@@bigbird3970 Sure, the one in the video can be found below if you follow the link. As with all pillows, stick them in the tumble dryer for 5-10 mins to fluff them up before use 😀 or if you have had it for a while. www.amazon.co.uk/dp/B093YG8964?ref=ppx_pop_mob_ap_share
I was confused. I have hEDS and I just can’t handle the way each heartbeat slams against my chest when I sleep on my left side. It’s very uncomfortable even though my heart rate is only in the 50s.
I am 33 and trying to get diagnosed with EDS. I saw this video about 4 days ago and my pregnancy pillow arrived yesterday. I woke up this morning and my face doesn't ache from sleepiness, my joints feel better, I didn't wake myself up from SI pain trying to reposition myself multiple times in the night. You may have changed my life and I am so incredibly grateful. I seriously don't have the words. Thank you.
lol I’m 33 and just found out I’m hyper mobile hahaha and I also found this video 4 days ago 🤣🤣 yes I know it’s a month apart but hahah TWINS !! My right side from my neck to my hip are all out of whack ! QL, SI, Groin, shoulder 😫😫😫
I am also 33! Had no idea I was hyper mobile until I say my rheumatologist (for my arthritis) for a check up. She realized I was a 6-7 on the scale, which I had no idea because I compared myself with the extreme cases I’ve seen! Seems like soooo many of us suffer with chronic pain, poor sleeps, and SI joint pain specifically!
Please please please get life insurance B4 you get diagnosed as I can't get insurance now ... I can get travel insurance through but u also have to check that ur medicines are OK in the country with the embassy with the country you are going Not just take it for granted that its OK because the travel insurance said so .
I'm 22, hypermobile and have had insomnia most of my life. The most comfortable nights of sleep I've had have been in a cheap net hammock whilst camping. I don't know if it's advisable, but I'm probably going to end up installing one if I ever own a house
Hyper mobility is connected to histamine intolerance and MCAS Your histamine may be high. A low histamine diet for even a few days may help you confirm. Mast cell 360 has the best list of foods to avoid
@@naniki29 makes sense. I have loads of random allergies that only trigger sometimes. I have to pick my battles with the dr's tho, as it's hard enough to make them listen anyway
I have extremely unstable knee and hips joints so I have the strangest mix of pillows all over my bed to support everything. So glad I came across this video!
I have hypermobility and I think this video just saved my life. I just slept for 9 hours straight with the pregnancy pillow and woke up with NO pain at all!! Bless you for sharing this and thank God for leading me to you.
On the face down position, you put you face on the edge of the pillow, instead of in the middle. This way the neck is less craned. When I have a cold, I move my head and pillow to the edge of my bed for even more air circulation. Another possibility is the half down, half sideways position, where you are angled between perpendicular and flat...
Yeah nothing like screaming yourself out of a dead sleep to feel like you have phantom limb syndrome. Has happened so many times to me. And when it doesn’t I still hate how I get constant neck cramps and shoulder pain when I get up.
I have had issues with my throat on and off for years! I have tried so hard to find the proper terminology for what’s been happening and have seen multiple doctors with no help. I even went to the ER one time because I felt that it was affecting my breathing and I was in a lot of pain every time I swallowed. No one knew what was wrong. Over the years I’ve found that aggressively coughing can pop things back into place but it still brings on a lot of anxiety when it happens. Thank you so much for talking about the hyoid bone, it’s helpful to know what is happening!
Thanks for the kind words Danielle 😀 I purposely made sure to include this in the video, because whilst it’s not a super common issue we see in our hypermobile clients, it occurs enough that we have noticed it and have had to develop protocol’s help people with it. I actually have in my diary to shoot a video about it and the causes, along with how to get the hyoid to sit lower again, so please keep an eye out for that video 😀
Ok this is so weird I've been feeling for a while that my throat is messed up almost pops when I swallow and feels like something is out of place...good to know I'm not crazy
This is so wild because I was hospitalized as a kid because I was so scared to choke because of this sensation! Then id do something to fix it myself after a while. Now when I happens I don’t freak out and I’m able to correct it without incident. didn’t know this was all tied back the hyper mobility
2 nights sleeping like this and best sleep I’ve ever had. No joint pain on waking. No round the bed trip trying to get comfy. Only have a V pillow but just ordered a larger one. Keeping me off my shoulder I’m waiting to have physio on after repeat sublux (Hyper mobile). Only diagnosed 2 weeks ago at 42 and so glad I found your socials ❤
How were you diagnosed? I want to ask my rheumatologist. I want to rule out all the Eds’ Been having tendonitis bilaterally that won’t heal, spine neck and an array of weird symptoms ball over… gut issues all weird… thank you!!
@@AntonioLiberato08 diagnosed via rhumatologist with hyper mobility. They’re querying Eds but getting anywhere along to get that diagnosed is as easy as finding unicorn poop.
Just last week rheumatologist said I have hyper mobility cause leg pain. Glad that I found this video. May I know what is it called ? Is any special category of pillow where to get?
You have described my nights!! I flip and flop all night long based on my aches and pains , esp in hips and knees. i think im going to order one of these pillows and try it! Thanks so much for your video. It all makes perfect sense.
I felt so called out in this video in the absolute best way! Been having shoulder issues the past few months I couldn't figure out. It's 100% the side sleeping. Interestingly, I have less acid reflux on my right side instead of the left. Just ordered one of those pillows. Thank you for this video!
Wow! Thank you for this video! I was diagnosed with EDS and POTS 5 yrs ago following the birth of my daughter. I have struggled with insomnia since I was a kid, but it became debilitaing (as well as the POTS) to the point of forcing me to quit working. Severe GERD that didn't resolve after my pregnancy didn't help. Long story short, even after my diagnosis, working with doctors that dont understand all the implications of EDS, it has taken a lot of research on my part to realize I was subluxing my shoulders, hips, and ribs. I bought a giant pregnancy pillow and trained myself to sleep on my back with my adjustable bed's head raised. I actually have the middle curve of the pillow under my knees and hug the ends of the pillow under each arm. It keeps me from rolling over. When i have issues with my shoulders rolling forward and my lower back becomes strained i place a long, thin round pillow along the length of my spine from top of the tail bone to the base of my skull. Seems to help and i have finally managed to get an average of 5 to 6 hrs of good quality sleep. I also recently had an endoscopy and barium swallow test for the exact thing you were describing with hyoid displacement! (My drs agreed that that was the likely cause of my discomfort after i showed them some research!) Sorry for the long comment but I wanted to express my gratitude for the validation your video gave me and is in a form I can share with drs and those around me that dont seem to think that sleep can cause me so many issues. This was incredibly informative, covering many comorbities in one place when it is so rare for those to ever be mentioned in any sort of context that someone with EDS would encounter it and be able to bring those concerns to their drs. So..... THANK YOU! ❤
I'm hypermobile + ADHD and I have a pregnancy pillow for 2 months. I sleep much better now, more comfy, more snuggly. However, mine is a little too high on the head, I may need to put some of the filling out. And biggest problem: I'm moving a lot in my sleep, and I also need to have this freedom. Usually I turn around a lot and it's like a workout each night. The big pregancy pillow is restricting and that wakes me up some time in the night and I need to kick it away to not get too irritated...
