets and people think little of them while thinking highly of those who offer support. They strictly do it for some sort of personal gain even if it is holding a door for someone in a wheelchair when the reason they do so is to have completed their good deed for the day.
An example from my own life is a care giver needing time off that put me in a position to be with abusive unsafe family. The stress from that resulted in a pressure sore developing that could have been fatal and took years to heal. Yes I understand care givers need time off but situations like I was in as a result shouldn't happen. Shortly after I was diagnosed with PTSD...partly due to that as well as a longer history of trauma.
It isn't ok in any way ever to put someone in danger and as andrea said in the video often the attempts to help cause harm. In many ways focusing on people having good intention is enabling bad behaviour to continue.
I've been helped before where the help has resulted in me becoming injured and close to injuring someone else. People need to be aware they don't know how to assist without asking how to best do that and shouldn't cop an attitude when a disabled person speaks up. Seeking permission. They need to be seeking consent before helping. They may mean well but meaning well and doing no harm are very different things.
Doctor's offices are so frustrating! Especially with pain. As a woman with pain I feel so easily dismissed. At some point my heart and liver will fail due to nsaid overuse but at this point it's preferable to seeing more doctors. I can only imagine what it's like for people that have it worse than I do.
I'm a wheelchair user, and I can't count the number of times people have just started pushing me. More than a few times it's been because I'm in the way of something they want in the shops, but instead of asking me to move like they would any human, they treat me like a trolley and just push me out of the way. Or, one time i was sitting outside a shop waiting for someone. I was well out of the way, but I was also on a slight incline, but too lazy to put my brakes on. So I just tangled my fingers around the push rim (as o many of us do), and of course some woman come up behind me and just starts pushing. I scream of course, because she's just very painfully wrenched my fingers (thankfully they weren't broken, but this exact scenario has happened to other wheelchair users before, and they have had their fingers broken), and she replies with "see if I ever help You People again" (emphasis not mine). Lovely.
This was such a wonderful video!
The spectrum that covers disabled is so wide as to defy description.
I'm right BTK amputee still learning to walk. I try to plan ahead when doing something new to make it go better. I'm not a Marine but I love one of their slogans. Improvise, Adapt, Overcome.
I would definitely get rid of chronic fatigue syndrome as I hate it. lol
I hear that ❤🥄
Hey there a good suggestion for reactions for amputees would be the movie Soul Surfer. It’s about an arm amputee but still would be interesting
Jo Many years ago I was walking in the downtown district of town, waiting for the walk light standing next to a blind person with a guide dog, I noticed an accident in the works so I grabbed the blind lady pulled her and her dog out of the way, If I had not done it they would have been hit!! I was glad to help and got a thank you from the sightless lady as we checked her dog!!!!
Jo i think you should try to reach out to carson pickett. shes a professional soccer player who is missing one of her forearms. you're both influential but i'd like to hear the differences in life you guys experience since she was born with it. also check out the famous picture of her and a kid at a game :)
Myself in a chronic pain after stenosis in low back and left after years as someone who fakes the fact sometimes cannot walk a lot and sometimes I can.... How often I was yelled at to pretend and imagining things... Felt like a piece of Sh**. Looked for a therapist and just speaking to her changed me. To be more assertive and stand up for me.
Usually, it helps, sometime, discussing with a specially numb colleague at lady on the other side of any counter... Please, forgive me, but the 'healthy' people thought me how to be a bad ass and getting the help, if needed.
YES!!!! I think they need to do Leg &/or/vs Arm also
Congenital Arm Amputee with Traumatic Arm Amputee.
Arm Amputees are 9 times out of 10 forgotten about in the Amputee community & with medical & prosthetic companies. Just my opinion from what I’ve personally have seen & felt the last 14 years of being a Traumatic Arm Amputee at the age of 30
Hey, Andrea's in that! I used to follow her channel ❤️ Unfortunately I don't anymore because her audience was rather toxic in the comments back then. I as a white woman was not allowed to express that I relate to her in any way because she's Cuban/Puerto Rican and her audience (at least 3 years ago) only let POC share personal anecdotes as part of the conversation... About disability.
I always ask people if they want help and if they say no then I don’t and if they say yes then I will. I mind people offering me help but if they just barge in and help without asking I don’t like that because it feels invasive/intrusive.
6:37
I actually told a man "no" once when he offered help with my chair and he still grabbed and pushed my chair. And it wasn’t a language barrier bc no is still no in a lot of languages.
When offered help, I'm not offended. Its not an issue if you pick up my cane that fell over but grabbing my chair is a different story. I'm only offended when you just grab me after i said no.
9:12
Ive canceled things bc it was a bad health/pain day and I would need my chair. I feel better when I'm at college in the dorms. They're ADA compliant and i can care for myself with little difficulty.
10:50
I would change my disability. Its painful all the time (less so in my chair) and its exhausting. But i definitely agree that I don't think about it often bc theres still a lot i can do including my life plans. You can definitely teach form a wheelchair.
Jo, your financial burden isn't your fault, it's your political systems fault not having universal healthcare. In the rest of the civilized world that wouldn't be a problem.
Yeah so many people got bankrupt and homeless in the US due to medical bill, it's crazy. The US is the only developed country w/o universal healthcare. No one should be ruined because they got sick, were born with challenges, were in an accident, etc. I am so glad to live in Canada, where you get out of the hospital with a 0$ bill and where it's not private insurance companies who decide if they will pay for the medical treatments that you need.
