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- เผยแพร่เมื่อ 10 พ.ค. 2023
- Experts say there's been a rise in a condition called POTS among young people, particularly women, after the pandemic. Dr. Akshay Syal reports on why the nervous system disorder is difficult to treat.
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#POTS #Covid #Health
![[MPD직캠] 베이비몬스터 치키타 직캠 4K 'LIKE THAT' (BABYMONSTER CHIQUITA FanCam) | @MCOUNTDOWN_2024.6.13](http://i.ytimg.com/vi/h99J4vWm7Ew/mqdefault.jpg)
I wish they would stop saying “very manageable with fluids and salt”. That’s not true. In fact, I don’t know a single POTS patient who says that is so easily managed with fluids and salt. We still feel horrible. I can’t believe that doctors still can’t figure out this condition or how to cure it. It affects SO many people!
I'm really regretting getting the Vax because i have been having this issue after I got the Vax. My doctor's keep telling me it's just stress or anxiety. Every time I visit a doctor they always ask if I've received my COVID Vaccine and there mood definitely changes. They are definitely hiding something.
Or for people who can’t have iodized salt. I have pots syndrome and Hashimoto’s as well as a few other issues. Advice like this literally almost killed me.
@breannapiscitelli3941 have you had the covid vaccine by any chance
i agree with you, salt and fluids does almost nothing. And he said that there is no cure.. Well, if you got post Viral POTS, it can go away with time, like 1-3 years.
@@yessir1274Well, if you got Covid without the vaccine you would have probably got worse Covid symptoms and triggered POTS anyway.
Truest thing ever said, “There’s a shortage of doctors who know how to care.”😢
They only care money
"Advocate for your own health" is easier said than done. My primary care physician in Austin said "sometimes people think they feel lightheaded or out of breath but they're really NOT" and "it's probably just anxiety." Meanwhile, I have a diagnosis of POTS from a table tilt test after I passed out unconcious 4 times last spring when standing up too fast. But the doctor continues to gaslight me. When I complained about the doctor to the clinic in writing, they dismissed me from the clinic and said "we don't have to give you a reason why we are dismissing you." So now I can not see any of the hundreds of doctors available there, and my choice of specialists has diminished greatly (there are a shortage of specialists in this area). Many people use this phrase "advocate for yourself" and they have no idea what that really entails, and the amount of retaliation you will receive if a doctor or clinic is too proud to admit they do not understand your health condition.
Wow. 😮
Yeah it's really not that easy sometimes.
It's not that simple. There are WAY more people than available primary care physicians that take insurance in the city of Austin. As I mentioned, advocating for myself at the clinic mentioned narrowed my pool of primary care physicians even further. In addition, I have seen multiple doctors who have similar responses. There is an element of denial among medical professionals because doctors like to advocate for regular exercise, minimal salt intake and the lowering of blood pressure (all problematic for POTS patients).
Retaliation is definitely the right word.
This conventional systems drs and specialists are all like this. My issues are from tick diseases and mold which this medical system does nothing for too. I have pots, autonomic nervous system and central nervous system problems from these diseases illnesses. Im from Rhode Island and the conv system here is awful, lots of dismissive and avoiding medical practice here.
Gaslighting is one of the most difficult things for us dealing with POTS, especially after being diagnosed with long covid. Doctors most of the time don't care or simply don't know how to treat the condition.
How many aren’t getting the help they need 😭
Hi guys...Im a guy that has this too. no one believed me that simply standing up almost feels like you are being pulled by gravity of jupiter or just walking around will pump you heart rate to 130s even if you moving slow.
My brother-in-law subjected himself into a hyperbaric chamber, he's been doing much better, he had COVID 2 years in November.
Still a long way from being normal
Yes my son is dealing with this also. It's not just a woman's syndrome.
Me too its unbelievable
Same man. Have had effects since childhood. I'm 30 now and just got the tilt table with a positive result. Finally got some answers but still a struggle
@@TVCJE93how you do now?
Symptoms are often misdiagnosed as Anxiety/Panic Disorder 😢 it is NOT Anxiety...
lazy doctors loves to say: oh, you are young, it is anxiety, go and see psychologist..
Im one of them !!