Great advice and detailed analysis. Retired occupational therapist here, can observe patterns in others. Not so good in analyzing myself, past adjusting position when joints start feeling pull due to laxity. This is so helpful to hear the full-meal deal, and will listen to this several times. Seems that people on the downhill side of 50 would benefit from watching this video, since you cover so many medical/body issues. Well done.
I wanted to extend a thank you for the best sleep I've had in years (if not ever). After watching your video I jumped straight in and ordered the pregnancy pillow you showed and OMG that bad boy is a godsend. I've been trying other options for years and never managed anything sustainable or suitable. Your 'what, why & how' approach provided the information I've been craving. Thank you 🤘
Thanks so much 😀 I am super thrilled it’s has been such a help. This video has been really well received, I’m actually planning a part two over the holidays.
I feel like this video is a life saver! I sleep on my right side, have GERD and major issues with my shoulder hypermobility causing issues with my collar bones and my hips....I have struggled with pillows and mattresses most of my life. This has so much info that I feel will actually help me!! Thank you 🙏
Fantastic video! I’m hypermobile, and I am also a bodyworker and trainer who specializes in working with hypermobile folks. This is such a great resource! I appreciate you!
You’re a hero! Thanks for talking about the hyoid bone. I’ve had some slippiness there over the past couple years but didn’t understand it fully. I love being able to be specific with my doctor about my symptoms. This video is wonderful; loved your article too. You’re helping so many people. 🙏🏻
Have HEDS and I've always had problems when it comes to sleep. Have snoring and breading problems when sleeping on the back, have issues with my ribs, hips, arms, shoulders and neck when sleeping on the side and sleep on my stomach *no way*. Have been at the doctor, rehab center, special doctors and no one have been able to help me. But when you described all the stuff with the joints, it all makes sense... I need to get one of those pillows now! Thank you so very much! 💜💙💚Hopefully my back and shoulders will hurt a little bit less 😊
Until my reflux got insane in my 30's, my favorite sleep position was my stomach. Except, I slept with my arms under my legs lol. It took me a long time to learn how to sleep with a pillow, and I still rarely use one. I'll be 50 next month and I mostly sleep in a ball like a cat. The worst thing about that is simply trapping heat and waking drenched in sweat. I've always run hot in my sleep and it (and reflux) cause me the most problems. Or waking with my wrists in extreme pain because I decided to fold them under my neck. I hate sleeping and push myself past exhaustion just to avoid it. If I lie flat for too long, my hips sublux and my knees hyperextend. I'll look into those pregnancy pillows! Great video.
I had to come back after a couple weeks to thank you. I was unable to sleep for months after a work injury triggered TOS. My hands would be so painfully numb it would wake me up. With all these tips and tools I have been able to fix that and I’m able to get a full 8 hours again. THANK YOU!!!
This video is ridiculously helpful. I am so hypermobile and have been in pain while sleeping the last 4 years. I am ordering a pregnancy pillow. Asap!!! Thank you for this thorough contecnt!
I have always slept on my front due to unstable shoulders. As a child I realised that it was the only position I didn’t feel pain in and could actually relax. Must’ve contributed to my neck issues 😅 After a very bad period of low shoulder stability due to unrehabilitated injury, I have strenghtened my shoulder muscles and now sleeping on the side is 1. possible, 2. comfortable. I have never heard anyone speak about the things I’ve been trying to figure out for years, and I am so glad to discover your channel. Thank you for putting such detailed information out there, very excited to learn more through your channel!!!! ❤
Thank you so much for this video! About 2 weeks now I've come to realize my hypermobility is the cause of the many issues I am having. I knew for some time I was hypermobile but never connected the dots (I just thought it was very convenient during yoga). But now I know why sleeping on my side hurts my back and shoulders. Thank you so much again for these insights. The last few weeks have been that one puzzle piece after the other falls right into place... you just got yourself a new follower 😊 Ps. I love to sleep on my back. With a small pillow under my knees. I will start looking for a new pillow soon since I think mine is a bit high.
Finally got through this, glad I did, thank you for the demonstration. I had heard of pregnancy pillows but didn't quite know what to picture. This seems like it would fix the problem of me having 3-5 pillows to be adjusting all the time.
just ordered a pregnancy pillow. it makes a lot of sense to me before I was even diagnosed as being hyper mobile that I wanted one because it looked like it would make me sleep more comfy but I never got one idk why. anyways fast forward and I have been diagnosed as ADHD, autistic and hyper mobile and I struggle with sleep and anxiety so much. I am seeing my doctor tomorrow to hopefully get a gabapentin prescription to help with the chronic pain aspect of hyper mobility while also helping with the anxiety it gives me. I'm hoping that if I get approved for the prescription that I am able to manage my pain and anxiety better so I can get better quality sleep! for the last few years my sleep duration and quality has gotten worse and worse and I average about 5 hours a night and wake up frequently either very alert or in pain. this video was very helpful and informative, I want to keep educating myself on these issues to better help myself and others who make be struggling with the same things. the only thing I am a bit sad about using my pregnancy pillow is it will be difficult to cuddle with my gf at night ;-; lol
#1: Tight Nissen fundoplication is a lifesaver. #2: I use 5 comforters to shape however I like. #3: Humidifier and large air purifier are a must for me.
Excellent information and explanation as to why certain positions cause pain during the night. I use a pregnancy pillow also but mine is shaped like an upside down U - that way I can easily roll over when needed during the night without having to take the pillow with me.
I’m too much for my G.P😂😂 no seriously though, I give up. I’ve been diagnosed with benign Hypermobility, gerd, fibromyalgia, insomnia, TMJ disorder and anxiety/depression. I’m always in pain on different scales, but I’m totally fed up as a human being.
as someone who recently found iut they have eds, but has lived a life of discomfort in bed causing me to special interest on mattresses, this is the only informative vid ive seen on mattresses thats not trying to sell me something. thanks mate
Thank you for this video. I am sleeping with the C pillow for a week now and i feel so much beter. And my back is almost not hurting annymore during the day. Thank you ❤
Side sleeper. Original Tempurpedic mattress. I use a large cervical support pillow between my legs, a large memory foam pillow in my arms, and another cervical support pillow for my head. Pillow placement helps. Sleeping on your front is terrible for your face.
Im 35 and i knew my body was different but I never knew it’s a condition until few days ago. Just a simple terminology helped me to find such a good and helpful content, like this! I sleep with 3 different pillows and I’m very picky about the mattress, but I’ll definitely try the pregnancy pillow now. And check all of your videos ofc😊 thank you!
Im 17 and discovered eds a few days ago and it explains everything that’s ever been wrong with me especially my terrible acid reflux. i’ve never really been able to sleep comfortably but i tried this last night and omg thank you!!!
I am definitely a “changes positions” sleeper, often multiple times per night until I finally go understand and then I’m down for the count. I’ve struggled a lot with sleep and hypermobility, but I have sort of figured out the combination of support pillows and angles that works for me. I tend to have three rectangular pillows of various size and firmness that I may shuffle around for support in different places depending on if I’m on my side or back, creating a ramp to keep the gerd at bay, or a channel for my shoulder while on my side. But I also have found that a snap-on neck pillow to support my neck is crucial, and someone gave me this little almost hourglass-shaped pillow which sits snugly between my thighs and doesn’t move - this has been a game changer. I haven’t been able to get one of those pregnancy pillows to try yet, it is something I have considered, but now after watching this video I’m even more interested. I’ve sort of been simulating one, I’m wondering if it would be able to provide the specific neck support I need.
