The mum thinks those two girls were just living with a disability but they were actually living with immense pain and the quality of life they had was awful I’m so glad they are finally free and resting peacefully
@@TheVideoGamesHistorian yes, a different kind. Claire and Lola were born with a rare kind where they were a lot more disabled with a lot more complications. Not every condition is one size fits all.
Gwen wrote nasty letters to the doctors every year on the girls’ birthdays. Telling them how her girls are “kicking ass and taking names” because they lived another year past their life expectancy. Which I feel was uncalled for. The doctors were talking her what life would be like for the average child that had the same diagnoses as her daughters. Because they didn’t tell her…”your daughters will be unlike all the other children with microcephaly, they will outlive us all”. The doctor’s did the right thing when they told her what to expect. There was no need for her to send a “big FU” (as she called it) with a letter every year. And these girls suffered more in their lives than they enjoyed it. She would actually tell people that they are just like any other teenager…sassy and opinionated”….when you have severely disabled children like this, being delusional helps NO ONE. Least of all those girls.
hate to say it but i was actually glad when these parasites passed, they were suffering every day, they were, yes, parasites,and this awful mother exploited them for attention and money; very narcissistic, just incredibly selfish to even keep them alive as she did. they were suffering and this was most likely detected in the womb, usually these severe disabilities / malformations can be seen pre-birth: these are cases where abortion is the only option. its not fair to the child, the family, siblings, tax payers etc. to keep them alive when they have no chance of even the most basic of functions. i do value life, very much so, and part of valuing life means not knowingly bringing a child who will likely have a lifetime of on-going suffering.
You are not cruel. It's cruel to bring them into the world. Really, they are practically vegetables. They have no quality of life. No one wants to live like that.
@@misslori66 - No...I was making reference to the fact that there are many in the comment section that disagree with you and me about the children's right to live no matter the quality of life. I don't agree with that and would rather not, knowingly, bring a child in the world like that
Oooh okay. I get you now. People don't think about the reality and think every type of life is worth living no matter what. There are limits. @@TheWorld-xs8ly
K Weaver stupid comment considering you obviously have zero knowledge about living without a quality of life. You’re the type of daft cow that demands that people who are suffering and dying keep living when they want to die. Or talk shit about voluntary suicide.
Really. Omg. Thats so sad. Thats so heart breaking. I dont think i would of risked of having a second child. And thats so sad that they are teenagers and they are holding the girls like they are baby dolls. And eating like a newborn.
@@hannahbailey6424 Wow poor baby she made it to 17 years, rest in heavenly peace to her. Her sister Lola will probably pass sometime in her teens to. Due to the severe abnormalities it's just not very possible for people like Claire & Lola to live regular life spans. :(
Their mother is an absolute crackpot. Seriously. She has also ruined her son's life, she would force the twins onto him and NOT let him have a moment of his own. Do you know what that can do to a person? How it can massively affect their confidence and self-esteem. To feel overshadowed constantly. Cal loved his sisters that's easy to see, but his mom would make his sister's be in his prom photos. She made the twins be involved in his games. Like why? Let him have an achievement to himself.
@smittywerbenjagermanjensen8124 ho2w could she have ruined her sons life to the son loves his sisters he helped a lot not because he had to cause he wanted to she did not make his sisters,do anything maybe he wanted them in it there were no games
Letting your 7 year old son who cannot possibly have knowledge of the gravity of the situation dictate whether you give birth to or abort a baby who will be plagued with painful health problems and have no quality of life whatsoever? Sounds legit
Their son is going to have some serious depression in the future now that they have both passed away and will realize what a fucked up thing his parents did.
Bug lover Spider lover the day Lola died, one of Gwen’s supporter wrote a comment on her Instagram like « Sorry for your loss, but she’s finally at peace, not suffering anymore » and Gwen being Gwen, she replied with a « ????????? » I’m 100% sure she harassed the doctors for them to try revive the potato. At the end of its life, that thing looked like a flesh & bones volley ball literally....
Gillian Brookwell why are you judging the parents? God’s knows each one of us inside and outside? They have been through a lot of trials. They might have said it do anything wrong,but it could be out of their frustrated life.
This mother called her severely disabled children a “freak show” on social media. Think about it. The girls have died. These two children lived in severe pain and suffering until they passed. The mother’s attitude, her rudeness towards her husband and son, her grifting for money on social media, her callous disregard for the suffering she witnessed every day, her narcissistic fixation on herself and her own savior complex - is tragic. These children have passed away now - also the news doing a story reinforcing this woman as a “great mother” is very problematic.
yeah....is sad but is the truth i never see this as bleeesing ...more of a punishment from god than anything....also those people seem like they are exploiting them for gain.
There's something seriously wrong with the mother. It's like she enjoys the attention she's getting from her children's suffering. The fact that she has a whole facebook/youtube social media presence says it all. If she had a heart she would let them go, that's no way to live. In fact, I don't believe you can even call it "living" - more like surviving.
@@Shannonbarnesdr1how cld u possibly call 2 little girls parasites ? That is absolutely disgusting. Everyone is so quick to judge the mother. Why ? Because se had social media ? Maybe it helped her coupe... it looked like those children were loved. Maybe she did it raise awareness.... not everyone's child comes out "perfect".
@@rachelreynolds2680the issue was that it was overriding her sons life. Every picture he has, he had to share it with the twins, he coupsnt have a singular post just dedicated to him. Even for his prom, he had to hold them. And the one time there was a post that was exclusively about him, it was blaming him. he said a slur (as boys growing up do) and she blasted him on her social media, making him write an apology and posted it. She doesnt care for her children, she cares for the attention. And plus, for these two kids, it was sadly good they passed. They had a painful existence and at least they can rest now.
@hk1371 what people post on social media isn't real life. Maybe she didn't post as many pics of her son because he didn't want that. Who knows ? But we shouldn't judge someone based on social media. She did the right thing she gave those babies life. What should she have done abortion them ? I think we don't have the right to judge her when we know nothing about her life. What she chooses to share is what she wants us to see... we have no clue what goes on past fb, ig, or TH-cam.
hate to say it but i was actually glad when these parasites passed, they were suffering every day, they were, yes, parasites,and this awful mother exploited them for attention and money; very narcissistic, just incredibly selfish to even keep them alive as she did. they were suffering and this was most likely detected in the womb, usually these severe disabilities / malformations can be seen pre-birth: these are cases where abortion is the only option. its not fair to the child, the family, siblings, tax payers etc. to keep them alive when they have no chance of even the most basic of functions. i do value life, very much so, and part of valuing life means not knowingly bringing a child who will likely have a lifetime of on-going suffering.
They literally sit there bug eyed staring off into space not being able to do absolutely anything. Did they even really know they existed? Did they even ever know what was going on? Were they aware of anything going on around them? Did they really understand anything when theyre being spoken to? Im just so confused as to how they couldve possibly thrived in life when they couldnt do a single thing for themselves. Theyd never have even close to even a somewhat normal life. Theyd never be able to learn anything or go to school, they never be able to play with other kids. Etc. rip poor babies. Youre finally free wherever you are
I'm a mother. I have five children. One of my children is autistic and though he is nonverbal, he is teachable and *can* talk. If I had known ahead of his birth that he would be autistic, I would still have him. But if I were confronted with these kinds of disabilities, I would terminate. For one thing, you have to consider *the child* and what kind of life he or she would have. And for another, it needs to be considered what would be in store for the child after the death of the parents. These girls will never have independent lives. They will never know what it's like to have life experiences. That is not living. That is just existing, the way someone on a ventilator can only breathe when the machine is turned on. Yes, they are people who are part of a family that loves them. But they will never know what it's like to make choices of their own.
You call them selfish yet you have 5 kids, OVERPOPULATION IS A PROBLEM WE DONT NEED MORE PEOPLE, more people means more co2 in the atmosphere heating out planet until we all die so I hope it was worth it giving birth to 5 shit bags you selfish fuck, your not any worse than the woman in this video
kk gang actually, not much is going through their minds bc they don’t have full, working brains. Their sight & vision are perfect examples of how little brain function they have bc while their eyes & ears technically work, they don’t have the mental capabilities to process what they’re seeing & hearing. The little bit of instinctual function they do have is slowly regressing as well as their condition is degenerative.
It took me 5 desperate years to fall pregnant with my first child. I was over the moon when I finally passed the 12 week mark, when a fetus is more likely to survive. I had all the usual ultrasound tests and the scans were fine, up until about 28 weeks, when it was discovered that I didn’t have enough amniotic fluid. Even then, nobody told me that there could be a big problem, all they said that I might need a caesarean, because the baby won’t be able to turn into the birthing position. During the first 5 months of her life, my daughter was diagnosed with a coloboma in her left eye, which means that her eye didn’t develop. I was also told later she has microcephaly, although it is not as severe as for these poor sisters. At 11 she was diagnosed with autism and ADHD. Yet, she communicates in two languages and has such a sweet personality. She is otherwise healthy, hardly missed school with colds etc. But no matter how much we love her, life is often a struggle and her younger sister misses out on a lot of attention. I fell pregnant for the second time when my first child was 6 months old. At the time we had no huge concerns for the new baby, although I was monitored more carefully, having specific scans to check the development of the eyes, in case we have the same problems. Luckily, everything was fine. I am sure, the parents loved all their children, but boy... that brother must have missed out on so much.
my cousin had a daughter with microcephaly. She was diagnosed during mid stage of pregnancy through ultrasound, the doctor advised her to get a medical intervention, but she insisted on giving birth. And our family thought it was the most stupid decision. Her daughter at 7 years old couldn't talk, walk , eat and needed constant care like an infant, like wearing diapers etc. The child cried a lot due to the brain issues. I think sometimes the most difficult and hard decisions can be the most right decision. If she has listened to doctor's advice, she would have lived all those 7 years without having to go through these all. No matter how tough it may sound, I don't understand those parents. Sometimes it's more humane to stop the suffering of these living beings . It's more humane
@@annadavis4205 I agree, maybe in these cases, I think doctors play an important role. Maybe it's better to say fetus growth has stopped or smthing like that to help mother make right decision. Noone should go through what these parents are going through
@@travelingrainbow604 No, patients deserve to know the truth, not have the doctor lie to try and force the "right decision." That's a slippery slope for many other medical decisions.
They decided to have a third child despite knowing the microcephaly is genetic, and then decided to carry to term after the ultrasounds confirmed serious physical defects. They knew that child would have no quality of life, and while I know termination would have been a horribly difficult choice to make, it seems irresponsible to have made any other. They could have saved her from a lifetime of pain and suffering.
Vipere Are you serious? Why would you say such a horrible thing?? You know I am 24 years old and I have dealt with disabilities everyday since the day I was born. 💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀 That isn't a very nice thing to say, I'll terminate the pregnancy to save a child from pain and suffering. 💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀 So yes that comment made me very upset. Some mother's don't want to terminate the pregnancy. I have a cousin she had a child in 2010 and that child is disabled. Today my younger cousin Mia is 8 years old and even though she is disabled because of genetics she wants to be here.
@@jacquelinesmith-jackson2815 There's a difference between disabled and brain dead, these girls don't even have a majority of their brain. Its cruel to keep these children alive because they aren't even "mentally awake", they just exist they don't know that their parents " love them " (In their case exploiting them for attention)
Jacqueline Smith-Jackson We dont mean things like Autism or being in a wheel chair! These girls just sit there brain dead 💀, they’re in pain 24/7 , can not even speak or voice their opinions dont make decisions for themselves , spend their lives in hospitals . I would have an abortion , it is the right thing to do , they die anyway! Might as well do it before they come into the world and have their lives full of pain . Their not living their existing which has its differences existing is just in the world living is have fun having a life . So abortion is key 🔑
Julia De soto 😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱 Oh really after I was born I had a brain hemorrhage and a stroke. I was diagnosed with hydrocephulas and I had to have a shunt put in my head to drain fluid. By age 2 I had a cyst that grew on my brain stem. I cannot believe you would say such a horrible thing. 😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱
I have been through Cerebral Palsy and Juvenile Rheumatoid Arthritis. You've got to be the worst fucking person alive if you believe an abortion is right. 💀💀💀💀☠️💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀 I have been through at least over 50 brain surgeries and hip displasa surgery. I have been through Osteonicrosis and Osteoarthritis. Seriously what the fuck????????? ☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️☠️ Why does every female want to have an abortion when they find out their child or children are disabled. 💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀💀 It isn't the right thing to do, besides if you want to find medicine that will help the disabled children, they have to be alive.
at first it seems all innocent and wholesome, seeing a mother’s love for two disabled children, then when you read about the full case, watching this brings a sickening feeling to my stomach…
Yeah, when you really do a deep dive into the blog and socials, you really understand how they weren't merely disable, but non-abled. They were offered no dignity and the mom made them look and seem more disgusting than they should have been. Those girls never hit any milestones and gwen refused them medication and chose the woo way... Until those children inevitably would need severe medical intervention. Of COURSE then medicine was ok for them. She's said holding them is a "holy experience" and how they could communicate blah blah... Their delusion about these children did nothing for them except gross people out, pushed the "typical" son aside and made up personalities for them all while using up resources which would never work for those children and could have gone to someone who could actually use it. She always lied to everyone and herself about their Dx and thought her children were an exception to the rule about people born with aspergine synthetase deficiency, which was their actual diagnosis... Yet she just kept trying to keep them the face of microcephaly when this and ALL of their other ailments were mere symptoms of the much worse problem.
These parents are honestly selfish. The mom literally chose to have another child knowing the risk of them being born with the same condition, to suffer with progressively worse conditions and not even make it to adulthood, then have the audacity to say they’re “thriving”. She purposely ignored doctors advice and was even wrote narcissistic letters to them to tell them that they were stupid for pointing out facts to her. I also feel sorry for the son as well, just as much as the two girl’s didn’t ask to be born the way they were he didn’t ask to be born “normal”. May they rest in peace free away from suffering and dealing with a narcissist delusion mom who would parade their ill health around and even called them a “freak show”.