Funny enough i have panic Disorder with pots..
I definitely have undiagnosed POTS. Every time I tell doctors my health was never the same after Covid they give no response and change the subject. What’s up with that? Is it an insurance issue? Are they told not to acknowledge this very real phenomenon?
They aren’t taught about it in medical school period. They only encounter it clinically if they are a in a specific fields of cardiology (electrophysiology) or a neurologist thats encountered other forms of dysautonomia. Usually these doctors have some awareness because they’ve encountered a few patients and can point someone in the right direction but most cardiologists and nuerologists never are taught it and never encounter it clinically. The specialists, like Dr Chung are the ones that do research. It takes an average of six years for someone to be diagnosed. I had to go out of state after a year long waitlist for Dr. Grubb who was the top researcher in the u.s. at the time. That was almost ten years ago and its astounding to see people still struggling to be diagnosed.
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective@@KatieBethRose
POTS, dysautonomia, MCAS, long covid, ME/CFS... it doesn't matter which one you have, doctors will medically gaslight you and you will get misdiagnosed for "anxiety" while slowly dying.
The medical system is being run by very evil and might be one of the darkest industries.
@Selenamilitao Your mum
Are you insane? Water and salt does NOT give us quality of life oh my god how could they say this
I pray they find a cure for this
I have pots and i feel so freaking depressed because of it. Because from outside we look normal but from inside only we know what's happening
@@pepper2240 understandable but you are still a good person and loved by your friends and family. I’m not a doctor but I would try altering your diet if you haven’t already. Cut out artificial sweeteners and try and drink lots of water. Although it may feel like it You are not alone.
@@t-bag2778I do this, eat really healthy and still feel awful. Exercise; work, eat healthy, go out, and still feels like I’m dying 24/7. nothing really makes you feel normal or better
I totally agree. I started getting ill when I was 18 I was not diagnosed with pots syndrome until I was 30 I'm now 54. There are times I feel like drinking a lot of water does help make me feel better, but to say that that significantly gives you more of a quality of life, is BS
I was on a wait list for months to see a cardiologist. They told me they thought I was fine. I’ve been experiencing symptoms of POTS since 2003 and sometimes blackout. I recorded almost 200 incidents in a 30 day period. But “I’m fine”.
My cardiologist gave me ivabradine. It kept my heart rate normal but i still didn't feel well
@@pepper2240how are you now
Have u tried looking into b1 deficieny and a a good form of magnesium
I got diagnosed after 3 months of being told I was having panic attacks, it started 6 months ago. I've been having an episode for 12 hours now today that won't go away. It is really difficult(not to mention scary, I've lost track of how many times I've been to the E.R) and alot of ppl act like it's no big deal, always telling me to calm down and just go about my day but that is impossible. I pass out if I try to fight through it. Her message at the end made me cry, great advice.
Have u tried looking into b1 deficieny and a a good form of magnesium
Always listen to your body...ALWAYS.. ...Some of these doctors out here shouldn't be doctors.......get 2,3,4 5 opinions if u have to....but don't let a doctor tell u it's in ur head....they like to do that when they don't know what's wrong or aren't interested in trying to find out..
Thank you for the upload , very informative. Jullian, I hope you feel better soon .
I got POTS symptoms March 2020 within the first week of getting covid (no vaccine). Bed bound with covid for 4 weeks and confined to my room for 3 months. High fever 103 for 16 days straight, zero food and slept around the clock. Used the bathroom twice every 24 hours. First POT symptom (1 week into covid) was I couldn't stand up from the toilet and would collapse face first onto my bed having to walk from the toilet to my bed. This continued for 4 weeks of bed covid and then into my bedroom recliner chair. Finally put on my apple watch after 6 weeks and saw that my heart rate went from 60 to 175 upon standing. Got my blood pressure machine out and blood pressure would plunge and heart rate would skyrocket. Couldn't stand more than 10 seconds. Gradually walked 1 block with help from my husband after 4 months. Took a year to walk 1 mile. Heart rate would go crazy. I kept at increasing my walking. Now I can jog 6 miles easy but I cannot get in a low position and push myself up. If I sit on the floor it is virtually impossible to get up. Thought it was weak thigh muscles and went to a trainer and heart rate wet crazy and I almost fainted. Doc & cardiologist diagnosed me with POTS. Now I still jog but I can't do any workouts where I am not in control or my heart rate goes crazy, I get light headed, and sweat pours out of me. It's been 4 years now and I just know what I can and can't do. Wishing everyone well.