Very helpful, thanks the algorithm. I just wrap the duvet around my legs, probably for hips and knees and when you talked about it it finally made sense
The tips about shoulder and hip width and related were really helpful. I cannot remember ever having a comfortable bed and I wake a lot and in pain then usually change position. I am need a new bed and am going to take all this info into consideration. I find side is better but i have shoulder issues, i cannot manage to stay on my back. I am tired of being sore and tired. No one I asked could give me helpful info on beds or pillows.
Saw your message and wanted to try to help you. I am sorry you are suffering. I can definitely relate. I am 50 with a 9/9 Beighton score (still) and found that getting a PURPLE MATTRESS, #4, was a game changer for me! Maybe it can help you too. Another thing that has helped is taking montelukast (allergy medicine) and Benadryl before bed. Keeps MCAS under control night and into the next day. ⚪️ chronic left shoulder dislocations ⚪️ never ending cervical instability ⚪️ si joint slipping ⬆️ These are my top 3 that used to keep me awake at night. They do not give me as many problems ever since I started sleeping on purple mattress. It’s been 5 years and I am still surprised that I can actually lay on my left side for more than 2 minutes! Previously I was unable to sleep on left side due to left si joint as well as bursitis in left hip. The purple mattress “accepts” my hips, elbows, etc…as I change positions. It is supportive and yet the mattress hugs the areas that sink in (ever so slightly) into mattress. I pray this message finds you as well as can be…with brighter days ahead (because you got restful sleep at night)! Please feel free to message me whenever. From zebra to zebra…..we gotta stick together! ((((((Hugs)))))) to you! Love, Terra
As a very pear shaped person, THANK YOU! The fact i cant handle camping mattresses AT ALL and keeps me out of a lot of things i would like to do outdoors
Yep I have to avoid doing most things that I loved. At least for any certain amount of time. Even traveling by car has really sucked for the past 17 years or so. I swear my for kids are the only things that keep me going. Every pillow mattress, sleeping meds, pain meds, herbs, natural teas. Feel like I’ve tried it all
Yep I have to avoid doing most things that I loved. At least for any certain amount of time. Even traveling by car has really sucked for the past 17 years or so. I swear my for kids are the only things that keep me going. Every pillow mattress, sleeping meds, pain meds, herbs, natural teas. Feel like I’ve tried it all. Not sure what else to do.
Thank you for the video. I’ve been currently trying to figure out how to sleep better it’s extremely frustrating when you wake up and you feel like you just had shoulder surgery I had to wear a sling all day.
I finally got all my pillows and ergonomics right, only to now have sleeplessness due to incessant sweats from dysautonomia/POTS 🤦♀️ Too bad EDS is not usually alone 😢
Thank you so much for this! I feel alone and am learning more about hEDS while waiting for an official diagnosis. Everything you're talking about is what I struggle with daily, among many other issues, but this video was a great help!
good to know i'm completely justified in my love of pregnancy pillows. i dont have sleep apnea so i like sleeping a quarter turn to the side-- so mostly on my back but with the ability to curve and stretch my back throughout the night. i have a pregnancy pillow to support my back but it's raised off the firmer mattress. absolute best position because my throat is above my stomach, my back can move freely, my ribs aren't under pressure, my shoulders have minimal stretch/force on them, my knees are bent, and my arms are free.
I do the pillow between the legs. But i have no problem. Or if i sleep on my side and the knee is up. The pillow is under my knee. But yep it does get thrown out
I’m 49 And I have EDS + Sleep Apnea, I have to sleep with a CPAP but I want to be able to sleep without subluxations or Dislocations of my joints, too. I have cEDS or Classical EDS. My rib is the problem area mainly during sleep 💤. I have GERD and I noticed that, Thanks for the helpful hint!
I'm a depends on what's going on at the time type person for sleep but best sleep is in a recliner because it's back but not flat either and legs are a little up which helps me with not being completely flat with this and POTS.
I am super excited to have found this video! Can’t wait to watch the rest of your videos. Hopefully I can find a position to sleep in comfortably when my pillow arrives. I flip side to side all night long trying to get comfortable. I currently sleep with a pillow between my knees and one under my arm to keep my shoulders more comfortable…still not comfortable. SI Joint and shoulder instability issues. Thanks 🙏
it feels so unfair that no doctor has diagnosed me. but i have all the things you are talking about, and you are so educated on it. you know so much. but it’s like not even known about where i am and i’m not getting the right help😭
Hang in there, it does get better. You’ll start to learn more about your own body, and what it needs, and eventually you get to a point where you can tell the doctors what you need instead of the other way around. Unfortunately, it kind of Has to be that way because people really don’t know a lot about this on average, but you will get there and things will get better. Just don’t give up
Really helpful video! A lot of great advice and info. I’ve been having a lot of neck issues and tingling down my arm/hand and a lot makes sense now. I’ll be getting one of those pillows to try asap 👍
Good,informative video. I would just like to add that one of the problems with the pregnancy pillows for me is that I find them too hot. I have transitioned from back sleeping to side sleeping but still only get decent sleep if I am cool. For me this is a summer weight duvet in the depths of winter and only a cotton sheet in summer. As you say trial and error. 🙂
It’s funny that you mention that as I run hot constantly as well. The C pillow I use comes with different covers, and then one I have is the cool cover, it doesn’t heat up 😀
I’ve learned to sleep against the wall at a diagonal angle. I’ll set up a blanket against the wall, a soft pillow, and a body pillow in front of me to separate my arms and legs
I Front sleep with CPAP machine so can have my face down a bit more. I have 2 thin pillow and so i can have my head in a better position, i kinda cuddle one of the pillows. We also have a water bed which molds to your body shape. It's so good. Shoulders are a major issue for me. I've also go a very large chest.
I suspect my ribcage hypermobility is twisting while I'm asleep and causing my diaphragm on the right to not function properly. Any suggestions? My serratus anterior on the right is chronically tight and might be pulling the ribs.
I have GERD and sleeping on my right where stomach is in higher position is terrible. Left and back - kind of ok. Front, hips in so much pain on waking. I have type 3
On my back with a neck brace is the only thing that works for me. Also solo sleeping in my own room (my chihuahua is allowed but no partner). Or I won’t sleep.
i knew the need for a soft mattress had to be related. i noticed a big difference staying long term with family using an old firm mattress vs. the two futon mattresses i had stacked with a pillow top cover. my body is literally crying for replacements.
I sleep all over the place 😅 constantly moving trying to find a pain free position ... buying a pregnancy pillow, my symptoms are hips, leg, back, neck and shoulder mainly on the right side. Tried smaller pillows/props in the past with no joy so maybe the bigger pillow will help. Tiny hips . Good video 👍
28:02 dude u sold me on the pillow here lol. I need it, for all these reasons ai feel like it could help me a lot. It takes me a while every-night just to get too comfortable, with this U pillows it could be so beneficial and make it so much easier to sleep! Needless to say, I might have EDS and life is difficult. Any of these pillows you can recommend or link? I will check on Amaz but I must have one, looks well comfy😊 Thanks for the informative video.