That comment says a lot more about you than it does about her. Several people have already shared all that information because it’s really important to them that we all hate this woman. Spewing hatred is not noble. It’s not making you better than her. It’s actually very ugly. But I’m sure you got a big rush of self righteousness when you posted that comment. Do you do this to other parents too or do you just reserve all of your bitterness for this particular mom? You will never see a truly kind person writing the kind of things you and some of the others are writing. I hope you find some peace, because it’s apparent you are struggling.
@@karahupp4589 Did you get a rush of righteousness justifying a mom who forced those two girls (the second one knowingly) into the world to suffer with their conditions when she could’ve adopted? Im not a eugenics supporter if thats what you think, children with autism and ds can live good lives. But if you as a parent are aware that you have a genetic condition that will extremely hinder their quality of life, why would you have another biological child? Thats the true selfishness and ugliness. Sorry i care more about the quality of life about those kids than a selfish narcissist who felt the need to continue having ill children, to then exploit their dignity for internet clout and to call them “freak shows”.
@@karahupp4589Yes because a mom who shares her two sick children on the internet (that she was aware of the risks and still imposed on them), sharing stories about their bodily waste, and making videos of them when you can clearly see they’re in pain is definitely a woman of respect. She blatantly disregards their dignity and chose to bring the other girl in the world after knowing the high risk of her having severe microcephaly. Im not a 3ugenics supporter if thats what youre thinking, people with asd and DS can live good lives but those two girls were just suffering. Why couldn’t that mom have just adopted? Why force another innocent child to life that way to not even see adulthood? Sorry i care more about quality of life of a child than quantity.
@@lexx1235 these children didn't just suffer mere microcephaly - though she tried to keep herself and those children the face of it. These children suffered from a degenerative brain disease (aspergine synthetase deficiency). Their brains started to atrophy basically in the womb or right after they were out of the womb. When you look at gwen's socials and blog, everyone can read for themselves how she imposed/made up personalities for them while offering them NO dignity. NO teen nor tween would want videos of their mom posting of vomiting, soiling themselves and the explosions being all over the husband. Even a 7 year old would be embarrassed of it. Gwen was selfish and dangerously delusional - she did NOTHING to spread real awareness like other moms who share what it's like to have a child with a rare illness. Did nothing to help science for other moms who have children with this down the road. She did this for her own selfish reasons. Anyone who cared SOOOOO much about their literal dying children, she sure took those immunocompromised children into public with seemingly no care. Both girls looked so close to death for so long - but it's like she chose not to see it or didn't see it. Didn't give them meds and went the total woo way, but sure used severe medical intervention when both of them died... Especially when the 2nd one died of the common cold.
Knowing the struggle and quality of life is nil, because I already had a child like that. That's probably one of the most acceptable times to have an abortion. After 15 years, the oldest girl put her foot on the floor and she calls it walking. I think the parents are really reaching for something that is not actually there. People in coma also can open their eyes, swallow, and moan. The longer you stay in coma, the more severe the brain damage is. These girls didn't have anything to start with.
FoolyLiving What do you mean you already "had a child like that?" What happened to them? Did you terminate the baby by abortion? I would think that you wouldn't know something was different until late in pregnancy or after birth.
No, I don't have any kids like that. I'm speaking as them, having already HAD a child with it, they went ahead and had another one and didn't have an abortion with the second one. That's a miserable way to live. When I was pregnant last year, the sonogram showed that the baby did not have a cerebellum. I had more than a month to think about the life my daughter would have without part of her brain. It's no type of life and it's selfish to not terminate when they KNEW with the second child.
I learned 3 lessons that I will never forget today. One, what an incredible piece of engineering a normal human being is. Two, I will appreciate and take great joy in a lot of things I took for granted before. Three, the gift of a conscious, fully functioning human life is something that I will be grateful for till the end of time.
@@gameypiettvgamergames7463 they actually have a condition that made their brains never grow to normal size and atrophying due to the degenerative nature of their disease. Microcephaly is not their primary diagnosis and yet Gwen goes on and on with every chance she can get to talk about microcephaly but she never mentions the actual condition that they have that led to the microcephaly and all the other problems these girls had.
3:56 She says she doesn’t regret putting her daughters through suffering, of course she wouldn’t regret giving birth to them because she loves them, but even though she is aware that her daughters are suffering she doesn’t even regret it a little bit.
You just don’t understand people that have a child with a disability I was also born with a disability my parents didn’t know that something was wrong with me until I was born but they are still happy that they had me even though I’m handicap I’m actually glad that they rather me be alive even though I go through chronic pain
@@Manderz89 this isn’t a disability. These girls didn’t have any thoughts or wants of their own. They were just moving dolls for their parents to baby and profit from eventually.
@Amanda seems your disability isn't like the hartleys... Those girls would have never been able to comment on a thread or do anything for themselves. Their issues were degenerative, they were only ever going to get worse.
There’s a big difference between chronic pain, and having no idea where you are or what’s going on ever, being immobile, being cortically blind and deaf (because although you have working eyes & ears, there’s no brain to perceive sights & sounds), having less ability to engage with the world around you & function than a newborn. While I’m not discounting your struggles in life, the latter case is undoubtedly a horrible, painful, empty way to live; a life devoid of any quality. There is more to life than having vital signs, being spoon-fed like a newborn, and shitting. Please explain how that betrays a “lack of understanding of the disabled”? I think it’s you whom lacks the understanding that many disabled beings are different from yourself.
This condition is so rare that it is very possible that the doctors missed it this happened to me where they didn't tell me until I was 24 weeks and 5 days too late to make a choice
@@johanna2690 the doctor that I had at the time was a high risk doctor who after telling me what was going on decided to drop me as a patiet because after I went to the hospital because I thought my mucus plug was coming out the hospital picked up that something was wrong and contacted him he knew he had messed up and it was if he didn't want anything to do with the situation at that time I was 24 weeks 5 days I spent the next few weeks trying to find an obgyn but no one would take me because either they said I was too far along to accept me as a new patient or because my baby had microcephaly that they were not willing to take me I eventually finally found a hospital that had to take me around 34 weeks but with everything that happened I was happy I was able to at least give my son a chance and meet him and hold him and kiss him I was able to take pictures and make keepsakes he lived for a couple of hours but sadly passed the same day he fought hard where it seemed he might be ok but then suddenly he made a turn for the worse its been very heartbreaking he was born February 8, 2019 so it's still really hard but regardless of people's opinions about parents like the ones above stories like theirs gave me hope and helped me know what to expect it takes a lot of courage for parents like them to tell their stories because of the judgement that comes with it but I can honestly say that when your in their shoes it will make you look at the situation differently and im glad that everything happened the way it did because if it didn't I would have nothing to remember him by some of my decision I regret but going full term was not one of them
@@MZPRTTYRD Oh, I'm so moved by your story. I'm really sorry that you lost your baby boy so early. I'm glad that you could be him a mom even if it was for such a short time. There is quite a community on youtube of moms who experienced a still birth. I know your situation is a bit different but I could imagine it would help to talk to other moms who lost their babies too soon. There is a channel that's called 'still braxton's mommy' if you want to check it out. It's unbelievable that you had to fight to get prenatal care. Shame on your first doctor who left you alone with this and didn't detect it earlier. But I'm glad you're at peace because you could birth him and make memories. I hope you have support in your life to help you get thru the grieving process🌹 Wishing you all the best!
This is never a life I'd want for a child. They're not even really alive, that sounds so wrong, but they'd never be able to live on their own and be away from their parents.
@marianne mccrank i applaud the effort from the parents, but i can’t help but think that these poor girls were simply miserable. their eyes are so blank, it seems like their parents are using them so that they can feel like heroes. it’s odd, these parents kind of rub me the wrong way.
They were alive but not mentally aware, which is even worse. If I knew my baby was going to be born that way, I would abort them because I wouldn’t want them to endure so much suffering. It seems unfair to put a child through that. I don’t know the parents personally so I won’t judge their decision to keep the children. But it still seems off.
@@blossomsandroses7517 you ever see someone get injured and you feel that sympathetic pain? Like you kind of feel what they feel? I get that when I read about microcephaly. I can't imagine living like that. Seems like a very unpleasant life.
@@scottvelez3154 Physically I think to myself I just want to vomit when I hear the word Microcephaly. When I saw this I almost got chills down my spine. Doctors that are not very well educated at all. It is heart breaking. 💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔 I understand most of the time that a lot of the time a child or an adult having several disabilities has to do with what the mother went through when she was pregnant with the child or the children. Can you believe there are times that a doctor that works in labor and delivery will absolutely not take care of a child.
How can a kid who was 7 at the time make a decision in a situation too complicated for any child to understand? How do we know they have this strong will to live? How do we know they have this "soul connection?"
when you hang out with someone, you get to know them. same goes when you hang out with someone with a profound disability; the interactions you have and your means of communication are a lot more subtle and nuanced than a regular conversation with ppl who use regular language. that's what she meant. it's a _human_ connection, she says it that way b/c the human "soul" is a really abstract concept, but it's one that most of us understand.
@@paintingwithcammiebourke3984 yeah, he didn't "make the decision" for them, he just _gave them his input!_ the way so many of these people are _projecting_ is bonkers sometimes, wow tbh, were i them and _Lola_ had been born first, idk if i would've made the same decision - based on what her mom posted abt her, with her insomnia, given how agitated she often seemed to be, she was too small and fragile for even the children's hospital to dare put her under so she could have a more permanent feeding tube... to see what that kid went through and NOT give her credit for having determination?? it's hard to understand. but they had _Claire_ first... and Claire's quality of life was fine! a lot BETTER than many ppl with spastic quadriplegia because she WAS so small. she could easily be picked up and moved, carried everywhere, she didn't need adapted bathtubs or lifting equipment or anything! you could bring her on vacation, hiking, shopping, movies (unlike infants, she rarely cried), it's not difficult to bring her wherever you were gonna go anyway, and that makes a MASSIVE DIFFERENCE in these people's quality of life. but it was especially clear (even to strangers! her mom had a decent following on her blog) that Claire was fine because she was so chill and calm almost _all the time_ ... virtually everyone can, at the very least, communicate that they're uncomfortable or in pain, she was no exception. so, no, she couldn't walk or talk or eat, but she apparently didn't care at all abt that, she was rarely cranky and she was physically comfortable. having Lola was a _perfectly reasonable_ decision.
You don't get disability checks. You might get $50 - $100 per month social security if you are proven to be in poverty, but that's it. I can guarantee they are spending more on these children than $100 a month.
I think these parents are thrilled at their story and find much joy in the attention they get. It is sort of like they see themselves as heroes above their daughter's disabilities. They don't talk much about the son. This must have affected him greatly as well. He may need therapy.
Yep. They exploited their children. Jaxon was a total cash cow. Parents quit their jobs, bought a house, new cars, multiple vacations….but told everyone the money was going towards medical expenses…parents like this make me SICK. 🤢🤮
"It takes my seven year old son to come to me, with his wisdom, to give be the best piece of advice I could've gotten at that moment." Doctor with years of experience, schooling, and research: *Am I a joke to you?*
The whole laughing thing when they found out the second one had microcephaly as well is just weird. I get the feeling these people enjoy the attention these two girls get them. This is a huge negative in modern medicine. People being able to keep others alive that have no quality of life.
Breanne Beyer May I ask if you’ve ever been around someone with a major disability for several days and nights in a row? Do you have children? If do any of them have a disability?
Yes I have. I'm an RN. I've seen families selfishly have family members of all ages tube fed because they can't stand to let them go. The fact that these people went on and had a second child knowing the risk is awful and selfish.
well you're entitled to your opinion as they are to theirs. neither of us can tell whether they are really suffering. you could measure cortisol levels, inflammation parameters.. do fMRI-scans... nothing could tell us if they were really suffering. there would have to be the necessary neurological network in order to become aware of or even register the concept of pain. Even if I would'nt have gone through as they did, I think being judgemental of them like many have been before doesn't do any good.
they laughed because they were in shock. people react differently to everything. if you don't have anything nice to say, don't say it at all. act like an adult.
It was impossible not to see that both of these girls were in constant pain. Thankfully, both Claire and Lola have died, and can no longer be made to suffer for Gwen's entertainment.
I WENT INTO THIS RABBIT WHOLE OF THIS CHANNEL WITH THE PARENTS TREATING DISABLED PEOPLE LIKE TOYS AND PROPS AND THANKFULLY I'M NOT THE ONLY ONE WHO THINKS SO.
Even if the son has the gene abnormality he has to hook up with a woman who has the same thing. Before he makes babies not only he needs testing, but so will the woman.
If I'm not mistaken I believe he has a 50/50 genetic chance. Both parents carried a recessive genetic condition and the odds of have 2 children is astronomical. The parents probably have 1/4 each to produce 50/50 odds of 3 children realistically 2 children both girls I might add. It even could be that the mother carries a high gene for 50 and the dad 1/4 since the son doesn't carry a dominant gene. Buy otherwise I'm guess he does carry the gene but the odds of finding another person who carries it is slim. From what I can remember in science is it takes 2 people with the same recessive genetic abnormality to produce a child with such a rare condition. Especially two children with the condition.
Honestly I'm relieved that both girls have passed now, the mum had a youtube channel for the girls and I got a really bad vibe from her. She would call them clowns and goblins! One video showed lola having a seizure and the mum was cooing and sticking the camera in the poor girl's face!
I think I remember seeing some of that video and it’s highly disturbing. What a shame to make a mockery of these poor babies that have no choice or voice what they are feeling and suffering. Ugh makes me sick
Dude i remember that when my mom was pregnant back in 2016, she was terrified of the zika virus, since we lived in a place where cases were near abundant. Thank goodness she didn't, it seems so terrifying.
@@bellakatherman1477 And you colossal ass hole. How do you know these girls have no quality of life and their life is full of hunger and pain. Projection much??? All three of you are sick and spectrumy.