Dr. Syal stated that 80% of patients can manage POTS with only Hydration and high Salt diet. He is making that number up. Most people DON’T feel better from that alone. Typically they have other symptoms than just dizziness. How is salt and hydration helping their fatigue or brain fog or gut issues? He’s not the doctor they should be having on the show about POTS. Shame on you!
Lol well whats he supposed to say??? Most people,all it takes is salt ,he is right
He’s actually wrong. There’s a written rule in life. If you nothing of value to add to a conversation it’s better to say nothing. He had nothing of value to add…
@@aquaman199incorrect
I wish salt was the answer 😢😢😢
This is ruining my life at the moment.
How are you now mate??
@@user-eh3sr7pm3f I’m good 😎
FYI, I have had this for 4 years. Thought it was life reckoning, keep a positive mind cause the beginning is hard, this isn’t life threatening, drink plenty of water, start with small exercises and work your way up, your body has to build up tolerance and take plenty of rest days in between, just keep going and moving don’t think too much I’ve seen multiple people recover from this.
Thanks for the kind words. When you say they recovered do you mean that they are like what they were before they got the condition without any symptoms or they are just able to treat it better now?
It is so good to know I'm not alone dealing with this horrible condition. Most often than not the feeling of having to apologize for all the physiological, emotional, things happening is exhausting and even then minimum understanding from others. There is still so much that needs to be done to help improve quality of life for people with POTS .
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective
Hydration and a high salt diet are bandaids. It is not a manageable disorder. It is a struggle from moment to moment.
As someone who already has so many issues, Chronic Fatigue, most likely Lupus... I was just told today I have POTS.
Im recovering from COVID and am so worried about how I'll be left feeling afterwards. 😢
You're claiming Lupus!? Smh
Have u tried looking into b1 deficiency and a a good form of magnesium
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective@@PEDALSnPROJECTS
I got POTS after taking Lupron (a medication which has a LOT of severe side effects). I found standard medicine to not offer any help. But after doing a lot of research I found that chiropractic doctors with extra education in neurology (Chiropractic neurologists) have a great track record of full recovery for their patients. I found a center near me that specializes in this (not covered by insurance unfortunately as they almost never are) and a few months later my POTS was GONE. I still have some mild symptoms of dysautonomia (the condition that POTS is one symptom of) but I have improved SO SO SO much. No more headaches, very rarely any digestive problems, no more POTS, no more fatigue. My main remaining problem is some balance issues, but not debilitating like at first. A big part of my treatment, in addition to the physical therapy, red light therapy, and nerve stimulation has been diet and nutrition, and I think by far the most important part of getting better has been allowing myself to sleep as MUCH as possible. At first that was 10-11 hours per night, and now I'm at about 8 hours per night and doing great.
I am planing on taking my son to the chiropractor because no other doctors have helped him 😢glad you are ok 👍
@@zeek4749 I wish your son a quick and full recovery. Good bless!
Ive had pots for over 10 years, its a horrific condition, and it is dangerous. They do not understand it enough but my blood pressure has been 40/60 at one point. I am a healthcare professional myself and its destroyed my life
They should allow us to canulate and give saline
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective
@@ffdss6951this is 10 years ago though
I have dizziness brain fog heart palpitations and fatigue after Covid. I developed POTS because of it.
And how are you now? 11 months later, thx
Terrible for those of us who have had lifelong Ehlers-Danlos Syndrome, too. Lot of the time, for me, POTS is worse than the EDS...
There are effective treatments, though. I don't know why these weren't emphasized more. I have hyperadrenergic POTS and have some of my life back thanks to ivabradine and metoprolol, I don't gasp for air when I walk or talk, or feel extremely dizzy every time I stand. I still sweat like a pig just because I'm upright, though.
There are quite a few meds and interventions that can help. Compression stockings can help too.
They helped you. Ivabradine did nothing for me. None of the medications helped.
