Thank you! I needed to hear I’m not alone in this 16 year battle of 24/7 365 pain. The neuro I’d trusted for over 30 years of having 1 hormonal migraine a month accused me of making this up when I didn’t improve over 4 years of trying everything suggested by Jefferson Headache. She said “You’ve tried everything that has worked for EVERYONE else so you’re making this up”. When I asked how I was supposed to be a mom while in so much pain, she replied “Go to an ER”. That was just the beginning of the verbal attacks I’ve endured from medical professionals.
I've got the m 24/7 in my upper body not head anymore base if neck shoulders feal sick just the same years been going on to I had conventional migraines 25 years ago also 24/7
I had a horrible head pain that lasted weeks. Turned out I was leaking CSF and my brain had slumped in my skull. If you have head pain that wont stop look into the possibility of a Cerebrospinal fluid leak.
Do you have hypomobility my migraine is now 24/7 shoulders armpits area no headache moved over years.i though of spd leak but it doesn't get better on lying down most of the time and no headache nowadays
![[MV] A leap of faith...ความเชื่อใจครั้งสุดท้าย (From "Petrichor the series")](http://i.ytimg.com/vi/U1piZH2CNXA/mqdefault.jpg)
Excellent presentation
Thank you! I needed to hear I’m not alone in this 16 year battle of 24/7 365 pain. The neuro I’d trusted for over 30 years of having 1 hormonal migraine a month accused me of making this up when I didn’t improve over 4 years of trying everything suggested by Jefferson Headache. She said “You’ve tried everything that has worked for EVERYONE else so you’re making this up”. When I asked how I was supposed to be a mom while in so much pain, she replied “Go to an ER”. That was just the beginning of the verbal attacks I’ve endured from medical professionals.
I've got the m 24/7 in my upper body not head anymore base if neck shoulders feal sick just the same years been going on to I had conventional migraines 25 years ago also 24/7
Have you found any treatments for daily chronic vestibular migraine that actually work?
I had a horrible head pain that lasted weeks. Turned out I was leaking CSF and my brain had slumped in my skull. If you have head pain that wont stop look into the possibility of a Cerebrospinal fluid leak.
Do you have hypomobility my migraine is now 24/7 shoulders armpits area no headache moved over years.i though of spd leak but it doesn't get better on lying down most of the time and no headache nowadays
I have 24/7 migraines and started at age 67 and is in pain constantly. It’s very debilitating and I don’t accomplish very much.
Nothing works for you apparently ADHD meds can help check out Dr lenz