Beverly Balius they even knew the first one would have major issues so none of them should have been born. She only did it for attention and the respect of the lower IQ population.
Page James. Imperfect children can be loved. But some may consider those two vegetables as non humans, which makes sense. What are humans without a brain? A vegetable for sure!
@@lizzybeary no you're right it's not exactly the same, but given that they made the final decision based on the wants of a young child, I'd argue that they did do just that. As a parent of children around that age, they don't grasp the nuances and implications of such huge decisions and I would never put that on their shoulders. That being said it was ultimately their decision and I don't actually condemn them for it, but its an odd thing to almost blame on their older child?
The parents knew & admitted that they would never have the mental capabilities beyond that of a newborn. Their condition is degenerative so their mental function would actually regress from that. To give you an idea of how extreme their condition is, their eyes & ears are functional but they have such limited mental capabilities their brains can’t process what they see or hear. They are essentially blind, deaf, & have zero awareness. I can’t imagine condemning a child to an existence like this. I can’t bring myself to call it a “life” because they’re not truly living, just existing.
Just looks? That’s how u decide? I truly think that they are so happy with there life! They have there happy times and there bad times just like us. So instead of judging by looks, we should truly get to know them. 🙂
Hollywood Dream i really like your optimism and your ability to see the bright side, but unfortunately not everything can be like that. I definitely agree there are some conditions where looks don’t determine anything, but in the case of microcephaly I would argue the looks don’t tell enough. Your brain is responsible for so so much and even minor under developments can be detrimental. In cases like this where it’s severely underdeveloped and regresses, there is no quality of life.
Knowing that your baby isn't gonna be healthy/fully devolved is one of the worst feelings,r.i.p claire your memories are locked inside my heart,we love you
Emily Well she didn’t find that out until she actually had Claire and she had. 75% chance or more of having a non disabled child and she really wanted a another child.
Even if there was only a 1 in 1 billion chance of it happening again no, don't be so self centered. They already had children before having a child with this condition and that's a lot of "of your own flesh and blood" children. If after all that there's still this yearning burning need to have more children then why not adopt?
This is hardly living. Poor girls. And you let your 7 year old boy choose. Seriously? Young kids don't know the complications that disease such as these brings to a individual
Nobody should ever discuss an abortion with their 7 year old. Now he might feel guilty that Lola was born despite her horrible prognosis and the parents are saying he's the one who made the decision. There are so many things wrong with this family
They never said they let him choose--duh! 7 year olds will tell you what they think BEFORE you ask, lol! And no, they shouldn't have tried to hide such a huge, important thing from him (the pregnancy and its possible outcomes). Children internalize this stuff if you don't give them context for the feelings they're picking up on. I'm sure they found a way to explain it to his 7 year old brain and heart (it's all about presentation)
While always giving credit to these two children for all of the son's successes. Like his non-abled sisters made him win his basketball games and they're the sole reason he's a good person. 🤦🏻
Those girls could not have enjoyed life. They were so disabled and had so many problems. It was extremely selfish for them to have a child after the first girl was born. Knowing they could have a severely disabled child. Those girls had no quality of life. Those parents were so out of touch with reality.
Selfish as hell to have more kids when you know you are passing on a genetic disease.It's cruel to expect the son to care for them when the parents pass on. That child has no idea what world she's in.
I hope they do not expect him to care for these girls. He should not be made responsible for his sisters. Obviously they will not live much longer. Longevity of microcephalics is not long. The parents are young enough. It should not be a problem.
Kathy Jo West what a horrible thing to say. It's a 50/50 chance her children would get it as she had a son without it. It's wrong to tell people if they can and can't have children. It's not like she is claiming benifits and can't support her children. I hope nothing like this happens to you or your family!
In a different video the mom says that they knew the genetic risks of having another child with the same problems, but went ahead with it anyways so the first one would have someone to 'go through life with'. Those parents are disgusting and selfish and should have to live with the same pain.
If there was such a thing as reincarnation then I'd like the roles to be reversed so these kids watch these parents suffer and give every bit of disrespect they received right back to them
Well... I don't think they even feel anything... Isn't the whole point of the condition that they basicly don't even have conciousness? that being the case at least no one is really actually suffering in a literal way... They have no idea what's going on, they have no idea about anything at all, they are basicly brain-dead.
I'm sorry but if I knew my child was hurting.....than I wouldn't let them continue to keep hurting. They aren't living...they are just there. Also they are in denial....sadly
They've both passed away, thankfully. They are free from their non-sentient nightmare that their sicko parents put them through by keeping them alive. Never thought I'd say that about someone's kid, but this is that one case.
@@joanbaczek2575 no their Gene's carry it. They have a 1 in 4 chance of having a child like them and still risked having another kid after finding this out.
Rest in peace Claire and Lola. Lola passed away 10 months after Claire yesterday on 10/12/19. Hopefully they are in heaven will fully functioning brains.
My family has two female children, and before us they had a miscarriage. We both have a rare condition (Alports syndrome), nearsightedness, and autism. Usually boys with Alports don't live so the miscarriage was probably a boy. However, my sister's only 2 years younger than me, so they could not yet tell both of us would have these conditions. While we don't think of ourselves as irresponsible choices, this family KNEW it would all happen, and has no excuse to have brought the two sisters into being.
Agreed-I know someone who is expecting her 4th child and all of her kids have sole form of health or cognitive issue but because of their religion or something they keep having babies. They live in a flat and the mgr has told them they are at capacity for their flat but they don’t seem to understand it’s time to stop. They’re also on welfare
They had the son before the girls and he was completely normal. Claire was the first sign of a genetic problem and their doctors told them that it was most likely not going to happen again so they took the risk. It’s not their fault that the doctor was wrong.
@Paper St. I would never want to see this family adopt a child. People think we're being mean but they just don't know the background of this situation. I'm done trying to explain it
"I'm letting her personality show though" No, you're imposing your own sick personality onto your disabled daughters and exploiting their condition for your own entertainment and online attention. There's something very wrong with that mum, I've just got a feeling about it.
I think they are misunderstood. I can’t even begin to comprehend their circumstance and what they have endured. Only from the outside can I say I wouldn’t choose their path but I can see the complexity in their ability to navigate the life path they were given and have chosen. I read these comments and I think these are all reactions I couldn’t judge really, finding myself feeling similar, but then again, I’ve also lived long enough to know that nothing is exactly as it appears to be and life is a lot more complicated and human life is a lot more complex than we can fathom when trying to make the best choices we can in life. Do no harm is a very very gray area
While I give credit to the parents for taking on the immense responsibility of two severely disabled kids, those girls have a poor quality of life. The son will probably end up caring for them when the parents can't anymore. If I ever got pregnant with a fetus that had this issue, I would absolutely have an abortion. That's not living, that's existing.
if they have cp as well as microcephaly, they're not likely to make it more than another couple of decades, even with good medical care. If their cp is degenerative as well then the prognosis gets even bleaker for them :/
God bless.. I have two children who are special needs one is passed away at age 50 and the other one is 50 and in a special group home because of his special needs, and I'm three years from 80 right now. So I know... I've also lost another son when he was 30 years old, and my husband's passed away for the last 8 years, but God GIVES us the grace to get through. Your story will be an encouragement to others going through similar situations. I live with my lovely daughter in Pennsylvania now, and my other daughter is married and living in New Hampshire. They are a great source of comfort and consolation to me. and I haven't had parents since 10 years old so that's really made my life quite an adventure.
Wow, thats pretty though.I can't believe someone at the age of 77 is able to use a phone, let alone social media. It's pretty inspiring to hear that such a long living human tells their story on the internet.
@@aproxo4626 🤣 Did you thought all elderly peoples are too oldfashioned or dumb to use social media? Well, i want to inform you, we're not all the same. I know a 94 year old gentleman, who's regulary communicating with his daughter in New Zealand on Skype. Greetings from another old fart who's enjoying the internet, especially the oppertunity to find music videos of my favorite bands on TH-cam. 😂
These people have gross attitudes. No, no one should have a child like *that* because they aren't living, they're surviving and always in pain. She seems to love the attention her disabled children bring her.
@@hamletfisherman5740 it's her personal opinion and what's gonna the girls when the parents die the brother will most likely have a family of his own and his own life to live who will actually take the time to take care of them
To anyone calling these people monsters for laughing when their third child had microcephaly as well, that is laughter out of shock, it's actually a pretty normal response from your brain when it doesn't know how to process a shocking situation. The father said so as well. Besides that, I completely agree with everything you're saying since this couple made their children suffer chronically for years for what reason even? Attention? A feeling of moral duty?
Why would they be in shock when they already knew the risk of their genetics to carry these defects & diseases ? I’m sure they were in shock of how stupid they were to be surprised. I realize some people think it’s so caring that they gave these babies a chance to live and exist even in their conditions. But once they already had one child living most of its life sitting in a toddlers chair I think it’s more cruel to risk bringing another baby into this world to suffer the same fait knowing how fragile their existence was. May both angels rip 🙏🏼🙏🏼
They have tests for these things. Abort it instead of abusing it. I feel nothing but contempt for parents like this... imagine if they died, who would take care of these things then?
These girls are just simply there. If you had a child in this condition, don't go and have another one if there's a chance of the next child being the same. It's sad.
Clorox Bleach that's what I was thinking. First child like that? I would keep them and then adopt others. If you know you have the potential, don't do it. That's selfish
My very precious baby brother had microcephaly, Lennox Glastaut Syndrome, epilepsy, scoliosis, and cerebral palsy. He wasn’t supposed to make it past a year old. Then the doctors said that he’d die at 13. He passed away when he was 19 years old on March 25, 2016. 💖
It’s cruel to make a child have to continue living when they’re in constant pain and struggle. They knew the second child would have the same trouble and went ahead and had her anyway. It’s unfair to that poor girl. The oldest one passed away a couple of months ago. Poor thing didn’t even get a life to begin with. Rest In Peace, Claire.
They can live very enjoyable lives if the parents put the work into it and you can tell that this mother did even if she needed help doing it. I had a daughter with a similar condition she didn't like tummy time but she always tried to lift her head even though it was hard and she did not like opening her mouth. But if she figured out that it was food you were putting near her mouth she wanted all that she could get! Her taste buds were a lot more excited than her stomach was for food. She passed away because of pneumonia, but she had a very happy life full of cuddles and food with older brothers who loved her
@@bobbyadkins6983 right. Some people in the west are so materialistic and faithless that they think a defected child should be aborted and birth perfect babies only that can look for money when they grow up. I am glad that I value life and children's lives more than that
I consider myself pro-life, but these girls have no life. No quality of life at all. And, perhaps worst of all, they have no way to communicate if they were suffering and/or in pain. Termination is a merciful choice in cases such as these, in my humble opinion. The poor son-the only normal child gets ignored too, because his sisters require 24 hr care from the parents.
I find this perspective interesting, abortion should be a personal choice. Much like we should respect moms who do abort, we should respect those that dont. I wouldnt have made the same choice she did either time, but shes allowed her CHOICE.
You have no right to say when and in what circumstances its okay for others to abort or be forced to deliver a child. Everyone should choose what THEY think its best and what they can handle.
Mary Smith “Pro-life” is truly just anti-choice. Women should have the right to do whatever they want to do with their own bodies, and no one else should have a say in it. If it’s not your body then you need to stay out of it.
At least it turns her son into an accepting loving individual who doesn't give a crap what you look like or what disability you have. Life would be boring if everyone was the same. Sometimes we learn from people with disabilities!
They knew with her second girl that she was severely damaged while she was pregnant with her yet let her be born only to suffer and then die anyway... just horrible... its just selfish to let them come into the world like that, this is wrong!
I feel bad for their son. When his parents get too old to care for his sisters they'll likely make him their caretaker instead of turning the girls over to a qualified home with 24/7 medical care because they don't really seem to understand how sick they are. All of the mother's blogs read like the girls are absolutely normal girls for their age with their own personalities and independent thoughts while she forces the girls into every aspect of her son's life, including his prom photos with his dates and making them the 'mascots' of her son's sports team. I hope her son can live his own life for once out of the spotlight.
Ji Mi i can assure you that they don't want that for Cal. even if they did, Cal is their brother and loves them so i'm sure he would do it in a heart beat. as far gwen treating them "normal" you've got to realize that she's trying to have them live the most normal life possible and she is determined to treat them as people and not as freaks. she doesn't feel bad for them, it's just the cards they were dealt and they do the best they can with their circumstances. please open your eyes and realize that your body is just a vessel. it carries your spirit, energy/life force, soul and the like, but it doesn't define the person living inside of it. there are people in those sick bodies! they want to be just like anyone else and their parents are providing that to them
Well said Ashley.. people talk like these loving parents can just say.. "you know what, these kids will never come to anything lets just get them put down" They've had children and they are raising their kids the best way they can...
Wow. Do you know anything about their son? Have you read about how grateful he is for his sisters? How he feels that they have made him a better person? I think that some people to look at these girls and only find the negative. It takes GOOD people, people who can see the positive, who know that life is about more than "having it all" and appearing perfect on your IG feed, people who are willing to give of themselves in order to make someone else's life better, to embrace this life. Heck. What would you have them do? Moan and whine about how hard their lives are? Instead they accept it. And they pour love into those girls and their son that any child would be lucky to have. Please don't feel sorry for their son. His experiences with his family have created in him an outlook and personality that most of us would do well to encounter. No, don't feel sorry for him. Feel sorry for those who just can't look past the disabilities, who can't fathom the love that awaits when you give of yourself until it hurts. A life changing love. Feel sorry for those who wouldn't hesitate to terminate children like these sweet girls, and would rid themselves of any difficulty or hurdle in life that would cause discomfort or sacrifice. Those are the folks we should feel sorry for.
Yeah, nowadays you can have a good life with many disabilities, even as a blind person or someone with Down's Syndrome - but this, this is not even living.