I sleep in stable side position most of the time everything else feels to wobly . But i get inflamation of my chest bone sometimes from the presure . so this is a really good video 😅
@@neon.neutral to be honest it comes and goes so far taking anti inflammatory painkillers like ibuprofen and putting something under my arm so it doesn’t pull my shoulder down helps the most . But there’s not much else you can do for pain in other joints gaining more muscle seems to help
I have more problems with pain when sitting or standing still. So i tend to lie up on couch a lot even to eat. I fall asleep after eating all the time. Also wake up in the most random places. As once u get into any comfy position especially if your tired from waking up at random times i just conk out. My dog helps my pain so when I lie down to cuddle him. I sometimes wake up in his bed or on kitchen floor beside him 😂 not good for the stiffness when u wake up tho
I can only sleep on my stomach. Side sleeping makes my neck, shoulders and hips sore, and sleeping on my back is really painful. And yes, I too sleep with my face on the edge of the pillow to keep my neck as neutral as possible.
As a Zebra who loves side sleeping, it depends on whats bad that night. I can have my hips or shoulders sublux or fully dislocate, i have a horrible stomach so laying down causes vomiting sometimes. Plus neck and back issues. Oh and slipping ribs that if you accidently roll onto youll stop breathing its too painful. Neuropathy makes it hard when your nerves catch fire and start twitching. Also, neurodivergence causes the brain to kick on andmake sleep a forgotten idea. Sleep feels impossible most of the time. I used to take hard sleep drugs to knock me out than deal with the consequences of how i end up sleeping in the am. Now i just deal with lack of sleep :( lol. We appreciate these tips luv!
I have hEDS and experience most of what you talked about. I never realized some of this was happening, i.e. my hyoid bone slipping. It's good to put a name, so to speak, to it. Where can I find that pillow?
Thank you so much for this. I watched it from beginning to end and learned more in thirty minutes from you, than thirty years of living with hypermobilism. Also, what size if your bed, it's huge!
I finally got diagnosed with hypermobility last year but have struggled with it my whole life. Sleep has always been hard for me. Insomnia since high school. I can only sleep flat on my back, or I may pop my collar bone out of place😢 just have to learn tricks.
Side sleeping and mild scoliosis meant a permenently subluxed collar bone for me. Turns out it’s extra high on one side due to my being rotated. It used to hurt a lot and though over time the pain went away the issue has not. Probably won’t as long as I have scoliosis.
I had major SI joint problems and my right hip subluxates. My PT had me transition to my back. Now I sleep with a pillow under my legs on my back. Recently my ribs have been subluxating and shoulders feel collapsed. Haven’t been able to sleep for 3 days. I have a firm mattress that helps keep my hips in place but can feel all my ribs moving throughout the night and can’t sleep because of it. The only place that seems to help is sleeping on the floor with my ribs to almost keep them stable, but my sacrum is super achey if I’m there for more than an hour. Any tips on what to do or try??? Mattress seems to aggravate my currently unstable ribs because the mattress seems to still be not firm enough as the floor. But sitting up causes my lower back and hips to ache when put into a posterior tilt.
This has literally been my problem. A recent fall messed up my ribs so badly snd they won’t stop slipping out and causing a great deal of pain and affecting my sleep in all positions. I hope you have found some relief :(
I've personally noticed sleeping with a brace of sorts, or creating a brace (pushing the joints in place then wrapping them in place to sort of hold things in place during the night) can help when my body is acting up more. The last time I accidentally slightly dislocated a rib I literally slept with a foam roller bound to that area to sort of hold it in at night. I've slept eith knee braces, shoulder braces, supportive posture correctors to keep things more in place. Bandage stretchy wrap or tape is a go to for me as well. I wonder if there are rib braces safe to sleep in? A way to wrap the ribs in general alignment? In the long run I found strengthening stabilizing muscles - keeping them stronger in general than most people ever have to worry about - helps reduce the amount of subluxation that happens but I also understand that they can only do so much.
I was a front sleeper as a child, then a side sleeper. After hip surgeries and DDD I’m down to my back. Adjustable bed in zero gravity position is great for me. I love sleeping on my side, but too much pain. Oh well.
* A Little footnote: I should of said cardiac patients favour their right side, I just noticed this when watching the video back*
Adam could you include a link to the pillows you favour please, there are so many available, I need to spend my money wisely! Thank you 😊
@@bigbird3970 Sure, the one in the video can be found below if you follow the link.
As with all pillows, stick them in the tumble dryer for 5-10 mins to fluff them up before use 😀 or if you have had it for a while.
www.amazon.co.uk/dp/B093YG8964?ref=ppx_pop_mob_ap_share
@@Thefibroguy excellent, thank you Adam 👍
So glad you corrected as my ex used to sleep on his right because the left side hurt his heart and I was really wondering.
I was confused. I have hEDS and I just can’t handle the way each heartbeat slams against my chest when I sleep on my left side. It’s very uncomfortable even though my heart rate is only in the 50s.
I am 33 and trying to get diagnosed with EDS. I saw this video about 4 days ago and my pregnancy pillow arrived yesterday. I woke up this morning and my face doesn't ache from sleepiness, my joints feel better, I didn't wake myself up from SI pain trying to reposition myself multiple times in the night. You may have changed my life and I am so incredibly grateful. I seriously don't have the words. Thank you.
Aw nice one Stacy! Knowledge is power and its great to see you taking back some control. Sleep is so important, so this is brilliant news 😀
lol I’m 33 and just found out I’m hyper mobile hahaha and I also found this video 4 days ago 🤣🤣 yes I know it’s a month apart but hahah TWINS !! My right side from my neck to my hip are all out of whack ! QL, SI, Groin, shoulder 😫😫😫
@@jsjourney3295 that's awesome 🤣 twinsies!
I am also 33! Had no idea I was hyper mobile until I say my rheumatologist (for my arthritis) for a check up. She realized I was a 6-7 on the scale, which I had no idea because I compared myself with the extreme cases I’ve seen! Seems like soooo many of us suffer with chronic pain, poor sleeps, and SI joint pain specifically!
Please please please get life insurance B4 you get diagnosed as I can't get insurance now ... I can get travel insurance through but u also have to check that ur medicines are OK in the country with the embassy with the country you are going Not just take it for granted that its OK because the travel insurance said so .
I'm 22, hypermobile and have had insomnia most of my life. The most comfortable nights of sleep I've had have been in a cheap net hammock whilst camping. I don't know if it's advisable, but I'm probably going to end up installing one if I ever own a house
I bought a metal hammock stand to have a hammock in my apartment, it's easy to disassemble and store away too!
Hyper mobility is connected to histamine intolerance and MCAS
Your histamine may be high.
A low histamine diet for even a few days may help you confirm.
Mast cell 360 has the best list of foods to avoid
I’ve had insomnia & Hypermobility too x shame drs told tell you any of this valuable info x
@@naniki29 makes sense. I have loads of random allergies that only trigger sometimes. I have to pick my battles with the dr's tho, as it's hard enough to make them listen anyway
my ex uses a free standing hammock stand. serves him well
I have extremely unstable knee and hips joints so I have the strangest mix of pillows all over my bed to support everything. So glad I came across this video!