@@isocarboxazidhow do you manage your pots?
@@JerwenSiendo-ff9lc Ivabradine, metoprolol, fludricortisone, pregabalin, compression stockings, salt tabs, and fluid. Methylphenidate helps too. Unfortunately I still have a lot of sx like extreme sweating, nausea etc that don't ever really go away no matter what.
I've been struggling with a lot of health issues since having covid the first time back in November 2020. First thing I noticed was more fatigue then before (I have suffered with fatigue over the last 20 years but this is more intense). Then I noticed my face was more pink in general (covid seemed to attack my face the most - my sinuses felt like they were on fire). I saw a derm about my skin and was prescribed a topical for rosacea that made my face freak out (it was a vasoconstrictor med and I think my blood vessels may have already been weakened by covid). I then developed severe heat intolerance which has been going on for two years now. I have suffered with heat intolerance my whole life but it is much worse now and i have never been able to sweat so I can't exercise much unless it's very cold around me. A derm I saw wanted me to get tested for POTs and eventually I will get that checked out. It would explain a lot if that is what I have. But I'm afraid to be disregarded by doctors because that seems to happen a lot. A lot of them just think it's anxiety or depression and tell you to go on your way and see a psychiatrist instead...I hope all of us are taken more seriously in the future.
Were you vaccinated before or after you had Covid?
@@noblumoon I was vaccinated after I had covid (cause the vaccine wasn’t available in 2020 when I caught it).
@@kristenmalick-hatta4300 thank you for your reply...the person close to me that has POTS had 2 vaccines, then had Covid, and soon after that started suffering with POTS symptoms. Of course, POTS is not a new disease, but seems to have increased in the last 3 years.
Sameee I feel so awful after Covid. It suckssss
Hello, how are you now? It has been a month since I was diagnosed with anxiety disorder, but my pots has not improved.
about a day after i recovered from Covid last year, I just woke up, stood up and out of the blue my heart was racing, i had to immediately lay down due to the overwhelming feeling, for the next few days i would have brain fog and heart palpitations, those would fade away but over the past year POTS symptoms have fluctuated in intensity. With some days with it non- existent and others where it’s much worse, Ihave not been diagnosed with POTS but I believe i have it. Not sure if this is related, but i have had some health anxiety for a year, is this POTS, anxiety or both?
Likely pots. I have it and that’s exactly what happened to me. I woke up one day after having Covid and now my heart never stops racing
same here.
You have to stop eating complexed Carbs..nd over all try to eat very clean. That has made my symptoms very manageable. I didn't realize at First that eatin really large meals or things like bread,pasta, rice etc..anything that made from flour.. Try to eat just fruits and vegetables..[I don't eat meat but u probably could baked chicken or turkey] nd u will start to notice a very big difference within 3 days. It's because our small intestine uses allt more blood to break down complex foods nd or larger Meals..mix that with pots and ur symptoms will be Hellish.
Does it last for hours?
Pots 100%,I had the same crap as you have,exact same issues,took me a year to get over it,but very little symptoms now,very rare now will I get any issues.
I exercise though for many years,no smoking,no drinking.
It can be managed over time,but the first while was brutal when I first got this issue in my body,keep in mind,it can be managed after some time
I had an episode yesterday (Christmas) every time I stood up I felt weak, lightheaded and a bad tremor. My heart rate won't go up much because I'm on Metoprolol and it keeps my heart rate from going up. Even when I'm working hard or trying to exercise, I do good to get my heart rate over 85 bpm. This stuff sucks.
Why didn’t they just interview the EXPERT (first) doctor???? The second one was not an expert on POTS. If it’s “easily managed” with free stuff, why would it adversely affect the lifestyles and careers of so many???¿!¡🧐
POTS is destroying my life - it’s horrific and not ok. I just got COVID and now I have POTS and bedridden. I’ve been calling in friend stop take care of me and ended up fainting and then in the ER for tremoring.
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective
I had this problem as well. But know I started treating MCAS, my tachycardia and dizziness are gone even though I lost 15 pounds. It means it took me 1.5 years to acknowledge I cannot eat food with histamine (almost nothing), I use dao- enzymes twice a day, Famotidine which is a histamine-2 blocker, high vitamin D and exercise 50% of my capacity spread through the day to stabilize mestcells. (the first exercises I performed while laying down) No hot showers, no thick blankets but sleeping quite cold. No stress eather. But I feel ok. I start to enjoy life again.