Because if you’re no longer materialistic, you should sell the house you probably bought some years ago and buying a two story house is SOOO materialistic.
@@lizzybeary Im sorry. I thought that your sarcastic reference to materialism and their home meant that you believed I was overvaluing their lifestyle. What were you trying to suggest? I was only pointing out how insincere that comment can appear to lower middle class people who have more education and more experience than this couple, but who do not have anything close to the kind of wealth implied by this kind of property. If you can not understand that, that is why I assumed you saw their lifestyle as average. If you can, I think you are just trying to pick a fight.
@@dr.christopherdiaz4473 I’m not trying to pick a fight. I understand how it can seem insincere, I grew up poor, homeless at times, going hungry some days. But that’s his experience and if he’s able to gauge that his materialism was worse before and it’s gotten better since he had his first daughter, that’s fine. That’s his experience. And like I said before, chances are he bought his home before she was born. So if he bought the home when his materialistic ways were worse, should he now sell his home because he’s less materialistic?
I really, realllyyyy want to slap the parents. They have no understanding on how much suffering these poor, poor children are going through, the speak of it as if it’s a trophy, something to be displayed and it honestly sickens me at how the mother seemed vaguely excited at the fact she was receiving more attention when the disease was media spread
now.. correct me if I'm wrong, but I'm pretty sure living, is being happy and not just meh. Surviving however, is just the state of being.. not dead. Now.. if you ask me.. this family is very happy, are they different, yes. will they face challenges many other families will never have to face, yes. But they will do it happily and with a good attitude.
And remember that nobody could really tell their future. There are a few other videos with women from Brazil mainly which are also the hereditary form who were told they would not walk, talk or live long, they have all learnt to do so and still live being in their 20's. There's even one young woman who has successfully studies journalism and has written a book. At this point in life she even hardly has problems she notices, though growing up she had her challenges. So while these girls turned out quite handicapped, things could have turned out much different and the symptoms could have been milder.
I feel a little gulity about this but if I knew my child would come out this disabled I would probably get an abortion. That aren't living, they are existing until they die.
it is normal to feel that way. I know I would have had an abortion but there are people who feel differently as these people do . Actually it appears, these children have given them a new lease on life, such as a hurdle to master, if you will, on a personal level. They have embraced the issue in a strange but positive way, so ? who knows ? maybe these two girls were exactly what they needed.
I would too. What quality of life is that child having. The pain and suffering and never having a family of their own. I feel like it's selfish of parents to keep them just to have a baby.
I'm not exactly anti abortion per say, but I often think that people who have abortions in normal situations are a little careless and unfair on their unborn baby. That being said, I think in this situation it's actually the better thing to do. This girls have no life, they can't talk, walk, enjoy really anything and put great emotional, physical and financial strain on all those involved. I would never get an abortion for simply failing to practice safe sex, but in this case I think I would have one.
Several years ago, he’d said the word retarded” while with friends. It got back to his mom & she made him write an apology letter that she promptly posted online in its entirety. She’s a disgusting excuse for a parent.
Don’t @ me. This is just MY opinion. But what value of life does your child have in this condition..? Like if you knew you were going to bring a second child into the world and be okay watching them suffer like this as well.. idk. It seems selfish to make them go through all that suffering just to die so young. I can’t tell if the mom is genuinely happy or if she’s just loving the attention.
@@marlynlawson1202 However, pain does not require much of the brain at all to be felt, especially since pain has to do with the nerves themselves. They have enough of their brains to feel constant pain.
@@marlynlawson1202 i really wonder how exactly they see everything & what goes on in their head...if anything even is going on there.. anyways it certainly is sad
Not to mention that Claire needed so much care so why have another, especially if they have a good chance of being severely disabled like Claire. Munchausen by Proxy here
Even if the odds were "in their favor," they should have never had another kid with that risk. Their poor boy got screwed over because moms putting all their efforts and money into keeping them alive in that state, she's incredibly selfish.
Carrie White MSBP is when the caregiver induces or feigns their kid’s illness. Gwen didn’t necessarily cause their disabilities (aside from genetics). She’s just selfish & arrogant to think she knows more than those in medicine.
@@whitney524 You're right but I find it sick that she enjoys all the attention she gets from her severely disabled child. Claire passed away so when Lola's time is up I'm wondering what Gwen will do. She constantly puts herself into the limelight because of these children and even has a blog sharing the most private things about her own daughters including pictures of their bowel movements. I saw that recently she had something called "Claire and Lola's Law" passed in order to garner more attention for herself. What is going to be next? This has nothing to do with the well being of her girls. This is all for her and she is a disgusting person!
Carrie White absolutely! Nothing she does is ever to benefit the girls. It’s all to gain attention for herself. A good example was the Night to Shine prom for special needs people. Nothing about a prom would benefit the girls. It was all about Gwen getting some kind of normal event with her teenage daughter.
Sorry but these girls had zero quality of life . I understand the parents wanted to make the best out of a horrible situation but they seemed to be bordering on the lines of delusional
So they had a child who had a genetic disorder that meant that she wasn't living, she was surviving. And then they decided to have another child.. WHY? If you have a child with a genetic disorder then there's a 1/4 chance that your next child will have it too. Why put everyone trough it?
mrs.nilu Das some people laugh to cope with traumatic events or just deal with stressful situations. I wouldn’t call them sick just ignorant and passive aggressive
@@egomez1225 Lola finally died too. About a year after her older sister Claire did. Oh the suffering those poor sisters had to go through unnecessarily because of sick, selfish parents.
Laughter is a coping mechanism. Just because they laughed doesn’t mean they find it funny, it just means it’s their way of coping with a situation so awful that they feel like they need to laugh to make it a little lighter of a situation so that they can handle it.
They are terrible. If you saw their videos (they got deleted now) you'd see they're using them for attention and making fun of them themselves, calling them gremlins etc.
Watch the worlds smallest ninja and then tell me they are good parents. Or maybe the one where she's bending Lola's finger back to make her cry. Ot the one where the dad is roughly shaking Claire's hands so it looks like she's rolling the dice.
Microcephaly, scoliosis, cerebral palsy, AND dwarfism?? That's horrible.
And that's only the tip of the iceberg
They also have a degenerative disease that is slowly killing them.
It’s unfortunate that Gwen’s body didn’t terminate both pregnancies given all of their defects since Gwen was too stupid to have 2 abortions.
@@southerngirl1490 ~ I agree.
Mars Drop stfu. the little fuck is a freak
The eldest one, Claire, died today. Thankfully she's finally at rest.
@@pigletpiglet8751 It's on instagram.
Sorry for their loss but she's in a better place. In no pain just a sweet angel now.
ugh what’s their instagram??
Covers by Brittany it’s something like @gwennieh. They’re on fb as The Hartley Hooligans
Why would you kill your child just because its not perfect...its a personal decision
The mum thinks those two girls were just living with a disability but they were actually living with immense pain and the quality of life they had was awful I’m so glad they are finally free and resting peacefully
Where did they go?
@@Mcblingprincessxoxoxo They both passed away, Claire died in December 2018 and Lola died in October 2019.
@@elsbethrobinson5293 ohh ok
They were not in pain my brother has this .
@@TheVideoGamesHistorian yes, a different kind. Claire and Lola were born with a rare kind where they were a lot more disabled with a lot more complications. Not every condition is one size fits all.
Gwen wrote nasty letters to the doctors every year on the girls’ birthdays. Telling them how her girls are “kicking ass and taking names” because they lived another year past their life expectancy. Which I feel was uncalled for. The doctors were talking her what life would be like for the average child that had the same diagnoses as her daughters. Because they didn’t tell her…”your daughters will be unlike all the other children with microcephaly, they will outlive us all”. The doctor’s did the right thing when they told her what to expect. There was no need for her to send a “big FU” (as she called it) with a letter every year. And these girls suffered more in their lives than they enjoyed it. She would actually tell people that they are just like any other teenager…sassy and opinionated”….when you have severely disabled children like this, being delusional helps NO ONE. Least of all those girls.
Those girls did nothing but exist in pain and had that woman cackling away at them their whole lives.
look at the mom shes a bozo
hate to say it but i was actually glad when these parasites passed, they were suffering every day, they were, yes, parasites,and this awful mother exploited them for attention and money; very narcissistic, just incredibly selfish to even keep them alive as she did. they were suffering and this was most likely detected in the womb, usually these severe disabilities / malformations can be seen pre-birth: these are cases where abortion is the only option. its not fair to the child, the family, siblings, tax payers etc. to keep them alive when they have no chance of even the most basic of functions. i do value life, very much so, and part of valuing life means not knowingly bringing a child who will likely have a lifetime of on-going suffering.
You are disgusting
I agree with you, though I would say these children were severely non-abled, not just disabled.
I really don't want to sound cruel but there is no way I would bring a child into this world with this quality of life. Life is difficult enough
You are not cruel. It's cruel to bring them into the world. Really, they are practically vegetables. They have no quality of life. No one wants to live like that.
@@misslori66 - Thank you but there are many people on here who disagree and think its cruel to say they are better off not existing.
T. A. West II did you forget what you said in your original comment??
@@misslori66 - No...I was making reference to the fact that there are many in the comment section that disagree with you and me about the children's right to live no matter the quality of life. I don't agree with that and would rather not, knowingly, bring a child in the world like that
Oooh okay. I get you now. People don't think about the reality and think every type of life is worth living no matter what. There are limits. @@TheWorld-xs8ly
Tell us again how they’re healthy & thriving considering Claire passed away this week
Rest easy, little girl. You’re finally free.
did she really? :/ can you put the link pls
Crystal www.legacy.com/obituaries/name/claire-hartley-obituary?pid=191042520
here’s her obituary
K Weaver stupid comment considering you obviously have zero knowledge about living without a quality of life. You’re the type of daft cow that demands that people who are suffering and dying keep living when they want to die. Or talk shit about voluntary suicide.
Really. Omg. Thats so sad. Thats so heart breaking. I dont think i would of risked of having a second child. And thats so sad that they are teenagers and they are holding the girls like they are baby dolls. And eating like a newborn.
@@hannahbailey6424 Wow poor baby she made it to 17 years, rest in heavenly peace to her. Her sister Lola will probably pass sometime in her teens to. Due to the severe abnormalities it's just not very possible for people like Claire & Lola to live regular life spans. :(
Their mother is an absolute crackpot. Seriously. She has also ruined her son's life, she would force the twins onto him and NOT let him have a moment of his own. Do you know what that can do to a person? How it can massively affect their confidence and self-esteem. To feel overshadowed constantly. Cal loved his sisters that's easy to see, but his mom would make his sister's be in his prom photos. She made the twins be involved in his games. Like why? Let him have an achievement to himself.
They weren’t twins, they were like 5 years apart in age. Thankfully they’re both dead now and not suffering any longer
Absolutely agree!!!
What twins?
@@CaptchaNeon sisters, whatever. You know what I meant. You're just being facetious.
@smittywerbenjagermanjensen8124
ho2w could she have ruined her sons life to the son loves his sisters he helped a lot not because he had to cause he wanted to she did not make his sisters,do anything maybe he wanted them in it there were no games
Letting your 7 year old son who cannot possibly have knowledge of the gravity of the situation dictate whether you give birth to or abort a baby who will be plagued with painful health problems and have no quality of life whatsoever? Sounds legit
It's what some of these people call "love". Makes me wonder if it's a regional thing because I've never heard of it defined like that.
Mother talks about raising children diagnosed with microcephaly: th-cam.com/video/AcCB7lkINSM/w-d-xo.html .
Their son is going to have some serious depression in the future now that they have both passed away and will realize what a fucked up thing his parents did.
You just don’t understand parents that have a handicap child everyone deserves to have a life I’m handicap and I know that I deserve to live
@@juliadesoto7349 just because they wanted their daughters to live it doesn’t mean that they didn’t love them
Lola passed away yesterday. Both her and her sister are finally free.
Bug lover Spider lover the day Lola died, one of Gwen’s supporter wrote a comment on her Instagram like « Sorry for your loss, but she’s finally at peace, not suffering anymore » and Gwen being Gwen, she replied with a « ????????? »
I’m 100% sure she harassed the doctors for them to try revive the potato.
At the end of its life, that thing looked like a flesh & bones volley ball literally....
Aww both them passed at least there free now
@@bugloverspiderlover8490 Exactly my thoughts too. These parents are so selfish.
Gillian Brookwell why are you judging the parents? God’s knows each one of us inside and outside? They have been through a lot of trials. They might have said it do anything wrong,but it could be out of their frustrated life.
Thnk Gd . bless their beautiful souls
Update: Lola died, too in October 2019. Glad she’s finally at peace.
This mother called her severely disabled children a “freak show” on social media. Think about it. The girls have died. These two children lived in severe pain and suffering until they passed. The mother’s attitude, her rudeness towards her husband and son, her grifting for money on social media, her callous disregard for the suffering she witnessed every day, her narcissistic fixation on herself and her own savior complex - is tragic. These children have passed away now - also the news doing a story reinforcing this woman as a “great mother” is very problematic.
The older girl, Claire passed away two days ago. I'm not a heartless person, but it was salvation.
BlackWire91 lol wtf
yeah....is sad but is the truth i never see this as bleeesing ...more of a punishment from god than anything....also those people seem like they are exploiting them for gain.
At least she isn't suffering now.
There's something seriously wrong with the mother. It's like she enjoys the attention she's getting from her children's suffering. The fact that she has a whole facebook/youtube social media presence says it all. If she had a heart she would let them go, that's no way to live. In fact, I don't believe you can even call it "living" - more like surviving.
Well, actually I don't think you Can imagine how fucked up this woman is....this is just unbelievable...
Я понимаю что так много таких детей не должно но как отпустить простите.
@@Shannonbarnesdr1how cld u possibly call 2 little girls parasites ? That is absolutely disgusting. Everyone is so quick to judge the mother. Why ? Because se had social media ? Maybe it helped her coupe... it looked like those children were loved. Maybe she did it raise awareness.... not everyone's child comes out "perfect".