Ikr
Once fully dislocated my knee while sleeping. I was like ahh shit cant i even sleep now.
And now the knee needs a pillow underneath .
I have hypermobility and I think this video just saved my life. I just slept for 9 hours straight with the pregnancy pillow and woke up with NO pain at all!! Bless you for sharing this and thank God for leading me to you.
On the face down position, you put you face on the edge of the pillow, instead of in the middle. This way the neck is less craned. When I have a cold, I move my head and pillow to the edge of my bed for even more air circulation.
Another possibility is the half down, half sideways position, where you are angled between perpendicular and flat...
Waking up from a dislocated shoulder is always so much fun. At least it goes back in easily
Yeah nothing like screaming yourself out of a dead sleep to feel like you have phantom limb syndrome. Has happened so many times to me. And when it doesn’t I still hate how I get constant neck cramps and shoulder pain when I get up.
Not me watching this while laying on my side and my shoulder falling into my chin and arm twisting all weird 😅😅😂
Same, and how did TH-cam know to suggest this
I have had issues with my throat on and off for years! I have tried so hard to find the proper terminology for what’s been happening and have seen multiple doctors with no help. I even went to the ER one time because I felt that it was affecting my breathing and I was in a lot of pain every time I swallowed. No one knew what was wrong. Over the years I’ve found that aggressively coughing can pop things back into place but it still brings on a lot of anxiety when it happens. Thank you so much for talking about the hyoid bone, it’s helpful to know what is happening!
Thanks for the kind words Danielle 😀 I purposely made sure to include this in the video, because whilst it’s not a super common issue we see in our hypermobile clients, it occurs enough that we have noticed it and have had to develop protocol’s help people with it.
I actually have in my diary to shoot a video about it and the causes, along with how to get the hyoid to sit lower again, so please keep an eye out for that video 😀
@@Thefibroguy I will definitely keep an eye out for that video - thanks!
Ok this is so weird I've been feeling for a while that my throat is messed up almost pops when I swallow and feels like something is out of place...good to know I'm not crazy
This is so wild because I was hospitalized as a kid because I was so scared to choke because of this sensation! Then id do something to fix it myself after a while. Now when I happens I don’t freak out and I’m able to correct it without incident. didn’t know this was all tied back the hyper mobility
Yeah, been there too a couple of times and seriously unpleasant and hard to explain to doctors without sounding just a bit weird!
2 nights sleeping like this and best sleep I’ve ever had. No joint pain on waking. No round the bed trip trying to get comfy. Only have a V pillow but just ordered a larger one. Keeping me off my shoulder I’m waiting to have physio on after repeat sublux (Hyper mobile). Only diagnosed 2 weeks ago at 42 and so glad I found your socials ❤
Oh that’s soo good to read Emma! 💪🏻 nice one!
How were you diagnosed? I want to ask my rheumatologist. I want to rule out all the Eds’
Been having tendonitis bilaterally that won’t heal, spine neck and an array of weird symptoms ball over… gut issues all weird… thank you!!
@@AntonioLiberato08 diagnosed via rhumatologist with hyper mobility. They’re querying Eds but getting anywhere along to get that diagnosed is as easy as finding unicorn poop.
Just last week rheumatologist said I have hyper mobility cause leg pain. Glad that I found this video. May I know what is it called ? Is any special category of pillow where to get?
You have described my nights!! I flip and flop all night long based on my aches and pains , esp in hips and knees. i think im going to order one of these pillows and try it! Thanks so much for your video. It all makes perfect sense.
I felt so called out in this video in the absolute best way! Been having shoulder issues the past few months I couldn't figure out. It's 100% the side sleeping. Interestingly, I have less acid reflux on my right side instead of the left. Just ordered one of those pillows. Thank you for this video!
Wow! Thank you for this video! I was diagnosed with EDS and POTS 5 yrs ago following the birth of my daughter. I have struggled with insomnia since I was a kid, but it became debilitaing (as well as the POTS) to the point of forcing me to quit working. Severe GERD that didn't resolve after my pregnancy didn't help. Long story short, even after my diagnosis, working with doctors that dont understand all the implications of EDS, it has taken a lot of research on my part to realize I was subluxing my shoulders, hips, and ribs. I bought a giant pregnancy pillow and trained myself to sleep on my back with my adjustable bed's head raised. I actually have the middle curve of the pillow under my knees and hug the ends of the pillow under each arm. It keeps me from rolling over. When i have issues with my shoulders rolling forward and my lower back becomes strained i place a long, thin round pillow along the length of my spine from top of the tail bone to the base of my skull. Seems to help and i have finally managed to get an average of 5 to 6 hrs of good quality sleep. I also recently had an endoscopy and barium swallow test for the exact thing you were describing with hyoid displacement! (My drs agreed that that was the likely cause of my discomfort after i showed them some research!) Sorry for the long comment but I wanted to express my gratitude for the validation your video gave me and is in a form I can share with drs and those around me that dont seem to think that sleep can cause me so many issues. This was incredibly informative, covering many comorbities in one place when it is so rare for those to ever be mentioned in any sort of context that someone with EDS would encounter it and be able to bring those concerns to their drs. So..... THANK YOU! ❤
I'm hypermobile + ADHD and I have a pregnancy pillow for 2 months. I sleep much better now, more comfy, more snuggly. However, mine is a little too high on the head, I may need to put some of the filling out. And biggest problem: I'm moving a lot in my sleep, and I also need to have this freedom. Usually I turn around a lot and it's like a workout each night. The big pregancy pillow is restricting and that wakes me up some time in the night and I need to kick it away to not get too irritated...
Great advice and detailed analysis. Retired occupational therapist here, can observe patterns in others. Not so good in analyzing myself, past adjusting position when joints start feeling pull due to laxity. This is so helpful to hear the full-meal deal, and will listen to this several times. Seems that people on the downhill side of 50 would benefit from watching this video, since you cover so many medical/body issues. Well done.
I wanted to extend a thank you for the best sleep I've had in years (if not ever). After watching your video I jumped straight in and ordered the pregnancy pillow you showed and OMG that bad boy is a godsend. I've been trying other options for years and never managed anything sustainable or suitable. Your 'what, why & how' approach provided the information I've been craving. Thank you 🤘
Thanks so much 😀 I am super thrilled it’s has been such a help. This video has been really well received, I’m actually planning a part two over the holidays.
I feel like this video is a life saver! I sleep on my right side, have GERD and major issues with my shoulder hypermobility causing issues with my collar bones and my hips....I have struggled with pillows and mattresses most of my life. This has so much info that I feel will actually help me!! Thank you 🙏
This channel should have more views. This video is so informative. Thank you!
Fantastic video! I’m hypermobile, and I am also a bodyworker and trainer who specializes in working with hypermobile folks. This is such a great resource! I appreciate you!
You’re a hero! Thanks for talking about the hyoid bone. I’ve had some slippiness there over the past couple years but didn’t understand it fully. I love being able to be specific with my doctor about my symptoms.