Get better
❤
I have pots and SFN after booster.
Physics girl is in my prayers
I think i have some odd symptoms like this after covid also - like super brain fog and super tiredness spells, I used never to sleep after work, but now some days i have to for 30 mins or something.
I bet there are loads of undiagnosed for those people who don't go to docs much esp men
My sister got POTS after the Covid Vax, so that can be an underlying factor.
Many Gad POTS and neurological issues after COVID vax. Hope there comes a solution for this.
That is why I am interested in knowing if they were vaccinated before or after having Covid. A persin I know had CV after their 2nd shot. Also, later received a booster. Somewhere in between 2nd and booster started to have dizzy spells, heart racing, fatigue...diagnosed as having POTS as a result of CV, not as a result of the shots.
Just wondering...
People I know have had pots years before Covid or the vaccine.
@sandyk does that prove vaccines didn't cause it? Why people are not accepting that vaccine caused it and that's why millions of new cases suddenly on rise? Why suddenly? Because population got something in common and what is that common thing?
never had covid. got the booster...now have POTS. @@noblumoon
It's a horrible illness!!! I had covid last year and got small fiber neuropathy afterwards... half year later i got an iron infusion and immediately got POTS afterwards... that was 10 months ago... i have never recovered from it🥺
how are you feeling today?
Same for me. I had Injectafer iron infusion.
Me too
I struggled with this for 2 years with no answers before John Hopkins diagnosed me with POTS. I am still on the waiting list to get into the POTS clinic for year, It's been a long road of finding a self care plan to manage it. High salt diet, hydrate, tiny meals, metformin, nerve meds to handle heart palpitations, and other vitamins like b12, C & D daily as well. Have to live life in 4 hour windows, 4 up and 4 down. If i try to push through an entire day with no rest, I'm down and out for the following day and sometimes more. Its brutal. I pray for anybody trying to live with this.
My POTS and severe low blood pressure started mild before getting c19 or the vax. But it did worsen 6mths after the vax. 8mths later I got c19 and it made my condition worsen so bad I got put on Midodrine immediately. Im doing better but most days are still debilitating 9mths after c19 + medication
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective
Before they found out I had POTS they were trying to brush it all off as anxiety and wanted me on antidepressants. Problem is even after the Tilt Table Test and confirmation of POTS, the doctors don't really know what to do about it. Here in Ontario there is basically one POTS specialist and he has a waitlist of over a year.
I get pots after the covud vax i'm from a third world country i'm not diagnosed and Doctors said it's just anxiety and my familly keep blaming me to go work cause we are poor i take no medication
I regret taking it
Same here where are you from
@@admtr7992 morocco
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective@@youness8288
@@youness8288 if u cant work u need to sue the government
Mine basically started after I got a neck injury and I did get covid 2 years ago but I didn't have any symptoms until after I injured my neck two weeks ago. Although I did not fracture my neck, it did cause some nerve damage and for my neck to be not in line. But even before his neck injury, I wouldn't be able to do cardio for more than 45 minutes or else I would feel nauseous, weak dizzy and even throw up. The doctors are not sure how long it's going to take for me to recover but I'm going to have to mention this to my primary doctor and I hope he knows about this and doesn't Gaslight me and tell me that it's just anxiety.
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective
How do i get rid of it? I can't drive without symptoms
You can’t. There’s no cure.
You could try a chiropractor. I have had temporary relief from symptoms with chiropractic care
I freaking went to every kind of doctor and they put me on anti depressant. When I'm perfectly fine they thought it's anxiety. I swear I've had enough
Not only do I have all this symptoms similar to POTS after covid and HEV, I also have weird growth on my thyroid, swelling on my neck and both eyes are dry and uncomfortable for no apparent reasons, all these symptoms seem so unrelated it's so hard to know which specialist to go to and every doctor thinks you're mental it's crazy.
Lymp node swelling in the lower neck on the sides ?
@@sugabay yes the lymph nodes is upper neck tho but the swelling is lower , why?