@@rachelreynolds2680the issue was that it was overriding her sons life. Every picture he has, he had to share it with the twins, he coupsnt have a singular post just dedicated to him. Even for his prom, he had to hold them.
And the one time there was a post that was exclusively about him, it was blaming him. he said a slur (as boys growing up do) and she blasted him on her social media, making him write an apology and posted it. She doesnt care for her children, she cares for the attention.
And plus, for these two kids, it was sadly good they passed. They had a painful existence and at least they can rest now.
@hk1371 what people post on social media isn't real life. Maybe she didn't post as many pics of her son because he didn't want that. Who knows ? But we shouldn't judge someone based on social media. She did the right thing she gave those babies life. What should she have done abortion them ? I think we don't have the right to judge her when we know nothing about her life. What she chooses to share is what she wants us to see... we have no clue what goes on past fb, ig, or TH-cam.
Holy hell. If this mother had a normal daughter I BET she'd be a pageant mom. This lady's demeanor is 110% "gimme attention."
hate to say it but i was actually glad when these parasites passed, they were suffering every day, they were, yes, parasites,and this awful mother exploited them for attention and money; very narcissistic, just incredibly selfish to even keep them alive as she did. they were suffering and this was most likely detected in the womb, usually these severe disabilities / malformations can be seen pre-birth: these are cases where abortion is the only option. its not fair to the child, the family, siblings, tax payers etc. to keep them alive when they have no chance of even the most basic of functions. i do value life, very much so, and part of valuing life means not knowingly bringing a child who will likely have a lifetime of on-going suffering.
@Ttrooperleary yea just like if i had a normal son he has mild cerebral palsy i have partial brain damage so ya i have one to
@@kimmie965 what the hell are you even talking about? That wasn't in any way relevant to my comment.
@Shannonbarnesdr1 We feel the same about you !!!
They literally sit there bug eyed staring off into space not being able to do absolutely anything. Did they even really know they existed? Did they even ever know what was going on? Were they aware of anything going on around them? Did they really understand anything when theyre being spoken to? Im just so confused as to how they couldve possibly thrived in life when they couldnt do a single thing for themselves. Theyd never have even close to even a somewhat normal life. Theyd never be able to learn anything or go to school, they never be able to play with other kids. Etc.
rip poor babies. Youre finally free wherever you are
All they knew was misery and pain. That's it
I think they were slightly aware and why they would have suffered.
From being in ipain lady
Wow, what a lot of truly insensitive people here!
A cat or a newborn baby has more awareness than them.
The brother doesn’t deserve being underappreciated
I'm a mother. I have five children. One of my children is autistic and though he is nonverbal, he is teachable and *can* talk. If I had known ahead of his birth that he would be autistic, I would still have him. But if I were confronted with these kinds of disabilities, I would terminate. For one thing, you have to consider *the child* and what kind of life he or she would have. And for another, it needs to be considered what would be in store for the child after the death of the parents. These girls will never have independent lives. They will never know what it's like to have life experiences. That is not living. That is just existing, the way someone on a ventilator can only breathe when the machine is turned on. Yes, they are people who are part of a family that loves them. But they will never know what it's like to make choices of their own.
@K Weaver I'm in a position where I don't need to worry about working in order to provide for them, but I do have a good career.
@@mariamalone7135 Woah rude. A mom can be a full time job you know
You call them selfish yet you have 5 kids, OVERPOPULATION IS A PROBLEM WE DONT NEED MORE PEOPLE, more people means more co2 in the atmosphere heating out planet until we all die so I hope it was worth it giving birth to 5 shit bags you selfish fuck, your not any worse than the woman in this video
@@booohooo3962 no
Quick Món people die everyday,are stupid or are you just Brain dead?
She is not walking. Those are reflexes. These people are delusional
Are you ok???
Cuz if you didn't know they're actually trying very hard for your information you don't know what's going through their mind so you can tell them shit
Cant*
kk gang actually, not much is going through their minds bc they don’t have full, working brains. Their sight & vision are perfect examples of how little brain function they have bc while their eyes & ears technically work, they don’t have the mental capabilities to process what they’re seeing & hearing. The little bit of instinctual function they do have is slowly regressing as well as their condition is degenerative.
Whitney Bennett crazy to me how some people think they can even process what’s going on around them
It took me 5 desperate years to fall pregnant with my first child. I was over the moon when I finally passed the 12 week mark, when a fetus is more likely to survive. I had all the usual ultrasound tests and the scans were fine, up until about 28 weeks, when it was discovered that I didn’t have enough amniotic fluid. Even then, nobody told me that there could be a big problem, all they said that I might need a caesarean, because the baby won’t be able to turn into the birthing position.
During the first 5 months of her life, my daughter was diagnosed with a coloboma in her left eye, which means that her eye didn’t develop. I was also told later she has microcephaly, although it is not as severe as for these poor sisters. At 11 she was diagnosed with autism and ADHD. Yet, she communicates in two languages and has such a sweet personality. She is otherwise healthy, hardly missed school with colds etc. But no matter how much we love her, life is often a struggle and her younger sister misses out on a lot of attention. I fell pregnant for the second time when my first child was 6 months old. At the time we had no huge concerns for the new baby, although I was monitored more carefully, having specific scans to check the development of the eyes, in case we have the same problems. Luckily, everything was fine.
I am sure, the parents loved all their children, but boy... that brother must have missed out on so much.
my cousin had a daughter with microcephaly. She was diagnosed during mid stage of pregnancy through ultrasound, the doctor advised her to get a medical intervention, but she insisted on giving birth. And our family thought it was the most stupid decision. Her daughter at 7 years old couldn't talk, walk , eat and needed constant care like an infant, like wearing diapers etc. The child cried a lot due to the brain issues.
I think sometimes the most difficult and hard decisions can be the most right decision. If she has listened to doctor's advice, she would have lived all those 7 years without having to go through these all. No matter how tough it may sound, I don't understand those parents. Sometimes it's more humane to stop the suffering of these living beings . It's more humane
Not an easy choice to kill your baby.and no one understands unless they have been there fact.
@@annadavis4205 I agree, maybe in these cases, I think doctors play an important role. Maybe it's better to say fetus growth has stopped or smthing like that to help mother make right decision. Noone should go through what these parents are going through
@@travelingrainbow604 No, patients deserve to know the truth, not have the doctor lie to try and force the "right decision." That's a slippery slope for many other medical decisions.
RIP Claire, who passed away Dec 2018. Knowing freedom at last 💫♥️ xx
Finally.
atleast she found peace :)
Minona Ano WOW! Your an asshole!
@@minonaano2763 go to hell
Oh- how sad!! Their Family and epecially her sister will miss her SO much...!!!
They decided to have a third child despite knowing the microcephaly is genetic, and then decided to carry to term after the ultrasounds confirmed serious physical defects. They knew that child would have no quality of life, and while I know termination would have been a horribly difficult choice to make, it seems irresponsible to have made any other. They could have saved her from a lifetime of pain and suffering.
Vipere
Are you serious? Why would you say such a horrible thing??
You know I am 24 years old and I have dealt with disabilities everyday since the day I was born.
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That isn't a very nice thing to say, I'll terminate the pregnancy to save a child from pain and suffering.
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So yes that comment made me very upset. Some mother's don't want to terminate the pregnancy. I have a cousin she had a child in 2010 and that child is disabled. Today my younger cousin Mia is 8 years old and even though she is disabled because of genetics she wants to be here.
@@jacquelinesmith-jackson2815 There's a difference between disabled and brain dead, these girls don't even have a majority of their brain. Its cruel to keep these children alive because they aren't even "mentally awake", they just exist they don't know that their parents " love them " (In their case exploiting them for attention)
Jacqueline Smith-Jackson We dont mean things like Autism or being in a wheel chair! These girls just sit there brain dead 💀, they’re in pain 24/7 , can not even speak or voice their opinions dont make decisions for themselves , spend their lives in hospitals . I would have an abortion , it is the right thing to do , they die anyway! Might as well do it before they come into the world and have their lives full of pain . Their not living their existing which has its differences existing is just in the world living is have fun having a life . So abortion is key 🔑
Julia De soto
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Oh really after I was born I had a brain hemorrhage and a stroke. I was diagnosed with hydrocephulas and I had to have a shunt put in my head to drain fluid. By age 2 I had a cyst that grew on my brain stem. I cannot believe you would say such a horrible thing.
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I have been through Cerebral Palsy and Juvenile Rheumatoid Arthritis. You've got to be the worst fucking person alive if you believe an abortion is right.
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I have been through at least over 50 brain surgeries and hip displasa surgery. I have been through Osteonicrosis and Osteoarthritis. Seriously what the fuck?????????
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Why does every female want to have an abortion when they find out their child or children are disabled.
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It isn't the right thing to do, besides if you want to find medicine that will help the disabled children, they have to be alive.
at first it seems all innocent and wholesome, seeing a mother’s love for two disabled children, then when you read about the full case, watching this brings a sickening feeling to my stomach…
Yeah, when you really do a deep dive into the blog and socials, you really understand how they weren't merely disable, but non-abled. They were offered no dignity and the mom made them look and seem more disgusting than they should have been. Those girls never hit any milestones and gwen refused them medication and chose the woo way... Until those children inevitably would need severe medical intervention. Of COURSE then medicine was ok for them. She's said holding them is a "holy experience" and how they could communicate blah blah... Their delusion about these children did nothing for them except gross people out, pushed the "typical" son aside and made up personalities for them all while using up resources which would never work for those children and could have gone to someone who could actually use it. She always lied to everyone and herself about their Dx and thought her children were an exception to the rule about people born with aspergine synthetase deficiency, which was their actual diagnosis... Yet she just kept trying to keep them the face of microcephaly when this and ALL of their other ailments were mere symptoms of the much worse problem.
These parents are honestly selfish. The mom literally chose to have another child knowing the risk of them being born with the same condition, to suffer with progressively worse conditions and not even make it to adulthood, then have the audacity to say they’re “thriving”. She purposely ignored doctors advice and was even wrote narcissistic letters to them to tell them that they were stupid for pointing out facts to her. I also feel sorry for the son as well, just as much as the two girl’s didn’t ask to be born the way they were he didn’t ask to be born “normal”. May they rest in peace free away from suffering and dealing with a narcissist delusion mom who would parade their ill health around and even called them a “freak show”.
And calling their numerous ailments "super powers"... These poor children were not just disabled, they were non-abled in basically every way.
That comment says a lot more about you than it does about her. Several people have already shared all that information because it’s really important to them that we all hate this woman. Spewing hatred is not noble. It’s not making you better than her. It’s actually very ugly. But I’m sure you got a big rush of self righteousness when you posted that comment. Do you do this to other parents too or do you just reserve all of your bitterness for this particular mom? You will never see a truly kind person writing the kind of things you and some of the others are writing. I hope you find some peace, because it’s apparent you are struggling.
@@karahupp4589 Did you get a rush of righteousness justifying a mom who forced those two girls (the second one knowingly) into the world to suffer with their conditions when she could’ve adopted? Im not a eugenics supporter if thats what you think, children with autism and ds can live good lives. But if you as a parent are aware that you have a genetic condition that will extremely hinder their quality of life, why would you have another biological child? Thats the true selfishness and ugliness. Sorry i care more about the quality of life about those kids than a selfish narcissist who felt the need to continue having ill children, to then exploit their dignity for internet clout and to call them “freak shows”.
@@karahupp4589Yes because a mom who shares her two sick children on the internet (that she was aware of the risks and still imposed on them), sharing stories about their bodily waste, and making videos of them when you can clearly see they’re in pain is definitely a woman of respect. She blatantly disregards their dignity and chose to bring the other girl in the world after knowing the high risk of her having severe microcephaly. Im not a 3ugenics supporter if thats what youre thinking, people with asd and DS can live good lives but those two girls were just suffering. Why couldn’t that mom have just adopted? Why force another innocent child to life that way to not even see adulthood? Sorry i care more about quality of life of a child than quantity.
@@lexx1235 these children didn't just suffer mere microcephaly - though she tried to keep herself and those children the face of it. These children suffered from a degenerative brain disease (aspergine synthetase deficiency). Their brains started to atrophy basically in the womb or right after they were out of the womb. When you look at gwen's socials and blog, everyone can read for themselves how she imposed/made up personalities for them while offering them NO dignity. NO teen nor tween would want videos of their mom posting of vomiting, soiling themselves and the explosions being all over the husband. Even a 7 year old would be embarrassed of it. Gwen was selfish and dangerously delusional - she did NOTHING to spread real awareness like other moms who share what it's like to have a child with a rare illness. Did nothing to help science for other moms who have children with this down the road. She did this for her own selfish reasons. Anyone who cared SOOOOO much about their literal dying children, she sure took those immunocompromised children into public with seemingly no care. Both girls looked so close to death for so long - but it's like she chose not to see it or didn't see it. Didn't give them meds and went the total woo way, but sure used severe medical intervention when both of them died... Especially when the 2nd one died of the common cold.
Knowing the struggle and quality of life is nil, because I already had a child like that. That's probably one of the most acceptable times to have an abortion. After 15 years, the oldest girl put her foot on the floor and she calls it walking. I think the parents are really reaching for something that is not actually there. People in coma also can open their eyes, swallow, and moan. The longer you stay in coma, the more severe the brain damage is. These girls didn't have anything to start with.
Their parents are insane and should have them taken away
You said "had". What happened to your child?
FoolyLiving What do you mean you already "had a child like that?" What happened to them? Did you terminate the baby by abortion? I would think that you wouldn't know something was different until late in pregnancy or after birth.