This video is wonderful; loved your article too. You’re helping so many people. 🙏🏻
Have HEDS and I've always had problems when it comes to sleep. Have snoring and breading problems when sleeping on the back, have issues with my ribs, hips, arms, shoulders and neck when sleeping on the side and sleep on my stomach *no way*. Have been at the doctor, rehab center, special doctors and no one have been able to help me. But when you described all the stuff with the joints, it all makes sense... I need to get one of those pillows now! Thank you so very much! 💜💙💚Hopefully my back and shoulders will hurt a little bit less 😊
I’m 23 and struggling, thanks so much mate
Until my reflux got insane in my 30's, my favorite sleep position was my stomach. Except, I slept with my arms under my legs lol. It took me a long time to learn how to sleep with a pillow, and I still rarely use one.
I'll be 50 next month and I mostly sleep in a ball like a cat. The worst thing about that is simply trapping heat and waking drenched in sweat. I've always run hot in my sleep and it (and reflux) cause me the most problems. Or waking with my wrists in extreme pain because I decided to fold them under my neck.
I hate sleeping and push myself past exhaustion just to avoid it.
If I lie flat for too long, my hips sublux and my knees hyperextend.
I'll look into those pregnancy pillows! Great video.
Thank you, I feel seen. I think I have experienced all of the problems :/. Rotating much at night; always more or less tired through the day ..
Love these validations.. cardiac issues sleep in left.. yesssss
I had to come back after a couple weeks to thank you. I was unable to sleep for months after a work injury triggered TOS. My hands would be so painfully numb it would wake me up. With all these tips and tools I have been able to fix that and I’m able to get a full 8 hours again. THANK YOU!!!
This video is ridiculously helpful. I am so hypermobile and have been in pain while sleeping the last 4 years. I am ordering a pregnancy pillow. Asap!!! Thank you for this thorough contecnt!
Define pain.. stiffness or muscular pain?
@kar460 stiffness and pinched nerves in my neck and thorasic spine.
Switching to a Soft foam mattress and using lots of props helped immensely
I have always slept on my front due to unstable shoulders. As a child I realised that it was the only position I didn’t feel pain in and could actually relax. Must’ve contributed to my neck issues 😅 After a very bad period of low shoulder stability due to unrehabilitated injury, I have strenghtened my shoulder muscles and now sleeping on the side is 1. possible, 2. comfortable.
I have never heard anyone speak about the things I’ve been trying to figure out for years, and I am so glad to discover your channel. Thank you for putting such detailed information out there, very excited to learn more through your channel!!!! ❤
Thank you so much for this video! About 2 weeks now I've come to realize my hypermobility is the cause of the many issues I am having. I knew for some time I was hypermobile but never connected the dots (I just thought it was very convenient during yoga). But now I know why sleeping on my side hurts my back and shoulders. Thank you so much again for these insights. The last few weeks have been that one puzzle piece after the other falls right into place... you just got yourself a new follower 😊
Ps. I love to sleep on my back. With a small pillow under my knees. I will start looking for a new pillow soon since I think mine is a bit high.
Finally got through this, glad I did, thank you for the demonstration. I had heard of pregnancy pillows but didn't quite know what to picture. This seems like it would fix the problem of me having 3-5 pillows to be adjusting all the time.
just ordered a pregnancy pillow. it makes a lot of sense to me before I was even diagnosed as being hyper mobile that I wanted one because it looked like it would make me sleep more comfy but I never got one idk why. anyways fast forward and I have been diagnosed as ADHD, autistic and hyper mobile and I struggle with sleep and anxiety so much. I am seeing my doctor tomorrow to hopefully get a gabapentin prescription to help with the chronic pain aspect of hyper mobility while also helping with the anxiety it gives me. I'm hoping that if I get approved for the prescription that I am able to manage my pain and anxiety better so I can get better quality sleep! for the last few years my sleep duration and quality has gotten worse and worse and I average about 5 hours a night and wake up frequently either very alert or in pain. this video was very helpful and informative, I want to keep educating myself on these issues to better help myself and others who make be struggling with the same things. the only thing I am a bit sad about using my pregnancy pillow is it will be difficult to cuddle with my gf at night ;-; lol
You’re a very eloquent and knowledgable presenter 😊
#1: Tight Nissen fundoplication is a lifesaver.
#2: I use 5 comforters to shape however I like.
#3: Humidifier and large air purifier are a must for me.
Excellent information and explanation as to why certain positions cause pain during the night. I use a pregnancy pillow also but mine is shaped like an upside down U - that way I can easily roll over when needed during the night without having to take the pillow with me.
TH-cam showed me this finally when i needed it, THANK YOU. I finally can talk to my doctor with more info about why my arm is messed up.
I’m too much for my G.P😂😂 no seriously though, I give up.
I’ve been diagnosed with benign Hypermobility, gerd, fibromyalgia, insomnia, TMJ disorder and anxiety/depression.
I’m always in pain on different scales, but I’m totally fed up as a human being.
I totally understand
as someone who recently found iut they have eds, but has lived a life of discomfort in bed causing me to special interest on mattresses, this is the only informative vid ive seen on mattresses thats not trying to sell me something. thanks mate
Thank you for this video. I am sleeping with the C pillow for a week now and i feel so much beter. And my back is almost not hurting annymore during the day. Thank you ❤
I have a hypermobility disorder but haven’t yet found out if it is EDS… going to try the prego pillow , you literally explained my struggle
This hit ALLLLL the points and described why I do not sleep well. Mind blown. Very helpful
Side sleeper. Original Tempurpedic mattress. I use a large cervical support pillow between my legs, a large memory foam pillow in my arms, and another cervical support pillow for my head. Pillow placement helps. Sleeping on your front is terrible for your face.
5 minutes in and I saved this video. Thank you so much for this info I'll definitely be subscribing.
Im 35 and i knew my body was different but I never knew it’s a condition until few days ago. Just a simple terminology helped me to find such a good and helpful content, like this! I sleep with 3 different pillows and I’m very picky about the mattress, but I’ll definitely try the pregnancy pillow now. And check all of your videos ofc😊 thank you!
Im 17 and discovered eds a few days ago and it explains everything that’s ever been wrong with me especially my terrible acid reflux. i’ve never really been able to sleep comfortably but i tried this last night and omg thank you!!!
I am definitely a “changes positions” sleeper, often multiple times per night until I finally go understand and then I’m down for the count. I’ve struggled a lot with sleep and hypermobility, but I have sort of figured out the combination of support pillows and angles that works for me. I tend to have three rectangular pillows of various size and firmness that I may shuffle around for support in different places depending on if I’m on my side or back, creating a ramp to keep the gerd at bay, or a channel for my shoulder while on my side. But I also have found that a snap-on neck pillow to support my neck is crucial, and someone gave me this little almost hourglass-shaped pillow which sits snugly between my thighs and doesn’t move - this has been a game changer.
I haven’t been able to get one of those pregnancy pillows to try yet, it is something I have considered, but now after watching this video I’m even more interested. I’ve sort of been simulating one, I’m wondering if it would be able to provide the specific neck support I need.
