Socially Constructing Down Syndrome: Confessions of a Rockin Mom | Cara Jacocks | TEDxACU

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  • เผยแพร่เมื่อ 25 พ.ค. 2017
  • Cara discusses common Down Syndrome myths and explain how a community of “rockin moms” (moms of kids who “rock” an extra copy of the 21st chromosome) are working to socially construct society’s “next” conversations about DS through critically examining the impact of our language choices.
    As a communication scholar, Cara has always known that words are powerful. But her scholarship took a personal turn in 2013 when her son, Everett, was born and diagnosed with Down Syndrome. You can find her talking more about her experiences on her blog at mamability.com.
    This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx

ความคิดเห็น • 44

  • @juanitaneil1891
    @juanitaneil1891 7 ปีที่แล้ว +35

    Cara is my brilliant sister-in-law and Everett is my amazing, adorable nephew. As a nurse, I am disgusted by the things that nurse said and I apologize on behalf of my profession. Cara, your analysis and conclusions for the way ahead are incredible, and spot-on. Thank you for this insightful, and enlightening message.

    • @justinoiler9749
      @justinoiler9749 5 ปีที่แล้ว +1

      Leax atoaf
      Adam boact

    • @pookysgrl
      @pookysgrl 4 ปีที่แล้ว +2

      Juanita Neil - me too! I have a 25 year old bro with DS. I love that man so much, my life is forever changed for good by him. My bro rides bikes, reads, speaks full sentence, the empathy he has is beautiful! He’s still learning new things. I want to be part of the change.

    • @Bffs4life797
      @Bffs4life797 6 หลายเดือนก่อน

      @@pookysgrl I have a friend who has Down syndrome who’s 20 and when we were in public someone was staring at him and i looked at her and she looked away as soon as she saw me staring back and i almost started laughing because she was acting like a child i mean I can show my mean side if you make fun of my friends 😂. I agree with her and u.

  • @MrStaybrown
    @MrStaybrown 2 ปีที่แล้ว +5

    My son has down syndrome and I encounter people from all walks of life that are just mean hearted..teachers are the worst, certain family members are very insensitive, patronizing people.
    Amazingly how people you thought were friends all of sudden stop talking to you when they find out you have a child with a disability.

    • @Hai_Doan
      @Hai_Doan 2 ปีที่แล้ว +3

      I am with you. 💙 I myself am a disabled person, so I know how mean some people can be to the disabled.

  • @bettymoonlight6203
    @bettymoonlight6203 ปีที่แล้ว +4

    I agree, people with Down syndrome are more alike all people than not, except they bring joy, love, amazing hugs, non-judgmental on a higher level to their families.

    • @Bffs4life797
      @Bffs4life797 7 หลายเดือนก่อน

      I agree I have friends with Down syndrome and they have changed the person who I am and i hate the r word and “downs”.

  • @louiseking4519
    @louiseking4519 5 ปีที่แล้ว +4

    Good for you, go tell the truth. Children are gifts to us, in many way they come.

  • @Us3r_x
    @Us3r_x 7 ปีที่แล้ว +12

    Informing the uninformed. Brilliant! :)

  • @TsukiNaito1
    @TsukiNaito1 3 ปีที่แล้ว +1

    Wow. I went to ACU. When she described the nurse, I just thought "Yep, that's Abilene, TX."

  • @patsycav
    @patsycav 6 ปีที่แล้ว +15

    Great answer, Cara..."how high functioning are you?" So on point. Namaste.

    • @justinoiler9749
      @justinoiler9749 5 ปีที่แล้ว +1

      Justin
      Jessica
      Melissa
      Todd
      Danielle
      Luis
      Misty
      Scott
      Megan
      Mike
      Michelle
      Kevin

    • @blackalien6873
      @blackalien6873 2 ปีที่แล้ว

      Enough to live independently and pay my own bills.

  • @pookysgrl
    @pookysgrl 4 ปีที่แล้ว +7

    The selective termination breaks my heart. It would be great to encourage those potential parents to spend time with the beautiful people with that huge EXTRA. Extra love, extra hugs, extra laughs & your heart grows so much bigger.

    • @InventaChris
      @InventaChris ปีที่แล้ว

      You have no clue what you're talking about.
      DS is a severe intellectual disability, not just a cosmetic condition.
      Most DS people have heart issues, risk of early dementia, and infertility.
      Most DS adults have the intellectual capacity of 8-9 year old children and likely won't be independent.

  • @spoonyquine1584
    @spoonyquine1584 6 ปีที่แล้ว +11

    Lol, "how high-functioning are you?" May be the words of an exhausted mom, but ive wanted to ask people that if they have asked me that.