No, I don't have any kids like that. I'm speaking as them, having already HAD a child with it, they went ahead and had another one and didn't have an abortion with the second one. That's a miserable way to live. When I was pregnant last year, the sonogram showed that the baby did not have a cerebellum. I had more than a month to think about the life my daughter would have without part of her brain. It's no type of life and it's selfish to not terminate when they KNEW with the second child.
They had one thing to start with that a lot of "Normal" children didn't....Loving parents!!! And that can go a long ways!!!
Both girls have passed away. 💔 It’s extremely sad but I believe they’re in a better place, for sure.
Why sad? And sad for who?
i no rip there heal
Nah they were aliens
Rest In Peace! I can’t imagine.
Thank goodness their gone.
I learned 3 lessons that I will never forget today. One, what an incredible piece of engineering a normal human being is. Two, I will appreciate and take great joy in a lot of things I took for granted before. Three, the gift of a conscious, fully functioning human life is something that I will be grateful for till the end of time.
Mother talks about raising children diagnosed with microcephaly: th-cam.com/video/AcCB7lkINSM/w-d-xo.html
@@gameypiettvgamergames7463 they actually have a condition that made their brains never grow to normal size and atrophying due to the degenerative nature of their disease. Microcephaly is not their primary diagnosis and yet Gwen goes on and on with every chance she can get to talk about microcephaly but she never mentions the actual condition that they have that led to the microcephaly and all the other problems these girls had.
@@kw5839 I think she talked about dwarfism aspect
3:56 She says she doesn’t regret putting her daughters through suffering, of course she wouldn’t regret giving birth to them because she loves them, but even though she is aware that her daughters are suffering she doesn’t even regret it a little bit.
So is this bad :/
You just don’t understand people that have a child with a disability I was also born with a disability my parents didn’t know that something was wrong with me until I was born but they are still happy that they had me even though I’m handicap I’m actually glad that they rather me be alive even though I go through chronic pain
@@Manderz89 this isn’t a disability. These girls didn’t have any thoughts or wants of their own. They were just moving dolls for their parents to baby and profit from eventually.
@Amanda seems your disability isn't like the hartleys... Those girls would have never been able to comment on a thread or do anything for themselves. Their issues were degenerative, they were only ever going to get worse.
There’s a big difference between chronic pain, and having no idea where you are or what’s going on ever, being immobile, being cortically blind and deaf (because although you have working eyes & ears, there’s no brain to perceive sights & sounds), having less ability to engage with the world around you & function than a newborn. While I’m not discounting your struggles in life, the latter case is undoubtedly a horrible, painful, empty way to live; a life devoid of any quality. There is more to life than having vital signs, being spoon-fed like a newborn, and shitting. Please explain how that betrays a “lack of understanding of the disabled”? I think it’s you whom lacks the understanding that many disabled beings are different from yourself.
There is no way the doctors didn't see their condition on the sonogram, and the fact that they had another child knowing it's genetic. Sickening.
This condition is so rare that it is very possible that the doctors missed it this happened to me where they didn't tell me until I was 24 weeks and 5 days too late to make a choice
Ms305 SamoanPrincess Oh wow, how are you doing now?
@@johanna2690 the doctor that I had at the time was a high risk doctor who after telling me what was going on decided to drop me as a patiet because after I went to the hospital because I thought my mucus plug was coming out the hospital picked up that something was wrong and contacted him he knew he had messed up and it was if he didn't want anything to do with the situation at that time I was 24 weeks 5 days I spent the next few weeks trying to find an obgyn but no one would take me because either they said I was too far along to accept me as a new patient or because my baby had microcephaly that they were not willing to take me I eventually finally found a hospital that had to take me around 34 weeks but with everything that happened I was happy I was able to at least give my son a chance and meet him and hold him and kiss him I was able to take pictures and make keepsakes he lived for a couple of hours but sadly passed the same day he fought hard where it seemed he might be ok but then suddenly he made a turn for the worse its been very heartbreaking he was born February 8, 2019 so it's still really hard but regardless of people's opinions about parents like the ones above stories like theirs gave me hope and helped me know what to expect it takes a lot of courage for parents like them to tell their stories because of the judgement that comes with it but I can honestly say that when your in their shoes it will make you look at the situation differently and im glad that everything happened the way it did because if it didn't I would have nothing to remember him by some of my decision I regret but going full term was not one of them
@@MZPRTTYRD Oh, I'm so moved by your story. I'm really sorry that you lost your baby boy so early. I'm glad that you could be him a mom even if it was for such a short time. There is quite a community on youtube of moms who experienced a still birth. I know your situation is a bit different but I could imagine it would help to talk to other moms who lost their babies too soon. There is a channel that's called 'still braxton's mommy' if you want to check it out.
It's unbelievable that you had to fight to get prenatal care. Shame on your first doctor who left you alone with this and didn't detect it earlier. But I'm glad you're at peace because you could birth him and make memories. I hope you have support in your life to help you get thru the grieving process🌹 Wishing you all the best!
@@johanna2690 thank u i appreciate it I will check them out
Tbh I would just have an abortion if I knew my child would be suffering their whole lives. It just doesn't seem fair to me.
Lulu Harris me too
Same. But I do respect their right to choose *not* to abort.
I’m usually against abortion but in this case it would be considered mercy
ɢʀᴀᴄᴇ ᴇᴍɪʟʏ agree this is selfish. This is why abortion should not be illegal
@@catbeara Eh... Really? These girls suffered for years. I don't know...
This is never a life I'd want for a child. They're not even really alive, that sounds so wrong, but they'd never be able to live on their own and be away from their parents.
@marianne mccrank i applaud the effort from the parents, but i can’t help but think that these poor girls were simply miserable. their eyes are so blank, it seems like their parents are using them so that they can feel like heroes. it’s odd, these parents kind of rub me the wrong way.
Mother talks about raising children diagnosed with microcephaly: th-cam.com/video/AcCB7lkINSM/w-d-xo.html
They were alive but not mentally aware, which is even worse. If I knew my baby was going to be born that way, I would abort them because I wouldn’t want them to endure so much suffering. It seems unfair to put a child through that. I don’t know the parents personally so I won’t judge their decision to keep the children. But it still seems off.
@@blossomsandroses7517 you ever see someone get injured and you feel that sympathetic pain? Like you kind of feel what they feel? I get that when I read about microcephaly. I can't imagine living like that. Seems like a very unpleasant life.
@@scottvelez3154
Physically I think to myself I just want to vomit when I hear the word Microcephaly. When I saw this I almost got chills down my spine. Doctors that are not very well educated at all. It is heart breaking.
💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔
I understand most of the time that a lot of the time a child or an adult having several disabilities has to do with what the mother went through when she was pregnant with the child or the children. Can you believe there are times that a doctor that works in labor and delivery will absolutely not take care of a child.
How can a kid who was 7 at the time make a decision in a situation too complicated for any child to understand? How do we know they have this strong will to live? How do we know they have this "soul connection?"
They don’t. Their parents do.
He convinced him by the way he said something to them didn't even watch the video he said I just want to know her
when you hang out with someone, you get to know them.
same goes when you hang out with someone with a profound disability; the interactions you have and your means of communication are a lot more subtle and nuanced than a regular conversation with ppl who use regular language. that's what she meant. it's a _human_ connection, she says it that way b/c the human "soul" is a really abstract concept, but it's one that most of us understand.
@@paintingwithcammiebourke3984 yeah, he didn't "make the decision" for them, he just _gave them his input!_
the way so many of these people are _projecting_ is bonkers sometimes, wow
tbh, were i them and _Lola_ had been born first, idk if i would've made the same decision - based on what her mom posted abt her, with her insomnia, given how agitated she often seemed to be, she was too small and fragile for even the children's hospital to dare put her under so she could have a more permanent feeding tube... to see what that kid went through and NOT give her credit for having determination?? it's hard to understand.
but they had _Claire_ first... and Claire's quality of life was fine! a lot BETTER than many ppl with spastic quadriplegia because she WAS so small. she could easily be picked up and moved, carried everywhere, she didn't need adapted bathtubs or lifting equipment or anything! you could bring her on vacation, hiking, shopping, movies (unlike infants, she rarely cried), it's not difficult to bring her wherever you were gonna go anyway, and that makes a MASSIVE DIFFERENCE in these people's quality of life.
but it was especially clear (even to strangers! her mom had a decent following on her blog) that Claire was fine because she was so chill and calm almost _all the time_ ... virtually everyone can, at the very least, communicate that they're uncomfortable or in pain, she was no exception.
so, no, she couldn't walk or talk or eat, but she apparently didn't care at all abt that, she was rarely cranky and she was physically comfortable.
having Lola was a _perfectly reasonable_ decision.
Yeah, the parents make things up about all 3 of their kids.
Something is not quite right with this couple.... They seem to feed off of their daughter's illness.
Breezy7892 15 I know, it’s so sad..
Breezy7892 15 agreed. Super weird.
You don't get disability checks. You might get $50 - $100 per month social security if you are proven to be in poverty, but that's it. I can guarantee they are spending more on these children than $100 a month.
I think these parents are thrilled at their story and find much joy in the attention they get. It is sort of like they see themselves as heroes above their daughter's disabilities. They don't talk much about the son. This must have affected him greatly as well. He may need therapy.
Very judgemental. They have their hands full. The eldest daughter passed away.
these parents are exactly like jaxon's parents, they literally think that their kids are happy and fine. rest easy claire. 💛
Yep. They exploited their children. Jaxon was a total cash cow. Parents quit their jobs, bought a house, new cars, multiple vacations….but told everyone the money was going towards medical expenses…parents like this make me SICK. 🤢🤮
"It takes my seven year old son to come to me, with his wisdom, to give be the best piece of advice I could've gotten at that moment."
Doctor with years of experience, schooling, and research: *Am I a joke to you?*
Drs! Go to auswicz you more-on.
5:35 “a walking freak show” that’s really disgusting to say. This mother’s off. Bless these two angels in heaven.
When she said that it pissed me off so bad
The whole laughing thing when they found out the second one had microcephaly as well is just weird. I get the feeling these people enjoy the attention these two girls get them. This is a huge negative in modern medicine. People being able to keep others alive that have no quality of life.
Breanne Beyer May I ask if you’ve ever been around someone with a major disability for several days and nights in a row? Do you have children? If do any of them have a disability?
Yes I have. I'm an RN. I've seen families selfishly have family members of all ages tube fed because they can't stand to let them go. The fact that these people went on and had a second child knowing the risk is awful and selfish.
well you're entitled to your opinion as they are to theirs. neither of us can tell whether they are really suffering. you could measure cortisol levels, inflammation parameters.. do fMRI-scans... nothing could tell us if they were really suffering. there would have to be the necessary neurological network in order to become aware of or even register the concept of pain.
Even if I would'nt have gone through as they did, I think being judgemental of them like many have been before doesn't do any good.
@@FlyEagle32 This mother does nothing but beg for attention, therefore she also asks to be judged
they laughed because they were in shock. people react differently to everything. if you don't have anything nice to say, don't say it at all. act like an adult.
It was impossible not to see that both of these girls were in constant pain. Thankfully, both Claire and Lola have died, and can no longer be made to suffer for Gwen's entertainment.
Mother talks about raising children diagnosed with microcephaly: th-cam.com/video/AcCB7lkINSM/w-d-xo.html
I WENT INTO THIS RABBIT WHOLE OF THIS CHANNEL WITH THE PARENTS TREATING DISABLED PEOPLE LIKE TOYS AND PROPS AND THANKFULLY I'M NOT THE ONLY ONE WHO THINKS SO.
Thank goodness Lola and Claire are finally at peace. The parents used the girls as props.
They should get genetic testing. I'm concerned the son has kids one day with the same issues
Tiegan Robertson oh god did not think that
for sure. Most likely, if the son doesn't have it, he's probably a carrier.
If I were him I'd probably have a vasectomy.
Even if the son has the gene abnormality he has to hook up with a woman who has the same thing. Before he makes babies not only he needs testing, but so will the woman.
If I'm not mistaken I believe he has a 50/50 genetic chance. Both parents carried a recessive genetic condition and the odds of have 2 children is astronomical. The parents probably have 1/4 each to produce 50/50 odds of 3 children realistically 2 children both girls I might add. It even could be that the mother carries a high gene for 50 and the dad 1/4 since the son doesn't carry a dominant gene. Buy otherwise I'm guess he does carry the gene but the odds of finding another person who carries it is slim. From what I can remember in science is it takes 2 people with the same recessive genetic abnormality to produce a child with such a rare condition. Especially two children with the condition.
Did she really call them a freak show? What a terrible thing to say!
The girls won't ever know she said that so....?
queenbeethatme100 thats the worst part of it
@@queenbeethatme1009 That's not love. She's exploiting these poor kids for attention.
That she did and she shouldn't have any children
@@anonuser365So you're saying lies don't hurt? Oh please
Honestly I'm relieved that both girls have passed now, the mum had a youtube channel for the girls and I got a really bad vibe from her. She would call them clowns and goblins! One video showed lola having a seizure and the mum was cooing and sticking the camera in the poor girl's face!
what was their youtube?
@@frankieoceano i think its called gwenhar just look them up youll find it
Yes I came here after I saw her TH-cam. It's upsetting, it's like they used the kids for entertainment.
Gwen is so fucking sick for that, ik they aren’t aware of anything but they still deserve at least some dignity
I think I remember seeing some of that video and it’s highly disturbing. What a shame to make a mockery of these poor babies that have no choice or voice what they are feeling and suffering. Ugh makes me sick
Dude i remember that when my mom was pregnant back in 2016, she was terrified of the zika virus, since we lived in a place where cases were near abundant. Thank goodness she didn't, it seems so terrifying.
These parents make me uncomfortable. I think they’re using the disabled children for attention. This isn’t living. I wish those kids the best.
RussianOrphan1 those kids (except the son) have no quality of life. all they know is hunger and pain.
Sad for you. I bet you have a hard time dealing with death too. Kind of spectrumy.
@Atum- You are sick. So sad for you. You're on the spectrum too.