Very helpful, thanks the algorithm. I just wrap the duvet around my legs, probably for hips and knees and when you talked about it it finally made sense
The tips about shoulder and hip width and related were really helpful. I cannot remember ever having a comfortable bed and I wake a lot and in pain then usually change position. I am need a new bed and am going to take all this info into consideration. I find side is better but i have shoulder issues, i cannot manage to stay on my back. I am tired of being sore and tired. No one I asked could give me helpful info on beds or pillows.
Saw your message and wanted to try to help you. I am sorry you are suffering. I can definitely relate.
I am 50 with a 9/9 Beighton score (still) and found that getting a PURPLE MATTRESS, #4, was a game changer for me!
Maybe it can help you too. Another thing that has helped is taking montelukast (allergy medicine) and Benadryl before bed. Keeps MCAS under control night and into the next day.
⚪️ chronic left shoulder dislocations
⚪️ never ending cervical instability
⚪️ si joint slipping
⬆️ These are my top 3 that used to keep me awake at night. They do not give me as many problems ever since I started sleeping on purple mattress. It’s been 5 years and I am still surprised that I can actually lay on my left side for more than 2 minutes! Previously I was unable to sleep on left side due to left si joint as well as bursitis in left hip. The purple mattress “accepts” my hips, elbows, etc…as I change positions. It is supportive and yet the mattress hugs the areas that sink in (ever so slightly) into mattress.
I pray this message finds you as well as can be…with brighter days ahead (because you got restful sleep at night)!
Please feel free to message me whenever. From zebra to zebra…..we gotta stick together!
((((((Hugs)))))) to you!
Love,
Terra
Words cannot express how much I appreciate all this information! I believe this is what I have and I am just starting to research!
As a very pear shaped person, THANK YOU! The fact i cant handle camping mattresses AT ALL and keeps me out of a lot of things i would like to do outdoors
Same :( Loved the outdoors my whole life but pain and fatigue means I cannot do many of those things anymore even in my 20s… it really sucks.
Yep I have to avoid doing most things that I loved. At least for any certain amount of time. Even traveling by car has really sucked for the past 17 years or so. I swear my for kids are the only things that keep me going. Every pillow mattress, sleeping meds, pain meds, herbs, natural teas. Feel like I’ve tried it all
Yep I have to avoid doing most things that I loved. At least for any certain amount of time. Even traveling by car has really sucked for the past 17 years or so. I swear my for kids are the only things that keep me going. Every pillow mattress, sleeping meds, pain meds, herbs, natural teas. Feel like I’ve tried it all. Not sure what else to do.
Our adrenaline kicks in at night with EDS too. An adrenaline blocker like Metoprolol ER Succinate can help.
This is exactly what happens to me! I get a burst of energy at night 😒
Can you please, please post info about which pregnancy pillow you're using in this video? Thank you for all your support to the EDS/HSD community ! ❤
Thank you for this. I learned a lot that I didn't know as a hypermobile EDS person.
Been sleeping with a bolster about a week now and it's a game changer for me! Thanks so much for the clear, detailed video
Thank you this! Im one of the unlucky ones that is having hypermobility issues almost everywhere. Going to try out some of these!
Thank you for the video. I’ve been currently trying to figure out how to sleep better it’s extremely frustrating when you wake up and you feel like you just had shoulder surgery I had to wear a sling all day.
WHERE DO I BUY ONE OF THESE WRAPAROUND PILLOWS?
sounds like a good thing to try, have found neck pain for me is often when my arms dont help me roll, resulting in my Neck trying to move me.
I finally got all my pillows and ergonomics right, only to now have sleeplessness due to incessant sweats from dysautonomia/POTS 🤦♀️ Too bad EDS is not usually alone 😢
Thank you so much for this! I feel alone and am learning more about hEDS while waiting for an official diagnosis. Everything you're talking about is what I struggle with daily, among many other issues, but this video was a great help!
good to know i'm completely justified in my love of pregnancy pillows. i dont have sleep apnea so i like sleeping a quarter turn to the side-- so mostly on my back but with the ability to curve and stretch my back throughout the night. i have a pregnancy pillow to support my back but it's raised off the firmer mattress. absolute best position because my throat is above my stomach, my back can move freely, my ribs aren't under pressure, my shoulders have minimal stretch/force on them, my knees are bent, and my arms are free.
I do the pillow between the legs. But i have no problem. Or if i sleep on my side and the knee is up. The pillow is under my knee. But yep it does get thrown out
I'd like to commend you on this aaamazing and important video!! Really well thought out. Excellent work 🤠
Wow best Sleep & pain video I've ever watched
I’m 49 And I have EDS + Sleep Apnea, I have to sleep with a CPAP but I want to be able to sleep without subluxations or Dislocations of my joints, too. I have cEDS or Classical EDS. My rib is the problem area mainly during sleep 💤. I have GERD and I noticed that, Thanks for the helpful hint!
I'm a depends on what's going on at the time type person for sleep but best sleep is in a recliner because it's back but not flat either and legs are a little up which helps me with not being completely flat with this and POTS.
I am super excited to have found this video! Can’t wait to watch the rest of your videos.
Hopefully I can find a position to sleep in comfortably when my pillow arrives.
I flip side to side all night long trying to get comfortable. I currently sleep with a pillow between my knees and one under my arm to keep my shoulders more comfortable…still not comfortable.
SI Joint and shoulder instability issues.
Thanks 🙏
The body pillows are genius. I know what I am getting for christmas this year! My ribs are killing me these days.
What kind of pillow is the big gray one? A long pregnancy one? So many helpful tips!!
Yes
it feels so unfair that no doctor has diagnosed me. but i have all the things you are talking about, and you are so educated on it. you know so much. but it’s like not even known about where i am and i’m not getting the right help😭
but i really appreciate you making all these videos. thank you for helping those that are hypermobile i appreciate it so much
im so tired of being sick and tired. i’m in severe pain most days and it’s exhausted and frustrating that the doctors don’t understand what’s going on
Hang in there, it does get better. You’ll start to learn more about your own body, and what it needs, and eventually you get to a point where you can tell the doctors what you need instead of the other way around. Unfortunately, it kind of Has to be that way because people really don’t know a lot about this on average, but you will get there and things will get better. Just don’t give up
@@anabelle672I use this exact same statement.
@@Deadaccount741 finally got my diagnosis’
What's the pillow called I have all of what you've mentioned and not getting good sleep
It's in the pinned comment. I had to sort by "newest" to see it.
Oh my christ THANK YOU!
this has said EVERYTHING ive been trying to explain 🤗🥰🥰
Really helpful video! A lot of great advice and info. I’ve been having a lot of neck issues and tingling down my arm/hand and a lot makes sense now. I’ll be getting one of those pillows to try asap 👍
Good,informative video. I would just like to add that one of the problems with the pregnancy pillows for me is that I find them too hot. I have transitioned from back sleeping to side sleeping but still only get decent sleep if I am cool. For me this is a summer weight duvet in the depths of winter and only a cotton sheet in summer. As you say trial and error. 🙂
It’s funny that you mention that as I run hot constantly as well. The C pillow I use comes with different covers, and then one I have is the cool cover, it doesn’t heat up 😀
Maybe a bamboo wife might be an option it's not the same but it might help against the heat plus with stabilizing hips and shoulders
R u in the Deep South?