@@LYJManchesterUnited lymp nodes are all over the body my friend, I have the swelling as well mines is on the sides like the lower sides between the shoulder and the neck area , they swell from time to time , that's why I asked . Have a goodnight
@@sugabay Oh have you got it checked? Is it from Long Covid? Mine has stayed there since last Oct first time in my life i had any lymph nodes swelling and could not figure it out.
Pots syndrome and thyroid problems have a lot of the same symptoms. Have your thyroid checked dry eyes is definitely associated with low thyroid hormone I have thyroid disease in my twenties. And it is treatable for sure.
😣😣😣
When the feeling springs on it’s matched with panic but if you can catch yourself and breath it helps… easier said than done but switch to more of a Mediterranean and or keto diet it’ll help manage blood sugar … speak with your doctor but look into things like coq10 and magnesium for your heart … anti inflammatory herbs could possibly help too
I have diabetes and was placed in the hospital for over a month with Covid and Pneumonia. After, I started to develop symptoms of POTS. It is now undeniable. I can barely stand for a minute and have been going through this for almost two years. No one seems to know enough about it. I'm suffering and can't work and no one understands. I'm also having a hard time with my foot healing from a diabetic ulcer. Imagine wearing a medical cast and boot for over a year in combination with POTS … I'm always off balance. My value of life is very small. Im 26 year old male which makes it worse because "men don't usually develop pots"....
:( its true most of us are women…..
Oh just a thought buddy….a lot of people with diabetes have small fiber neuropathy. The damage to the physical nerves is what causes the POTS. If you have a small fiber neuropathy biopsy ( it’s just a little punch of skin they take from your leg in a docs office) you can prove you have SFN. If you can prove you have SFN and POTS, you can get approved for IVIG which is a really promising treatment for it. Actually the doctor in this youtube did an entire study on it with POTS and long covid. My doc just ordered a 6 month trial of it for me. I don’t have diabetes but I have SFN and POTS.
@@KatieBethRose lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective
@@KatieBethRose I will look into this. Thanks
I think i have this. If i move around i feel like passing out. 20-30 times a day
It gets better over time,and if you drink coffee,stop drinking that,because it makes it worse
@@aquaman199 thank you! I have a tilt table test on the 24th.
Update: my appt is at 8:30 this morning for a tilt table test for POTS
Update: my tilt table test was positive. I passed out after 15 mins. I was shaking so bad!
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective@@arty04
I've been dealing with this for the last 20. I don't know why they say there's not much treatment. Beta blockers do help keep the heart rate regulated.
yeah, bblockers do help with upright heart rate, but makes you dizzy, gives pulling headaches, and bradycardia when you stay in bed. They help with one thing, and makes worse other one.. Life with POTS is crazy hard. 5 months inn, and still cant go to the shop and stay there at least 10 minutes
Beta blockers are a band aid. We need to know what causes this and better ways to treat it, the root cause.
Beta blockers are not prescribed for low blood volume POTS. Some with LBV POTS only get relief from cortisone steroids.
I have had pots syndrome for 36 years now. I started getting ill when I was 18 and by 30 I was finally diagnosed. I'm 54 now. I feel like drinking lots of freshwater and taking salt does help a little bit but not enough to wear your a normal person. So definitely don't agree with that doctor at all. Yes beta blockers help me as well they keep my heart rate down but my biggest part with pots would be the draining feeling. Or not being able to walk around a store for more than 10 minutes without feeling drained and exhausted and then of course you start feeling anxiety because you feel light-headed. But I think over the years I've learned to deal with it. Learn to deal with what I can and can't do
@@DeilaFloyep that's me, I can't walk around for more than 10 or 15 minutes before I start getting that exhausted feeling. Where I feel drained and I just feel like I can't take another step. So no my limit and that's when I usually go out to my car and go home. Even when I'm at home just cleaning my house I have to take breaks in between some days are better than others. Sometimes I can do a lot of stuff, and then there's other times where I have a flair for the entire week or I'm exhausted as soon as I get up my beta blocker does help keep my heart rate down. But that's just one of the symptoms I've had pots syndrome for 36 years now. I'm now 54. It's definitely a challenging disease. And sometimes it's sad. But like I said, I have learned to know what I can and can't do.