@@bellakatherman1477 And you colossal ass hole. How do you know these girls have no quality of life and their life is full of hunger and pain. Projection much??? All three of you are sick and spectrumy.
ITSONLYMEWATCHING can you just,, stop commenting
Sorry... I can't see why they allowed the second one. Sad.
Beverly Balius they even knew the first one would have major issues so none of them should have been born. She only did it for attention and the respect of the lower IQ population.
I know right
Beverly Balius if you would only love perfect children I hope you're never a parent
+Page James these things are the exact opposite of perfect
Page James. Imperfect children can be loved. But some may consider those two vegetables as non humans, which makes sense. What are humans without a brain? A vegetable for sure!
Update: clare died in 2019 and the other in 2020, like 10 months apart. This whole story is cruel and necessary. All for the parents satisfaction.
I'm glad they're both at peace, their lives were nothing but suffering.
“Nobody would wish this on their kid.” Yet you let a 7 year old make a decision for you? Bravo!
Bitch, where?
@@lizzybeary 3:35 she talks about letting their son decide on whether they had another baby or not
@@AG-hn4ng So valuing someone’s input/ point of view is the same as letting them make decisions for you? That’s news to me.
@@lizzybeary it’s a child and yes they did base their decision off of what the child wanted...
@@lizzybeary no you're right it's not exactly the same, but given that they made the final decision based on the wants of a young child, I'd argue that they did do just that. As a parent of children around that age, they don't grasp the nuances and implications of such huge decisions and I would never put that on their shoulders. That being said it was ultimately their decision and I don't actually condemn them for it, but its an odd thing to almost blame on their older child?
I don’t see any life in their eyes... they’re just blank ...like dolls
And the mother treats them as dolls.
The parents knew & admitted that they would never have the mental capabilities beyond that of a newborn. Their condition is degenerative so their mental function would actually regress from that. To give you an idea of how extreme their condition is, their eyes & ears are functional but they have such limited mental capabilities their brains can’t process what they see or hear. They are essentially blind, deaf, & have zero awareness. I can’t imagine condemning a child to an existence like this. I can’t bring myself to call it a “life” because they’re not truly living, just existing.
Just looks? That’s how u decide? I truly think that they are so happy with there life! They have there happy times and there bad times just like us. So instead of judging by looks, we should truly get to know them. 🙂
@@hollywooddream9627 You're so delusional.
Hollywood Dream i really like your optimism and your ability to see the bright side, but unfortunately not everything can be like that. I definitely agree there are some conditions where looks don’t determine anything, but in the case of microcephaly I would argue the looks don’t tell enough. Your brain is responsible for so so much and even minor under developments can be detrimental. In cases like this where it’s severely underdeveloped and regresses, there is no quality of life.
Knowing that your baby isn't gonna be healthy/fully devolved is one of the worst feelings,r.i.p claire your memories are locked inside my heart,we love you
Both are finally free and in peace from being exploited by their mother they had no quality of life
Boy do I ever agree with you, something's wrong with that woman
Wow. What did u want her to have an abortion AFTER the baby was born. Jeez
Why in the world would they have another baby knowing it was going to be so sick seems cruel
Hello the doctors didn't think that she would have another one like that they didn't know until They told her They chose not to abort You're rude
Fresh Lefresh korey isn’t rude, the mom is disgusting for having children when she knew that microcephaly is in her genetics
Emily Well she didn’t find that out until she actually had Claire and she had. 75% chance or more of having a non disabled child and she really wanted a another child.
Even if there was only a 1 in 1 billion chance of it happening again no, don't be so self centered. They already had children before having a child with this condition and that's a lot of "of your own flesh and blood" children. If after all that there's still this yearning burning need to have more children then why not adopt?
Emily /what it’s still her kid and she’s gonna love it regardless and she literally said she didn’t know it was gonna happen again
This is hardly living. Poor girls.
And you let your 7 year old boy choose. Seriously? Young kids don't know the complications that disease such as these brings to a individual
I know! oh my God
Nobody should ever discuss an abortion with their 7 year old. Now he might feel guilty that Lola was born despite her horrible prognosis and the parents are saying he's the one who made the decision. There are so many things wrong with this family
@ane doe Don't doubt anything when it comes to this trainwreck family
No she let him HELP choose listen
They never said they let him choose--duh! 7 year olds will tell you what they think BEFORE you ask, lol! And no, they shouldn't have tried to hide such a huge, important thing from him (the pregnancy and its possible outcomes). Children internalize this stuff if you don't give them context for the feelings they're picking up on. I'm sure they found a way to explain it to his 7 year old brain and heart (it's all about presentation)
I heard they neglected their normal son and ignored him
While always giving credit to these two children for all of the son's successes. Like his non-abled sisters made him win his basketball games and they're the sole reason he's a good person. 🤦🏻
Those girls could not have enjoyed life. They were so disabled and had so many problems. It was extremely selfish for them to have a child after the first girl was born. Knowing they could have a severely disabled child. Those girls had no quality of life. Those parents were so out of touch with reality.
Selfish as hell to have more kids when you know you are passing on a genetic disease.It's cruel to expect the son to care for them when the parents pass on. That child has no idea what world she's in.
I hope they do not expect him to care for these girls. He should not be made responsible for his sisters. Obviously they will not live much longer. Longevity of microcephalics is not long. The parents are young enough. It should not be a problem.
Thay have parents for a reson
Unless they have an accident, i dont think is very likely for the girls to outlive their parents.
Kathy Jo West what a horrible thing to say. It's a 50/50 chance her children would get it as she had a son without it. It's wrong to tell people if they can and can't have children. It's not like she is claiming benifits and can't support her children. I hope nothing like this happens to you or your family!
Jodie Ward with a healthy son, it's a 1 in 4 chance to have another micro baby. The odds just hit them twice.
In a different video the mom says that they knew the genetic risks of having another child with the same problems, but went ahead with it anyways so the first one would have someone to 'go through life with'. Those parents are disgusting and selfish and should have to live with the same pain.
If there was such a thing as reincarnation then I'd like the roles to be reversed so these kids watch these parents suffer and give every bit of disrespect they received right back to them
Well... I don't think they even feel anything... Isn't the whole point of the condition that they basicly don't even have conciousness? that being the case at least no one is really actually suffering in a literal way... They have no idea what's going on, they have no idea about anything at all, they are basicly brain-dead.
It's not like they was trying to make that happen
@Amanda Somma yeah ur right
Luci Smith that’s a horrible thing to say they’re the best parents possible for these girls
I'm sorry but if I knew my child was hurting.....than I wouldn't let them continue to keep hurting. They aren't living...they are just there. Also they are in denial....sadly
These people are extremely selfish...keep having children when you KNOW it’s genetic
They've both passed away, thankfully. They are free from their non-sentient nightmare that their sicko parents put them through by keeping them alive. Never thought I'd say that about someone's kid, but this is that one case.
Then how come the first born is normal. Didn’t they say these girls were born with microcephaly because of the Zika virus carried by mosquitoes?
@@joanbaczek2575 no their Gene's carry it. They have a 1 in 4 chance of having a child like them and still risked having another kid after finding this out.
There not selfish it’s a 50-50 chance they took a risk they kept there child at least they tried to give them a life
@@madison3012 you cant give the child a real life like that. Did you see their muscles? They were probably extremely pained and stuck in a body.
Rest in peace Claire and Lola. Lola passed away 10 months after Claire yesterday on 10/12/19. Hopefully they are in heaven will fully functioning brains.
@@walmartian422 How disrespectful of you to say that.
There is no heaven
That last part made me cackle
@@carol_arias everyone: *LA GASP*
@@walmartian422 rude
MAJOR genetic problems and continue to have two more children. Very irresponsible.
My family has two female children, and before us they had a miscarriage. We both have a rare condition (Alports syndrome), nearsightedness, and autism. Usually boys with Alports don't live so the miscarriage was probably a boy.
However, my sister's only 2 years younger than me, so they could not yet tell both of us would have these conditions. While we don't think of ourselves as irresponsible choices, this family KNEW it would all happen, and has no excuse to have brought the two sisters into being.
Agreed-I know someone who is expecting her 4th child and all of her kids have sole form of health or cognitive issue but because of their religion or something they keep having babies. They live in a flat and the mgr has told them they are at capacity for their flat but they don’t seem to understand it’s time to stop. They’re also on welfare
They had the son before the girls and he was completely normal. Claire was the first sign of a genetic problem and their doctors told them that it was most likely not going to happen again so they took the risk. It’s not their fault that the doctor was wrong.
@Paper St. I would never want to see this family adopt a child. People think we're being mean but they just don't know the background of this situation. I'm done trying to explain it
@Paper St. Your taxes exactly. The government sure isn't going to pay their way...
I'm relieved to hear that both girls have passed away, their lives would have been absolute hell. what a horrible way to live.
"I'm letting her personality show though"
No, you're imposing your own sick personality onto your disabled daughters and exploiting their condition for your own entertainment and online attention. There's something very wrong with that mum, I've just got a feeling about it.
Is it me or are the parents just very off putting?
Agreed especially the mon
No not just you! There are a lot of people who feel the same way about the parents.
Sam Morris facts
I think they are misunderstood. I can’t even begin to comprehend their circumstance and what they have endured. Only from the outside can I say I wouldn’t choose their path but I can see the complexity in their ability to navigate the life path they were given and have chosen. I read these comments and I think these are all reactions I couldn’t judge really, finding myself feeling similar, but then again, I’ve also lived long enough to know that nothing is exactly as it appears to be and life is a lot more complicated and human life is a lot more complex than we can fathom when trying to make the best choices we can in life. Do no harm is a very very gray area
Denial mostly
While I give credit to the parents for taking on the immense responsibility of two severely disabled kids, those girls have a poor quality of life. The son will probably end up caring for them when the parents can't anymore. If I ever got pregnant with a fetus that had this issue, I would absolutely have an abortion. That's not living, that's existing.
Victoria Bardsley I don't think they'll live that long. I hate to say this but they will probably die before their parents do.
if they have cp as well as microcephaly, they're not likely to make it more than another couple of decades, even with good medical care. If their cp is degenerative as well then the prognosis gets even bleaker for them :/
Victoria Bardsley 👌👌👌👌👍
Victoria Bardsley I think I read this exact same comment on Reddit
Victoria Bardsley agree..only the parents are saying " they want to be here"..really....?!
1:24
She’s having a seizure….when her mother sees that…what part of it makes her think she’s “thriving”?
God bless.. I have two children who are special needs one is passed away at age 50 and the other one is 50 and in a special group home because of his special needs, and I'm three years from 80 right now. So I know... I've also lost another son when he was 30 years old, and my husband's passed away for the last 8 years, but God GIVES us the grace to get through.
Your story will be an encouragement to others going through similar situations.
I live with my lovely daughter in Pennsylvania now, and my other daughter is married and living in New Hampshire. They are a great source of comfort and consolation to me.
and I haven't had parents since 10 years old so that's really made my life quite an adventure.
Wow, thats pretty though.I can't believe someone at the age of 77 is able to use a phone, let alone social media. It's pretty inspiring to hear that such a long living human tells their story on the internet.
@@aproxo4626 🤗☺️🌹
Mother talks about raising children diagnosed with microcephaly: th-cam.com/video/AcCB7lkINSM/w-d-xo.html
@@aproxo4626 🤣 Did you thought all elderly peoples are too oldfashioned or dumb to use social media? Well, i want to inform you, we're not all the same.
I know a 94 year old gentleman, who's regulary communicating with his daughter in New Zealand on Skype.
Greetings from another old fart who's enjoying the internet, especially the oppertunity to find music videos of my favorite bands on TH-cam. 😂
@@Rippenhengst respect
"In true Gwen fashion" she probably has "Live Laugh Love" somewhere, and refers to wine "as Mommys juice"
Read her blog and it's even more disturbing than what you've just described
I READ AND HEAR MY NAME. AAAA IM SCARED 😂
Stephanie 😂 😂
Stephanie hahaha I like her idk why hahah
@@Katharine777 you need fucking help then
These people have gross attitudes. No, no one should have a child like *that* because they aren't living, they're surviving and always in pain. She seems to love the attention her disabled children bring her.
What a horrible thing to say.
@@hamletfisherman5740 sorry it isn't though.
@@hamletfisherman5740 it's her personal opinion and what's gonna the girls when the parents die the brother will most likely have a family of his own and his own life to live who will actually take the time to take care of them
@@tamikabarr6732 It's her personal opinion AND an awful thing to say. Suggesting the mother does that for the attention, please.
@@hamletfisherman5740 you are horrible
" I was giving the baby I was supposed to have " ..wow so that's her reasoning for putting those children to thru all that suffering
To anyone calling these people monsters for laughing when their third child had microcephaly as well, that is laughter out of shock, it's actually a pretty normal response from your brain when it doesn't know how to process a shocking situation. The father said so as well. Besides that, I completely agree with everything you're saying since this couple made their children suffer chronically for years for what reason even? Attention? A feeling of moral duty?
Why would they be in shock when they already knew the risk of their genetics to carry these defects & diseases ? I’m sure they were in shock of how stupid they were to be surprised. I realize some people think it’s so caring that they gave these babies a chance to live and exist even in their conditions. But once they already had one child living most of its life sitting in a toddlers chair I think it’s more cruel to risk bringing another baby into this world to suffer the same fait knowing how fragile their existence was. May both angels rip 🙏🏼🙏🏼
They have tests for these things. Abort it instead of abusing it. I feel nothing but contempt for parents like this... imagine if they died, who would take care of these things then?
*Child puts one feet on the ground.*
*''That's a life worth living''*
*Wat?*
At least she was moving at all
@@vintagevictoria
>Not knowing grammar
>Literally being unable to analyse anything about the world.
Victoria Abbott it’s always bitches named Victoria that say stupid shit like that
Ben Lynch facts it’s always the basic white girls
@@Densester ikr
These girls are just simply there. If you had a child in this condition, don't go and have another one if there's a chance of the next child being the same. It's sad.
