My mom died from CJD. She went to her primary and he said it’s a stroke so he sent her to a rehabilitation office. One of the doctors said this is not a stroke. I have seen 1 case years ago and I guarantee you it CJD. we never heard of it.Thank god she went quick
@@marcika listen idiot, obviously a lot of people looking into prion and CJD videos are doing so because they're dealing with it in their lives. Obviously, it's only a topic for people who are specifically interested in learning about it, or who are experiencing it in some way. You're a loser.
My mother was just diagnosed with CJD. No history of disease. We are in sock, it's devastating. Going down rabbit holes lead me here. We decided to go biopsy when she passes to find out if it's fCJD or sCJD.
@@SeecondToNone1 Sorry for your loss. Do you know by any chance if she had Covid? Covid virus has been known to cause prion misfolds which cause neurological issues similar to CJD.
@@da-yp1wu she did not have covid-19 and was tested at hospital multiple times. Was tested at multiple hospitals as well. Please explain to me how this works. Are you trying to claim every type of coronavirus or just this one specific stain? I cannot see how a simple coronavirus can accelerate the mutation of a protein molecule. But if this is the case please explain how.
I lost my beloved uncle to this devastating disease in February of 2024 at the age of 60. His father had died only a year before this with what they said was dementia. He also had a childhood brother who died as an infant with CJD like symptoms but was undiagnosed at that time.
@@СветланаТрофимова-у2щ Just cuz some CJD victims die in their 20s does not mean MANY young people die of it. It is exceedingly rare for people below their 50-60's and higher to die from CJD.
@@kinjalghosh3350it’s actually one in 2,000 in the UK. Don’t talk about something you clearly don’t understand. You have no idea the impact this disease had on my country
I lost my mother to CJD in 2015, she also had REM behavior disorder "RBD". I was diagnosed with RBD in 2010. I started losing my eye site and short term memory. Myclonic movements when sleeping. I had to medically resign as a RN. I had started an all fruit diet 4 months before I went into full blown dementia . It took me 1 1/2 to recover almost all my faculties. It worked !! My biggest issue is having 4 children " 2 out of the 4 had RBD also. I can't find anyone to test my daughter and I via blood test or CSF for the mutation. The CDC called and spoke with my sister and I soon after my mother passed. They asked if we wanted to be tested. We both at the time said no " it's fatal" I didn't want to worry every day , am I starting to go downhill. CDC now says they have b never done that , four ER's pushed me out the door when I was declining. It was terrifying then and still is. I have contacted a lady that works in a lab here in the US. They need me to send my MRI " that showed a positive pulvner sign. They said it was normal. Never sent the results to my sleep doctor , who watched my decline . I feel I am going down again. I am so scared, nobody wants to test me to find out for sure. I need the information , especially for my daughter's sake. My other child that had RBD passed away in 2018. Crossing an interstate on foot at 5am" in the middle of nowhere . If someone reads this " if you can help me please . I'm about to give up . Thank you
The other kind is through infected beef, blood donation and organ transplants. But there have been effective measures that really reduce the chance of spreading/acquiring CJD in a person’s lifetime.
My mummy is suffering from CJD and she is bed ridden, she is just 55..can anybody help me with any remedy.... I don't want to lose my mom... She is my world....
Unfortunately, it is a disease with no cure. There is likely not going to be a cure for at least a few decades, because we have a lot to learn about understanding proteins in the way that they are folded. I'm so sorry to hear about the loss of your mom. You can volunteer for protein folding at home by using any processing power of your laptop that's not being used, it folds simulations of proteins which in turn figures out how they interact. Continue in this is the best way to assist in finding a cure.
What in the actual fuck is wrong with you? It's very clearly cjd, some people who are in early stages of the mutation are cognisant enough to talk and speak, it's later that they lose the ability to do so. To call her an "old witch" is so fucking disgusting
I had SFI, and then CJD, but I recovered from both. Probably because they were only in my head due to the too much shit (like this video) I watched on youtube...
My mom died from CJD. She went to her primary and he said it’s a stroke so he sent her to a rehabilitation office. One of the doctors said this is not a stroke. I have seen 1 case years ago and I guarantee you it CJD. we never heard of it.Thank god she went quick
I have a loved one with CJD. He was diagnosed two days ago. He just went on hospice today. Very hard to accept
Monica Pagoto So sorry to hear that.
What do you know about PRIONS DISEASE?
liar
@@marcika Stop acting like nobody gets prion diseases.
@@marcika listen idiot, obviously a lot of people looking into prion and CJD videos are doing so because they're dealing with it in their lives. Obviously, it's only a topic for people who are specifically interested in learning about it, or who are experiencing it in some way. You're a loser.
I lost my brother last night at 1:00 am after 6 weeks. They called IT CJD.
Horror. Can't accept it. It hurts. I love him so much
sorry for your loss. my friend passed from this today.
I have to admit they're not doing nearly enough to cure this
I am so sorry for your loss my sister just got diagnosed with it a month ago and it hurts so bad to see your loved one like that
Здравствуйте, как ваша сестра, расскажите её симптомы.
Hello, I am from Russia, please tell me how old is your sister and how much is she sick?
lost a friend today from this.. gone in 2 months... She was 57.
My mother was just diagnosed with CJD. No history of disease.
We are in sock, it's devastating.
Going down rabbit holes lead me here.