Unfortunately many of us are still in debt even with universal health care. For example in UK NHS does not treat certain rare medical conditions and you have to pay to go abroad costing tens of thousands. Suitable wheelchairs are rarely covered so we have to go into debt to buy them. Home adaptations and care we also often pay for.
@@ecologist_to_be yes, but in terms of the overall cost for disabled people in general in the UK is much, much lower. If you have sudden complications you can nip to A&E with no charges or regular check-ups with your GP. Of course there are things that aren't covered - such as very rare conditions and most medical aids other than totally basic ones, and home adaptions. But in the US, people have the costs of all of those things as well - but they also have to cover all of their medical expenses. If someone in the UK has a nasty fall and is in a lot of pain, (pre-covid) we don't think twice about popping to A&E for a check over and an x-ray, but I know people in the US who have spent months with what turned out to be broken bones or really bad injuries that should have had urgent medical attention, all because they didn't have the money to pay the emergency room visit!
6:00 Everyone, especially "excerpters" believe disabilities are far more limiting than they actually are unless they live with that disability every day for several years.
I have hiked 20 miles in the Grand Canyon in a single day. I have skied down double black diamond ski slopes 3-track, I have done things people with 2 legs can't do. I have learned what I can't do by pushing my limits for 48 years as an amputee.
I have learned that if you think you can't, you won't. But if you try you might. You might also fail, but failure is not a disaster. It is a lesson.
But you’ve gotta remember every Leg amputee is not you & have different issues. Especially with prosthetics. I’m a Arm Amputee since I was 30 & my challenges are so different then other Arm Amputees
@@melissaakanubby8774 My point was that the "experts" can't really tell you what you can or can not do.
The only person who can know what you can or cannot do is you. And there is only one way do discover that. You have to go out and try.
I am not saying, or even hinting that every amputee can do what I can do. I'm jut pointing out some of the things my friends have been surprised that I can do.
@@erictaylor5462 sorry I misunderstood what you was saying ❤️❤️
I hate when people say, "You are disabled." No, I am not! I have a disability. I am SO MUCH MORE, than my disability! I also hate the terms: wheelchair-bound, or confined to a wheelchair. NO! I am a wheelchair user! I may have to use a wheelchair to get around, but I am NOT bound, or confined to it!
8:04
I have a dynamic chronic pain issue and when my hips would start to hurt in the bedroom and I had to make adjustments, past partners have asked "can you still feel it tho?"
Offering help is good but PLEASE talk to the person before you just touch or grab them. Communication is key but I guess people often want to help but don‘t exactly know how or are afraid to say something wrong...
I’ve always struggled with issue of my balance as a child growing up and my adult life now as an amputee I struggle even more. I’m a below the knee amputated since 2016 I can walk in my house with no problem but when I’m outside it’s like in my mind I say you are going to fall and then I struggle with my balance if any suggestions you might have got me is welcomed.
I’d suggest maybe looking into it a bit more with your doctor. That might be an indication of some undiagnosed issue. Of course I don’t know for sure but I wish you the best!
I saw a video by mommingwithmigrane (th-cam.com/video/HwuYAKI65Sk/w-d-xo.html) about vestibular therapy or something like that. Her balance issues are due to her migranes, I think. Still, I never knew a thing like that existed before I saw that video.
I'm pretty late and my balance issues are likely 1,000 degrees off from yours, but I figure I can throw in my experience on the off chance it'll help
Constantly adjusting in various ways helped me find what worked and what didn't. Even if I stumbled about a little, for the most part I could walk fine, even if on some days it was a matter of near constant adjustment. As for going outside, I recommend focusing on something (if you're on familiar ground, bad idea imo otherwise) and trying to walk toward that.
I've grown up learning how to adjust to my balance and I am not an amputee so this probably won't help but eh, worth a comment?
The government, most communities, and most doctors disregard people's chronic pain/chronic illness. It gets so exhausting to fight with people about something that we live through. It is not a joke. I wish I could laugh it off instead I cry. It sucks.
Hey I still love your hair
I also love their middle ground videos
I love your hoodie! Where did you get it?! 😃
I think I have the same one. Mine is from Amazon. It isn't the normal sweatshirt material, it is thinner and more like a long sleeve T-shirt with a hood. Her's might be different tho
Random; I know, but... I like your coffee cup!!! #ItsCute!
What about us ugly internet friends? Don't we count?
Queda pendiente comunicasion por prolemas de familia
Pls close caption this video 💕
I know for me sometimes with help is that I want to try it on my own first before asking/having help
My knew girlfriend tells me im not a disabled person , but a person with a disability
Which do YOU prefer? 💜
I want
For some reason, after watching a few of your videos, TH-cam is recommending me al kinds of amputee fetisjist channels. TH-cam is a strange place.
Hi!💜💜
i been following your videos i want to meet you
I had to delete my comment because people keept saying I was a bad person.
What was it?
Beautifull girl nice hair style sweet talk god bless you sweet smail
Did you even watch the video?
hiiiiiiii
Hiiiiiiiii
I realize your an advocate..but these people have been disabled for a very long time. Your empathy is a bit much as you haven’t met these people to even know what they go through. You are making a living off of this and they are barely able to survive. Not much advocacy sorry.