Clorox Bleach Yea thats true but they really wanted another normal kid
mr overkill But they weren't thinking of what could happen. It's 50/50.
Clorox Bleach that's what I was thinking. First child like that? I would keep them and then adopt others. If you know you have the potential, don't do it. That's selfish
Ms Concave how about just stopping at 2 kids. that's enough.
Clorox Bleach so true. Selfish needs from the parents . So sad!!!
why give someone a life of torture when they are not going to be able to live life
My very precious baby brother had microcephaly, Lennox Glastaut Syndrome, epilepsy, scoliosis, and cerebral palsy. He wasn’t supposed to make it past a year old. Then the doctors said that he’d die at 13. He passed away when he was 19 years old on March 25, 2016. 💖
It’s cruel to make a child have to continue living when they’re in constant pain and struggle. They knew the second child would have the same trouble and went ahead and had her anyway. It’s unfair to that poor girl. The oldest one passed away a couple of months ago. Poor thing didn’t even get a life to begin with. Rest In Peace, Claire.
Shut up you just don’t understand
They can live very enjoyable lives if the parents put the work into it and you can tell that this mother did even if she needed help doing it. I had a daughter with a similar condition she didn't like tummy time but she always tried to lift her head even though it was hard and she did not like opening her mouth. But if she figured out that it was food you were putting near her mouth she wanted all that she could get! Her taste buds were a lot more excited than her stomach was for food. She passed away because of pneumonia, but she had a very happy life full of cuddles and food with older brothers who loved her
You only live ONCE
They're not animals. Maybe you are heartless enough to kill your children, but people who love their kids can't do that.
@@bobbyadkins6983 right. Some people in the west are so materialistic and faithless that they think a defected child should be aborted and birth perfect babies only that can look for money when they grow up. I am glad that I value life and children's lives more than that
I consider myself pro-life, but these girls have no life. No quality of life at all. And, perhaps worst of all, they have no way to communicate if they were suffering and/or in pain. Termination is a merciful choice in cases such as these, in my humble opinion. The poor son-the only normal child gets ignored too, because his sisters require 24 hr care from the parents.
I find this perspective interesting, abortion should be a personal choice. Much like we should respect moms who do abort, we should respect those that dont. I wouldnt have made the same choice she did either time, but shes allowed her CHOICE.
Well then I guess now you are pro-choice Mary?
You have no right to say when and in what circumstances its okay for others to abort or be forced to deliver a child. Everyone should choose what THEY think its best and what they can handle.
Mary Smith “Pro-life” is truly just anti-choice. Women should have the right to do whatever they want to do with their own bodies, and no one else should have a say in it. If it’s not your body then you need to stay out of it.
At least it turns her son into an accepting loving individual who doesn't give a crap what you look like or what disability you have. Life would be boring if everyone was the same. Sometimes we learn from people with disabilities!
They knew with her second girl that she was severely damaged while she was pregnant with her yet let her be born only to suffer and then die anyway... just horrible... its just selfish to let them come into the world like that, this is wrong!
Why in God’s name would you subject not one but two children to live like this?
They were told there chances of having a another baby with the condition we're only 25 percent
I feel bad for their son. When his parents get too old to care for his sisters they'll likely make him their caretaker instead of turning the girls over to a qualified home with 24/7 medical care because they don't really seem to understand how sick they are. All of the mother's blogs read like the girls are absolutely normal girls for their age with their own personalities and independent thoughts while she forces the girls into every aspect of her son's life, including his prom photos with his dates and making them the 'mascots' of her son's sports team. I hope her son can live his own life for once out of the spotlight.
Ji Mi i can assure you that they don't want that for Cal. even if they did, Cal is their brother and loves them so i'm sure he would do it in a heart beat. as far gwen treating them "normal" you've got to realize that she's trying to have them live the most normal life possible and she is determined to treat them as people and not as freaks. she doesn't feel bad for them, it's just the cards they were dealt and they do the best they can with their circumstances.
please open your eyes and realize that your body is just a vessel. it carries your spirit, energy/life force, soul and the like, but it doesn't define the person living inside of it. there are people in those sick bodies! they want to be just like anyone else and their parents are providing that to them
Ji Mi m
Well said Ashley.. people talk like these loving parents can just say.. "you know what, these kids will never come to anything lets just get them put down" They've had children and they are raising their kids the best way they can...
How rude! you don't know this family and have no right to say that
Wow. Do you know anything about their son?
Have you read about how grateful he is for his sisters? How he feels that they have made him a better person?
I think that some people to look at these girls and only find the negative. It takes GOOD people, people who can see the positive, who know that life is about more than "having it all" and appearing perfect on your IG feed, people who are willing to give of themselves in order to make someone else's life better, to embrace this life.
Heck. What would you have them do? Moan and whine about how hard their lives are?
Instead they accept it. And they pour love into those girls and their son that any child would be lucky to have.
Please don't feel sorry for their son. His experiences with his family have created in him an outlook and personality that most of us would do well to encounter. No, don't feel sorry for him. Feel sorry for those who just can't look past the disabilities, who can't fathom the love that awaits when you give of yourself until it hurts. A life changing love. Feel sorry for those who wouldn't hesitate to terminate children like these sweet girls, and would rid themselves of any difficulty or hurdle in life that would cause discomfort or sacrifice. Those are the folks we should feel sorry for.
This isn’t living with a disability, this is just horrifying.
It's very cruel. If they had a choice, they'd probably want to be dead. I know I would.
They aren’t disabled or handicapped they are just limited edition!!!
Tara Jedrzejczyk Disabled and handicapped are the same thing
DarthVaper \//\ Gamin wtf
Yeah, nowadays you can have a good life with many disabilities, even as a blind person or someone with Down's Syndrome - but this, this is not even living.
These kids couldn't comprehend qnything, their brains were just on auto pilot the whole time!
I assume Were still a trying a bit aware after a watching a sbsk Video on them.
I used to be materialistic...
While in front of two story home with swimming pool.
Because if you’re no longer materialistic, you should sell the house you probably bought some years ago and buying a two story house is SOOO materialistic.
@@lizzybeary If they live what you see as "an average lifestyle," then I am happy for you.
@@dr.christopherdiaz4473 Not what I was implying. At all.
@@lizzybeary Im sorry. I thought that your sarcastic reference to materialism and their home meant that you believed I was overvaluing their lifestyle.
What were you trying to suggest?
I was only pointing out how insincere that comment can appear to lower middle class people who have more education and more experience than this couple, but who do not have anything close to the kind of wealth implied by this kind of property.
If you can not understand that, that is why I assumed you saw their lifestyle as average. If you can, I think you are just trying to pick a fight.
@@dr.christopherdiaz4473 I’m not trying to pick a fight. I understand how it can seem insincere, I grew up poor, homeless at times, going hungry some days. But that’s his experience and if he’s able to gauge that his materialism was worse before and it’s gotten better since he had his first daughter, that’s fine. That’s his experience. And like I said before, chances are he bought his home before she was born. So if he bought the home when his materialistic ways were worse, should he now sell his home because he’s less materialistic?
I really, realllyyyy want to slap the parents. They have no understanding on how much suffering these poor, poor children are going through, the speak of it as if it’s a trophy, something to be displayed and it honestly sickens me at how the mother seemed vaguely excited at the fact she was receiving more attention when the disease was media spread
One died
@Rico Williams did you not hear about the shitty russian roulette of genetic disorders they got bombarded with?
@@Spooky_Dook Too late. The mom is beyond fucked up
They are not suffering
Gl0ck93 Glock93 how do you know?
this isn't living.... it's just surviving.
This guy 🎗️
Hard real truth
Your point being.....
now.. correct me if I'm wrong, but I'm pretty sure living, is being happy and not just meh. Surviving however, is just the state of being.. not dead. Now.. if you ask me.. this family is very happy, are they different, yes. will they face challenges many other families will never have to face, yes. But they will do it happily and with a good attitude.
And remember that nobody could really tell their future. There are a few other videos with women from Brazil mainly which are also the hereditary form who were told they would not walk, talk or live long, they have all learnt to do so and still live being in their 20's.
There's even one young woman who has successfully studies journalism and has written a book. At this point in life she even hardly has problems she notices, though growing up she had her challenges.
So while these girls turned out quite handicapped, things could have turned out much different and the symptoms could have been milder.
Its a walking freak show..says the mother..those parents are beyond sick..glad both girls are now at peace..
This is torture.
I feel a little gulity about this but if I knew my child would come out this disabled I would probably get an abortion. That aren't living, they are existing until they die.
tt tai don’t feel guilty. It’s the right thing to do
You shouldn´t feel guilty. I would do it to, without doubt.
it is normal to feel that way. I know I would have had an abortion but there are people who feel differently as these people do . Actually it appears, these children have given them a new lease on life, such as a hurdle to master, if you will, on a personal level. They have embraced the issue in a strange but positive way, so ? who knows ? maybe these two girls were exactly what they needed.
I would too. What quality of life is that child having. The pain and suffering and never having a family of their own. I feel like it's selfish of parents to keep them just to have a baby.
I'm not exactly anti abortion per say, but I often think that people who have abortions in normal situations are a little careless and unfair on their unborn baby. That being said, I think in this situation it's actually the better thing to do. This girls have no life, they can't talk, walk, enjoy really anything and put great emotional, physical and financial strain on all those involved. I would never get an abortion for simply failing to practice safe sex, but in this case I think I would have one.
Their dogs have higher IQs and better health than their daughters.
Should've put all that energy, money and time into raising their son.
I can guarantee you he got cheated.
Several years ago, he’d said the word retarded” while with friends. It got back to his mom & she made him write an apology letter that she promptly posted online in its entirety. She’s a disgusting excuse for a parent.
@@whitney524 it sucks that there are so many awful parents out there
The mosquito that spread the zika virus has a higher IQ than both of the girls combined!
I feel bad for two young girls who passed away. Rest in peace. :(
Don’t @ me. This is just MY opinion. But what value of life does your child have in this condition..? Like if you knew you were going to bring a second child into the world and be okay watching them suffer like this as well.. idk. It seems selfish to make them go through all that suffering just to die so young. I can’t tell if the mom is genuinely happy or if she’s just loving the attention.
Oh, my God. Look at the children's faces. In pain, discomfort, and just absolutely confused.
Their eyes are completely blank, didn't you notice. I don't think that you're able to have thoughts without having a brain.
@@marlynlawson1202 However, pain does not require much of the brain at all to be felt, especially since pain has to do with the nerves themselves. They have enough of their brains to feel constant pain.
@@marlynlawson1202 i really wonder how exactly they see everything & what goes on in their head...if anything even is going on there.. anyways it certainly is sad
No ma’am they can’t feel anything they are vegetables.
@@gameypiettvgamergames7463 Are you a bot?
Very selfish people to keep rolling the dice when a human life was at risk. Cruel actually. They should have never had another child.
Not to mention that Claire needed so much care so why have another, especially if they have a good chance of being severely disabled like Claire. Munchausen by Proxy here
Even if the odds were "in their favor," they should have never had another kid with that risk. Their poor boy got screwed over because moms putting all their efforts and money into keeping them alive in that state, she's incredibly selfish.
Carrie White MSBP is when the caregiver induces or feigns their kid’s illness. Gwen didn’t necessarily cause their disabilities (aside from genetics). She’s just selfish & arrogant to think she knows more than those in medicine.
@@whitney524 You're right but I find it sick that she enjoys all the attention she gets from her severely disabled child. Claire passed away so when Lola's time is up I'm wondering what Gwen will do. She constantly puts herself into the limelight because of these children and even has a blog sharing the most private things about her own daughters including pictures of their bowel movements. I saw that recently she had something called "Claire and Lola's Law" passed in order to garner more attention for herself. What is going to be next? This has nothing to do with the well being of her girls. This is all for her and she is a disgusting person!
Carrie White absolutely! Nothing she does is ever to benefit the girls. It’s all to gain attention for herself. A good example was the Night to Shine prom for special needs people. Nothing about a prom would benefit the girls. It was all about Gwen getting some kind of normal event with her teenage daughter.
Sorry but these girls had zero quality of life . I understand the parents wanted to make the best out of a horrible situation but they seemed to be bordering on the lines of delusional
So they had a child who had a genetic disorder that meant that she wasn't living, she was surviving. And then they decided to have another child.. WHY?
If you have a child with a genetic disorder then there's a 1/4 chance that your next child will have it too. Why put everyone trough it?
They laughed about it(when they came to know their second fetus also has microcephaly) these people are SICK
mrs.nilu Das some people laugh to cope with traumatic events or just deal with stressful situations. I wouldn’t call them sick just ignorant and passive aggressive
Shamona Fightklub they are super sick they brought another kid in the world who’s whole life is pain
@@egomez1225 Lola finally died too. About a year after her older sister Claire did. Oh the suffering those poor sisters had to go through unnecessarily because of sick, selfish parents.
No, they were in shock. To have a second child with the same affliction was so remote.
Laughter is a coping mechanism. Just because they laughed doesn’t mean they find it funny, it just means it’s their way of coping with a situation so awful that they feel like they need to laugh to make it a little lighter of a situation so that they can handle it.
They are terrible. If you saw their videos (they got deleted now) you'd see they're using them for attention and making fun of them themselves, calling them gremlins etc.
Nadine she called them a freak show 😮what the hell ... gremlins... my god
fucking goonies
Watch the worlds smallest ninja and then tell me they are good parents. Or maybe the one where she's bending Lola's finger back to make her cry. Ot the one where the dad is roughly shaking Claire's hands so it looks like she's rolling the dice.
Mother talks about raising children diagnosed with microcephaly: th-cam.com/video/AcCB7lkINSM/w-d-xo.html
I would never like to see a child like this yet alone two , finally they aren’t suffering and are at peace
Wouldn’t you want to help people prevent this ?