We decided to go biopsy when she passes to find out if it's fCJD or sCJD.
Hello, I am from Russia, please tell me how old is your mother and how much is she sick?
@@СветланаТрофимова-у2щ she has passed away. She was 62.
@@SeecondToNone1
Sorry for your loss. Do you know by any chance if she had Covid?
Covid virus has been known to cause prion misfolds which cause neurological issues similar to CJD.
@@da-yp1wu she did not have covid-19 and was tested at hospital multiple times. Was tested at multiple hospitals as well.
Please explain to me how this works.
Are you trying to claim every type of coronavirus or just this one specific stain?
I cannot see how a simple coronavirus can accelerate the mutation of a protein molecule. But if this is the case please explain how.
@@SeecondToNone1 it’s a bullshit of course.
I lost my beloved uncle to this devastating disease in February of 2024 at the age of 60. His father had died only a year before this with what they said was dementia. He also had a childhood brother who died as an infant with CJD like symptoms but was undiagnosed at that time.
I just lost my friend to this disease today at 2:30 I'm devestated!!!!
liar
@@marcika Stop acting like nobody gets prion diseases.
@@marcika people get prion disease. Bet you are a COVID-19 denialist
A most upsetting sickness
At least she was lucky to have a long full life. A lot of people with this die in their 20's.
Lot of people? Cr Jacobs is One in a million disease, that too most common in the mid 50s-60s age group.
It is common, at 60 years old, but many young people die, even at 25 years old.
@@СветланаТрофимова-у2щ Just cuz some CJD victims die in their 20s does not mean MANY young people die of it. It is exceedingly rare for people below their 50-60's and higher to die from CJD.
@@kinjalghosh3350one in a million is not that uncommon lol
@@kinjalghosh3350it’s actually one in 2,000 in the UK. Don’t talk about something you clearly don’t understand. You have no idea the impact this disease had on my country
I lost my mother to CJD in 2015, she also had REM behavior disorder "RBD". I was diagnosed with RBD in 2010. I started losing my eye site and short term memory. Myclonic movements when sleeping. I had to medically resign as a RN. I had started an all fruit diet 4 months before I went into full blown dementia . It took me 1 1/2 to recover almost all my faculties. It worked !! My biggest issue is having 4 children " 2 out of the 4 had RBD also. I can't find anyone to test my daughter and I via blood test or CSF for the mutation. The CDC called and spoke with my sister and I soon after my mother passed. They asked if we wanted to be tested. We both at the time said no " it's fatal" I didn't want to worry every day , am I starting to go downhill. CDC now says they have b never done that , four ER's pushed me out the door when I was declining. It was terrifying then and still is. I have contacted a lady that works in a lab here in the US. They need me to send my MRI " that showed a positive pulvner sign. They said it was normal. Never sent the results to my sleep doctor , who watched my decline . I feel I am going down again. I am so scared, nobody wants to test me to find out for sure. I need the information , especially for my daughter's sake. My other child that had RBD passed away in 2018. Crossing an interstate on foot at 5am" in the middle of nowhere . If someone reads this " if you can help me please . I'm about to give up . Thank you
How is this spread? Genetic ? Might be a dumb a question... bless everyone that has to go through this
Familial CJD is indeed genetic, with offspring typically having a 50% chance of getting the gene
The other kind is through infected beef, blood donation and organ transplants. But there have been effective measures that really reduce the chance of spreading/acquiring CJD in a person’s lifetime.
Good Goy I agree.
Sporadic CJD is the mutation happens spontaneously in people.
There is genetic, sporadic and infectious.
There is a lot of mystery behind prion disease
My mummy is suffering from CJD and she is bed ridden, she is just 55..can anybody help me with any remedy.... I don't want to lose my mom... She is my world....
Unfortunately, it is a disease with no cure. There is likely not going to be a cure for at least a few decades, because we have a lot to learn about understanding proteins in the way that they are folded.
I'm so sorry to hear about the loss of your mom. You can volunteer for protein folding at home by using any processing power of your laptop that's not being used, it folds simulations of proteins which in turn figures out how they interact. Continue in this is the best way to assist in finding a cure.
This was 7 months ago. Goodluck sangi, people with CJD are not expected to live more than a year once infected.
I just lost my husband to CJD October 31 -2018 it started July only 4 months My husband and father .
So sorry...
@John Levison why dont you go and scam people who arent desperate you piece of shit vulture
Prion disease or as I like to call it- Horrible way to die
Pause at 0:40. :DDDDDDDDDDDDDDDDDDDDDDDDD That's not a PhD look. :DDDDDDDDDDDDDDDDDDDDDD
I dont believe this was CJD. The old witch was able to speak. I WANT TO SEE THE AUTOPSY RESULTS!!!!!!!!!!
Stop acting like nobody gets prion diseases.
What in the actual fuck is wrong with you? It's very clearly cjd, some people who are in early stages of the mutation are cognisant enough to talk and speak, it's later that they lose the ability to do so. To call her an "old witch" is so fucking disgusting
I had SFI, and then CJD, but I recovered from both. Probably because they were only in my head due to the too much shit (like this video) I watched on youtube...
Ты дурак, от бкя нет спасения
@@СветланаТрофимова-у2щ 👊👊👊👊👊😲😲😲😲😲😲😲😲
You thought you had it. Yes.
No one recovers from CJD.
So you didn't