I have to be warm enough to sleep but I do like it mid60s ideally, in the room
Lotttttts of covers
@@Thefibroguysilk pillowcases stay cold
I'm looking forward to a NO PAIN morning!
I’ve learned to sleep against the wall at a diagonal angle. I’ll set up a blanket against the wall, a soft pillow, and a body pillow in front of me to separate my arms and legs
I Front sleep with CPAP machine so can have my face down a bit more. I have 2 thin pillow and so i can have my head in a better position, i kinda cuddle one of the pillows.
We also have a water bed which molds to your body shape. It's so good.
Shoulders are a major issue for me. I've also go a very large chest.
I suspect my ribcage hypermobility is twisting while I'm asleep and causing my diaphragm on the right to not function properly. Any suggestions? My serratus anterior on the right is chronically tight and might be pulling the ribs.
I have GERD and sleeping on my right where stomach is in higher position is terrible. Left and back - kind of ok. Front, hips in so much pain on waking. I have type 3
thankyou!! all my pains and aches / and hacks explained. appreciate all the info and detailed demos.
On my back with a neck brace is the only thing that works for me. Also solo sleeping in my own room (my chihuahua is allowed but no partner). Or I won’t sleep.
Very interesting video. I'm thinking of trying one of those pillows, does it need to be S shaped or would a flexible U shape do the same?
i knew the need for a soft mattress had to be related. i noticed a big difference staying long term with family using an old firm mattress vs. the two futon mattresses i had stacked with a pillow top cover. my body is literally crying for replacements.
My SI dislocates every single night, plus all the other benefits of fibro and eds and myasthenia Gravis
I sleep all over the place 😅 constantly moving trying to find a pain free position ... buying a pregnancy pillow, my symptoms are hips, leg, back, neck and shoulder mainly on the right side. Tried smaller pillows/props in the past with no joy so maybe the bigger pillow will help. Tiny hips . Good video 👍
28:02 dude u sold me on the pillow here lol. I need it, for all these reasons ai feel like it could help me a lot. It takes me a while every-night just to get too comfortable, with this U pillows it could be so beneficial and make it so much easier to sleep! Needless to say, I might have EDS and life is difficult. Any of these pillows you can recommend or link? I will check on Amaz but I must have one, looks well comfy😊 Thanks for the informative video.
I sleep in stable side position most of the time everything else feels to wobly . But i get inflamation of my chest bone sometimes from the presure . so this is a really good video 😅
I think that's what's going on for me right now! Not fun.... How's yours doing and did anything help? @ninavandenabbeele9667 ?
@@neon.neutral to be honest it comes and goes so far taking anti inflammatory painkillers like ibuprofen and putting something under my arm so it doesn’t pull my shoulder down helps the most . But there’s not much else you can do for pain in other joints gaining more muscle seems to help
I have more problems with pain when sitting or standing still. So i tend to lie up on couch a lot even to eat. I fall asleep after eating all the time. Also wake up in the most random places. As once u get into any comfy position especially if your tired from waking up at random times i just conk out. My dog helps my pain so when I lie down to cuddle him. I sometimes wake up in his bed or on kitchen floor beside him 😂 not good for the stiffness when u wake up tho
I can only sleep on my stomach. Side sleeping makes my neck, shoulders and hips sore, and sleeping on my back is really painful. And yes, I too sleep with my face on the edge of the pillow to keep my neck as neutral as possible.
As a Zebra who loves side sleeping, it depends on whats bad that night. I can have my hips or shoulders sublux or fully dislocate, i have a horrible stomach so laying down causes vomiting sometimes. Plus neck and back issues. Oh and slipping ribs that if you accidently roll onto youll stop breathing its too painful. Neuropathy makes it hard when your nerves catch fire and start twitching. Also, neurodivergence causes the brain to kick on andmake sleep a forgotten idea. Sleep feels impossible most of the time. I used to take hard sleep drugs to knock me out than deal with the consequences of how i end up sleeping in the am. Now i just deal with lack of sleep :( lol. We appreciate these tips luv!
Oh, and of course blood pooling from the dysautonomia, can't forget that lol
I have hEDS and experience most of what you talked about. I never realized some of this was happening, i.e. my hyoid bone slipping. It's good to put a name, so to speak, to it. Where can I find that pillow?
Wow thank you for explaining all these issues. Now how do you go about switching sides with this pillow? Or do you not?
Thank you so much for this. I watched it from beginning to end and learned more in thirty minutes from you, than thirty years of living with hypermobilism.
Also, what size if your bed, it's huge!
I finally got diagnosed with hypermobility last year but have struggled with it my whole life. Sleep has always been hard for me. Insomnia since high school. I can only sleep flat on my back, or I may pop my collar bone out of place😢 just have to learn tricks.
Side sleeping and mild scoliosis meant a permenently subluxed collar bone for me. Turns out it’s extra high on one side due to my being rotated. It used to hurt a lot and though over time the pain went away the issue has not. Probably won’t as long as I have scoliosis.
I had major SI joint problems and my right hip subluxates. My PT had me transition to my back. Now I sleep with a pillow under my legs on my back. Recently my ribs have been subluxating and shoulders feel collapsed. Haven’t been able to sleep for 3 days. I have a firm mattress that helps keep my hips in place but can feel all my ribs moving throughout the night and can’t sleep because of it. The only place that seems to help is sleeping on the floor with my ribs to almost keep them stable, but my sacrum is super achey if I’m there for more than an hour. Any tips on what to do or try??? Mattress seems to aggravate my currently unstable ribs because the mattress seems to still be not firm enough as the floor. But sitting up causes my lower back and hips to ache when put into a posterior tilt.
This has literally been my problem. A recent fall messed up my ribs so badly snd they won’t stop slipping out and causing a great deal of pain and affecting my sleep in all positions. I hope you have found some relief :(
I've personally noticed sleeping with a brace of sorts, or creating a brace (pushing the joints in place then wrapping them in place to sort of hold things in place during the night) can help when my body is acting up more. The last time I accidentally slightly dislocated a rib I literally slept with a foam roller bound to that area to sort of hold it in at night. I've slept eith knee braces, shoulder braces, supportive posture correctors to keep things more in place. Bandage stretchy wrap or tape is a go to for me as well. I wonder if there are rib braces safe to sleep in? A way to wrap the ribs in general alignment? In the long run I found strengthening stabilizing muscles - keeping them stronger in general than most people ever have to worry about - helps reduce the amount of subluxation that happens but I also understand that they can only do so much.
You may find this useful Vanessa: th-cam.com/video/RpUwbaPzLyU/w-d-xo.html
I swear by sleeping with a knee pillow between my legs to help with hip pain ❤ great video
Thank you for this amazing video! I'm going to try one of those pillows!
Great info, but I have an off-topic question... dude, how big is your bed?? Is that an Alaskan king?
Brilliant video. I feel so seen 🥲
Thank you so much for this -- you've described my experience perfectly! Question: What size *IS* that bed!? Is it 2 queens put together?
California king B)
I was a front sleeper as a child, then a side sleeper. After hip surgeries and DDD I’m down to my back. Adjustable bed in zero gravity position is great for me. I love sleeping on my side, but too much pain. Oh well.
Oh, 65 hEDS