I told yall!! I've had pots my whole life and still no diagnosis!
It is diagnoatic with the tilt test
High salt diet? I am pretty sure I have this.
After she got Covid or after she was vaccinated?
The real question
I have this condition following the V not C19! Had C19 and natural immunity and no long term effect but had to take the x to travel. Many so called long C19 are probably more V induced.
A large amount of cases very likely caused by the immunity drop due to taking the jab(s). Thus covid was made worse when next acquired.
Curious how many of these cases are in vaccinated or unvaccinated patients?
Why does it really matter?
POTS existed well before the pandemic. It’s only now getting attention because the number of cases have jumped dramatically due to post Covid cases. All the people that I know who have it post Covid were infected before the vaccine was available, so unvaccinated.
My sister got it after the Vax, so I do think that can be an underlying factor.
@@anidiotmakesthings not true
@AnIdiotMakesThings I did look it up...furthermore have a relative who got Covid after the second shot, and POTS after Covid, so I am trying to find as much info as I can
Have you guys ever looked into b1 deficient, it can be a big cause , also a good form of magnesium
Ivabradine helps but it's still not enough
What do people who can't be on a high salt diet do? Asking as I know people w heart problems
Suffer like me
I believe I was experiencing POTS last year! I suspected it was related to low blood pressure, so I started consuming more pink Himalayan salt and it has really helped! ❤❤
Good call on that.i did the same ,but ive mostly recovered from pots,and not jabbed either.got covid from someone out there but i was smart enough to not get jabbed or swabbed
I develop POTS from the second vaccine pfizer, literally woke up the following day heart race eyes crossed in from cranial palsy pressure just a mess im going on 2 years im much better but not 100
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective
Long covid or long vax? I was bedbound for a year after suffering and this and more 5mins after vax. Real doctors ie acupuncturists and naturopaths are the only ones who have not only helped but completely given me my life back. I would be dead without them.
both
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective@@piedpiper1201
We been waiting for Stanford hospital to take my son in for the table test and treat my son 😢they are keep on refusing him because of our insurance 😢they are there for the money not helping anyone
Everyone tries to realate everything to covid. Ive felt this way long before covid ever existed. Im sure other have felt this before covid was a thing.
Toxic air
Lesson learned… don’t get the ban !!
I think I have POTS but the messes up part is that I am allergic to excess salt.
Interesting cause treatment for pots is real unrefined salt and red meat ...
Not to be insensitive but these doctors need to upgrade in knowledge the people shouldn't know more then the physicians patients are bringing learned issues to people who can't help them smh Doctors catch up to speed pls
My daughter who's 27 has had this condition for over 3 years I am so tired of hearing and reading the same nonsense from Healthcare professionals who still don't have a clue we all know the symptoms I'm just tired of hearing the same crap over and over again with no Solutions and Bare Bones suggestions to deal with it . I've listened to the same crap for years... nothing new
Vaxxed?
It not the Vax it was covid. Covid caused most of these heart problems. Some people with this didn't even get the Vax but did get covid. remember covid was causing heart attacks and strokes way before the Vax's came out .
“Among other symptoms” is said since we have SO MANY. 😏
Those who initiated these health issues to people will get the same effect.
Safe and effective
Never add extra salt until you rule out hyperpots
so did china do this?
the mean grinch, who as you say is so bad, asking water from a well, christmas is just some perverse thing with probably sadistic hidden meanings anyway. mr grinch
Im guessing she got the jab. Maybe
Start taking your b vitamins❤
If that was just that easy I'm pretty sure all of us would take vitamin B1 and not have pots anymore
lots of people getting pots now from vaxxcines and they think its covid bc doctors tell them vaxxcinesare safe n effective@@trudymason-vp9xg
I am a 38 year old male who got POTs from COVID. The only help I have made to my condition is through treatment I have read.
My life has been ruined by the condition. I went from doing ultra running and ironman events. To housebound.
Thanks for nothing to all the greedy dr's
Same here im 19 years old its just unbelievable my life changed in overnight
I won't be dealing with it much longer
@@admtr7992 just out of interest. Did you have any COVID vaccinations?