  • @randomamy615
    @randomamy615 5 ปีที่แล้ว +6

    This video needs more views!!!!

  • @christipena9487
    @christipena9487 3 ปีที่แล้ว +2

    WHOOOO THATS MY PROFESSORRRRR!!!

  • @Bffs4life797
    @Bffs4life797 6 หลายเดือนก่อน

    My school lets the ec class eat lunch with us and come to the pep rally’s and they have a ec prom and they have a class where they go help them

  • @aceg3095
    @aceg3095 5 ปีที่แล้ว +9

    I wouldn't want to bring a kid into this cruel world who will be treated with redundant obstacles for the rest of his/her life.

    • @michelehilgart6329
      @michelehilgart6329 5 ปีที่แล้ว +13

      Then don't have kids.

    • @me16047
      @me16047 2 ปีที่แล้ว +4

      Nonsense everyone's got obstacles some just tolerate it better.

    • @InventaChris
      @InventaChris ปีที่แล้ว +1

      @Michele Hilgart
      Not wanting a DS kid is perfectly valid.
      DS is a severe intellectual disability, not just a cosmetic condition.
      DS people have higher risk of heart issues, early dementia, and infertility.
      Most DS adults have the intellectual capacity of 8-9 year old children and likely won't be independent.

  • @marionb.7635
    @marionb.7635 ปีที่แล้ว

    ❤ from France

  • @NAConen
    @NAConen 2 ปีที่แล้ว +4

    To equate someone calling him a “downs boy” with the phrase “down, boy” - a command you’d give your dog, is absurd. Just because they sound similar phonetically doesn’t mean the meaning is anywhere close to being similar. That’s such a disingenuous reach. 🙄

  • @kelmoy6343
    @kelmoy6343 4 ปีที่แล้ว +1

    Cara jacocks

  • @justinoiler9749
    @justinoiler9749 5 ปีที่แล้ว +2

    Oiler with son's girlfriend
    Oiler's mommy & step dad
    oldest daughter & son in law
    Step sister & Son in law

  • @melissaoiler2414
    @melissaoiler2414 4 ปีที่แล้ว +2

    Justin Pullin
    Melissa momma
    Mike step dad
    Danielle Pullin sister
    Luis Luciano Brother
    Misty Brown sister
    Scott Brown Brother
    Megan Ellis sister
    Mike Ellis Brother
    Michelle Story sister
    Kevin Story Brother

  • @judgeonan4526
    @judgeonan4526 ปีที่แล้ว +2

    Why just moms though?

  • @AstralJam
    @AstralJam 5 ปีที่แล้ว +3

    I hope she and her child are well. The story about the woman asking her how high functioning her child will be was almost certainly purely fictitious.

    • @sharonmiller9100
      @sharonmiller9100 2 ปีที่แล้ว +5

      Huh? No it's not... I have a 5 month old with Down Syndrome. The number of times people have asked me this is numerous. Especially with older people and some well meaning nurses. I never know exactly how to respond. Of course we all want high functioning kids. But not everyone is or will be... it's a hurtful question, really... and is altogether too common.

  • @NAConen
    @NAConen 2 ปีที่แล้ว +7

    If you are willing to have a child with DS, you have the financial means for the extra care and you have the extra time, more power to you, but the majority of women don’t have that luxury and I’m in favor of NOT guilt tripping them for exercising their right to choose what’s best for them and their families.

    • @clairemcneil2038
      @clairemcneil2038 วันที่ผ่านมา

      As with anything that happens to anyone who loves their children, whatever your circumstances you find a way and your life becomes richer for it. I hope you have the wonderful opportunity to learn this glorious lesson of life one day. Life has more colour with such circumstances that challenge us to grow. With love and respect from a single-parent of a wonderful two year old girl with DS.

  • @TheTruth-ju9fm
    @TheTruth-ju9fm 6 ปีที่แล้ว +7

    She lost me when she started about "I suggest we start using different language"

    • @NAConen
      @NAConen 2 ปีที่แล้ว +3

      She lost me when she said it was callous to say, “Your baby has Downs.” Uhmm did she not want to be told?
      (The “save the better name for your next kid” comment was weird, though).

    • @katedawson6020
      @katedawson6020 2 ปีที่แล้ว

      Why? language evolves ... if Downs Syndrome has negative associations, as other offensive labels used in the past have and are now no longer used (eg. spastic) then its obvious there's a need for change. Sounds like you are a bit flakey and oversenstive LOL

  • @ricardodavila9000
    @ricardodavila9000 3 ปีที่แล้ว +5

    If live gives you lemons you make lemonade and zip it with a smile. If I had a choice I'll stick with cool aid. No thanks lady! If I were a woman I would never be so selfish to bring a highly disabled child into this cruel world.