@@MyFriendPeter no I didn't take the vaccine
@@MyFriendPeter why is that ?
Sounds like laziness 😂
No it's not bri it's a real condition
I pray you never get it it’s really no joke
Imagine pots because of 💉
I've had it 4 years before the pandemic even started and I've still been dealing with it now.
And it's not the junk food either since I cut all of that out of my diet as well. It's just some people happen to develop it while others don't. There's not enough research on the condition, but we just know that apparently people are getting it after COVID due to both of them are linked to the nervous system.
Hopefully due to the rise of cases, more research will he put into the condition. But as of right now, things are still pretty much trial and error
Covid or the vaccine?
Hellow fello "fatigue" sufferers.
brain retraining program
Sure, so you expect us to believe the innoculation didn't cause ANY of this? Riiiiight!
Out of synch in the nervious system is due to lack of metallic nutritions, according to off the wall research. POTS can be corrected by daily light exercises and change of regiments since body would automatically demand for certain type of foods intake to maintain its common balance. POTS could be a generic deficiency but is therapeutically curable.
Clap. Clap. Clap. Good job google warrior. What did you study in college and when?
POTS is a syndrome that is caused by a number of underlying conditions/issues. Depending on the underlying cause treatments may or may not be effective. The only way to “cure” POTS is to cure the underlying condition. If it’s due to a genetic disorder, like Ehlers-Danlos syndrome, there is no cure.
Yeah probably more to it that that. I have pots. Had symptoms my whole life. Finally after years of trying to find help I found out about it at 31. Its more than a daily vitamin and a walk.
I can workout upright, and lift weights? Where’s my cure? HMMMM?
You can’t even spell “sync” properly
They should see a chiropractor. A lot of those symptoms will lesson and/or go away with proper chiropractic adjustments.
Speaking as a nurse with POTS, you are either a dangerous fool, or a quack chiro who makes money off people who don't know any better.
It has helped me with my migraines.
Is there a specific chiropractor?
where is the science and logic behind that?
@@nancyhessler3358if you search web for dysautonomia chiropractor several clinics are mentioned
I also recommend Jason Schuster's Dry Needling and Autonomic Nervous System Homeostasis
This is caused from stress and anxiety not covid. You can heal from this it is something you can overcome by working with a psychiatrist.
I’ve worked with the top psychiatrist in a university I can’t mention for years and he can’t help my P.O.T.S. one bit…
Who cares! I am Fully UnvaCCinated! Healthy and Happy!😁💪😎
He has a 2 year waiting list but had no issues making time to do this video.....
It's a five minute video.
He didnt do any of the editing either
See his NP, Beverly Karabin. She has a PhD and is just as well versed. She's about 2-3 months out last I knew. I saw her today and I have a treatment plan and meds. Good luck!
They lying that’s from that jab that va😒 smh they need to stop
There's a reason it affects mostly young women. If a man doesn't want to work we just call him a lazy bum that deserves to be homeless and hungry. Its confirmation bias.
Seriously
its just basic depression, its like a sitting depression, that harbors as a normal, you can spring yourself out of it, its normal after any pandemic, you have not experienced. staging it might not be a good idea, 170. but i would say humans found happiness from it 6 times before , and to think all of the most sad things could happen, but yet still intact as a person, at current day. why not enjoy it even more slow, the earth probably needs it.
Lack of oxygen where ya reside?
What did you even just say
Are you using some type of translator??? Not very clear what you are trying to say.
Not surprisingly its women looking for a disability check from a "condition " that isn't well known.
Now they have an excuse for the rest of their lives
What?
@@w1ndgeneral226 For their imaginary chronic fatigue. Follow the bouncing ball !
If you get POTS, you will see how very wrong you are...
@@ee2947 I've had it before and took a nap
@@user-un2tk9sk9b then you don’t have POTS. For a person with POTS, the fatigue is due to the energy their body is expending by being upright. Just standing is equivalent to running a marathon.
before you downplay POTS please know it’s life ruining. i’m 19 and POTS has disabled me to the point where i can’t leave bed anymore. i am constantly in bed. i cannot leave it without extreme pain and discomfort and fainting. my life is ruined and i’ll be like this forever chances are.